Category Archives: introspective

Lean On Me

Lean on me, when you’re not strong, I’ll be your friend, I’ll help you carry on.

I read a recent article in the Chicago Tribune about the increase of peer support groups as mental health treatment, rather than wholly centering on a physician or therapist to guide treatment. The article talks about how people with mental illness use these peer support groups to get

“a chance to discuss and maybe get help for problems that, all too often, their friends, families and even therapists didn’t seem to understand. How do you feel comfortable at social gatherings when everyone there knows you tried to kill yourself? Should you abandon your religious faith if you’re prone to thinking that you’re God? How do you handle your illness when your child has it, too?”

I obviously believe in the benefits of this kind of peer support and discussion, or I wouldn’t be writing about my mental health issues on a blog for people with disabilities. I have gotten invaluable support, information and insight from friends with mental health disorders. Not only the big issues, like reassurance that depression will eventually lift and the sky will not fall on my head. Some of the most useful stuff I’ve gotten is a discussion of which facial scrub best deals with the flaky dry skin caused by taking lithium. (I use Pond’s Fresh Start Exfoliating Scrub with microbeads! They do not send it to me – I buy it.) I also strongly support the centering of people with mental illness and their own experiences.

But I’ve also had a couple of times when being so close to friends with mental illness may have been a bad idea. My roommate and best friend in college also was struggling with newly diagnosed mental health issues of her own, and a crisis for one of us tended to precipitate a crisis in the other. I vividly remember sitting in the waiting room of the emergency room as she was being admitted, folded up in the plastic chairs in the waiting room, reading The Bell Jar while I waited for her to be processed. And going into an immediate spiral that ended with me checking myself into the hospital a few weeks later. Where, despite being strip searched and in a carefully controlled environment, I learned from my fellow patients how to find things to use to self-injure.

For me, the scariest thing about depression is how seductive it is. Just giving up, since nothing matters or will accomplish anything anyway, and letting myself turn out to be the failure and disappointment I know myself to be. (Says the depression voice.) And getting well, and staying well, and maintaining the wellness, can be so exhausting that it can be tempting to just chuck it all. So I can find myself fetishizing the experiences, the memories. The accessories – the things I used to self-injure, the dark rooms and shapeless clothes. The feeling of being insulated from the world, wrapped in cotton wool, removed.

That’s why these support groups scare me. I saw that article and I felt it in my stomach. I can close tabs and scroll past these things on the internet, but in a room, talking to someone, I can’t just put my hand over their mouth. Maybe this is something totally unreasonable, an unfounded superstition I have, but I feel like it might pull me back in.

Recognition

Y’all may know I’m mentally ill. I have mentioned a time or eighteen. It’s a thing I do, talking about my experiences with mental illness and mental health care, trying to provide an anecdote to do with the data.

What I talk about somewhat less is having cognitive variations and learning disabilities. Which I do. Most of my life I thought I didn’t. I was never evaluated for learning disabilities; I got good marks in school (some of the time). I was not evaluated for autism spectrum disorders. When I was a child ASD wasn’t a diagnosis at all. There was just autism and the perception of it was really scary: autism meant kids who didn’t talk at all and had to be put in helmets so they didn’t hurt themselves too much from banging their heads against the wall and lived in institutions. Autism definitely didn’t mean anyone like me. (Even though I did have repetitive motion behaviours — my relatives talk about it a lot as a cute baby story.) When autism spectrum disorders did become diagnoses in the U.S. I was an adult and adults are rarely evaluated for autism. Or cognitive variations. Or learning disabilities. They’re childhood things aren’t they? (Don’t those kids grow into adults?)[1. On my Big-Ass List of Shit What Needs Doing is finding someone who can do that evaluation and see about official diagnosis; if nothing else it would help to have to throw at the Social Security Administration for disability stuff. But some people who have known me a long time and are not unfamiliar with autism traits have said that autism is not inconsistent with my history and my behaviour. Even if they don’t feel qualified to make a full-out diagnosis. They include my wife — who is admittedly not all that objective but it is kind of her field (one of her Master’s degrees is in psychology) — and my general practitioner (who reads up on things her patients ask about when she doesn’t know) and the therapist I’ve seen, off and on, since before I met my wife. What with there being rather a lot of spite for people who are ‘self-diagnosed’ I usually write about the traits directly and avoid the diagnostic label. But I’m reasonably confident I am actually autistic. The Bad Self-Diagnosed Autistic Person who full-out claims an autistic identity with all the negative parts that go along with and is doing it to be an enormous jerk seems to be a unicorn. But I have seen hatboxen in fora like F•rk write hatboxish shit and follow it up with “i cant help it i got teh assburgers hur hur” which is yeah appalling behaviour.]

