By amandaw on 1 May, 2010
(Cross-posted at three rivers fog. See more BADD 2010 at Goldfish’s blog.) I’m pretty open about my health issues. To be honest, I don’t know any other way to be. I know how to strategically hide my disabilities from strangers in passing interactions, but from the people with whom I interact on a daily basis? [...]
Posted in accessibility, invisibility, small stories, social attitudes, work | Tagged ableism, accessibility, assholes, badd, badd 2010, chronic illness, chronic pain, disability, disclosure, head asplode, health, migraines, myths and misconceptions, pain, pain management, pain triggers, passing, personal, problematic attitudes, social treatment, stories, things people say, welcome to my life, work
By amandaw on 24 October, 2009
(Originally posted July 2009 at Feministe, three rivers fog.) We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it? I advocate an intentionally [...]
Posted in identity | Tagged ableism, accessibility, autism, cfids, cfs, chronic fatigue syndrome, chronic illness, chronic pain conditions, conceptions of disability, difference, disability, disability movement, exclusion, fibromyalgia, identity, intersectionality, invisibility, invisible disabilities, invisible disability, isolation, language, mental illness, models of disability, participation, passing, privilege, self-identification, self-perception, social inclusion, social model, social treatment, symptoms
By amandaw on 23 October, 2009
(Cross-posted at three rivers fog.) I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have. *** For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell [...]
Posted in blaming, i'm right here, media and pop culture, shaming, social attitudes, Uncategorized | Tagged ableism, abuse, addiction, causation, characters with disabilities, chronic illness, chronic pain, chronic pain conditions, disability, disability in fiction, disabled characters, disclosure, drugs are bad mmm'kay, erasing, fibromyalgia, House M.D., invisibility, invisible disabilities, invisible disability, life, me, medications, myths and misconceptions, pain management, passing, personal, pop culture, privilege, problematic attitudes, shaming, social treatment, stereotypes, stories, television, things people say, work
By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference. Many accessibility solutions are structural; they require collective action — constructing spaces such that [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By Annaham on 16 October, 2009
The singer Martha Wainwright has a song entitled “Bleeding All Over You” that begins with the following set of lyrics: There are days when the cage doesn’t seem to open very wide at all I know it sounds negative, but some days, I can definitely relate. Maybe it’s the fact that I pass fairly regularly [...]
Posted in bodies, identity | Tagged chronic pain conditions, fibromyalgia, invisible disabilities, normality, passing
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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