Tag Archives: australia

Recommended Reading for Wednesday, October 20, 2010

Good Day, all. It’s been a stressful week at Chez Anna (I’m putting this together at 5 a.m. my time) so forgive me for oversights, please.

Kali at Brilliant Mind, Broken Body: I am not your metaphor

This is something that has bothered me for a long time, and actually led to one of the very few spats between the boyfriend and I (quickly mended, once we both cooled off a bit). I really hate the use of disability-based metaphors. Hate them, hate them, hate them. I believe that they’re part of what makes disability such a fearful, distorted, tragic cloud to people who are able-bodied.

It’s all well and good to say they’re bad, but I think it makes more sense if I actually go through some of the more common disability metaphors so you can see what I mean

DeafMom:Embracing My Deaf Self

My life took an interesting turn at that point. Once the grief subsided and I dried the tears, I entered a new world filled with deaf and hard of hearing people. It wasn’t easy– because I had spent the previous 19 years of my life hiding my hearing aid and feeling quite uncomfortable with anything that reminded me that I was “different.” It took awhile for me to learn American Sign Language and get to the point that I embraced a deaf identity. Once I did, there was an amazing transformation in my life: Yes, I am deaf and gosh-darn-it, that’s perfectly ok.

shiva at Biodiverse Resistance: When Will We Be Paid For The Work We’ve Done?

There are several horrible things here. First, the uncritical use of the term “trainable”, dating from the workhouse-era classification of intellectually impaired people into those who could be “trained” to do “useful” work (often with “training” methods that basically amounted to torture) and those who could not (particularly disturbing coming from a “special education” teacher!). Second, the assumption that her “functioning level” (a heavily loaded and problematic term in itself) will never change throughout her lifetime, and that, despite Brown demonstrably being in reality an adult, her “functioning level” is that of a child, meaning that Masaki buys into the “eternal child” stereotype of learning-disabled people – historically and still used to deny them adult sexualities, adult roles within families, and all the basic rights, freedoms and responsibilities that anyone else is assumed to gain automatically on reaching chronological adulthood – which is perhaps even more disturbing as an attitude held by a teacher whose pupils she considers herself “mentor and so much more” to. Thirdly, the glib “wouldn’t it be nice” comment, which is more patronising “inspirational” crap, making disabled people into ciphers of innocence rather than real, flawed and complex people.

MarfMom: A Call for Posts

A Call for Birth Stories From Women With Disabilities

Whether you knew about your diagnosis ahead of time or not, whether you had a vaginal birth or a c-section, I want to hear your story. Positive birth stories are awesome, but if yours wasn’t what you hoped please feel free to submit it too because I want to keep this blog real and the reality of having a disability is that sometimes our deliveries are complicated. I’m going to leave the term disability open-ended, but I’m basically looking for high-risk pregnancies (or what would have been if you’d known your diagnosis). You don’t need to have a connective tissue disorder.

Anne at Where’s the Benefit: The Damaging Effect of how People Perceive disability benefits

If you are one of society’s more vulnerable members, you will have to fight for everything and wade through reams and reams of red tape. That is the experience that many of us have. And people who become eligible for disability benefits and try to claim them are often completely shocked. Some do not have the energy, emotional strength and/or intellectual capacity to go through all of the form-filling and bureaucracy involved in applying and apppealing.

But so long as the myth persists that it’s simple and easy to apply for disability benefits, people will believe that anyone who says it’s not is making a fuss over nothing, or sticking up for so-called scroungers – and when people become eligible for these benefits and try to apply, they will continue to be absolutely gobsmacked when they find out how difficult it is.

In The News

Canada: The National Post: Bygone Braille. “Advocates blame funding shortages, not enough qualified teachers, and decisions by administrators to deny Braille instruction to children with low vision because of an emphasis on encouraging these students to read print. Educators say this assessment couldn’t be further from the truth and argue that today’s diagnostic tools have honed the art of identifying those who truly require Braille instruction and those who don’t.”

Australia: Australia Misses the Plane on Accessible Tourism. “Based on general population statistics of age acquired disabilities the total expenditure of this group in the travel sector is likely to exceed 22% in ten years time. Not only is this relevant to Australia’s domestic tourism market but the majority of Australia’s inbound tourism is sourced from countries with similar age demographics.”

UK Learning Disability Coalition protests in Birmingham at Government cuts. “The campaigners from Birmingham, many of whom use social care support, held up “Cuts Incident” boards displaying the frontline services which they fear will be affected by the Government’s Budget and Comprehensive Spending Review and subsequent cuts that will be made by local councils.”

