Category Archives: justice

Quoted: Audre Lorde

The supposition that one [group] needs the other’s acquiescence in order to exist prevents both from moving together as self-defined persons toward a common goal. This kind of action is a prevalent error among oppressed peoples. It is based upon the false notion that there is only a limited and particular amount of freedom that must be divided up between us, with the largest and juiciest pieces of liberty going as spoils to the victor or the stronger. So instead of joining together to fight for more, we quarrel between ourselves for a larger slice of the one pie.

— “Scratching the Surface: Some Notes on Barriers to Women and Loving” (1978), in Sister Outsider: Essays and Speeches (The Crossing Press, 1984)

New VA Research Could Explain Lasting Effects of PTSD

Gentle readers! I come to you today with a delighted feeling that I do not believe is caused by the half life if a painkiller! Today I read an article in my paper version of Stars and Stripes that had to do with the intersection of disability and veterans and I was not instantly thrown into a bout of contemptuous paper shredding! I mean, really, I could make party favors and possibly go into business selling paper mache animals for children to beat with broom handles in hopes of gathering candy! But I am a slightly morbid person some days, especially when the painkillers aren’t working.

But in all seriousness, this article, about the long term effects of PTSD on the body, has some points which I will now discuss with you in a non-concise manner! Not the least of these details, relegated to two brief paragraphs, is the fact that the people at the VA are doing one study specifically aimed at women who served in the Vietnam War, acknowledging that while women did not serve in combat, that the war affected them in very real ways:

Women did not serve in combat during the Vietnam War but many experienced trauma while serving as nurses and care providers to the wounded returning from battlefield, Magruder said.

“No one has studied the mental health of these women,” she said. “Their experiences were certainly different than the men, but they had other experiences. Some of these women were the last people to hold the hand of an 18-year-old kid who was dying.”

Gee, their experiences were different from men, you say? No kidding? *ahem*

One of the biggest myths that I encounter, being the go-to girl on military matters in some social justice blogging circles is that combat veterans have the patent on PTSD, which is not only incorrect, but also erases the experiences of countless other people whose lives are destroyed by the ways that PTSD is still misunderstood. I’ll take two paragraphs if it means that the VA is finally getting around to accepting the idea that ladies might actually have what it takes to handle the VA being wrong (about ladies having PTSD, that is).

The VA is now trying to weasel out of the fact that they were ordered to look into this PTSD business a long time ago — a decade but who’s counting, amirite? — but decided to throw Congress the bird and a “Ah do what Ah WANT!” Eric Cartman impression. The National Vietnam Veterans Longitudinal Study, expected to help create new policies and effect changes for incoming veterans with PTSD by 2013 might have actually done some good for people who are already having trouble convincing doctors at the VA that their condition is real if the VA could have been arsed to get this show on the road back then. A decade ago they were one less war behind.

It’s nice that they are starting to get around to looking into things like the correlation between living with PTSD for years and developing other conditions. Things like cardiovascular disease, cancer, dementia, asthma and diabetes are common among Vietnam vets who have been living with PTSD for decades, and according to the article there are some who believe even the immune system is affected by years with PTSD. But you can’t help anyone when you aren’t doing the research to find out how.

As the VA is becoming sandwiched between claimants from war era veterans from major wars that have left physical and mental scars on so many, it is important that they get their act together and start doing what they were told to do a long damned time ago. Having the longitudinal data from Vietnam veterans will more than likely prove useful as more and more people come home from two fronts to their old lives and attempt to readjust, and it could lead to better services for more veterans from any war. I can’t say that I have a lot of faith in them to get it together. As Charles Trumpower, a disabled Marine who tours the country speaking to veterans about PTSD notes, not a lot has changed in the last 35 years.

Don’t get me wrong, I’m thrilled to see this research and this effort going underway, but wow, readers, should this have been done a long time ago. I can’t help but think of all the people that this could have helped.

On Jeff Lindsay’s Dexter: It’s not ok for police to immobilise PWD for questioning

This post is not spoily for the Dexter TV series to date, except perhaps for the premise. It contains a very minor spoiler for an event that occurs at the start of Dexter By Design. Comments may contain spoilers up to the Chapter Ten of Dexter by Design, but no further please..

