Category Archives: recommended reading

Recommended Reading for February 23rd

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

fearnleyCowra Guardian: Fearnley nominated for world sports award:

Former Charles Sturt University student Kurt Fearnley has again been recognised as one of the world’s greatest athletes by being nominated for a prestigious Laureus World Sports Award. […] Fearnley received his first nomination for the Laureus World Sportsperson of the Year with a Disability Award in 2007 but was beaten for the title by German skier Martin Braxenthaler. This year Fearnley will be joined by the captain of the Australian men’s Wheelchair Basketball team Justin Eveson in the race for the title.

frolicnaked at RH Reality Check: Endometriosis and “Why Don’t You Just…?”

Today, a close friend asked me how I was feeling, to which I said, “It’s bad enough to need the Percocet today.” I suppose her response shouldn’t have shocked me, but it did. “How can you work when you’re on those drugs?”

From there, I made the mistake of: a) continuing the conversation, and b) saying what I actually thought. “Isn’t the better question, ‘How do you work with debilitating pain?'” Because while I lament that I’m not necessarily more functional on narcotics than in 10+ pain, I know damn well that I’m not less. And you know, a lot of people I know don’t seem to register that, but they’re quite happy to share their opinions about what they think I shouldn’t be doing.

Brie at Feminists with Female Sexual Dysfunction: Guest Post – On the social construction of sex

There have been small steps taken to change the assumption that all women have the same sex life. But they are small steps. Whenever I talk to a friend about my sex-life or lack-there-of they are confused and don’t really understand. We have short 20 minute specials in the middle of the day, or on newscasts that only a select few are made aware of. Half of the specials that I have seen in the last few months I only knew about because the National Vulvodynia Association emailed me about them. And any attempt by network shows to highlight these problems, while appreciated, never quite get it right. ABC has tried, on a few occasions, to show women dealing with sexual dysfunction but the diagnosis and treatment happen so quickly it paints a false picture of the realities of the condition. We can’t expect miracles overnight I guess.

Philosopher Crip: Crip Conversations: When Activism and Scholarship Converge:

The following is an interview I conducted with my good friend, Bethany, who recently launched the blog CripConfessions.com.[…]

Bethany: CripConfeesions fits into my overall work because I am devoted to raising awareness and creating social change for disabled people. Through blog posting, I hope to add to my other work by providing a personal glimpse into my nuanced reality. I want more people to understand that disability is not a personal tragedy, but is an artful way of being. Of course, as a sexologist, I also want people to see disabled people as desirable and viable sexual/love partners so I hope some of my posts make some people realize how deliciously sexy disabled people are. CripConfessions then is just one part of the overall revolution of consciousness I seek to be a part of.

Miss Banshee: Defining Disability:

So why do I feel shame at saying I get that government check every month?

I guess it all has to do with how you see, or don’t see, disability. You can’t see my sickness. I can walk, and talk, and smile, and PRETEND everything is fine, and I do. You never SEE that I have a chronic illness. It’s all safely tucked away in my head, and I’ve spent the vast majority of my life seeing that it stays there, away from the world, my filthy, dirty secret. That I have a chronic, lifelong mental illness.

The Age: Family fought immigration laws for daughter

Australian migration laws tried to keep out a budding gymnast who delivers meals for charity. Cailan Ford-Weinberg was four when her Down syndrome was determined to be too heavy a cost on the healthcare system for her family to move from Britain, an inquiry into the migration treatment of disability heard.

After a lengthy $5500 appeal, the 15-year-old now has a shot at representing Australia at the Special Olympics and is well recognised in her community of Upper Ferntree Gully for volunteering with Meals on Wheels. […]

Disability Discrimination Commissioner Graeme Innes said the laws were outmoded. ”They make crude guesses and the assumptions they make about people with disabilities are only negative,” he said.

Recommended Reading for February 22nd

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

sullyfigureTiffiny at Disaboom: Jake Sully wheelchair action figure gets razzed:

And perhaps the most ironic/amusing detail of the wheelchair Jake Sully action figure is it’s ability to stand, including having moveable ankles, hips, and knees. Oh sweet irony indeed!

