Category Archives: Uncategorized

Recommended Reading for April 2, 2010

A metal plate covered in braille

Accessible Information is Understandable

You can present information in Braille, large print, Sign Language, or easy read, but it will still be useless if it cannot be understood.

Once again we are talking about clear and straightforward communication, familiar language, jargon free text and information that is well structured and easy to follow. This is true whether the information is presented in a web site that has clearly understandable navigation and other interactions such as forms, or in any other format.

An Education

I’m worried about dropping out of school at some point. And part of that is because I like education. Which is a valid reason to feel worry about not being able to complete it. But part of that, part of it is because of the enormous social pressure to succeed in this environment. Part of it is the society telling me that if I can’t handle university, the problem is with me not wanting it hard enough, or not trying hard enough. The problem is me, not the system that isn’t set up to accommodate more than one (fairly specific) type of learning. And it’s really hard not to internalize those messages, even if you know about the problems with them. It’s hard not to buy into something you see everywhere.

Cybernetic Space Princess on Mars.

Because I am very functional, and because the standard image of “someone with OCD” is Adrian Monk or Hannelore, I do occasionally have to deal with people assuming I’m exaggerating. I don’t compulsively wash my hands or clean my kitchen, I’m definitely not a germaphore, and if I re-type books completely between drafts, well, that’s just a quirk. But obsession and compulsion both take many forms, and while I have found peace with mine, and consider them a vital part of who I am, that doesn’t mean they don’t exist. (Why I would joke about having something that is considered a mental illness, I don’t know.)

Remember that just because someone is a functional, relatively normal-seeming human being, that doesn’t mean they’re wired the way that you are. I have to remind myself that not everybody wants their day broken down into fifteen-minute increments, because for me, that is the norm. The human mind is an amazing thing, full of possibilities, and each of us expresses them differently. I am a cybernetic space princess from Mars, and that’s not a choice I made; that’s the way I was made. I can get an address on Earth, but Mars will always be my home.

The next Disability Carnival is at River of Jordan, and the theme is Balance.

In the news (just headlines today, all from the US):
Short Bursts of Activity Ease Fibromyalgia

Grieving Kettleman City mothers tackle a toxic waste dump – Each had miscarried or given birth to a child with birth defects. Their pain gave them strength to fight for justice.

A Pennsylvania government study commission has proposed legal reforms to curtail power-of-attorney abuses that have cheated the elderly, the disabled and their heirs.

Retired couples may need $250k for health care

No, It’s Not As Easy As You Think

When I talk to people in the United States about disability and the need for accommodations, I am usually met with a bit of bewilderment. “You mean there’s still more work to be done on accommodations? I thought all that had been taken care of.” These are people who are used to seeing wheelchair ramps at the entrance to government buildings, used to seeing the hand switch for wheelchair users to open automatic doors, used to seeing the braille at the ATMs. Given their observations of those existing accommodations and a minimal awareness of the Americans with Disabilities Act (ADA) that mandates those accommodations, they assume that there’s been a consensus on the need to provide accommodations, a law mandating those agreed-on accommodations, and general compliance with that law.

As we well know, that is far from the truth. None of those assumptions are as true or are interpreted as broadly as people tend to assume. There is no general consensus on the need to provide accommodations for the broad range of disabilities that exist – there is general agreement that people who use wheelchairs should have access to government buildings, but there is nothing even close to general agreement on how to accommodate people with depression or even whether depression is a disability “deserving” of accommodation. The US does have a law mandating accommodations – but there are not equivalents in every country and there are significant holes in the ADA itself, often putting the burden of requesting accommodations and demonstrating a need for them on the person with a disability. Finally, the idea that agencies and businesses affirmatively comply with the ADA, obviating the need for enforcement, is just patently false.

