Tag Archives: television

Recommended Reading for December 14, 2010

K__ at Feminists with FSD: Notes on MTV’s True Life: I Can’t Have Sex

Actual, proper terminology was used throughout the show. Chronic pelvic pain conditions were named, but some conditions that overlap were not mentioned at all (interstitial cystitis, for example, was not explored in this episode. This is a shame – interstitial cystitis is another misunderstood condition which would benefit from careful media coverage.) This episode focused on the impact of chronic pelvic pain on the women’s sex lives. And that means that while you could learn a little about life with chronic pelvic pain from this episode, for a clinical discussion and details on specific conditions and available treatments, you’ll need to look elsewhere.

Carol at Aspieadvocate: I’m an Embarrassment

Yeah, I know some parents of autistic kids worry about the kids embarrassing the rest of the family in public with their unusual behavior. But for me it’s the other way around. I never shut up about autism, mine or his, and while I have every right to out myself, I’m making decisions about him that should really be his to make. Except even if he’s made different decisions about disclosure than I have, he’s not (yet) verbal enough to tell anyone.

David Gorksi at Science-Based Medicine: Death by “alternative” medicine: Who’s to blame? [trigger warning]

Of course, the implication of “Secret” thinking is that, if you don’t get what you want, it’s your fault, an idea that also resonates with so much “alternative” medicine, where a frequent excuse for failure is that the patient either didn’t follow the regimen closely enough or didn’t want it badly enough. Basically, The Secret is what inspired Kim Tinkham to eschew all conventional therapy for her breast cancer and pursue “alternative” therapies, which is what she has done since 2007. Before I discuss her case in more detail, I’m going to cut to the chase, though.

This weekend, I learned that Kim Tinkham’s cancer has recurred and that she is dying.

Arwyn at Raising My Boychick: How far I’ve come

Eight years ago I was withdrawing from college. Again. I’d started medication, divalproex sodium, and that was going to cure me; we’d packed up our possessions, bought furniture in flat boxes, and drove it most of the way across the country to this town with one redeeming feature: the college from which I had just withdrawn because it was better than flunking out from chronic absences. I did not know who I was, what good I was, if I could not do college, be a student. I could not see a future, and mostly did not believe I had one.

Linsay at Autist’s Corner: Autism-related gene spotlight: CNTNAP2

EXECUTIVE SUMMARY: CNTNAP2 is a large gene near the end of chromosome 7 that encodes a cell-adhesion protein involved in distributing ion channels along axons (the long tails of nerve cells) and in attaching the fatty cells making up the myelin sheath to the surface of the axon. DIsruptions in this gene have been associated with autism, epilepsy, Tourette syndrome and other neurodevelopmental disorders. Variations at certain points within the gene that don’t alter or disrupt its expression have also been associated with an increased likelihood of autism.

Recommended Reading for October 6, 2010

RMJ at Deeply Problematic: A feminist reading of Achewood, part one: disability and Roast Beef (trigger warning for discussion of ableist jokes)

Roast Beef’s depression is a major theme of his character and the strip. At the outset of his appearance in the Achewood universe, he expresses the wish to commit suicide repeatedly, though he has not mentioned past his first year in the strip. His actions and words (in a distinctive smaller font) are often explicitly steered by his low opinion of himself; depression is a simple fact of him. While sadness is a constant in his his characterization, the portrayal of his disability is far from static: his emotions are fluid, dependent on context, an advantage at time and a palpable pain at others.

Julia at a l’allure garconniere: cultural appropriation: still refusing to see the truth

rather, it’s that images of models, of clothing catalogues, and of white girls in headdresses at concerts that attack and offend us: those of us who feel like these conversations are important to be having, that we have to ask these questions. i am fed up with it. fed up with seeing “Othered” cultures reduced to shitty stereotypes for uncritical (mostly) white people to buy into, as a product, and then to attack me when i ask them to think about what they are wearing, when i ask them why they choose to wear what they wear. is that such an offensive question? is it really us who are so hypersensitive and who take things “too seriously,” or is it you who just wants to refuse to think for two seconds?

mycultureisnotatrend on Tumblr: I received a flood of angry notes and messages after that last post. . . (trigger warning)

We are multifarious people, and no one native cultural symbol can represent us all. It is impossible to dress like “an Indian” without reverting to stereotype. This does not mean all native related things are off limits. But be wise with your choices, stay away from things of great religious significance, and don’t play “dress up.” Moccassins = okay, Warbonnets = not. The line between the two is grey – use caution and respect if you near it.

