Category Archives: recommended reading

Recommended Reading for Wednesday, November 10

I am apparently a month behind as I originally dated this for October. Oh self. If it were October, I wouldn’t be so far behind! Wishful thinking?

Captain Kitt at A Gentle Nerd of Leisure: Our Mental Health System? More Mental than Healthy! (Note this post also includes discussion of eating disorders, self harm, and sexual assault but mostly focuses on experiences within the Australian mental health system) (via vass)

Thing is, often those services are really hard to access! I’m great with search engines – thanks to a librarian Mother – so it’s easy for me to find where the services are. Actually getting help from them? Not so easy.

Laura Hershey at Spinal Cord Injury and Paralysis Community: Fairness for Attendants: Enacting Justice in an Unjust World

We can start by acknowledging the profound disconnect between the importance of the work and the compensation it offers. In understanding and analyzing this, we can call upon a radical understanding of how disability justice and worker justice intersect. Providing hands-on personal care has acquired over the years an aura of sentimentality. People are assumed to do such work out of pure compassion (which translates as pity), or because “it’s so rewarding” (rewarding in a vague, emotional, non-material sense). Within this framework, disabled people embody neediness, while support workers cheerfully fulfill our needs. Disabled people are passive objects of support workers’ active “caregiving.”

Elizabeth McClung at Screw Bronze: Aren’t You Proud?

We are, disabled and Able Bodied, all types of bigots, and one of the most supported forms of bigotry is how we encourage each other to give in to our fear of illness, and altered human function and form. Drool, and averting the eyes is ‘doing you a favor’ – haha. Yes, because having everyone glace, look away and then talk about you, because your being alive makes them uncomfortable is helping me? No, helping them. It is no different than spotting who the odd one is in grade school, and somehow, they end up with no friends. They are stared at. They are, as you will well know if you were one, asked, “Why do you keep coming?”, and the idea of invitation to a party, or even having anyone show up at one you host is laughable.

crabigail adams at if you don’t have anything nice to say, come sit here by me: i am disabled

of course, this is a fixed income. if i find one day that it’s not enough money to get by, i don’t have any options. i can’t apply for a better-paying job. i can’t further my education in hopes of a professional career & the attendant boost in income. this is it. & there are other caveats as well: if i ever decide to live outside the united states, i lose my disability money altogether. if i ever get legally married, the government will pull the extra money i get from the disabled adult child program & i’m back to just my $525 or so in disability money. i would have to rely on my partner to support me financially, which is a lot to ask of someone, & which is something that makes me very uncomfortable. i’m not sure what the rules are around having assets (ie, if i were to sign a mortgage, even if i wasn’t the sole person responsible for paying down the mortgage). i’m not sure how social service programs i may be eligible for if i were to have a child (ie, WIC) would impact my social security income.

Casekins at If My Hands Could Speak: Martha’s Vineyard – Utopian Society (Caseykins is not Deaf – I’m linking this because the history is very interesting.)

The prospects for deaf people on Martha’s Vineyard were completely different. Many of the former residents of the island were interviewed, and they paint an idyllic picture of what it was like to live in Martha’s Vineyard during this time. Because everyone had a deaf family member, everyone in the community knew sign language. Deaf people were farmers, store clerks, anything they wanted to be. Hearing people would sign to each other over the large expanses the island farms created, a deaf person could walk into a store and the clerk would always know sign. Deaf people were even elected to high political office, becoming mayors and council members for the island, a thing unheard of in the rest of the country. When telling stories about the community, the people who were being interviewed could only remember after much prompting if the people they were talking about were hearing or deaf.

I’m closing comments on this one because I’m hip-deep in alligators (do people still say that?) and I always feel bad when people’s comments sit on Recommended Reading posts for days until someone can look at them.

Recommended Reading for November 9, 2010

John Keilman for the Los Angeles Times: Technology opens new horizons for disabled

Yet for all of technology’s promised advances, some worry that the cost will keep helpful devices out of many people’s reach. Others are concerned that governments, schools and institutions might think that high-tech gadgetry has relieved them of their responsibility to serve the disabled.

