Category Archives: disability activism

Announcing: Helen Keller Mythbusting Blogswarm!

A banner that has an image of Helen Keller in the center.  On on side it reads: Political Activist.  Radical Thinker.  Suffragist.  Pacifist.  Journalist.  Socialist.  Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010
Image Description: A banner that has an image of Helen Keller in the center. On on side it reads: Political Activist. Radical Thinker. Suffragist. Pacifist. Journalist. Socialist. Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010″

I learned that Second Life and Virtual Helping Hands are hosting a Helen Keller Day on Second Life on June 19th.

Helen Keller Day is a day set aside for information acquisition, education, exploration of employment opportunities, social engagement, and enjoyment of arts and entertainment. There will be vendors, employers, presentations, and pure, unbridled fun.

I think this is awesome. If I played Second Life, I would be all over this.

It did get me thinking a lot about Helen Keller, and the way people talk about her and use her legacy – something I’ve discussed on FWD before, in Feminist Icons and Subverting the Narrative.

A few years ago someone on a feminist site posted a list of the top 100 historic women in the US, and the list included Helen Keller. A commenter mentioned being surprised to find that out, because… well, what did Helen Keller actually do?

The answer to that question is what this Blogswam is all about.

What’s a blogswarm?

On the appointed day (or there abouts) – in this case, June 19 – people post about Helen Keller. Ideally, they’ll link back to a master post (which I will be hosting here on FWD) and leave a link indicating their participation on the master post. Then, people will be able to see lots of posts about Helen Keller in a variety of places from a variety of points of view.

Okay, but I don’t know much about Helen Keller. Are there some resources so I can learn?

Yes!

This is just a very short list. Your local library may have many books. I never resist the chance to push Lies My Teacher Told Me by James A Loewen, which talks about Keller in the first chapter. The American Foundation for the Blind has a selected Bibliography of books by and about Keller, but I have not read them so I have no personal opinion on them.

But there are other women with disabilities connected to Helen Keller’s life, and I don’t think they get enough attention either. Can I write about them as well as or instead of Keller and still participate?

Yes! In fact, I think it’s an important part of the mythbusting about Keller to talk about Anne Sullivan, who was blind for parts of her life, Polly Thomson, who was a companion and aid to both Sullivan and Keller in later years, and Laura Bridgman, who was also deaf & blind and was “famous” before Keller. And this list is pretty US-centric, and entirely white. Bust the myth that the only women with disabilities doing anything of interest in the nineteenth and twentieth centuries were white women from the US! A very short list: Frida Kahlo, Jhamak Ghimire, Ragnhild Kåta, Theresa Ducharme…

I also think that it’s relevant to talk about Keller’s legacy, and how the treatment of her story – in productions like The Miracle Worker and the oft-repeated story of “the hand in the water” – affect perceptions of people with disabilities, especially blind and d/Deaf people, today. Brownfemipower linked to this discussion of Blind Rage and the Legacy of Helen Keller on TheGimpParade, as an example.

I’m really not up to participating, but I want to be supportive. What can I do?

Spread the word! Tell a friend! Read posts! Link others to posts! Bust your own myths, so that the next time someone says something ignorant about Keller or the work she did, you can gently (or not!) correct them.

I want to participate! But I don’t know if I can on June 19th.

Then write something on another day. The reason I suggest doing it all on the same day is because blogswarms will push across the blogosphere and people will notice them all at once. But please don’t feel obligated or that you’ve “failed” if you don’t write something about Mythbusting on the day.

Also, don’t feel you have to write something new. If you’ve previously written something about this and would like it to get some more attention, feel free to link it as well.

So, now what?

Well, on June 19th I’ll post up an open post about Helen Keller Mythbusting Day here on FWD. Folks can drop their links in right away – my goal is to have it open as early on the 19th as possible. Check back throughout the day to see what posts people have written!

I hope to see lots of awesome posts on June 19th!

Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada

An awesome way to guarantee that you will not be allowed to immigrate to most countries – even if you otherwise completely qualify – is to have a disability, or have a disabled immediate family member.

Despite the Canadian Charter of Rights and Freedoms explicitly guaranteeing that laws in Canada cannot be written to discriminate against people with “mental or physical disabilities” (Section 15 of the Charter), Canada’s Immigration Act allows someone who otherwise passes all of Canada’s immigration requirements to be denied immigration because they “might reasonably be expected to cause excessive demand on health or social services”.

