Category Archives: representations

Portrayals we love: Melody in Girls With Slingshots

Back in November I did a Guest Post for Bitch about Ways of doing characters with disabilities ‘right’. I think it’s been since November since I’ve had time to consume any media with characters with disabilities (I’m permanently on thesis time now), but I want to go back and talk about the comic I mentioned then, Girls With Slingshots.

As I said then:

I’m not actually a fan of Girls with Slingshots and thus haven’t read the whole run, but I did read the recent wedding-related storyline because it featured two new ‘bit’ characters: Soo Lin, who is blind, and Melody, who is deaf. (Sadly, the strips don’t seem to have a transcript that I can find. I’ve written up a transcript for the relevant strips.) [Soo Lin’s first appearance] [Melody’s first appearance]

What I like about the jokes in this strip are that they’re all over the place. Some are about how clueless people can be about blindness. Some are disability-related humour as told by people with disabilities. I think my favourite is this joke about getting a bad ‘terp. There are others, of course.

The jokes are all based around disability, sure. But the jokes aren’t “ha ha ha, look at the crippled person having difficulties getting around!” And at no point is the humour about a very special lesson for anyone else. Soo Lin and Melody are part of the joke, they aren’t the butt of it.

One thing has changed: Since then I’ve definitely become a fan of Girls With Slingshots, and actually look forward to Mondays because I know I’ll get a new strip. (The weekends are so long.)

Since November, Melody has also become a recurring character, and I totally love how Danielle Corsetto uses her in the strip. Basically, Melody still isn’t a very special lesson in Deafness, she’s a fun and funny character who’s developing a romance with another recurring character, and is gradually being accepted by the others as just another member of the group.

One of the things I am enjoying about the plot line is the growing romance between Melody and Chris. Chris has had a crush on Melody since the wedding arc, and has decided to learn Sign language. While other writers might go with “And then Chris instantly learned Sign so there could be no communication problems, the end”, Corsetto has shown Chris’ learning curve, in all its glory.

Transcript:
Darren and Chris are talking at the local bar. Both are clean-shaven white dudes, probably in their mid-20s.

Panel 1:
Darren: So is that why you’re here? Hoping to catch a glimpse of your beloved?

Chris: I guess. I’ve never seen her here except for that one time, so I don’t know why I’m trying.

Panel 2:
Darren: Aw, that’s romantic. And even if she did show up you could only stare at her creepily because you don’t know Sign Language.

Chris: I’ve been learning!

Panel 3:
Darren: Really? Let’s see this magic.

Chris: [Signing awkwardly] umm… Hello how much does this cost?

Panel 4:
Darren: That will get you slapped.

Chris: I’m only on book one!

Other than Darren pointing out that Chris is still learning (slowly!) Sign, none of the characters in GWS question the possibility of the relationship. The constant match-maker, Jamie, merely encourages him to not keep his feelings a secret [transcript], and Melody’s sister, Maureen, is nothing but thrilled.

As I mentioned before, the humour in people’s interactions with Melody is still focused around the foibles of hearing people who are still getting used to having a Deaf friend, and the assumptions they make about it. In one scene, Chris is horrified to be told that Melody can read lips (I’m not sure if this is true) after he said something embarrassing, and in another a rather drunk Maureen starts shouting for Melody, having forgotten this might not be the best way to get her sister’s attention.

The only flaw – if one can call it that – is that this plot arc is very much about Chris and about his growing as a person in finding a woman he wants to be with. On the other hand, the whole strip is about people growing up and learning about themselves, often through finding romantic relationships, whether or short- or long-term. Characters have tended to be introduced this way (Chris was once a potential romantic partner for Hazel) and then become more fully-fleshed member of the cast.

In short: I really love Melody, and I’m so glad that Corsetto has kept her in the strip. While not everything about GWS is perfect, I’m just happy to see a popular comic strip with a recurring character with a disability. I can’t wait to see where Melody’s story goes.

Commenting note: I am, as I said, on Thesis Time right now, which basically means I’m hardly at all around. If you decide to comment, please keep commenting policies in mind, and I’ll do my best to keep up with them.