“Technology is not a solution for every problem,” said Paul Schroeder of the American Foundation for the Blind. “It doesn’t replace the need for quality teaching. It doesn’t replace the need to teach social skills.”

Crazy Mermaid at Bipolar: Crazy Mermaid’s Blog: Paranoid Schizophrenia: Worst Disease in the World

During the tail end of my psychotic break with reality, I came to believe that there were zombies after me, ready to kill me in order to take over my body. My fear of them taking over my body eventually became so great that I decided to go to the local hospital emergency room, where I thought I would be safe from them.

Liz Sayce at RADAR Network: Health and safety: Stifling disabled people’s independence?

As politicians queue up to cite ever more ludicrous examples of health and safety excesses – making kids wear goggles to play conkers, cancelling historic Gloucestershire cheese rolling events, stopping trainee hairdressers having scissors – those of us living with health conditions or disability sometimes hesitate about which side of this argument we are on.

On the one hand, selected stories like this, designed to justify scrapping regulation, can – as the NASUWT just put it – play politics with children’s safety or put workers at greater risk. On the other, there is a massive history of health and safety being used as an excuse to stop disabled people from doing things. So – whilst I hesitate to join all the people selecting examples of health and safety excesses – we do need to look them in the eye.

Irish Deaf Kids: The Salamanca Statement and EPSEN Act (2004)

A key point:

“regular schools with this inclusive orientation are the most effective means of combating discriminating attitudes, creating welcoming communities, building an inclusive society and achieving education for all; moreover, they provide an effective education to the majority of children and improve the efficiency & ultimately the cost-effectiveness of the entire education system.”

allama at give the feminist a cigarette: Women as sociological ducks

In The Dustbin of History, Greil Marcus warns of the risk of losing sight of individual genius when talking about the blues: yes, it was created in response to slavery and oppression, but centuries of slavery and oppression only produced one Bessie Smith. Seeing Strange Fruit as the inevitable product of the horrors of American history denies the incredible personal achievement of Billie Holiday. And painting female depression as simply a product of the patriarchy denies the personal experience of mental illness to every single sufferer.

incurable hippie at Where’s the Benefit? Round-Up Post

There are plenty of must-read articles and blog posts which I haven’t had the time or the spoons to cover. All of the following are well worth a look.

Recommended Reading for 08 November 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

abledbody: Five Tips for Disabled Job Seekers

The federal government has stepped up efforts to help the disabled find jobs. President Obama has called for 100,000 people with disabilities to be hired in the federal workforce in five years, and now requires federal contractors and subcontractors to take affirmative action and open employment to people with a disability including disabled veterans. Consider a federal job or a job with a company that does business with the government. The federal Office of Personnel Management has job listings.

BBC — Ouch!: Wheelchair wedding, fun, and love

We wanted a place with enough crip loos and space to accommodate over 150 people, many of them wheelies. When we asked venues if they were wheelchair accessible, most of them assumed we meant for our grandparents, not one of the brides. And as for their definitions of ‘access’: “No problem! Just come in through the kitchen and we’ll find two strapping young waiters to carry you upstairs to the lift…”.

Donna Jodan: Barriers to recreational sports

I am not sure if these barriers could be overcome but they can definitely be made easier to deal with.  How so?  We need to enlist the assistance of the sighted world.  We need to make our requests and ask for help.  We need to convince the sighted world that there is a definite benefit to making recreational sports available to the blind and sight impaired.  A few months ago, I attended a Ski for Light event in Utah and what an experience it was.  I invite you now to visit this website and see for yourself. www.skiforlight.org.

Women and Hollywood: I am an actor. I am also deaf: Guest Post by Shoshannah Stern

I am an actor. I am also deaf.

