Monthly Archives: November 2009

Reading List: Mental Health Diversion Courts

Yes, this looks like our daily Recommended Reading posts that Anna does for us every day – but it’s different. Reading List is a selection of links around a single issue or topic, as a start for those interested in exploring it further. The initial edition, on mental health diversion courts, was sparked when I came across the first article:

Susan Thornton, “A court for mental illness,” Denver Post, Nov 15, 2009

History will be made in Colorado’s 18th Judicial District this week when Colorado’s first districtwide adult Mental Health Court will convene to hear the case of “Robert,” age 37. Robert has bipolar disorder. He frequently goes off his medication, hasn’t followed through with treatment plans, has attempted suicide, and has been hospitalized three times. He has several prior convictions for shoplifting, violating restraining orders and resisting arrest. Now he says he wants to figure out a better way to live, and has volunteered for the Mental Health Court.

The court is a specialized treatment court designed to divert nonviolent felony offenders who have a serious mental illness such as bipolar disorder, schizophrenia or major depression, as well as those with a combination of mental illness and substance abuse. It is not open to those with violent behavior or to sex offenders.

Most of the people who’ll come before the court have been repeatedly in and out of jail. They’ve been charged with minor offenses that result from their mental illness, things like being a public nuisance, drinking in public, and shoplifting. They’re charged with a felony because of the cost of items they’ve stolen or damaged. Usually they have been off their medications because they can’t afford them, and live in and out of shelters.

Each participant will have an intensive treatment plan, including case management and medications, and will be closely monitored by probation officers and mental health professionals. Treatment addresses the mental illness, recurring substance abuse and criminal thinking. There will be incentives for compliance, and sanctions for non-compliance that may include re-sentencing.

This article by the Bazelon Center for Mental Health Law gives a good overview of why the current use of the criminal court system to address mental illness is so problematic, including these statistics on the scope of the problem:

  • Approximately a quarter million individuals with severe mental illnesses are incarcerated at any given moment—about half arrested for non-violent offenses, such as trespassing or disorderly conduct.” This does not include more than half a million probationers with serious mental illnesses.
  • Sixteen percent of state and local inmates suffer from a mental illness and most receive no treatment beyond medication.”
  • During street encounters, police officers are almost twice as likely to arrest someone who appears to have a mental illness. A Chicago study of thousands of police encounters found that 47 percent of people with a mental illness were arrested, while only 28 percent of individuals without a mental illness were arrested for the same behavior.

The same Bazelon article also has a nice outline of the role of mental health courts (as well as detailed analyses of different models of these courts and recommendations for improvements):

From the criminal law perspective, two rationales underlie the therapeutic court approach: first, to protect the public by addressing the mental illness that contributed to the criminal act, thereby reducing recidivism, and second, to recognize that criminal sanctions, whether intended as punishments or deterrents, are neither effective nor morally appropriate when mental illness is a significant cause of the criminal act. The goals of mental health courts, then, are: 1) to break the cycle of worsening mental illness and criminal behavior that begins with the failure of the community mental health system and is accelerated by the inadequacy of treatment in prisons and jails; and 2) to provide effective treatment options instead of the usual criminal sanctions for offenders with mental illnesses.

There’s also a nice overview of the mental health courts at Frontline, from their series “The New Asylums,” devoted to the stories and issues of people with mental illness in state prisons. The site lets you watch the whole program online and provides a separate complete transcript. There’s also an interactive state-by-state map so you can find information on specific states.

One reason these courts are becoming increasingly popular is because of their fiscal effect – it is more difficult and expensive to incarcerate a person with mental illness than a neurotypical inmate. For the super-wonky, here’s a detailed report from RAND on the fiscal impact of a mental health in Allegheny County, Pennsylvania. It found that the costs of providing treatment and services was more than offset by the savings in jail costs. The National Center for State Courts also has a great list of resources on these courts, including lots of studies on fiscal impact.

This is a big part of why there’s significant governmental support for these courts. The Federal Department of Justice provides assistance and resources to communities who want to begin mental health courts. The Council of State Governments Justice Center provides technical support and information to communities working with the DOJ, including a list of essential elements in a mental health court and a practical guide to mental health court design and implementation.

