Tag Archives: community
RMJ at Deeply Problematic: A feminist reading of Achewood, part one: disability and Roast Beef (trigger warning for discussion of ableist jokes)
Roast Beef’s depression is a major theme of his character and the strip. At the outset of his appearance in the Achewood universe, he expresses the wish to commit suicide repeatedly, though he has not mentioned past his first year in the strip. His actions and words (in a distinctive smaller font) are often explicitly steered by his low opinion of himself; depression is a simple fact of him. While sadness is a constant in his his characterization, the portrayal of his disability is far from static: his emotions are fluid, dependent on context, an advantage at time and a palpable pain at others.
rather, it’s that images of models, of clothing catalogues, and of white girls in headdresses at concerts that attack and offend us: those of us who feel like these conversations are important to be having, that we have to ask these questions. i am fed up with it. fed up with seeing “Othered” cultures reduced to shitty stereotypes for uncritical (mostly) white people to buy into, as a product, and then to attack me when i ask them to think about what they are wearing, when i ask them why they choose to wear what they wear. is that such an offensive question? is it really us who are so hypersensitive and who take things “too seriously,” or is it you who just wants to refuse to think for two seconds?
We are multifarious people, and no one native cultural symbol can represent us all. It is impossible to dress like “an Indian” without reverting to stereotype. This does not mean all native related things are off limits. But be wise with your choices, stay away from things of great religious significance, and don’t play “dress up.” Moccassins = okay, Warbonnets = not. The line between the two is grey – use caution and respect if you near it.
A recent advertisement in Fame Magazine, a celebrity magazine, seeking recruits for the six-part series said that the show “will place two people who are defined by the way they look … in close proximity to each other”.
It added: “Our participants will get to live together in a specially constructed space. Over a number of days, they will explore each other’s lives in the real world.
“They will be challenged to look beyond the mirror and step into the shoes of someone for whom looks have a completely different meaning.”
A Chicago federal judge has approved a landmark agreement that will enable thousands of people with mental illness currently living in nursing homes to move into community settings that experts say are more appropriate and less expensive.
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In 2007, Florida resident Michele Haddad was involved in a motorcycle accident with a drunk driver. She incurred a spinal cord injury that led to quadriplegia, and lived at home until she lost her caregiver and Medicaid informed her that she would only qualify for the services she needed if she spent 60 days in an institution. Aside from making absolutely no sense, as often seems to be the case with Medicaid bureaucracy, this barrier to accessing care was also highly discriminatory.
Haddad sued, arguing that she would suffer ‘irreparable harm‘ by being compelled to enter a nursing home, and the court agreed. The State of Florida was ordered to provide her with the community-based services she requested and was entitled to. Haddad will be getting a caregiver and staying at home, and we can chalk down another victory for disability rights. This is huge and I am really pleased by the positive outcome in this case. Haddad wanted to stay at home, she should have been allowed to stay at home, and it is heartening to read that the court ruled on the side of justice, bodily autonomy, and independence in this case.
The United States Government was also involved in the case, arguing on Haddad’s side. The Justice Department is currently fighting several discrimination cases, many of which build on the landmark Olmstead vs L. C. case that cleared the courts 11 years ago. Speaking about the Haddad case, Thomas E. Perez, Assistant Attorney General for the Civil Rights Division, said:
In the Olmstead case, the court recognized that the unnecessary segregation of individuals with disabilities stigmatizes those individuals as unworthy of participation in community life. By supporting Ms. Haddad in this case, we seek to ensure that individuals with disabilities can receive services in the most integrated setting appropriate, where they can participate in their communities, interact with individuals who do not have disabilities, and make their own day to day choices. (source)
I’m excited to learn that the Department of Justice is cracking down on discrimination and is specifically selecting cases that will promote full integration into society for people with disabilities. As I discussed a few weeks ago, passing antidiscrimination laws and winning victories in court isn’t enough to put a stop to discrimination and ableism, or to the social attitudes that allow for the dehumanisation and abuse of people with disabilities, but these cases do make a difference, and the direct involvement of the government shows that there is a genuine desire to address disability discrimination and to fight it.