Recommended Reading for 8 October, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Anna linked to the Australian Broadcasting Corporation’s coverage of this story earlier in the week, now here is Cara’s analysis at The Curvature: Australian Women Report Sexual Abuse in Victoria Psychiatric Wards:

Everyone deserves safety, no matter what their mental health or disability status. But there is an extra responsibility to keep safe those who have been placed in restrictive and vulnerable environments.

stuff to say in class by Amanda Forest Vivian at I’M SOMEWHERE ELSE:

I mean, to me this is common sense and people should already be questioning “non-disabled people>>>>everyone else forever,” but if we really need a study to show that forced normalization in every area of life is really NOT SMART, studying women would be an easy way to do it.

Sorry I’m so inconvenient by Kali at Brilliant Mind Broken Body:

I hate things like this, where it feels like I’m treated as an inconvenience. It’s not like I get some kind of power trip asking for accomodations. I don’t push people around because it’s fun. When I ask for something, it’s because I NEED it, and my health, safety, and ability to continue going to school are jeopardized.

Look, I’m sorry I’m so inconvenient. But if you had to deal with the sheer number of inconveniences I deal with every day because of my disabilities, you’d realize that I’m really asking for very little.

From the U.S. Equal Employment Opportunity Commission, American Apparel Sued by EEOC for Disability Discrimination:

American Apparel, Inc., a clothing manufacturer which operates what it says is the largest garment factory in the nation, violated federal law when it terminated a disabled garment worker while he was on medical leave for cancer treatment, the U.S. Equal Employment Opportunity Commission (EEOC) charged in a lawsuit filed last week.

At the New Zealand Herald: Call to rescue IHC providers rejected:

Health Minister Tony Ryall has ruled out a Government bailout of disability services facing hundreds of millions of dollars debt for backpay arising from an Employment Court ruling.

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.

Recommending Reading for Monday, October 4, 2010

Today’s Recommended Reading is very fast because my laptop battery is about to die.

Trigger Warnings & Comments are not always great & not all opinions are endorsed by us. Normally I clip a bit from each article, but today is going to be quick links. Sorry!

Wordweaverlynn: A Public Service Announcement Re: “So if you’re looking for a counselor who won’t tell you you’re crazy because you have unconventional desires”

Cathy Writes Stuff: Another Crack of the Whip from an Ignorant Tory Re: Comments about how REAL disabled people aren’t on twitter.

Where’s the Benefit: The Real Difference Made by Disability Living Allowance

In the News:

UK: Outrage as agony aunt tells TV audience ‘I would suffocate a child to end its suffering’

UK: The Battle for Independence Begins in our homes

UK: Frequent Tweeting Doesn’t Make One A Benefit Cheat, Nadine Dorries

Australia: Women assaulted in mental health wards Re: gender-segregated wards in Australian mental health facilities.

US: A Crowning Achievement: FSHS Homecoming opens new door (via Rainbow on DW) Re: There was a policy that prevented students with disabilities being nominated for homecoming court.

Recommended Reading for 1 October, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

First up, something close to my heart as a user of Sydney public transport from Jo Tamar at Wallaby: Accessibility and Sydney’s public transport: people with different mobilities on buses. I am forever glaring at the dehumanising ‘For more information on travelling with wheelchairs, seniors and prams’ sign. No pullquote as the post is about too many things for one, you’ll just have to click through.

From Beth Haller, Ph.D. & Lingling Zhang, Ph.D., both of Towson University, Towson, Md., USA, at Media and disability resources, we have Highlights of 2010 survey of people with disabilities about media representations, and is there ever a lot packed in there:

In the summer of 2010, an online survey of people with disabilities from around the world was undertaken to find out what they think about their representation by the news and entertainment media.

From the Associated Press, (US) Congress changes intellectual disability wording:

Disabilities advocates on Thursday applauded Congress for passing legislation that eliminates the term “mental retardation” from federal laws.

Attitudes Towards People with a Disability Changing Ahead of London 2012

Attitudes towards people with a disability in Great Britain are improving and could be one of the legacies of the London 2012 Paralympics, the International Paralympic Committee (IPC) were told this week at a three day project review with the London Organizing Committee.

From The Irish Times, State urged to ratify UN disability treaty:

FORMER EU commissioner Pádraig Flynn has called on the Government to ratify the United Nations Treaty on the Rights of People with Disabilities.

