Tag Archives: media and pop culture

Glee: “That’s why we call it dismissing legitimate concerns instead of acting”

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Glee‘s been in the news a lot lately, have you heard?

Basically, after a three week hiatus, the show came back last week, and wow, was there a lot of press about it. Not because of the show’s performance, or the show’s “diversity” award, but because of the controversy that has been suddenly generated by the show.

That’s right, suddenly, with no history of protest whatsoever, people with disabilities were complaining about the show! Just days before it aired its Very Special Disability Episode, “Wheels”! Who would have imagined!

Or, more accurately, people with disabilities have been talking about issues with the show since the first trailers hit the internet, with incisive commentary after the first episode was aired, but this only became of interest just a few days before the show wanted everyone to see how “serious” they were. As I said in an angry comment elsewhere:

“Now we’re listened to, when it will get people irritated at those uppity people with disabilities who should stop complaining and just enjoy the show.

We were here before. And I don’t appreciate our concerns being used to generate hype for the show.”

[Anna, you’re so oversensitive. First you were angry because they didn’t listen to your concerns, and now you’re angry because you don’t like when they chose to listen to your concerns? There’s no pleasing you, is there?]

This is not listening to our concerns. This is giving our concerns very short attention so you can ask cast members about the “controversy”, and so nice able-bodied people can say things like this in a spoiler-filled review of the show overall:

“Wheels” Doesn’t Just Feel Good, It Does Good: Aside from what you may or may not have read from the Associated Press regarding the usage of wheelchairs and disabled actors in this week’s episode, I think you’ll discover that “Wheels” is all about empowering people with disabilities and sends out an uplifting message to the disabled community. It should also be noted that the series now has a recurring character with Down’s Syndrome (who it is will surprise you), which I don’t think has happened on network TV in a very long time.

Thanks, Nice Able-Bodied Lady! I will take your words to heart and just ignore what those silly people with disabilities are saying! It will be better that way!

[Before I go any further: I didn’t feel “empowered” by Glee, nor did most of the women with disabilities that I know. That said, my goal here isn’t to tell you or anyone you know how to feel about the show. My objection to the above is not only the condescending tone and dismissal of everything that people who actually work in the industry are saying about representations of disability and how that affects their work, but also being told how I should feel about the show.]

I pointed out my two biggest issues with this show at my Dreamwidth [in short: three different characters fake a disability in this episode, and we find out that Tina has been faking her stutter since sixth grade in order to get out of things she didn’t want to do. As kaz points out in the comments, that’s not how that actually works], and although I intend to talk about that more later, this post is going to be about the media and general response to people with disabilities discussing the show and their reactions to it.

From Fancast: TV Controversies, Protesting the Protests:

Disabled advocates vs. ‘Glee’

The protest: Some disabled Hollywood actors protested last night’s episode of ‘Glee,’ because it focused on Artie, the wheelchair bound member of the glee club, who is played by a non-disabled actor, Kevin McHale.

Protesting the protest: That anyone would call Ryan Murphy’s series discriminatory fails the laugh-test almost immediately. Last night not only dealt with the trials that Artie must go through on a daily basis while being handicapped, but also the fallout from Kurt coming out of the closet. And did I mention that the episode featured not one, but two actresses affected with Down syndrome? We defy you to find another show airing in primetime that would deal with one of these issues, let alone all three in one episode. This is a show that prides itself on acceptance and understanding. That McHale isn’t handicapped doesn’t make it less so. What’s next: Teen actors protesting that Cory Monteith is actually 27 years old and not 17?

Unlike the earlier post, this one doesn’t even bother to link to what people with disabilities are actually saying, which makes it really easy for people to just shrug and agree with their edgy “protesting the protest”. This, of course, means they can tell you that the whole of people’s comments are that they didn’t give the role to an actor with a disability.

Most of the people I know who think the show is poorly done crip-drag talk about not only McHale’s ability-status, but also the way that his character, Artie, is treated by both the explicit text and implicit subtext of the show. To give an example, Artie’s wheelchair is basically a prop that other members of the show push around whenever they want. To give another one, he’s shown before “Wheels” as the only ‘main’ character who doesn’t even get flirted with by a character who tries to flirt all the boys into accepting her into the Glee Club. Because teen boys with disabilities are non-sexual, I guess.

But, obviously the creators of the show have taken this all into account when discussing the controversy, right, because they are very respectful of the “disabled community”.

Not according to the interview they had with PopEater:

‘Glee’ executive producer Brad Falchuk backs him up. “We brought in anyone: white, black, Asian, in a wheelchair,” he told the AP when discussing the hubbub. “It was very hard to find people who could really sing, really act, and have that charisma you need on TV.”

He too understands the concern and frustration expressed by the disabled community, he said. But McHale excels as an actor and singer and “it’s hard to say no to someone that talented,” Falchuk said.

Again, how nice it is of people to lump all criticisms together, and then give a nice happy answer about how they “understand” what people are complaining about, without actually addressing any of it. “Oh, there just weren’t any people with disabilities who could really act and sing and be on t.v.!”

According to everyone associated with Glee, they didn’t mention that Artie was going to be a full-time wheelchair user (or, as the folks in most of the articles I’ve read put it, “wheelchair bound”) when they were casting for the show.