It is real damn frustrating. It’s hard to start anything and harder to finish what I do start. I would love to be organised but I can’t; when I have to put something in my hands down I have to put it down now and that means wherever I’m at and not wherever that thing lives. Sometimes digits transpose when I am reading or keying or writing them and sometimes the words I read are not the words on the page but I learned a long time ago to compensate well enough no one knew. I compensated well enough I forgot I had this thing that might be dyslexia until I started paying attention to what my perceptions and thoughts were doing. I have a lot of trouble communicating in person using my voice — I don’t process speech well and I don’t speak well.

And sometimes I am just not good at thinking. (Lately this has been a lot of the time.) It’s hard to even complain about having trouble thinking to my wife. She perceives it as Moira Is Being All Negative About Herself Again and she interrupts me with “You’re not stupid. You’re one of the smartest people I know” and I’m all faaaaaaack what’s the point? and I just shut up again. I’ve had this conversation and it doesn’t go anywhere nice.

Thing is I’m not saying “I feel stupid and I don’t like myself for it.” Okay there’s some of that I wouldn’t be me without some of that but it’s more frustration at not being able to do shit what is needful. I am trying to say I feel stupid and I need help doing shit. Please. Being smart does not help me. Being able to rattle on about how cool quantum mechanics was when I finally managed to lose the distortions dualism imposes on quantum-scale stuffs and wrap my head around monist models of quantum-scale mechanics is not a useful skill in daily living. In fact being perceived as highly intelligent whilst actually having cognitive impairments has been an enormous pain in the ass. People assume because I can understand quantum mechanics and high-order differential equations (and possibly most important because I have a talent for writing) I am globally smart and can apply that intelligence to any problem needing solving. Which I can’t. But I have trouble getting help because I’m smart.

It’s more than just “Gosh Moira you should be able to do these things.” It’s also “Gosh Moira you are so smart you can’t possibly have cognitive impairments.” And people feel taken advantage of when they do help. They’ll see me do something fucking ludicrous nerdy like building a reference document for my tabletop role-playing-game using endnotes and a bibliography in compliance with The Chicago Manual of Style. I can’t blame anyone for wondering why — if I can do that — I can’t do something that. Y’know. Pays? There’s a Voice in my head saying the same thing all day every day. (Most of the time it looks like I’m working on the nerd project I actually spend not working on it. It’s just since no one’s paying me to do the nerd project no one cares if I’m reading manga instead of working.)

Only rarely do I get any farther than “I feel stupid” before I get cut off. It’s exhausting, trying to get the rest of this said and heard, so that’s usually where it stops. In text — in a blog post — I can say it all at once. Nobody has to read it all, but I can say it. There’s maybe a better chance for communication this way.

Anger as a Constructive Force

Note: This is kind of an old post, but I think it’s still useful.

I’m sure that many of you have heard variations on the following:

“You’re just too angry. Your anger alienates people/potential allies and might make them afraid to associate with you! They won’t want to be on your side because of your anger.”

This statement, or a variation thereof, is often wielded at feminists, people of color (particularly women of color), radical progressives, non-mainstream members of the LGBTIQA community, disabled and chronically ill folks, atheists, fat acceptance activists, and others in order to get them to capitulate to some weird, unseen social standard that requires that they not offend anyone even as they fight to be heard and taken seriously, as well as for social and political justice.