Book Review: Wicked by Gregory Maguire

[Cross-posted at Zero at the Bone.]

This post is about the book version of Wicked, not the musical (they’re quite dissimilar). There’s one minor spoiler for the musical, and I’ve tried to minimise the spoilers about the book, though this is a book review so watch out!

Wicked is concerned with the story of the Wicked Witch of the West from Baum’s The Wizard of Oz, which is a fabulous premise, I’m sure you’ll agree. Well, having seen the musical previously, I was a little apprehensive about social justice concerns in the book. And we get off to a flying start with this section of the first scene:

‘[…]What a Witch. Psychologically warped; possessed by demons. Insane. Not a pretty picture.’

‘She was castrated at birth,’ replied the Tin Woodman calmly. She was born hermaphroditic, or maybe entirely male.’

And the ‘patronizing speculations,’ as the Wicked Witch of the West, Elphaba, thinks of these remarks (she’s spying on them in this scene) don’t end there. So, naturally, I was wary from there on out. Look, there’s lots I could talk about in this review: what I found to be a half-baked treatment of race, the truly gorgeous worldbuilding, many “what the pancake” moments, some of the most rounded characters I’ve found in fiction. But I think the treatment of Elphaba’s sister, Nessarose, in terms of her being disabled, needs a whole review to itself.

Before I get to her, though, I should point out that Nessarose is not the only disabled character in Wicked. There’s one memorable paragraph in which Elphaba remembers the last time she sees her old school friend, Tibbett. She’s nursing him and it’s the first time she sees him since he became an “invalid”.

Then, a year ago, pale invalid Tibbett was carted to the Home for the Incurables. He wasn’t too far gone to recognise her even behind her veil and silences. Weak, unable to shit or piss without help, his skin falling in rags and parchment, he was better at life than she was. He selfishly required that she be an individual, and he addressed her by her name. He joked, he remembered stories, he criticized old friends for abandoning him, he noticed the differences in how she moved from day to day, how she thought. He reminded her that she did think. Under the scrutiny of his tired frame she was re-created, against her will, as an individual. Or nearly.

So he’s portrayed as one of the “Incurables,” far gone into hopelessness, an object of pity. Yet still with his inner strength – which, while it is conveyed with tenderness and some depth, is ultimately a vehicle for a Very Special Lesson for Elphaba. And we never get to hear his voice; he’s just here, briefly, portrayed through the voice and memory of his carer. Which is something we’ve all encountered before.

So, to Nessarose, who is described by her sister as having been ‘horribly disfigured from birth’ as she doesn’t have arms. Whose movement is described by the narrator in sinuous, snake-like terms, bizarrely fascinating to look at. Who is conveyed as so pretty and charming, but so helpless and unfortunate, poor dear. Who just can’t get a man because who wants to be with someone like her?

No. No no no no. No. And I thought the sickly sweetness of the character in the musical was bad. It’s like Maguire was trying to cram as many disability tropes in as possible.

But that’s not all there is to Nessarose. She’s a major political figure, which is pretty cool. However, she’s a tyrant, which is… on the one hand, a powerful disabled woman? That’s pretty cool. On the other, another disabled villain? Are you quite serious? What really ties the characterisation of Nessarose into a complex ball of flat out ableism and confusing hints of marvellousness is how her religiousness is treated. There is likewise a little more nuance here. All the way through reading, I was constantly wondering how it was going to play out: was she going to be the unfortunate disabled person of faith who gets manipulated into being a Very Special Lesson to one and all? Was she going to turn into a dangerous figure, driven by religious extremism and her rage about her unfortunate (unfortunates in this paragraph are sarcastic, by the by!) disability? I certainly wasn’t expecting either her faith or her disability to be treated respectfully. And you know something? I was right. She ends up being a theocratic tyrant who has some pretty nasty effects on her people. A thousand points if you too were betting on an evil disabled dictator.