I wonder if any of their casting calls actually encouraged actors and singers with disabilities to apply, or if they just figured they didn’t need to do that type of recruitment to get actors with disabilities – used to being overlooked for any role that isn’t explicitly about disability – out. I guess I won’t know until they tell us, and that’s not the sort of question anyone in the press seems to want to ask.

Of course, as always, the fun is in the comment sections. On Thursday, melouhkia put a post up at Bitch magazine called Glee-ful Appropriation, about the issues she had with the episode. It was also mirrored at their Facebook Account.

Very first comment can be summed up as “Stop your whining.”

It seems to me if you’re going to have an issue with a non-disabled person playing the role of a disabled person, you cannot appreciate any level of acting because all acting is a lie. Maybe that’s why it’s called acting. Just sayin. So, you should also be up in arms about the actress who is portraying the pregnant teen because she’s not pregnant in real life, and likewise, you should also feel your feathers ruffled by the cheerleading coach because she’s not a coach in real life. See where I’m a-going with this?

Yes. Where you’re going with this is ignoring the real concerns about presentation, appropriation, and the lack of job opportunities for actors with disabilities on television so that you can tell us that our feathers are ruffled. It would probably be easier if you told melouhkia to not critique pop culture on a pop-culture criticism blog.

Oh wait, someone else did that for you.

From the comments on Facebook:

I get that this is “responses to pop culture” and you can all have your moment of fit-throwing (I had one after seeing “Next to Normal” on Broadway). But so far your response hasn’t opened up any useful political space…it’s just tried to punish your political allies for not being as perfect as you are. So you know, go get your waders. You’ll need them when you start digging yourself out of this claptrap.

Which I read as “I’ll be your ally unless you start critiquing pop culture I actually like, and then you’ll be sorry, because I will stop supporting you.”

Other people may read it differently.

All of this, of course, is an awesome way of dismissing some very serious and real concerns about the way the show has chosen to portray disability. If you make the entire discussion about how those uppity people with disabilities should just shut up and stop complaining because their ideas are stupid and they should feel stupid, then of course it’s easy to dismiss them out of hand. And who needs to discuss nuances in the presentation of disability, anyway? Everyone knows that there’s no connection between how identifiable groups are portrayed on t.v. and how other people react to them, right?

In fact, I think the best way to sum up where my issue with McHale portraying Artie really comes into play is from this quote from McHale himself, from the NY Post’s interview with him after the episode aired:

PW: Which was more shocking Tina’s fake stutter or Artie’s reaction?

Kevin: Well, we kind of figured her stutter would go away, but we never know what to think on that show. So I’m going to say Artie’s reaction was more shocking. At first I couldn’t figure out why he was being so dramatic. But I really think Artie fell for Tina because they were set apart by their disabilities. They’re already kind of outcasts being in glee, but within that group they shared a connection. So he based their whole relationship on that and when it went away, Artie didn’t know what to do.

You know, Kevin, I can think of some very good reasons why people with disabilities might be angry at someone saying they’d been faking their disability for years. Maybe if you spent any time dealing with people assuming you were faking, accusing you of trying to “game the system”, telling you that you’re just a whiner for wanting extra time on an exam, or not been able to get into half the shops in your town because of “just one step”, you might get it a bit better.

Something that, had you even talked to someone with a disability about the issue, you might have understood.

I guess that’s why we call it acting.

A Few Relevant Posts on “Glee”

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ETA: I’ll be adding links from the comments to the bottom of this page, so check back for more when you get a chance!

I know people are searching for our responses to the Very Special Disability Episode of Glee. I’ve got something going up Monday, but I wanted to highlight a few very good responses from other people to the episode, specifically people who are actually knowledgeable about the disabilities presented on the show. So, obviously no one actually associated with the show itself, because they seem pretty clueless.

From Wheelchair Dancer, who is an actual dancer in a wheelchair, Glee

And then there’s the sad fact of the “dancing;” the choreography sucks. The one potentially interesting move that McHale supposedly “does” is a cut — he wheelies on one rear wheel. The rest is notable only for the way that it shows that able-bodied, non-wheelchair-using folk really do think of chairs as bicycles you move with your arms. There’s absolutely no body-chair integration at all. They think of sitting in a chair as being only about not being able to move their legs (and in Artie’s case as being about having his hips and legs twisted to one side). That mistaken understanding leads to some very weird looking people in chairs. On chairs would be a better phrase for it. The fake paralysis of their legs somehow wends its way up their bodies so that they are really only able to push with their elbows (no wonder they have sore arms!).

It’s so interesting watching them try to dance. Push. Make a dance gesture. Push. And they are only able to muster up those little beginner pushes. You know the ones I mean? The frantic shoves at the wheel? They push, the wheel doesn’t respond; they don’t know how to ride a stroke and feel the momentum. This means that they basically either push the chairs around in formations (because they can’t dance and push) or keep the chair still and hurl their upper bodies and arms around. Hilarious. Explains the weak choreography, too. Understand how a disabled dancer moves with the chair, Mr. Woodlee, and you will be able to create something a little better than bad dance.

