Tag Archives: bodies
Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?
The Broken of Britain: The GP’s Story by Dr Jest
So there you have it. Neither Pete nor Dud would have chosen to be where they are now, and neither has asked not to work when they were capable. Indeed both have rather struggled on when reason would have suggested they ought not. And I could name you a dozen others in a similar position. All present talk of making it more profitable to work than rely on benefit may sound very noble and high minded in the marbled halls of power, where hard graft means having a lot to read and a few late meetings to go to. It completely misses the enormous efforts made by the likes of Pete and Dud to keep going against the odds, and any move to impoverish them is little short of scandalous and should be relentlessly pointed out for the evil narrow minded bigotry it is.
Sarah at Cat in a Dog’s World: PWD and TSA
From information I’d heard from TSA administrators, I thought that the body scanners would reducethe need for physical pat-downs. Little did I know that TSA would use the new technology as an excuse to conduct more invasive pat-downs! It is obscene, especially when one considers that many people with disabilities don’t have any “choice” at all. If someone is unable to stand independently for ten seconds with their arms up, or if one wears any number of medical devices or prostheses…there is no “choice.” (And no, for many people, “don’t fly” is not a realistic choice.) There is, additionally, reason for concern about the radiation from the body scanners, particularly for cancer survivors and people who have a genetic predisposition to cancer. It is now pretty clear that body scanners, far from being a panacea, are making things worse. And people with disabilities are being affected disproportionately.
At Spilt Milk: Thanks for your help, doctor.
Make no mistake: I know that this only happened to me because I am fat. If I were a thin person and I walked through his door with the symptoms I described, he would have been forced to dig deeper. To ask me more questions, to hopefully come up with a wider range of options. Maybe run more tests.
United States: Megan Cottrell at ChicagoNow: Got a disability? You’ll see the difference in your paycheck
A lot of people might assume that if you have a disability, you might not make as much money as someone without a disability. But how much less? How hard is it for people with disabilities in Illinois to get by compared to their neighbors?
India: An unnamed special correspondent at The Hindu: Social barriers keep the disabled away from workforce:
Persons with disabilities are the last identity group to enter the workforce, not because their disability comes in the way of their functioning, but because of social and practical barriers that prevent them from joining work, a study on the ‘Employment Rights of Disabled Women in India’ carried out by the Society for Disability and Rehabilitation of the National Commission for Women (NCW) has said.
Guillermo Contreras at Chron.com: State sued over care for disabled Texans
The federal lawsuit, filed Monday in San Antonio, alleges the state isn’t providing some mentally and physically disabled Texans the opportunity to move into community-based settings, which advocates say are less restrictive and more rehabilitative than nursing homes.
Lastly, here’s a transcript of a story on Australia’s 7.30 Report program called Setting Sail:
Known as the ‘Everest of sailing’ the Sydney to Hobart race challenges the most seasoned of yachtsmen on what can be a treacherous ocean voyage.
Most of the focus is on the big maxi-yachts competing for line honours. But a unique crew of blind and deaf sailors is also commanding attention.
The charity organisation, Sailors With Disabilities, has been gifted a half-million dollar fast yacht, making them eligible for the first time in the prestigious Rolex Cup.
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Alex Nesbitt at Digital Podcast: USA Network Uses Fake Blind Guy to Celebrate Americans With Disabilties Act (h/t Media dis&dat)
A sighted person is playing a blind person, and there are not any real blind actors on the show that I know of.
What does that say about their real respect for the ADA.
If they wanted to make this about people with disabilities why not extend the principles they claim and find a blind actor to play the part. After all, if the CIA can do it why not Hollywood.
ephemeralhope at If I was walking through a sad art gallery…: You Know You’re Blind When…
I am sixteen years old. Many people believe that I am too young to instruct my elders in how they should be treating people. However, I have lived all my life with a disability that has affected the way people perceive me, I know how it influences the way I feel about myself and choose to live my life. I will not judge you for your point of view towards me and my disability; I will only say that I respect those who see me before they see my disability more than the people that only see me as the blind girl. I do not deny my blindness, nor do I deny my independence and determination to prove that there is more to a person than their disability.
