Tag Archives: mental health concerns

Recommended Reading for September 21, 2010

Natasha Tracy at Breaking Bipolar: Stop Minimizing Mental Illness: Worst Things To Say

I feel, sometimes, that I am at war with the mentally-well world. This isn’t to say that many of them aren’t lovely or that I have a desire to harm anyone, but I do feel embroiled. And it’s mostly because the well population just doesn’t understand what it is to be unwell. They demonstrate this heartily by repeatedly saying the worst things possible to a person with a mental illness.

The Guardian: Letters: Living on benefits is in no way ‘a lifestyle choice’

It is quite possible for a person from a very rich and privileged background to genuinely care about the plight of the poor, and to do something constructive to improve it (Osborne to cut £4bn more from benefits, 10 September). It is much harder for such a person to have any real comprehension of what it feels like to live in poverty, with little or no prospect of escape, no matter how hard they work.

Michael J. Berens at the Seattle Times: Hundreds of adult homes conceal abuse, neglect [strong trigger warning for content related to abuse]

In fact, a Seattle Times investigation has found, such cover-ups by adult family homes are not unusual. The Times found that over the past five years, at least 357 of the adult family homes in this state have concealed cases of abuse or neglect of their residents. Many of those cases involved serious injury or death. In dozens of these cases, untrained or unlicensed caregivers mishandled residents’ medications, sometimes giving them fatal overdoses. In other cases, residents became ill after being denied basic care and hygiene.

Ally at Every Crooked Step Forward: Courage…And Other Things I Don’t Have

That I am a person with a disability who identifies as asexual is not a forgone conclusion. That I belong to both groups is incidental, and that both groups have been mistakenly thought, by people who are not part of that group, to denote a lack of maturation or inability to understand one’s social or physical development, does not mean I am, in fact, immature, or that I do not know my own body. The fact that I am asexual is not proof about the presence, or lack of a sexual desire in a person with a disability, or zir understanding of zir sexuality, or zir ability to express that desire, if indeed it does exist. The fact that I have a disability is, similarly, not proof that all, or even most, people who identify as asexual suffer from some kind of physical, mental, or chemical deficiency.

Blackamazon at Having Read the Fine Print…….: We’re supposed to be impressed

However

I get less and less likely to feel solidarity with it when THAT phenomena where in your experimentation , goals for what inclusion looks like , and execution are serious matters and the stuff you got it from , the places it came from aren’t even notable .

As well as EVEN less likely to believe it’s just experimentation or poking and prodding when certain aspects of those personae like your race,class, sexuality are seemingly

a) ignored

or

b) only poked in ways that continually exhibit you as a edgy for a member of privileged class or consistent appropriator or chosen vessel.

It’s not my job to tell you haw to do it but if you wish to explore why is THAT section so often missed .

Recommended Reading for September 7, 2010

Lisa Harney at Questioning Transphobia: QT and Posting and My Inability to be Consistent

Oh, and a lot of neurotypicals learn about ADHD symptoms, and they think “I lose my keys sometimes? I lose my train of thought! I miss deadlines!” And you know, it’s true. Everyone does these things occasionally. But the difference is that you do not do them every. single. day. This isn’t what your life is like, this is when you have a bad moment – you’re tired, overwhelmed, in a hurry, and bam, a thing happens. This is what life is like every day for ADHDers, and when we’re tired, overwhelmed, in a hurry, then it’s that much worse for us. So, I can understand if you relate to these symptoms? I’m sure most people do. But don’t generalize how you experience them (as not-symptoms, assuming you do not have some other condition that causes similar symptoms – or you’re not an undiagnosed ADHDer yourself) to how I experience them (as symptoms). For me, they are a daily impairment.

K__ at Feminists With FSD: Book review — The Camera My Mother Gave Me [trigger warning for sexual assault]

The negative reviews usually contain some variation of gross-out due to TMI or frustration with Kaysen’s lack of progress in treating her pain medically. It’s TMI and gross because vaginas and vulvas are generally considered vulgar and gross – at least outside of feminist circles – sometimes even within feminist circles, because don’t talk about vaginas too much or else you reduce yourself to a big walking vagina – and thus it’s a shock to read such frank language and descriptions about the vagina.

Tammy Worth for the Los Angeles Times: Mental health parity act may affect your medical benefits

Other provisions of the bill require out-of-network coverage for mental health services, parity of coverage of medical and mental health medications, and if someone is denied coverage of a mental health service that is deemed medically unnecessary by the insurer, patients have the right to find out why.