There is a difference between being angry for its own sake, and turning one’s anger into action. For whatever reason, mainstream Western culture has decided that people who have historically been put down, devalued and mistreated by those in the majority should fight for their rights, but they should “be nice” while they do so. The messages that historically devalued groups have to get across, even if said messages are quite radical, should apparently be palatable even to the people who have the most social currency in mainstream society. What’s radical about that?

Anger makes people fundamentally uncomfortable, and I think that this discomfort often discourages constructive work. When those who need to express their anger, somehow, are not allowed to do so, the anger can become toxic. Instead of a catalyst for change, it becomes a symptom of a missed opportunity.

My own anger is something that I’ve just begun to embrace after years of stuffing it down and having it reappear at other times, often to my own detriment. Certainly, I may be too angry. I may indeed alienate people with some of my words. However, do I really want those who cannot “handle” what I have to say as allies, if I have to add, for example, rainbows and unicorns and puppies to my outlook on the world in order to make my outlook more palatable? No.

Anger, if used in a constructive manner, can be a great creative force. Most of the cartoons that I draw and have drawn start or started as brief doodles about things that make me or have made me angry. When I can create something that has been inspired by my own strong feelings, I feel much better and more able to cope with things such as my illness, and the physical pain and fatigue that come with it. When I take the opposite tack–that is, when I hold my anger in and don’t do anything with it–I feel worse.

[Originally posted at HAM.BLOG on August 7, 2008.]

Tasting Fear

[This here is a warning that the author has written a post about, amongst other things, being depressed and suicidal. For this reason there is a clicky thing. Use it in whatever health you got. Also please note that with respect to my wife and our marriage you are getting exactly one perspective–mine–and everything is filtered through my experiences of abuse. This is not an objective reporting of events.]

Y’all who’ve been following this adventure know I’ve been fucked up for a while now. It’s been next to impossible to get any work done–it took me until five-thirty this morning to get caught up on my inbox. Today I got to explain why I should keep my job. On the phone. I don’t know as I was very convincing. Being highly ambivalent about wanting to keep it at all isn’t helpful with the convincing. Nor the panic that comes with phones, the stammering dysphasia aphasia that is so heavily influenced by stress.

Maybe I’ll get to keep it through the end of the month. I keep telling myself I should be at my desk now working.

I’m in bed with the notebook and I haven’t gotten dressed. I woke up six hours ago. Continue reading Tasting Fear

I Can’t Handle Celebrity Suicides

There’s been a couple of recent high-profile celebrity suicides.  Earlier this month, celebrated fashion designed Alexander McQueen hanged himself in his London home at the age of 40. Then this week, actor Andrew Koenig was found dead from suicide in Vancouver after being missing for several days.  These are just the most recent – there’s also David Foster Wallace, Spaulding Gray, Kurt Cobain, Ian Curtis, back to Diane Arbus, Anne Sexton, Sylvia Plath.

Of course, there are a lot of people who commit suicide who don’t make international headlines and don’t get websites doing slideshow retrospectives of their careers and bodies of work. But I don’t always know about those – it’s only the celebrities or the dramatic suicides (burning down a house while inside it to avoid foreclosure, for example) that come to my attention through the media. And every single time it happens, it stops me in my tracks.

These events remind me that the monster of depression can always get you. No matter how creative and inspired you are. No matter how much admiration and respect you earn from the fashion industry, the music industry, the world at large. No matter how privileged and rich you are. No matter how well known your struggles with depression are, no matter how many friends and strangers love and support you, no matter ho many people feel your loss. No matter how many years you’ve spent running from the monster. It can always catch you. It can always kill you. You are never and can never be safe.