Remember this: if you ever became disabled you would still want to be treated as the person you are today, so do I.
Rhianon Elan Gutierrez at PGA Diversity: We Are the Audience Too: Responsibility as Creators
I am a filmmaker and I have a hearing loss. I understand both sides of the experience: as a creator and as an audience member.
I know how difficult it is to raise money to have the equipment you need, the actors you want, the location that’s beautiful, and the crew you know you need to feed and pay. I’m passionate about the process but what makes it challenging (and ultimately more rewarding) is the responsibilities that I have not only to my goals, my craft, and to my team, but to my audience. During the process of making my films and even afterwards, I make a commitment to be respectful of the access and communication needs and abilities of my cast and crew. I learn new things every day from them and about them. When it comes to my audience, I think about the one person of two hundred. It’s easy to forget this person, but I’ve been this person so I know that I must remind myself of those moments. I love the experience of making films and I especially love to see the impact that my films have on others and the difference that it makes when they can follow the story. I know I am not alone in sharing this sentiment.
Steve Kolowich at Inside Higher Ed: For One, for All
When advocates for students with disabilities asked Stephen Rehberg, an associate academic professional at Georgia Tech’s Center of Enhanced Teaching and Learning, to help create workshops to teach science and technology faculty members how better to accommodate disabled students, Rehberg’s answer was simple: “No.”
“Trying to teach faculty about accessibility is a dead end,” Rehberg said last week, during a session as Blackboard’s annual user conference here. “They’re not going to come to the workshops, and [if] they get there, they’re going to glaze over. I said, ‘I’m not going to waste my time or the grant money.’ ”
kissestokashmir at Your fucking culture alienates me: Something I have been thinking about a lot
And what a weird thing to care about. Who would mourn the loss of their birth defect? (Syndactyly is the official name of my condition.) I would most likely feel different about this if it was located on a more visible part of my body, such as the hands, or actually impeded my functioning. But it didn’t. It was just something unique about me, something that set me apart from everyone else I knew and I enjoyed having something that was unique to me and didn’t know that I enjoyed it until it was gone. I guess what I’m trying to say is that there’s no point in robbing people of what makes them different or unique and they may very well end up resenting you for the imposition into their lives. What you may consider a defect or an oddity, they may consider a vital characteristic of their personality. And you do not have the right to take it from them or to characterize what it means for them.
Astrid von Woerkom at Astrid’s Journal: Autistic Student Denied Education, Loses Court Battle
This is sad. What is sadder, is that quite a number of students with disabilities are left without education for reasons similar to A.’s. School distritcts excuse lack of education by the argument that they don’t have the resources to educate “difficult” students. Even in countries like the Netherlands, where school attendance is compulsory – I don’t know about the UK -, students are left behind to sit at home.
I have dealt with disability, in various capacities, for my entire life — this started when I was born three months prematurely and was affected by cerebral palsy (left hemiplegia, if anyone really wants to know) as a result.
I know what you might be thinking: You cannot possibly have CP, Annaham! CP is always severe. It’s always noticeable to people other than the person who has the condition. CP always sticks out, blah blah blah, insert other sundry stereotypes about CP here (because there seem to be a lot of them).
And you’d be partially right, sort of like how my left leg is partially paralyzed. Oh, people notice my limp. Sometimes, they even point it out to me or concernedly ask about it, as if I am too stupid to notice that one of my legs is too short and that my left foot constantly makes a valiant effort to make up that difference:
“Are you okay? You’re limping.”
“You have a limp.”
“What’s wrong with your foot?”
“Why do you have a limp?”
Now, since I have no obligation to a.) respond, b.) educate these potentially well-meaning folks about my condition, or c.) give a shit, I have developed a coping strategy that works best for me, and it is to ignore these people and/or pretend like they might be talking to someone else. Surprisingly, it usually works, particularly when I do not care about seeming rude.
