Monthly Archives: November 2010

How Can Teachers & Professors Help Students With Disabilities?

One of the things we often get asked after one of us, or a guest poster, makes a post about education and accessibility is to tell teachers and professors what they can do to ensure their classes are accessible. I understand and appreciate the motivation for this question, but the problem is that we can’t really answer it with any usefulness because it depends too much on the location you’re in, the access to resources you have, and the flexibility of your educational institution.

There are two things that teachers and professors can do to have their classroom be as accessible to students with disabilities as possible.

1. Learn what your educational institution can do for students with disabilities.

One of the things that student accessibility services often do is ask students “So, what accommodations do you need?” While this is helpful for getting a conversation started, it’s not necessarily in the best interest of the student to have them just come up with a few suggestions and then focus on those. Frankly, most students won’t be aware of what accommodations are available for them, which someone working in student accessibility services would be aware of. (To give an example, I only learned recently that the university that Don dropped out of due in part to difficulties in getting accommodations had the option of adjustable tables for students with disabilities. Having never encountered them before, he never thought to ask.)

As a teacher or professor, being aware yourself of exactly what accommodations are available, and what is required to get them, will allow you to work with your students to ensure that they get the best aid possible. It will also allow you to know what you can do for any students who may be temporarily disabled due to injury or accident.

Last year I was part of a review committee for the university, and learned that none of the professors I asked had any real idea of how they would assist a student with disabilities in getting accommodations, or how they’d need to adjust their academic advising for a student with disabilities. Being that there are whole buildings on my campus that are not accessible to someone who can’t walk up a flight of stairs, which actually prevents students with mobility-related disabilities from taking any classes at all in certain disciplines (a fact that always seems to surprise people when I point it out), this strikes me as something professors, especially those who do academic advising, would need to be aware of.

2. Let students know that you’re aware that accommodations may be necessary and that you’re open to discussing those issues. Let students know how they can contact you if they need accommodations – whether you prefer email or coming by during office hours, or both.

One of the things many universities require students to do is go up to strange professors that they’ve never met before and start discussing their disability. While on the surface this probably looks like “a reasonable amount of self-advocacy”, the students with disabilities I’ve talked to often describe this as the worst part of getting accommodations. They have no idea what they’re going to face. Will it be someone who grudgingly agrees to something, obviously irritated? Will it be someone who rolls their eyes and suddenly starts talking about how easy it is to fake being disabled? Will it be someone who gives them a little “Everyone’s a bit disabled!” speech? Or will it be one of the many professors who are very accommodating and happy to make their class as accessible as possible?

(I assure you, there are many many professors who are happy to help! But, of course, the stories most passed along, and the ones that worry students with disabilities the most, are the ones where something terrible happens.)

Having this conversation also gives you the chance to let any students with disabilities know that you don’t know everything, and that you’re willing to learn what you can do to best assist them.

I believe that a lot of professors and teachers, just like a lot of the staff that works with students with disabilities, really want what’s best for their students, and want them to be able to do well in school. I know that a lot of times there’s only so much they can do, due to lack of funding or lack of assistance from other people in an educational institution. Knowing what you can do can be endlessly helpful to assisting students with disabilities in your classroom.

Recommended Reading for Wednesday, November 3

I’m sorry this is at an odd time today. I forgot it was Wednesday. (I forgot yesterday was Tuesday, so this makes total sense.)

Monday was Autistics Speaking Day:

Corina Becker at No Stereotypes Here: Preparing to be Loud

When I proposed Autistics Speaking Day, I merely thought that it’ll be myself plus a couple of others participating. However, it turns out that there are a lot of people who feel the same, and different names for it, from Autism ShoutOut! to our Autistics Speaking Day.

The name for it doesn’t matter. This is a day that is supposed to be about spreading Autism Awareness, therefore it’s OUR day. It doesn’t just belong to me, it belongs to all of us, and what matters is that we stand together to raise Autism awareness.

Corina followed up with The Success of Speaking

I will be honest, when I proposed Autistics Speaking Day, I thought that at best it would be myself and a few others, tweeting on Twitter and maybe putting up a few blog posts. And when the criticisms came in, with people saying that much wouldn’t happen, so why bother, I thought of two things. The two things that leads me to be active in the Autism and Disability communities.

Corinna and Kathryn Bjørnstad have made a very long list of bloggers that participated in Autistics Speaking Day. I recommend checking them all out.

Steve Silberman at Neurotribes: I’m Right Here: Rudy Simone on Life as an “Aspergirl”

Unlike autistic author and animal-behavior expert Temple Grandin — whose life was the subject of an acclaimed HBO biopic starring Clare Danes — Simone wasn’t diagnosed until she was in her 40s. Diagnosis in mid-life is common for women with Asperger Syndrome. Often highly intelligent and articulate, they’re able to mask their social deficits while leveraging their ability to focus intensely into achievements in school and the workplace.

