By kaninchenzero on 15 March, 2010
[This here is a warning that the author has written a post about, amongst other things, being depressed and suicidal. For this reason there is a clicky thing. Use it in whatever health you got. Also please note that with respect to my wife and our marriage you are getting exactly one perspective--mine--and everything is [...]
Posted in introspective, life changes, mental health, normality | Tagged communication, employment, health care, me, mental illness, social treatment
By Ouyang Dan on 23 February, 2010
see more Lolcats and funny pictures A couple of weeks ago I asked my PCM for a referral to OB/GYN to replace the IUD that I had to surrender over the summer. She and The Guy and I have been talking for some time about the options and realities of having another child with my [...]
Posted in i'm right here, medical practice, reproductive justice | Tagged disability, health care, me, medical care, personal, privilege
By amandaw on 23 October, 2009
(Cross-posted at three rivers fog.) I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have. *** For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell [...]
Posted in blaming, i'm right here, media and pop culture, shaming, social attitudes, Uncategorized | Tagged ableism, abuse, addiction, causation, characters with disabilities, chronic illness, chronic pain, chronic pain conditions, disability, disability in fiction, disabled characters, disclosure, drugs are bad mmm'kay, erasing, fibromyalgia, House M.D., invisibility, invisible disabilities, invisible disability, life, me, medications, myths and misconceptions, pain management, passing, personal, pop culture, privilege, problematic attitudes, shaming, social treatment, stereotypes, stories, television, things people say, work
By lauredhel on 22 October, 2009
This post was originally posted on March 19, 2009 at Hoyden About Town. New Scientist this week published an interview with infamous psychiatrist Simon Wessely. Wessely persists in believing, in the face of all the evidence, that Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME)* is a uniquely UK/American psychological condition caused by internet-triggered “faulty illness beliefs”. Here’s [...]
Posted in blaming, medical practice | Tagged cfids, cfs, cfs/me, disability, fibromyalgia, gulf war syndrome, illness beliefs, irritable bowel syndrome, me, psychological, psychologisation, psychologization, symptoms, wessely
By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference. Many accessibility solutions are structural; they require collective action — constructing spaces such that [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By amandaw on 15 October, 2009
(Originally posted November 2008 at three rivers fog.) I had always meant to expand upon this topic, but never found the right words for it, succinct and meaningful. But, well, that’s not exactly my style either. My job situation is still shitty, and I’m currently part-timing at a retail pharmacy as a cashier. (Sample day: [...]
Posted in accessibility, Uncategorized | Tagged ableism, accessibility, barriers to access, chronic illness, disability, health care, illness, invisibility, invisible disability, justice, me, medical care, participation, personal, privilege, problematic attitudes, spoons, stories
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.] There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”. Here’s the latest product of that industry. They took [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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