By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference.
Many accessibility solutions are structural; they require collective action — constructing spaces such that wheelchairs [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By amandaw on 15 October, 2009
(Originally posted November 2008 at three rivers fog.)
I had always meant to expand upon this topic, but never found the right words for it, succinct and meaningful. But, well, that’s not exactly my style either.
My job situation is still shitty, and I’m currently part-timing at a retail pharmacy as a cashier. (Sample day: Mid-20s white [...]
Posted in accessibility, Uncategorized | Tagged ableism, accessibility, barriers to access, chronic illness, disability, health care, illness, invisibility, invisible disability, justice, me, medical care, participation, personal, privilege, problematic attitudes, spoons, stories
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.]
There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”.
Here’s the latest product of that industry. They took 38 [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog)
Over half of the chronically ill*:
In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so good!”
“Although telling [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By amandaw on 12 October, 2009
(Originally posted a month ago at three rivers fog; in the meantime, news also came out that things like acne were considered pre-existing conditions as well: consider any and all further outrage well and fully included in the subject of this post.)
You’ve undoubtedly heard the news already. A history of domestic violence or C-section are [...]
Posted in accessibility, blaming, feminism, intersectionality, justice, medical practice, social attitudes | Tagged ableism, asthma, autism, chronic illness, chronic pain conditions, difference, disability, exclusion, feminism, health care, health care is an accessibility issue, health conditions, illness, intersectionality, justice, medical care, mental illness, privilege, problematic attitudes, social policy, social treatment, things people say
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