I am not nearly as familiar with court systems outside the US, but even some cursory googling shows that these exist in some model in places including South Australia, England (although the report notes they’re not achieving their potential), Canada, and, um, some places in the European Union.

I also include the significant caveat that the ideas behind and goals of these courts are only as good as their implementation, and that can vary a lot. Not every court is great and even if they worked perfectly, there would still be a lot of problems with the criminal justice system’s relationship with people with disabilities overall.

If you have information on mental health courts in other areas or other great resources, please drop them in the comments!

Recommended Reading for November 30

How to Survive Thanksgiving When You’re In Eating Disorder Recovery [I should have posted this earlier, but there are major food-related holidays coming up in December.]

During the holiday season, support from family and friends can significantly impact an individual’s ability to effectively handle these stressful situations. For those supporting someone with an eating disorder through the holidays, the Eating Recovery Center offers these suggestions:

Language, Stigmatisation, and Mental Distress

I recall from some years ago when a mental health survivor of the system told me about a meeting he had with script writers working on a soap opera. They were trying to create a storyline regarding a character and his psychotic breakdown culminating in him running amok brandishing a knife. The script writers were happy with the storyline and were engaging in a discussion with mental health users to see whether they had anything to add. The guy telling me the story said the other people he was sitting with just sat there totally gob smacked. One of them explained to the script writers that the current storyline as it stood only reinforced stereotypes and stigma (mental distress=psycho=knife wielding maniac).

After much patient explaining the penny eventually dropped, wasn’t so much an eureka moment when that happened. They changed the storyline, taking out the needless psychodrama for psychodrama sake. Wasn’t perfect, it still referred to stereotypes and your average psych textbook but at least they took out the knife wielding moment. My own view and I said it to the guy who told me the story is that this exposes lazy script writing as opposed to researching the realities of mental distress.

Disability & Virtual Worlds: Universal Life

The island was designed visually and experientially to offer the best benefit to users with disabilities, fully available to adaptive services and developed in accordance with Universal Design principles. The island contains the following features: wide ramps scalable for avatars in wheelchairs; bright high-contrast signage more easily trackable by users with visual impairments; smoothly landscaped walkways to accommodate many types of users; and training offered in small sets to decrease fatigue.

Testing was performed in stages, with the first challenge being how to best present signage. Signs needed to be readable by the default camera view, which is angled downward at roughly 15 degrees from eye level, so all signs in the island’s Orientation Centre were compensated for the height of avatars using wheelchairs. The standard view in Second life includes the avatar in the frame, so signs were placed high off the ground. Paths and walkways were designed with as few stairways as possible, with no bumps that would make an avatar trip while walking. The surrounding land was modelled to meet the paths as closely as possible.

In the news:
Man builds stair climbing wheelchair

“It used to take us a good half an hour to walk downstairs from our fifth floor apartment to the ground floor after her injury,” he said.

“I realised that what she needed was an electric wheelchair that could go up and downstairs but such a thing didn’t exist.”

So, despite a complete lack of mechanical knowledge, Li sold his apartment for £44,000 to fund the project.

The wheelchair as a weapon

And though the 38-year-old father of two quickly learned sporting activities such as hand cycling and sit skiing, it wasn’t until he took a new self-defence class for wheelchair-users that he began to feel at ease with his new paralyzed status.

“When you become a paraplegic and are in a chair, physically your world changes. You’re looking up all of a sudden,” he says. “(The class) was a great way for me to get to know my body again, to get comfortable in the chair and to build up a sense of confidence.”

Some Thoughts on The Time Traveler’s Wife

This post contains spoilers for the book and the film.

The other day I went to see the film version of my favourite book, Audrey Niffenegger’s The Time Traveler’s Wife. I was expecting a more gooey version of the book, and was a little apprehensive about the treatment of disability, but I wasn’t expecting what I got.

The time traveller of the title, Henry, travels due to a genetic condition called Chrono-Impairment. He experiences this as inconvenient and unpleasant: he is pulled out of his daily life and often to quite painful times in his past.