And Kaz (who you may recall wrote a fabulous guest post on asexuality), who has that stutter that Tina’s been faking to get out of basically everything, wrote Because incurable speech disorders just up and vanish all the time, don’t you know:

THIS IS THE PROBLEM. They “figured it would go away”. Because nearly every single fucking time a stutterer appears on TV (or in movies, or in books, or or or…), it just. Magically. Vanishes. They learn to accept themselves! Overcome their fear of XYZ! Face their deepseated trauma! BYO offensive stereotype! And poof, the stutter is gone!

I think the only good thing I can say about the development in Glee is that at least they spared me that. At least she was just *faking* it, at least it didn’t just do the impossible and spontaneously vanish.

Kaz also left a comment on my post about the idea you could get out of things with a stutter:

Sure, other schools may be different, but I really doubt that many of them will just say “okay, you don’t have to do this” to a stuttering student (particularly if they start stuttering just before the presentation, and I’d think that teachers would know developmental stuttering almost always develops between the ages of two and five or so, but – oh, right, I’m bringing *facts* into this. Mea culpa.

And, a few reaction posts from us, off this blog:

In case you missed it, here’s melouhkia’s review over at Bitch, Glee-ful Appropriation:

There were so many problems with the way this episode handled disability that it’s almost impossible to know where to start (truly, earlier drafts of this ballooned into thousands and thousands of words). It hit a number of major tropes for pretty much a hat trick of disability fail. We got “disability is inspiring,” “disability is a burden,” “appropriation of disability for a Very Special Learning Experience,” “faking disability,” and “see my sister has a disability so I’m not a bigot.”

Here’s the thing about tokenization, which is what this episode specialized in: It does nothing to advance the cause of people who live in marginalized bodies. Hiring an actress with Down’s Syndrome for a single throwaway guest role is not including actors with disabilities. Centering a disability plot around able bodied characters is not including people with disabilities. Continuing to use crip drag (and having the actor unabashedly say “this isn’t something I can fake”) is not including people with disabilities. Painting accessibility as a hardship, a burden, and “special treatment” is also not including people with disabilities.

And, this was my review, just a couple of hours after I saw it, Why Can’t I Make You Understand / You’re Having Delusions of Grandeur:

Three people faked having disabilities in this episode. (Well, I guess four if you count Kevin McHale, but let’s put that argument aside for a moment.)

Tina’s been faking her stutter all along, in order to get out of having to give a speech in the sixth grade.

People with stutters are routinely mocked and yelled at, told to get over it, and basically the subject of ridicule. And yes – people do think stutters are faking it for attention. But Glee, that “diversity” show, has presented stuttering as something that will get you left alone, and something easy to fake. For years.

This is the show that’s supposed to make people with disabilities feel empowered.

I have no doubt there are lots of reviews of this episode by people with disabilities. Please leave links in the comments! I haven’t had time to go looking for them, so I really want to read them.

ETA: From Matthew Smith: Wheelie Catholic wrote Glee Wheelchair Episode Not Gleeful

All I can say is that Glee is in a fine mess now. The real problem with this show, as with the rest of Hollywood, is that it keeps insisting on portraying an able bodied version of characters with disabilities. Writing an episode on sensitivity toward a character who doesn’t really have a disability to convince those of us who really have disabilities that the show is enlightened just isn’t going to work. Nor did the subplot of a girl with a stutter confessing she really doesn’t have a stutter help. It’s all very confusing and gave me a headache.

Here’s what I suggest. Since the show decided a sing-off was fair between two characters, why not bring in a wheelchair user to sing and dance against Artie?

ETA 2: Sarah points to her post: This Week’s Glee: Good, Bad, and Horrific:

Cheerleading coach villain Sue was “humanized” this week. And how was she humanized? Because we found out she has a sister with Down Syndrome. That’s right. Suddenly we’re supposed to see that she’s actually a good person because she’s nice to her disabled sister. (And she gave an opportunity to a girl with the same disability as her sister, and she donated money for wheelchair ramps which the school was legally obligated to provide in any case.) I find this absolutely disgusting, as it seems to indicate that characters with disabilities exist only to prove “background story” and “humanity” to the “normal characters.” They are, at best, plot devices, rather than true characters. I can’t believe some people are seeing this as a good way to include people with disabilities. And please, don’t expect disability rights advocates to pat this show on the head for hiring a few actors with disabilities in minor roles. Just because the show considered Down Syndrome harder to fake for the general public than paraplegia doesn’t mean it’s doing anything to expand opportunities for actors with disabilities. These two minor roles (which probably won’t even recur again, I would guess) don’t make up for the aforementioned crip drag, let alone for the ways in which people with disabilities are being used in this episode.

Via The Goldfish, Terri’s post My Hopes for Glee

First, disability simulation exercises usually lead to more pity than understanding (you can tell by the things people say when they are over–more about relief and feeling bad for people, rather than about empathy and feeling more like people with disabilities.) Secondly, having seen professional wheelchair dancers, the performance was kind of one-dimensional…

My daughter saw the show before the rest of us and her concern about wheelchair issues took a definite back seat to her anxiety about what was going to happen between the cheerleading coach and the young teen with Down syndrome.