At the moment I’m reading Dexter by Design (2009), by Jeff Lindsay. It is the fourth book in the Dexter series, a thriller/crime series with a touch of spec fic, set in current-day Miami. Dexter Morgan and his foster sister Deb are both police officers working in homicide; Dexter a blood-spatter expert and Deb a sergeant. Dexter is also a serial killer, brought up by his police officer foster dad to follow “The Code”, to only kill murderers who have escaped justice, and to not get caught.

Last night I read the scene below, and it hit all my rage buttons. Coming on the heels of the Ayr incident where a police officer stolen a woman’s mobility scooter, and the episode in Colorado where a teacher duct taped a disabled 12-year-old’s only communicative hand to his wheelchair, it was all too much.

The scene is excerpted below the cut. Additional warning for lots of taboo language; NSFW.

Continue reading On Jeff Lindsay’s Dexter: It’s not ok for police to immobilise PWD for questioning

Where About Us But Without Us Leads

On 1 June 2010, E. Fuller Torrey MD wrote an op-ed column for the New York Times, “Make Kendra’s Law Permanent.” Dr Torrey is the founder of the Treatment Advocacy Center (TAC), a nonprofit group whose sole purpose is to lobby states for the passage of so-called assisted outpatient treatment (AOT) laws like Kendra’s Law in New York and Laura’s Law in California. The New York law is named after Kendra Webdale, who was killed by Andrew Goldstein in 1999.

Dr Torrey and TAC will tell you Mr Goldstein had untreated schizophrenia. They’ll tell you people like him are dangerous, they’ll tell you people like Mr Goldstein are often so sick they don’t understand they’re ill and need treatment, and they’ll tell you they know best. They won’t tell you that Mr Goldstein had been seeking treatment desperately and been turned away repeatedly.[1. Source: Time Magazine, “Will the Real Andrew Goldstein Take the Stand?”] Continue reading Where About Us But Without Us Leads

Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada

An awesome way to guarantee that you will not be allowed to immigrate to most countries – even if you otherwise completely qualify – is to have a disability, or have a disabled immediate family member.

Despite the Canadian Charter of Rights and Freedoms explicitly guaranteeing that laws in Canada cannot be written to discriminate against people with “mental or physical disabilities” (Section 15 of the Charter), Canada’s Immigration Act allows someone who otherwise passes all of Canada’s immigration requirements to be denied immigration because they “might reasonably be expected to cause excessive demand on health or social services”.

What has this meant in practice? Well, in 2009 Chris Mason, an immigrant from the UK who was injured on the job while working legally in Canada, was deported back to the UK because of his disability. In 2010, Ricardo Companioni was initially denied immigration to Canada from the US because of his HIV-positive status, but managed to argue in Federal court that he and his partner would pay for their drug treatments and thus not be part of Canada’s care system – a solution that is not available to many people. In May, the Barlagne family lost their appeal to be allowed to stay in Canada, as their youngest daughter has Cerebral Palsy. The reasoning was that the court did not believe the Barlagnes would be able to pay for their daughter’s care.

None of these stories are unique. Even when the Bill was being debated in Parliament, Members were bringing up concerns about how the “excessive demand clause” would affect people whose families had disabilities. In 2000, when Wendy Lill, a Member of Parliament, asked:

We have a charter of rights which talks about each Canadian being entitled to equality under the law. The Will to Act Task Force, which was established several years ago, talked about equality of citizenship for persons with disabilities.

Clause 34 talks about how a foreign national or other permanent resident would be inadmissible on health grounds if their health condition might reasonably be expected to cause excessive demand on health or social services. This is the only clause in the bill which seems to me would in any way relate to a person with a disability making an application to come to Canada.

I would like to know if a family with a child who has a disability such as Down syndrome or cerebral palsy would be accepted in this country. [emphasis added]

She was assured by the then-in-power Liberals that:

I think it is internationally accepted, in the Geneva convention and other statutes, that the best interests of the child can indeed be defined. In the case of a disabled child, I believe that the intent is to prevent abuse. The abuse might be that the only reason for someone wanting to come to Canada would be to seek free health care of some type.