In the book, part of the way Henry convinces geneticist Dr Kendrick that his time travelling is real by giving the latter information about his son, who is soon to be born. One of these details is that the son, Colin, has Down Syndrome. And just about everything said about him is along the lines of what Henry says just after the birth: ‘I’m sorry about Colin. But you know, he’s really a wonderful boy.’ Dr Kendrick’s reaction to his son’s ‘abnormality’ is less pleasant.

But Colin doesn’t appear in the film. There’s a part of my mind that was glad we missed what would surely be a nasty mix of okay and fail. But with his exclusion, we also missed the presence of half the disabled characters in the novel. And I know you have to make changes for film adaptations, and that’s fine. Though it’s curious how all the queer characters and most of the non-white characters were taken out for the film version, too… (Which is, again, good on the one hand because you miss all the painful stereotypes, but bad on the other as, you know, there are few non-white or queer people.)

But I said half the disabled characters, so let’s address the other one: Henry.

In the book, Henry gets hypothermia when he ends up time travelling to a park in winter. He loses his feet and spends the rest of the novel in bed, then in a wheelchair. In the film, only one of Henry’s legs is affected, and he keeps it. Both Henry and Dr Kendrick emphasise that he’s not going to be in the wheelchair for long, If it had just been Henry saying that, I would have thought, okay, that’s a reference to his knowledge about his premature death. But as Dr Kendrick says the same, and as Henry never stops using the wheelchair until his death, there’s no point in saying it at all. Except to reassure the viewers that Henry is not one of “those people” and this is just a temporarily blip, that is. It’s okay, everyone, don’t panic; Henry isn’t disabled.

Henry learns about his upcoming death (oh, time travel) not long before getting hypothermia. I am not a fan of the emotional line formed here; to me the emotional message, if not the letter of the thing, is that disability is a stage in dying, that disability is a kind of pre-death. Which, come on. Henry isn’t dying up until he is killed. In the book at least the particular importance of Henry’s needing to be able to run is explained (it has often been a matter of survival when he is thrust about in time) (though it actually isn’t in any of his travels following the loss of his feet). In the film, we just have abled to disabled to dead. It leaves a bad taste in my mouth.

But what I found most strange in the discrepancy between the book and the film was Henry’s attitude. In the book, Henry is largely miserable once he loses his legs. In the film, Henry is a Good Cripple. It’s a pretty big contrast, and again the film takes out emotional complexity and loses the opportunity to highlight the marginal.

But now we come back to Henry’s time travel, and here we hit some more complexities. Can we call our chrono-impaired hero disabled? Within the world of the text(s), Henry doesn’t appear to treat it as such, as best I can recall from both texts. But irrespective of whether Henry or those around him understand him as disabled, as viewers and readers we can draw out a fair few messages about disability. There are all sorts of nebulous ideas in my head on time travel as impairment, and Henry’s search for a cure, and the issues with Clare and Henry having a baby. To be honest, I haven’t settled my feelings on this. But here are some ideas in Time Traveler’s that slot into popular ideas about disability…

  • Let’s make it a super power!
  • Long suffering partner
  • Should we have a kid with this condition? Or would that be unfair?

… and some of the difficulties Henry faces…

  • His impairment isn’t known about or dealt with in everyday society and he has to keep it a secret. In fact, he is scared for his job. Scary invisible disability?
  • He is repeatedly arrested because of a lack of understanding of his condition.
  • He struggles to find appropriate medical care.

What else can you think of?

So the novel and the film versions of The Time Traveler’s Wife have problems in different respects. But I’m finding the differences between the novel and the film the most interesting of all.

“Cast Offs” – A Warning for Rape-threat Content

Cast Offs is a new British TV show. This scripted fake-reality show aims to spoof Survivor-type shows by placing six people with different disabilities (all physical or sensory) on an island. All are played by actors with a disability. The show also shows a series of flashbacks, with each episode focusing on one of the characters’ lives.

