Monthly Archives: June 2010

Recommended Reading for June 3, 2010

class issues, mental health, military, news, policy, recommended reading, Uncategorized,
Two totally adorable golden lab puppies with floppy ears, wearing blue cotton bandanas with the tag "Service Dogs."
Two totally adorable golden lab puppies with floppy ears, wearing blue cotton bandanas with the tag "Service Dogs."

Service puppies in training!!

Miami Herald – Embedded therapists protect National Guard members’ mental health

Roger Duke is a Vietnam veteran, a retired Marine lieutenant colonel and a licensed marriage and family therapist. Since 2006, he’s spent at least one weekend a month embedded with a California National Guard unit. Duke, 57, wasn’t deployed with the unit’s soldiers in Iraq and Kosovo, but he’s a trusted face whom the soldiers confide in before and after their deployments. “Some of the best conversations I have with them are at one in the morning in a Humvee during a training exercise,” said Duke, who’s part of a California program designed to help returning Guard and Reserve members by attaching mental health counselors to their units.

Threadbared – Hanky Pancreas: insulin pump accessories and cyborg embodiment [this post was so nuanced and complex and beautifully written that I hesitate to even do a pull quote because I strongly (strongly) encourage you to click through and read the whole thing]

Floeh’s designs permit wearers to make a strategic double-move around camouflage and visibility, simultaneously hiding the pump and drawing attention to its location (i.e., waist, hip, bustline). When I’m in disability-pride mode, I’m troubled by this kind of hiding, following the logic that visibility is good (i.e., wearing the pump on the outside makes us legible, shows the limits of clothes designed for bodies without peripherals, disrupts conventional, hetero feminine gender presentation) and hiding is, well, hiding, with its affective companions: shame, fear, desire for normalcy, willingness to pass.

But visibility is only one tactic among others, and hiding the pump can also be a radical act – especially if it facilitates feeling-good-while-diabetic (for example: the best act in my burlesque repertoire hinges on repurposing a strap-on harness as an under-dress pump-holder; most of the time, my solution to the dress-problem is a jury-rigged system involving a black garter with small cosmetics pouch from Benefit, bra straps, and safety pins to keep things from sliding down my leg – unless I’m already wearing a garter belt). Of course, in the case of hiding or disguising one’s pump, feeling good can also mean feeling closer to a conventional femininity and mythic norm. I don’t want to elide that possibility, but I also return to the reality of living with chronic illness: that we live in a space of contradiction, that we work with what we have & do what we need to do to claim our (sick, cyborg, incurable) bodies as desirable. In my ideal world – one I suspect Floeh wants, too – we’ll recognize that transformation can (and should) mean more than transforming the pump, or the wearer’s relation to it, to align more closely with a dominant, normate feminine ideal. Creating, enabling, accommodating, and celebrating a multitude of diabetic, cyborg embodiments — and advocating for wider access to the pump (with all of its troubling potential) for those who are uninsured and can’t afford the $6000 price tag — these are the kinds of social transformations that need to happen in conjunction with personal ones.

BBC News – Mental health research is ‘incredibly underfunded’

Only 5% of medical research in the UK is into mental health, despite 15% of disability resulting from disease being due to mental illness.  Last week, one of the major research funders, the Medical Research Council, published one of the most up to date reviews of the strengths and challenges of mental health research in the UK. It not only showed that the research that does get funded is world-class but that the UK is well-placed to lead the way in this area. The review concludes that there are several opportunities to fund more research in the UK that would help accelerate progress in developing new treatments, or lead to better ways of preventing mental illness in the first place.

7 News Denver – Is Xcel’s Tiered Rate Program A Surcharge On Disability?

Xcel Energy’s new tiered-rate program [for electricity] began Tuesday. Customers whose lives depend on electricity aren’t given an exception. Xcel users who need electricity 24 hours a day to power oxygen tanks or ventilators have to pay the same usage costs as someone who wastefully keeps on their air conditioning.”That’s what the problem is, it’s basically a surcharge for disability,” said Julie Reiskin, executive director of Colorado Cross Disability Coalition.Reiskin told 7NEWS her organization was never notified by the Public Utilities Commission prior to the tiered-rate system decision. The PUC oversees Xcel.”I was shocked we did not know about it,” said Reiskin. “It’s disturbing that the PUC saw fit to get input from Xcel, but not from the people who are directly affected by this.”