Roya Nikkah for the Telegraph (UK): Channel 4 criticized for new reality “freak show”

A recent advertisement in Fame Magazine, a celebrity magazine, seeking recruits for the six-part series said that the show “will place two people who are defined by the way they look … in close proximity to each other”.

It added: “Our participants will get to live together in a specially constructed space. Over a number of days, they will explore each other’s lives in the real world.

“They will be challenged to look beyond the mirror and step into the shoes of someone for whom looks have a completely different meaning.”

Gary Marx and David Jackson for the Los Angeles Times: Pact to decrease number of mentally ill in nursing homes

A Chicago federal judge has approved a landmark agreement that will enable thousands of people with mental illness currently living in nursing homes to move into community settings that experts say are more appropriate and less expensive.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

When She Was Bad

Moderatrix Note: This is a post from my “Summer of Buffy” series (or “Season of Buffy” for my Southern Hemisphere friends, who want to be MONSTERS and have different seasons and ruin my pun, but you are my favourite people EVAH and I love you!), which I thought was appropriate for cross posting, due to the subject matter. I hope you enjoy it, or find it worthy of discussion if nothing else. You may read more of that at random babble… where I frequently blog about and critique pop-culture.

When Buffy Season 1 ended with “Prophecy Girl” we saw a lot of things happen.

The Hellmouth actually opened, for the first of what will be many times (I really hope that isn’t too much of a spoiler for many of you), Cordelia drove her car through the school, and Buffy faced The Master and died. For a minute or two (Hey! It’s TV!).

Also through the miracle of TV, Xander (who can never do what he is told, ever, and it always works out to a convenient plot device) and Angel showed up just in time to revive her and send her on her way to be the prettiest Not Zombie ever (that was The Guy’s thing, OK).

So when Season 2 picks up and Buffy is returning from a summer with her dad we have a whole new Slayer who comes back as a whole new, shall we say, snarkier Buffy with a better haircut.

So here’s the part where Joss is gonna get some shit from me: Buffy is so incredibly obviously dealing with Some Issues. She is having flashbacks while training. She is having some really shit-tastic nighmares where Giles tries to choke her to death while her best friends watch, Giles actually being The Master in a Giles mask. To me the most disturbing part of the dream is that Buffy dreams that her friends are asking how she is doing… something that isn’t happening in real life, and that in a way she dreams that Giles allowed her to die, which I think she might actually believe…

So she is lashing out at her friends. Full scale snark at Xander and Willow and Giles. She mocks Willow —  something she dropped Cordelia faster than Kid drops food under the table on a clean floor for doing. She pulls Xander out onto the dance floor at The Bronze and proceeds to do what was henceforth known as her “sexydance” that made both Angel and Willow jealous. In fact, if you mention Season 2 Ep. 1 “When She Was Bad” to some vaguely familiar with Buffy, the first thing they remember is “sexydance”. She romps about with a new personae that manages to get Cordelia to pull her aside and ask if she was running for “Bitch of the Year”.

If Cordelia is up in your shit about your “Joan Collins ‘tude”, then it is time for a deep inward assessment.

But what no one did was try to actually talk to Buffy, which is what bothered me about the writing of this episode.

See, Buffy died, and I am pretty sure that upset her a bit. I know it might peeve me a bit, if I was 16 and had to deal with that. That might have been something she had to work through a bit, the way she felt about dying. So, instead of anyone talking to her about how that felt, Joss wrote everyone doing the logical thing and talking about her. Instead, it kind of felt like her friends just … got annoyed with her and didn’t try to understand what she was dealing with. Sure, Buffy was behaving in all the wrong ways, but her friends weren’t exactly the pillars of strength she needed to get through her situation, either. But, of course we will see that this becomes a theme.