I have played roles written for deaf actors and roles written for hearing actors, when I was lucky enough to have people who believed in me enough to rewrite them to suit me. I am very grateful to have been in this industry for eight years.  During that time, I’ve experienced challenges, triumphs and changes – some relating to being deaf, but most related to being an actor in Hollywood searching for the right parts at the right time. I always try to learn what I can with every experience I encounter and hope at the end of the day, that I have done my best to overcome them.  It is my sincerest hope with all that I have learned and been fortunate enough to do, I will continue to do everything I can to accept strong roles and positively represent the deaf community on and off the screen.

Two Links, One Topic Bonus!

Change.org’s Health Blog: IRS Does Not Consider Breastfeeding To Be Medical Care

Ask any pregnant woman or mother, and she’ll be able to recount the numerous health benefits of breast feeding. It can pass along mom’s antibodies, imparting important immune defenses that can prevent sickness and even death in newborns. It’s the most complete form of nutrition for a baby, far exceeding formula. And breastfeeding may even help mom’s health; research indicates that women who breastfeed may have lower rates of certain breast and ovarian cancers.

Yet that’s not good enough for the Internal Revenue Service, who won’t allow nursing mothers to use their tax-sheltered health care accounts to pay for breast pumps and breastfeeding supplies. As reported in today’s New York Times, this is because the IRS ruled that breast-feeding “does not have enough health benefits to qualify as a form of medical care.”

From the Women’s Rights blog: IRS Denies Breastfeeding Qualifies as Medical Care

Yet as Brie Cadman writes on the Health blog, the IRS has decided that breastfeeding “does not have enough health benefits to qualify as a form of medical care,” and thus cannot be included in the tax-sheltered health care accounts that many companies offer their employees. But support hose? Totally qualifies.

Breastfeeding equipment can tally up to $1000 a year, which isn’t anything to sniff at. Yet the only way a woman can get tax breaks on this expense is to secure a doctor’s note calling breastfeeding a medical necessity in her case. This deters women from breastfeeding, despite its host of medical benefits, passing on immunities to the baby and reducing the risk of certain breast and ovarian cancers in mom. The idea that a woman needs to secure a doctor’s note calling her individual case of breastfeeding medically necessary is absurd: while breastfeeding is not the sole option for women, it is without a doubt medically beneficial for just about any mother to decide on, and certainly as necessary as pimple cream.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Recommended Reading for 05 November 2010

Advert for the National Suicide Prevention Lifeline. A green and black print on a white field. Text reads National Suicide Prevention Lifeline (the "c" is a telephone handset), and the phone number 1-800-273-TALK (8255). The web address "suicidepreventionlifeline[dot]org" is underneath.
An advert for the National Suicide Prevention Lifeline in the U.S. 1-800-273-TALK (8255). Press "1" for veterans in the U.S.
Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Moderatrix Note: Please kindly consider this the 05-06 November RR. I simply added the incorrect date in the title. My apologies. Also, thanks to Indigo Jo for pointing out that I forgot to add the Daily Record link, which has now been added.

pinkpjs guest posts at Where’s the Benefit?: ‘Not Really Disabled’

As part of my job I had to attend a meeting with a manager working with
the DWP who told me that their role was to support disabled people to
receive benefits they are entitled to.

I asked them about the changes to DLA in particular and the impact of
people in residential care and was shocked to be told that ‘they don’t
really need the mobility allowance as most of them rarely go out except
to medical appointments and then the staff are more than happy to take
them, so it is only fair that they shouldn’t get this’.

Then, the response to my question about any other changes to DLA which
the condems have hinted at, was ‘well, we all know that many people
currently getting this really aren’t disabled and shouldn’t be getting
it’.

Planet of the Blind: Shame On Ohio’s Cedar Point

[Excerpt] Call ’em crazy, but Cedar Point won’t alter or remove any of its attractions, despite a request from mental health advocates to do so.

A Cedar Point spokesman said “changes are not required.”

On Thursday, the National Alliance on Mental Illness asked the amusement park to immediately remove two offerings focusing on fictional mental health patients: Dr. D. Mented’s Asylum for the Criminally Insane, and The Edge of Madness: Still Crazy.

One is a haunted house, the other is a separate show.

The attractions promote the false stereotype that the public should fear mental health patients, the alliance said.