I don’t know what it is about certain bodies and the fact that some people feel entitled to treat said bodies as if they are public property. This body-as-public-property trope is commonly wielded at people with bodies that, through no fault of theirs, don’t fit the expected “norm” and who may be marginalized because of it: women, non-white people, fat people, trans and genderqueer people, people with disabilities, and others. And woe betide you if you fit more than one — or even several — of these non-normative categories, because then people might feel really entitled to comment on your body or its workings (or non-workings), if these things are at all apparent. In my fairly limited experience, it seems as though certain bodies and their parts constitute some sort of threat to an established order (in my case, this would be the abled order in which “normal” legs or feet do not have limps) that needs to be constantly pointed out and then monitored for the person’s “own good,” whether they are fat, disabled, unexpectedly gendered or not-gendered, or otherwise.
It seems vaguely panopticon-ish, and more than a tad creepily paternal: Hey, she has a limp, but she must not know it! We need to tell her for her own good, so that she knows and can maybe work on correcting it. No matter what the person’s intentions are (because these intentions may be sort of twisted “good samaritan” intentions), that’s the subtextual message that I get when somebody decides to inform me about my limp. Regardless of intentions, this sort of monitoring mostly ends up looking creepy and awkward for all involved. Some “good samaritan” may want to focus on my limp and how out-of-place or weird it looks, but just because I am out in public — limp and all — does not make the way that I move around (when I am not in too much pain to move, that is) any random stranger’s business.
Neli, as his family calls him, is 18 and has Asperger’s, a mild form of autism. Three Mondays ago, he rose early and left home without telling his mother. “When I entered his room at 6:30 am and didn’t see him, I assumed he had gone for another walk,” she says. It was a school day.
Four hours later Stafford County authorities had ordered a lock down for eight schools, and Neli was in police custody, facing one count of malicious wounding of a law enforcement officer, one count of assault and battery of a law enforcement officer, and one count of knowingly disarming a police officer in performance of his official duties. The cascade of missteps that led to the arrest suggest a combination of public racial profiling and the over reaction of law enforcement officers who are unfamiliar with autistic behavior.
If I believed that the people doing h/c bingo were bound to write horribly problematic stuff, I would not be writing this post. Because it’s a lot of effort and not really all that pleasant and I don’t like talking at brick walls and in that case I could just wait until you wrote the horribly problematic stuff to take it apart. The reason I am writing this post is because I think it might change things. And I think the same goes for a lot of people in this discussion.
The vast, vast majority of the eighty-three (so far) comments on this post concern women’s bodies, full stop. The list went on: people (women) are in denial about their size; thus they wear ill-fitting clothes which are somehow a grievance committed against us, the viewer; people are gross for being fat but they’re really gross for not disguising this fat in some way according to the standards of the poor innocent bystander who has to see this body.
Upstairs, my 85-year-old father, Jeffrey, a retired Wesleyan University professor who suffered from dementia, lay napping in what was once their shared bedroom. Sewn into a hump of skin and muscle below his right clavicle was the pacemaker that helped his heart outlive his brain. The size of a pocket watch, it had kept his heart beating rhythmically for nearly five years. Its battery was expected to last five more.
Scott Carney (Mother Jones magazine): Inside India’s Rent-a-Womb Business
Despite the growth in services, surrogacy is not officially regulated in India. There are no binding legal standards for treatment of surrogates, nor has any state or national authority been empowered to police the industry. While clinics have a financial incentive to ensure the health of the fetus, there’s nothing to prevent them from cutting costs by scrimping on surrogate pay and follow-up care, or to ensure they behave responsibly when something goes wrong.
Benedict Carey (New York Times): Seeking Emotional Clues Without Facial Cues
Ms. Bogart has Moebius syndrome, a rare congenital condition named for a 19th-century neurologist that causes facial paralysis. When the people she helped made a sad expression, she continued, “I wasn’t able to return it. I tried to do so with words and tone of voice, but it was no use. Stripped of the facial expression, the emotion just dies there, unshared. It just dies.”
Goldfish at Diary of a Goldfish: Blogging Against Disablism Day (BADD) Will be on May 1st, 2010
Blogging Against Disablism day will be on Saturday, 1st May. This is the day where all around the world, disabled and non-disabled people will blog about their experiences, observations and thoughts about disability discrimination. In this way, we hope to raise awareness of inequality, promote equality and celebrate the progress we’ve made. [Note: Click the link for info on how you can participate in BADD 2010!]