The only person who tries to reach out to her is Angel, the one person most closely associated with the thing that has caused all of this pain, and the one person most likely to elicit the most harsh reaction from Buffy. She brushes him off, is harsh with him, even though we see peeks of her emotionally reaching out to him at the same time (cue heart wrenching music to imply the Cosmically Forbidden Relationship)… Angel is the personification of all that went wrong with her life. The Slaying, the Vampires, and ultimately death. He couldn’t even save her life before or after her death…

The harsh reality of the weight of her responsibility, the painful truth that even her life is fragile hangs on her weary shoulders even as life doesn’t stop to allow her to mourn her own death. Buffy is obviously angry, hurting, and possibly confused about her future. We see this theme again throughout the series, as she has to decide if she should bother planning a future in her life: career, love, even just graduating or getting through tomorrow. The fragility of her role in the world crashed into her path of vision, and she had to face that in the 60 seconds of clinical death (and later with the appearance of another Chosen One).

This stings close to home for people who deal with real life depression, over loss in their lives, or any of the other reasons that mental illness comes crashing down or tries to suffocate us. Often, the people around us give up trying to support us, and withdraw, leaving us to lash out or sometimes give up.

Perhaps Joss didn’t fail as much as I first said.

Perhaps, in Buffy, he has attempted to personify the utter helplessness and angst that people in a deep depression sometimes feel. Perhaps, he has done a perfect job of showing what it feels like to not be able to yell out exactly what is going on inside, how it feels to have suffered what you have suffered because no one really can truly empathize, no one can truly feel your pain

Perhaps.

If only defeating your demons was as simple as smashing a set of bones with a giant mallet.

Pop Culture: The Good Wife & Disability

About two or three weeks ago, I finally got around to noting the existence of the show The Good Wife. And then I watched every episode I could, as quickly as I could, because wow is this show good.

It’s one part legal drama, one part family drama, and one part mysterious conspiracy theory drama. The Wikipedia summary is pretty good: “The storyline focuses on Julianna Margulies as Alicia Florrick, the wife of Peter Florrick (Chris Noth). Her husband has been jailed following a very public sex and corruption scandal. She returns to her old job as a litigator to rebuild her reputation and provide for her two children.”

Except the whole article somehow manages to skip over how feminist the show is. In the early episodes, Alicia has a male coworker who is pretty damn sexist to her, including talking down to her, ignoring what she says entirely, and acting like her being both older and a parent makes her not very smart. Later episodes have her pointing out how she keeps getting shunted aside to “hand hold” clients, which she admits is important but is curtailing her career. And these things are shown as being bad, not as being acceptable because, you know, woman.

The show is filled with interesting relationships between women as well. We’ve got Alicia’s relationship with both her investigator, Kalinda, and one of the managing partners, Diane. Both relationships are complicated by professional needs and the fact that they’re still working in a sexist office environment. Diane is involved in EMILY’s List, and there’s an implication that her “pet project” is looked down on by her male colleagues.

At home, Alicia’s mother-in-law has come in to help care for the kids while she’s working and Peter’s in jail, and their relationship is also complicated, with concerns about parenting and their different views of Peter’s prison sentence.

I just love this show. Love it.

But I’m not just talking about it here because it’s awesome. It also managed to (mostly) side-step some disability fail that I was expecting.

The rest of this is full of spoilers for Season 1, Episode 4, “Fixed”.
Continue reading Pop Culture: The Good Wife & Disability

A Few Relevant Posts on “Glee”

ETA: I’ll be adding links from the comments to the bottom of this page, so check back for more when you get a chance!

I know people are searching for our responses to the Very Special Disability Episode of Glee. I’ve got something going up Monday, but I wanted to highlight a few very good responses from other people to the episode, specifically people who are actually knowledgeable about the disabilities presented on the show. So, obviously no one actually associated with the show itself, because they seem pretty clueless.