However, in the case of family reunification, if we are talking about bringing a new family to Canada, if a child has a disability, frankly, I am absolutely confident, having met the men and women who work in citizenship and immigration, that we would take all of that into account and we would not allow it to stand in the way. [emphasis added]

I’m very happy for the no-longer-in-power Liberals that they were certain situations like the Barlagnes would never happen in Totally-Awesome-To-People-With-Disabilities Canada, but since we live in this Canada, I think their optimism was misguided. As has been amply demonstrated by reality.

The Council of Canadians with Disabilities has recently written yet-another-letter urging the Hon. Jason Kenney, Minister of Immigration, to review the “excessive demand clause”. You can read the letter in full at their website.

I have adapted their letter to send to Mr Kenney, as well as my MP, and provide that letter for my fellow Canadians to adapt or use in any way they see fit.

This is a discriminatory policy. People with disabilities and their families are not drains on the Canadian economy. We are people, and we should not be denied equal rights because of our disabilities.

My letter is below:
Continue reading Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada

International Disabilities Alliance Disability Rights Bulletin May 2010

Global News

Spain first country to submit its initial report to the CRPD Committee

On May 3rd, 2010, Spain submitted its initial report, on the implementation of the Convention on the Rights of Persons with Disabilities, to the Committee on the Rights of Persons with Disabilities (the CRPD Committee). This means that Spain has become the first country to submit a report to the Committee on how the rights of persons with disabilities are being implemented. For the moment, the report is only available in Spanish. Please click the following links to have access to the report and its annex: Spanish report and Annex.

Elections for the CRPD Committee

The election of six Members of the CRPD Committee to replace those whose terms are due to expire on 31 December 2010, and to increase the membership of the Committee from twelve to eighteen persons as a result of the 80th ratification of the CRPD, will occur during the Third session of the Conference of the States Parties to the Convention. The Conference of States Parties will take place in New York from 1-3 September 2010.

On May 3, the Secretary-General of the UN sent a letter asking States Parties to nominate candidates to the Committee by July 1. The CRPD Committee has recently published a section in its website on these elections. For further information on the elections for the CRPD Committee, please click here.

IDA has prepared a number of documents explaining the process as well as a questionnaire to be filled in by candidates. Please click here to access these documents and to get more information on these elections.

IDA is including in its website, information on those nominations that have been decided at national level. To have access to the information on the candidates, please click here.

OHCHR

The OHCHR has recently published on its website on disability a new tool: “Monitoring the Convention on the Rights of Persons with Disabilities. Guidance for Human Rights Monitors.” Please click the following links to see this publication: pdf version of report or word version of report.

CRPD ratifications reach 86

The ratification of the CRPD by Nepal, on 7 May 2010, has increased to 86 the number of States Parties to the CRPD. Ratification by Nepal of the Optional Protocol (OP) increased to 53 the number of the States Parties to the OP. The number of signatures to the CRPD is 144, while the OP has 88 signatures.

Treaty Bodies

The CAT Committee, in its 44th session, considered from 26 April-14 May 2010 reports from Austria, Cameroon, France, Jordan, Liechtenstein, Switzerland, Syrian Arab Republic and Yemen. To have access to the disability analysis of the Concluding Observations adopted by the Committee during this session, please click here.

IDA prepared a number of documents (uploaded on the CAT Committee website) with suggested recommendations for the Concluding Observations, which were adopted by the Committee in this session. Some of these recommendations have influenced the Concluding Observations of the reviewed States such as Austria, to which the Committee recommended to cease immediately the use of net beds as it constitutes a violation of article 16 of the Convention.

Universal Periodic Review

The UPR Working Group has held its 8th session from 3-14 May 2010. In this session, the following countries were reviewed: Kyrgyzstan, Kiribati, Guinea, Lao People´s Democratic Republic, Spain, Lesotho, Kenya, Armenia, Guinea-Bissau, Sweden, Grenada, Turkey, Guyana, Kuwait, and Belarus. The review of Haiti was scheduled for this session but was postponed.

For an analysis of the refer ences to persons with disabili ties in the UPR Working Group reports, please click here.

Upcoming Meetings

The 54th session of the CRC Committee (25 May-11 June 2010) will consider reports from Argentina, Belgium, Grenada, Guatemala, Japan, Nigeria, The Former Yugoslav Republic of Macedonia, and Tunisia. OPSC: Argentina; Belgium; Colombia; The Former Yugoslav Republic of Macedonia; Japan and Serbia. OPAC: Argentina; Colombia; Japan; Serbia and The Former Yugoslav Republic of Macedonia.