A recent federal court decision in underlines all of these realities. In 2005, the American Council of the Blind filed a lawsuit against the Social Security Administration (SSA) “to compel SSA to provide alternative formats of communication that would enable [people with visual impairments] to have more equal access to participate in SSA programs.” (Court documents and information available through DREDEF’s site.) It took until 2009 for a court to agree and order SSA that it is required to issue notices to people with visual impairments in a format they can read – in Braille, large print, e-mail that can be read by a screen reader, computer disks, or audiotape recordings.

This lawsuit undercuts each of the assumptions above. First, there is clearly not consensus on providing accommodations, even to what would be considered a relatively “easy” impairment to accommodate – it is easy to anticipate the functional difficulties that a person with a visual impairment would encounter when presented with a written notice. A lot of these people – 250,000 of them – are getting benefits from SSA specifically because they have a visual impairment, so they’ve given SSA extensive documentation of those impairments and information on the functional limitations caused by the impairments. A much larger group – about 3 million in total – get retirement benefits from SSA. At any rate, SSA knows that these people have visual impairments and has detailed information on how those impairments affect them. And it still has not provided accommodations.

But what about the second assumption – there’s the ADA, right? It turns out that the SSA is not subject to the requirements of the ADA! The ADA applies only to state and local governments and agencies that receive federal funding – it does not apply to federal agencies such as SSA. (Raise your hand if you knew that – few people do!) The only disability rights law that applies is a precursor to the ADA, Section 504 of the Rehabilitation Act of 1973. While the requirements regarding accommodations from government agencies are largely similar, the Rehabilitation Act does provide limited rights in comparison to the ADA.

It’s also very clear that the SSA – despite being the primary provider of cash and medical benefits for people with disabilities – did not consider that it had any obligation to provide accommodations. When individual plaintiffs with visual disabilities requested that they be given notices in alternative formats, they were simply told that no other formats were available. This included notices to which people must respond within 10 days or risk losing their benefits. Even when they were initially sued in 2005, SSA argued that the Rehabilitation Act “did not even apply” to the issue of notices to people with visual impairments. Similarly, SSA did not consider itself obligated to let benefits recipients know that they had accommodation rights under the Rehabilitation Act and laying out a process for them to request and enforce those rights.

The result of the litigation is that SSA is now required to develop a procedure to 1) notify benefits recipients of their rights to accommodations for visual impairments  and 2) provide notices in alternative formats when recipients request them. Which is certainly a good thing – but one that I would simply expect from a government agency that administers disability benefits, rather than having to be ordered by a federal court after 5 years of litigation. And if accommodations that are this common sense, from a federal agency set up to deal with people with disabilities, are so hard to obtain and enforce, that demonstrates how very far we are from a society where PWDs are meaningfully accommodated.

Recommended Reading for April 1, 2010

A painting done showing hands in the Signs for A-S-L

Shit I Hate: Models as the Face of ED Survivorhood

Let me be clear – I do not hate models who are suffering from eating disorders, have come out as ED sufferers or survivors, or who have turned to advocate for other sufferers. That is a good thing to do, it comes from a place of kindness and intelligence, and it is an admirable use of privilege in order to help others. Model moral behavior, you might even say. However, I do not like the way the models’ narrative seems to be the dominant or even only story that is recognized in our wider media as the neatly-packaged beginning-to-end textbook case of an eating disorder. I’m focusing on women here because women’s bodies are, overwhelmingly, the target of these narratives. I’m also focusing on those women who have made it to tell their stories – though we know many will not make it, and we do not forget them. I’m talking specifically about media portrayal of ED survivors.

Nursing at the Keyboard [NAK]: How to give boob and type too

When my kids were little, they nursed a lot. A LOT. They were both evening cluster feeders, which meant that my options for the evening were to sit on the couch and watch TV or read a book, or I could NAK. Nursing at the keyboard was often the best choice for me. Television was sometimes too loud and the Internet was just too compelling. But as someone who has mastered the art of typing, trying to type messages one-handed while nursing a baby quickly got old. Something had to be done about it.

So I worked out a system.