From Wheelchair Dancer, who is an actual dancer in a wheelchair, Glee

And then there’s the sad fact of the “dancing;” the choreography sucks. The one potentially interesting move that McHale supposedly “does” is a cut — he wheelies on one rear wheel. The rest is notable only for the way that it shows that able-bodied, non-wheelchair-using folk really do think of chairs as bicycles you move with your arms. There’s absolutely no body-chair integration at all. They think of sitting in a chair as being only about not being able to move their legs (and in Artie’s case as being about having his hips and legs twisted to one side). That mistaken understanding leads to some very weird looking people in chairs. On chairs would be a better phrase for it. The fake paralysis of their legs somehow wends its way up their bodies so that they are really only able to push with their elbows (no wonder they have sore arms!).

It’s so interesting watching them try to dance. Push. Make a dance gesture. Push. And they are only able to muster up those little beginner pushes. You know the ones I mean? The frantic shoves at the wheel? They push, the wheel doesn’t respond; they don’t know how to ride a stroke and feel the momentum. This means that they basically either push the chairs around in formations (because they can’t dance and push) or keep the chair still and hurl their upper bodies and arms around. Hilarious. Explains the weak choreography, too. Understand how a disabled dancer moves with the chair, Mr. Woodlee, and you will be able to create something a little better than bad dance.

And Kaz (who you may recall wrote a fabulous guest post on asexuality), who has that stutter that Tina’s been faking to get out of basically everything, wrote Because incurable speech disorders just up and vanish all the time, don’t you know:

THIS IS THE PROBLEM. They “figured it would go away”. Because nearly every single fucking time a stutterer appears on TV (or in movies, or in books, or or or…), it just. Magically. Vanishes. They learn to accept themselves! Overcome their fear of XYZ! Face their deepseated trauma! BYO offensive stereotype! And poof, the stutter is gone!

I think the only good thing I can say about the development in Glee is that at least they spared me that. At least she was just *faking* it, at least it didn’t just do the impossible and spontaneously vanish.

Kaz also left a comment on my post about the idea you could get out of things with a stutter:

Sure, other schools may be different, but I really doubt that many of them will just say “okay, you don’t have to do this” to a stuttering student (particularly if they start stuttering just before the presentation, and I’d think that teachers would know developmental stuttering almost always develops between the ages of two and five or so, but – oh, right, I’m bringing *facts* into this. Mea culpa.

And, a few reaction posts from us, off this blog:

In case you missed it, here’s melouhkia’s review over at Bitch, Glee-ful Appropriation:

There were so many problems with the way this episode handled disability that it’s almost impossible to know where to start (truly, earlier drafts of this ballooned into thousands and thousands of words). It hit a number of major tropes for pretty much a hat trick of disability fail. We got “disability is inspiring,” “disability is a burden,” “appropriation of disability for a Very Special Learning Experience,” “faking disability,” and “see my sister has a disability so I’m not a bigot.”

Here’s the thing about tokenization, which is what this episode specialized in: It does nothing to advance the cause of people who live in marginalized bodies. Hiring an actress with Down’s Syndrome for a single throwaway guest role is not including actors with disabilities. Centering a disability plot around able bodied characters is not including people with disabilities. Continuing to use crip drag (and having the actor unabashedly say “this isn’t something I can fake”) is not including people with disabilities. Painting accessibility as a hardship, a burden, and “special treatment” is also not including people with disabilities.

And, this was my review, just a couple of hours after I saw it, Why Can’t I Make You Understand / You’re Having Delusions of Grandeur:

Three people faked having disabilities in this episode. (Well, I guess four if you count Kevin McHale, but let’s put that argument aside for a moment.)

Tina’s been faking her stutter all along, in order to get out of having to give a speech in the sixth grade.

People with stutters are routinely mocked and yelled at, told to get over it, and basically the subject of ridicule. And yes – people do think stutters are faking it for attention. But Glee, that “diversity” show, has presented stuttering as something that will get you left alone, and something easy to fake. For years.

