Tag Archives: DLA

Recommended Reading for 15 December, 2010

Jody McIntyre: Student Protests, Part Three

From the corner of my eye, I spotted one of the policemen from the earlier incident. He recognised me immediately. Officer KF936 came charging towards me. Tipping the wheelchair to the side, he pushed me onto the concrete, before grabbing my arms and dragging me across the road. The crowd of 200 ran and surrounded him. I got back up and stood in front of the horses.

When I finally got home at 5am, exhausted but pleased at what can only be seen as a victory, I found that the picture of me being pulled from my wheelchair had been creating a bit of a storm online. But I am not the real victim. The real victims of yesterday are people like Alfie Meadows; a 20 year-old student who was rushed to hospital for emergency brain surgery after internal bleeding caused by police truncheons.

Abuses Reported at Mexico’s Institutions for the Disabled

MEXICO CITY — Ten years ago, a human rights group released a scathing, groundbreaking report on abusive, decrepit conditions in Mexican institutions for the mentally and physically disabled, moving the country to promise change and to take the lead in writing international agreements to protect the disabled.

But in a new report released Tuesday, the group, Disability Rights International, working with a Mexican human rights organization, said a yearlong investigation revealed “atrocious and abusive conditions” that included lobotomies performed without consent, children missing from orphanages, widespread filth and squalor, and a lack of medical care.

Making the Case for Irish Sign Language in Education

“As we say to parents at this stage, don’t think about your child at five . . . think about your child at 10, at 15 and at 25. Where is he or she going to be at 25? You know, part of a deaf community or a hearing community, but hopefully a mix of the two. And sign language is a critical aspect of that.”

NPR is doing an investigative report called Home or Nursing Home

People ages 31 to 64 now make up the fastest-rising proportion of nursing home residents. One reason: As states face record budget gaps, the programs that help people live at home are being cut.

Muscular Dystrophy Org: Disabled children hit by Residential Education Transport cuts [This link has a moving image on the top that makes me dizzy to look at]

In a move condemned by the Muscular Dystrophy Campaign, when changes to mobility support claimed through the Disability Living Allowance come into force in October 2012, families with a disabled child in a residential school will immediately lose access to either adapted vehicles used to transport their children or the £49.85 a week allowance available to assist with the higher costs of accessible transport.

Recommended Reading for 13 December, 2010

You are Here: Safety Haiku: Automatic Captions

This is the reason why you should not send me breathless, excited emails about the wonders of automated speech-to-text. You see the “CC” button and you think you and I will both enjoy the same media. This is what I actually get. (On the other hand, in a black turtleneck and beret, with bongos in the background, this little poem could actually be kind of cool.)

Where’s the Benefit: Demolition of the Case for DLA Reform

In fact, though the report claims that there exists a “perception of disability permanently precluding work is prevalent among individuals with disabilities not already in employment”, there is no evidence cited in the report that suggests DLA could be a barrier to work. The section and all references to it in the consultation paper could be interpreted as an attempt to misdirect, and should be removed forthwith. Further, it should be noted that the consultation commits the statistical crime of confusing correlation with causation. Whilst RR No. 648 does provide evidence that low employment is correlated with claiming of DLA, this in no way implies that one causes the other.

Guest Post at MarfMom: Jennifer’s Birth Story #2

Jennifer Levesque, 38
Diagnosed with Marfan at age 12 -inherited from father
Mother of two
Methuen, MA

Boing Boing: Universal Subtitles: add subtitles to any video on the web

For video creators, this is a dead simple way to increase the audience for your work — especially since there’s a full-text search coming shortly. For subtitlers, the upcoming workflow management and collaboration tools will make volunteer efforts even easier to run.

Both Mozilla and Wikipedia will be including the Universal Subtitles tool for their videos — and the tool itself is free/open source software, which means that the community can be sure that it won’t be orphaned and that the tool can always be improved.

Trigger Warning for violence against disabled people: Damn Interesting: Howard Dully’s Lobotomy

Howard Dully was brought in for the procedure because his stepmother described him as “unbelievably defiant,” saying among other things: “He objects to going to bed but then sleeps well. He does a good deal of daydreaming and when asked about it he says ‘I don’t know.’ He turns the room’s lights on when there is broad sunlight outside.” After Howard’s stepmother visited with Dr. Freeman, he suggested that “the family should consider the possibility of changing Howard’s personality by means of transorbital lobotomy.”