Navy SEASs Blog: VA Releases Suicide Prevention Street Ad

One of the resources available to service members or friends and loved ones of those who need help is the National Suicide Prevention Lifeline – 1-800-273-TALK.

post on the website of the Department of Veterans Affairs (VA) shared the efforts of the VA to ensure that people know about the Lifeline. Last week, almost 1,200 ads that carry messages of hope for service members facing emotional crises, and details for the Suicide Prevention Lifeline, were put up by the VA on city buses, bus shelters, rail and subway stations across the country.

Daily Record: Parents tell how every day is a battle to care for teenager struck down with chronic fatigue syndrome (sent in by Indigo Jo)

Just getting a diagnosis of ME, otherwise known as myalgic encephalomyelitis, was a battle for the family. When it finally came in October 2005, Carol said she was shocked by their GP’s reaction.

She explained: “Eilidh was being treated for asthma but I knew something wasn’t right and her teachers agreed.

“When I took her to the GP he said, ‘Right, that’s enough of all this’ and told Eilidh to go and run round the building three times.”

Minutes later dad Blyth, also 46, found Eilidh outside in a distressed state but the GP wouldn’t accept that she couldn’t carry on.

Carol said: “He told her to run through the waiting room. After that, they said she had chronic fatigue syndrome and would recover in six months.”

Four years on, her parents had to fight to stop Eilidh being treated as a psychiatric patient. Now the family, from Glenrothes, Fife, complain doctors seem to have washed their hands of them.

Carol said: “The paediatrician told us the ME has been dealt with and it’s all down to anxiety. They always fudge over the physical illness.”

ABC News (Australian Broadcasting Corporation): Social networkers switch off for autism awareness (sent in by Kathryn Bjornstad)

Ms Bjornstad says the people behind the Communication Shutdown “meant well”.

“But it’s more of the kind of advertisement and philosophy that is harmful to the autistic community,” she said.

“It ignores the fact that autistic people are actually less socially isolated because of inventions like the internet, and it does a poor job of explaining what autism is like.

“Staying off of Facebook will not mirror the social isolation that many autistic people face. I don’t think that anything they do could mimic this.”

Ms Harvey says she can understand why members of the autistic community have expressed concern.

“Our aim was to create empathy in the wider community. There’s no way that we would ask autistic people to give up their tools of communication,” she said.

“There are a wide spectrum of opinions.”

Ms Harvey says she is glad the Communication Shutdown has prompted events like Autistics Speaking Day.

“Although our executions are paradoxical, we believe we have the same goal,” she said.

“I would hope that the two events can complement each other,” she said.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Recommended Reading for Wednesday, November 3

I’m sorry this is at an odd time today. I forgot it was Wednesday. (I forgot yesterday was Tuesday, so this makes total sense.)

Monday was Autistics Speaking Day:

Corina Becker at No Stereotypes Here: Preparing to be Loud

When I proposed Autistics Speaking Day, I merely thought that it’ll be myself plus a couple of others participating. However, it turns out that there are a lot of people who feel the same, and different names for it, from Autism ShoutOut! to our Autistics Speaking Day.

The name for it doesn’t matter. This is a day that is supposed to be about spreading Autism Awareness, therefore it’s OUR day. It doesn’t just belong to me, it belongs to all of us, and what matters is that we stand together to raise Autism awareness.

Corina followed up with The Success of Speaking

I will be honest, when I proposed Autistics Speaking Day, I thought that at best it would be myself and a few others, tweeting on Twitter and maybe putting up a few blog posts. And when the criticisms came in, with people saying that much wouldn’t happen, so why bother, I thought of two things. The two things that leads me to be active in the Autism and Disability communities.

Corinna and Kathryn Bjørnstad have made a very long list of bloggers that participated in Autistics Speaking Day. I recommend checking them all out.