What has this meant in practice? Well, in 2009 Chris Mason, an immigrant from the UK who was injured on the job while working legally in Canada, was deported back to the UK because of his disability. In 2010, Ricardo Companioni was initially denied immigration to Canada from the US because of his HIV-positive status, but managed to argue in Federal court that he and his partner would pay for their drug treatments and thus not be part of Canada’s care system – a solution that is not available to many people. In May, the Barlagne family lost their appeal to be allowed to stay in Canada, as their youngest daughter has Cerebral Palsy. The reasoning was that the court did not believe the Barlagnes would be able to pay for their daughter’s care.

None of these stories are unique. Even when the Bill was being debated in Parliament, Members were bringing up concerns about how the “excessive demand clause” would affect people whose families had disabilities. In 2000, when Wendy Lill, a Member of Parliament, asked:

We have a charter of rights which talks about each Canadian being entitled to equality under the law. The Will to Act Task Force, which was established several years ago, talked about equality of citizenship for persons with disabilities.

Clause 34 talks about how a foreign national or other permanent resident would be inadmissible on health grounds if their health condition might reasonably be expected to cause excessive demand on health or social services. This is the only clause in the bill which seems to me would in any way relate to a person with a disability making an application to come to Canada.

I would like to know if a family with a child who has a disability such as Down syndrome or cerebral palsy would be accepted in this country. [emphasis added]

She was assured by the then-in-power Liberals that:

I think it is internationally accepted, in the Geneva convention and other statutes, that the best interests of the child can indeed be defined. In the case of a disabled child, I believe that the intent is to prevent abuse. The abuse might be that the only reason for someone wanting to come to Canada would be to seek free health care of some type.

However, in the case of family reunification, if we are talking about bringing a new family to Canada, if a child has a disability, frankly, I am absolutely confident, having met the men and women who work in citizenship and immigration, that we would take all of that into account and we would not allow it to stand in the way. [emphasis added]

I’m very happy for the no-longer-in-power Liberals that they were certain situations like the Barlagnes would never happen in Totally-Awesome-To-People-With-Disabilities Canada, but since we live in this Canada, I think their optimism was misguided. As has been amply demonstrated by reality.

The Council of Canadians with Disabilities has recently written yet-another-letter urging the Hon. Jason Kenney, Minister of Immigration, to review the “excessive demand clause”. You can read the letter in full at their website.

I have adapted their letter to send to Mr Kenney, as well as my MP, and provide that letter for my fellow Canadians to adapt or use in any way they see fit.

This is a discriminatory policy. People with disabilities and their families are not drains on the Canadian economy. We are people, and we should not be denied equal rights because of our disabilities.

My letter is below:
Continue reading Call to Action: Tell Parliament to Stop Discrimination against people with disabilities who immigrate to Canada

Why History?

The committee approved my thesis proposal (and I passed my French Proficiency Exam – necessary for Canadianists) and thus I’m now at the stage of my MA where I’m researching, reading secondary sources, and writing stuff up.

[When I lay it out like that it looks so sad and boring. This is the bit where I get to do what I want, in the archives! Looking at letters and school records! I get to apply theories and see if they work, and maybe even develop my own! This is totally my idea of how to have a fun summer! Also, the archives are air-conditioned, which helps.]

My particular project is focusing on the development of residential schools for blind and deaf children and youths. I’m looking at how and why they were founded, what their teaching methods were, and who they hired to work there. I’m also looking at the types of jobs that these children were trained for, and what that says about the way disabled children were perceived by society at large in Nineteenth Century Canada.

I’m also wondering exactly how many blind piano tuners and deaf printing-press operators the province of Nova Scotia thought it could support.

I’ve written before that the history I do is explicitly political. It’s partly about a part of our past that is highly neglected, and partly about arguing, simply by doing it, that this history is important, that it has long-term consequences that we’re still feeling.

But I also write it because people with disabilities have a past, a present, and a future. Because we’re important enough that having a history that’s not just focused on a few Great Examples – Helen Keller, Louise Braille, Beethoven, Terry Fox – isn’t enough. Because knowing how things turned out in the past might give us some insight into how things might be in the future.

Another reason I’m doing this is because it challenges people, and asks them to think.

Every time I tell people I’m doing disability history, “centering the experiences of people with disabilities in the historic narrative”, they are taken aback. They’re surprised. Just by doing history in my department, and telling people how awesome my research is, I’m making more of them think about disability, and about people with disabilities. Without ever having a conversation about language, people in my department have stopped referring to people doing unthinkable things as “mentally insane”. Without my ever leading a classroom discussion about theory and frameworks, my classmates discussed the assumptions about disability presented in several of the readings we did.

These are small things. If I’m lucky, I’ve made 30 to 40 people reconsider their ideas of disability and think about people with disabilities in the past.

And yet, these small things are so satisfying.

Why Don’t Non-Disabled People Trust People With Disabilities Anyway?