I want to touch on some of the discrepancies between the book and the musical. Anyone who has seen the musical will remember the scene in which Nessarose arises from her chair in one of those “It’s a happy piece of popular culture and I can walk!” moments. Which is bad enough, but, hang on, she doesn’t use a wheela chair in the book! I’m just wondering why on earth the makers of the musical decided Nessarose should be changed to a four-limbed wheelchair user. It’s as though impairments are interchangeable and a wheelchair is a universally applicable marker of disability. I think it would have been great if they’d decided to be true to the book and employ actors who don’t have arms for the musical. I guess we can dream!

In conclusion: skip the book unless you are really into quality worldbuilding and some pretty beautiful characterisations.

Interview: Ingrid Voorendt, Dance Theatre Director

Ingrid Voorendt is a choreographer and director as well as the former Artistic Director of Restless Dance Theatre. Restless is an integrated dance company based in Adelaide, Australia, featuring young disabled and abled dancers. Their latest show, Beauty, has just finished its run at the Adelaide Festival Centre. You can visit the Restless Dance website for more.

I spoke to Ingrid about her thoughts on disability and dance, creativity and the nature of beauty.

Please tell our readers about what you do and about Beauty. Can you tell us about your creative process in dreaming up and putting the show together, working with the dancers and those behind the scenes?

Ingrid: It’s a collaborative process, so I come up with questions and tasks to get the dancers creating movement material. I don’t choreograph ‘on’ them, we work together to devise the movement that’s in the show. In Beauty some of the movement came from interpreting the shapes, postures and gestures we found in images of women in classical visual art. The dancers responded to the images, creating movement material. We also developed material through improvisation. My job is to initiate the process and then edit, shape and compose the developing material to create a show, and to work in collaboration with the set and costume designer, sound designer and lighting designer through dialogue and decision making.

Why was it important for you to explore the notion of beauty? What do you think it is, and how to explore it in a world in which disabled people aren’t often thought of as beautiful?

Ingrid: I was interested in exploring the notion of beauty for a range of reasons, one being simply that I’d rebelled against ‘the beautiful’ in a couple of previous Restless shows I’d directed, in terms of content and aesthetic. Beauty was inspired by some of the dancers themselves, in particular Dana Nance, who is a stunning young woman with physical and intellectual impairments. I was interested in the oscillation audience may perceive or experience between Dana’s beauty and her impairment. With Beauty, I wanted to make a work in which the disabled performers would be viewed as beautiful first and foremost. My favourite moment in the show was when Dana stepped into a projection of the Venus de Milo (a classic image of beauty), in which she fits perfectly.

I think beauty is much more than surface, as I believe we all do, but we live in a culture increasingly driven by the visual, by a world of images. It’s true that in our society disabled people aren’t often thought of as beautiful, and I hope Beauty questions this in a subtle way. Beauty is also linked to sexuality, which is also often denied in disabled people.

How do representations of women’s bodies tie in with disability in Beauty?

Ingrid: I found it interesting to discover during our research that (unsurprisingly) many of the poses found in images of women in classical visual art are echoed in contemporary fashion photography and advertising. So in a subtle way in the show we were playing with these images which reference both the past and the present, but disabled women were the ‘bodies’ being looked at, and on their own terms. The opening of the show was a solo by Jianna Georgiou, a gorgeous young woman with Down Syndrome, who is a beautiful, quite voluptuous dancer. I loved watching this solo, because the movement within it is so evocative of classic images of ‘beautiful’ women – and Jianna is very beautiful, and is also a proud disabled woman. I liked the fact that Jianna was representing herself, yet referencing the bodies of others. I hoped that the audience would question their perceptions around who is/whose bodies are beautiful.

Now that the run is over, do you have any thoughts you’d care to share looking back on the experience?

Ingrid: It’s always such a fast and intense process making a show, and there’s so much I’d like to change and develop further. I think Beauty could have gone a lot further and deeper than it did. Hopefully there’ll be a chance to revisit it in the future.