This is the show that’s supposed to make people with disabilities feel empowered.

I have no doubt there are lots of reviews of this episode by people with disabilities. Please leave links in the comments! I haven’t had time to go looking for them, so I really want to read them.

ETA: From Matthew Smith: Wheelie Catholic wrote Glee Wheelchair Episode Not Gleeful

All I can say is that Glee is in a fine mess now. The real problem with this show, as with the rest of Hollywood, is that it keeps insisting on portraying an able bodied version of characters with disabilities. Writing an episode on sensitivity toward a character who doesn’t really have a disability to convince those of us who really have disabilities that the show is enlightened just isn’t going to work. Nor did the subplot of a girl with a stutter confessing she really doesn’t have a stutter help. It’s all very confusing and gave me a headache.

Here’s what I suggest. Since the show decided a sing-off was fair between two characters, why not bring in a wheelchair user to sing and dance against Artie?

ETA 2: Sarah points to her post: This Week’s Glee: Good, Bad, and Horrific:

Cheerleading coach villain Sue was “humanized” this week. And how was she humanized? Because we found out she has a sister with Down Syndrome. That’s right. Suddenly we’re supposed to see that she’s actually a good person because she’s nice to her disabled sister. (And she gave an opportunity to a girl with the same disability as her sister, and she donated money for wheelchair ramps which the school was legally obligated to provide in any case.) I find this absolutely disgusting, as it seems to indicate that characters with disabilities exist only to prove “background story” and “humanity” to the “normal characters.” They are, at best, plot devices, rather than true characters. I can’t believe some people are seeing this as a good way to include people with disabilities. And please, don’t expect disability rights advocates to pat this show on the head for hiring a few actors with disabilities in minor roles. Just because the show considered Down Syndrome harder to fake for the general public than paraplegia doesn’t mean it’s doing anything to expand opportunities for actors with disabilities. These two minor roles (which probably won’t even recur again, I would guess) don’t make up for the aforementioned crip drag, let alone for the ways in which people with disabilities are being used in this episode.

Via The Goldfish, Terri’s post My Hopes for Glee

First, disability simulation exercises usually lead to more pity than understanding (you can tell by the things people say when they are over–more about relief and feeling bad for people, rather than about empathy and feeling more like people with disabilities.) Secondly, having seen professional wheelchair dancers, the performance was kind of one-dimensional…

My daughter saw the show before the rest of us and her concern about wheelchair issues took a definite back seat to her anxiety about what was going to happen between the cheerleading coach and the young teen with Down syndrome.

[Terri also talks about her conversation with her son, who is an actor, about the crip-drag elements.]

Access Fandom is also doing a link-roundup, because Access Fandom is made of awesome. If you’re looking for fandom-related discussions about disability, I really recommend following Access Fandom. [This is totally influenced by the fact that Sasha Feather, Kaz, and Were Duck are amongst my very favourite people.]

Yes, it DOES make a difference

(Cross-posted at three rivers fog.)

I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have.

***

For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell me that people realize this is fictional. Don’t tell me that people know how to maintain that separation. Some do. Many don’t. And they’re everywhere. At the bottom of the totem pole… and in positions of power over the very people they are prejudiced against.

***

I was called back to work two weeks ago. I work at a government office that provides certain assistance programs. (Once you go to work for one government agency, you realize there are a whole lot more of them than you ever thought before.) I really don’t want to go into it any more specifically than that.