Steve Silberman at Neurotribes: I’m Right Here: Rudy Simone on Life as an “Aspergirl”

Unlike autistic author and animal-behavior expert Temple Grandin — whose life was the subject of an acclaimed HBO biopic starring Clare Danes — Simone wasn’t diagnosed until she was in her 40s. Diagnosis in mid-life is common for women with Asperger Syndrome. Often highly intelligent and articulate, they’re able to mask their social deficits while leveraging their ability to focus intensely into achievements in school and the workplace.

Simone had a relatively happy — if eccentric — childhood, but when she hit adolescence, the social tide seemed to turn against her, washing away most of her friends. Suddenly, her trusting exuberance and hyper-focus made her weird in the eyes of her peers, and a convenient target for bullying and abuse. One day, Simone’s chief tormentor at school brutally beat her in front of a cheering crowd of older kids. Humiliated, the 12-year-old Simone stopped singing and laughing in public

The Untoward Lady at the Vibrating Square: Memories [Discusses bullying]

I expected to remember the bullies. I expected to remember the pain that had been caused. I had thought that the faces of my memory, the pain, would come and surface again as I looked at the rows of portraits.

MASSIVE TRIGGER WARNING ON THIS ONE: Dave Hingsburger at Rolling Around in my Head: Curbing Anger: Daring Difference (TW for abuse of autistic boy)

What they did defies understanding. Maybe it just defies MY understanding. For three days they tortured a young 17 year old man with autism. The list of what they did is astonishing in its length, in its cruelty, and (it must be said) in its creativity. Here’s a brief survey of what a teen boy with autism suffered at the hands of his tormentors.

The Quixotic Autistic: New Age & Autism Part One: The Horse Boy (See also Part Two)

My very first instalment in my series on New Age perspectives on autism begins with the book and movie of the same title, The Horse Boy, the book being written by Rupert Isaacson, the movie directed by Michael O. Scott. At the centre of both though is Rowan Isaacson, son of Rupert and Kristin. He is the titular “Horse Boy” and he has autism. The book and film both chronicle his parents taking him on a special trip to Mongolia to consult with traditional Mongolian shamans, in hopes of “healing” Rowan from his tantrums and incontinence, as well as helping him become more social and less agitated by overstimulation. The idea is that the combination of riding horses and shamanistic healing will benefit Rowan emotionally and physically.

jholverstott: A Shade unDifferent: Latent Bullying and ASD, the Epidemic Grows

Most of what I have read in the literature suggests that anti-bullying campaigns are ineffective, at best, and potentially damaging, at worst. Kid with ASDs are a tricky audience, regardless. They are kind, too kind to stand up for themselves with the empowered and sometimes sassy words that stand down a bully. They are not equipped to recognize the savviness of cyber- and mobile-bullying, with its faceless and nameless tactics. They are primed targets because they want so desperately to believe in others, to believe in a friend, to have a friend. They are cyclical victims because of the flaws of the system that shields them; “tattle” and enlarge the target.

Recommended Reading for November 2, 2010

Siddharta Mukherjee for the New York Times Magazine: The Cancer Sleeper Cell

In fact, this view of cancer — as tenaciously persistent and able to regenerate after apparently disappearing — has come to occupy the very center of cancer biology. Intriguingly, for some cancers, this regenerative power appears to be driven by a specific cell type lurking within the cancer that is capable of dormancy, growth and infinite regeneration — a cancer “stem cell.”

staticnonsense at Some Assembly Required: The Abstracts of the Mind and the Schizophrenic Metaphor

One of the elements of psychosis is what is called cognitive disorganization, or formal thought disorder. This can lead the brain to think in more abstract forms. This is also where people get the idea that those with schizotypy are artistic, when we may not exactly see ourselves as such. Much like other elements of psychosis, this is heavily impacted by stress levels. Seeing as I was in an abusive relationship at the time, one that amplified all of the symptoms of my mental illnesses, one can imagine that this cognitive disorganization was also amplified.

XLII at Aceldama (Tumblr): Everyone makes me want to puke

no, helen keller jokes aren’t funny. she rose to great prominence and is a role model for all people with similar disabilities. making fun of her is making fun of us and telling us that even if we become powerful, people will just see us for our disabilities and as a joke.