Max Harrold (Montreal Gazette): Filmmaker in wheelchair says red-carpet rejection inspired film
[Filmmaker Sean Marckos] has it all on video: He and a colleague, both in tuxedos and with their tickets in hand, being hustled out of the famous Palais des festivals in Cannes in 2008 and 2009. They were told they could enter only through a rear entrance, away from paparazzi. “They didn’t want me next to the beautiful people like Brad Pitt and Angelina Jolie,” said Marckos, 31, who has muscular dystrophy.
National Center For Lesbian Rights (NCLR): Greene vs. County of Sonoma et al.
One evening, Harold fell down the front steps of their home and was taken to the hospital. Based on their medical directives alone, Clay should have been consulted in Harold’s care from the first moment. Tragically, county and health care workers instead refused to allow Clay to see Harold in the hospital. The county then ultimately went one step further by isolating the couple from each other, placing the men in separate nursing homes.
Renee Martin: I’m not a Feminist (and there is no but)
Blogs run by traditionally marginalised women do not attract the same attention by the media. When feminists are pulled from the internet for interviews, it is routinely the same white feminist voices representing the broad perspectives that are visible on the internet.
The vast majority of the medical profession is very heteronormative. If you are a woman, you are assumed to have a relationship with a man. If you don’t have one, you are assumed to want one. If you have one, you are assumed to be having intercourse, or to want to have intercourse eventually (waiting till you’re married etc). If you say you are sexually active, you are assumed to be having intercourse. And that even if you do other things besides intercourse, you still see intercourse as the “highlight,” as the only real important sex act.
evilpuppy at Livejournal: “I Have Always Depended on the Kindness of Strangers”
The attendant standing in the front section of economy was a blonde woman probably in her late 40s-50s and I called her over to explain that I needed her assistance because I wasn’t capable of lifting my luggage due to my disability. To my surprise, the attendant rejected my request while excusing it by saying: “If I helped everyone do that all day then MY back would be killing me by the end of the day!” I asked her how I was supposed to get my luggage stowed and her answer was: “You’ll just have to wait for someone from your row to come back here and ask them to give you a hand.”
I am one of Those People. I have friends who are Those People. That World, that you seem so quick to reassure me I am not part of? The world where every statement begins with a negative prefix, a non, dis, lacking-in, etc? That world of people who need things done for them, of people who take too long to do anything on their own, and get in everybody’s way, and can’t help but be inept, no one’s blaming them, but god, do we have to humor them? I am part of that world. When you talk about Those People, you are talking about me.
Maria L. La Ganga (Los Angeles Times): Severely disabled, is she still a mom? Battle nears over visitation rights of a woman injured in childbirth [trigger warning for very graphic descriptions of medical trauma]
Abbie’s parents have been named conservators of her estate, which includes a multimillion-dollar malpractice settlement, and are asking a Los Angeles County Superior Court judge to order Dan to let Abbie see her children. Dan has refused all requests, arguing that visitation would be too traumatic at their young age.
My Student Union is doing work right now around issues of student residences. This is something that’s very much on my mind right now in light of the recent highlighting of difficulties of having a service animal when living on campus. In reading the Yummy Puppy Adventures – or, more accurately, the Mount Holyoke College Accessibility Fail – I started to really think about what an accessible residence experience would look like for students with disabilities.
So of course I brought it up to one of my student union executives, and instead of, say, asking students with disabilities for feedback on the issue, or contacting student accessibility services, he suggested I send him an email detailing out my concerns.
(In his defense, it is a month until school is over, and he is busy, and he doesn’t even know what to ask. I’m not irritated with him, just with the situation in general.)
So, this is the short list of things that I’ve come up with, but I know from previous discussions with the community that I will miss important things that should be considered.
In no order:
- Clearly post that service animals are allowed around campus and in campus dorms and facilities.
- List on both your residence page and your student accessibility services page that there are residences for students with disabilities.
- Private washrooms with grip bars for toilet & shower/bath.
- Wider doors & hallways.
- Barrier free access to all dorm rooms.