Simone had a relatively happy — if eccentric — childhood, but when she hit adolescence, the social tide seemed to turn against her, washing away most of her friends. Suddenly, her trusting exuberance and hyper-focus made her weird in the eyes of her peers, and a convenient target for bullying and abuse. One day, Simone’s chief tormentor at school brutally beat her in front of a cheering crowd of older kids. Humiliated, the 12-year-old Simone stopped singing and laughing in public

The Untoward Lady at the Vibrating Square: Memories [Discusses bullying]

I expected to remember the bullies. I expected to remember the pain that had been caused. I had thought that the faces of my memory, the pain, would come and surface again as I looked at the rows of portraits.

MASSIVE TRIGGER WARNING ON THIS ONE: Dave Hingsburger at Rolling Around in my Head: Curbing Anger: Daring Difference (TW for abuse of autistic boy)

What they did defies understanding. Maybe it just defies MY understanding. For three days they tortured a young 17 year old man with autism. The list of what they did is astonishing in its length, in its cruelty, and (it must be said) in its creativity. Here’s a brief survey of what a teen boy with autism suffered at the hands of his tormentors.

The Quixotic Autistic: New Age & Autism Part One: The Horse Boy (See also Part Two)

My very first instalment in my series on New Age perspectives on autism begins with the book and movie of the same title, The Horse Boy, the book being written by Rupert Isaacson, the movie directed by Michael O. Scott. At the centre of both though is Rowan Isaacson, son of Rupert and Kristin. He is the titular “Horse Boy” and he has autism. The book and film both chronicle his parents taking him on a special trip to Mongolia to consult with traditional Mongolian shamans, in hopes of “healing” Rowan from his tantrums and incontinence, as well as helping him become more social and less agitated by overstimulation. The idea is that the combination of riding horses and shamanistic healing will benefit Rowan emotionally and physically.

jholverstott: A Shade unDifferent: Latent Bullying and ASD, the Epidemic Grows

Most of what I have read in the literature suggests that anti-bullying campaigns are ineffective, at best, and potentially damaging, at worst. Kid with ASDs are a tricky audience, regardless. They are kind, too kind to stand up for themselves with the empowered and sometimes sassy words that stand down a bully. They are not equipped to recognize the savviness of cyber- and mobile-bullying, with its faceless and nameless tactics. They are primed targets because they want so desperately to believe in others, to believe in a friend, to have a friend. They are cyclical victims because of the flaws of the system that shields them; “tattle” and enlarge the target.

The 2010 Don’t DIS My ABILITY Campaign Has Kicked Off!

People. People. I cannot even tell you how excited I am. In November-December in New South Wales, the awesome-est state in Australia[1. My esteemed co-blogger Lauredhel might disagree with me there.], we have a little something called the Don’t DIS My ABILITY campaign. There are loads of events run around the state leading up to the International Day of People with a Disability.

My personal favourite bit is the campaign magazine, Made You Look. You may remember that Lauredhel wrote about playground accessibility for disabled parents for the magazine last year. This year, Ouyang Dan and I both contributed pieces. OYD’s is on ableist language and is called “Think before you speak,” mine are “Type (re)Cast,” about popular culture representations of PWD, and “Seen and not heard,” on my experiences of being young and disabled. If you’re in NSW, you can pick up a hardcopy at your local library, all over Sydney and at loads of regional newsagencies (full list of places you can obtain the mag here). If you are elsewhere, you can download a copy, in one go or in sections, if that’s easier.

But that’s not all! Check out the Don’t DIS blog. I’m going to be writing there over the next month about such topics as who gets to speak about disability advocacy, narratives of disabled laziness, where conversations about disability tend to stop, body image while disabled and what respecting disabled people means. You yourself can participate: check out this post about blogging for the campaign here.

It’s going to be a fabulous month, readers.

Recommended Reading for November 2, 2010

Siddharta Mukherjee for the New York Times Magazine: The Cancer Sleeper Cell

In fact, this view of cancer — as tenaciously persistent and able to regenerate after apparently disappearing — has come to occupy the very center of cancer biology. Intriguingly, for some cancers, this regenerative power appears to be driven by a specific cell type lurking within the cancer that is capable of dormancy, growth and infinite regeneration — a cancer “stem cell.”

staticnonsense at Some Assembly Required: The Abstracts of the Mind and the Schizophrenic Metaphor

One of the elements of psychosis is what is called cognitive disorganization, or formal thought disorder. This can lead the brain to think in more abstract forms. This is also where people get the idea that those with schizotypy are artistic, when we may not exactly see ourselves as such. Much like other elements of psychosis, this is heavily impacted by stress levels. Seeing as I was in an abusive relationship at the time, one that amplified all of the symptoms of my mental illnesses, one can imagine that this cognitive disorganization was also amplified.