“Let’s Go Talk to Patio Furniture”

One day Wanda refused to assist me in the bathroom and gave no explanation why. I was in class (college) so it was not like I had my mom there and none of my friends knew how to transfer me (why would they?). So there I was at lunch, needing to pee but my aide refusing. So I had to ask one of my friends. My aide wouldn’t even help explain how to transfer me or do anything else. I had to eyespell how to do everything to my poor friend.

Dear Michael & Brian, You Were Lied To

At i09, M. Night Shylaman answers questions about The Last Airbender Live Action Move (aka, that Racist Mess). And he shows not only that he’s the South Asian equivalent of an Uncle Tom; he shows that he doesn’t get the optimism and hope of Avatar – that it wasn’t that it started young and skewed older, but that it has a foundation of joy and hope and friendship that carries all through; just as it has a foundation of being non-white fantasy.

Remember the interview that’s now unfortunately on the official animated series DVD? About how he ‘got’ it all?

M. Night Shylaman lied.

Judge Quentin D Corley

Another disability history image thanks to the Flickr Commons project. This one is from the Library of Congress’s set from the George Grantham Bain Collection, news photos from 1910-1915. Here we see Judge Quentin D. Corley (as the title suggests), driving a very early model car with steering wheel adaptations for his prosthetic left hand; the right sleeve of his jacket appears to be empty. Corley looks to be a young man wearing a white summer hat.

Life is Too Short

Brandy, a large yellow Labrador worked faithfully by her partners side for 11 years. She was the first service dog for people with physical disabilities I ever met and I still remember meeting her and her human on while we were stuck on a plane having electrical difficulties on a tarmac in a plane going nowhere anytime soon. As the crew allowed other passenger to exit to plane if they wish for a bit, this gentleman and I bot made the decision to sit tight because it was too much of a hassle to get of the plane and risk not getting back in time.

Does Diagnosis Matter?

In the recovery movement, which is the zeitgeist in the delivery of mental health services at this time, we are supposed to look past someone’s diagnosis. I am not “a bipolar” or “depressive” or “schizophrenic.” I have been diagnosed with such, but the relevance of that diagnosis is highly suspect. Because aren’t I just Liz? Liz who is addicted to Dunkin Donuts hazelnut coffee, Liz who likes chihuahuas in sweaters, Liz who tries to do gluteal exercises to increase her butt’s circumference — without success. So many things make up my Liz-ness, right? So who cares what some doctor said?

Generally speaking, I agree with this approach. For many years we have been labelling people in an attempt to treat them, and the results aren’t exactly stellar. So why not change protocols, DSM by damned?

This Situation Is Not Unique DISCUSSES SEXUAL ASSAULT

When I was in middle school, around the same age as this little girl is, and freshly diagnosed with Aspergers, I was also a victim of sexual harassment/assault, repeatedly, by my classmates. Innapropriate touching, lewd comments about my body, and bragging about taking advantage of me because I was too “retarded” to understand what was going on. This continued for three years uninterrupted, and only slightly lessened when I entered high school. Nobody did anything, not teachers, nor my parents, nor the administrative staff at the private school I attended. Whether it was due to them being oblivious to the bullying, whether they thought that because I was bigger than the other students that I should “take care of myself”, or because the students who tormented me were wealthy and came from good families and I didn’t, I’ll never know. I suffered in silence. In fact, until today, I’ve never talked candidly about the fact that I was sexually assaulted. I simply labelled it “bullying”.

Jenny McCarthy & Autism Part 1: If we shame parents enough, maybe autism can be cured!

I read an article a few weeks ago claiming that Jenny McCarthy’s son had never had autism, so perhaps her argument that she had “cured” him of autism through diet and other non-medical means should be dismissed entirely out of hand.

The actual article in Time Magazine is a bit more complicated than that – there’s speculation within in that McCarthy’s son never had autism, and some discussion about how parents of autistic children have always looked for “cures” that vary from dietary changes to cooper bracelets, from vitamin shots to behavioral therapy, and that McCarthy’s thing is basically that she’s famous and has a son with autism and has used her larger platform to get more attention towards her cause. Okay, I can see that.