Andrew Palma for the Golden Gate [X]press (San Francisco State University student newspaper): University loses scholar, activist

Longmore is arguably most well known for his 1988 protest outside the Social Security Administration’s Los Angeles office. He burned his book about George Washington, written word by word with a pen in his mouth and a keyboard, to protest policies that penalized disabled writers for counting royalties from their work as earned income.

Adrian Morrow for the Globe and Mail: Efforts to battle chronic pain found lacking

Some 80 per cent of people around the world who suffer from chronic pain can’t get the treatment they need and governments must step up their efforts to tackle the issue, says Michael Cousins, an Australian anesthetist and the driving force behind the first International Pain Summit [. . .] Earlier this year, he had a hand in drafting a national pain management strategy for Australia – the first in the world – and the summit, which takes place in Montreal on Friday, will draw up guidelines to help other countries follow suit.

Recommended Reading for August 31, 2010

Pamela Paul for the New York Times: Can Preschoolers be Depressed?

In the winter of 2009, when Kiran was 5, his parents were told that he had preschool depression, sometimes referred to as “early-onset depression.” He was entered into a research study at the Early Emotional Development Program at Washington University Medical School in St. Louis, which tracks the diagnosis of preschool depression and the treatment of children like Kiran. “It was painful,” Elizabeth says, “but also a relief to have professionals confirm that, yes, he has had a depressive episode. It’s real.”

Mary Crawford for the APA Monitor: Parenting with a disability: The last frontier

Social psychologist and bioethicist Asch says that a lack of familiarity may be one reason for professionals’ biases toward people with disabilities. “Very few professionals know people with disabilities as peers,” says Asch, who teaches at Wellesley College in Wellesley, Mass. “Their only contact with people with disabilities is in a crisis situation, where the professional is [called on for help]. So the notion among some professionals is that people with disabilities always need help and can never give help or nurturance to another human being or provide a child with security or protection.”

Naomi Jacobs for the Guardian‘s Comment is Free: Disabled people do have sex lives. Get over it.

This is not a story about “taxpayers’ money” – most disabled people who have local authority-funded care plans are only allowed to spend these on basic services such as help with washing and dressing. What it is really about is moral outrage over an isolated case, which is also a smokescreen for much more disturbing attitudes towards disabled people’s lives.

CBC News: Down Syndrome group slams Emmys

“With race, sexual orientation and disability, you are talking people’s core identity — things that are unchangeable,” she said. “What do we get out of making fun of things that people cannot change, other than degrading them and making them feel they are not part of society.”

Amber Dance for the Los Angeles Times: In the Works: Microneedle patches could take the sting out of shots

The Band-Aid-like patches, coated with microscopic needles, generally don’t hurt. Moreover, they may actually work better at delivering vaccines and some medications, according to recent research.

Guest Post: Puppies and Pills Part 2

About thetroubleis: Thetroubleis is a 19 year old with bipolar disorder, social anxiety disorder, generalized anxiety disorder and dyspraxia. She’s a WOC who is also a transracial adoptee and pansexual/queer, depending on how she’s feeling that day. She enjoys knitting, video games and is a music geek.

Puppies and Pills Part 1.

I’m back, did you miss me? I’d like to talk a little bit about the service dog community and public perception of service dogs and I’m hoping this will be interesting to more people them just me. Your comments and questions are appreciated.

All of my experience with the service dog community is online, which makes things a bit different than they would be if I was interacting in person. Any statements I make are huge generalizations, so please, take them will a grain of salt. This isn’t make to pick on anyone person or any particular community.

The online service dog community can be a bit abrasive, in part because of the worry about fakers. There are cases of people coming in and learning the lingo and the lay to pass a pet dog or an emotional support animal off as a service dog. While I recognize this is a problem, I do think that we could cut people a little slack. I see a lot of the aggressive questioning being directed at people interested in a service dogs for psychiatric issues, because of confusion people have about the difference between a psychiatric service dog and an emotional support animal.

However, the online service dog community is also very helpful. They are willing to point people at programs or trainers that suit their needs and help people with financial difficulties come up with ideas for funding. The community is ready to help with writing campaigns at a sign of injustice and isn’t afraid to take mistaken or bigoted people to task, even if they write for well respected newspapers. If someone’s service dog gets sick they are always there with support and help finding ways to get treatment if money becomes an issue. The people in the service dog community care and they care passionately.