It’s been very rough on me. Last winter, work was physically draining. I basically have two whole hours every day that I am awake and not at work, preparing for work, or traveling to and from work, and semi-conscious. Not only am I so physically exhausted that I go to bed three hours after work ends, I am so physically exhausted that my brain just cannot be pushed any further. I have trouble comprehending the blogs and news sites I normally read; writing is usually out of the question. Of course, we won’t even talk about anything more physical than that — even preparing a boxed dinner for myself is too difficult. My apartment is even more a mess than usual, because I don’t have the energy to pick up the clothes that I shed as soon as I get the front door shut, the mail and personal items that trail after me from the couch to the bedroom…

Unfortunately, so far this year, it hasn’t just been physically draining. I’ve been dealing with a sudden onset of severe migraines, and not the type of migraines I’ve had since childhood and have an intimate knowledge of — these are more classic migraines, the nausea, the aura and vision distortion, the intense pain and pressure behind the eyes… The pain is not as overwhelming as my normal migraines (where a twitch of the toe makes me want to scream or cry or at least moan, but the movement and force of emitting any noise at all would hurt even worse, so I just curl up and remain frozen in misery), but the experience is just as miserable because it block’s my brain’s ability to function, even to process the smallest of information. I’ve been having trouble writing six-digit numbers on the top of each application. And normally I work faster than the worker next to me, but the past two weeks she’s been cranking out work three times faster than me.

It’s frustrating. I’ve been doing everything in my capacity to do to fight these headaches off. Everything. And no, I don’t want any helpful suggestions. But regardless, even with all the desperate measures I have been taking, they persist.

On top of it all, my endometriosis has decided to flare up at the same time. So I get double nausea, extreme abdominal cramps, persistent pelvic pain and other symptoms.

I’ve been in a lot of pain.

I take a lot of medications. For pain. I take medications that have no effect on people who do not have a specific type of pain disorder. And I take medications that people who are not in pain popularly take to get high. (I do not, for the record, take anything to get high myself.) And I put up with a lot of shit to continue taking one of few medications that works and that enables me to work.

(I guess I could give it up and therefore be putting up with less shit. But then I’d, you know, not be able to work. And for so long as I have the option to be able to work, I’m taking it. Because I may not even have that option forever. Situations change, bodies change, and bodies change how they react to medications over time. I’m doing what is necessary for myself and my family at this point in our lives.)

So, at work today.

I sit on the far side of the first floor of our building, along with all the other people working in my particular program, the people working on another program, and a couple stray general clerks across from all of us. The other program’s supervisor and one of the other program’s workers (OPS/OPW hereafter) were talking about a certain case, a woman who was being denied medication and needed help obtaining it. This was before lunch, it was a general talk in a work context, that is how to get the problem solved.

My husband and I went home for lunch, as we do regularly, given that we live less than five minutes from our workplace. It takes half the lunch period but it is worth the spoons because it makes the workday so much more bearable — two four-hour chunks rather than one long nine-hour one. We sit around, watch The People’s Court reruns, eat our lunch and laugh at the cats who get in silly, hyper, meddling moods around that time.

I returned from lunch, feeling a lot better having had a break from the fluorescent lighting and ambient noise of the HVAC system. And a few minutes after I got back, sitting next to the OPS scanning documents into the computer system, OPW wandered back over and began talking again about the client from before.

The medication? Oxycontin. Her doctor has been prescribing it to her for over 15 years.

And the conversation? Went like this. (As typed soon after in an email to my husband, as close as I could get to what they actually said, given how stunned and hurt I was while it was happening.)

OPW: do you watch house?
OPS: no not really
OPW: well he has some sort of leg injury, but he takes that other one, what is it? vicodin
OPS: uh huh
OPW: and they sent him to rehab, and he just had to find something to occupy his mind so he wouldn’t think about it
OPS: yeah they get addicted so easy
OPW: and now they put him on regular pain killers and he’s doing just fine
OPS: yeah a lot of the time tylenol or advil works just as well, people just want the high
OPW: exactly, and their doctors prescribe it to them and they hand it out to family members…

And the conversation went on like this for a couple minutes, with the two of them walking back and forth fetching printed documents, attending to the scanning etc.

I just… I’m not terribly private about my condition. I don’t bring it up, but if it’s relevant I talk about it. I do try to avoid telling my coworkers that I take narcotic medications (as opposed to just “medications”) but I have gone over it specifically with HR as it can be a security issue in some agencies.

