By Guest on 24 December, 2010
Eliot Renard is a genderqueer, feminist, socialist Chicagoan who enjoys making math and science accessible and fun for students through various online tutoring programs. Ze also has a health blog, personal blog and tumblr, because compartmentalizing is fun. This is the second post of a short series; part one, “Rocky Beginnings,” can be read here. [...]
Posted in guest post | Tagged chronic fatigue syndrome, chronic pain, chronic pain conditions, depression, family, family dynamics, fibromyalgia, guest post, personal, personal stories, social attitudes
By Guest on 16 December, 2010
Eliot Renard is a genderqueer, feminist, socialist Chicagoan who enjoys making math and science accessible and fun for students through various online tutoring programs. Ze also has a health blog, personal blog and tumblr, because compartmentalizing is fun. I began experiencing the symptoms of what I now know to be depression, fibromyalgia and chronic fatigue [...]
Posted in guest post | Tagged childhood illness, chronic fatigue syndrome, chronic pain conditions, depression, family, family dynamics, fibromyalgia, guest post, mental health, personal, social attitudes
By Annaham on 16 November, 2010
Peggy Orenstein for the New York Times Magazine: The code-words of breast cancer awareness Fast-forward to today, when, especially during October, everything from toilet paper to buckets of fried chicken to the chin straps of N.F.L. players look as if they have been steeped in Pepto. If the goal was “awareness,” that has surely been [...]
Posted in recommended reading | Tagged age, asexuality, awareness, birth control, breast cancer, cerebral palsy, chronic pain conditions, coming out, fibromyalgia, fraud, homeopathy, medicine, mental illness, normality, post-traumatic stress disorder, PTSD, queer
By Annaham on 8 November, 2010
One of the more bizarre stereotypes (if one can call it that) about people with fibromyalgia is that we obsess over “every little ache and pain,” to the detriment of ourselves and much to the apparent annoyance of the “normal” people around us. Here’s the thing: If I were to obsess over my pain in [...]
Posted in 101, blaming, normality, othering, social attitudes | Tagged abled privilege, chronic illness, chronic pain conditions, disabled people are scary, fibromyalgia, myths and misconceptions, normal is only one option, pain management, positive thinking, rethinking social norms, social attitudes, this all sounds awfully familiar
By Ouyang Dan on 18 October, 2010
I’ve been in hiding. I admit it. I’ve been shoving myself headlong into activities that keep my busy, and exhausted. Still I always feel This strange estrangement Nothing here is real, nothing here is right* “Wow! Aren’t you Supermom?” Well, not really. It just keeps me occupied. Just hoping no one knows That I’ve been* [...]
Posted in introspective | Tagged chronic pain conditions, coping, disability, personal
By Ouyang Dan on 1 October, 2010
Overarching Moderatrix Trigger Warning for Strong Language. And by “Strong Language” I mean that I swear a lot. I pretty much knew that my life was going to get fucked up when my doctor had a Permanent Change of Station (PCS). I knew this, because according to the laws of karma to which I tend [...]
Posted in accessibility, i'm right here, intersectionality, military, oyd rants, social attitudes | Tagged ableism, accessibility, barriers to access, chronic pain conditions, disability, drugs are bad mmm'kay, for your own good, health care is an accessibility issue, intersectionality, military, myths and misconceptions, pain management, personal, problematic attitudes, social treatment
By Annaham on 25 September, 2010
[Image description: Four bottles of perfume in front of and resting upon some books; the bottles are labeled "Australian Copperhead," "Banded Sea Snake," "Cottonmouth," and "Asp Viper," respectively. Image courtesy of Black Phoenix Alchemy Lab.] Today, I am taking a page from amandaw’s awesome series “Things That Make My Life Easier” and have chosen to [...]
Posted in happy posts | Tagged black phoenix alchemy lab, BPAL, chronic pain, chronic pain conditions, fibromyalgia, good things, happiness, love, made of awesome, scents, treatment
By Ouyang Dan on 30 August, 2010
I received an email from my Primary Care Manager the other day. She responded to my message that I needed refills even though it wasn’t time for me to come back in for a visit yet to let me know she had arranged for all of my scripts. At the end was something that winds [...]
Posted in life changes, military, oyd rants | Tagged bad sports metaphors, chronic illness, chronic pain, chronic pain conditions, disability, health care is an accessibility issue, military, pain management
By Ouyang Dan on 18 August, 2010
Not many of you would know this but I had my first experience with acupuncture the other day. I went to see a physical medicine doctor about a TENS unit because my current dose of my narcotic pain medication for breakthrough migraine and body pain is no longer sufficiently covering the amount of breakthrough pain [...]
Posted in accessibility, intersectionality, military | Tagged accessibility, acupuncture, chronic pain, chronic pain conditions, disability, drugs are bad mmm'kay, health care is an accessibility issue, intersectionality, medical care, military, myths and misconceptions, pain management, problematic attitudes
By Annaham on 17 August, 2010
Sarah Fenske at the Phoenix New Times: ‘Til Death Do Us Part: They Got Married. Then Everything Changed This is a love story, albeit one with a medical twist. Unbeknownst to anyone — including Kevin himself — there was a tumor the size of a Granny Smith apple pressing onto Kevin’s brain. Kevin didn’t need [...]
Posted in art, race, recommended reading, social attitudes | Tagged activism, cancer, cancer treatment, chronic pain, chronic pain conditions, creative work, feminism, gender, mental health, mental illness, pain, privilege, race, relationships, social attitudes, theater
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