A Happiness That Forgets Nothing – You know what? I take back that shit about not hating people.

SO. My brother—my clinically depressed brother—was met by police today. You know why? Because he mentioned to his friends that he had suicidal feelings. So what did they do?
CALLING THE POLICE, TELLING THEM WHERE HE WORKS, AND HAVING HIM HOUNDED BY THEM ABOUT HIS PERSONAL FEELINGS IN FRONT OF HIS COLLEAGUES.
I am in tears right now. Enraged tears.
My brother has a mental illness. But he is still an autonomous, competent fucking person. He can make his own goddamned decisions without alleged friends having  him hunted down like a fucking criminal.

[and finally, a mystery in which I ask for your assistance! I have seen several blog mentions of this thing – product? service? – called ‘Buddy’ that has a contract with the NHS and is supposed to help people with disabilities and I cannot understand it! Perhaps you can help?]

Buddy is a post-digital social care service that seeks to improve the well-being of people living with long term conditions, and at the same time, reduce the cost of service provision. At the heart of Buddy is a social media radio which lets users broadcast from a physical device, to a range of social media platforms. By using social networks, Buddy extends the community of carers around an individual beyond healthcare professionals, to friends, families and peers. Our idea is to decentralise and socialise care, creating a more people-powered service, where friends and families are working alongside professionals to support individuals, in real time. Co-production is the jargon.

Where About Us But Without Us Leads

blaming, class issues, justice, mental health, news, othering, policy, politics, poverty, representations, social attitudes, violence, , , ,

On 1 June 2010, E. Fuller Torrey MD wrote an op-ed column for the New York Times, “Make Kendra’s Law Permanent.” Dr Torrey is the founder of the Treatment Advocacy Center (TAC), a nonprofit group whose sole purpose is to lobby states for the passage of so-called assisted outpatient treatment (AOT) laws like Kendra’s Law in New York and Laura’s Law in California. The New York law is named after Kendra Webdale, who was killed by Andrew Goldstein in 1999.

Dr Torrey and TAC will tell you Mr Goldstein had untreated schizophrenia. They’ll tell you people like him are dangerous, they’ll tell you people like Mr Goldstein are often so sick they don’t understand they’re ill and need treatment, and they’ll tell you they know best. They won’t tell you that Mr Goldstein had been seeking treatment desperately and been turned away repeatedly.[1. Source: Time Magazine, “Will the Real Andrew Goldstein Take the Stand?”] Continue reading Where About Us But Without Us Leads →

Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada

activism, disability activism, identity, justice, make the world a better place, policy, politics, signal boost

An awesome way to guarantee that you will not be allowed to immigrate to most countries – even if you otherwise completely qualify – is to have a disability, or have a disabled immediate family member.

Despite the Canadian Charter of Rights and Freedoms explicitly guaranteeing that laws in Canada cannot be written to discriminate against people with “mental or physical disabilities” (Section 15 of the Charter), Canada’s Immigration Act allows someone who otherwise passes all of Canada’s immigration requirements to be denied immigration because they “might reasonably be expected to cause excessive demand on health or social services”.

What has this meant in practice? Well, in 2009 Chris Mason, an immigrant from the UK who was injured on the job while working legally in Canada, was deported back to the UK because of his disability. In 2010, Ricardo Companioni was initially denied immigration to Canada from the US because of his HIV-positive status, but managed to argue in Federal court that he and his partner would pay for their drug treatments and thus not be part of Canada’s care system – a solution that is not available to many people. In May, the Barlagne family lost their appeal to be allowed to stay in Canada, as their youngest daughter has Cerebral Palsy. The reasoning was that the court did not believe the Barlagnes would be able to pay for their daughter’s care.

None of these stories are unique. Even when the Bill was being debated in Parliament, Members were bringing up concerns about how the “excessive demand clause” would affect people whose families had disabilities. In 2000, when Wendy Lill, a Member of Parliament, asked:

We have a charter of rights which talks about each Canadian being entitled to equality under the law. The Will to Act Task Force, which was established several years ago, talked about equality of citizenship for persons with disabilities.

