By Annaham on 19 September, 2010
In my last post, I talked about the painful physical process of the near-fatal allergic reactions that I’ve been having since the age of 14. In this post, I want to address the aspect of these “attacks” that is, in some ways, crappier than the actual attacks: peoples’ reactions. Often when I mention that I [...]
Posted in bodies, i'm right here, identity, introspective, normality, othering, social attitudes | Tagged ableism, ablesplaining, allergies, anaphylaxis, communication, disability, disabled teens, disclosure, growth, myths and misconceptions, personal, personal stories, problematic attitudes, social attitudes, things people say, this is not helpful, unexpected obstacles, we are not to be believed, why is this hard
By amandaw on 1 May, 2010
(Cross-posted at three rivers fog. See more BADD 2010 at Goldfish’s blog.) I’m pretty open about my health issues. To be honest, I don’t know any other way to be. I know how to strategically hide my disabilities from strangers in passing interactions, but from the people with whom I interact on a daily basis? [...]
Posted in accessibility, invisibility, small stories, social attitudes, work | Tagged ableism, accessibility, assholes, badd, badd 2010, chronic illness, chronic pain, disability, disclosure, head asplode, health, migraines, myths and misconceptions, pain, pain management, pain triggers, passing, personal, problematic attitudes, social treatment, stories, things people say, welcome to my life, work
By amandaw on 23 October, 2009
(Cross-posted at three rivers fog.) I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have. *** For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell [...]
Posted in blaming, i'm right here, media and pop culture, shaming, social attitudes, Uncategorized | Tagged ableism, abuse, addiction, causation, characters with disabilities, chronic illness, chronic pain, chronic pain conditions, disability, disability in fiction, disabled characters, disclosure, drugs are bad mmm'kay, erasing, fibromyalgia, House M.D., invisibility, invisible disabilities, invisible disability, life, me, medications, myths and misconceptions, pain management, passing, personal, pop culture, privilege, problematic attitudes, shaming, social treatment, stereotypes, stories, television, things people say, work
By Annaham on 17 October, 2009
This amazing post and its follow-up by Anna at Trouble in China (she is also a contributor here, as you may have noticed) got me thinking. [In the interest of full disclosure, my Shakesville post is in there as an example of the problematic nature of inclusiveness.] Whenever I mention my personal blog in, say, [...]
Posted in accessibility, activism, bodies, feminism, introspective, normality | Tagged barriers to access, chronic pain conditions, communication, disclosure, internet, participation, privilege
By kaninchenzero on 13 October, 2009
We’re not even a week since the roll-out, but the response so far has been tremendous. Along with the excellent discussion in comments, we’ve gotten some really great questions, like this one (which we’ve paraphrased from the original email): Why is the name of the blog Feminists With Disabilities? Wouldn’t it be more inclusive, especially [...]
Posted in administrivia, feminism, identity, intersectionality, introspective, language | Tagged communication, disclosure, feminism, identity, intersectionality, racism, word use
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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