I was sitting right there. OPW sits on the other side of me, and had to walk around me to get to where OPS was at the scanner. I was sitting right there.

They were talking about me.

They weren’t thinking of me, of course. They’d never make that connection. I’m young and thin and pretty enough. They know I work hard. Most of my office loves the hell out of me.

But if I had spoken up — rather than sitting there holding my breath trying not to cry — how would that opinion change? Would they start seeing me as lazy, as slacking off? Would they whisper about me every time I went to the water fountain for a drink? What was I taking? What was I doing with it? Would they start taking certain behaviors as symptomatic of addiction? If I passed too well one day, appearing to be just fine (to them; I am good at covering up my pain) — would they take that as evidence that I couldn’t actually be in pain and couldn’t really need that medication? And if I didn’t pass well one day — especially these days, when I’ve been stopped more than one time as someone remarks on how deathly pale I am and asks if I’m OK and tells me to take a break — would they see that resulting, not from my pain, but from the supposed addiction?

They were talking about me. They didn’t even know it. But I am that person on that medication. Pushing through the pain to keep working.

The difference is, Dr. House is a character.

I’m real.

And that woman. These were the attitudes of the people who were helping her resolve an issue. As much as I wish otherwise, workers do have some degree of latitude in deciding how they are going to approach a case, and can apply the law in different ways for different people, even if it appears pretty strict on paper.

I am that woman.

I have been there. I am there. I have to deal with unsympathetic figures in obtaining my treatment. Doctors, nurses, office staff, pharmacists, insurance reps, welfare reps, other reps. I have issues I have to call to have resolved. I have that person on the other line who’s promising me on the one hand to resolve the issue — but on the other hand …? How can I ever know?

I don’t know what was going on in this woman’s life. I don’t know if she’s dependent (there is a difference). I don’t know if she would be better off on another course of therapy. Or whether she’s tried all those other courses and they’ve given her awful side effects or they’re contraindicated given her particular condition or they’re unavailable to her due to income or access. I don’t know.

Maybe she’s abusing. Maybe she’s handing it out on the street corner.

Maybe she’s just like me. Just one person trying to power through this world as best she can. And this is the best way she’s found to do it.

The Pain of House

Hugh Laurie as Dr. House posed as a Caduceus with wings and two large snakes wrapped around his body on a blue field.  Caption reads "Incurably Himself".
Hugh Laurie as Dr. House, a white man posed as a Caduceus with wings and two large snakes wrapped around his body on a blue field. Caption reads "Incurably Himself".

I am a pop-culture junkie.  If you have been playing along at home long enough this is common knowledge.  I have been a big fan of House, M.D. since it’s poorly lit pilot.  I am simultaneously appalled and amused by his crass behavior.  Even the best feminist in me laughs and fairly inappropriate moments.

I have seen and read plenty of critques concerning Dr. House and his manner.  I have chewed out my share of doctors for acting like him as if it makes them seem clever.  He is a character that is worth critiquing on many levels and for many reasons from many points of view.

What I haven’t seen is a lot of criticism of the characters assembled around House.  From Dr. Wilson, or Dr. Cuddy, or the myriad staff members he has had around him (yes, even Dr. Cameron-Chase) I have watched for nigh on five seasons now as all of the people who claim to care about him have done little more than chastise and concern troll his life.  Most notably, his addiction to Vicodin as his chosen method of pain management.

A repeated theme throughout the series has been watching person after person in House’s life try to trick or otherwise convince him that he should quit taking Vicodin and learn how to deal with his pain.  They constantly badger him about his addiction, and will go to great lengths to get him to quit taking his pain medication.

Only a person who has never experienced chronic pain would dare criticize a person for their pain management.

Because, like it or not, Dr. Gregory House is managing his pain.  Sure, he is an addict.  There is little argument there.  The character admits it freely.  In his own words he says that he takes a lot of pills because he is in a lot of pain.  Whatever your feelings on narcotic medication it is a proven method for making intense and chronic pain manageable, and a down side to that is that narcotic drugs can in fact be dependency and/or addiction forming.  The presence of an addiction does not take away the fact that the pain beneath it is real.  When a doctor and a patient together decide to pursue pain management via narcotics such as Vicodin they will weigh the pros and cons of such treatment.  One of the cons that is weighed is the fact that a person can develop an addiction to a drug and a tolerance that will probably mean their intake will increase over time.  As with any course of treatment the costs must be weighed with the benefits.