[Terri also talks about her conversation with her son, who is an actor, about the crip-drag elements.]

Access Fandom is also doing a link-roundup, because Access Fandom is made of awesome. If you’re looking for fandom-related discussions about disability, I really recommend following Access Fandom. [This is totally influenced by the fact that Sasha Feather, Kaz, and Were Duck are amongst my very favourite people.]

Recommended Reading for November 13

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Mental Health and Promiscuity

However, even in this environment there is one area that has always troubled me and that revolves around the concept of promiscuity as diagnositic criteria.

My first and biggest problem with this is that I have NEVER heard this brought up as a symptom of mental illness when discussing a male. It is always something that is brought up about a female. I can’t help but assume that this is linked to the belief that “excessive” sexual activity is normal for a man and not a symptom of mental illness while no “healthy” woman would engage in or enjoy casual or alternative styles of sex. I also think it is linked to the belief that women are the only ones that have sex with other people due to low self esteem or possibly in a reckless manner because they have some self-destruct tendencies. See, sex is damaging to women, they can’t just enjoy casual encounters or engage in sex purely for self-satisfaction: they must be wounded in some way or they must be wrongly searching for the intimacy they so desire.

Reasonable Accommodation

I find myself caught between disabilities.

One of my most promising paths forward health-wise right now is finding a low-impact, non-repetitive form of exercise. Since I have done yoga in the past, I have been searching for a yoga studio. But since I’m in the western suburbs of St. Louis… there just isn’t much here. The most promising place, that offers classes that fit into my schedule, that is likely to be understanding and accomodating of my back issues, is Bikram.

Now I did Bikram a few years ago and loved it – unfortunately, over the course of a couple of months the humidity in the room (Bikram is “hot” yoga, done in a room that’s about 90 degrees) started making my hearing aids go wonky, so I stopped.

You Can Make Fun Of Us But You Can’t Give Us A Chance

The character was dressed in a blue latex suit that covered his head, and he was constantly babbling like an idiot and drooling on himself. I admit that I found the Handiman skits to be hilarious when when they first premiered. The disabled community had been non-existent in Hollywood up until then, and it continues to be non-existent today, so it was good to see some representation, and me not knowing how much of a negative image it was at the time, appreciated the recognition.

I was in my junior year in high school when Handiman made his debut. Ever since I was mainstreamed back in the fifth grade, I have always caught hell because of my disability. I remember being teased many a-day throughout grade school, high school and even college. Handiman perpetuated the stereotypes that people had about people with disabilities. Even to this day, the techniques have changed, but I pretty much know when people are trying to belittle me. Children aren’t as cunning or crafty to hide their emotions, so they would usually laugh or make “retarded-stupid” comments about me.

The Usefulness Factor

Sometimes you can maintain a career from your own home, such as on the computer or as a consultant on the phone. Sometimes you just need to stop and re-think the whole idea of being useful. The question of “why am I here?” seems to become magnified when you become confined to a small physical space with others doing all the things you used to do for yourself.

But that does not mean you have become useless. It is very easy to fall into the trap of believing that, especially when people say things like, “it must be so nice to be home all the time and do nothing!” It is not particularly nice to have no impressive answer when people ask what you do all day, but if you are able to ignore that and realize that everyone is on this earth for a reason, you are on your way to finding a new sense of purpose. Maybe not a financial one, but perhaps a spiritual one, which is even more important.

In the news:
Francesca Martinez: A Wobbly Girl Battles Against The Last Taboo [Although I disagree with the idea that disability is the “last taboo”]

Francesca Martinez’s victim is squirming. Trapped under the scrutiny of the comedian and fellow members of the audience at her show in Edinburgh, he is clearly wishing for the proverbial hole to open up. “What are you bad at?” asks Martinez. “Football,” comes the sheepish reply. “Were you born like that?” she enquires, head tilted in sympathy, “Couldn’t your mum have had a test when she was pregnant?” Turning to the man’s girlfriend, she simpers: “You are so brave. Well done… Does it mean he can’t have sex?”

Martinez’s humour bears a political sting. As one of a tiny number of disabled performers who have made it into the mainstream, she is not about to waste opportunities to ram home a message. Born with cerebral palsy, the 31-year-old refuses to accept the label of her condition, preferring to describe herself as “wobbly”.

Recommended Reading for November 12

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Private Practice Takes a Bold Stance against Decent Behaviour

There’s a new doctor at Naomi’s practice, Dr. Fife, a genetic engineer who uses a wheelchair who pressures Naomi into agreeing to select for an embryo for two patients with dwarfism to allow them to created a baby who also has dwarfism. Naomi is reluctant but agrees until she learns that these embryos will also give the future baby a 40% chance of developing some kind of cancer (which Lauredhel over on FWD points out, is the baseline cancer risk for the US population).

18th Down Under Feminist Carnival

This Carnival has an optional caring theme, thanks to Australian Carers’ Week (which was October 18 to October 24). The theme for this year was “Anyone, Anytime, Across Australia”, which I modified to “Anyone, Anytime” for the purposes of the DUFC.