But I don’t like it.

The reason I don’t like the methods that McCarthy is advocating for are, at the heart, simply this: I think it harms parents of children born with disabilities, and I think it harms people with disabilities.

I want to start with parents of children who are born with disabilities, and then will talk about the harms to children born with disabilities (and the adults they become) in a later post.

The biggest recurring conversation I have with parents whose children were born with disabilities is how often they’re asked, whether explicitly or implicitly, what they did wrong. What they did to make their child disabled. What they are not doing right now to “cure” their child. What is their horrible failing that “made” this thing happen to their child. Often, of course, this is directed at the mother. Did you drink? Did you do drugs? Was there any way you could tell before the baby was born? If you had known, would you have gotten an abortion? Did you know as soon as your baby was born? Did you do something? Were you working past a certain month? Did you eat right? What did you do?

Because, you know, your child’s disability is all your fault. It’s a personal, moral failing on your part, and you need to do something about it.

I see these play out as well in the shaming of certain types of women for deciding to have children. Don’t you know that children born to mothers over a certain age are much more likely to be disabled? Don’t you know that you shouldn’t have a baby if you have a disability because your child might also have a disability? Shouldn’t we sterilize certain types of women so we never end up with more of their horrible, awful, crippled babies?

What does all of that have to do with Jenny McCarthy?

Jenny McCarthy was famous before she started on her discussions about her son’s autism, and became more famous afterwards, getting on Oprah to talk about her son’s “recovery” from autism. She talked about the special diets she put her son on. She’s probably the most famous mother of an autistic child. So, the biggest thing people are likely to know about autism now is that you can “recover” your child from if it you feed your child a special diet.

So why the hell is your child still autistic? Your child can be cured if you just try hard enough.

Quick: On top of all the self-blaming that many parents with disabled children do, have society blame you as well.

Certainly that makes it easier for people to dismiss the needs of families affected by disability. Your child is like that because you did something wrong, you decided to go forward with a pregnancy, you haven’t tried hard enough.

So flounder there.

I think it’s important to separate the experiences of parents who have a child with a disability, and the experiences of children and adults with a disability. There are conflicting needs when it comes to these two groups, and I feel that there’s a strong tendency to figure that if you’re helping parents who are currently non-disabled but whose children have a disability – especially if that child is autistic – then you’re helping the child as well. There is overlap, but not as much as the general public has been led to believe.

Part 2 will talk about Jenny McCarthy’s ideas and how they impact children with disabilities, and part 3 is about whose voices we amplify, and whose are ignored.

Stigma Kills: A Concrete Example

Often when bloggers or activists push back against ableist language and stereotypes in the media, especially pop culture, someone will respond with an argument that there are more important disability issues to address and that the topic at hand is mostly irrelevant to disability rights as a whole. This has happened with each of the posts in the Ableist Word Profile series, it’s happened with discussion about ableist tropes in pop culture, it’s happened when critiquing the vast overrepresentation of criminal behavior in news coverage of people with mental illness.

I believe these things matter very much. Perhaps not individually – if I slip and use the word “lame” pejoratively, it does not automatically cause a person with a disability to die instantly. But each individual instance adds up to become a trend, to become a larger understanding and expectation of how things are. And if those understandings and expectations aren’t accurate, it can have dramatically horrific results.

This is because a lot of our ongoing decisionmaking is done automatically, unconsciously. This is because we are constantly presented with such a vast amount of information that if we stopped to consciously evaluate everything, we’d never be able to do anything at all. When I see an object with keys labeled with letters and laid out in the QWERTY design, I recognize it as a keyboard an assume I use it to manually input written data into a computer or typewriter or phone or other device. This saves me the trouble of figuring out each and every time what this object is, what it is for, how I am supposed to interact with it, and what end result I can expect. I do this instantly, even though it is immensely complicated – it has been extraordinarily difficult to program a computer to identify, say, a keyboard from a photo or video, regardless of lighting, angle, and lots of other variables that the brain can process almost instantly.