Recommended Reading for Thursday, December 8, 2010

I hate this time of year because I live in the Northern Hemisphere and it’s dark really early. At least we’ve been avoiding the snow-dumps I hear are all over central Canada, but it’s only a matter of time.

Civil Rights Now!: Civil Rights Now! speech at Dec10 CLAS Forum on UN Convention on the Rights of Persons with Disabilities

As my lawyer friends say there’s no right without a remedy; because most BC voters with disabilities cannot afford a good lawyer their rights have very little meaning because they have no way to enforce them. And that’s why our governments, Health Authorities, businesses, School Boards, service providers and unions can do anything to you if you are a voter with a disability.

That’s why Civil Rights Now! believes BC voters with disabilities need:

  • Law which gives the equality provision of the Canadian Charter practical force and effect in their daily lives.
  • Law which gives them truly-portable, sufficiently-funded, consumer-driven Individualized Funding.
  • Law which gives them funding for test cases involving their civil rights.
  • Civil Rights Now! launched a campaign this year to persuade BC politicians to commit that whichever of them wins the next election they will enact such laws. By so doing they will fulfill the intent of the Convention and, more importantly, the equality provision of Canada’s Charter of Rights and Freedoms, many decades after it became the supreme law of our country.

Urocyon: Disability and UK fuel poverty

I felt pretty bad, because until I started reading about the extent of problems this winter, I hadn’t considered just how bad the situation is. (Bit of a shame this is another thing that it apparently takes larger numbers of middle-class people being affected to draw more news attention.) This is in spite of having dealt with parental disability-related poverty and substandard heating for years, in a colder-winter climate not moderated by the Gulf Stream. This isn’t the coldest month, but it’s supposed to be 10°F/-12°C tonight back home–not unusual. It honestly didn’t seem that cold to me, even though I was aware that last winter was the harshest in 30 years for the UK, and this one is looking to be if anything worse. (Climate change? No…) But, even though it isn’t very cold in absolute terms, if you’re not used to its getting, much less staying, below freezing very often? That’s a pretty big problem.

Then I started thinking about how disabled people just weren’t getting mentioned much.

Anna Racoon: The Orwellian Present – Never Mind the Future.

No, he can’t, he has no access to the Mental Heath Tribunal – Autism isn’t a mental illness. This action isn’t being taken under the Mental Health Act – it is being taken under the Mental Capacity Act. Under the MCA he only has access to a ‘Best Interests Assessor’ – who is appointed on a consultancy basis, and paid, by…..the Local Authority.

He can be deprived of his liberty for up to a year, which period can be renewed indefinitely, for the purpose of ‘assessing’ him – see above – being sent to Wales to ‘assess’ why he is unhappy at being locked up.

Sharon Brennan at Comment is Free: It’s now officially ‘unsustainable’ to support disabled people

Let’s be clear: this increased DLA caseload is not because of fraud. DLA has one of the lowest fraud rates of any benefits. In fact, government figures published by the House of Commons work and pensions committee suggest that benefit fraud for DLA, carer’s and attendance allowance among others has reduced since 2001 from 2.2% to 0.8% between 2008-2009 (the most recent year for which statistics are available).

Diary of an NHS Buff: The Government is implicated in creating negative attitudes to disabled

Clearly there is a negative perception of disabled people in the UK, which can undoubtedly be attributed in part to right-wing media representation of the disabled. The Daily Mail is notorious for this. A recent front page screamed, “75% of claimants are fit to work”, and carried on: “Tough new benefits test weed out the workshy”.

You expect this kind of thing from the Daily Mail. But what shocked me is that the 75% figure came from a press release from the Department of Work and Pensions. And the figure is wrong. So it amounts to blatant Government propaganda.

Recommended Reading for Wednesday, December 8, 2010

My hearing has finally recovered! Now I know why I was sleeping so much – I couldn’t hear all the construction starting up at 7 a.m. *sigh*

Arbitrary Constant: DLA reform consultation: Great Expectations, Word Apprehensions

The coalition government today published its consultation on the reform of Disability Living Allowance (DLA). The headline is that DLA is going to be replaced by a “Personal Independence Payment” (PIP) from 2013/14.

DLA has been in the news a considerable amount since the emergency budget in June this year, primarily because it has been the main disability-focused benefit the government has looked to cut. I’ve blogged quite a lot on the topic: see here, here and all posts here.