WHEELIE cATHOLIC: Disability humor: How does it feel to be the only nondisabled person in the room?:

In fact, I’d hate to be a quadriplegic who didn’t have a sense of humor. but it’s a lot different for me to make a joke about my disability than to be turned into a joke by someone else. […] Nondisabled people sometimes say they don’t understand the difference between appropriate and inappropriate disability humor (i.e., jokes that demean, objectify, label and dehumanize people with disabilities). But these nuances aren’t so hard to understand.

laughingrat: Psychology as Social Control, part zillion:

The whole DSM thing is really being discussed right now. Most of the stuff I’ve seen sounds like perfectly legitimate outrage; some of it actually expresses gratitude that certain mental states are being listed, because then, the reasoning goes, insurance companies will actually pay for their treatment. […] Don’t even get me started. Depression and complex PTSD are, as far as the Man is concerned, all in your head. Insurance coverage, my fat crazy ass.

Michael Isam at the Flagler College Gargoyle: Disabled students are invisible to able-bodied students:

Try negotiating those hallways on crutches, using a cane for balance or in a wheelchair.[…] But then there are those absorbed people blocking the entire walkway while they discuss the beautiful sheen to Rodney’s teeth. “Aren’t they just fabulous? You know his parents flew in a specialist from Switzerland just to clean them.” When you attempt to be polite and say “Excuse me”, they just look at you as if you crawled out from under a rock and how dare you interrupt this earth shattering important conversation.

Bob Williams at The Washington Post [Letters]: How to talk about disabilities:

What is glaringly missing from the debate over the epithet “retard” in The Post [” ‘Retard’: The language of bigotry,” op- ed, Feb. 15] is the voice of anyone with a disability who spent a lifetime enduring such garbage.

NewsMail: Disabled swing burnt in attack

The $25,000 Liberty Swing, designed for wheelchair users, was burned overnight on Wednesday in what Bundaberg Regional councillor Mary Wilkinson said was a “senseless act of vandalism”.

“We’re just shocked and shattered about the whole thing,” Cr Wilkinson said. “That swing was provided after an enormous amount of effort and donations by the community and Variety Queensland.”

Recommended Reading for February 19th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Oddly Specific: Note the Braille

sign with Braille warning not to go near door

Description: A closeup of a black sign on a wooden door reading, in Roman orthographics, “Caution. This door opens outwards. Please do not stand directly in front of the doors.” Beneath that is Braille text, presumably for the same message.

rachelmanija at The Neon Season: A User’s Guide to PTSD, Part IV: Postscript [WARNING: mentions child abuse, suicide, domestic violence, PTSD]

Two years ago I wrote a set of posts called “A User’s Guide to PTSD.” They attracted a lot of attention, and several people friended this LJ in the hope that I would write more in the same vein. I pointed out that I write about mental illness approximately once every two years, so it could be a long wait. If any of them are still reading, I hope they enjoy this follow-up. If you missed the first set, I’ve linked them below.

ABC News: Conjoined Twins, Together Forever

At the age of 45, the Schappell sisters are believed to be among the oldest living conjoined twins in the world. If one died before the other, they say, the survivor would choose separation- but only under that circumstance.[…]

The example they’ve set with their lives has influenced how some experts think about a decision many take for granted: that conjoined twins should be separated if possible.

MSNBC: Disability-free world may not be a better place

As some families with a Down syndrome child have noted, fewer kids with Down may mean fewer public programs, fewer resources in schools and for housing and less political clout. If some genetic diseases begin to fade away, will society’s willingness to provide support for the diminishing numbers of those born with such diseases fade as well? And are we headed to a time when parents who choose not to be genetically tested find themselves condemned as morally irresponsible parents?

The Washington Post: Va. families fear more cuts to services for the disabled

Proposed cuts to Virginia’s Medicaid program could make that waiting list even longer, Wooten said. The waivers fund a variety of services that help people with disabilities continue to live in the community, such as supported employment, companion services and nursing care, Wooten said.

With the support they receive through the school system, the Mays said they are able to care for their son without state aid. Sam May attends the Davis Career Center at Marshall High School, where he learns life and career skills and is able to work in a company’s mailroom.

If her son cannot get state-funded services when he graduates, Kathy May said she is not sure what the family will do. She and her husband work full time, so one of them likely would have to quit to care for him. Without two incomes, they probably would have to sell their home and move, she said.

Recommended Reading for February 18th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Salon: How childbirth caused my PTSD [WARNING: story of obstetric assault and PTSD symptoms. More accurately labelled “obstetric trauma”, not “birth trauma”.]

