By kaninchenzero on 30 October, 2009
Update: It was pointed out, correctly, that part of this post contained a statement that made a generalization based on age. That statement has been removed and the post updated with this message. It’s not feminist, and it doesn’t belong here. I’m sorry. I actually had a really good experience with a physician recently. Like [...]
Posted in accessibility, bodies, happy posts, medical practice, mental health, normality, sexuality, social attitudes | Tagged accessibility, autism, barriers to access, chronic pain conditions, fibromyalgia, health care, medical care, problematic attitudes, social treatment
By amandaw on 24 October, 2009
(Originally posted July 2009 at Feministe, three rivers fog.) We had a really good discussion about nondisability. It got derailed, a bit, because it depended on our ability to reasonably define disability. And it’s a subject that has come up in every discussion we’ve had these couple weeks. What is it? I advocate an intentionally [...]
Posted in identity | Tagged ableism, accessibility, autism, cfids, cfs, chronic fatigue syndrome, chronic illness, chronic pain conditions, conceptions of disability, difference, disability, disability movement, exclusion, fibromyalgia, identity, intersectionality, invisibility, invisible disabilities, invisible disability, isolation, language, mental illness, models of disability, participation, passing, privilege, self-identification, self-perception, social inclusion, social model, social treatment, symptoms
By amandaw on 23 October, 2009
I take six medications. Five of them — the antiepileptic, the antidepressant, the non-narcotic pain killer, the muscle relaxer, and the oral contraceptive — are covered through a mail-order service. I receive a 90-day supply in my mail box every three months. No hassle. If a prescription runs out, my doctor is notified electronically, he [...]
Posted in blaming, bodies, language, medical practice, shaming, social attitudes | Tagged ableism, addiction, barriers to access, Big Bad Pharma, chronic illness, chronic pain conditions, conceptions of disability, disability, drugs are bad mmm'kay, fibro, fibromyalgia, health care, invisible disabilities, invisible disability, life, medical care, medications, mislabelling, myths and misconceptions, pain management, problematic attitudes, social policy, social treatment, symptoms, things people say
By amandaw on 23 October, 2009
(Cross-posted at three rivers fog.) I wrote this yesterday in an extreme fog and do not have the spoons to rework and polish it. Apologies for the brainspill, but these days it’s the only option I have. *** For background, see Ouyang Dan’s post on the problematic aspects of the TV show House. Don’t tell [...]
Posted in blaming, i'm right here, media and pop culture, shaming, social attitudes, Uncategorized | Tagged ableism, abuse, addiction, causation, characters with disabilities, chronic illness, chronic pain, chronic pain conditions, disability, disability in fiction, disabled characters, disclosure, drugs are bad mmm'kay, erasing, fibromyalgia, House M.D., invisibility, invisible disabilities, invisible disability, life, me, medications, myths and misconceptions, pain management, passing, personal, pop culture, privilege, problematic attitudes, shaming, social treatment, stereotypes, stories, television, things people say, work
By lauredhel on 22 October, 2009
This post was originally posted on March 19, 2009 at Hoyden About Town. New Scientist this week published an interview with infamous psychiatrist Simon Wessely. Wessely persists in believing, in the face of all the evidence, that Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME)* is a uniquely UK/American psychological condition caused by internet-triggered “faulty illness beliefs”. Here’s [...]
Posted in blaming, medical practice | Tagged cfids, cfs, cfs/me, disability, fibromyalgia, gulf war syndrome, illness beliefs, irritable bowel syndrome, me, psychological, psychologisation, psychologization, symptoms, wessely
By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference. Many accessibility solutions are structural; they require collective action — constructing spaces such that [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By Annaham on 18 October, 2009
[Author's note: I'd been meaning to submit this piece somewhere since earlier this year, but never got around to it. I know we're almost finished with 2009--so focusing on a charity calendar may seem a bit old meme, at least in internet time--but some of the issues that this campaign raises are, as they say, [...]
Posted in bodies, feminism, intersectionality, media and pop culture, normality, Uncategorized | Tagged body image, chronic pain conditions, feminism, fibromyalgia, media and pop culture
By Annaham on 16 October, 2009
The singer Martha Wainwright has a song entitled “Bleeding All Over You” that begins with the following set of lyrics: There are days when the cage doesn’t seem to open very wide at all I know it sounds negative, but some days, I can definitely relate. Maybe it’s the fact that I pass fairly regularly [...]
Posted in bodies, identity | Tagged chronic pain conditions, fibromyalgia, invisible disabilities, normality, passing
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
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