As such, today’s consultation on the reform of DLA is of huge significance and interest because it provides far more detail and intent of what is planned for DLA. Below, I summarise what I think are the key issues. (Via delicious you can keep track of other reactions via my tag DLAreform.)

Where’s the Benefit: DLA Consultation: The Internet Responds

Other disability blogs and websites have already done some great posts on this subject, and I wanted to draw attention to some of what is being said around the interwebz on the reform proposals.

Include Me!

This site has information and ideas on how to include Self Advocates in conferences. There is information for people organising conferences and for Self Advocates going to conferences. The site is written in easy English.

What is a Self Advocate?
A Self Advocate is a person with an intellectual disability or an acquired brain injury who speaks up for themselves and the rights of others.

Bobby Cox at Deaf Echo: Hearing Privilege

I’m sitting down with a close hearing friend. A relative of mine calls my friend and asks her to relay a message to me. My relative had JUST met my friend for the first time the day before, and my relative uses text messaging with me all the time, and there was no reason my relative couldn’t have simply texted me.

So, in the space of one day, my relative was already ‘using’ my new friend to communicate with me. My relative was taking advantage of her hearing status (and advantages) to confer on my hearing friend the privilege of communication while simultaneously weakening me. I was denied the responsibility and control of handling communication.

Victoria Knobloch: The Secret Truth about Depression (via beautyofgrey, via amethystfirefly)

I wish someone had told me.
I wish someone had told me that I had a disease. This disease has no cure. This disease can be fatal. I will fight this disease until the day I die. Some days will feel healthier than others, but this disease will never fully go away. This disease is a disability that very few people will consider to be legitimate. No one ever said these things to me. Instead they told me at 13 years-old that I was depressed and prescribed me medication I do not believe I will ever stop taking.

UK Pushes for Improved Web Accessibility

BS 8878 aims to fill the current gap between site owners and developers by providing a wider scope of information and recommendations, which can be applied before, during, and after the development phase.

This video is subtitled and is presented in ASL. Transcription follows:

Splash: Ontario Rainbow Alliance of the Deaf

Title: It Gets Better….

Hello, my name is Michelle Bourgeois, and I am the Vice President of the Ontario Rainbow Alliance of the Deaf (ORAD).

ORAD would like to share a very important message with you… Yes, life does get better!

Many Deaf and Hard of Hearing Gay, Lesbian, Bisexual, Trans, and Queer people have had awful expeirences with bullying and harassment.

Imagine, coming out can be quite an ordeal. Then on top of that, searching for people who share the same language as you do can be quite the challenge.

That’s why ORAD hosts social events – for people to come and be with others who share the same language and not feel alone.

We know life does get better. We want to let those of us who are having a tough time that oh, yes, life actually gets better.

We also want to send a message out to those who bully.

STOP.

This has gone on long enough. We will not go away because of you. We will not stand down because of you. We will perservere and think positive.

Because we KNOW life WILL get better. We need love, support, and unity.

Life. Get. Better.

ORAD is hosting a Halloween social this Friday night at 8 pm at Zelda’s restaurant, 692 Yonge Street, in Toronto.

Come. Join us. Enjoy time amongst friends. Come and see how life can indeed get bteter… 🙂

See you there.

It Gets Better.

Want more info on the Hallowen Social? Go to www.orad.ca or see us on Facebook.

info@orad.ca

Recommended Reading for Wednesday, October 20, 2010

Good Day, all. It’s been a stressful week at Chez Anna (I’m putting this together at 5 a.m. my time) so forgive me for oversights, please.

Kali at Brilliant Mind, Broken Body: I am not your metaphor

This is something that has bothered me for a long time, and actually led to one of the very few spats between the boyfriend and I (quickly mended, once we both cooled off a bit). I really hate the use of disability-based metaphors. Hate them, hate them, hate them. I believe that they’re part of what makes disability such a fearful, distorted, tragic cloud to people who are able-bodied.

It’s all well and good to say they’re bad, but I think it makes more sense if I actually go through some of the more common disability metaphors so you can see what I mean

DeafMom:Embracing My Deaf Self

My life took an interesting turn at that point. Once the grief subsided and I dried the tears, I entered a new world filled with deaf and hard of hearing people. It wasn’t easy– because I had spent the previous 19 years of my life hiding my hearing aid and feeling quite uncomfortable with anything that reminded me that I was “different.” It took awhile for me to learn American Sign Language and get to the point that I embraced a deaf identity. Once I did, there was an amazing transformation in my life: Yes, I am deaf and gosh-darn-it, that’s perfectly ok.

shiva at Biodiverse Resistance: When Will We Be Paid For The Work We’ve Done?