There are similar examples for evaluating other sensory input. When I touch something, I know instantly and without consciously considering it whether the object is solid or liquid, dry or wet. I have no idea how I make that evaluation and instructing someone else on making that judgment would be immensely difficult for me – but when my foot touches a wet patch of carpet en route to the bathroom in the middle of the night, I pull my foot back lightning fast to avoid what is surely cat puke. If I feel myself losing balance, I put out a hand to catch myself without consciously deciding to, because my classification of my sensations as “losing balance” was done entirely unconsciously.

How does stigma fit into this? Well, a stereotype is an unconscious cognitive shortcut – instead of examining an individual person or situation, we apply a stereotype to make assumptions. While a stereotype is usually seen as a negative thing, they serve an important purpose by allowing us to make educated guesses. For example, when I go into a fast food restaurant, I know to go to the counter and give my order to someone behind the counter, usually wearing a uniform. While this has held true at the places I’ve visited in the past, if I go to an new fast food restaurant that I haven’t visited before, I will assume that I use the same procedure. That’s a useful assumption that saves me the time and energy of approaching each situation as brand new and unrelated.

There are times when stereotypes can be harmful and damaging, as we well know. The stigma against PWDs is an assumption applied to all PWDs simply because they are PWDs, assuming they have a set of presumed characteristics, motivations, and beliefs. It is a stereotype composed of all the understandings and expectations of PWDs conveyed by all the little things – the word choices of the people you talk to, that one character in that on tv show, that story you saw on the news last night. And although the specifics fade away, most people are left with vague, unconscious associations. Again, some of these associations are essentially value-neutral, as how I generally associate red with “stop” and green with “go” from traffic lights and signs. But people can also have unconscious associations around more complex and problematic issues, like race, gender, and disability status.

Social psychologists from Harvard developed a computer-based test to measure the existence of implicit associations and stereotypes – the Implicit Association Test (IAT). The IAT asks users to rapidly categorize words to the left or right of the screen. From the IAT FAQ:

The IAT asks you to pair two concepts (e.g., young and good, or elderly and good). The more closely associated the two concepts are, the easier it is to respond to them as a single unit. So, if young and good are strongly associated, it should be easier to respond faster when you are asked to give the same response (i.e. the ‘E’ or ‘I’ key [to indicate left or right]) to these two. If elderly and good are not so strongly associated, it should be harder to respond fast when they are paired. This gives a measure of how strongly associated the two types of concepts are. The more associated, the more rapidly you should be able to respond. The IAT is one method for measuring implicit or automatic attitudes and is featured on this website. There are other methods, using different procedures, that have been investigated in laboratory studies.

I’ve taken a number of IATs before (because I’m dorky about cognitive science and this kind of stuff) and believe that they have correctly identified in me some negative unconscious associations. For example, I unconsciously associated women with home and family and men with business. Consciously, I strongly disagree with that association! So when I do consciously consider my assumptions about those associations, I override and reject my unconscious associations.

When researching this post, I took the IAT that measures unconscious associations around disability. (I can’t link directly to that test, but it can be found in the IAT demonstrations available here.) Taking the test, I found that I have a slight automatic preference for abled people over PWDs. This doesn’t mean that when I act, speak, or even think about these issues I exhibit that preference. It doesn’t mean that I “really” prefer TABs to PWDs. It means that I have been sufficiently inundated by messages that associate TABs with “good” and PWDs with “bad” that I have a slight unconscious tendency to apply that association, a tendency almost instantaneously overruled by my conscious thought. So it is an association that exists only for the tiniest of moments until it is extinguished by cognition.

How can those tiny moments, almost too small to measure, even matter? Well, as Chally recently posted about, a Los Angeles police officer shot and killed an unarmed man with an unspecific cognitive disability autism [1. ETA since his family disclosed that he had autism in numerous public interviews.]. The officer fired as the man reached towards his waistband after failing to respond to verbal commands from the police. From the LA Times article linked in the post:

[LAPD Officers] Corrales and Diego believed “he [the PWD] was arming himself” and fired, Assistant Chief Earl Paysinger said at an afternoon news conference.