Disability simulations and disability awareness days are condescending and patronizing towards people with disabilities. Instead of “raising awareness” about the “struggles” people with disabilities face, they end up raising awareness of how difficult it is to be a first-time wheelchair user, open bottles with socks on your hands, or navigate spaces with your eyes closed. They do not actually teach anyone anything about disability.

 


 


 


 

I suppose it would be wrong to end the post there.

First, a bit of context. Last week marked the third year that some Canadian Members of Parliament (federal representatives) – including my own, Megan Leslie, and the NDP party[1. NDP = New Democratic Party. They’re our more-left-of-center-than-the-Liberals party in Canada. In the UK, they’re like the LibDems, in Australia, I think they’re like the Labour Party (but I’m not sure) and in the US… well, in the US, they’re scary socialists who want universal healthcare and support unions and are pro-choice, so they’d be non-existent in your current political environment.] whip [1. The party whip is the person in a political party who ensures that party members are present for key votes and that they vote in line with party policy. The Wikipedia entry looks pretty good.] Olivia Chow – spent a day on the Hill attempting to do their jobs while using a wheelchair.

Second, important information. This year event is co-sponsored by the Canadian Paraplegic Association as part of Spinal Cord Injury and CPA Awareness Month. While their website refers only to the 2009 event, I’m assuming the relevant information is similar:

Several Members of Parliament and Senators have spent one day in May in a wheelchair. They conducted their normal working day having to make time allowances for simple things like finding wheelchair accessible shuttles and washrooms. They were only allowed to leave their chair while in the House of Commons as there is only one wheelchair accessible spot on the floor for the Parliament Hill event co-sponsor the Honorable Mr. Steven Fletcher.

I think it’s clear that not every disabled person agrees with my assertions about disability simulations, but I have some very strong reasons for describing them they way I do. Some of those reasons are best demonstrated by Olivia Chow’s tweets throughout the day. [You can see this all in context at her twitter. The event took place on May 12. Ms Chow tweeted throughout the day. Ms Leslie also tweeted about her experience, complete with pictures.]

Olivia Chow’s tweets throughout the day really irritate me. She did a series of tweets about the barriers facing wheelchair-users in Ottawa: …lack of curb cuts, bumpy sidewalks, washrooms too small, tables w wide legs…; …hills, doors that don’t open automatically, heavy chairs, elevators shutting too quickly…; Most of these barriers can be overcome by better design, government that understand disability and kind pp willing to help.

Actually, Ms Chow, all over those barriers can be overcome through better design, and while it’s nice if a government “understands” disability, I would really rather they listened to people with disabilities instead.

What Ms Chow’s tweets did is emphasize that, both as an MP and as a former City Councillor for Toronto, she doesn’t trust people with disabilities to actually be telling her the truth about their experiences. Instead, she tweeted
I wish I had this wheelchair experience day while I was a city councillor as a lot of barriers are gov by municipal code.
and Maybe I should work w the Canadian Paraplegic Asso …and challenge councillors to spend a day using wheelchairs.

Actually, Ms Chow, I have a better idea.

Why not challenge the City Councillors, and the MPs, and anyone else you know who has government power to talk to people with disabilities about what their needs are, instead of deciding that spending a day in a wheelchair gives you some special insight? (Especially egregious to me is that the nice people playing dress-up in their wheelchairs for a day could instead have asked Steven Fletcher, the Conservative MP for Charleswood—St. James—Assiniboia, Manitoba, who is a full-time wheelchair user. He might be able to shed some light on issues of accessibility in Ottawa. Mr Fletcher does support this disability simulation, but this doesn’t actually prevent anyone in Parliament from asking him about it anyway.)

It really disappoints me to see the NDP participate in these so-called disability simulations rather than use their power to highlight the voices of actual people with disabilities when discussing their accessibility needs.

Canadians with disabilities campaign constantly for their voice. We don’t need Olivia Chow, or Megan Leslie, to go around for a day tweeting about how inaccessible Ottawa is. We need our elected representatives to actually listen to our concerns. We need them to take those concerns seriously, and present them to their Party – be it NDP, Liberal, Conservative, Bloq, or Green – and to our Government. We need politicians and policy makers to believe that our voices are the ones that define what our accessibility needs are, not a day-long experiment.

I know that going around for a day in a wheelchair gets attention and kudos from the currently non-disabled. I’d rather that attention be offered to the people who continue to be notably absent from our Houses of Government.

Recommended Reading for Thursday May 20 2010

An image of a beach with blue sky, dotted with clouds. A figure sits in the sand by the waves. In the foreground, a wheelchair sits on the sand.
An image of a beach with blue sky, dotted with clouds. A figure sits in the sand by the waves. In the foreground, a wheelchair sits on the sand.