If you can’t meet teams in your area the online service dog community is invaluable and I’d say they are great even if you can. It’s great to have people who get it, even if we disagree on some issues. It’s great to have others who can understand what it’s like to have an access issue, or what it’s like to take a dog to the zoo.

This actually brings me to my next point, access for service dog handlers and the public. It’s a joyful topic, full of good times and understanding and caring business owners.

Okay, I lied. The general public’s understanding of service dogs or in some cases that there is anything beyond guides is very low. It makes sense that more people know of guide dogs, as they are did start the first service dog schools and hold their dogs to a very high standard. I must say that the constant questioning of whether I am blind is most annoying, not because I’m insulted, but because what my disability is or isn’t is not up for public consumption. When one adds in American society’s feelings towards mental illness, I rarely feel disclosure is in my best interest. Some in the service dog community itself are still against the idea of service dogs for people with mental illness, so I expect even less acceptance of the general population.

One thing that gets to me is how few business owners know the law. Right now I’m covered under Maine state law, but I do think that a business owner should at least know the ADA [Americans with Disabilities Act} at this point. It has been nearly 20 years, after all. So, I take pamphlets with me, even when I don’t have Figaro, to tell businesses about their rights and responsibilities. I figure if I keep this up, it should cut down on access issues, not only for me, but for all teams.

One thing I wish people understood is that petting a service dog can put the handler in danger. Yes, our dogs are trained to ignore you, but even the best dog breaks training. I love Figaro, but I wish people would talk to me not him and accept that maybe I don’t feel like talking that day. Drive by petting is one of my peeves, because by the time I process it, people tend to be too far away for me to scold or educate. I understand that people love dogs, but just as you shouldn’t go around grabbing a person’s wheelchair, you shouldn’t touch my dog without my permission. He’s not a public petting zoo.

People have attacked service dogs, kicked them, spat on them, set their dogs on them. This is unacceptable. Beyond the fact that a service dog may be someone’s independence, it’s also a living creature worthy of respect. Our dogs are not abused slaves and honestly, I think most service dogs have a better life than most pet dogs. What pup wouldn’t want to travel with their person and help them out, all the while seeing new things and people?

I try to believe that people are mostly good, if misguided, and therefore I’m going to keep educating. I hope that someday access issues will be far and few between and more people who could benefit from a service dog could have the partnership I’m able to have.

This is my next to last post in this series and next time, I’d like to talk a bit about cost of a service dog and ways to get a service dog.

An emotional support animal (ESA) is a US legal term for a pet which provides therapeutic benefit to its owner through companionship and affection. Emotional support animals are not specially trained to ameliorate disability as psychiatric service dogs are. They require only as much training as an ordinary pet requires in order to live peacefully among humans without being a nuisance or a danger to others.

I don’t have a “real” mental health condition, I’m just weak, and other bad self-talk

One of the hardest things for me in dealing with my mental health condition is my very strong theory that everyone else is having exactly the same problems that I am, but they’re just 8 million times better at dealing with them, and hiding them from everyone else. And thus, I don’t talk about my mental health, much, because everyone else is obviously coping with the same thing, and I’m just a big whiner who can’t cope and fails at everything and is useless and should just run away and everyone will be better and– stop.

For extra special bonus points, my mental health condition will also remind me that if I just try hard enough, if I just do more things, I will prove that I’m coping Just Fine and everyone will love me and why would anyone want to talk to someone who isn’t doing all this extra stuff and if I just could cope the way everyone else did I wouldn’t have these problems and I would just be good enough and not have to do all these things and– stop.

It’s a fun game my brain chemistry plays with me and part of the reason it’s so successful is because of how mental health conditions are portrayed in popular culture.

I don’t talk about how my brain is working this week (this month, this semester) because I’m afraid. I’ve already experienced backlash related to my mental health condition online, and I fear “coming out” to my professors, my classmates, or the people on any of the six committees I’m on this semester because suddenly I’ll be weak. I’ll be the scary girl who might snap. Maybe they’ll ask about my experiences being detained by hospital authorities for “my own good”. Maybe they’ll start to doubt the validity of my research, or dismiss my opinions, or stop telling me about meetings, or start talking about me behind my back, whispering and then they’ll be making fun of me all the time and it will be just like high school and I am not sure I can cope with that again and I don’t want to go to the hospital and I don’t want to go to the doctor and tell them I’m not coping because they’ll lock me away and– stop.