Film Review: HBO’s “Kevorkian” (2010)

Director Matthew Galkin’s documentary Kevorkian (aired on HBO on June 28th; also available on YouTube; ETA: as codeman38 points out below, the YouTube version is, unfortunately, not closed-captioned) is one of those documentaries that I felt nervous about watching, mostly because I was extremely skeptical that it would be anything other than a massive apologia for the man colloquially known as “Dr. Death” in the U.S. news media and among much of the North American public. I was also concerned that my own complicated views on physician-assisted suicide would impact my feelings on whether this documentary was worth the time and emotional energy spent watching it. Like many documentaries, it is a difficult film to watch. It is not uplifting by any means. Parts of it are brutal. Parts of it are frightening. That said, however, I am ultimately glad that I watched this film — not because it “humanizes” Jack Kevorkian or acts as an apologia, but because it deftly explores issues of ethics, law, the power of the media, and legacy.

The entire film is framed by Kevorkian’s ill-fated 2008 bid for a congressional seat representing the state of Michigan —  his platform, as the film shows it, leans heavily on the Ninth Amendment — but his congressional hopes are not the most interesting or thought-provoking part of the film. Almost paradoxically, the most interesting part of this documentary is the fact that Kevorkian does a pretty excellent job of not coming across as particularly sympathetic, something that a viewer might not glean from the film’s trailer.

Here, Kevorkian comes off as one majorly self-aggrandizing guy, and it seems like the director does not have to work very hard to make viewers see that Kevorkian can be difficult to deal with. He often seems so enamored of his own ideas, and his own legacy, that he focuses on these things to the detriment of his friends and allies — and, ultimately, his cause. This becomes most clear in one sequence late in the film, where a longtime supporter of Kevorkian’s publicly disagrees with him at a small town hall-style meeting; Kevorkian responds not by answering the man’s questions regarding the Ninth Amendment, civilly discussing his differences of opinion or why he feels the way that he does, but by yelling at him and then forcefully spitting, “I wish you weren’t here [at this meeting]!” Kevorkian’s behavior during the Thomas Youk case is also ethically questionable, as he videotaped Youk’s death in part with the aim of bringing more publicity and media attention to himself and his cause, even though the videotape would most likely put him (Kevorkian) in prison for murder; as one journalist phrases it, Kevorkian wanted to start a “national debate on [physician-assisted suicide]” by appearing on 60 Minutes with the full tape of Youk’s death. The 60 Minutes footage, both of the Youk tape and Kevorkian’s interview with correspondent Mike Wallace, shown in the film is nothing short of chilling; when Kevorkian intones, “Either they go, or I do,” one may pause to consider that a potential “win” of this particular fight would be built on the bodies of those he has “assisted.”

Unfortunately, no one who opposes Kevorkian’s views on assisted suicide — or his political platform, for that matter (with the exception of the former supporter mentioned above) — gets any screen time whatsoever, and this ends up making the film as a whole seem extremely one-sided. As a viewer, I would have been interested in seeing people who oppose Kevorkian’s method and message, particularly since Kevorkian’s former lawyer simplifies the opposition to him, and physician-assisted suicide in general, by casting any opposition as right-wing religious reactionism versus “enlightenment,” thereby erasing the many disability activists who have criticized Kevorkian and his methods. And while Kevorkian certainly does an admirable job of not coming across as anything other than a guy who overestimates his own importance, or gives any consideration to the reasons why some might oppose his methods or message, the film’s lack of any substantial exploration of opposing view(s) was disappointing.

Despite its flaws, Kevorkian is an interesting, thought-provoking and disturbing documentary. As someone who has complex personal feelings about physician-assisted suicide and its ethics, I am of the opinion that this documentary provides a riveting look at the life of a man whose actions have, for better or worse, managed to galvanize the discussion of physician-assisted suicide, and related issues surrounding medical ethics, the media’s role in medical issues, life, death, and quality of life in the United States.

Commenting Note: This is NOT a thread in which to debate the “rightness” or “wrongness” of physician-assisted suicide in general. Please keep your comments to either the issues discussed here, those brought up by the Kevorkian case/media coverage/related topics, or those illuminated in the film. The entire film is available in 9 parts on YouTube [trigger warning for in-depth discussion of PAS, and accessibility warning for lack of closed-captioning].

