By amandaw on 24 October, 2009
(Originally posted July 2009 at Feministe, three rivers fog.) We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it? I advocate an intentionally [...]
Posted in identity | Tagged ableism, accessibility, autism, cfids, cfs, chronic fatigue syndrome, chronic illness, chronic pain conditions, conceptions of disability, difference, disability, disability movement, exclusion, fibromyalgia, identity, intersectionality, invisibility, invisible disabilities, invisible disability, isolation, language, mental illness, models of disability, participation, passing, privilege, self-identification, self-perception, social inclusion, social model, social treatment, symptoms
By amandaw on 23 October, 2009
I take six medications. Five of them — the antiepileptic, the antidepressant, the non-narcotic pain killer, the muscle relaxer, and the oral contraceptive — are covered through a mail-order service. I receive a 90-day supply in my mail box every three months. No hassle. If a prescription runs out, my doctor is notified electronically, he [...]
Posted in blaming, bodies, language, medical practice, shaming, social attitudes | Tagged ableism, addiction, barriers to access, Big Bad Pharma, chronic illness, chronic pain conditions, conceptions of disability, disability, drugs are bad mmm'kay, fibro, fibromyalgia, health care, invisible disabilities, invisible disability, life, medical care, medications, mislabelling, myths and misconceptions, pain management, problematic attitudes, social policy, social treatment, symptoms, things people say
By amandaw on 23 October, 2009
(Cross-posted at three rivers fog.) I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have. *** For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell [...]
Posted in blaming, i'm right here, media and pop culture, shaming, social attitudes, Uncategorized | Tagged ableism, abuse, addiction, causation, characters with disabilities, chronic illness, chronic pain, chronic pain conditions, disability, disability in fiction, disabled characters, disclosure, drugs are bad mmm'kay, erasing, fibromyalgia, House M.D., invisibility, invisible disabilities, invisible disability, life, me, medications, myths and misconceptions, pain management, passing, personal, pop culture, privilege, problematic attitudes, shaming, social treatment, stereotypes, stories, television, things people say, work
By Ouyang Dan on 22 October, 2009
Moderatix note: This post will be United States Military centric, as that is the perspective I offer, and the broken system within which I currently exist and attempt to navigate. Other voices are welcome and experiences appreciated within the context of the conversation, since I can not pretend to know every thing about every military [...]
Posted in intersectionality, justice, military, Uncategorized | Tagged invisible disability, justice, medical care, military, Veteran's Affairs, women in uniform
By Guest on 20 October, 2009
What is Max’s impairment? What is Esther’s? And why can we recognize Max’s within five seconds of meeting her, while it takes us nearly two hours to learn–pardon the phrase–what is “wrong with” Esther?
Posted in media and pop culture | Tagged disability in fiction, exclusion, family dynamics, invisible disability, media and pop culture, mislabelling, movies, myths and misconceptions, narrative, orphan
By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference. Many accessibility solutions are structural; they require collective action — constructing spaces such that [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By amandaw on 15 October, 2009
(Originally posted November 2008 at three rivers fog.) I had always meant to expand upon this topic, but never found the right words for it, succinct and meaningful. But, well, that’s not exactly my style either. My job situation is still shitty, and I’m currently part-timing at a retail pharmacy as a cashier. (Sample day: [...]
Posted in accessibility, Uncategorized | Tagged ableism, accessibility, barriers to access, chronic illness, disability, health care, illness, invisibility, invisible disability, justice, me, medical care, participation, personal, privilege, problematic attitudes, spoons, stories
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.] There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”. Here’s the latest product of that industry. They took [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
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