He confirmed that I didn’t have PPD or any of its cousins. Yes, I had depression. Yes, I had anxiety. Yes, I was postpartum (four months at this point). But what I had was something else, something those specialists, so married to their own territory, couldn’t see. I had post-traumatic stress disorder.

Dis/Embody: Lost and masculine mobility [SPOILERS for Lost]

Perhaps the most frustrating thing about men and mobility impairments, particularly in dramatic television, is how often they are seen struggling against disability and attempting to overcome it to regain a properly dominant masculine identity. Disability as narrative obstacle, as it were. How much more novel and relevant would it be to watch a character adapt, craft alternative forms of masculinity, and resist cultural narratives of cure and exceptionalism?

Phoenix New Times: Shocking Pink: Arpaio’s Detention Officers Unnecessarily Terrorized a Psychotic Inmate Because He Resisted Wearing Pink Underwear [WARNING: assault, violence]

Esquire: Roger Ebert: The Essential Man

Now his hands do the talking. They are delicate, long-fingered, wrapped in skin as thin and translucent as silk. He wears his wedding ring on the middle finger of his left hand; he’s lost so much weight since he and Chaz were married in 1992 that it won’t stay where it belongs, especially now that his hands are so busy. There is almost always a pen in one and a spiral notebook or a pad of Post-it notes in the other — unless he’s at home, in which case his fingers are feverishly banging the keys of his MacBook Pro. […]

He calls up a journal entry to elaborate, because it’s more efficient and time is precious:

When I am writing my problems become invisible and I am the same person I always was. All is well. I am as I should be.

He is a wonderful writer, and today he is producing the best work of his life.

New York Times: Fighting Denied Claims Requires Perseverance

Ms. Carr’s form of shock is all too common. The Department of Labor estimates that each year about 1.4 billion claims are filed with the employer-based health plans the department oversees. Of those, according to data collected from health insurance industry sources, 100 million are initially denied. In simpler numbers, that is one of every 14 claims. […]

“About 53 percent of appeals work in our state,” said the Kansas insurance commissioner, Sandy Praeger. “That demonstrates that the process works.”

Chris Walters at The Consumerist: Protect Yourself From Unexpected Fees At Medical Clinics

An anonymous reader wrote to us to ask what he should do about unexpected bills from a medical clinic. He chose the clinic precisely because he can’t afford hospital bills in the hundreds of dollars, and was led to believe that there’d be no out-of-pocket cost. It turns out there was.

Jody McIntyre at Electronic Intifada: Interview: Disabled activist continues struggle in Bilin

Everyday, people were just waiting for the moment I would die. At first, on the news they said I was a martyr; my father heard on the radio that his son had died. Later, they changed the report, and said that I was a “living martyr.”

Recommended Reading for February 17th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

four people in uniforms and helmets on hockey sleds

new jersey newsroom: Sled Warriors: Children with disabilities teach disabled veterans how to play hockey

Here’s a twist. Imagine a child teaching an adult? Well, it’s being done right here in the Albany area where the kids’ Sled Warriors ice hockey team is holding a teaching clinic for adults.

The twist, you see, is this: the adults are disabled war veterans. Their teachers are youngsters who are athletic, strong-willed, courageous and determined – and physically challenged. It’s all part of the Stride Adaptive Sports program, a fairly new therapeutic recreation-related service for individuals with disabilities that spans many Northeastern states, including New Jersey.

hkfreeman at The Living Artist: Ableist Activism

It is a great irony that as I have become more aware of and invested in the need for social justice activism, I am less able than ever to participate in it. […]

In short, I am irked that right when I am most willing to Do Something, I am drowned in ableist pleas to Do Something that I cannot do. I am doing what I can – my art, blogging, participating in discussions when and where my spoons permit – but in the face of those endless pleas for phone calls, personal appearances, and donations, my best attempts are framed as pathetic excuses for avoiding “real” activism.

Times of Malta: Gozo churches urged to provide easier access for persons with disabilities

The National Commission, Persons with Disability, said today that complaints about lack of accessibility increased by 76 per cent last year compared to previous years. […] Mr Camilleri attributed the increase in complaints to the fact that people with disability were becoming more aware of their rights.

An area of concern, he said, was that despite the commission vetting building development plans submitted to Mepa, several new buildings still did not provide for access for persons with disability, meaning that the buildings were not built according to the approved plans.