Speaking on EU disability policy at NUI Galway, Mr Flynn noted Ireland had signed the treaty in March 2007, but had not progressed to implementing its provisions.

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.

Recommended Reading for 28 September, 2010

I hope all is well in your world on this fine Tuesday! Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Canada: Disabled-services flip-flop at Winnipeg Free Press:

The about-face came one day after an internal U of W memo was leaked to media and revealed a number of university programs to help disabled students were on the chopping block. The decision outraged students and raised eyebrows since it comes just weeks after the U of W launched a new disability degree program devoted to the “critical analysis of disability in society.”

USA: College Web Pages Are ‘Widely Inaccessible’ to People With Disabilities from the Chronicle of Higher Education:

The study found that more colleges are deploying basic accessibility features, like adding alternative text to images so a blind student can understand them with read-aloud software.

But those gains were offset by challenges from inaccessible emerging technologies. For example, a person with disabilities who can’t use a mouse will often be stymied by a Web site that requires users to hover their mouse over a page element to trigger a sub-menu.

Australia: Disabled drivers get no favours on private property from the Brisbane Times:

The Department of Transport, which issues disabled parking permits under its Disability Parking Permit Scheme, is powerless to protect drivers who park in shopping centres, with centre management charged with enforcing the scheme there.

India: Promote sign language, urges deaf association from expressbuzz.com:

More than 100 members of the Deaf Enabled Foundation, an NGO for the deaf, took out a rally on International Day of the Deaf, here on Sunday, from the Labour Statue to Light House.

And, also from India, framed in possibly the most patronising way possible, Movie made by deaf and dumb to premiere on Oct 9 from the Indian Express:

The movie Amir=Garib, to be premiered on October 9 in the Town Hall Auditorium, has all the essentials of a Bollywood flick, but one fundamental element — sound. The movie has been made by deaf and dumb people.

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.

Recommended Reading for 20 August, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Wheelchair Dancer writes about Body Matters:

It’s about how we imagine living in other people’s bodies and the value we ascribe to them; it’s also about how we pass on the fear and vulnerability of change, injury, or pain in our own physicality. And that’s just on a personal level; things get more complicated when we think of the body as a political space.

From the Human Rights Watch, Malaysia: Disability Rights Treaty Ratification an ‘Important Step’. The treaty went into effect on 18 August.

“Malaysia has taken an important step to protect the rights of people with disabilities,” said Shantha Rau Barriga, disability rights researcher and advocate at Human Rights Watch. “But the convention should be seen as a springboard for changing Malaysian laws, policies, and practices that violate the rights of people with disabilities.”

[…]

Malaysia entered formal reservations to the Disability Rights Convention concerning the prohibition of torture and other ill-treatment (article 15) and the right to liberty of movement and nationality (article 18). It also made a declaration limiting the government’s legal application of the principles of non-discrimination and equality.

It’s Australia’s federal election tomorrow, so I’m devoting the rest of this to Australian issues.

From The Age: Anger as disabled pupils spend up to four hours a day on bus in the southern state of Victoria:

Parents say their children have suffered dehydration, toileting problems and emotional distress on the free bus service that runs children to and from specialist schools.

And, to end on a happy note, disabled Australian swimmers are doing beautifully in the ICP World Swimming Championships in the Netherlands. (Swimming is very very popular here in Australia, as I’m sure you can imagine. You can read some of the results in Swimmer Cowdrey wins third gold medal at the Sydney Morning Herald. We also did really well at the 8th World Deaf Golf Championships in Scotland!

Send your links to recreading[@]disabledfeminists[.]com.

Slam after slam for people with disabilities in Australia’s new Budget

The Australian Federal Budget is out, and it’s being feted in the media as a sober, sensible fiscally reasonable budget in which there are no really big winners or losers. “No frills, no thrills, no spills”, says the ABC.

Except for people with disabilities. What has received a little bit of coverage is the fact that there is no improvement in funding for public mental health, despite lots of rhetoric in that direction from Rudd and his cronies. There is apparently nothing toward practical improvement for Indigenous health, and $380M in cuts for disability pensions.

$380M in cuts for disability pensions.

Applicants for the Centrelink disability pension who are considered “borderline” will be routinely denied, put onto Newstart (unemployment payment), compelled to stand in line every fortnight and job-search on an ongoing basis, and sent to “up to 18 months” of mandatory job training.