Clause 34 talks about how a foreign national or other permanent resident would be inadmissible on health grounds if their health condition might reasonably be expected to cause excessive demand on health or social services. This is the only clause in the bill which seems to me would in any way relate to a person with a disability making an application to come to Canada.

I would like to know if a family with a child who has a disability such as Down syndrome or cerebral palsy would be accepted in this country. [emphasis added]

She was assured by the then-in-power Liberals that:

I think it is internationally accepted, in the Geneva convention and other statutes, that the best interests of the child can indeed be defined. In the case of a disabled child, I believe that the intent is to prevent abuse. The abuse might be that the only reason for someone wanting to come to Canada would be to seek free health care of some type.

However, in the case of family reunification, if we are talking about bringing a new family to Canada, if a child has a disability, frankly, I am absolutely confident, having met the men and women who work in citizenship and immigration, that we would take all of that into account and we would not allow it to stand in the way. [emphasis added]

I’m very happy for the no-longer-in-power Liberals that they were certain situations like the Barlagnes would never happen in Totally-Awesome-To-People-With-Disabilities Canada, but since we live in this Canada, I think their optimism was misguided. As has been amply demonstrated by reality.

The Council of Canadians with Disabilities has recently written yet-another-letter urging the Hon. Jason Kenney, Minister of Immigration, to review the “excessive demand clause”. You can read the letter in full at their website.

I have adapted their letter to send to Mr Kenney, as well as my MP, and provide that letter for my fellow Canadians to adapt or use in any way they see fit.

This is a discriminatory policy. People with disabilities and their families are not drains on the Canadian economy. We are people, and we should not be denied equal rights because of our disabilities.

My letter is below:
Continue reading Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada →

Recommended Reading for Wednesday, June 2, 2010

Uncategorized

Discrimination is only discrimination if you end up being sacked

The study apparently says that many people with MS put off telling their bosses (and so receiving appropriate accommodations at work, which might help them to manage their MS) because they are afraid they will be discriminated against.

Dr Simmons says that fear is unfounded, because “only 15 per cent of people [left] their jobs because they were sacked”.

I assume this means that that’s 15% of people leaving their jobs, and not 15% of people who told their bosses they had MS. If it’s the latter, that’s actually a significant amount of discrimination – about 1 in 6! But even if it’s the former, that seems to me to be fairly significant. It may be that not many people are getting sacked because of their MS, but it does tend to support the idea that it is a realistic possibility that you will be sacked if you tell your boss you have MS. In other words: the fear of discrimination (eventuating in unemployment) is hardly unfounded!

Screen Reader Access to SharePoint

As many screen reader users have found out the hard way; Microsoft’s SharePoint service is not very screen reader friendly. It can be navigated, but is clearly not understandable for your average user. Microsoft’s apparent lack of interest in adhering to w3c standards further complicates the situation. Despite this, many of us have to use SharePoint in our daily work. So with that said, I am writing this article to share with other screen reader users some tricks, tips and general information I’ve gathered over time while working on the “SharePoint issue”. I have primarily been working with the 2003 and 2007 editions of SharePoint, but most of these items hold true with 2010.

LINKAGE: Black Fashion Museum

Museums and other archival institutions typically display the extraordinary rather than the ordinary, the First Lady’s inauguration ball gown rather than her J.Crew shorts. But because of the implausible convergence of racial, gender, sexual, class, and language barriers that confront non-White and working women, their lives and their accomplishments were not deemed extraordinary in their time. The material evidence of these lives not considered important enough to save or to study. Museums and other archival institutions that privilege white middle and upper class women’s experiences collude in the ongoing marginalization and erasure of the material cultural histories of minoritized American women.

Call for submissions: /Slant/Sex/

This is a call for bold, honest investigations of the sexual female/trans self that polite society has yet to fully embrace.

We particularly encourage submissions from women of color, older women, queer women, women with disabilities, and transgender/two-spirit/intersex/gender nonconforming folks.

Experiences of Transgendered Profs a Case Study in Sexism

In an excerpt published in the Australian newspaper The Age, The Hidden Brain author Shankar Vedantam discusses the different post-transition experiences of transgendered Stanford professors Ben Barres and Joan Roughgarden. Unsurprisingly, they paint a depressing picture of the prevalence of sexism even in the supposedly egalitarian world of university research.