Denmark Strips Away Right To Privacy from Blind Voters

On Wednesday I read that one of my blind friend’s in Utah just experience voting by himself for the first time thanks to his voting machine having built in text to speech. On that same day, I also read that the blind in Denmark not only don’t get to vote by themselves, they have to have a council member present when they’re voting. This rule was supposedly implemented to make sure that the sighted helper wasn’t pressuring the blind voter to vote in a particular way, but what it really does is just strip that voter of their right to privacy.

On being “Crazy”

Crazy is something altogether different. Crazy is delusion, psychosis, mania, schizophrenia. Insanity, in the depths of society’s psyche, is jabbering in tongues rocking back and forth in a padded room. It can’t be trusted. It is the serial killer, the mother who kills her children, the man who laughs while committing the most vile crimes – this is what “crazy” conjures up in the minds of the general public.

This terror, this nightmare looming in the dark places of our collective consciousness is harmful. Incredibly so. It means that people who are not neurotypical are stuck with the paradoxical choice of lying or being mistrusted. Perhaps more importantly, it makes us less likely to seek help when it is needed. It took me years to admit, even to myself, that my brain was fundamentally different than most. Because I didn’t want to be crazy.

In the news:
Vatican post office issues stamps with raised dots to honour inventor of Braille system

The Vatican post office says it has issued its first Braille stamps to commemorate the 200th anniversary of the birth of Louis Braille, the French creator of the writing and reading system for the blind.

The stamps feature a portrait of Braille and his system’s raised dots that spell out Braille, Vatican City State and the price.

Don’t forget, we’re also doing some guest blogging at Bitch Magazine! Check out meloukhia’s introductory post about disability! (Yes, I do write up recommended reading in advance.)

Guest Post: Davros, Daleks, and Disability

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CapriUni has cerebral palsy. She grew up with, and alongside the Disability Rights movement. She was among the first of her generation to be mainstreamed in education, in starting in the late 1960s, she completed the Masters of Arts program in Creative Writing at SUNY Stony Brook in 1991. And she has been a regular participant in the theatrical and literary endeavor known as The Art Garden for many years. She currently lives in Virginia, where she spends much of her time geeking out on her DreamWidth Journal over the topics of language, disability rights, and general silliness, but not necessarily in that order.

This post was originally written in June 2009.

This post wanders down a primrose path of links — or maybe it makes a daisy chain of links (maybe the all those flowers are fertilized by the BS the essays in these links complain about).

Almost a year ago, I watched again, for the first time in nearly thirty years, Episode Two of Genesis of the Daleks (the one where we first see, and hear, Davros) and wrote this review: I know that this episode predates this PC-ness by about ten years, but still. I tried to articulate how painfully ableist Davros is/was (it might have helped if I’d had the word “ableist” in my vocabulary, back then). But the discussion thread wandered off into Nazism, racism, anti-Semitism, and the internalization of oppression by the oppressed — all are important topics, but Davros’s disability ended up being treated (even by me, woe) as a secondary metaphor for some other issue, and not as an important attribute in its own right (which is another of my long-time pet peeves).

Then, earlier this week, [info]troubleinchina watched Genesis of the Daleks for the first time, and she wrote this review: Davros is not a physically handicapped scientist overcoming his “shortcomings” through technology (the link she posted in that review, btw, to an essay about the cybermen, has been taken down by the author).

In reply to that review, Goldfish (the host of “Blogging Against Disablism Day”) posted this: It would be better if we were represented as a great variety of characters, but Davros did at least have some … spirit.

And she posted this link (from the BBC’s official Disability Culture Blog: “Ouch!”): ReTARDIS: Doctor Who and Disability (written on the eve of NewWho, and expressing the hope that RTD would help Who get beyond its old biases; shall we have a moment of silence for our dashed expectations?).

And finally, I’ve come to the end of my primrose path. For there is one paragraph in this last blog essay clarified for me why I preferred the Daleks before they had Davros as their single, twisted, “Creator”:

To cut a long story short, Davros foresaw that his entire race, the Kaleds, were slowly turning into slimy, green blobs. Being a wheelchair user himself, his solution to this problem was to build mobility aids for everyone to travel around in – a.k.a. the Dalek machines. Now you’ve got to admit, turning your entire race into wheelchair users is quite an extreme way to bring about disability equality!

I realized, when I read this, that I was (partially) incorrect in my original analysis, last June. What’s really promblematic about Davros is not (so much) that his “spiritual disfunction manifests as physical disfunction,” but that he diliberately creates the Daleks to be more disabled than he is. He deliberately erases their capability for empathy and compassion. He expects them to be obedient to his every command, and to be grateful to him, as their creator and their “father.” If Davros’s plans unfolded the way he dreamt them up, he’d be the most able-bodied (comparitively) “Emperor of Skaro.”

So, with Davros in the picture, the Dalek mythos only perpetuates and reinforces the hierarchy of Ability and Personhood. The more able you are, the more you’re a “real” person. If you’re disabled, your role in life is to be obediant and grateful, and the more “severe” your disability is, the more passive and grateful you’re expected to be.