There are several horrible things here. First, the uncritical use of the term “trainable”, dating from the workhouse-era classification of intellectually impaired people into those who could be “trained” to do “useful” work (often with “training” methods that basically amounted to torture) and those who could not (particularly disturbing coming from a “special education” teacher!). Second, the assumption that her “functioning level” (a heavily loaded and problematic term in itself) will never change throughout her lifetime, and that, despite Brown demonstrably being in reality an adult, her “functioning level” is that of a child, meaning that Masaki buys into the “eternal child” stereotype of learning-disabled people – historically and still used to deny them adult sexualities, adult roles within families, and all the basic rights, freedoms and responsibilities that anyone else is assumed to gain automatically on reaching chronological adulthood – which is perhaps even more disturbing as an attitude held by a teacher whose pupils she considers herself “mentor and so much more” to. Thirdly, the glib “wouldn’t it be nice” comment, which is more patronising “inspirational” crap, making disabled people into ciphers of innocence rather than real, flawed and complex people.

MarfMom: A Call for Posts

A Call for Birth Stories From Women With Disabilities

Whether you knew about your diagnosis ahead of time or not, whether you had a vaginal birth or a c-section, I want to hear your story. Positive birth stories are awesome, but if yours wasn’t what you hoped please feel free to submit it too because I want to keep this blog real and the reality of having a disability is that sometimes our deliveries are complicated. I’m going to leave the term disability open-ended, but I’m basically looking for high-risk pregnancies (or what would have been if you’d known your diagnosis). You don’t need to have a connective tissue disorder.

Anne at Where’s the Benefit: The Damaging Effect of how People Perceive disability benefits

If you are one of society’s more vulnerable members, you will have to fight for everything and wade through reams and reams of red tape. That is the experience that many of us have. And people who become eligible for disability benefits and try to claim them are often completely shocked. Some do not have the energy, emotional strength and/or intellectual capacity to go through all of the form-filling and bureaucracy involved in applying and apppealing.

But so long as the myth persists that it’s simple and easy to apply for disability benefits, people will believe that anyone who says it’s not is making a fuss over nothing, or sticking up for so-called scroungers – and when people become eligible for these benefits and try to apply, they will continue to be absolutely gobsmacked when they find out how difficult it is.

In The News

Canada: The National Post: Bygone Braille. “Advocates blame funding shortages, not enough qualified teachers, and decisions by administrators to deny Braille instruction to children with low vision because of an emphasis on encouraging these students to read print. Educators say this assessment couldn’t be further from the truth and argue that today’s diagnostic tools have honed the art of identifying those who truly require Braille instruction and those who don’t.”

Australia: Australia Misses the Plane on Accessible Tourism. “Based on general population statistics of age acquired disabilities the total expenditure of this group in the travel sector is likely to exceed 22% in ten years time. Not only is this relevant to Australia’s domestic tourism market but the majority of Australia’s inbound tourism is sourced from countries with similar age demographics.”

UK Learning Disability Coalition protests in Birmingham at Government cuts. “The campaigners from Birmingham, many of whom use social care support, held up “Cuts Incident” boards displaying the frontline services which they fear will be affected by the Government’s Budget and Comprehensive Spending Review and subsequent cuts that will be made by local councils.”

Recommended Reading for October 12, 2010

Darshak Sangavi at Slate: Should you crowdsource your medical problems?

To be sure, many patients with complex or poorly understood medical problems like amyotrophic lateral sclerosis congregate in large virtual communities such as PatientsLikeMe, where they share details of their medical treatments and symptoms with each other—and occasionally even launch their own unregulated and informal drug trials. These communities provide some helpful information and support for many people.

brigid at Feminists With FSD: On the FSD hierarchy and why it hurts all of us

A lot of support groups, both on and off the web do not want to recognize women with conditions such as endo as legitimate cases of fsd. We don’t have vulvodynia, vulvular vestibulitis, or vaginismus so we couldn’t possibly go through the same things as women with those conditions. I’m here to change that misconception.