Where ever you are is where I want to be: Crip Solidarity

What does crip solidarity look like? Between crips?

We are traveling, trying to track down food. My chair can’t go into this restaurant, your dog isn’t allowed in that restaurant; so we will order in. You can’t fly to the meeting, so we will come to you—all of us. They won’t let you go to the bathroom because they say you’re “too slow”, so we will demand they do—and make them wait for you—together. Sometimes we are comrades, sometimes we are strangers, but we will stay together. We move together.

I know what it is like to be left behind, left out, forgotten about. I know you know as well. We vow to not do that together, to each other.

Canada: Council of Canadians with Disabilities Chairperson’s Update

The month of April is an important anniversary month for the disability community, and indeed all equality-seeking Canadians, because on 17 April 1985 Section 15, the Equality Section of the Charter of Rights and Freedoms, came into force. Governments had been given a grace period, where they had the opportunity to bring legislation and policies into conformity with the standard set by Section 15. As we all know, the Governments of the day had a very limited vision of what was required of them and few changes were made. When Section 15 came into force, Canada’s equality-seeking community began to make use of Section 15 as a new tool for eliminating barriers. CCD, and other groups in the disability community, began to undertake test case litigation, based on Section 15 and other articles of the Charter, to create equitable outcomes for Canadians with disabilities.

Headlines:

Discovery could help treat spinal injuries: U of A researchers uncover trigger that causes muscles to move without signal from brain

Canada: Schools lack access to mental-health professionals, report says

Military Docs Treat Pain in New Ways and Shame in All the Old Ways

medical practice, military, news, oyd rants, shaming, , , , , , , , ,

Gentle readers! I know! I am going to worsen my hernia by reading this stuff every day! I can’t help myself! It’s like tearing myself away from a Star Wars Marathon and a free case of Guinness and Harp on New Years Eve Back when I was child free and in college! Did you ever hear about that drinking game?

Because what I really need right now is more news pounding home just how EEEEEVIIIIL drugs are and how in danger some of us are of becoming dependent on them!

Especially, WOES! Those poor servicemembers, because they would never ever have a reason to use them. Not with an almost decade of war going on in two countries and the highest rate of PTSD, suicide, TBI, and other things we have ever seen in our troops before.

Now, let me slow down for a moment, because there are some really good things going on here. This nerve blocking thing sounds pretty awesome, but I am not a medical professional of any type unless you were going by the number of dram bottles I have on hand. While I have a lot of not-so-nice things to say about the already “pins and needles” feelings in my hands and feet, I will take that in other parts of my body over what I deal with now thats-for-damned-sure. But the juxtaposition of a new therapy with the whole “drugs are bad, mmmm’kay” meme is wearing on my last pain free nerve. The shaming of opiate use is tired and older than my favorite period underwear.

As more troops return from the battlefield with chronic pain, the military has seen a spike in the number of prescriptions for opiate painkillers. More troubling, abuse of painkillers is on the rise: About 22 percent of soldiers admitted misusing prescribed drugs, mostly painkillers, in a 12-month period, according to the results of a Pentagon survey released this year.

So, how did their magical survey define “misusing”? Taking more than prescribed? One more? Two more? Because you were in MORE pain than that prescribed amount of pain managed and you were having trouble getting an appointment with your PCM to get the dosage adjusted or any other treatment? Anything beyond precisely what is on the label is “misusing” a prescription. The military has an entire month devoted to prescription drug abuse awareness…but what they don’t do much to address is the underlying need that might cause servicemembers to resort to such a thing; the fact that they might be in pain and they might not have doctors paying attention or being able to pay enough attention to them or their pain.

At the VA hospital in Tampa, all patients taking painkillers are incrementally tapered off them, Clark said.

Because chronic pain never completely goes away, the hospital’s staff emphasizes physical rehabilitation to strengthen muscles and joints near the pain source. When the injury involves the brain — as in PTSD and mild TBIs — the focus is on treating symptoms that could exacerbate pain.

“Pain may make it more difficult to treat those issues,” Clark said, because “all these things interact.”

