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fibro

Depending on narcotics

By amandaw on 23 October, 2009

I take six medications. Five of them — the antiepileptic, the antidepressant, the non-narcotic pain killer, the muscle relaxer, and the oral contraceptive — are covered through a mail-order service. I receive a 90-day supply in my mail box every three months. No hassle. If a prescription runs out, my doctor is notified electronically, he [...]

Posted in blaming, bodies, language, medical practice, shaming, social attitudes | Tagged ableism, addiction, barriers to access, Big Bad Pharma, chronic illness, chronic pain conditions, conceptions of disability, disability, drugs are bad mmm'kay, fibro, fibromyalgia, health care, invisible disabilities, invisible disability, life, medical care, medications, mislabelling, myths and misconceptions, pain management, problematic attitudes, social policy, social treatment, symptoms, things people say | 25 Responses

Ill

By kaninchenzero on 15 October, 2009

The topic of mental illness came up again with the latest large-scale hate crime against women to make national news. It’s a nice easy narrative for George Sodini to be a psycho, to be crazy, to be mentally ill because then we don’t have to understand him. We don’t have to relate, because [...]

Posted in 101, activism, blaming, identity, intersectionality, language, mental health | Tagged autism, chronic pain conditions, fibro, language, mental illness, racism | 9 Responses

Who hates to hear they look great?

By amandaw on 12 October, 2009

(Originally posted July 2007 at three rivers fog)
Over half of the chronically ill*:
In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so good!”
“Although telling [...]

Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say | 16 Responses

Where I jump in and defend pills...

Where I jump in and defend pills…

By Ouyang Dan on 10 October, 2009

Moderatrix note: This post is the love child of my coming to terms with a need and actual want of pills.
When discussions arise of disability, especially, it seems, of invisible disabilities, someone will almost always jump in and start harping about Big Pharma and how they have certainly invented our illness or disorder just to [...]

Posted in autonomy, shaming | Tagged chronic pain conditions, drugs are bad mmm'kay, fibro, pain management | 2 Responses

It’s Your Fault: Socially Acceptable Disability and Popular Causes

By meloukhia on 7 October, 2009

Read a Czech translation of this post, done by Vera! Thank you, Vera!
In the furor of discussion on my post about breast cancer awareness campaigns which use exclusionary tactics, several commenters brought up some important points when we talked about why breast cancer has become such a high profile cause. Anna pointed out that breast [...]

Posted in blaming | Tagged causation, Czech translation, fibro, social policy | 1 Response

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