Click here for the references to persons with disabilities in the States’ reports, lists of issues, and written replies.

Upcoming Session of the Human Rights Council

The 14th session of the Human Rights Council will take place from 31 May-18 June, 2010, in Geneva. Click here for further information on this session.

IDA has prepared a disability analysis of the following reports prepared for the 14th session of the Council.

Special Procedures

The following Special Procedures reports, which have been prepared for the 14th session of the Human Rights Council, include references to persons with disabilities: Independent Expert on cultural rights; Special Rapporteur on migrants; Special Rapporteur on education; Independent Expert on extreme poverty; Special Rapporteur on racism, and the Independent Expert on Haiti. For detailed information on the references to persons with disabilities in these reports, please click here.

UPR

All UPR Working Group reports, which were prepared at the 7th session of the UPR (February 8-19, 2010) and will be presented to the 14th session of the Council, include references to persons with disabilities. Click here for the disability analysis of these reports.

Other reports

IDA has undertaken an analysis of other reports that have also been prepared for the 14th session of the Human Rights Council. Click here to access this analysis.

About the IDA Disability Rights Bulletin

This bulletin is intended for experts advocating for the rights of persons with disabilities, in particular within the Geneva-based human rights framework. It is prepared by the IDA Secretariat, which also provides support to the Group of States Friends of the CRPD.

For more information about IDA, its CRPD Forum and its member organisations, please visit: www.internationaldisabilityalliance.org.

Contact us via email at: stromel@fundaciononce.es.

Ableist Word Profile: Crazy (to describe political viewpoints or positions)

  • Ableist Word Profile is an ongoing FWD/Forward series in which we explore ableism and the way it manifests in language usage.
  • Here’s what this series is about: Examining word origins, the way in which ableism is unconsciously reinforced, the power that language has.
  • Here’s what this series is not about: Telling people which words they can use to define their own experiences, rejecting reclamatory word usage, telling people which words they can and cannot use.
  • You don’t necessarily have to agree that a particular profiled word or phrase is ableist; we ask you to think about the way in which the language that we use is influenced, both historically and currently, by ableist thought.
  • Please note that this post contains ableist language used for the purpose of discussion and criticism; you can get an idea from the title of the kind of ableist language which is going to be included in the discussion, and if that type of language is upsetting or triggering for you, you may want to skip this post.

We just ran an ableist word profile on the word “crazy,” written by the lovely guest poster RMJ, who discussed how the term is used in a variety of contexts and situations. This follow up is sparked by what I’ve seen as a recent resurgence here in the United States in use of the term in a political context, to describe or characterize an individual with a particular set of political views. Every time I see it, it grates on me, and I thought it was worth a focused discussion here at FWD.

Before I begin, I should make clear that I personally identify as “crazy” sometimes. Not always, but when the depression gets overwhelming and I can tell my thoughts are getting tangled, or especially when I’m in the grips of a manic episode. (More accurately, I identify as a “crazy bitch,” but that’s neither here nor there.) I’ve also been consistently described by others as “crazy,” in contexts ranging from affectionate to outright hostile and dismissive. So when I see this term tossed around in the media, it feels personal to me.

And it’s been tossed around a whole lot lately, largely by traditionally liberal or progressive media outlets. I first started seeing it show up at Talking Points Memo, Josh Marshall’s blog that combines “breaking news, investigative reporting and smart analysis.” Marshall doesn’t mention it on the site, but it also contains a big heaping spoonful of ableism with that political analysis. Here are some recent examples:

This is just a sampling of the posts with headlines including the term “crazy” and is not at all comprehensive. Even within this sample, we can see that the term is used to describe viewpoints with which TPM does not agree (like revising history textbooks or arguing, like Gaffney, that the Pentagon logo indicates a secret plan to subject the United States to Shariah law) and thinks are biased, bigoted, racist, or otherwise offensive (such as the protests about Obama speaking to schoolchildren or the racial laws in Arizona).  None of the posts, though, engage or critique those viewpoints or speakers in a substantive way – simply describing them as “crazy” is seen as self-evident and no further discussion is needed to demonstrate these views or people should be excluded from reasonable political discussion.