It took me a decade of this constant self-talk before someone told me it wasn’t “normal”, and that I could get help to deal with it. And despite having gotten effective help in the past, despite increasingly being able to keep myself focused and on task and not falling apart all over the place, I’m still deathly afraid of talking to people about mental health concerns. I’m still afraid, today, right now, to go to my doctor’s appointment because doesn’t everyone have their heart pounding in their ears during class? Isn’t everyone convinced their profs all hate them? Doesn’t everyone think that if they just stretch themselves a little thinner, they’ll be good enough?

The only reason I resisted getting help for so long, when I could have been getting help as soon as I started having these symptoms, was because Mental Illness has a huge social stigma attached to it. People like me, who “just” have such bad self-talk that they harm themselves in ways that aren’t easily noticed (six committees? plus the writing for the paper? Plus the FWD/Forward blog duties? Not to mention trying to finish the MA in a year? With a husband who’s recovering from cancer surgery and has a disability? And trying to make sure everyone eats healthy, and trying to keep the housework up? Self, what are you doing? Besides doing it all wrong, of course.) can end up not seeking help because I’m not crazy, I’m just stupid and lazy. We’re lead to believe “real” mental health conditions are like t.v. version of schizophrenia and movie versions of OCD.

I had a great ending planned to this, that would invite people to talk about how pop cultural portrayals of mental health concerns affected them. I also wanted to write about how I don’t want to put a stigma on schizophrenia and OCD, but on the way these conditions are portrayed in the media, but if I keep writing, it’s going to be another way to not go to the doctor and get a needed prescription for anti-anxiety medication. Last year I didn’t go to the doctor until I thought I was having a heart attack and could barely breath.

But it’s all in my head, right? People like me, we’re just weak.

Recommended Reading for November 25

On Living with Pain and Taking Care of One’s Self

I have been managing my chronic pain and taking care of myself for years. But taking care of myself requires the cooperation of other people, and that can be the most difficult challenge to overcome. I cannot take care of myself or be well if others do not take my pain seriously. Just because I was able to do X yesterday does not mean I can do it today. The pain comes and goes. Once it starts I have to let it take its course. But society caters to people who are able-bodied and physically strong. Illness and pain are not compatible with the typical pace of life, and I admit I have anxiety about falling behind.

Living with an invisible disability can be exhausting – not only because chronic, searing pain is energy-draining (in my case), but because it leaves behind no evidence. Communicating with others about my pain often leaves me feeling misunderstood and isolated. Sometimes I want to wear tops that reveal my scar all the time, in order to silently “prove” there’s a *real* reason I just want to lie down, can’t carry that ten pound box, or don’t want to stay out all night partying. I cannot shake the feeling that other people doubt me or believe I use chronic pain as an excuse to get out of doing certain things.

Insurance Company Revokes Depressed Woman’s benefits over Facebook photos

Mental illness is no exception to this rule: people think they know what it looks like, that they can spot a person with a mental illness a mile away, and that if a person doesn’t live up to those expectations, they’re either seeking benefits they “don’t deserve,” or seeking attention. And with regards to depression specifically (as it’s the topic of the original article, and my greatest knowledge base), they tend to think that if someone isn’t spending all of their time crying, frowning, or refusing to get out of bed, they can’t possibly have it.

Your Scooter Means You’re Poor

I have learned that differently abled means poor to many. It means that you are not working. It means that you have no identity or interests. I understand for many being differently abled means poverty because we live in a world that does easily make the accommodations that are necessary to participate in paid work. Knowing that this is the case, why does the stigma attach itself so ferociously? If a person is unable to work because of a lack of accessibility, why do we feel the need to persecute them because of the way our society is designed?

When I tell people that I write, the answer is usually that it makes sense. It does not occur to anyone that I chose this because of a love of writing and sharing ideas. Writing is something that I was interested in from the time that I was a small child. Because I am doing it, it certainly is not real work. Such ideas do not attach themselves to a friend of mine, who makes his living freelancing in this area. Sitting together, people will invariably ask him a multitude of questions, ignoring me completely. It is understood that he chose his work out of love and not convenience.

A Different Kind of Test

More than two dozen seniors at Lincoln University, in Oxford, Pa., are in danger of not being able to graduate this spring — not because they’re under disciplinary probation or haven’t fulfilled the requirements of their majors, but because they were obese as freshmen.

It might sound like a joke, or a violation of individual rights, but James L. DeBoy, chair of Lincoln’s health, physical education and recreation department, said he sees it as his “professional responsibility to be honest and tell students they’re not healthy.”