Let me guess – “borderline” means “the probably currently-nondisabled official making the assessment will decide that they can’t see the disability concerned”. I expect this to disproportionately affect people with mental health issues, fatigue based disabilities, autoimmune problems, chronic pain, and so forth.

And let me guess again: if PWD are too sick to get to their training courses but can’t “prove” that to some random douchebag’s satisfaction, they’ll get breached (decreed as being in breach of Centrelink requirements) and, in the absence of substantial family support and the ability to organise themselves through a litany of appeals and assessments, end up on the streets.

This combination of further increases in the already huge pension obstacles for people with “less clear” disabilities, along with no improvements in mental health and Indigenous health programmes, is, in my opinon, a recipe for a huge increase in homelessness.

But Treasurer Wayne Swan is spinning this as being for PWD’s own good.

The Sydney Morning Herald explains further:

New applicants will first undergo a ”job capacity assessment”, as they have always done. But the government is reviewing the impairment tables to make it a tougher assessment and harder to get to first base. After that unless people are manifestly incapable of any paid work, or clearly incapable of working even 15 hours a week, they will be put on the Newstart Allowance. Then they will be sent on a training course, either with a special disability employment agency or a regular one. The training is meant to increase the numbers who can work at least 15 hours a week, thus disqualifying them from the pension.

Efforts to curb the growth in the numbers going on the pension would be admirable, given people mostly stay on the pension for life. But the move is not admirable in the absence of an increase in the level of Newstart Allowance, or a loosening of its income test, which exacts harsh punishment on those who get a little work.

On the disability pension a single person can live a frugal life on $350 a week. On Newstart a single person is plunged into poverty on $231 a week. How many of the 25,407 people who might once have qualified for a disability pension will end up, not in work, but unemployed and in poverty?

The comments at the Herald, enragingly but unsurprisingly, are full of people flailing around about how people on disability pensions are big bludging fakey fakers.

Another slam for taxpaying people with disabilities is the change in the tax offset for medical expenses. There will be a big jump in the offset threshold and indexing after that, expected to take away from PWD almost much again as the funding cuts for disability pensions.

Lastly, the Pharmaceutical Benefits Scheme, Australia’s mostly very good pharmaceutical subsidy and safety net programme, will be “reformed” to the tune of $2 billion in government savings – but we’re not told how.

In other news, there are huge boosts in funding for elite sports and for ‘border security’. So crips will be paying for Olympians and for the harassment and prolonged detention of immigrants – while many can’t afford wheelchairs, homes, or medication.

This budget, just to make my disgust even more perfectly clear, is coming from a nominally LABOR government.

On twitter I summed the budget up thus:

@ilauredhel Aust’s priorities: $237 M boost for elite sport; $1.2 B boost for ‘border security’; $380M CUT for disability pensions #budget

I’m still gaping. At the budget itself, and at the nodding, satisfied happiness of most of the political media at there being supposedly “no big losers”.

A program on disability rights in Australia

A couple of days ago, Australian investigative journalism television program Four Corners aired a story called Breaking Point. It covers some of recent Australian disability rights history, personal stories from many individuals and families, discussion of a proposed national disability support scheme, differences between the UK and Australian systems, all sorts of things. It’s rather long at the better part of an hour, but you may find it worth just dipping in, if only a little, particularly if you’re not familiar with disability rights in Australia.

From the program website:

The system of assistance for people with a disability in Australia is broken. Carers know it, charitable organisations know it and so do the governments. Now the federal government says something must be done. It’s holding an Inquiry, with the intention of creating a new and fairer system. It’s even considering a national disability insurance scheme. But will the system be reformed in time to save the families now at breaking point?

Here’s a transcript of the program.

You can access the program itself here as well as extended interviews, further reading and news highlights here.

Do check it out!

Admit Two: Australian Companion Card scheme up and running

picture of Australian companion card sample, next to an ADMIT TWO ticketThe Australian Government officially launched the national Companion Card scheme around six weeks ago.

The Companion Card enables some people with disabilities to participate at venues and activities without incurring the cost of a second ticket for a carer. If a PWD requires an attendant in order to participate in the event or access the location, the ticket for their companion is free. Before the scheme came into being, people who had service animals could legally take them anywhere without extra payment, but people who had human carers had to pay extra. How did that make sense?

Who can qualify for a Companion Card? In my state (definitions are very similar state to state), the care-needs eligibility definition is:

Attendant care support includes significant assistance with mobility, communication, self-care, or learning, planning and thinking, where the use of aids, equipment or alternative strategies do not enable the person to carry out these tasks. It does not include providing only reassurance, social company or encouragement.