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Photo: Hugh Laurie as Dr. House, a white man in a presumably porcelain bathtub filled with orange prescription bottles, dressed in a grey suit with his cane.

House is able to function as a result of the Vicodin to which he has become addicted.  He is able to be independent in moving and living, not housebound (no pun intended) by his pain.  He is able to hold down his job and do it with the skill through which he receives his notoriety.  His course of pain management gives him a life and independance that many of us living with pain or other disabilities are hoping to achieve.  It might not make him a happy ray of sunshine all the time, but neither does living in agonizing pain all of the time.

It is very condescending for a person who is not living in pain to assume that they know better than that person how to manager hir pain.  The way that I see House’s collegues and the people who could pass for his friends treat him over his addiction and the way he manages his pain strikes too close to the way I feel most doctors and friends of those of us living in chronic pain will treat us.

Criticize the way he behaves to his subordinates.  Criticize the way he treats those closest to him.  But if you don’t know what it is like to live with chronic pain, don’t criticize his decisions as to how he manages his pain.  If it’s not your body, frankly, it’s not your business.

Originally posted at random babble…

Television: Bloody Torchwood

This post is part of a series about representations of disability in movies, television shows, and books. They contain spoilers.

[Originally published as part of Blog Against Disablism Day, May 2009]

Blogging Against Disablism Day, May 1st 2009If you haven’t seen Torchwood, I’m not entirely sure how to describe it. It’s a Doctor Who spinoff where Captain Jack Harkness and his band of misfits battle to keep the Earth safe from aliens arriving in Cardiff, Wales. There is a Rift in Time and Space that is the Plot Device when needed – aliens pop out of it and, sometimes, people get sucked into it.

It’s also a show where sex and flirtation are part of the plot. Episodes have revolved entirely around sex, such as the one with “sex pollen”, but sexuality, flirtations, and explicit sexual relationships – both same sex and opposite sex – have all been main or side plots. One throw-away line that’s often quoted ’round the fandom is recurring guest star (and ex-lover of Jack’s) Captain John Hart’s comments about how attractive he finds a poodle.

But of course no one in Torchwood would ever flirt with someone with a disability. They’ve never had the chance – no one with a visible disability has ever been on the show.

Oh wait! I tell a lie! Of course someone who has a disability and is deformed has been on the show! I totally forgot. Let me tell you about it.

In Adrift, an episode in late Season 2, Gwen Cooper realises that several people have gone missing in Cardiff, and slowly starts to piece together that they’ve been “taken by the Rift”. The episode focuses on the story of one mother, Nikki Bevan, whose son had gone missing seven months earlier. It shows her grief, and her obsession with finding out what happened to her son. She’s loving and emotionally invested in the search, in contrast to the growing hardness of viewer-standin Gwen.

I’ll skip a lot of summary, which you can read at Wikipedia should you wish.
Continue reading Television: Bloody Torchwood

Television & Disability: Joan of Arcadia

This post is part of a series about representations of disability in movies, television shows, and books. They contain spoilers.

[Originally Published in April 2009]

Don and I started watching Joan of Arcadia this week.

Basically, it’s a story about a teen, Joan, who starts to get missions and messages from God, for some mysterious purpose. She’s the middle child of three, with a younger brother, Luke, who is very smart and ignored by his parents, and an older brother, Kevin. Kevin was the golden child, destined to go to uni on a baseball scholarship, before a car accident left him paraplegic 18 months before the show’s start.

Unlike every other show we’ve rented and mainlined, we’re watching this show very slowly because the family dynamics around Kevin’s disability ring painfully true to life.
Continue reading Television & Disability: Joan of Arcadia