The officers made decisions in a fraction of a second,” he added.

In a fraction of a second.

Just long enough for the unconscious association to spark but not long enough for conscious thought to override it.

Just long enough for stigma to kill.

Value Added

I’ve spent a lot of time over the past few weeks advocating with various people about issues regarding students with disabilities. (You may have noticed an upswing in posts from me about exactly this – now you know why.) Part of that has involved asking pointed questions about students with disabilities, and some of it has been writing letters to the editors, and some has just been sitting right in front of people so they – who I have talked to before about this – are reminded that students with disabilities exist and generally pay the same fees that their non-disabled counterparts do, so perhaps they should also be acknowledged as existing.

What I don’t think people who I am doing this for realise is that I am doing them a favour. And one it would be nice for them to acknowledge and thank me for.

Teaching people about disability-related issues is something I’m expected to do as a disability rights advocate. To others, of course I should spend an hour sitting with someone and explaining ways that I find the Student Union Building on campus to be inaccessible and offer them suggestions on how to fix it. To them, it’s a favour they’re doing me if I lead them on a two-hour tour of my campus explaining just the various accessibility-related issues that I am aware of, and referring them to other people I think would be helpful for them to consult. If I spend, say, an afternoon drafting up book lists or an evening chatting with them about accessibility in their space, they perceive that as something they are doing for me.

But people with disabilities are people who may, for example, come to your university, and bring tuition dollars with them. They may come to your event and buy tickets. They may present poetry of amazing beauty and cutting cruelty at your poetry slam.

When I, or other disability rights activists, or other people with disabilities who do not perceive themselves as activists, dedicate their time to explaining something about accessibility to you, they are doing work. They are taking time they could be spending doing anything else, and giving it to you, so that your project/event/blog/university/home can be welcoming to more people.

It’s not that I think people who are not disabled should never ask people with disabilities or disability rights activists to discuss issues related to accessibility and disability with them. But I really wish that people would, quite frankly, treat that as work we are doing.

Happy Ada Lovelace Day!

Ada Lovelace Day is a celebration of women inventors & women in the sciences. It is also a poorly-disguised excuse for me to history geek at everyone around me, since, of course, we can celebrate awesome scientists both past & present.

I know that this list is fairly quick & dirty – the history of technology & medicine is not really my strong point, I must admit, and I’m still hoping to get a broader list next year and in future years. I also, of course, want to live in a world where one does not feel obligated to spend a “special day!!!!” celebrating the achievements of women because those achievements are no longer underplayed, undervalued, or just ignored. But, since I live in this world, with my own limitations and my own need to learn more, this is the list I have.

A (short) (biased) List of Women Who Invented Stuff Relevant to the Interests of Some People With Disabilities:

Dorothy Crowfoot Hodgkin won the 1964 Nobel Prize in Chemistry.

A British biochemist and crystallographer and the 1964 Nobel Prize winner in Chemistry for her determination by X-Ray techniques of the structures of biologically important molecules. Dorothy Crowfoot Hodgkin used X-Rays to find the structural layouts of atoms and the overall molecular shape of over 100 molecules including: penicillin, vitamin B-12, vitamin D, and insulin.

Helen Free invented the home diabetes test

Three years after beginning work at Miles, she married Albert Free (1947). Often working together, they became two of the world’s leading experts on urinalysis, an essential clinical procedure with countless applications. Free first developed dry reagents for use in laboratory urinalysis that are now, in tablet form, standard around the world. She went on to develop more consumer-oriented devices. The most important of these was a “dip-and-read” test that for the first time allowed diabetics to monitor their blood glucose level instantly and at home.


Gertrude Elion invented the leukemia-fighting drug 6-mercaptopurine and drugs that facilitated kidney transplants.