Recommended Reading for July 6, 2010

jadelennox (DW): How to fight ableism: some easy steps

So I thought it might be valuable to gather together some ways in which able-bodied people can do something about ableism in the world. Then, next time a person is feeling frustrated about ableism, and is thinking about doing some signal boosting of, say, some crappy thing the writers did on the latest episode of Glee, maybe that individual would have the option of committing to spending the same amount of time doing some more concrete fighting of ableism. Not that I’m critiquing the kind of signal boosting that a lot of us do on the blogosphere! But I’m assuming some people would find utility in hearing about other things they could do that might be useful.

Venus Speaks: Between the Lines

Today I realized something: How my disabilities shape the words I do, and more often don’t, say.

For instance: Whenever anyone uses the word “crippled”, I spot it from a mile away. Context doesn’t matter – it could be in anything – a novel, a newspaper article, a headline. “Recession cripples the American economy”, or “The onslaught cripples the meager defenses” or simply “crippling blow”.

Lauren McGuire at Sociological Images: On Disability and the Public Service Announcement [accessibility warning: embedded content lacks transcripts]

Disability-related PSAs cover a wide range of topics, but generally there are three main categories that the message falls into: how people with disabilities are viewed/treated by society, their value in the job market and society, and what their lives are like. Although these are pretty straightforward messages, there is a great deal of variety in the ways in which these basic messages are presented.

Michael Le at Racialicious: An Open Letter to Racebending.com Detractors

It’s easy to draw comparisons between the Airbender casting and an English actor playing an Irish one, or a Spanish actor playing an Italian actor. But it’s not really the same, and the reason is that Hollywood and media don’t consider whether an actor is Irish or Spanish or English. They think of that actor as “white.” The same is not true of actors who are Asian or Latino, who have to fight over the few roles specifically written for those ethnicities. And a lot of times, even when a role is steeped in Asian culture, even when a role is based on real-life individuals of Asian descent, those roles still go to white actors.

Garland Grey at Tiger Beatdown: CRAWLING OUT OF BED: Internalized Ableism and Privilege

In the two years since I have learned things about my own body. I have learned that once my knees start wobbling, GAME OVER. There is no powering through. There is no mystical internal light of determination that I can draw on – if I keep going my body will fail me. This has been a humiliating lesson to learn. But I can still walk. I can still exercise within limits and these limits expand the more I push them. I have also learned how much privilege I carry. I don’t have chronic insomnia like other members of my family. I’ve never lost a job because of being hospitalized, like my friends with Fibromyalgia. If I’m spending time with someone, and I don’t want to have to go into the whole story I can take an anti-inflammatory and ignore the pain, or blame it on fatigue.

Damn Y’all White Wolf

My [biggest] fandom is White Wolf’s Exalted. I’ve complained about it before and I’ll complain about it again.

I build characters because it’s fun and I often spend a lot of time working at it trying to make a person rather than a collection of attributes. Right now I’m working on a character who I actually have an expectation of playing and as ever I’m borrowing much from my life and some from various other places. This person is a rabbit (specifically this rabbit) shapeshifter with a very big hammer. Ou has told me ou doesn’t speak and I try to listen to my characters when they tell me things.

Also disabled folk can damn well be heroes. They don’t have to ‘overcome’ their conditions neither. I will try to not fuck this up too badly. Transient dysphasia and aphasia are conditions I have personal experience with but not full-time.

Thing is: Because I’m making a new character I’m taking an enormous hit on experience and power — the character I’ve been playing has more than twice as many experience points as the GM is giving me for my rabbit person. Ouch. (But I’m getting to tell a new story.) So I may do something I’m not entirely comfortable with: Use the Flaw system built into the game.

See, you can get points to buy Cool Shit by taking Flaws. Some of them are okay, like being wanted by authorities or being widely known as a demon or whatever. Some of them are more problematic, like missing body parts, mental illnesses, communication and sensory impairments.