There’s been an even more recent explosion of use of the term to describe Rand Paul and Paul’s views, after he won a Republican congressional primary in Kentucky.[1. An earlier version of this post had stated, in error, that Dr Paul won the Republican congressional primary in Virginia. Thanks, Katie, for the catch.] Paul favors the free market and freedom of private business, to the extent that he seems to believe that anti-discrimination laws are an unreasonable restriction on businesses. Now I am no fan of Mr. Paul – and wrote about my problems with him previously on FWD – but that doesn’t mean I approve of political cartoons like this:

A political cartoon portrays Rand Paul as the Mad Hatter from Alice in Wonderland. Added to the original Tenniel illustration are a 'Don't Tread on Me' flag, a Rand Paul button, and an I Heart BP button.
A political cartoon portrays Rand Paul as the Mad Hatter from Alice in Wonderland. Added to the original Tenniel illustration are a 'Don't Tread on Me' flag, a Rand Paul button, and an I Heart BP button.

To my mind, characterizing Rand as “mad” or “crazy” and not saying anything further is a lazy way to dismiss him and his ideology without actually having to engage with it. There is a lot to say about Rand’s ideas: how prioritizing private business over human rights preserves existing institutional structures that will continue to perpetuate racism, sexism, ableism, and other oppression if not checked by a larger force like the government; how the line between private and public realms is a lot fuzzier and less distinct than Paul implies it to be; that the Gulf of Mexico oil spill and BP’s seemingly inadequate safety protections and near complete inability to effectively respond are strong indications that business will prioritize profits over public goods like environmental safety; how an attitude of business before anything else will influence Rand’s views on everything from the minimum wage to immigration policy to climate control to internet neutrality. Those are all important discussions to have, discussions where we can’t assume that everyone in the audience will come down on the same side, but calling him “crazy” or “mad” and leaving it at that elides all of those complicated issues. Even more strongly, it implies that those discussions are not even worth having because it is so evident that the views or person being dismissed are wrong and absurd and laughable.

In Newsweek, Conor Friesdorf made an interesting observation about the policies and people who are dismissed as “crazy”:

Forced to name the “craziest” policy favored by American politicians, I’d say the multibillion-dollar war on drugs, which no one thinks is winnable. Asked about the most “extreme,” I’d cite the invasion of Iraq, a war of choice that has cost many billions of dollars and countless innocent lives. The “kookiest” policy is arguably farm subsidies for corn, sugar, and tobacco—products that people ought to consume less, not more.

These are contentious judgments. I hardly expect the news media to denigrate the policies I’ve named, nor do I expect their Republican and Democratic supporters to be labeled crazy, kooky, or extreme. These disparaging descriptors are never applied to America’s policy establishment, even when it is proved ruinously wrong, whereas politicians who don’t fit the mainstream Democratic or Republican mode, such as libertarians, are mocked almost reflexively in these terms, if they are covered at all.

What I conclude from that is that the media doesn’t consistently use “crazy” and other ableist terms to refer to absurd policies or those that lack rational support, but instead reserves those terms for people outside of mainstream politics. Which in turn implies that the term is used primarily to further marginalize and dismiss people who don’t fit expectations of what a politician is or what are common or popular political arguments. To me, this is even more evidence that the implicit subtext of terming a person or policy “crazy” is “shut up and go away, or start blending in better.” Which, again, is exactly the message leveled at people with mental illness when they’re called “crazy” or “loony” or “unhinged” or any number of synonyms.

This selective usage is even more reason the term “crazy” shouldn’t be used in the political context – partly because it’s a lazy out for commentators who refuse to engage with the actual policy issues or political ideas being proposed on a substantive level, and partly because it fiercely underlines and reinforces marginalization and dismissal of people with mental illness. It reminds me that when people call me “crazy,” what they really mean is “stop existing in my consciousness – either disappear or become normal.” To see progressive writers and organizations rely on the marginalization of people with mental illness to score easy points against unpopular politicians is upsetting not only because of their perpetuation of ableism, but also because it puts me in the extremely uncomfortable position of defending people like Palin and Paul against this kind of criticism.

What is “healthcare”? A tale of a murderer, a victim, and a tattoo.