Forced institutionalisation, as almost happened to Michele Haddad, has a long and very sordid history in this country. A common problem that I encounter in discussions about it is that it is not always recognised as such. The Haddad case seems fairly clear-cut: She clearly stated that she wanted to stay at home and she was told that she would lose services if she didn’t enter an institution. That sounds forced to me, and it sounded forced to the court, and most of the people discussing the case seem to agree.
But other cases are less clear. A lot of people with disabilities are not provided with information they could use to make choices independently. They are pressured by family members or care providers. Someone in a situation similar to Haddad’s might not be aware that home care was an option. All it would take is being whisked into an institution from the time of an accident and deprived of access to information suggesting that there are alternate modes of care. We see the same thing with decisions about medical care, where people aren’t provided with information and options, but simply told what to do.
‘Forced’ is a slippery word and it is not uncommon for people who want to deny that forced institutionalisation happens to find ways to weasel out of confronting it. After all, if you don’t say the word, it’s not happening, right? This persistent denial is one of the things that makes it so difficult for us to confront the real-world consequences of ableism. If we can’t get people to talk about the fact that forced institutionalisation happens, we can’t get people to talk about why it happens and we can’t get people to fight it.
Forced institutionalisation is not the only denial of rights and autonomy to people with disabilities that people think of as a thing of the past and believe doesn’t need to be addressed, countered, or fought any more. As a result, when we attempt to have conversations about these very real, very structural, and very present issues, we meet rhetoric like ‘oh, well, that doesn’t happen anymore, right? It sure was sad when it did, though.’
Michele Haddad, and thousands of people with disabilities all over the world, can personally testify that forced institutionalisation is not a thing of the past; here in California, for example, disabled activists are currently protesting cuts to In Home Support Services, a program that is vital for people receiving home care. Those funding cuts will result in institutionalisation for people currently receiving IHSS services.
Neli, as his family calls him, is 18 and has Asperger’s, a mild form of autism. Three Mondays ago, he rose early and left home without telling his mother. “When I entered his room at 6:30 am and didn’t see him, I assumed he had gone for another walk,” she says. It was a school day.
Four hours later Stafford County authorities had ordered a lock down for eight schools, and Neli was in police custody, facing one count of malicious wounding of a law enforcement officer, one count of assault and battery of a law enforcement officer, and one count of knowingly disarming a police officer in performance of his official duties. The cascade of missteps that led to the arrest suggest a combination of public racial profiling and the over reaction of law enforcement officers who are unfamiliar with autistic behavior.
If I believed that the people doing h/c bingo were bound to write horribly problematic stuff, I would not be writing this post. Because it’s a lot of effort and not really all that pleasant and I don’t like talking at brick walls and in that case I could just wait until you wrote the horribly problematic stuff to take it apart. The reason I am writing this post is because I think it might change things. And I think the same goes for a lot of people in this discussion.
The vast, vast majority of the eighty-three (so far) comments on this post concern women’s bodies, full stop. The list went on: people (women) are in denial about their size; thus they wear ill-fitting clothes which are somehow a grievance committed against us, the viewer; people are gross for being fat but they’re really gross for not disguising this fat in some way according to the standards of the poor innocent bystander who has to see this body.
Upstairs, my 85-year-old father, Jeffrey, a retired Wesleyan University professor who suffered from dementia, lay napping in what was once their shared bedroom. Sewn into a hump of skin and muscle below his right clavicle was the pacemaker that helped his heart outlive his brain. The size of a pocket watch, it had kept his heart beating rhythmically for nearly five years. Its battery was expected to last five more.
Question Time is a series in which we open up the floor to you, commenters. We invite you to share as you feel comfortable.
How important is being in community with other disabled people to you? Where do you find community with other disabled people? How do these communities fit in with other ones in your life?