“….” by mataikan, seen at binary canvas.

Ghana News Agency – Mental Health System on the verge of collapse

Dr Akwasi Osei, Chief Psychiatrist of the Ghana Health Service, on Monday said the mental health system would soon collapse if the Mental Health Bill was not passed to correct the abuses and injustices in mental care. He said it was unfortunate that the Bill, drafted in 2004 and completed 2006, was still lingering at the Ministry of Health. Speaking at a workshop on the State of the Mental Health Bill and the United Nations Convention on the Rights of Persons with Disabilities, (UNCRP) for media practitioners, in Accra, he stressed that there was the need for the law to protect the rights and interest of patients and to overhaul the entire mental health system.

Guernica – Jonathan M. Metzl: In Medical Records, a Story of the Racialization of Schizophrenia

Ionia held these men using little-known loopholes in deinstitutionalization amendments that stipulated that the hospital would continue to receive or contain patients deemed too violent for state correctional institutions, or who posed “dangerousness to the community” even after most other patients were set free. The word negro appeared on the upper right corner of the face page in eight out of every ten of these charts. And schizophrenia, paranoid type was overwhelmingly the most common diagnosis applied to these men, these institutionalized black bodies that deinstitutionalization left behind.

the personal hurricanes of kirsty mitchell – quote from siri hustvedt, the shaking woman

the DSM does not tell stories. It contains no cases of actual patients or even fictional ones. Etiology, the study of the cause of illness, isn’t part of the volume. Its mission is to be purely descriptive, to collect symptoms under headings that will help a physician diagnose patients. there is a companion DM-IV casebook, but notably, these narratives about real doctors and patients are gathered in their own volume, seperate from the diagnostic tome.The fact is that all patients have stories, and those stories are necessarily part of the meaning of their illnesses. This may be even more true for psychiatric patients, whose stories are often so enmeshed with the sickness that one can’t be untangled without the other.

Toronto Sun – Family denied residency because of disability

A French family denied permanent residence in Canada because one of the kids has cerebral palsy may have to leave the country following a federal court decision Tuesday. David Barlagne has been working in Montreal since July, 2005. He applied for permanent residence status for his family but was turned down because of the extra costs of putting his daughter Rachel, who has cerebral palsy, through elementary and secondary school. Under Canadian law, immigration officials have no choice but to deny applicants whose health condition could cause excessive demand on social services. Barlagne appealed but the federal court upheld the original decision.

Caltics – Don’t Fall For Arnold’s Wedge [California governor Arnold Schwarzenegger recently issued a proposed state budged with drastic cuts to essential programs for low income Californians and Californians with disabilities.]

Now it must be said that it’s not just the poor who will suffer under this budget. But the budget cuts are quite obviously calculated to hit those Californians without a voice, who are seen as marginal, whose funding can be cut with the least public outcry. The elderly who will lose some or all of their IHSS benefits and the children who will lose health care services are not necessarily “poor”; those cuts will hit the middle-class as well. We can’t fall for Arnold’s wedge. Arnold is shifting tactics because he’s scared of us – scared of the public reaction against three years of austerity. Now is the time to ramp up the attack on that austerity, to move beyond tired old Reaganite claims that there’s some difference between the needs of the middle-class and the needs of the poor. Many middle-class families have benefited from the very safety net programs Arnold now proposes to cut or eliminate, and many more middle-class families benefit – at their jobs and businesses – from less fortunate families having at least some state assistance.

Why I Am Not a Libertarian

Here in the U.S., there’s been a lot of buzz about Rand Paul, son of Ron Paul, winning the primary for Republican senator in Kentucky. Paul is a darling of the Tea Party and largely espouses libertarian values of decreased taxes and decreased government regulation and intervention.

There are some things about libertarianism that I like and agree with. I’m against state interference in romantic and/or sexual relationships between consenting individuals with full capacity. I’m in favor of strong civil liberties and freedom from search or surveillance by the state.

But I do not trust the free market to take care of civil rights issues, primarily because I’ve seen the free market fail to take care of civil rights issues for hundreds and really thousands of years. And I believe that getting the government out of the business of defining and enforcing civil rights would have disastrous results for all but the most privileged among us. And Rand Paul’s espoused views bear that out. Here’s what he’s got to say about LGBTAI rights and women’s health:

Not only is Paul perfectly fine with government prohibiting marriage between gays and lesbians, it bears mentioning that Paul’s anger towards the government for “betraying the medical privacy of ordinary citizens” doesn’t extend to women, whom he believes should be forced to carry unwanted pregnancies to term if state legislators deem it so. He also wants to offer legislation “restricting federal courts from hearing cases like Roe v. Wade.”