- Residence Orientation that mentions accessibility features to all students, including re-iterating scent free policies and that service animals are allowed on campus.
- The ability to change any room over to have lights that flash for alerts.
- A map of campus that indicates all barrier-free access points to all buildings.
- Highlighting menu plans that accommodate food allergies or intolerances.
I’m certain I’m missing obvious things.
Please, give me your thoughts?
Esté Yarmosh has Cerebral Palsy. She holds a B.A. in English from Eastern Connecticut State University and is currently studying for her Master of Arts degree in English at Simmons College. Her previous guest posts are Cerebral Palsy Humor? Not so much and Disability Dismissed
I’m something of a Sci-fi fan, especially when it comes to the literary genre of science fiction. And when I first heard about James Cameron’s new Sci-fi movie Avatar, I was fascinated, and I watched the trailer(s) right away. In some ways, I was blown away by the visuals, particularly the images of the alien planet “Pandora” and the image of the incubation tank of sorts that holds the main character’s alien body. Even the idea of placing your mind in an alien body to do space exploration initially intrigued me. Also, when I read that the protagonist was a wheelchair user, I was interested.
My doubts started forming, however, when I looked more closely at two sources: the movie’s dialogue and the movie’s synopsis. I want to start with the synopsis. Through about the film’s box office numbers, I understand that Avatar is quite popular with audiences. This synopsis contains profoundly ableist language in the way it describes the protagonist Jake as “confined to a wheelchair.” I don’t use a wheelchair; nevertheless, I was very offended when I read that. We’ve been trying to eradicate terms like “confined to a wheelchair” for a while now, and to see this demonstration of ignorance on such a large scale, since it is mainstream, is distressing.
I wonder if the producers or whoever wrote the official synopsis thought that they were being more politically correct by saying “confined to a wheelchair” instead of, say, wheelchair-bound. The fact is they aren’t being PC by declaring Jake is “confined to a wheelchair.” Actually, wheelchair-bound and “confined to a wheelchair” are synonyms and the writer(s) of the synopsis aren’t helping either people with disabilities or the non-disabled population by using that term. I worry a bit because non-disabled people may think through reading this synopsis that referring to someone who uses a wheelchair as “confined to a wheelchair” is okay – but of course, it’s really not — wheelchair user, for instance, is more acceptable. I’ve checked –I know that this synopsis has flooded the Internet and it is most likely people’s main source of information about Avatar.
I also want to take the sentence (from the plot synopsis of Avatar) “Bitter and disillusioned, he’s [Jake] still a warrior at heart” to task. To me, it smacks of disability stereotypes. First, I think the sentence inspires pity in the reader, which is regressive and entrapping for people with disabilities because it signals the endurance of a vicious cycle of stereotyping – in this case, the pitiable cripple. Another stereotype that can be inferred from the sentence is that of the wounded/disabled veteran. I’ve read in one of the (few, alas) analyses of portrayals of disability in film and TV that a component of the disabled veteran is his jaded and cynical attitude towards life and people – he becomes a bit of a misanthrope.
Now, about Avatar’s dialogue – in one of the theatrical trailers, Commander Quaritch (leader of the mission says to Jake), “you’re going to get your real legs back” or something to that effect. [opens with sound] Yet this piece of dialogue overlooks a fact that’s glaringly obvious: Jake still has his legs! Yes, he has a disability, but what’s the problem with his legs and/or wheelchair? The commander is implying that there is something not just physically, but morally, wrong with Jake’s disabled legs and wheelchair use: it is unacceptable in the military for a soldier to be disabled and, moreover, to show it.