In the news:

Disability turns laughing matter in Channel 4 comedy show [Headline is really misleading past the first few paragraphs of the article] [Also, oh gosh! People with disabilities don’t all agree on everything! I love that they spelled that out in the article, but it always bothers me that this is considered news.]

Penned by writers from Skins and The Thick of It, the series features six disabled characters marooned on an island, including a blind man, a woman with cherubism and a paraplegic man. Each character is played by a disabled actor with the same disability, and one complains about the number of non-disabled actors portraying disabled people.

Liz Sayce, chief executive of the Royal Association of Disability Rights (Radar), says: “There is likely to be a storm of comment from disabled people and non-disabled people alike over Cast Offs. Some disabled people will find it funny and real – portraying disabled people as adults who swear, drink and have sex. A real break from covering disability with kid gloves, or not covering it at all. Others may well find it offensive.”

Guest Post: Puppies and Pills Part 1

About thetroubleis: Thetroubleis is a 19 year old with bipolar disorder, social anxiety disorder, generalized anxiety disorder and dyspraxia. She’s a WOC who is also a transracial adoptee and pansexual/queer, depending on how she’s feeling that day. She enjoys knitting, video games and is a music geek.

How I came to path of getting a service dog* was a long, strange journey. My experiences are my own and by no means represent the entire service dog community. My country and state laws are most likely different from some readers as well, so I’m only writing from my own perspective.

I’ve been bipolar since I was child along with my other disabilities, so I don’t remember being normal. I’ve always just been me. I am my normal. Although my other illnesses were diagnosed latter, looking back i can see how they impacted my child and now, how they affect my adulthood.

In junior year of high school, I was reading up on dog training, because I thought that might be something I’d want to do as a job. I’ve always like dogs, they don’t judge me and my Samoyed Kesha loved me unconditionally. One day I came across the topic of service dogs and was so amazed by them. I put the thought of them away in my mind until I read across the concept of psychiatric servicee dogs.

At first, I was skeptical. How could I dog help someone like me? I thought that service dogs were only for people with “real” disabilities. My mental illness wasn’t disabling, was it? Just because I couldn’t go out in public alone or deal with crowds didn’t mean I was disabled. Loud noises and lighting hurting and causing melt down was just part of who I was. It took me some time to to come around to the idea.

When I realized all the way in which I dog could help me, I read and read. Anything with even a small mention of service dogs was worth reading to me. I came up with a list of tasks based on my symtoms and things a dog could do the help them. I was ready.

Sadly, service dogs, especially types that are very new are expense. Psychiatric service dog are pretty new on the scene and the one program I had found in my state that trained them had closed. I was crushed. I tried to brush it off, because I didn’t have the money for a dog anyway. That was about to change.

I headed off to my first year of college and did badly after being cut off from my medication for a time, along with personal problems. I was called back home several times, because my parents had decided to sue my former high school for discriminating against me. They choose to settle.

My money problems were solved! Now where was I going to get a dog? I know it was best to buy from a breeder with service dog lines because even though some shelter and rescue dogs work out as service dogs, the chances of them washing out is much higher. I knew I’d have a hard time with my dog washing out, so I wanted to lower that chance as much as possible.

I started hanging out on Dogster.com and met a psychiatric service dog handler named Veronica who shared a disability with me. She was using a pit bull Weimriner mix as a service dog, but the dog was getting older and had to retire. She had picked a Standard Poodle to train as her next service dog and although I wasn’t partial to the breed, I went and checked out the breeder.

He was so nice. His wife friend were both service dog users, so he knew so much. We talked about what I was looking for in a dog and what tasks I wanted done. He said he thought I’d be a great home for one of his puppies and I put down a deposit and waited.

Sadly, with my puppy being in California and me and Maine, it was hard to coordinate a proper short flight for the puppy. He was already going to keep Figaro for a few extra weeks to get him used to the crate, but I ended up not meeting my dear boy until he was 4 months old. We ended up driving all the way to Boston to get him, but it was the best, safest flight for him, so I didn’t mind.

I had to finish up at school before we could commence training, so he went home with my parents, three hours away. When I finally came home, he took right to me. He’s was lovely boy, very intent on pleasing me. Teaching him was pretty easy, even for a novice like me.

I found another service dog school, one that helped owners train their own dogs. We signed right up. They have been an invaluable resource and i couldn’t to all I have without them.

Figaro and I were a team, the very best of friends. I spent that summer just bonding with him and the best thing happened. He started to alert to my panic attacks before they went full blown. I had been hoping he would, but hadn’t expected it. When I realized what was going on, I was ecstatic. He had his other tasks to make him a service dog, but this, the alerting was so helpful. My bipolar disorder is extremely rapid cycling and he started to alert me to that, as well as hair plucking. I hadn’t fully realized what a smart dog he was.