This isn’t even a consistent position – Paul is in favor of government intervention in personal relationships, as long as it’s “only” LGBTAI relationships. He’s also in favor of government intervention in personal medical decisions, as long as it’s “only” affecting the decisions of women considering whether to terminate a pregnancy. What he has to say about protections for people with disabilities is even more troubling:

You know a lot of things on employment ought to be done locally. You know, people finding out right or wrong locally. You know, some of the things, for example we can come up with common sense solutions — like for example if you have a three story building and you have someone apply for a job, you get them a job on the first floor if they’re in a wheelchair as supposed to making the person who owns the business put an elevator in, you know what I mean? So things like that aren’t fair to the business owner.

Yes! Let’s let the free market take care of rights for people with disabilities! Because it’s for damn sure that even with the existing governmental protections for civil rights, companies are taking an unbiased and totally not ableist at all approach to employing PWDs and even accommodating them as customers! So eliminating those marginally adequate and woefully underenforced protections would surely have the effect of enhancing overall liberty and freedom! That is, if you are looking only at the liberty and freedom of the already privileged.

There has been a lot of discussion on this site of how entrenched institutional ableism results in discrimination against PWDs, makes them more likely to live in poverty, lack employment, and have disproportionately negative health outcomes. That’s the status quo that would be preserved if government intervention and regulation of the rights of PWDs were to end. But there are definitely people who are benefiting from the status quo – white, cis, hetero, TAB men, predominantly. And we should be very clear that limiting government intervention would primarily preserve the status quo that benefits them.

Which is why you should not be surprised by two facts: 1) Rand Paul is a white cis hetero TAB man, and 2) I strongly disagree with these political ideas. While there are some areas in which I support limiting government intervention, my overall goal is to maximize rights of historically disadvantaged and relatively unprivileged populations, whether it takes more or less government to reach that end.

An Open Letter to Ms Magazine Blog

Dear Ms Magazine Blog:

My name is Anna. I’m what some people in North America would call a person with a disability, and some people in the UK would call a disabled person. My husband, many of my friends, all of my co-bloggers, and a large number of our commenters are also people with disabilities/disabled people.

Your blogger, Carol King, would instead refer to us as “the disabled”, and as pawns of the religious right. In her blog post Kevorkian and the Right to Choose , she wrote:

The “right-to-lifers” enlisted the disabled in their cause when they cautioned that allowing people to choose to die would soon become their “duty to die.”

I’m pretty angry about that. Not offended, Ms Magazine, angry. You see, I’m really tired of “the disabled” being treated like we’re unthinking masses. I’m especially tired of the feminist movement – you know, one that allegedly wants equal rights for all people, including women with disabilities – doing this. It makes me angry because I’m a feminist as well as a woman as well as a person with a disability as well as someone who is not the pawn of anyone, thank you very much.

Some people with disabilities support the right to die. Others do not. Others do in some cases and not in others. Each of us has come to the conclusions we have because we are reasoning individuals. Gosh, some of us are even feminists who use a feminist lens to come to our decisions, regardless of which of the many places on that particular spectrum of opinion we find ourselves.

People with disabilities deserve better treatment than you have given them. We are not a throw-away line so you can score some sort of points. We are people, and I’m appalled that a feminist blog like Ms would publish something that would treat us as otherwise.

Frankly, I am so fucking tired of this shit. I’m tired of smiling while feminist organisations treat people with disabilities like they’re afterthoughts and problems to be solved. Like we’re just pawns in politics, like we need to be appeased but never spoken to or considered, like we’re too angry or not angry enough, like we have to push this fucking rock of dis/ableism uphill while you – our “sisters” – stand by and politely look away.

Do you remember Beijing, Ms Magazine? You’ve talked about it a lot lately. You know what I know about Beijing? I know the accessibility tent was inaccessible to people with disabilities. [transcript follows]

“We will achieve our rights and the respect we deserve as women with disabilities.” “Because the issues of women with disabilities have often been excluded, the goal this year was to make sure the concerns of disabled women were addressed.” Oh, hell, just watch the whole damned thing – it’s subtitled – and see the commitment feminists made to women with disabilities. Ask yourself, seriously, Ms Magazine, why your new blog has decided not to talk much about women with disabilities. “No woman who attends this conference should be able to leave Beijing without thinking about the rights of women with disabilities.” Do you?

You know what? If that’s something you can’t do, let me sum it up:

Nothing about us without us.

You wanna talk “about” “the disabled”? How about talking to us? How about letting us talk for ourselves?