The definition also requires that the need for support be considered life-long, though the rationale behind this is not explained. There is no income test.

There is an additional note to participating businesses warning them not to use this as an excuse for poor accessibility:

The Companion Card was not developed to overcome or compensate for any particular venue’s lack of accessibility; including the absence of ramps, lifts, accessible toilets, appropriate signage or captioning, etc. Responsibility for these access issues remains with venue and activity operators.

There are currently 2700 affiliate organisations participating in the National Companion Card. So far the participants include the Melbourne public transport system, major sporting leagues and venues, various cinemas, Circus OZ, Fitness First Australia, Circus Royale, The Australian Ballet, Musica Viva, The Australian Rugby Union, and many smaller sporting and cultural venues and organisations.

This is a terrific idea, and one that needs to be adopted in more countries. It would also be good if Australian extends the scheme to temporary passes for tourists in the future; right now, you need to be a resident.

What’s the situation where you are? If you need human assistance in order to participate in the life of your community, do you need to fork out cash for an extra ticket?

Ableism and the Aussie Battler

I want to talk about how Australia’s ideas of the ideal Australian exclude people with disabilities. But first I have to explain a little about the Australian national myth.

The ideal Australian figure is known as “the Aussie battler”. Essentially this is an ordinary man working hard to get by and support his family without complaining. I guess it’s a bit like “the little guy”. I’m going to paraphrase how Queen Emily explained it (as we discussed this on Twitter with its 140 character limit): ‘It’s an idealisation of (implicitly working class) struggle, self-sufficiency. You work hard and get paid fairly – but not well. I think it’s different from the US rags-to-riches story, because it doesn’t imply that hard work produces social mobility.’

I’m not sure how to convey to you how ingrained the idea of the battler is in the Australian consciousness, but it really, really is. It’s everywhere from our popular culture to our political discourse. Our previous Prime Minister, John Howard, drew on it a fair bit. (In fact, in 2007, US President George W. Bush referred to him as a battler at the Asia-Pacific Economic Cooperation forum, a moment which caused a few raised eyebrows.) Our current PM, Kevin Rudd, doesn’t do so quite so much, but it is still very noticeable.

There’s a whole culture around cheering on the underdog and tall poppy syndrome (tearing down high achievers). But the Australian idea of the underdog – the “Aussie battler” – isn’t really who is at the bottom of the kyriarchal pile. If white, abled men represent the struggling Australian, that’s a pretty warped idea of hardship. It’s not about valuing the real battlers. A lot has been said about the racism and misogyny coded in the battler legend, and I could say a lot about the assumptions regarding family (structure); today we’re talking about the ableism.

The Aussie battler ideal is about a person working hard to get enough money for the family to live on. Every feminist knows how problematic it is to set up paid work as the only sort of real work. After all, women’s work in the home, raising children, running the household – the second shift – has been devalued in Western society as a matter of course. It also is very ableist. Many disabled people cannot fulfil the paid work requirements to be a battler, or not consistently, because those standards are designed to fit abled people, to privilege what they can do over what people like us can do. It would seem that only particular kinds and amounts of contribution to family and society will do. Setting up “typical” as “best” is just about always problematic, and there is no exception here.

And if you must be disabled, there’s a battler’s way to do that, too. Complaining is not the Australian way, you must be stoic and soldier on. Never admit that you need assistance, because not being able to do everything on your own is weak. Having to rely on anyone else is a matter of shame. If the Aussie battler must be self-sufficient, and a source of strength and support to those around them, then what of those people who require that support? The Aussie battler idea devalues those the battler is actually working for: wives, children… disabled friends and relatives, perhaps. It’s not that those people are valuable and worth fighting for, it’s that the battler gets to prove their toughness and reliability. For whichever group, it doesn’t leave a lot of room to just be human: needing help, giving help, everyone deserving of love and support regardless. That’s what archetypes do: set up impossible tasks and cut out those on the margins. It’s okay to lend a hand to a mate as a one-off, but you better get back on your feet straight away. Assuming you have that hand, and you are able to get back on your feet, of course (oh, bodily metaphors, how much you do assume).

In an effort to keep this less than novel length, I’m not going to explain any more about Australia’s notions of ideal citizenship, but if you’re interested, you can try looking up larrikins, the ANZAC spirit and mateship.

Do you have specific cultural features like the battler ideal that make life a bit tougher when you’re disabled?