Here’s the one for not speaking:

Mute
Cost: 1 pt. or 4 pts.
Your character is unable to speak normally. For one bonus point, the character is simply unable to speak above a whisper, while complete dumbness[1. Hi there, dumb means does not speak! I have not missed you.] grants four bonus points. A character with the one-point version automatically fails all Performance or Presence checks that require public speaking but faces no penalty on social attacks as long as his target can hear him, which requires the target’s player to succeed on a (Perception + Awareness) roll at difficulty 2.

A character with the four-point version of the Flaw automatically fails all Performance or Presence checks based on verbal communication and suffers a -5 penalty on all social attack rolls made for her unless the attack expressly has no verbal component. While there is no universal sign language in the Age of Sorrows, the character and her allies can communicate through an informal sign language if each of them commits one Linguistics slot to it.

Just kind of as an aside they tell us there are no widely-known gestural or tactile languages. None. There aren’t regional languages even. Anyone wanting to use one has to make up their own and teach it to whomever they want to communicate with. Deaf people wanting to build a community are going to have a tricky time of it in canon Exalted.

Sometimes I hate my game. I could use those four bonus points but that’s some horrible shit. But not using this mechanic isn’t going to make it disappear from the game either (there’s another player whose character made use of it — as a hot blind assassin chick). The casual disablism is not exactly unusual for gaming (and this isn’t even the worst example of disablism ((or casual bigotry)) I could pull from Exalted) where currently non-disabled developers assume a currently non-disabled audience and write accordingly. Because heroes are CND or super-crip amirite?

So yeah. I’ll probably do it. I’ll just feel icky about it. :(

Cross-posted: Aperiodically Legible.

AWP: “The Disabled”

  • Ableist Word Profile is an ongoing FWD/Forward series in which we explore ableism and the way it manifests in language usage.
  • Here’s what this series is about: Examining word origins, the way in which ableism is unconsciously reinforced, the power that language has.
  • Here’s what this series is not about: Telling people which words they can use to define their own experiences, rejecting reclamatory word usage, telling people which words they can and cannot use.
  • You don’t necessarily have to agree that a particular profiled word or phrase is ableist; we ask you to think about the way in which the language that we use is influenced, both historically and currently, by ableist thought.
  • Please note that this post contains ableist language used for the purpose of discussion and criticism; you can get an idea from the title of the kind of ableist language which is going to be included in the discussion, and if that type of language is upsetting or triggering for you, you may want to skip this post.

A month and a half ago I wrote a fairly angry email to Ms Magazine blog [which you can read here – yes, I sent it to them, no, I never got a response]. While part of my ire was raised by the subject matter and the treatment of people with disabilities as unthinking pawns of the “religious right”, a significant portion was because of the casual use of “the disabled”.

The short form of why this is a problem: People with disabilities/the disabled are not a collective group that all agree on anything. Asking what “the disabled” want or “the disabled” are doing is exactly like asking what “women” want and what “women” are doing. Women are individuals. Some of them are women with disabilities! We don’t all want the same things, but grouping everyone under the same umbrella, as though we are a Collective rather than Individuals With Opinions and Needs is… well, it’s pretty damned ableist, as well as being arrogant, ignorant, and irritating.

Long Version:

We’re still living in a society that makes a lot of casual assumptions about people with disabilities and their experiences. When people start talking about “the disabled” they are generally about to launch into some sort of stereotype – “the disabled are the pawns of the religious right”, for example. This boils down a lot of complicated people – people who have a wide variety of needs, wants, opinions, thoughts, and experiences – into one homogeneous group.

This contributes to the de-humanization of disabled people. “The disabled” aren’t people, they’re a big collective noun who can’t be reasoned with, can’t be talked to, can’t be considered – they’re just to be placated, and dealt with, and put out of our minds as quickly as possible in case they sue us.

Saying “people with disabilities” or “disabled people” may seem like a pretty minor thing. It is, so it shouldn’t be that difficult. The reason for it, though, is that it can be that small reminder: that people with disabilities are people. That disabled people have opinions and thoughts and experiences and needs that are not universal to all people with disabilities. That we are, in fact, people, and it would be nice if we could be treated as such.