[*** WARNING for detailed domestic violence description from the fourth paragraph on. ***]

My local paper has been abuzz with righteous taxpayer outrage over the State paying for a tattoo removal for a woman, who I’ll call JMN.

The story of JMN disrupts a number of neat stereotypical societal narratives about domestic violence, about victimhood, about killers, about the meaning of ‘healthcare’.

To go back to the beginning, at least to the beginning of the public part of the tale, JMN is a convicted murderer. She was found guilty nine years ago of murdering her “Internet lover”, MW.

According to published accounts of the trial, JMN’s husband MH, an abusive, violent gang member, found out about her relationship with MW, and “punished” her repeatedly. He violently cut off her hair, leaving her needing skin grafts to her scalp and hand. He beat her repeatedly, with fists, with pool cues, with a belt. He poured boiling water over her. He forced her to have a tattoo reading “Property of [MH’s full name]”. He punched her and choked her, leaving her needing hospital treatment.

And after all of this abuse and intimidation which left her in fear for her life, he visited and threatened the lover, then ordered JMN to kill him.

JMN shot MW under her abusive husband’s orders, backed by this violent intimidation, and she was convicted of wilful murder. She has been in custody ever since, with a minimum sentence of fifteen years.

Unsurprisingly, perhaps, JMN now has mental health issues. (These are not described in detail in the press, nor should they be.) She was a victim of unspeakable violence (as well as being a perpetrator under duress), and is currently seeking criminal injuries compensation – which is what has triggered off the righteous-taxpayer-indignation. Her criminal injuries compensation was initially refused, and the case is now under appeal.

But the Righteous Indignant Taxpayers haven’t stopped there. The papers are now pawing over the rather insigificant detail that the State may partly fund tattoo removal for JMN. The Department of Corrective Services has committed to paying for half the cost of the procedure, which is expected to cost only $2000.

$2000.

The shadow attorney-general is outraged, he says, outraged! How dare the Precious Indignant Taxpayer be asked to fund “cosmetic surgery”! The Corrective Services Commissioner has responded in sensible and general terms, saying that he “was acutely aware he had to take into account many factors when making difficult and sensitive decisions in cases that involved complex social, psychological, cultural and physical health considerations”, and that he made a judgement call, as he does on a daily basis.

JMN is statistically at very high risk for mental health problems, self-harm, and suicide. She is incarcerated, and suicide is the leading cause of death in Australian prisoners. She has been the victim of horrific domestic violence, and victims of domestic violence are five times more likely to commit suicide than average. The Commissioner took into account psychological reports and his personal interview with JMN when making the determination that the State would fork out a grand or two to take off the tattoo she was violently forced to get, the tattoo that is reminding her constantly of her abuse and contributing to her mental health difficulties.

Let’s get a little perspective. One acute psychiatric bed-day in Western Australia costs just over $1000. The cost of this tattoo removal equates to around one weekend stay in hospital for a relatively minor psychiatric crisis. We’re not talking huge pots of cash here. We’re talking about a sum that is absolutely tiny in the scale of costs involved with healthcare and with the justice and corrections system.

We expect, as a society, to provide healthcare for prisoners. Western Australia is committed, on paper at least, to providing prisoners with the healthcare they need, including mental healthcare. The general level of care we as taxpayers have committed to equates to the level of care that people should be provided in the public healthcare system. Tattoo removal is on the proscribed “cosmetic surgery” list for State hospitals, but that list comes with one very important caveat – that the procedure should be denied State funding if there is no “clinically significant” indication.

I can’t think of any more “clinically significant” indication than a tattoo someone was forced to get at the hands of her abuser, a tattoo that is making her sick. A tattoo that reminds her around the clock of his attempts at intimidation and dehumanisation. A tattoo that states outright that she is the “property” of this violent man. A tattoo that contributes to her greatly increased risk of self-harm and suicide.

Cannot we, as fellow humans, can find enough shreds of compassion to be comfortable with spending this trivial sum on what is likely to be a cost-effective contributor to the health of someone we are, as a group, responsible for?