But what about the remaining pain? The article never goes on to address what is done for that remaining chronic pain. You know, the pain that never goes away. Because we know that just sucking it up doesn’t work in patients who have chronic pain, and if all patients on painkillers are taken off of them over time…well then, what the hell is actually being done?

This new treatment sounds great for the people to whom it is available, and for the people for whom it will work, but let’s not jump ahead of ourselves and pat ourselves on the backs pretending that this is some magical solution that has suddenly rid us of the need for those nasty opiates or narcotics that are JUST. SO. BAD. FOR. EVERYONE. (You fucking addicts! I mean, c’mon, you were all thinking it!) (Right?) Dr. White is one of only six doctors who do what he does, and the article doesn’t say that the others offer his fancy treatment, nor does the article make any mention of how many civilian specialists are working on this treatment.

I worry that the VA and other military treatment facilities will look at this as a sign that they should be able to deny more patients painkillers. Progress will mean exactly nothing if it sacrifices patient care or hinders the quality of life of patients in chronic pain and with life-long illness and injury. While this article correctly talks about how chronic pain is processed differently by the brain not every uniformed doctor and military medical professional subscribes to that theory, and what the military doesn’t need right now is more doctors, medical professionals, or hospitals bragging about how all of their patients are off those evil, bad, no good drugs without offering them real help.

International Disabilities Alliance Disability Rights Bulletin May 2010

activism, global, justice, signal boost

Global News

Spain first country to submit its initial report to the CRPD Committee

On May 3rd, 2010, Spain submitted its initial report, on the implementation of the Convention on the Rights of Persons with Disabilities, to the Committee on the Rights of Persons with Disabilities (the CRPD Committee). This means that Spain has become the first country to submit a report to the Committee on how the rights of persons with disabilities are being implemented. For the moment, the report is only available in Spanish. Please click the following links to have access to the report and its annex: Spanish report and Annex.

Elections for the CRPD Committee

The election of six Members of the CRPD Committee to replace those whose terms are due to expire on 31 December 2010, and to increase the membership of the Committee from twelve to eighteen persons as a result of the 80th ratification of the CRPD, will occur during the Third session of the Conference of the States Parties to the Convention. The Conference of States Parties will take place in New York from 1-3 September 2010.

On May 3, the Secretary-General of the UN sent a letter asking States Parties to nominate candidates to the Committee by July 1. The CRPD Committee has recently published a section in its website on these elections. For further information on the elections for the CRPD Committee, please click here.

IDA has prepared a number of documents explaining the process as well as a questionnaire to be filled in by candidates. Please click here to access these documents and to get more information on these elections.

IDA is including in its website, information on those nominations that have been decided at national level. To have access to the information on the candidates, please click here.

OHCHR

The OHCHR has recently published on its website on disability a new tool: “Monitoring the Convention on the Rights of Persons with Disabilities. Guidance for Human Rights Monitors.” Please click the following links to see this publication: pdf version of report or word version of report.

CRPD ratifications reach 86

The ratification of the CRPD by Nepal, on 7 May 2010, has increased to 86 the number of States Parties to the CRPD. Ratification by Nepal of the Optional Protocol (OP) increased to 53 the number of the States Parties to the OP. The number of signatures to the CRPD is 144, while the OP has 88 signatures.

Treaty Bodies

The CAT Committee, in its 44th session, considered from 26 April-14 May 2010 reports from Austria, Cameroon, France, Jordan, Liechtenstein, Switzerland, Syrian Arab Republic and Yemen. To have access to the disability analysis of the Concluding Observations adopted by the Committee during this session, please click here.

IDA prepared a number of documents (uploaded on the CAT Committee website) with suggested recommendations for the Concluding Observations, which were adopted by the Committee in this session. Some of these recommendations have influenced the Concluding Observations of the reviewed States such as Austria, to which the Committee recommended to cease immediately the use of net beds as it constitutes a violation of article 16 of the Convention.

Universal Periodic Review

The UPR Working Group has held its 8th session from 3-14 May 2010. In this session, the following countries were reviewed: Kyrgyzstan, Kiribati, Guinea, Lao People´s Democratic Republic, Spain, Lesotho, Kenya, Armenia, Guinea-Bissau, Sweden, Grenada, Turkey, Guyana, Kuwait, and Belarus. The review of Haiti was scheduled for this session but was postponed.