NPFP Guest Poster at Raising My Boychick: Hold This Thread as I Walk Away

People try to joke with me, saying they wish they had that ability like I do. Most of the time I just laugh it off. I don’t expect them to understand. After all, if you’re not there, you can’t experience what’s going on in the world around you, right? It can’t affect you.

Right?

I wish. Unfortunately, it doesn’t work that way.

Joyojeet Pal at Yahoo! Accessibility blog: Disability in the Media: Issues for an Equitable Workplace

The canonical western cinema has followed a few dominant patterns regarding the portrayal of people with disabilities. Characters could typically be pitiable (Coming Home), burdensome (Whose life is it anyway?), sinister (Dr. Strangelove), or unable to live a successful integrated life (Gattaca). The fundamental underlying theme has been the disabled character’s maladjustment or incompatibility in the public sphere, effectively highlighting what we can be referred to as an “otherness” from the non-disabled population.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Recommended Reading for 1 November, 2010

Welcome to November. Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Queen Emily at Questioning Transphobia: attacking the already vulnerable:

In the UK, people with disabilities have been among the hardest hit by the recent Thatcher 2.0 ConDem cuts of the Osborne Review. The employment support allowance (ESA) which was previously able to be claimed until the person finds a job has now been set with a limit of one year. I’m sure that’ll be of great comfort to people, cos disabilities also expire after year amiright?

It’s election time in the United States. Melissa Mitchell at Service Dogs: A Way of Life: Cast your vote November 2.

I ask you, my loyal readers how can we as a community expect our current rights to continue to be protected, our equity as members of society to be validated, or our issues to be seen as important when we are not seen as a community that votes?

Also, Leah at Cromulent Words: Voting and Privilege:

And what do you need to do after you’ve recognised your privilege of voting access? You can either use your privilege to uplift the people you oppress or you can ignore it and continue to harm (directly or indirectly) the most vulnerable people in our country.

New South Wales, Australia: ABC News: Thousands rally for disability services funds

The State Government committed funding for disability services five years ago under the Stronger Together program, but money for the next five years has not been included in the forward estimates of the next budget.

Times of India: Sleep disturbances ups work disability:

A new study, conducted by the Finnish Institute of Occupational Health in collaboration with the universities of Turku and London, has revealed that sleep disturbances increase the risk of work disability and may slow the return to work process.

That’s all for this time. Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.

Recommended Reading for 28 October 2010

Readers beware! Not every link is a guaranteed trip to a safe space, and the commentary is not necessarily the opinions of myself or others here at FWD/Forward, but have been included to provide you with a variety of reading that is possibly relevant to your interests (or perhaps to mine). The comments in the blog posts or mainstream news articles you will find below may or may not be triggering to various -isms, and so I would caution you, gentle readers, to proceed with the greatest of caution as you click through away from this page.

Yahoo! News: Nurse error left man brain-damaged

Mr Merrett was aware of the mistake that had been made before he lost consciousness, unable to speak. He can be heard on the film urgently clicking his tongue as a warning.

Ms Aylward tried to resuscitate him but it took 21 minutes for the machine to be restarted by paramedics, leaving Mr Merrett with serious brain damage. He had been nursed at home since 2002 after a road accident left him paralysed from the neck down.

In a strange land (sent in by reader Deborah Russell): The slow reveal

That’s one of the things I like about this book. It doesn’t try to pretend that illness is easy, that everyone can just take the pills and be happy. Kate de Goldi’s characters cope, but there are costs for each of them too. Above all, there are costs for Francie. She has found a way of living, a way of managing, a way of being… content, even if not happy per se. But there are costs. Fancie is no super-crip. She’s just an ordinary woman, who copes as best she can with the way her life has turned out.

The Living Artist (sent in by Heather Freeman): Withdrawal

I see my doctor once a month for a new prescription, because she won’t give me one with refills. (To be honest, I’m unclear if this is her policy, the hospital’s policy, or state law. My impression is that it’s the hospital.)