How about treating us – people with disabilities – the way you would like women like yourselves to be treated? As though we have some understanding of our own experiences, our own opinions, our own thoughts. As though our thoughts do not belong to anyone but ourselves?

As though we are thinking beings?

Again, my name is Anna. I, like you, am a woman, and I am also a person with a disability. And we deserve better from you.

Sincerely,

Anna.

Please note: This thread is meant to be about the continued marginalization of people with disabilities in the Feminist Movement. I won’t be approving any comments about Kevorkian or related discussions.
Continue reading An Open Letter to Ms Magazine Blog

Go educate yourself (please!)

Image description: A shocked-looking cat perches on a chair, staring straight at the camera. Text reads: Concerned cat is just looking out for your best interests when she says that your tone might be alienating well-intentioned potential allies who just need a little polite education.

[Image via Tlönista in this comment thread at Flip Flopping Joy. Description: A shocked-looking cat perches on a chair, staring straight at the camera. Text reads: “Concerned cat is just looking out for your best interests when she says that your tone might be alienating well-intentioned potential allies who just need a little polite education.”]

One unfortunately common response to marginalized people saying that there’s a problem is the “Educate me NOW” demand from “well-intentioned allies” who totally mean well, but they just lack education on these issues and so just can’t understand what the fuss is all about.

I am using the following example not to appropriate from the awesome anti-racist work that Jessica Yee and the fabulous Racialicious crew (and countless bloggers around the web!) do on a daily basis, but rather for two specific reasons: 1.) I have already talked about my personal relationship with this oft-used derailing tactic rather extensively, and could probably talk about it ’til I’m blue in the face; 2.) anti-racist activism and disability activism are not completely separate, independent social justice strains — many of us who are involved in these activist projects are, in fact, fighting similar (though NOT completely analogous) battles. For me, claiming an identity as a feminist disability activist has entailed doing my best to fight racism and white privilege alongside fighting for disability rights. This is because disability and race intersect in many, many ways — sort of like how disability and gender, and race and gender, intersect. In other words, this is not just a disability issue, or a feminist issue,  or a trans* issue, or an anti-racist issue; it affects many of us in the social justice blogosphere, if in differing ways.

The “educate me now because I want to learn, marginalized person!” response played out, yet again, fairly recently in the comments to a post on Bitch authored by Indigenous activist and writer Jessica Yee. [Full disclosure: Some of us here at FWD guest blogged for Bitch as the Transcontinental Disability Choir.] Jessica had written a post on white hipster/hippie appropriation of native dress and why it’s not only ridiculous, but racist. Makes sense, right? (If it doesn’t, you might be at the wrong blog. Or go read this. I don’t know.) Overall, this piece seems like it would fit right in on a website for a magazine that is dedicated to showcasing “feminist response[s] to pop culture.”

And then the comments started rolling in, and so did the “but you have a responsibility to educate people who mean well!” trope:

I’m sure this is in fact extremely annoying. However, you might consider that when people bring that up, they’re not saying, “Hey I’m just like you and I totally understand what you deal with,” they’re trying to make a connection and learn something. Ignorant people are a pain in the neck, but they’re mostly not trying to be ignorant on purpose.

I‘m merely suggesting that if this is a cause you deem worthy of championing, then you should have a prepared source of information for them—be it this blog, book titles, or documentaries. Encourage them to learn more about THEIR history and perhaps you’ll draw a new soldier to your army.

It seems somewhat contradictory to put stickers on your laptop that indicate a Mohawk heritage and then rudely dismiss a stranger who expresses an interest in your advertisement. Perhaps a better way to accomplish your agenda (whatever it is) would be to engage in polite and open-minded conversation with those who mistake your stickers for an invitation.

Thea Lim at Racialicious pretty much nailed it in her recent post on what went down, entitled “Some Basic Racist Ideas and some Rebuttals, & Why We Exist” (which I highly recommend that you read in full, by the way). An excerpt:

This kind of hey-let-me-help-you-achieve-your-goal-by-suggesting-you-be-more-radio-friendly response totally misunderstands (and appears disinterested) in the anti-racist project, because it assumes that anti-racism is all about convincing white people to be nice to people of colour.   In other words, it assumes that anti-racism revolves around white folks.  Like everything else in the world.

Anti-racism and people of colour organizing is not about being friendly, being appealing, or educating white folks. While individual anti-racist activists may take those tacks to achieve their goals, the point of anti-racism is to be for people of colour.