This partnership was the best thing I have ever done for me. I still take my pills and still go to see my doctors, but having a service dog in training is a big help. Although Figaro meets the legal definition of service dog, I only call him such in legal situations because his public access behavior isn’t where I would like it right now. Thus, he isn’t with me in public unless it’s a training exercise. That’s okay though, because I stay home for the most part. It’s nice and I have to admit having something need me is pretty great too. It’s good to not fail at something, to have purpose.

Next time, I’ll be writing about the public and service dog community.

* I’m using the United States of America’s of service dog and the state of Maine’s definition of service dog in this post. The USA’s definition is as follows:

“Service animal means any guide dog, signal dog, or other animal individually trained to do work or perform tasks for the benefit of an individual with a disability, including, but not limited to, guiding individuals with impaired vision, alerting individuals with impaired hearing to intruders or sounds, providing minimal protection or rescue work, pulling a wheelchair, or fetching dropped items.”

The state of Maine’s definition is

“Service animal” means:
A. Any animal that has been determined necessary to mitigate the effects of a physical or mental disability by a physician, psychologist, physician’s assistant, nurse practitioner or licensed social worker; or
B. Any animal individually trained to do work or perform tasks for the benefit of an individual with a physical or mental disability, including, but not limited to, guiding individuals with impaired vision, alerting individuals who are deaf or hard of hearing to intruders or sounds, providing reasonable protection or rescue work, pulling a wheelchair or fetching dropped items.

Recommended Reading for October 20, 2009

In the blogs:

Sins Invalid IV: Possibly NSFW:

Sins Invalid is a force to be reckoned with. Make no mistake about that. I’ve been to 3 of the 4 shows, some of them more than once. I can tell you: Sins is a force to be reckoned with.

Sins describes itself as a “performance project on disability and sexuality that incubates and celebrates artists with disabilities, centralizing artists of color and queer and gender-variant artists as communities who have been historically marginalized from social discourse.”…

To get at these questions, I want to impose a perhaps artificial distinction between disabled sexuality and crip sexuality. I may come back to that in a separate post, but, for the moment, it is just a division that allows me to get at some important ideas; it is not a philosophical position to which I am committed.

Learning to be a mother not possible for the learning disabled:

The Mirror tells us of a mother who is facing having her baby taken away from her after it is born. Yes, that’s right, the mother isn’t even a proper mother yet and already social workers have decided that she is unable to properly care for the child. Why? Because she has learning disabilities. You know what? So do I. Learning disabilities do not mean someone is unable to care for a child. They mean that someone needs assistance with learning, not that they’re unable to learn.

The fact that social workers have pre-determined that a mother-to-be isn’t qualified to be a mother because of her disability smacks of the legacy of eugenics. Eugenics was the late 19th, early 20th Century movement that was based on an interpretation of Darwinism to “improve the races”. One of the things that resulted from this movement was the forced sterilisation of people, mostly women, who were regarded as “imbeciles” on the theory that imbeciles beget imbeciles. Interestingly, imbeciles were only found among those that society had deemed as unworthy, such as working-class prostitutes or children in orphanages.

In the news:

Wheelchair-bound man left halfway up Mount Snowdon [Lauredhel wrote about this story yesterday]:

A WHEELCHAIR-bound man suffered mild exposure after being abandoned halfway up a mountain by a group of charity climbers who gave up carrying him.

The 31-year-old man was left sitting on the steep and rocky Llanberis Path by the rest of his party of six, who were martial artists on a charity climb of Mount Snowdon in North Wales, the TimesOnline reports.

“The poor bloke was sitting there in his wheelchair for quite a while,” climber Dave Morrell, who witnessed the incident, told the TimesOnline.

Disabled Woman Stranded in Flat for Six Weeks:

The 77-year-old is crippled by osteoarthritis and cannot walk more than a few yards. She relies on a mobility scooter to get around.

But she was left stranded in her flat while a lift was replaced at the complex.

She couldn’t even get her scooter out of the building to visit local shops and had to rely on her daughter, Celia Roussel, to carry out day-to-day errands.

Worse was to follow because, after the lift was repaired, she was told that the scooter could not be used in it because of a problem with “weight distribution”.

Disorder Inspires Teachable Moments:

” ‘Tricho’ is Greek for hair, and ’tillo’ means pulling,” she says, referring to information and pictures on poster boards that her mother, Liz Murphy, holds and flips when cued.