Last month the one person in her office who knows how to work the computer was out, so I had to have my husband call in to make my next appointment. By the time he got through to the office (which is incrediblyhard to reach by phone) their next available appointment was 6 weeks after the last one. He pointed out that I would run out of my medication before then, and they said they’d see what they could do. Of course we then heard nothing.

Feminists with FSD (sent in by reader Astrid): In defense of “Dysfunction”

Since I have FSD, I have vested interest in learning more about it – what it is, what treatments are or aren’t available, how it impacts individuals’ lives (if at all,) etc. It’s not just reading though – I’ve talked to and received feedback from women who themselves have FSD in one or more forms. I’m especially interested in how FSD is perceived and what people say about it! It’s meta, and its fascinating. So what are people saying about it? When I read about FSD, I notice a few familiar themes pop up repeatedly…

HealthCanal.com: Controversial Law Improves Care for Serious Mental Illness

Currently 45 states have involuntary outpatient commitment laws, but only a handful are designed with prevention in mind. Kendra’s Law is intended to identify and address at-risk behavior that may trigger the need for hospitalization.

Amid criticism that the law may violate patient rights by mandating treatment, the New York State Office of Mental Health commissioned an independent evaluation of the implementation and effectiveness of the program.

Gentle Readers! Always feel free to send your links for a Recommended Reading to recreading [at] disabledfeminists [dot] com. Be sure to include how you would like to be credited for your great find, and a link to any website you want affiliated with yourself.

Recommended Reading for Wednesday, October 27

If you haven’t been following my tale of woe on my personal journal, I have a terrible ear infection and can’t hear out of either ear. But now I have antibiotics to treat the middle ear infection, so any day now I should be able to hear something. I hope. (Woe.)

Today’s Recommend Reading is not entirely about the budget cuts and slashing of disability-related funding, but a lot of it is. I really recommend following Where’s the Benefit? for more in-depth discussion of these cuts.

Disabled People Protest Against The Cuts That Will Kill

Data from Family Resources Survey and the National Equalities Panel found that:
· 75% of disabled women and 70% of disabled men are already at the bottom end of Britain’s income distribution scale living in poverty.
· A tenth of disabled woman have incomes below £31 per week and a tenth of disabled men have incomes below £59 per week including earned income and benefits.
· Under the coalition government’s economy drive disabled people are set to lose at least £140 per month through direct cuts to disability benefits (initially devised to pay the extra costs of being disabled) alone.
· The Tories have threatened to remove our DLA saying that the number of claimants must be reduced by one-fifth.

rich at arbitrary constant: Osborne: Welfare cheats are “like burglars”

I’ll start by reminding people that most disability benefits are not work- or sickness-related. For example, Disability Living Allowance (DLA) helps with the additional costs of disability, primarily related to personal care. It is for people under 65, though you can continue to be in receipt of DLA over the age of 65 if you have it before you are 65. (Attendance Allowance is the equivalent for people over 65. Both are non-means tested.)

And rather than pejorative statements that play to Osborne’s prejudices, let’s introduce some facts.

CripChick’s Blog: thoughts on national coming out day

today is national coming out day. as i think about what this means for me as someone who is so out, yet so so closeted, friends and i are on a conference call going over notes from a recent summit where self advocates with developmental disabilities worked to create policy recommendations on community living. (sadly this is needed because too many providers use gov’t dollars set aside for community living to do things that are really hurtful to disabled people).

we asked people to talk about what group homes and other residential facilities for disabled people often look like. this is what the notes reflected.

Kali at Brilliant Mind, Broken Body: Disability services – hit or miss

Now, one of the interesting things I have to point out here when talking about how my law school handles my disability is that my law school is semi-autonomous from the greater university. It creates an…interesting…situation for disability accomodations. Not bad entirely; it’s had pros and cons for me. The way getting accomodations works for me is like this: I bring my doctor’s letter to the law school’s disability coordinator, who we’ll call W. The disability coordinator faxes the letter over to the university’s disability resources center. ( I officially have a file there and a counselor, but I’ve only really interacted with her over one issue.) The disability resources center sends back its evaluation of what accomodations I’m to be accorded. W and the law school student resources secretary then arrange for the accommodations.