This case is a touchstone for a whole pile of prejudices. It makes people particular uncomfortable, I believe, because it disrupts the nice little myths that nice little Indignant Taxpayers like to indulge in. The neat little “innocent-victim” narrative of domestic violence is disrupted by the fact that this women is also a perpetrator. The neat little “evil-murderer” narrative is disrupted by the fact that she was the victim of horrendous abuse, and that she committed the killing under fear for her own life. The neat little “nasty slut” tattooed-woman narrative is disrupted by the fact that she was forced to get this tattoo in the course of her husband’s abuse. The neat little “adequate healthcare” narrative is disrupted by the fact that tattoo removal usually lies outside of what some of us might usually consider to be “healthcare”.

All of this is adding up to a situation where the Righteous Indignant Taxpayers want to wash their hands of it altogether, though it’s clear they’d rather have a set of public stocks and rotten tomatoes to throw. They shout in comments “Give her nothing but bread and water”, “Why am I responsible?”, and “This woman knew what she was marrying into – hard cheese, I’d say”. Revolting.

Australia’s National Mental Health Policy states that as a nation, our key aims in mental healthcare include the prevention of the development of mental health problems and mental illness, the reduction of impact of mental health problems, and the promotion of recovery from mental health problems. These aims apply no less to people in custody, who are at extremely high risk and have particular mental healthcare needs that are all too frequently dismissed or actively resisted by people in a society that wants nothing more than to inflict as much suffering as possible on prisoners.

There’s an interesting wider question here, which is about our definitions of healthcare, and about the fact that the determinants of health often lie outside the very narrow systems and procedures that we label “necessary healthcare”. For example, we know damn well, on a macro scale, that poverty and inequality is a more important determinant of health than doctors and nurses and public education programmes aimed toward “behavioural modification”. Could not a piece of marked skin be a more important determinant of health in a single person than all the psychologists and pills in the world?

Recommended Reading for Thursday May 20 2010

An image of a beach with blue sky, dotted with clouds. A figure sits in the sand by the waves. In the foreground, a wheelchair sits on the sand.
An image of a beach with blue sky, dotted with clouds. A figure sits in the sand by the waves. In the foreground, a wheelchair sits on the sand.

“….” by mataikan, seen at binary canvas.

Ghana News Agency – Mental Health System on the verge of collapse

Dr Akwasi Osei, Chief Psychiatrist of the Ghana Health Service, on Monday said the mental health system would soon collapse if the Mental Health Bill was not passed to correct the abuses and injustices in mental care. He said it was unfortunate that the Bill, drafted in 2004 and completed 2006, was still lingering at the Ministry of Health. Speaking at a workshop on the State of the Mental Health Bill and the United Nations Convention on the Rights of Persons with Disabilities, (UNCRP) for media practitioners, in Accra, he stressed that there was the need for the law to protect the rights and interest of patients and to overhaul the entire mental health system.

Guernica – Jonathan M. Metzl: In Medical Records, a Story of the Racialization of Schizophrenia

Ionia held these men using little-known loopholes in deinstitutionalization amendments that stipulated that the hospital would continue to receive or contain patients deemed too violent for state correctional institutions, or who posed “dangerousness to the community” even after most other patients were set free. The word negro appeared on the upper right corner of the face page in eight out of every ten of these charts. And schizophrenia, paranoid type was overwhelmingly the most common diagnosis applied to these men, these institutionalized black bodies that deinstitutionalization left behind.

the personal hurricanes of kirsty mitchell – quote from siri hustvedt, the shaking woman

the DSM does not tell stories. It contains no cases of actual patients or even fictional ones. Etiology, the study of the cause of illness, isn’t part of the volume. Its mission is to be purely descriptive, to collect symptoms under headings that will help a physician diagnose patients. there is a companion DM-IV casebook, but notably, these narratives about real doctors and patients are gathered in their own volume, seperate from the diagnostic tome.The fact is that all patients have stories, and those stories are necessarily part of the meaning of their illnesses. This may be even more true for psychiatric patients, whose stories are often so enmeshed with the sickness that one can’t be untangled without the other.

Toronto Sun – Family denied residency because of disability

A French family denied permanent residence in Canada because one of the kids has cerebral palsy may have to leave the country following a federal court decision Tuesday. David Barlagne has been working in Montreal since July, 2005. He applied for permanent residence status for his family but was turned down because of the extra costs of putting his daughter Rachel, who has cerebral palsy, through elementary and secondary school. Under Canadian law, immigration officials have no choice but to deny applicants whose health condition could cause excessive demand on social services. Barlagne appealed but the federal court upheld the original decision.