This isn’t a full review of the pilot, except to say that I’m not all that convinced that having PWD sledging each other for having a disability, Crips Behaving Badly-style, is all that much of an improvement over having temporarily-abled people sledging PWD. Self-deprecating and collaborative humour I’m all about; pitting PWDs against each other in snide and nasty ways, not so much. As usual, the show claims that it’s terribly adventurous and new, and that it’s all about “satire” and “the last taboo”. Who is being “satirised” and why here?

The point of this post is mainly to warn you about a scene near the beginning, if you are thinking of watching, but you’re triggered by sexual violence and threats of rape. The scene occurs without any warning or inkling of the turn the content is about to take.

Description and clip below the cut. **Trigger warnings apply.**

Continue reading “Cast Offs” – A Warning for Rape-threat Content

Chatterday! Open Thread. And planned outage on Monday.

A baby giraffe, half back-lit, looks at the camera with dark, liquid eyesThis is our weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Feel free to add your own images. (Anna insists that these should only be of ponies, but I insist that very small primates, camelids, critters from the weasel family, smooching giraffes, and cupcakes are also acceptable.) Just whack in a bare link to a webpage, please – admin needs to deal with the HTML code side of things.

Today’s chatterday backcloth comes via The Daily Squee.

~~~

NOTE: There will be a planned FWD/Forward maintenance outage on Monday. Details:

Date: Monday, November 30, 2009 (11/30/2009)

Downtime window:
Start Time: 00:00 CST (06:00 UTC)
End Time: 03:00 CST (09:00 UTC)

Recommended Reading for November 27

via Elizabeth Kissling at re:Cycling: Mental Illness in Academe

The first question you must ask yourself is whether to tell your chair and dean. I can think of arguments both in favor of that, and against.

One of the pluses would be the psychological benefits of not having a secret and being able to be open. More practically you might be able to get extra support, or formal accommodations under the Americans With Disabilities Act (ADA). You would serve as a model for other academics in your department and your students.

There are, of course, real pitfalls to telling, too. There is a tremendous stigma, still, around mental illness. People may believe, consciously or not, that you are unreliable or even dangerous, and they may fear you. They may think you can’t do the work or your scholarship isn’t good, even if it is very good. That may not be intentional on their part but can nonetheless have a big impact on your work life and your prospects for tenure.

Quickhit: Athlete Kurt Fearnley lambastes abusive Jetstar wheelchair policy

There are lots and lots and lots of problems with the way people with disabilities are treated while travelling. This is just one of them.

Talking About FSD – How Not To (Part 2)

But because folks like she and I exist, people with “Real” medical problems (and here I’m using quotes because I’m not comfortable with claiming my problems are more real & valid than anyone else’s, just because I can back mine up with medical records, which have also been and will continue to have their value questioned anyway,) we are putting everyone else at risk of exploitation by Big Pharma. Because I want treatment for my sexual health problems, I bear the responsibility & burden of enabling Big Pharma sneaking its phallic tendrils into all of our bedrooms & regulating our sexuality. That regulation might come in pill form designed to increase our libidios – but never too much, for if we become too sexual, too promiscuous, we may just be diagnosed with the dreaded Restless Vagina Syndrome.

I was really curious; is Big Pharma really trying to develop and then exploit a new, fake disease, by piggybacking on something that sounds similar to restless leg syndrome? (Only, it’s the vagina that’s restless.) What is this?


Digital inclusion, disabled audiences and web accessibility through personalisation

There are 11 million adults in the UK with a long standing health problem or disability that affects their daily activities including their ability to work – and therefore covered by the Disability Discrimination Act. Of these, according to research from the Office for Disability Issues, 47% are over 65 and 43% are unemployed. Startlingly, 58% have never used the Internet.

Jonathan talked about the various barriers to disabled people getting online including lack of interest, lack of means and lack of confidence. These are the same reasons as for the population at large. BBC research into encouraging broadband adoption echoes the experiences of Martha Lane Fox. They focussed on the 21% of UK adults who do not have the Internet at home or use elsewhere. The figures are similar: 10.5 million aged 15+ with and average age of 61 (over half were 65+) and 67% are C2DE compared with 45% of the UK population.

Only one in five disabled students has received vital funding [UK]