Corina Becker at No Stereotypes Here: Adults Count Autism Survey

Not long ago, I heard about a survey being done by the Redpath Centre on the needs of Autistic Adults. Looking at the website, I see that the purpose of the survey is to gather materials in order to advocate for better services. Curious and always willing to help out, I emailed them, and received this reply.

In the news:

UK: The Guardian: Disabled people among the hardest hit by spending review: Osborne limits employment support allowance to one year. “After one year, people with assets, savings or partners who work will no longer receive benefits. Single people with no assets may be able to qualify for a means-tested safety net, but everyone else will have to manage on their husband or wife’s salary – no matter how low it may be – or dip into any private savings they may have.”

UK: The Guardian: A whirlwind of hatred against the disabled: Just how far are we, as a society, prepared to let violent crime against the disabled spiral upwards? [Trigger Warning for discussions of violence against disabled people, including sexualised violence] “The statistics should shame us all. Nine out of 10 people with learning difficulties have suffered bullying or harassment.”

Recommended Reading for October 26, 2010

firecat at Party in my head (DW): How To Be Sick

I went to this talk because I have chronic health conditions that affect my mobility and energy levels, and I am a caregiver for my mother, who has Alzheimers. I’m a Buddhist and my study of Buddhism has helped me work through grieving over these things and building a life around them, and I wanted to hear a talk that specifically addressed how Buddhism can help a person deal with chronic illness. I figured that I already knew a lot of what she was going to say, but I thought I’d learn a few things and find out that I’m already doing a lot of what there is to do, and that would help me feel more confident.

beautyofgrey at The Truth That Came Before (DW): On invisible illnesses and harmful judgment

Our illness is invisible. At first, even I did not want to see our illness. I wrote it off as “discipline problems” or “unresolved anger” and resolved to become a better disciplinarian, better parent, and to slowly count to ten. I assumed it might be due to changes in our life. Later, doctors did not want to see our illness. Everyone had a healthy weight and height. They wrote it off as “difficult phases” and assumed that the problem resided at home. They asked us to wait a year or two before we considered whether the chaos, aggression, and emotional stress weren’t just tricks before our eyes. Our illness was invisible, because we were not “that bad off”.

kankurette at The Hidden Village of Aspergers: Happy Mental Health Day. If “happy” is an appropriate adjective

I’d always been a melancholy kid. Think Marvin, Eeyore, Cassandra, the Ides of March. I just went along with it. In my teenage years, I had moments where I was suicidal, and I started self-harming at 14, but I just put it down to teenage angst. Depression wasn’t an illess, I believed. It couldn’t happen to me. Even though my mum turned into a wreck after my dad died and spent days in bed, even though she had panic attacks in front of us and seemed to be more temperamental and headachey than usual, even though the doctor gave her pills to take, I just thought she was sad; I didn’t realise she was ill.

K__ at Feminists with FSD: Interesting posts, some time in October

I have a feeling we’re probably going to see another spike in coverage about Flibanserin, (I’m thinking certain feminist websites are more likely to cover it than others, and maybe some op-ed pieces in mainstream newspapers, as well as others) and when we do see it, I can guarantee you it’s going to get real ugly, real fast. Everyone, get your bingo boards ready to go if you’ll be doing any reading on the matter. If you see any new and bizarre arguments about FSD and why no woman, anywhere, ever, needs medication for sexual desire problems ever, in comment sections to the inevitable anti-Flibanserin posts, let me know; we may have to produce a version 2.0 if we keep running into the same old shit again and again.

Lisa at Sociological Images: What is Intelligence?

We often think that intelligence is somehow “innate,” as if we are born with a certain IQ that is more or less inflexible.  These scores suggest, however, that our potential for abstract thought, though it may be located in the biological matter of the brain, is actually quite malleable.

(Note: For a further discussion of the concept of “intelligence” and its history, see kaninchenzero’s AWP post on Intelligence.)

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.