But pre-Davros, in the First and Second Doctor’s eras, the Daleks had created their machine casings over time, and under their own initiative. In the Peter Cushing movie versions of William Hartnell’s Dalek stories (thanks again, [info]gordon_r_d!), the Dalek city is full of color, and art for art’s sake. Even though they’re still evil, they’re portrayed as having a complete culture, and being complete people. So yeah, I find the pre-Davros Daleks to be more interesting.

As for the argument that Terry Nation had to create Davros to give the Daleks some unique history compared to the Cybermen, I’d say that both the Cybermen and Daleks represent the abject fear that the Privileged have of the Oppressed:

“They Hate Us!! And if We Give Them Any Freedom, They Will Bring Us Down to Their Level!!”

The Daleks and Cybermen are “mechanized” selves, who have gradually lost their Personhood as they gradually lost their physical abilities, and compensated for their weakness with technology. This, in itself, makes them morally suspect, at best. What makes them evil is their desire to inflict their reality on the rest of us, “robbing us of our humanity.”

Other modern sci-fi examples of this trope would be, I think, Hitchcock’s The Birds (where humans are punished by the avians for our species-based privilege), and Franklin J. Schaffner’s (director) Planet of the Apes (again, with species privelege, with added thinly disguised race privilege). But this trope goes back much further than the genre of Sci-fi, if you consider the ancient (patriarchal) Greeks’ fear of, and fascination with, the Amazons, and what they did to men.

This fear and fascination probably arises out of the subconscious knowledge that:

  • privilege is arbitrary and more a matter of luck than innate goodness, and

  • the acts committed via this privilege are unjust, but

  • the privilege-holders are so dependent on the power of privilege for their way of life that they equate letting it go with Death.

And of course, this fear completely distorts reality. Birds have no desire to wipe out humans as a species. Nor do Apes wish to own human slaves. Women don’t want to castrate and enslave men.

And the disabled have no desire to inflict their impairments on the able-bodied. Christopher Reeve’s advocacy for “The Cure” made me squrim, but I took no pleasure in his suffering. I was simply distressed when his advocacy, and the celebrity status that fuelled it, drowned out nearly all discussions of civil rights and equality.

[I’ve been writing this post on and off (mostly on) for nearly six hours, now (I thought it was going to be a quickie; I didn’t expect it to be so hard to put into words). It’s time I stopped. Here’s my conclusion:]

Davros is a painful character for me to watch because he represents the fear that the Disabled are full of hatred — both self-loathing and hatred of the able-bodied, and is another example of the fearful trope:

“They Hate Us!! And if We Give Them Any Freedom, They Will Bring Us Down to Their Level!!”

(So We better get Them, before They get Us).

I don’t want to bring you down, able-bodied white men, staring at me from the bed of your pick-up truck,* please don’t stare at me with such virulent hatred.

*I’m remembering an actual time when I was leaving the grocery store with Audrey, my aide. This was when I had the old van, with the slooow wheelchair lift, and I was manuevering to get onto the lift. Meanwhile, there were four red-necky-type white guys hanging out in their truck in the next parking space over. And they were staring at me with such angry expressions, I couldn’t look them in the eye. If I’d been alone, I would have feared for my safety. Yes, this was one moment out of my lifetime, and it was atypical in its extremity. But it still sticks in my mind, and it’s still painful.

ETA November 29: I’m temporarily turning comments off on this post because it’s become some sort of magnet for very strange and repetitive spam. I’ll turn them back on in the future. If you come across this and want to make a comment, please let the mods know.

Recommended Reading for November 9

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Spoon Theory and Me (It’s all about me)

I’ve been reading about the Spoon Theory and kinda going, yeah, that doesn’t apply to me. (Basically, we all have a number of spoons that represent what we can do that day. Healthy, temporarily able bodied people (age will get us all!! Run!!) have an unlimited amount. Those not so able-bodied do not.)

Thinking about the Spoon Theory and applying it to my life is scary because dammit, if I write down that it hurts, then it really happened and it just won’t go away. If I don’t classify it, it’s not there. Denial is awesome unless WILL YOU STOP STABBING ME. See?

But I do use it, I realized today.

Identity Matters

It brings up some interesting thoughts for me about “what actually is disability?” That’s medical vs social model stuff, but its not just that. Its about the labels we as people with impairments use to define and describe ourselves. What boxes we put ourselves in and how easily or not we communicate with those in the other boxes of disability.

What it is to be a monster

You know you a monster when almost all the depictions of your condition in the media show you as either a joke or a jerkass. It gets to you. You begin to wonder if those you call your friends see you the same way. Are they keeping you around for the crazy antics? Do they like the real you, who ever that may be?

Positive Experiences with Disability Activism

I had some really positive experiences today with some disability activism that I would really like to share. The first two were at work and the third at an after-work conference for language development in the Middle Swan area.

In the news:

Student files suit against U. [Princeton]

Metcalf-Leggette’s complaint asserted that she has four learning disabilities, which were diagnosed in 2003: attention deficit hyperactivity disorder (ADHD), mixed-receptive-expressive language disorder, disorder of written expression and developmental coordination disorder. The conditions, according to the complaint, hinder her ability to focus, process information and communicate in writing.