BoingBoing: TSA forces travelling policeman to remove his disabled four-year-old son’s leg-braces

Philadelphia TSA screeners forced the developmentally delayed, four-year-old son of a Camden, PA police officer to remove his leg-braces and wobble through a checkpoint, despite the fact that their procedure calls for such a case to be handled through a swabbing in a private room. When the police officer complained, the supervising TSA screener turned around and walked away. […]

The screener told them to take off the boy’s braces.

The Thomases were dumbfounded. “I told them he can’t walk without them on his own,” Bob Thomas said. “He said, ‘He’ll need to take them off.’ ”

Ryan’s mother offered to walk him through the detector after they removed the braces, which are custom-made of metal and hardened plastic. No, the screener replied. The boy had to walk on his own.

Media Access Australia: Promoting captions at a young age benefits Deaf and hearing impaired students

Introducing captions at an early age has benefits beyond the individual child, as it impacts on changing attitudes and practice for all concerned. […]

The article looks at how using captions in a family setting from a young age promotes positive attitudes towards captions. Ensuring that all content viewed in the family home and at school is captioned helps normalise a child’s experience. Griswold also encourages the hearing impaired child to take ownership and become the ‘technology expert’ for switching captions on.

The Guardian: Anti-terror body scanners may be illegal, ministers warned

Ministers should act immediately to ensure that the use of full-body scanners at British airports is lawful, the ­Equalities and Human Rights Commission has warned.

The commission’s head, Trevor Phillips, told the transport secretary, Lord Adonis, ­serious concerns existed about invasion of privacy and there was an apparent lack of safeguards to ensure scanners were operated fairly and without discrimination.

L.A.Times: What makes Sammy run wild [meloukhia’s comment: “…the article gets better. Oh my stars, does it.”]

Obsessed with success, they find themselves in frenzies when the industry’s harsh reality clashes with their desires. Now, their condition has a name: Hollywood NOS. […]

Dr. Todd Zorick, a psychiatrist and professor at UCLA’s Semel Institute, calls the condition “Hollywood Not Otherwise Specified,” or Hollywood NOS. The unofficial term is a wry reference to the “NOS” designation in the Diagnostic and Statistical Manual of Mental Disorders, the bible of psychiatric ailments, which refers to a condition that impairs a patient but doesn’t fit with any specified, recognized disorder. Hollywood NOS describes a negative pattern of behavior for the sole purpose of achieving validation. The patients usually display a combination of symptoms: impulsiveness, anxiety, poor self-esteem and some personality disorder traits.

Recommended Reading for February 16th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

frida writes: Valentine’s Day: Sex and Disability 2 [warning: discusses sexual abuse]

Here’s what I want: a movement from a culture of abuse and denial of our rights to sexual autonomy.

The Age: Bible bashing the homeless, Abbott style [This man wants to be our P.M. Seriously. ~L]

I was in Canberra last week and had the opportunity to ask Opposition Leader Tony Abbott whether a government under his direction would continue with the Rudd government’s goal of halving homelessness by 2020. His answer was no.

In justifying his stance, Abbott quoted from the Gospel of Matthew: ”The poor will always be with us,” he said, and referred to the fact there is little a government can do for people who choose to be homeless.

WA Today: Fine print hides risk of genetic test offer

Insurer NIB has begun offering its customers cut-price personalised genetic tests – which could expose them to higher premiums or even leave them unable to get life insurance or insurance payouts.

But the company says it has no ulterior motive and only wants to help its members manage their health. […]

Under the official “Genetic Testing Policy” of the Investment and Financial Services Association of Australia, life insurance companies can demand that a prospective customer hand over the results of any genetic test they have had done.

Vindy.com: Police trained to deal with disabilities

Township law enforcement is becoming more attuned to interacting with residents with a physical or mental disability.[…] “The major thing that can happen is the officer doesn’t realize the disability right away,” he said. “The officer will react on what he perceives is happening instead of what is actually happening.” […]

[Patrolman Tom Collins] said one thing officers should realize is that, like someone who raises his or her voice when worked up, a deaf person’s hand signals become more exaggerated. “Officers shouldn’t take that as a sign of aggression,” he said. […]

Kloss said no matter the severity of the disorder, those with autism usually have a set way of doing things. He said officers need to be aware of what could force an autistic person out of his or her comfort zone.