Gertrude Elion patented the leukemia-fighting drug 6-mercaptopurine in 1954 and has made a number of significant contributions to the medical field. Dr. Gertrude Elion’s research led to the development of Imuran, a drug that aids the body in accepting transplanted organs, and Zovirax, a drug used to fight herpes.

Dr. Marie Curie is known to the world as the scientist who discovered radioactive metals.

Together with her husband, Pierre, she discovered two new elements (radium and polonium, two radioactive elements that they extracted chemically from pitchblende ore) and studied the x-rays they emitted. She found that the harmful properties of x-rays were able to kill tumors.

Rachel Fuller Brown and Elizabeth Lee Hazen invented the worlds first useful antifungal antibiotic – nystatin.

As researchers for the New York Department of Health, Elizabeth Lee Hazen and Rachel Fuller Brown combined their efforts to develop the anti-fungal antibiotic drug nystatin. The drug, patented in 1957 was used to cure many disfiguring, disabling fungal infections as well as to balance the effect of many antibacterial drugs

Bessie Blount patented a device that allowed amputees to feed themselves

Bessie Blount, was a physical therapist who worked with soldiers injured in W.W.II. Bessie Blount’s war service inspired her to patent a device, in 1951, that allowed amputees to feed themselves. The electrical device allowed a tube to deliver one mouthful of food at a time to a patient in a wheelchair or in a bed whenever he or she bit down on the tube. She later invented a portable receptacle support that was a simpler and smaller version of the same, designed to be worn around a patient’s neck.


Patricia Bath invented the Cataract Laserphaco Probe.

Patricia Bath’s passionate dedication to the treatment and prevention of blindness led her to develop the Cataract Laserphaco Probe. The probe patented in 1988, was designed to use the power of a laser to quickly and painlessly vaporize cataracts from patients’ eyes, replacing the more common method of using a grinding, drill-like device to remove the afflictions. With another invention, Bath was able to restore sight to people who had been blind for over 30 years.

Betty Rozier and Lisa Vallino invented the Intravenous Catheter Shield:

Betty Rozier and Lisa Vallino, a mother and daughter team, invented an intravenous catheter shield to make the use of IVs in hospitals safer and easier. The computer-mouse shaped, polyethylene shield covers the site on a patient where an intravenous needle has been inserted. The “IV House” prevents the needle from being accidentally dislodged and minimizes its exposure to patient tampering. Betty Rozier and Lisa Vallino received their patent in 1993.

Krysta Morlan [who has cerebral palsy] invented the cast cooler:

Krysta Morlan’s first invention was a device that relieves the irritation caused by wearing a cast called the cast cooler. The portable cast cooler works by pumping air into a cast through a plastic tube. Krysta Morlan was in grade 10 when she invented the cast cooler. Still in high school, Krysta Morlan then invented the Waterbike, a semi-submersible, fin-propelled pedaled vehicle.

Françoise Barré-Sinoussi was half of the team that discovered the human immunodeficiency virus (HIV):

Françoise Barré-Sinoussi and Luc Montagnier discovered human immunodeficiency virus (HIV). Virus production was identified in lymphocytes from patients with enlarged lymph nodes in early stages of acquired immunodeficiency, and in blood from patients with late stage disease. They characterized this retrovirus as the first known human lentivirus based on its morphological, biochemical and immunological properties. HIV impaired the immune system because of massive virus replication and cell damage to lymphocytes. The discovery was one prerequisite for the current understanding of the biology of the disease and its antiretroviral treatment.

Feel free to add to it in the comments, or link your own posts regarding Ada Lovelace Day!

QuickPress: [Ontario-only] CWDO CONTEST: “Accessibility Means…” An Exhibition

Passionate about accessibility?
Creative (even just a little bit?)

Then this contest is for you!

CWDO is creating an exhibit on what “Accessibility Means…”

The presentation will be displayed at Toronto’s People in Motion Show in June, 2010 and brought to other Awareness events around Ontario.