Hats are the linchpin for Brogan’s outfits because they help her deal with her trichotillomania, a compulsive hair-pulling and skin-picking disorder. Brogan doesn’t struggle with skin picking, but she started absentmindedly pulling out her hair, one strand at a time, primarily in the crown and on the left side of her head, when she was in middle school.

Now she travels to middle schools to educate students about the neurobiological-behavioral disorder. She visits cosmetology schools, too, because getting a haircut can be sensitive for someone with “trich,” as the disorder is often called.

Oh hey, Google started a blog that links up all their accessible web-design stuff. I get a bit frowny at “it’s not just for PWD”, as though a large percentage of the population (35% of people over 35 in my province) isn’t a good enough reason to do something, but I suspect that’s just trying to sell it to people who are resistant to that idea.

Recommended Reading for October 19, 2009

In the Blogs:

Them and Us

A lot of people have caught on that they need to provide access for the disabled when they build something, but apparently access is only needed for Them.

You know, Them. There’s Them, and then there’s Us. They might be disabled, but We aren’t, and never will be.

Accessible restroom? Oh, no, because the restroom is only for employees, and none of our employees is disabled (or ever will be).

Elevator to the second floor? Oh, no, because the public doesn’t need to go to the second floor, and nobody who works there is disabled (or ever will be).

Access to the stage? Oh, no. There’s access for the audience (Them), but the actors and singers and stagehands (Us) aren’t disabled (and never will be).

[This really resonates with me, especially after Campaign School this weekend. Although they did address issues of making accessible campaign literature and ensuring your office was accessible, everything was spoken of as though no one with a disability would be part of a campaign, either as a volunteer, employee, or candidate. Them, and Us.]

Marginalized folks shouldn’t always have to be “the bigger persons”

But, you know, it’s not just people of color who are constantly expected to show extraordinary compassion when faced with bias. It is women, gays, lesbians and the transgendered. It is the disabled, the obese, immigrants and the poor. Ask any marginalized person and it is a safe bet that they have been told “have a sense a humor,” “don’t be so PC,” “that’s just how so-and-so was raised,” “here’s a great teaching moment, “you have to understand some people won’t be comfortable with x, y, z,” “he didn’t really mean it.”

Via Unusual Music: College Mental Health: A Different Diagnosis:

Students interviewed for this story reported that mental health seems like a low priority on campus. Alexa at New York’s Westchester Community College notes, “Mental health seems to be something that people really keep to themselves.” She describes her community college’s scarce resources as consisting of one social worker and a two-by-three inch bulletin board in the upstairs of the student center. “I only realized it was there while waiting for three hours in the hallway to register for classes.”

Access to services — such as individual and group therapy, consultation and referrals, support groups, medication monitoring and crisis hotlines — varies from school to school. However, most college campuses would benefit from improvement and expansion of their mental health facilities and services. Students are generally granted a few free counseling sessions, but due to increasing financial restrictions, the number of sessions can be scant — as few as five visits per student.

At two of my previous universities, you were limited to less than 10 sessions over a year. I believe my current one has unlimited sessions, but you must call the office between 9:00 a.m. and 9:15 a.m. for a same-day appointment. There is no booking in advance.

In Our Own Words: Fighting for our DLA [UK] [Older post] [DLA = Disability Living Allowance]

DLA was established, after years of research, because the costs of living as a disabled person in a barrier-filled world organized by and for non-disabled people were considered to be so high. The estimated costs of disability that came out of this research were far, far higher than what is actually now given to DLA claimants. It was also emphasised that DLA should not be means-tested, because the costs of disability are high whether a person is extremely poor or generally has enough to live on.

Also, FrolicNaked did three posts about NPR’s American health care discussion. Post 1, Post 2, Post 3.

My new favourite website: Wave: Web Accessibility Evaluation Tool. How does your website measure up?

Recommended Reading for October 13, 2009

In the blogs:

The Ashley Treatment Yet Again:

I read as much as I can and try to keep abreast of any new developments. I do this because I remain deeply troubled by the larger implications of the Ashley Treatment, now referred to as growth attenuation by doctors. The change from the simple and easy to google Ashley Treatment to growth attenuation is not a matter of semantics. To me, this is a way for those that have relentlessly pushed this so-called treatment as a viable option to avoid publicity. Frankly, given the hysterical reaction by the mainstream media to the Ashley Treatment I cannot blame them too much. Nothing good came from the media’s pack mentality when the story broke in 2007. The doctors that advocated for the Ashley Treatment came across as arrogant and stuck their proverbial foot in their mouths multiple times. Disability activists were unable to articulate why the Ashley Treatment was so dangerous and were quickly type cast as stereotypically angry. Utterly lost in the furor was any nuanced discussion. Sadly, not much has changed and I remain distressed because I have just finished reading an article scheduled to appear in the American Journal of Bioethics entitled “Ashley Revisited: A Response to Critics” by Douglas Diekema and Norman Fost.