Language doesn’t change everything. It isn’t an end in and of itself. But it can be the first step in combating the sort of ableism that makes it okay for many people – including editors and writers for major and minor news sources – to dismiss us as pawns without thought.

See Also: Disability Terminology: A Starter Kit for Nondisabled People and the Media by meloukhia at Feministe.

Recommended Reading for June 15, 2010

dhobikikutti (DW): This is also needed: A Space In Which To Be Angry

And what I have realised is that there is a sixth component to [personal profile] zvi‘s rules, and that is that complaining about and calling out what you do not like does help, slowly, painfully, get rid of it.

Every time I see friends who make locked posts about fic that Others them, that writes appropriatively and ignorantly and dismissively and condescendingly and fetishistically about their identities, I think — there needs to be a space where this can be said.

damned_colonial (DW): Hurt/comfort and the real world [warning: derailing in comments]

Writing a short ficlet in which someone who has been abused/injured/disabled/etc is “comforted” and feels better seldom bears much relation to the reality of abuse/injury/disability/etc. Which, OK, we write a lot of unrealistic things. The problem with this one is that the idea of hurts being easily cured/comforted is one that also exists in the real world and harms real people. Almost anyone with a real-world, serious “hurt” has had people dismiss and belittle their experience on the assumption that they “should be over it by now” or that “if you just did X” the problem would go away. People are often treated badly or denied care on these grounds.

Pauline W. Chen, M.D. (New York Times): Why Patients Aren’t Getting the Shingles Vaccine

“Shingles vaccination has become a disparity issue,” Dr. Hurley added. “It’s great that this vaccine was developed and could potentially prevent a very severe disease. But we have to have a reimbursement process that coincides with these interventions. Just making these vaccines doesn’t mean that they will have a public health impact.”

Trine Tsouderos (Chicago Tribune/L.A. Times): The push and pull over a chronic fatigue syndrome study

Nine months later, the joyous mood has soured. Five research teams trying to confirm the finding have reported in journals or at conferences that they could not find the retrovirus, known as XMRV, in patients diagnosed with chronic fatigue syndrome, casting grave doubts on the connection.

Kjerstin Johnson at Bitch Magazine’s Sm{art} blog: Riva Lehrer’s body of art

To Lehrer, who has spina bifida, “Disability and art are natural partners. In order to have a good life with a disability, you have to learn to re-invent your world almost hour by hour. You discover ways to re-imagine everything, and how not to take the average answers to everyday questions…”

Announcing: Helen Keller Mythbusting Blogswarm!

A banner that has an image of Helen Keller in the center.  On on side it reads: Political Activist.  Radical Thinker.  Suffragist.  Pacifist.  Journalist.  Socialist.  Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010
Image Description: A banner that has an image of Helen Keller in the center. On on side it reads: Political Activist. Radical Thinker. Suffragist. Pacifist. Journalist. Socialist. Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010″

I learned that Second Life and Virtual Helping Hands are hosting a Helen Keller Day on Second Life on June 19th.

Helen Keller Day is a day set aside for information acquisition, education, exploration of employment opportunities, social engagement, and enjoyment of arts and entertainment. There will be vendors, employers, presentations, and pure, unbridled fun.

I think this is awesome. If I played Second Life, I would be all over this.

It did get me thinking a lot about Helen Keller, and the way people talk about her and use her legacy – something I’ve discussed on FWD before, in Feminist Icons and Subverting the Narrative.

A few years ago someone on a feminist site posted a list of the top 100 historic women in the US, and the list included Helen Keller. A commenter mentioned being surprised to find that out, because… well, what did Helen Keller actually do?

The answer to that question is what this Blogswam is all about.

What’s a blogswarm?

On the appointed day (or there abouts) – in this case, June 19 – people post about Helen Keller. Ideally, they’ll link back to a master post (which I will be hosting here on FWD) and leave a link indicating their participation on the master post. Then, people will be able to see lots of posts about Helen Keller in a variety of places from a variety of points of view.