FIRST PRIZE: $250
2nd Prize: $100
$50 to all other entries selected for the exhibit

DEADLINE: Extended to March 31, 2009 (midnight, EST)
Continue reading QuickPress: [Ontario-only] CWDO CONTEST: “Accessibility Means…” An Exhibition

For your Tool-kit: Letter to my University Residence Coordinator

I’m on a variety of mailing lists dedicated to people with disabilities across Canada, and students are looking for university information. This can vary from what services are offered through Student Accessibility Services, how accessible a campus is, and what residence options they have available.

I only learned two days ago, by chance, that my university offers on-campus accommodations for (some) students with mobility-related disabilities. This information is not available on their website.

So, I drafted an email about it, and I thought it may be useful for others to adapt to their needs.

Dear [Residence Coordinator]

I was very surprised to hear that there are options for students with physical disabilities to live on campus at [Uni]. It was indicated to me that many of the residences at [Uni] have a room set aside on every floor that is larger than most, to accommodate mobility aids, and a private washroom with grip bars. I was very happy to learn of this, although it is not something I would now be able to take advantage of.

I’m writing because I think that this information, along with other information that would be relevant to students with disabilities coming to [Uni], should be available on the Residence website. A search through the Residence site does not bring up any references to students with disabilities or disability-related accommodations.

As well, [Person I spoke to] was unable to tell me about other accommodations that might be necessary for students with disabilities. For example, what policies are in place for students who work with service animals? Is there a way to adapt “general” rooms so that students who are Deaf can get visual alerts for alarms rather than relying on someone else to fetch them in case of an emergency? I understand from the website that [Uni] can accommodate vegan & vegetarian meal plans. I suspect that [Uni] can also accommodate food allergies or intolerances, but I feel this should be highlighted as part of the meal plan in a similar way to vegan* options.

As a student who is affected by disability, I am required to do a lot of advocating for myself and other people with disabilities. Frankly, one gets tired of having to navigate through levels of website to find out information, and I know I’m not the only student who has chosen to assume that, if information for students with disabilities isn’t available easily, then there probably isn’t any. I think making a section of the Residence website discussing explicitly what residences can accommodate students with disabilities, what is required to take advantage of these residences, what services [Uni] is able to provide to assist students with disabilities who wish to live in Residence, and a specific contact for students with disabilities to discuss any additional accommodations required would be very helpful. As well, contacting the Student Accessibility Services department and having them put a link to this information on their website would make it even easier for students with disabilities to know that [Uni] residence halls are happy to accept them.

Sincerely,

[Me!]

Feel free to use & adapt this letter for your needs.

Creating Accessible Campuses

My Student Union is doing work right now around issues of student residences. This is something that’s very much on my mind right now in light of the recent highlighting of difficulties of having a service animal when living on campus. In reading the Yummy Puppy Adventures – or, more accurately, the Mount Holyoke College Accessibility Fail – I started to really think about what an accessible residence experience would look like for students with disabilities.

So of course I brought it up to one of my student union executives, and instead of, say, asking students with disabilities for feedback on the issue, or contacting student accessibility services, he suggested I send him an email detailing out my concerns.

(In his defense, it is a month until school is over, and he is busy, and he doesn’t even know what to ask. I’m not irritated with him, just with the situation in general.)

So, this is the short list of things that I’ve come up with, but I know from previous discussions with the community that I will miss important things that should be considered.

In no order:

  • Clearly post that service animals are allowed around campus and in campus dorms and facilities.
  • List on both your residence page and your student accessibility services page that there are residences for students with disabilities.
  • Private washrooms with grip bars for toilet & shower/bath.
  • Wider doors & hallways.
  • Barrier free access to all dorm rooms.
  • Residence Orientation that mentions accessibility features to all students, including re-iterating scent free policies and that service animals are allowed on campus.
  • The ability to change any room over to have lights that flash for alerts.
  • A map of campus that indicates all barrier-free access points to all buildings.
  • Highlighting menu plans that accommodate food allergies or intolerances.

I’m certain I’m missing obvious things.

Please, give me your thoughts?