I completely agree with Thea here — and I believe something similar applies to disability activism. That is: Those of us with disabilities are not here to make abled people feel comfortable, to hold their hands as they have a Very Special Learning Experience (most often, it seems, at our expense), or to make them feel good about themselves. I, personally, don’t care how “good” your intentions are, or that you reallllllly wanna learn, or if you think I’m being mean by not dropping everything to educate you when you demand it.  While I definitely don’t want to speak for Jessica, Thea, or any of the Racialicious contributors — or for people of color who do anti-racist work — I suspect that they may feel similarly about white people who come into PoC, WoC or other anti-racist spaces and demand that whoever is doing the activist work must halt whatever discussion is going on and educate them, now, because they are good “liberal” white people and have such good intentions, and you PoC want white people like me as allies, right? And if you don’t drop everything and rush over to educate me, well, you’re just a big meanie who must not want my support after all (such “support” is often conditional, and based upon whether the marginalized person can make the non-marginalized feel comfortable at all times), or you just want an excuse to be racist toward white people! Or some other ridiculous thing.

For me personally, the willingness that I “should” have to help well-meaning folks learn is also an energy issue. I am a person with disabilities, several of which I have written about at length on this website — and one of which is a pain condition subject to flare-ups. Thus, I have to manage my time and energy extremely carefully. Having to explain basic concepts over and over again to strangers on the internet because they’ve deigned to tell me that they “want” to learn — and some of whom may think, by extension, that they are somehow entitled to my time and energy — takes work. Writing takes work; additionally, a lot of bloggers do the blogging and responding to comments thing for free, on their own time.

And sometimes, those of us with conditions that intersect with our ability to do this work end up burnt out, frustrated, or we lose our patience. Though these end results are often nothing personal, they might read like it, and we end up paying the price energy-wise only to have that person who realllllly wanted to learn petultantly respond with something like, “You must not want to educate me, then, if you’re not up to answering all of my questions!” and leaving in a huff. But they reallllly want to learn. . . that is, if someone else does the brunt of the work for them and/or gives them good-ally cookies for just wanting to be educated about all this social justice stuff. Merely wanting is not enough; you have to actually follow through for your good intentions to matter.

There is, thankfully, a solution to this problem: those people who say, or comment, that they realllly want to learn must take responsibility for their own learning. There are several ways that this can be accomplished, among them lurking on blogs for a while before one starts commenting, reading a site’s archives (and most sites have them!), picking up a book (or two), reading some articles online or off. Certainly, there are a lot of things that are privileged about this assertion; of course, not everyone has the time to read about social justice, lurk on blogs, or take similar steps. But what is also privileged is the putting the responsibility for your own 101-type education onto someone else — someone who might not have all of the energy, time and patience that you might.

[A slightly different version of this post has been cross-posted at ham blog.]

BADD: A Screenshot’s Worth A Thousand Words

More for Blogging Against Disablism Day.

I just poked around the entry for “Ableism” on Wikipedia. On the Talk page, I found a box placing the Ableism article within WikiProject Sociology:

Screenshot: This article has been rated as Low-importance  on the project's importance scale.

“This article has been rated as Low-importance on the project’s importance scale.”

Ableism of low importance within Sociology? Erm, ooookay. Let’s have a closer look at their definition of “Low-importance”:

This article is of little importance to this project, but it covers a highly specific area of knowledge or an obscure piece of trivia.

20%, people. Disabled people form around 20% of the population in Australia and the USA (and similar numbers in similar societies). One in five. Discrimination is huge, it is institutionalised, it is very often legal. Disabled people are some of the most vulnerable, the most underemployed, the most abused, the most excluded, the most neglected, the most murdered people in our cultures.

“Low importance”? “Obscure piece of trivia”?

OK, so let’s have a look at some other big discriminations. Racism and sexism, are they categorised as obscure pieces of trivia too? (On Wikipedia, I wouldn’t be surprised…)

Screenshot: WikiProject Sociology (Rated Start-Class, High-importance)

Sexism is of High Importance. OK. I agree.

So, racism. I guess the importance of racism within sociology, according to Wikipedians, would be, oh, about similar to that of ableism?

Screenshot: WikiProject Sociology (Rated B-Class, High-importance)

OK, so racism is of High Importance also. OK. I agree with that too.

So why is Ableism of Low Importance? Why does the biggest encyclopedia on earth consider it to be of lesser importance than discrimination against other minorities? Why are sociologists learning and being taught that racism and sexism are The Discriminations, that all others are secondary or tertiary or not really worth bothering about? Why, when a person is both female and PWD, or of colour and PWD, or all three, and/or lesbian, trans, non-citizen, working class, and so on, is ableism automatically ranked as the least important discrimination they’ll encounter? Why are PWD losing this Oppression Olympics, a game we shouldn’t be playing in the first place? (“Intersectionality” hasn’t yet received a rating on the Importance scale at Wikipedia.)