The suit comes after a series of meetings with school officials during which Metcalf-Leggette sought accommodation for her disabilities. The University currently accommodates Metcalf-Leggette’s disabilities by offering her a “reduced distraction testing environment,” a limit of one exam per day and a 10-minute break each hour, the law journal reported.

It’s not progress if we’re going backwards

media and pop culture,

These two things crossed my inbox on the same day.

Latest Data Follows Historic Trends

Despite years of bargaining with producers to include the hiring of performers with a disability in Casting Data Reports, this protected category continues to be left out. Fifty-six million Americans — 20% of the U.S. population — have a disability. Despite being the largest minority group in the country, people with disabilities remain virtually invisible in entertainment media.

Glee Cast to receive award for Diversity

The cast of the quirky Fox musical comedy will receive the organization’s 2009 award for favorite new diverse ensemble cast in November, according to Reuters. The series, which focuses on a less-than-cool high school glee club, mixes jocks and cheerleaders with a boy in a wheelchair (Kevin McHale), a geeky girl (Lea Michele), a gay student (Chris Colfer), an Asian goth (Jenna Ushkowitz) and an overweight African-American girl (Amber Riley).

Of course they are.

And if this keeps up, there won’t be any

media and pop culture, social attitudes, Uncategorized, , , , , ,

My pet hate: “Crip Drag”.

Crip Drag is when a character has a disability, but the actor playing that character doesn’t have whatever disability they are portraying. Recent examples that come to mind are Kevin McHale, who plays Artie on Glee, any wheelchair-using villain you see in Doctor Who, and whoever got the role of Eleanor Perry in the Stargate: Universe episode “Sabotage”.

(And those are, of course, just shows that have wheelchair users. How many movies have you seen with a blind character who is played by an actress who isn’t?)

When pushed on issues of Crip Drag, the creators of these shows and movies often respond in one of two ways.

First, the character has the Miracle Cure Plotline, and thus they can’t have an actor with an actual disability play that role.

At first I didn’t question this much, beyond my general irritation with the Miracle Cure Plotline (Hey, television and movie producers: We have more stories than that, thanks), but I’m beginning to be very irritated with that idea the more I think about it. Amongst other things, there are wheelchair users who can (gasp!) walk. They may walk with a cane, or some other assistive device, but as long as you’re not asking them to climb several flights of stairs and then go for a run, they’ll probably be able to manage enough to satisfy the “It’s a miracle, he can walk!” plotline. I suspect blind actresses could act like they could see for the sake of a storyline, too.* It’s almost like they can learn to act like they can see, the way another actress can learn to act “blind”.

The second reason, the one that’s got me all irritated today, is the wonderful excuse that all minority groups get when they point out casting disparities: There aren’t any Big Names that will Bring In The Money who have disabilities, and Do You Know How Hard It Is To Find An Actor Who Could Do This Role At All?

The latest in a long line of insults of this nature is the casting of Abigail Breslin as Helen Keller in the upcoming Broadway production of The Miracle Worker.

For his part, the show’s producer, David Richenthal, claims that the production was unable to find a blind or deaf child actor with the star power to bring in enough of an audience to justify the show’s large budget, saying “It’s simply naïve to think that in this day and age, you’ll be able to sell tickets to a play revival solely on the potential of the production to be a great show or on the potential for an unknown actress to give a breakthrough performance,” he said. “I would consider it financially irresponsible to approach a major revival without making a serious effort to get a star.” The show will, however, be making an effort to find a blind or deaf actress to play Breslin’s understudy — but they won’t make any promises.

Gosh, I wonder why there aren’t any Big Name Child Actresses who are d/Deaf or blind (or both) and can thus play Helen Keller. Do you think it’s because there aren’t enough roles that are given to such actresses so they can develop a name for themselves? Do you think it’s because any roles that could be given to a d/Deaf or blind actress are given to non-disabled actresses? Do you think there might be some sort of bias going on in casting decisions that might be impacting this at all?

I sympathise a bit with the situation Richenthal is in. All he’s trying to do is make sure that an expensive production makes money, and Breslin has the star-draw. Apparently there are no other roles in The Miracle Worker that one could cast a name-drawing star in, and of course it’s foolish for anyone to think that the role of Helen Keller would go to an actress with a disability! What nonsense!

This is, of course, a self-perpetuating system. Disabled people are not cast in roles that would demonstrate their acting talent. They do not get the experience and the face time that the currently non-disabled do, so they can’t increase their name recognition. Then, when a role comes up that is perfect for a person with a disability, the role goes to someone else, because people don’t have a clue who this disabled person is.

The biggest actress, of course, who disproves this rule is Marlee Matlin. However, as much as I respect Marlee Matlin she is not the only actress in all of North America who is deaf. Honestly, I promise, lots of d/Deaf people do act. So do lots of blind people. My husband, who is a full-time wheelchair user, used to do Shakespeare. We are out here, and we are looking for paying gigs just as much as the next person.

Stop the Crip Drag. Stop the Miracle Cure Plotlines. And stop acting like it’s just a wild coincidence that you don’t know of any disabled actresses with the star power to bring in the money for the role of Helen Keller. It irritates me.

Please note: As with all of my posts, my schedule is such that I won’t be able to see comments for hours after you make them. My co-moderators will be approving most comments as they become aware of them, and will try and respond to any and all of them when I’m free.

