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cfs/me

CFS/ME and “faulty illness beliefs”: The incredible hubris of the psychiatro-patriarchal complex

By lauredhel on 22 October, 2009

This post was originally posted on March 19, 2009 at Hoyden About Town.
New Scientist this week published an interview with infamous psychiatrist Simon Wessely. Wessely persists in believing, in the face of all the evidence, that Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME)* is a uniquely UK/American psychological condition caused by internet-triggered “faulty illness beliefs”.
Here’s [...]

Posted in blaming, medical practice | Tagged cfids, cfs, cfs/me, disability, fibromyalgia, gulf war syndrome, illness beliefs, irritable bowel syndrome, me, psychological, psychologisation, psychologization, symptoms, wessely | 12 Responses

Psychiatrists see reasonable adaptations to CFS, label it “cause” and “maladaptation”

By lauredhel on 13 October, 2009

[This post was originally posted at Hoyden About Town on April 27, 2009.]

There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”.
Here’s the latest product of that industry. They took 38 [...]

Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science | 7 Responses

On ambient intimacy and assistive devices

By lauredhel on 12 October, 2009

[This post was originally posted at Hoyden About Town on January 27, 2009.]
I was having a discussion about ambient intimacy in a couple of elsewheres, where I tried (and possibly failed) to say that what is so reviled by opinion editors and other meatsnobs can be useful in all sorts of ways.
I like the [...]

Posted in accessibility | Tagged adaptive, assistive devices, cfids, cfs, cfs/me, chronic fatigue syndrome, internet, isolation, me, participation, social inclusion, twitter | 6 Responses

Stop and think: invisible access for invisible disabilities

By lauredhel on 11 October, 2009

[This post was originally posted at Hoyden About Town on May 4, 2007.]
This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I haven’t [...]

Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university | 6 Responses

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