By Annaham on 15 June, 2010
dhobikikutti (DW): This is also needed: A Space In Which To Be Angry And what I have realised is that there is a sixth component to zvi‘s rules, and that is that complaining about and calling out what you do not like does help, slowly, painfully, get rid of it. Every time I see friends [...]
Posted in activism, medical practice, normality, othering, politics, poverty, race, recommended reading, representations, social attitudes | Tagged ableism, anger, anti-racism, appropriation, art, cfs, cfs/me, chronic fatigue syndrome, chronic pain, creative writing, derailing, disabled artists, fandom, identity, media, medical practice, medicine, othering, political media, race, self-help, spina bifida, tv, vaccine, visual art
By amandaw on 24 October, 2009
(Originally posted July 2009 at Feministe, three rivers fog.) We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it? I advocate an intentionally [...]
Posted in identity | Tagged ableism, accessibility, autism, cfids, cfs, chronic fatigue syndrome, chronic illness, chronic pain conditions, conceptions of disability, difference, disability, disability movement, exclusion, fibromyalgia, identity, intersectionality, invisibility, invisible disabilities, invisible disability, isolation, language, mental illness, models of disability, participation, passing, privilege, self-identification, self-perception, social inclusion, social model, social treatment, symptoms
By lauredhel on 22 October, 2009
This post was originally posted on March 19, 2009 at Hoyden About Town. New Scientist this week published an interview with infamous psychiatrist Simon Wessely. Wessely persists in believing, in the face of all the evidence, that Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME)* is a uniquely UK/American psychological condition caused by internet-triggered “faulty illness beliefs”. Here’s [...]
Posted in blaming, medical practice | Tagged cfids, cfs, cfs/me, disability, fibromyalgia, gulf war syndrome, illness beliefs, irritable bowel syndrome, me, psychological, psychologisation, psychologization, symptoms, wessely
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.] There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”. Here’s the latest product of that industry. They took [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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