XLII at Aceldama (Tumblr): Everyone makes me want to puke

no, helen keller jokes aren’t funny. she rose to great prominence and is a role model for all people with similar disabilities. making fun of her is making fun of us and telling us that even if we become powerful, people will just see us for our disabilities and as a joke.

NPFP Guest Poster at Raising My Boychick: Hold This Thread as I Walk Away

People try to joke with me, saying they wish they had that ability like I do. Most of the time I just laugh it off. I don’t expect them to understand. After all, if you’re not there, you can’t experience what’s going on in the world around you, right? It can’t affect you.

Right?

I wish. Unfortunately, it doesn’t work that way.

Joyojeet Pal at Yahoo! Accessibility blog: Disability in the Media: Issues for an Equitable Workplace

The canonical western cinema has followed a few dominant patterns regarding the portrayal of people with disabilities. Characters could typically be pitiable (Coming Home), burdensome (Whose life is it anyway?), sinister (Dr. Strangelove), or unable to live a successful integrated life (Gattaca). The fundamental underlying theme has been the disabled character’s maladjustment or incompatibility in the public sphere, effectively highlighting what we can be referred to as an “otherness” from the non-disabled population.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Guest Post from Jesse the K: Voting Opportunities and Mechanics

Jesse the K hopes you can take a disabled feminist to tea this month. Her previous guest post was Making Space for Wheelchairs and Scooters.

There are many things we can do to improve everyone’s lives. Voting is not the only thing, but it sure is easy to do. Many have given their health, their peace of mind, and their lives for the right to exercise the franchise. If you live in the U.S., join me[1. As long as you’re government approvable, that is, you’re the right color or rich enough to become a citizen or you haven’t been arrested or too recently paroled as part of your systematic community destruction program] and head on down to the polls in your municipality this coming Tuesday.

And while you’re there, you might be wondering, “Gee, just how do people with disabilities vote?” As it happens, I know a little about this.

Description is below text
CAPTION: laptop size plastic machine with letter-size screen. Woman using powerchair, wearing purple hat and favorite[1. How do I know it’s her favorite jacket? I modeled for the photo] purple jacket feeds ballot into slot below screen.

One decent result from the G.W.Bush administration was that the voting process must be independently accessible to people with disabilities. Before then, most people with disabilities would enlist the assistance of a helper where needed. Then they’d vote absentee (returning the ballot in the mail) or bring the helper into the voting booth on the day. I remember assisting a blind person with a mechanical voting machine–a lever for each name! Xe jested that it was a refreshing change to depend on someone with whose politics xe was unsure (as opposed to xir long-time partner), and yet the joke had a bit of a sting to it.

Reflecting strong republican sentiment in the U.S., voting is controlled at the lowest possible administrative level. Voting techniques vary widely from state to state (sometimes city to county). In Wisconsin you can register to vote five minutes before casting your ballot, but in some states you must register 30 days in advance. But since I can now depend on getting my power wheelchair into the polling place, it seemed like a good year to volunteer as a poll worker. I went to the “new election official in Madison” training today [Editor’s note – October 28].

Two points up front:
1. I wasn’t expecting the disablist training, so I wasn’t taking verbatim notes. I could not swear to any of the following in court; as far as the essential drift, I do believe I’m correct and I heard the trainer acknowledge this. (Memo to self: take notes on life.)
2. I am not hosting a discussion of the political or technical validity and/or vulnerability of voting machines. (For the record, I support 3b; it works for us in Wisconsin, which used to be an exemplar of clean politics.)

When our trainer finished walking us through the various elements of a correctly marked ballot, I raised my hand and said, “And then there’s another way to mark the ballot, right, with the accessible voting machine?” Her response began with a non-verbal eye-roll, which I interpreted as ‘yipes, why did she bring this up?’ Then, she spoke aloud “Yes, that’s right. The accessible voting machine is challenging and we’ll get to that later.”

3. Since she never did do a decent job, let me tell you a bit about accessible voting. The access depends in part on the underlying voting technology. Either
a) Everybody votes using a machine.
In this case, one of the machines needs to supply large print, speech output (usually to headphones), touch screen input (no grip required), single-switch input (more details below) and various other hardware “hooks” to the wide variety of assistive tech in use today.
b) Everybody marks a paper ballot, then feeds the marked ballot into a tabulator (a tallying box like the dollar-bill slot on a vending machine).
Typical people use the ballot-marking tools at the end of their wrists. The rest of us have an accessible machine as above which just marks the ballot. (Ridiculously, the manufacturer’s link don’t provide a fully-accessible presentation.)