The Canadian Press: HEALTHBEAT: Drugs tested to improve learning in Fragile X syndrome, may give autism hints

Now a handful of drug makers are working to develop the first treatment for Fragile X, spurred by brain research that is making specialists rethink how they approach developmental disorders. “We are moving into a new age of reversing intellectual disabilities,” predicts Dr. Randi Hagerman, who directs the MIND Institute at the University of California, Davis, a study site. […] The experimental drugs have an unwieldy name – mGluR5 antagonists.

Media dis&dat: California law will clarify information about administering insulin to school-age students with diabetes

“This law will effectively address the dangerous situations currently faced daily by California’s school children with diabetes,” said Dwight Holing, Secretary?Treasurer Elect of the American Diabetes Association. “If passed, this legislation will clarify existing law and help children with diabetes in California public schools to get the care they need and are entitled to under federal and state laws.”

“Depriving these children and their parents of an effective solution to this critical health issue is a civil rights problem that can best be solved by the legislators of this state,” said James Wood of Reed Smith, LLP, pro bono counsel for the American Diabetes Association.

New York Times: Study Suggests More Veterans May Be Helped by Talking About Killing

Mental health experts said the new study confirmed findings from research on Vietnam veterans and did not break much new ground. But they said it underscored that treating stress disorder among veterans is often very different from treating it in people who, say, have been raped or have been in car accidents.

“People don’t understand the moral ambiguity of combat and why it is so hard to get over it,” said Rachel Yehuda, a professor of psychiatry at Mount Sinai School of Medicine in New York. “What makes combat veterans ill is not always about being a victim, but, in some instances, feeling very much both a perpetrator and a victim at the same time.”

Recommended Reading for February 15th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Rick Hansen with the olympic torch

Rick Hansen carries the Olympic torch. [image source]

Assiya at For a Fairer Today: Olympic ceremonies win

Every day, I am reminded that people with disabilities are considered lesser by society. Which is why, when Rick Hansen rolled in tonight bringing the torch, I smiled so wide my face hurt.

Haddayr: Plucky Cripples Don’t Let Lack of Bingo Card Stop Them [I recommend reading the tongue-in-cheek comments on this one!]:

I asked for help and you delivered! Here’s the final disability bingo card for reporters! Folks seemed like they wanted one for Stuff People Say To You, so I might tackle that one next.

ballastexistenz: Aspificating snobbery over the DSM all over again

And some of us might rightly find it insulting to be referred to as the ones that others had to be oh-so-tragically “lumped in with” (you know, “crazy”, “low functioning”, “retarded”, “autistic”, or other categories that people seem to do their darndest to distance themselves from). Like we have disability cooties or something from the way some people behave, and like having the medical people put us in the same category as our “betters” is such a terrible threat (and like it changes anything about who any of us really are). […]

Anyway as much as this is a rant against snobbery it is also a call to remember what is important. Look to that beautiful shifting central set of attributes that make us alike and different. Stop using the periphery to divide us.

Feminists with Female Sexual Dysfunction: FSD news from the NVA and the DSM

Then, via Helen @ Questioning Transphobia, we also now have access to a draft of the DSM-V (Diagnostic and Statistical Manual of Mental Disorders.) The final version of the DSM-V is currently slated for release sometime in 2013. So be sure to check out that draft, too!

Why is this important? There’s a couple of different reasons; for one thing gender identity disorders and sexual dysfunctions are listed in the DSM, (yes even sexual dysfunctions caused by medical/health issues,) which is a powerful force behind having disorders recognized, researched, diagnosed, and treated. The manual is not without a fair share of controversy, however, particularly from a feminist perspective.

There are also some new sexual health diagnoses up for consideration, including hypersexual disorder (but not Restless Genital Syndrome? Is that up for consideration, and if not, why?) sexual coerison disorder, sexual disinterest disorder in women and men (related to hypoactive sexual desire disorder,) and, notably, Genito-Pelvic Pain/Penetration Disorder. This would include vaginismus & dyspareunia not due to a medical condition. (Pain due to a medical condition would still be under code 625.x – vulvodynia falls under this category.)

Astrid at Astrid’s Journal: Temper Dysregulation Disorder with Dysphoria: The Missing Link or a Can of Worms?