Okay, but I don’t know much about Helen Keller. Are there some resources so I can learn?

Yes!

This is just a very short list. Your local library may have many books. I never resist the chance to push Lies My Teacher Told Me by James A Loewen, which talks about Keller in the first chapter. The American Foundation for the Blind has a selected Bibliography of books by and about Keller, but I have not read them so I have no personal opinion on them.

But there are other women with disabilities connected to Helen Keller’s life, and I don’t think they get enough attention either. Can I write about them as well as or instead of Keller and still participate?

Yes! In fact, I think it’s an important part of the mythbusting about Keller to talk about Anne Sullivan, who was blind for parts of her life, Polly Thomson, who was a companion and aid to both Sullivan and Keller in later years, and Laura Bridgman, who was also deaf & blind and was “famous” before Keller. And this list is pretty US-centric, and entirely white. Bust the myth that the only women with disabilities doing anything of interest in the nineteenth and twentieth centuries were white women from the US! A very short list: Frida Kahlo, Jhamak Ghimire, Ragnhild Kåta, Theresa Ducharme…

I also think that it’s relevant to talk about Keller’s legacy, and how the treatment of her story – in productions like The Miracle Worker and the oft-repeated story of “the hand in the water” – affect perceptions of people with disabilities, especially blind and d/Deaf people, today. Brownfemipower linked to this discussion of Blind Rage and the Legacy of Helen Keller on TheGimpParade, as an example.

I’m really not up to participating, but I want to be supportive. What can I do?

Spread the word! Tell a friend! Read posts! Link others to posts! Bust your own myths, so that the next time someone says something ignorant about Keller or the work she did, you can gently (or not!) correct them.

I want to participate! But I don’t know if I can on June 19th.

Then write something on another day. The reason I suggest doing it all on the same day is because blogswarms will push across the blogosphere and people will notice them all at once. But please don’t feel obligated or that you’ve “failed” if you don’t write something about Mythbusting on the day.

Also, don’t feel you have to write something new. If you’ve previously written something about this and would like it to get some more attention, feel free to link it as well.

So, now what?

Well, on June 19th I’ll post up an open post about Helen Keller Mythbusting Day here on FWD. Folks can drop their links in right away – my goal is to have it open as early on the 19th as possible. Check back throughout the day to see what posts people have written!

I hope to see lots of awesome posts on June 19th!

Disability-Centered Writing Wanted!

Redstone Science Fiction is running a contest!

Towards an Accessible Future

Redstone Science Fiction is calling for contest submissions that incorporate the values discussed in the essay The Future Imperfect by Sarah Einstein.

What does a world, or space station, or whatever look like when it has been designed to be accessible to everyone and how would people live together there?

The submissions should portray disability as a simple fact, not as something to be overcome or something to explain why a character is evil. The submissions should also incorporate the portrayal of disability in a world where universal access is a shared cultural value.

Check out all the details!

AND!

Popular Genres and Disability Representation

Romance novel or western, detective serial or horror film, the genre of a text affects how we “read” it, including our understanding of disabled characters. Genre forms may impose constraints upon the creators of texts, such as a particular setting or narrative structure, but they may equally open up new possibilities for representation. In science fiction, for example, new technologies, alien bodies, and alternative environments can challenge understandings of what constitutes disability or impairment. Michael Bérubé speculates that the genre is “as obsessed with disability as it is with space travel and alien contact.” What opportunities (and what constraints) might science fiction present, then, with regards to disability representation? More generally, how do the structures and conventions of genre forms, such as the need for heroine and hero to be united in romance, affect the representation of disability?

This special issue of JLCDS will explore the interplay of genre and disability with a focus on popular genre texts, whether in fiction, film, television, or other media. Submissions might consider representations of disability in particular texts or authors, in specific genres, or in mainstream texts that enter into dialogue with genre; alternatively, they might examine disability theory in relation to genre theory, or the role of fan communities. This list is not exhaustive, so submissions on other topics related to disability and genre are very welcome.

Get all the details!