* I’ve described wheelchair users as male and blind people as female because this is how they are typically cast in North American shows.

Guest Post: To Whom It May Concern

biography, guest post, social attitudes, ,

Avendya is a college student with a chronic illness.

To Whom It May Concern:

My life is not a fucking tragedy.

No, really. Yes, I’ve fought with GlaxoSmithKline today, and I’m not sure when I’ll get a medication I badly need. Yes, my knee keeps giving out, and I am barely able to keep up the stairs to my room. Yes, I’ve broken so many times in the last week I’ve last count. No, I’m not sure that I’m really well enough to manage my workload. But you know what? I’m sitting in a computer lab with my best friend, listening to trashy German pop music, and Nadia made me brownies.

These are the stories I want to hear about: not just the tragedy of suffering, not just pity and playing on able-bodied people’s fears, but my life – our lives. I want to see a fictional character who has mobility issues who isn’t a tragic figure, but is clever and beautiful and could probably kick your ass without breaking a sweat. I want to see a story where the love interest isn’t a nice (white) girl, but a woman who’s gone through hell, and is stronger for it. I want to hear stories of disabled men and women succeeding – and not “in spite of” their disability.

I choose to define my life on my terms – not just the bad days, the panic attacks, the times when no pain medication I try even cuts into the pain, but the days where I say “screw it” and explore cities on my own, take in the breeze off the Bay, buy more books than I should, and listen to Imogen Heap as loud as my iPod will go. I may have not chosen my illness, but I damn well chose the rest of my life. I don’t much care if it isn’t what you were expecting from a disabled person – this is my life, my future, and I am not your fucking cliche.

I want to see, hear, read about people like me, living their lives on their own terms. We’re not martyrs and we’re not saints – we are people. More than that, we are – we exist, and no matter how many times our needs are disregarded, our stories are erased, we refuse to let you define us.

Recommended Reading for November 4

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Disability and Loss

If you are born differently abled, the state of your body is absolutely normal to you but if you come to this identity after being fully abled, it is a loss. I think that it is important to acknowledge this for exactly what it is. I have had doctors tell me that this is not healthy or normal. I have been encouraged to medicate myself into a false state of happiness. Being sad makes people uncomfortable and to own this sadness as completely as I do, even more so.

The woman that I was four years ago is gone forever. The woman that I thought that I would become ten years from now will never appear. This is a loss and it is traumatic. I have only lost one person in this life who was close to me and dealing with this disabled identity is very much the same sort of feeling. It is natural to mourn and this does not mean that you do not accept or love your new identity; it means that the person you were before was also of value.

Torchwood 2×11: Adrift

Do not start with ‘but she’s not mad, she’s autistic’. This is not the moment for comparing isms and/or deciding that neurological disabilities deserve more or less stigma than psychiatric ones. For the moment, please, let’s lump them all in the same category, under ‘things causing one to be locked in a loony bin so that no one has to see us’.

This episode disrespects people like Amanda. Do not argue that it’s different because this is a special *space* madness that doesn’t follow the normal rules of psychiatry or neurology. It’s not, it’s playing on the same tropes human beings have been playing with since madness was *invented*. They made it a special space madness so they had an excuse to drag out those tropes and wallow in them without conflicting with contemporary knowledge of the realities of mental illness, post-traumatic stress, etc.

With this Steam-Powered Prosthetic Arm, I Could Be As Strong as… A Normal Person [Note: This post has some problematic content, such as using the term “wheelchair bound”, but overall I think it’s interesting and worth reading.]

Steampunk, as we all are aware, draws its inspiration from the Victorian era, which, for all its accomplishments, wasn’t very good to people with disabilities. Halifax, where I live, has a few Heritage Houses, many of which were built during the era, and it doesn’t take much to see that most of them are wheelchair-inaccessible. By and large, disability issues fall off the steampunk radar. That doesn’t mean there aren’t any steampunks with disabilities. Out of curiousity, I put out feelers on Brass Goggles.

In fact, there are quite a few, and disabilities don’t really stop anybdy — Mark F. has been living with chronic muscle and join pain for 30 years (plus osteoarthritis; we should note that for many, it’s never just one illness, but a whole clusterfuck of problems which exacerbate each other), and yet has managed to refurbish an entire work cubicle, among other projects. Many other steampunks with disabilities also involve themselves with the physical side of steampunk: DIY, costuming, conventioneering.

Linkblurt: We are assaulted

*WARNINGS apply to this post – descriptions of assault and abuse of people with disabilities, including sexual abuse*

In the news:

Alan Johnson ‘stops the clock’ on Gary McKinnon’s extradition proceedings

In an eleventh-hour intervention, Alan Johnson told MPs that he had “stopped the clock” on proceedings to give Mr McKinnon’s lawyers time to consider medical reports and make legal representations.

Mr McKinnon, 43, from Wood Green, North London, suffers from Asperger’s syndrome, a form of autism. He says that his hacking of Pentagon computers was nothing more than him searching for reports of UFO sightings.

Feel free to send me anything you think I’d like to look at to anna@disabledfeminists.com