And there is another issue I have with the way Quaritch uses the word “real.” The legs Jake has while in his wheelchair are the ones he was born with, and therefore, are true and natural, albeit he is now in a wheelchair. The commander is being terribly ableist and in denial of disability issues when he makes this statement. It’s a long-held stereotype (and still exists today) that disability is unnatural in people and so must be fixed or cured (an issue brought up by Meloukhia in ou article on Avatar). The thing is, disabilities have always been with us (for both non-disabled and disabled people) and according to Paul Jaeger and Cynthia Ann Bowman, 550 million people all over the world have disabilities, so disabilities are, in fact, quite natural.1
Avatar does not even confront disability in an honest and upfront way. The film, in my opinion, takes the easy way out by putting Jake in a completely different body (the alien) and thus, it completely bypasses any meaningful efforts for dealing with Jake’s disability and the issues that arise from it. I suppose that the film’s whole plot hinges on the fact that Jake enters an alien body to explore the planet “Pandora,” but still, the film seems to willingly ignore the regular experience of Jake as a disabled person in favor of an instance of “how cool is this alien creature!” The aliens really remind me of tigers in their ferocity, tails and stripes (!). The aliens also sort of remind me of elf-like creatures I’ve seen in certain illustrations and I’ve read about in fantasy novels: the Drow. Anyway, Jake is seduced into believing that an alien body is better for him than his real, disabled one and he gleefully decides to participate in the military’s little experiment.
The word experiment brings me to another point: the so-called medical model of disability. This version of the medical model in Avatar is glossed over with fancy and distracting features: advanced technology, a futuristic setting, alien life-forms and magic. Yet when these features are all stripped away, we can see that Jake is still being worked on physically, tampered with, if you will, by scientists—the medical model. In much the same way in real life, people with disabilities are prodded, observed and examined (sometimes exploited) by doctors, who claim they know what’s best for us.
That’s how I got a snapped tendon which is currently floating around somewhere in the vicinity of my knee. It’s the result of a semi-botched leg operation, in which “we overcompensated,” my orthopedic doctor (so helpfully –*sarcasm*) let me know years later. Yeah, you really know what’s best for me. I dislocated my knee twice during the years following the operation, and sometimes I think the snapped tendon was a contributing factor, although I probably will never really know.
Also, why are fictional characters with disabilities often put in films (and TV shows) with Sci-fi plots/concepts? To me, it perpetuates the stereotype that people with disabilities are ‘freaks’ and like I said earlier in this article, somehow unnatural. The instances of disabled characters showing up in Sci-fi movies seem to lump them together with strange Sci-fi creatures like aliens, androids and robots, to name a few; yet, as we all know, people with disabilities are human! However, I think that unfortunately, the writers, producers and directors of these types of films believe that disabled people are interchangeable with said aliens and androids. The creative decision to make Jake into an (albeit artificial) alien displays this belief; it further shows that Jake doesn’t deserve to be human because he isn’t ‘whole’ or ‘normal.’ Why can’t there be films and TV shows about people with disabilities that have a contemporary setting and that take a realistic approach to their subject matter (not counting Glee, which has representation problems of its own)?
Meloukhia’s earlier post about Avatar mentioned the film’s aspects of crip drag, so I won’t go into that, but I’d like to say something about how non-disabled film-makers seem to think that a wheelchair stands for all people with impairments, whether these are physical, sensory, mental, cognitive, learning, etc. This is of course wrong: disabilities are way more diverse in nature than simply having a wheelchair, and not all physical disabilities even require use of wheelchair (such as in my experience). Although if you think about it, we can take issue with the international accessibility symbol, too – it shows a figure in a wheelchair. This is the second (male, by the way) character in a wheelchair featured in a mass media production in the past six months (Glee’s the other). When will film-makers (and TV producers) create a character that has a disability which doesn’t involve a wheelchair – perhaps Epilepsy, or Asperger’s — to replicate the vast range of disabilities in real-life?
Furthermore, it seems to me that there are few, if any, films and TV shows which center around a disabled character that is also female. I’d like to see that, and not in the distant future either. Another thing I’d like to see out of a film or TV show is a female character with a disability that has a significant sex (and/or romantic) life; I guess I’ll have to keep hoping we’ll get that someday. Avatar doesn’t deliver on these fronts (and neither does Glee), because as usual in films and TV shows, the man, disabled or not, gets the girl in the end.
I know I’ve written a really long post, but one last thing. Has anyone seen this [toy of Sully] yet?
- Bowman, Cynthia Ann and Jaeger, Paul T. Understanding Disability: Inclusion, Access, Diversity, and Civil Rights. Praeger Publishers, Westport, CT: 2005. 165 pp. ↩