By Annaham on 26 October, 2010
firecat at Party in my head (DW): How To Be Sick I went to this talk because I have chronic health conditions that affect my mobility and energy levels, and I am a caregiver for my mother, who has Alzheimers. I’m a Buddhist and my study of Buddhism has helped me work through grieving over [...]
Posted in recommended reading | Tagged ADHD, bodies, cfs/me, chronic fatigue syndrome, chronic illness, disability is a feminist issue, female sexual disfunction, feminism, gender, intelligence, invisible disability, mental health, normality, parenting, social attitudes, spirituality, things people say
By Annaham on 15 June, 2010
dhobikikutti (DW): This is also needed: A Space In Which To Be Angry And what I have realised is that there is a sixth component to zvi‘s rules, and that is that complaining about and calling out what you do not like does help, slowly, painfully, get rid of it. Every time I see friends [...]
Posted in activism, medical practice, normality, othering, politics, poverty, race, recommended reading, representations, social attitudes | Tagged ableism, anger, anti-racism, appropriation, art, cfs, cfs/me, chronic fatigue syndrome, chronic pain, creative writing, derailing, disabled artists, fandom, identity, media, medical practice, medicine, othering, political media, race, self-help, spina bifida, tv, vaccine, visual art
By lauredhel on 22 October, 2009
This post was originally posted on March 19, 2009 at Hoyden About Town. New Scientist this week published an interview with infamous psychiatrist Simon Wessely. Wessely persists in believing, in the face of all the evidence, that Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME)* is a uniquely UK/American psychological condition caused by internet-triggered “faulty illness beliefs”. Here’s [...]
Posted in blaming, medical practice | Tagged cfids, cfs, cfs/me, disability, fibromyalgia, gulf war syndrome, illness beliefs, irritable bowel syndrome, me, psychological, psychologisation, psychologization, symptoms, wessely
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.] There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”. Here’s the latest product of that industry. They took [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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