Government statistics released today show that the SLC has so far distributed £43m less in funding than last year, despite an unprecedented rise in student numbers – and applications for grants and loans – in the past 12 months.

The Guardian has learned that more than 12,000 disabled students have also been left without vital funding for specialist equipment and to pay fees for personal helpers. Campaigners are now claiming progress is so slow that it would take 75 weeks to clear the backlog.

QuickPress: “Success” of Automatic Captioning on YouTube

It is, of course, new technology, so we’ll see what happens in the future, but check this picture from Codeman38:

Description: A screen capture of a YouTube vid showing a person rock climbing. The auto caption reads: “for doing what I mean as well as democrats”. Codeman38 has captioned it: Google auto-caption fail. What was actually said: “we’re doing rock climbing as well as table tennis.”

I don’t have a “real” mental health condition, I’m just weak, and other bad self-talk

One of the hardest things for me in dealing with my mental health condition is my very strong theory that everyone else is having exactly the same problems that I am, but they’re just 8 million times better at dealing with them, and hiding them from everyone else. And thus, I don’t talk about my mental health, much, because everyone else is obviously coping with the same thing, and I’m just a big whiner who can’t cope and fails at everything and is useless and should just run away and everyone will be better and– stop.

For extra special bonus points, my mental health condition will also remind me that if I just try hard enough, if I just do more things, I will prove that I’m coping Just Fine and everyone will love me and why would anyone want to talk to someone who isn’t doing all this extra stuff and if I just could cope the way everyone else did I wouldn’t have these problems and I would just be good enough and not have to do all these things and– stop.

It’s a fun game my brain chemistry plays with me and part of the reason it’s so successful is because of how mental health conditions are portrayed in popular culture.

I don’t talk about how my brain is working this week (this month, this semester) because I’m afraid. I’ve already experienced backlash related to my mental health condition online, and I fear “coming out” to my professors, my classmates, or the people on any of the six committees I’m on this semester because suddenly I’ll be weak. I’ll be the scary girl who might snap. Maybe they’ll ask about my experiences being detained by hospital authorities for “my own good”. Maybe they’ll start to doubt the validity of my research, or dismiss my opinions, or stop telling me about meetings, or start talking about me behind my back, whispering and then they’ll be making fun of me all the time and it will be just like high school and I am not sure I can cope with that again and I don’t want to go to the hospital and I don’t want to go to the doctor and tell them I’m not coping because they’ll lock me away and– stop.

It took me a decade of this constant self-talk before someone told me it wasn’t “normal”, and that I could get help to deal with it. And despite having gotten effective help in the past, despite increasingly being able to keep myself focused and on task and not falling apart all over the place, I’m still deathly afraid of talking to people about mental health concerns. I’m still afraid, today, right now, to go to my doctor’s appointment because doesn’t everyone have their heart pounding in their ears during class? Isn’t everyone convinced their profs all hate them? Doesn’t everyone think that if they just stretch themselves a little thinner, they’ll be good enough?

The only reason I resisted getting help for so long, when I could have been getting help as soon as I started having these symptoms, was because Mental Illness has a huge social stigma attached to it. People like me, who “just” have such bad self-talk that they harm themselves in ways that aren’t easily noticed (six committees? plus the writing for the paper? Plus the FWD/Forward blog duties? Not to mention trying to finish the MA in a year? With a husband who’s recovering from cancer surgery and has a disability? And trying to make sure everyone eats healthy, and trying to keep the housework up? Self, what are you doing? Besides doing it all wrong, of course.) can end up not seeking help because I’m not crazy, I’m just stupid and lazy. We’re lead to believe “real” mental health conditions are like t.v. version of schizophrenia and movie versions of OCD.

I had a great ending planned to this, that would invite people to talk about how pop cultural portrayals of mental health concerns affected them. I also wanted to write about how I don’t want to put a stigma on schizophrenia and OCD, but on the way these conditions are portrayed in the media, but if I keep writing, it’s going to be another way to not go to the doctor and get a needed prescription for anti-anxiety medication. Last year I didn’t go to the doctor until I thought I was having a heart attack and could barely breath.