What Kind of Troll am I?:

If you are a reader of blogs about autism, you have seen your share of comments denouncing the views of self advocates around the web. Sometimes they are personal attacks on autistic people. Many rehash the same tired “Not Really Autistic” meme or promote urban myths about the causes of autism. Most feed pervasive stereotypes of one sort or another. Still others are so vile I won’t describe them even obliquely.

Most readers of this blog tend to be civil and capable of using reason to make their points. However, if you are someone who enjoys being abusive toward autistic self advocates and those who support their goals, you just might be wondering…What kind of troll am I? Here is a survey so scientifically valid, it is sure to be linked from AoA ASAP.

Pride & Prejudice:

Then, when I was 27, I was diagnosed with a mental illness. The doctor said to me (in effect), “You have a deeply flawed mind. It’s screwed up and you’ll have to take this medicine that slows your thinking and makes you forget everything. Learn to write it down.” Talk about a slap in the face. I ripped my clothes and dumped ashes on my head and whined long and loud to God about it. “Why me? Oh Woe Poor Poor Pitiful Me!” Then He said to me (in effect) “Deal with it. It’s what you are.” So I realized that I had no right to be proud of my mind anymore. It was kind of a release, because pride is a heavy burden, even when you’re used to bearing it. All of a sudden, I *wasn’t* better than everyone else, and it became easier to be patient and kind. Which turned into something kind of nice.

Freaks, Hercules and the Hydra [long]

Much has been written about the ambiguous nature of disabled people’s exploitation and/or free-willed participation in circuses in the 19th and early 20th centuries, and there are intersections with race and colonialism, among other things (some of which i touched on in this old post), and the film “Freaks” reflects that ambiguity, both from “within-story” and “external” perspectives – most of its cast were “real” circus performers, some of whom had already had long and celebrated careers before starring in it, and many scenes show the “freaks” performing parts of their acts, both in-context in the story and, more problematically, in other scenes that could be regarded as gratuitous (for example, the “Armless Wonder” drinking wine with her feet, or the completely limbless Prince Randian lighting a cigarette using only his tongue). Opinion has been divided over whether the film itself was an act of exploitation of its disabled performers – who were, as reported here, viciously excluded and discriminated against at the MGM studios – as well as whether its climatic scene represents a reversion to negative tropes of disabled people as monstrous and villainous, or a subversion of that trope (however IMO there is considerably more going on there – see below).

Breathtaking to behold: talking back to dismissal:

One of my biggest interests is the study of how oppression plays out, and how it is resisted, among communities that most people would consider minorities. (Note: Minority in amount of power, not in amount of numbers. So yes, women count.) Not some sort of study of victimhood the way some people would paint it, but rather how people resist becoming victims.

It is breathtaking to behold communities where enough people have worked out the way things work, that when they are hit with the usual forms of sexism, racism, ableism, heterosexism, etc., they are ready for it. They have answers to the usual bothersome questions and comments designed to disempower them. Even if the people attacking them don’t understand those answers, they at least are told a lot of the same things by a lot of people.

In the news:
Go, read this! It thrills me to no end.

CDC and disabled patients: ‘We’ll work on this together’ [US]

For many women, the inability to stay still prevents them from seeking regular breast cancer screening.

But a health education program is gearing up to encourage woman with physical disabilities to seek medical attention and get regular screenings.

“Women with disabilities are getting screened at a less regular rate because there are so many barriers with going to the doctor,” Egensteiner said.

The medical equipment used to perform mammograms also can prove a barrier for women with physical limitations.

Can you collect employee medical info to combat H1N1? [US] [Note: ADA = Americans with Disabilities Act]

Employer groups have been asking the Centers for Disease Control for guidance on whether privacy rules prevent HR from surveying employees about medical info designed to control the spread of swine flu. The CDC has responded, including an approved form for requesting certain types of info.

The CDC has issued a document – “ADA-Compliant Employer Preparedness For the H1N1 Flu Virus.”