There is a new childhood mental disorder being proposed for DSM-V: temper dysregulation disorder with dysphoria (TDD). When I first read its criteria, my thoughts were: “Finally, it’s about time people are acknowledging not all children’s irritability is bad behavior.” Quite honestly, if this disorder had been around in DSM-IV in 1994, I would’ve been a surefire candidate for a diagnosis, except for the fact that autism should be ruled out first – but then again, I’m not sure autism would’ve been the first thing a shrink thought of when seeing me if TDD had been on the books.

The Pursuit of Harpyness: Ms. M on Living With Chronic Illness, a Guest Post

Those of us who live with invisible illnesses live in two worlds – the one where we “pass” if we are having a good day, and the world we retreat into when our symptoms flare. We may drop out of sight for a day or two or three, but people are so busy they may not notice we’ve been gone.

Other People’s Worlds: Temple Grandin talks the HBO movie

This is a transcript of Temple Grandin’s first interview with the Autism Women’s Network after the premiere of HBO Films’s biopic Temple Grandin. She also talks about augmentative communication and education. […]

Temple Grandin: Mick Jackson picked out Claire Danes. The reason why he picked her out was he’d seen her do a reenactment of the Andrew Wyeth painting “Christina’s World,” which is a painting of a lady that’s crippled. Claire Danes dragged herself across the street in New York like she was Christina, and then Mick decided that she’d be the one. Then, of course, Claire Danes, she became me. She didn’t just act me and learn the lines—she became me.

Recommended Reading for February 14th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Sins Invalid: Sins Invalid’s Interview with Terry Rowden

Leroy of Sins Invalid: We are both music historians, and in The Songs of Blind Folk, you touch on the invisibility of Black blind female Blues artists. Can you expand on this for our readers?

Terry Rowden: As I wrote in The Songs of Blind Folk, the fact that blind and other disabled women were perceived as being particularly vulnerable made and continues to make the image of a blind woman on stage an uncomfortable one for audiences that have been much more willing to accepted disabled male performers.

Carnal Nation: It Can’t Happen Here [***stalking/sexual assault/NSFW WARNING***]

Nina does not aspire to the street punk life, but she’s usually barely a heartbeat from the gutter anyway. She lived in constant peril of losing her home. Her mother was always threatening to throw her out, and would often go so far as to pack Nina’s bags and toss them through the door onto the street. Alternately, she would lock Nina in her room for whole days. She constantly belittled Nina, saying she “looked disabled” and would never be able to make it on her own in the world.

Toronto Sun: Elections Canada must open door to disabled

In March 2008, Hughes went to vote in a federal byelection in Toronto Centre — when Bob Rae was elected — only to find the polling station was in a church basement and not accessible to disabled people.

Determined to vote, he crawled down the stairs on the seat of his pants.

When he had to face the same stairs in the general election of October 2008 he complained to Elections Canada officials who “dismissively said it was not their problem,” Hughes’ lawyer said.

Brisbane Times: Holidays without hassles: a rare find for the disabled

The business [BE Lifestyle Retreats] now employs 10 fully-qualified staff and includes a retreat at Cooran in the Noosa hinterland that accommodates four people and a four-bedroom holiday house at Peregian Springs.

Special features of the accommodation include electric beds, pressure mattresses, hoists and commode chairs as well as wheelchair access and wheelchair accessible vehicle pick-up and delivery service. Picnic packages and tours to wheelchair accessible venues can be organised.

Charlotte Observer: One man in a wheelchair, one big day for racial equality

From his wheelchair, [the Rev. Cecil Ivory] led Rock Hill blacks through a bus boycott that shut down the bus company. He led the NAACP. And now he was leading the lunch counter sit-ins. He told those gathered that night he was determined to wheel himself into McCrory’s the following day and park himself at the lunch counter. “His reasoning: How could he be arrested for not violating the custom, for not taking up a stool reserved for white customers?” Boone said. “Plus, he clearly couldn’t stand up in the back to eat.” […]

Soon Assistant Police Chief John Hunsucker and another officer arrived. Hunsucker instructed the manager to ask Ivory and Hamm to leave, Ivory wrote. The manager did.

Ivory asked why.

Hunsucker said “he did not care to discuss the matter,” he wrote. Ivory argued they had just “made previous purchases … and no one had objected.” He added he wasn’t sitting on a stool reserved for whites. Still, Hunsucker arrested the two.

