By amandaw on 20 October, 2009
Access is an all-consuming endeavor in a disabled person’s life. I love that the disability community learned to frame it that way: it emphasizes that the problem is not the person, their body or their condition; the problem is society’s indifference. Many accessibility solutions are structural; they require collective action — constructing spaces such that [...]
Posted in accessibility, blaming | Tagged accessibility, advice, barriers to access, disability, exclusion, fibromyalgia, illness, invisibility, invisible disabilities, invisible disability, isolation, me, participation, passing, personal, privilege, social inclusion, social treatment, structural vs. individual
By Annaham on 16 October, 2009
The singer Martha Wainwright has a song entitled “Bleeding All Over You” that begins with the following set of lyrics: There are days when the cage doesn’t seem to open very wide at all I know it sounds negative, but some days, I can definitely relate. Maybe it’s the fact that I pass fairly regularly [...]
Posted in bodies, identity | Tagged chronic pain conditions, fibromyalgia, invisible disabilities, normality, passing
By amandaw on 12 October, 2009
(Originally posted July 2007 at three rivers fog) Over half of the chronically ill*: In a recent survey of 611 chronically ill individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so [...]
Posted in Uncategorized | Tagged cfids, cfs, chronic fatigue syndrome, chronic pain conditions, communication, disclosure, fibro, fibromyalgia, illness, illness beliefs, invisibility, invisible disabilities, invisible disability, myths and misconceptions, passing, social treatment, things people say
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
Latest Comments
Sasha_Feather, Joanna, Ms. M, Jo, Vertigo
Quijotesca, Nana, Teressa, Dani Alexis, Indigo Jo, Quijotesca [...]
Sharon Wachsler
Bruce Triggs
sanabituranima, Sharon Wachsler
Teressa
Jayn, jeneli, Indigo Jo, Jack, The Untoward Lady, Kaz [...]
GallingGalla, Megan, cim, Ben, tekanji, Static Nonsense [...]