Caltics – Don’t Fall For Arnold’s Wedge [California governor Arnold Schwarzenegger recently issued a proposed state budged with drastic cuts to essential programs for low income Californians and Californians with disabilities.]

Now it must be said that it’s not just the poor who will suffer under this budget. But the budget cuts are quite obviously calculated to hit those Californians without a voice, who are seen as marginal, whose funding can be cut with the least public outcry. The elderly who will lose some or all of their IHSS benefits and the children who will lose health care services are not necessarily “poor”; those cuts will hit the middle-class as well. We can’t fall for Arnold’s wedge. Arnold is shifting tactics because he’s scared of us – scared of the public reaction against three years of austerity. Now is the time to ramp up the attack on that austerity, to move beyond tired old Reaganite claims that there’s some difference between the needs of the middle-class and the needs of the poor. Many middle-class families have benefited from the very safety net programs Arnold now proposes to cut or eliminate, and many more middle-class families benefit – at their jobs and businesses – from less fortunate families having at least some state assistance.

Why I Am Not a Libertarian

Here in the U.S., there’s been a lot of buzz about Rand Paul, son of Ron Paul, winning the primary for Republican senator in Kentucky. Paul is a darling of the Tea Party and largely espouses libertarian values of decreased taxes and decreased government regulation and intervention.

There are some things about libertarianism that I like and agree with. I’m against state interference in romantic and/or sexual relationships between consenting individuals with full capacity. I’m in favor of strong civil liberties and freedom from search or surveillance by the state.

But I do not trust the free market to take care of civil rights issues, primarily because I’ve seen the free market fail to take care of civil rights issues for hundreds and really thousands of years. And I believe that getting the government out of the business of defining and enforcing civil rights would have disastrous results for all but the most privileged among us. And Rand Paul’s espoused views bear that out. Here’s what he’s got to say about LGBTAI rights and women’s health:

Not only is Paul perfectly fine with government prohibiting marriage between gays and lesbians, it bears mentioning that Paul’s anger towards the government for “betraying the medical privacy of ordinary citizens” doesn’t extend to women, whom he believes should be forced to carry unwanted pregnancies to term if state legislators deem it so. He also wants to offer legislation “restricting federal courts from hearing cases like Roe v. Wade.”

This isn’t even a consistent position – Paul is in favor of government intervention in personal relationships, as long as it’s “only” LGBTAI relationships. He’s also in favor of government intervention in personal medical decisions, as long as it’s “only” affecting the decisions of women considering whether to terminate a pregnancy. What he has to say about protections for people with disabilities is even more troubling:

You know a lot of things on employment ought to be done locally. You know, people finding out right or wrong locally. You know, some of the things, for example we can come up with common sense solutions — like for example if you have a three story building and you have someone apply for a job, you get them a job on the first floor if they’re in a wheelchair as supposed to making the person who owns the business put an elevator in, you know what I mean? So things like that aren’t fair to the business owner.

Yes! Let’s let the free market take care of rights for people with disabilities! Because it’s for damn sure that even with the existing governmental protections for civil rights, companies are taking an unbiased and totally not ableist at all approach to employing PWDs and even accommodating them as customers! So eliminating those marginally adequate and woefully underenforced protections would surely have the effect of enhancing overall liberty and freedom! That is, if you are looking only at the liberty and freedom of the already privileged.

There has been a lot of discussion on this site of how entrenched institutional ableism results in discrimination against PWDs, makes them more likely to live in poverty, lack employment, and have disproportionately negative health outcomes. That’s the status quo that would be preserved if government intervention and regulation of the rights of PWDs were to end. But there are definitely people who are benefiting from the status quo – white, cis, hetero, TAB men, predominantly. And we should be very clear that limiting government intervention would primarily preserve the status quo that benefits them.

Which is why you should not be surprised by two facts: 1) Rand Paul is a white cis hetero TAB man, and 2) I strongly disagree with these political ideas. While there are some areas in which I support limiting government intervention, my overall goal is to maximize rights of historically disadvantaged and relatively unprivileged populations, whether it takes more or less government to reach that end.