But it’s all in my head, right? People like me, we’re just weak.

Recommended Reading for November 26

They hate you. Yes, you.

Because the first thing people use on us is always, “It’s not about you.” When I was a kid, when I first started reading about autism rights, it was so instinctive: of course it’s wrong to say “cure autism now.” Of course it’s wrong to say autism is a tragedy, a disease, it’s wrong to give kids electric shocks, it’s wrong to say you thought about killing your kid in a video about eliminating autistic people from the gene pool. Like Sinclair says it’s wrong to mourn for a living person. All this stuff was plain and clear and bright, and I was autistic, and I was being attacked.

Right?

Well, not to anyone else.

YouTube now adding close captioning automatically

We received word from our new star writer Tara that YouTube will begin using a machine to produce close captioning for its videos. At first, the “auto-caps” will only be seen on a select number of videos of the nearly 20 hours of footage uploaded to YouTube every minute.

This is an excellent step in the right direction to add more accessibility to the second most popular search engine on the planet. Deaf and hearing-impaired gamers will now be able to begin looking up cheat codes for their favorite video games just like everyone else!

Accessibility and Table Top Gaming: Rulebooks

To fully understand what accessibility means in a gaming context, game players and game designers need to think beyond simply what our own abilities are, and consider a larger audience that may not share the same physical abilities. If a game requires pointing a nerf gun at other players, how can you adapt the game (or can you?) for people who can’t point a nerf gun?

Also, proper accessibility for games requires not just that people with disabilities are able to participate, but that they can participate fully. In other words, in games with a Dungeon Master or Gamemaster, people with disabilities need to be able to take those roles as much as any other player of the game might. Game accessibility includes the ability to be the GM.

Captchas: The Bain of everyone’s Existence

So the question is how do you make a captcha accessible, without making it solvable by spam bots? There are actually many options. The current audio captchas include, typing in a set of numbers that you hear, and typing words that you hear. The draw back to both of these is that they can be difficult to hear, or too challenging. I often have to listen at least 2 to 3 times and then I still worry that I’ll get it wrong, but at least this option gives me the potential of being able to submit the form. Another option, and one of my favorites is to make the captcha a question that you have to solve, such as, “what is 2 plus four?” This is a simple math problem that most people should be able to solve, but it isn’t something a computer can solve. Finally, there soon will be a new option thanks to the work of the NFB and Townson University. They’re new system will use pictures of familiar objects and sounds that correspond to the pictures. If you are listening, the answer to the captcha is whatever the sound corresponds to. So for example the image may be of a lion, and the sound would be a lion roaring. The answer to the captcha is lion.

In the news:
New Grants Aim To Get More Disabled People Volunteering [UK]

Organisations can apply for grants between £250 and £5,000, which can be used to help overcome barriers that stop disabled people volunteering, such as specific equipment, a lack of suitable access and understanding of disability issues.

These grants are part of the £2 million ‘Access to Volunteering Fund’, which was developed by the Office of the Third Sector as a pilot scheme in Greater London, the West Midlands and the North West.

Please note: I’m in thesis crunch time now, so don’t hesitate to send me links to your own stuff, to other people’s stuff, or to the news, because my reading time on the internet is getting more and more limited. anna@disabledfeminists.com

Question Time: Fantasy Assistive Devices

OK, so we’ve had the “what assistive devices I use” thread. Now it’s time for…

In My Dreams: Assistive Devices I WANT!

Stealing from meloukhia a little, I’d like a self-powered mobile bed-platform-thingo that contains all of my needs at easy reach: my laptop and all peripherals, assortment of pillows, my teetering bookpile, meds, water bottle, glasses and cleaning cloth, TENS, lip balm, moisturiser, and all the other necessities of life. And I want it to be able to move around corridors, and get outside, and up steps, so I can change scenery whenever I want. And fold down to fit in the car boot. And I want it to be socially acceptable to take it with me and lounge around wherever I go. Oh, and it should fly.

Dream away. Brainstorm. Fantasise. Invent. The sky’s the limit.

[Additional note: Devices, please, commenters. Not servants or slaves or “wives”. Devices.]