KATU: Disabled man tasered by Transit Police officers

[Jamal] Green, 34, is disabled, with serious cognitive impairments. His lawyer says it is hard for Green to understand and follow orders. According to McKenzie, her grandson was attempting to get home using the public transit system. He initially got on a bus that wasn’t operating, but when the police officers first approached Green they instructed him to show his hands. According to a Portland Police spokesperson, Green didn’t comply with the request and instead kept them tucked up in his sleeves.

The police report indicates that the first officer warned Green he would use a tazer, then did so. Then the other officer, who deemed the first tasering ineffective, tasered Green a second time. Green says that he didn’t understand the commands as he was confused why the officers wanted to see his hands. He was eventually taken to jail then later released.

But Green’s grandmother is also upset that the officers confiscated his seizure medicine. The police report confirms that they officers initially thought it was ecstacy and at first attempted to charge Green with posession of a controlled substance.

[More detail and security video at The Portland Mercury]

Recommended Reading for February 12th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Tom Sawyer actorsSt Louis Globe-Democrat: Tom Sawyer to be staged by actors with disabilities as part of ‘Big Read’

“The Assorted Short Adventures of Tom, Huck and Becky” will be performed for local students by That Uppity Theatre Company’s DisAbility Project, an ensemble of actors with and without disabilities, as part of St. Louis’ “Big Read” project.

This is possibly the first production of this classic book to be created through a disability perspective and performed primarily by actors with disabilities. […]

The ensemble has 15 active members, both with and without disabilities, who are diverse in age, race, ethnicity, class, occupation, education, religion, sexual orientation, physical ability and performance experience.

Politics Daily: My Left Breast Put Fancy TSA Scanner to the Test

Then she said she needed to check something. And she began sweeping her hands around my left breast and rib cage.

This didn’t bother me all that much; in fact it made me smile. For one thing, I don’t really have any feeling in my left breast. That’s because it doesn’t exactly exist. For six years now, it’s been a composition of part of my lat dorsi (mid-back muscle) and a skin graft from my back, supplemented by a sac of silicone. That, ladies and gentlemen, is the result of a mastectomy and reconstruction, which in turn is the result of breast cancer. […]

The takeaway here is, if you have fake body parts, you should be prepared to explain them to the full-body screening folks at the TSA.

WHEELIE cATHOLIC: Saying it doesn’t matter, when it does

Now imagine this being repeated over and over in the course of a number of hours, days, weeks, months, even years, when a resentful, angry person responds like this when you as a person with a disability make a choice. […]

Their reaction may be passive or outright anger. Sighing. Heaving. Verbal retorts. Arguing. Complaining. Or worse.

Makes me wonder if “learned helplessness” is really that or an intelligent choice in the face of these situations.

“Any color is fine.” “Doesn’t matter which flavor it is.” No, don’t rock the boat. Just don’t say anything. This can even lead to not asking in the first place.

SnowdropExplodes at A Femanist View: Dancing on Wheels 1st episode [includes spoilers]

Britain has until now never entered into the European Wheelchair Ballroom Dancing Championship. The objective of the series is to find a couple to represent Britain in the next competition.

The wheelchair dancers are all novices to dancing, but have been wheelchair users for some time (the shortest has been for 18 months after becoming paralysed). The temporarily-able-bodied dancers are all celebrities who either appeared on Strictly Come Dancing or else have dancing training due to their showbiz background.

The Smith College Sophian: Dis/Ability: An Introduction

As Smithies, there is a lot on our minds. Worries about classes, papers, exams, relationships, fitting meals into our schedules, money and so many other things constantly flit through our minds.

But how many of us worry about getting our course materials in accessible formats, having a note-taker whose notes we can follow, or deciding whether to go on medical leave for the third time in as many years or to tough it out for one more week – only to pay for it for months after?

Maybe you don’t have to think about those things. We do.

The News Tribune: Delvin backs closing institutions housing disabled

At the top of [Arc advocates’] wish list was for the Legislature to consider closing the state’s institutions and allow people to live and get services in their own communities.[…]

Teresa Payne, an Arc client and advocate for people with disabilities, said people should be allowed to choose where and how they live.

Payne, who has impaired vision and slight mental retardation because of a birth defect that affected her brain development, lived in the state’s Lakeland institution as a child and left when she was 17 because she was allowed to make the choice. She said she doesn’t remember much about living there because she was medicated, but she knows her life is better because she lives independently now.