Other topics considered more sociologically important than Ableism (not equal, but more), as far as Wikipedians are concerned, include:

est and The Forum in popular culture

Ralph Larkin

Wilhelm Dilthey

Vixen (comics)

Stay-at-home dad

Weddings in the United States

Truce term

Friendship Paradox

Heterophobia

Babywise

Boomerang Generation

eHarmony

Lavalife

OkCupid

Yahoo! Personals

Fritzl case

List of UFO religions

Greenbelt, Maryland

The Hapa Project

Biosocial criminology

Grand Tour

Speed dating

Blond

Schoolgirl

and Hooters.

De’VIA

As I repeatedly told anyone who would listen to me, last weekend I went to a conference in Toronto. While there, I visited Toronto’s Deaf Culture Centre. [1. Little-d deafness is the “medical” condition of not being able to hear, or hearing very little. Big-d Deafness is being a member of a cultural & linguistic minority that uses Sign Language. In English Canada, this is typically American Sign Language, although there are other Sign Languages used here.]

One of the exhibits at the Deaf Culture Centre was about De’VIA – Deaf View Image Art – which “specifically reflects Deaf experience and Deaf Culture.”

I’m still learning about De’VIA, as my particular studies are in nineteenth century d/Deafness. What I like about what I’ve seen is looking at art that is not only explicitly political, but is explicitly about being Deaf. In Toronto, the current exhibit is paintings of Sign Language.

As a Hearing person, I don’t want to talk too much about Deaf artists and De’VIA. Instead, for people not familiar with it, I’d like to show you some very iconic De’VIA images, and then direct you to some websites where Deaf Artists are writing about their work.

This first piece is by Ann Silver, called Deaf Identity Crayons: Then and Now.

A description follows this image
The image is of two crayon boxes. One is done in sepia tones, with “Deaf Identity Crayons” written across in an ‘old-time’ script. The crayons each have a label: Dummy; Lip Reader; Deaf & Dumb; Handicapped; Oralist; Deaf-Mute; Freak. The second box looks like the iconic Crayola-crayon box, with “Deaf Identity Crayons” written across the front. The crayons are CODA; Seeing; Deaf-Blind; Late-Deafened; Deaf American; Hard of Hearing; Signer; Deaf.

(Oralism is the techniques used to teach Deaf people to talk. CODA is Children of Deaf Adults.)

Silver’s biography is available on the Deaf Art website, but I especially love her description of her art:

My language of art has, over the years, metamorphosed from pictorial grammar to creativity and critical thinking. I turn to art (1) as an artistic expression of the Deaf Experience—i.e., culture, language, identity and heritage; (2) as a Zen meditation and an aesthetic recreation of the contemplative state in which it allows my thoughts to drift by without grasping at them; (3) as an emergency back-up whenever the English language gives me semantic anxiety; 94) as an academic study vis-à-vis Deaf Studies; and (5) as a visual weapon to deal with polemical issues and concerns such as stereotyping, inaccessibility, paternalism, inequality and discrimination on the basis of hearing status (a.k.a. audism)

Another very popular piece is this one, by Betty G. Miller, called The ASL Flag:

Description follows
Description: This is a diptych, and the two canvasses come together to show a waving flag much like the United States flag. Instead of stars again the blue square, it shows 28 white hands Signing. Between the red and white stripes of the flat, it has the following:
Oh can’t you seeee…. by dawn’s early light
what proudly…. we Deaf wave at visual beauty
we see in sign language burst in air…
no matter people hearing stare…
show proof that… Deaf and ASL still here…
oh why Deaf people opressed?
over the land of the free…. and the home of the brave…??

Again, I like Betty’s bio, but I will highlight this portion:

When asked to explain the values behind her work, Dr. Miller replied:

“Much of my work depicts the Deaf experience expressed in the most appropriate form of communication: visual art. I present the suppression, and the beauty, of Deaf Culture and American Sign Language as I see it, both in the past, and in the present. Oppression of Deaf people by hearing is actually cultural, educational, and political. Another aspect of my work shows the beauty of Deaf culture. I hope this work, and the understanding that may arise from this visual expression, will help bridge the gap between the Deaf world, and the hearing world.”

You can see images of Betty’s work, and perhaps buy a t-shirt or similar article with images on it, at Betty Gee’s cafe-press store.

I won’t say too much else here, except to link to discussions about De’VIA elsewhere.

Betty Gee’s website
Deaf Art, Deaf Artists
Deaf Culture – Deaf Art on About.Com
Deaf History Through Art – De’VIA revisited after 15 years!
Deaf Art.org