Michael Janger at Abled Body: Web Content Accessibility Law Needs More Brawn

However, the newly accessible video content is only the tip of the iceberg. The major broadcast and cable networks that are covered under the new law produce about 100,000 hours of video content a year from their TV programs. On YouTube — which is not covered by the new law — almost 13 million hours of video content are uploaded annually, and that number is increasing. Over 99% of this Web-exclusive content is not closed-captioned or video-described, nor will it be required to be, under the new law.

Flash Bistrow at Where’s the Benefit?: DLA and work? Who is confused here?

The government has already said that the new medical test is intended to reduce the number of DLA claimants by 20%. But I am not sure how taking benefit from 1 in 5 people will “reduce dependency” (on what?) and “promote work” – indeed, several of the people quoted in my previous article about DLA would have to stop working if they lost that benefit, because they do not have enough energy or capacity to both care for themselves AND go to work. If the government think that turfing disabled people off DLA will suddenly give them the capacity to work, they are very much mistaken. It will just disable them even further.

Sam Roe and Jared S. Hopkins for the Los Angeles Times and Chicago Tribune: The final hours of Jeremiah Clark (major trigger warning for discussion/descriptions of abuse and neglect)

Jeremiah is among 13 children and young adults at the North Side facility whose deaths have led to state citations since 2000, a Tribune investigation has found. Some of these deaths, records show, might have been prevented had officials at the facility taken basic steps, such as closely monitoring residents and their medical equipment.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Recommended Reading for October 19, 2009

In the Blogs:

Them and Us

A lot of people have caught on that they need to provide access for the disabled when they build something, but apparently access is only needed for Them.

You know, Them. There’s Them, and then there’s Us. They might be disabled, but We aren’t, and never will be.

Accessible restroom? Oh, no, because the restroom is only for employees, and none of our employees is disabled (or ever will be).

Elevator to the second floor? Oh, no, because the public doesn’t need to go to the second floor, and nobody who works there is disabled (or ever will be).

Access to the stage? Oh, no. There’s access for the audience (Them), but the actors and singers and stagehands (Us) aren’t disabled (and never will be).

[This really resonates with me, especially after Campaign School this weekend. Although they did address issues of making accessible campaign literature and ensuring your office was accessible, everything was spoken of as though no one with a disability would be part of a campaign, either as a volunteer, employee, or candidate. Them, and Us.]

Marginalized folks shouldn’t always have to be “the bigger persons”

But, you know, it’s not just people of color who are constantly expected to show extraordinary compassion when faced with bias. It is women, gays, lesbians and the transgendered. It is the disabled, the obese, immigrants and the poor. Ask any marginalized person and it is a safe bet that they have been told “have a sense a humor,” “don’t be so PC,” “that’s just how so-and-so was raised,” “here’s a great teaching moment, “you have to understand some people won’t be comfortable with x, y, z,” “he didn’t really mean it.”

Via Unusual Music: College Mental Health: A Different Diagnosis:

Students interviewed for this story reported that mental health seems like a low priority on campus. Alexa at New York’s Westchester Community College notes, “Mental health seems to be something that people really keep to themselves.” She describes her community college’s scarce resources as consisting of one social worker and a two-by-three inch bulletin board in the upstairs of the student center. “I only realized it was there while waiting for three hours in the hallway to register for classes.”

Access to services — such as individual and group therapy, consultation and referrals, support groups, medication monitoring and crisis hotlines — varies from school to school. However, most college campuses would benefit from improvement and expansion of their mental health facilities and services. Students are generally granted a few free counseling sessions, but due to increasing financial restrictions, the number of sessions can be scant — as few as five visits per student.

At two of my previous universities, you were limited to less than 10 sessions over a year. I believe my current one has unlimited sessions, but you must call the office between 9:00 a.m. and 9:15 a.m. for a same-day appointment. There is no booking in advance.

In Our Own Words: Fighting for our DLA [UK] [Older post] [DLA = Disability Living Allowance]

DLA was established, after years of research, because the costs of living as a disabled person in a barrier-filled world organized by and for non-disabled people were considered to be so high. The estimated costs of disability that came out of this research were far, far higher than what is actually now given to DLA claimants. It was also emphasised that DLA should not be means-tested, because the costs of disability are high whether a person is extremely poor or generally has enough to live on.

Also, FrolicNaked did three posts about NPR’s American health care discussion. Post 1, Post 2, Post 3.

My new favourite website: Wave: Web Accessibility Evaluation Tool. How does your website measure up?