OK, back to the end of my training session, where I noted she had never gotten back to the voting machine.

She said the accessible voting machine is very important and everyone must have one working at each polling place. She said they could be used by someone who’s blind, or someone who has low vision, or can’t read for any reason, or really just anybody who wants to. She also said that they were very fussy mechanically, so they may not work as well as you’d like.

(At this point fury stunned me into silence. What I should have said is, “And here we have an excellent chance for you to get in front of these issues by training us in how to get them to work correctly! Seize the moment!”)

Another trainee asked what poll workers should do if they thought a voter was being unduly influenced in filling out a ballot. Xe said, “This happened around 6 years ago, when someone who, well, frankly, he was just not cognizant enough to be voting. And the person with them was filling out the ballot for them.” I piped up that this could be a good option to use the accessible machine: somebody who can’t read could be able to understand the speech.

(FWIW, the “Six years ago this r#tarded person was influenced in their vote” is a perennial election year rumor. Neurotypical people are quick to define the minimum IQ they’d set for voting, without exploring the profound mismatch between IQ and ability. Absolutely every social justice activist would do well to read Gould’s The Mismeasure of Man.)

When the training was over, I’d been cleansed by fury and recovered the power of speech, I stopped to discuss my issues with the trainer. I said I was disappointed in her presentation of the voting machine. She reiterated they were frustrating and difficult to use. “Don’t you realize,” she asked, “that most poll workers are over 60 and they are not going to be able to understand this computer?” (Reality check: accessible voting machines are no more a computer than an ATM. Ninety percent of the people in the training were under 55; in all regards it looked like Madison: gender presentation, ethnicity, education levels, evident disability, income levels, number of piercings, which made me happy about my city.)

I asked if that meant my rights as a voter were also frustrating her? How would she feel if I said that permitting her to vote was too difficult? The penny dropped, and she began to apologize for “not presenting in the most effective manner.” At this point her supervisor’s ears pricked up. “Who was deprecating use of the voting machines?” The trainer allowed that her “initial presentation was sub-optimal.” While I was gratified that she’d finally understood, I was frustrated that this right, so long fought for by so many, is still not a matter of fact in our daily lives.

If you’re up for some voting day advocacy, the U.S. Department of Justice provides a detailed guide for access verifiers at Voting Checklist. Folks outside the U.S., what’s the voting situation for you?

Quoted: Susan Wendell

Feminist organizations have become more aware of the need to make their activities accessible to women who use wheelchairs, women who need written material in alternative formats, and women who need Sign Language translation, but much feminist practice still assumes a consistently energetic, high-functioning body and mind, and certainly not a body and mind that are impaired by illness. Moreover, in their writing and organizing, most feminists still assume that feminists are giving, and not receiving, care, and that all significant contributions to feminist movements happen in meetings, at public events, and in demonstrations on the streets. The accepted image of a good feminist still includes handling paid work and family responsibilities and having plenty of energy left over for political activity in the evenings or on weekends. In these circumstances, women with chronic illnesses are likely to find it difficult to participate in feminist movements or to identify themselves as feminists.

— From “Unhealthy Disabled: Treating Chronic Illnesses as Disabilities” (originally published in the Fall 2001 issue of Hypatia)

Recommended Reading for 1 November, 2010

Welcome to November. Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Queen Emily at Questioning Transphobia: attacking the already vulnerable:

In the UK, people with disabilities have been among the hardest hit by the recent Thatcher 2.0 ConDem cuts of the Osborne Review. The employment support allowance (ESA) which was previously able to be claimed until the person finds a job has now been set with a limit of one year. I’m sure that’ll be of great comfort to people, cos disabilities also expire after year amiright?

It’s election time in the United States. Melissa Mitchell at Service Dogs: A Way of Life: Cast your vote November 2.

I ask you, my loyal readers how can we as a community expect our current rights to continue to be protected, our equity as members of society to be validated, or our issues to be seen as important when we are not seen as a community that votes?

Also, Leah at Cromulent Words: Voting and Privilege:

And what do you need to do after you’ve recognised your privilege of voting access? You can either use your privilege to uplift the people you oppress or you can ignore it and continue to harm (directly or indirectly) the most vulnerable people in our country.

New South Wales, Australia: ABC News: Thousands rally for disability services funds

The State Government committed funding for disability services five years ago under the Stronger Together program, but money for the next five years has not been included in the forward estimates of the next budget.

Times of India: Sleep disturbances ups work disability:

A new study, conducted by the Finnish Institute of Occupational Health in collaboration with the universities of Turku and London, has revealed that sleep disturbances increase the risk of work disability and may slow the return to work process.

That’s all for this time. Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.