“I am successful,” Payne said. “I am in the process of buying my own home. I have a part-time job. I serve on the (Developmental Disabilities Council) board. I want others to have the same opportunities.”

Recommended Reading for February 11th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Marian E. Lupo: Bringing Back the Baby Lion: Reflections on the Conference on Disability, Culture, and Human Rights, Disability Studies Quarterly, Vol 29, No 4 (2009)

The question I began my presentation with is a question still with us: “We have global poverty, we have global disability, but we also have global resources. Who has those global resources?” I would suggest, as one source, the multinational corporations, which now occupy the historical space of unjust wealth carved out by the East India Company.

I say unjust because the wealth owned by these entities is premised and accumulated based on the human body as commodity, as object. Those already disabled are a disvalued commodity. The process of extracting economic “value” from other bodies all too often produces “disability,” and a devaluation of the now exhausted commodity. Thus, once the value of these bodies is used up, they are discarded. In the U.S., more value may be extracted from the exhausted commodity through the cold-blooded ingenuity of the profiteering insurance industry.

My suggestion is that disability is a given of the human condition, not an economic exception. Thus, the equitable distribution of resources is not a privilege to be earned, but the most basic component of human rights. Basic respect for the disabled means respect for the inherent fragility and mutability of the human body.

Wicked Local Cambridge: Letter: Don’t deny access for handicapped

Imagine a woman in a wheelchair, trapped in her home, with no way to get in or out. No, this is not a scene from a horror movie; it’s the daily reality of Lesa Dane.

Trapped in her home for more than three weeks, Lesa, a paraplegic, was recently denied a building permit for a chairlift to be put in her second-floor condo by the city’s building commissioner — more concerned with whether the chair might obstruct a stairwell than the safety of a disabled woman who suffered a crippling autoimmune disease that left her in a wheelchair. […] The commissioner stated her application would not be approved unless she had a 6-foot-wide staircase.

SFGate: Legal-test firm fights blind student in court

The company that administers the California bar exam has asked a federal appeals court to stop a blind law student from using computer-assisted reading devices in the test, which starts in two weeks. […] Enyart works as a law clerk for Disability Rights Advocates in Berkeley and would suffer no hardship by waiting a few months for an appeals court to review the case, the company said. […]

Enyart, 32, has been legally blind since 15 from macular degeneration and retinal dystrophy. As a UCLA law student, she took tests on a laptop with software that magnified the text and read the questions into earbuds. […]

The examiners offered a pencil-and-paper test with questions displayed on a large screen, a human reader and twice the usual three-day testing period. Enyart said she would become nauseous from having to look at the screen and needed the computer setup to have a fair chance of passing.

MSNBC: Different colors describe happiness, depression: Study could help doctors gauge moods of patients with verbal challenges [I wonder how culture-bound this is? ~L]

The study found that people with depression or anxiety were more likely to associate their mood with the color gray, while happier people preferred yellow. The results, which are detailed today in the journal BMC Medical Research Methodology, could help doctors gauge the moods of children and other patients who have trouble communicating verbally.

NPR: Children Labeled ‘Bipolar’ May Get A New Diagnosis

In a move that could potentially change mental health practice all over America, the American Psychiatric Association has announced that it intends to include a new diagnosis in its upcoming fifth edition of the Diagnostic and Statistical Manual — and hopes that new label will be used by clinicians instead of the bipolar label. The condition will be called temper dysregulation disorder, and it will be seen as a brain or biological dysfunction, but not as a necessarily lifelong condition like bipolar.

Telegraph.co.uk: Patients in ‘vegetative’ state can think and communicate

Experts using brain scans have discovered for the first time that [a minority of] victims, who show no outward signs of awareness, can not only comprehend what people are saying to them but also answer simple questions. […]

The patient was then asked six simple biographical questions including what was the name of his father and whether he had any sisters. In each case, his thoughts were picked up by the scans within five minutes. In each case he was 100 per cent accurate. […]

Jacob Appel, an expert in medical ethics at the Mount Sinai Hospital in New York, said that doctors should help end the lives of people trapped in their bodies, if they think that is what they want.

[Note that there is nothing in this article suggesting that the technique might be used to drive assistive/communicative technology to improve the quality of life of the few people who could use it. There is only the rush to use the tech to find out whether people want to die.]

Related: SciAm: Conditional Consciousness: Predicting Recovery from the Vegetative State