For an analysis of the refer ences to persons with disabili ties in the UPR Working Group reports, please click here.

Upcoming Meetings

The 54th session of the CRC Committee (25 May-11 June 2010) will consider reports from Argentina, Belgium, Grenada, Guatemala, Japan, Nigeria, The Former Yugoslav Republic of Macedonia, and Tunisia. OPSC: Argentina; Belgium; Colombia; The Former Yugoslav Republic of Macedonia; Japan and Serbia. OPAC: Argentina; Colombia; Japan; Serbia and The Former Yugoslav Republic of Macedonia.

Click here for the references to persons with disabilities in the States’ reports, lists of issues, and written replies.

Upcoming Session of the Human Rights Council

The 14th session of the Human Rights Council will take place from 31 May-18 June, 2010, in Geneva. Click here for further information on this session.

IDA has prepared a disability analysis of the following reports prepared for the 14th session of the Council.

Special Procedures

The following Special Procedures reports, which have been prepared for the 14th session of the Human Rights Council, include references to persons with disabilities: Independent Expert on cultural rights; Special Rapporteur on migrants; Special Rapporteur on education; Independent Expert on extreme poverty; Special Rapporteur on racism, and the Independent Expert on Haiti. For detailed information on the references to persons with disabilities in these reports, please click here.

UPR

All UPR Working Group reports, which were prepared at the 7th session of the UPR (February 8-19, 2010) and will be presented to the 14th session of the Council, include references to persons with disabilities. Click here for the disability analysis of these reports.

Other reports

IDA has undertaken an analysis of other reports that have also been prepared for the 14th session of the Human Rights Council. Click here to access this analysis.

About the IDA Disability Rights Bulletin

This bulletin is intended for experts advocating for the rights of persons with disabilities, in particular within the Geneva-based human rights framework. It is prepared by the IDA Secretariat, which also provides support to the Group of States Friends of the CRPD.

For more information about IDA, its CRPD Forum and its member organisations, please visit: www.internationaldisabilityalliance.org.

Contact us via email at: stromel@fundaciononce.es.

Recommended Reading for June 1, 2010

bodies, identity, intersectionality, news, politics, recommended reading, social attitudes, technology, , , , , , , , , , , , , , , , , , , , ,

fiction_theory (LJ): The internet IS real life

The problem with impeaching someone’s anti-racism based on attendance at a specific march or even public rallies and protests in general is that it assumes that a) attending such events is a more real, valid, and important means of expressing anti-racism than any other means, specifically online and b) that attendance is a feasible option for everyone.

Marching at a rally or attending a protest is all well and good, but it’s not something that is an option for everyone. It’s quite ablist to ask such a question as though the privilege of being able to attend excludes the antiracist work of those who use other venues.

Mattilda at Nobody Passes: Closer

Somewhere between sleep and awake, a new day and last night and tomorrow, like they’re all in a circle around me but I’m somewhere in bed where I can almost read the sentences except they blur away from me, and I keep thinking maybe sleep, maybe this is more sleep except I don’t know if I want more sleep.

thefourthvine (DW): [Meta]: The Audience

I will not bring up my disability, because I don’t talk about it here, except to say that if that part of me appears in a story, it will be as either a clever gimmick (and a chance for a main character to grow as a person) or a sob story (and a chance for a main character to grow as a person). (No, there will never be a main character just like me. Most of the time I think that’s normal, and then I look at, say, SF and think standard-issue straight white guys must have a whole different experience on this issue. How weird would it be, to have basically all mainstream media written for you like that?)

Ian Sample (at The Guardian online): Bone marrow transplants cure mental illness — in mice

The team, led by a Nobel prizewinning geneticist, found that experimental transplants in mice cured them of a disorder in which they groom themselves so excessively they develop bare patches of skin. The condition is similar to a disorder in which people pull their hair out, called trichotillomania.

lustwithwings at sexgenderbody: Do I Owe Everything I am to The Internet?

Despite their lack of a body, my friends are still quite active in the world of Social Networking which acts on the physical world in much the same way things on our mind do. The contents of the Internet affect the physical world through many of the same processes as the contents of a mind, yet the contents of the Internet as a public mind can affect many more minds, and many more bodies than a private mind.