I follow the twitters and blogs of a lot of alternative comedy people and the past week has been filled with concern about Koenig’s disappearance and ferverent please for help in finding him and making sure he was ok. This is even more notable from the comedy crowd who tweet only silly and humorous things and have essentially broken character to express their concern and love for Koenig. While I realize I can’t tell whether Koenig had actual love and support in his life just from reading a tweet from Doug Benson, I can see that there was a network of people who were really worried about him and who seem deeply affected by his loss.

If I committed suicide, it wouldn’t make any headlines. I’ve done a lot of work of which I’m very proud, but it wouldn’t be reviewed and featured on the Huffington Post. And certainly a generation of people wouldn’t have vivid memories of where they were when they heard about my death, as exists for Cobain. (I was in a car with my dad on Folsom Ave. in Boulder, C0lorado, driving south, when I heard it announced on the radio.) So the fact that the monster overtook these celebrities makes me feel even more vulnerable to succumbing.

Everything they did, everything they had, it didn’t help them. Couldn’t save them. What chance do I have?

It’s Hard to Know What to Say

Sometimes I have a hard time thinking of anything to say here. In large part because it still feels, to me, that writing anything here is an act of such unimaginable daring that I should immediately take down everything I’ve already posted and get to work scrubbing cached files of any mention of my name.

I’ve noticed that it’s very difficult for me to talk about my actual experiences with disability here. The things I’ve felt, the things that posed obstacles. It’s a lot easier for me to talk about disability issues that could potentially apply to me, but which I’m not currently experiencing. The difficulties I would have were I forced to get care and treatment through government health programs in the US. The near total lack of options and assistance that would be available to me in places like Rwanda or Cambodia. But not the problems that I’m dealing with right now. Not the way stigma is affecting me this week.

Both of those kinds of writing are deeply rooted in my own experiences with disability. When I think about policy problems, I always imagine how I would be treated, how my symptoms and impairments would have prevented me from accessing the benefit in question. But when I talk about the policy, I can highlight those issues and problems (sometimes a person with depression can miss a scheduled appointment for disability-related reasons) without having to share the personal details behind it (the time I missed a class that was being held literally 20 feet away because I could not get out of bed during the midst of a major depressive episode).

I don’t trust the general discourse enough to feel safe putting my stories out there (specifically, the people who can Google, the commenters who don’t get through mod, the Tumblr reblogs). Enough of the world can still use these things as weapons that I do not want to give them any ammunition. This position is one I’ve come to through direct experience of people I’ve respected and trusted throwing things back in my face. And not just friends – I’ve had specific professional repercussions directly related to my disability status. Again, sharing more details about that would make it a more relevant and compelling story, but it would also exponentially increase my potential vulnerability to increased or future problems of the same nature.

So why is it my responsibility, as the already vulnerable person, as the PWD, to expose myself further, to hand people the tools they will then use to attack me? Is the value that PWDs add to discourse solely in sharing the intimate details of their hopes and fears, their catastrophes and failures? Is discussion based on but not including personal details inherently less powerful?

I feel like I’ve taken a major step identifying as a PWD. I am unwilling to empty myself in front of people in order to convince them to care.

It Will Always Be The First Thing I Think Of

**TRIGGER WARNING FOR DISCUSSION OF SELF-HARM**

I’ve been under some significant emotional stress lately, more so than usual. And I’ve had a couple of incidents when I received some very upsetting news. Of course I’ve cried. Sobbed, even. And reached out to my friends and family and cared for myself in all the healthy and productive ways I learned in my years of therapy. Take a hot bath. Read a good book. Snuggle with the kitty. Get enough sleep. All that kind of thing.

But before that – before the tears even start welling up, much less spilling over – my mind flashes on an image of my left forearm. Sometimes it’s being slashed with a razor blade. Sometimes it’s being burned with a cigarette or the hot metal of a lighter. In one particularly vivid recent image, my left wrist was being smashed with a hammer. This happens in less than seconds, before any other reaction. It’s entirely unconscious and I’m often surprised by how quickly and vividly the images take over my consciousness.

I used to self harm a lot. I thought I’d made it up myself, back when I realized that scratching at one spot on my skin with a thumbnail would peel back the skin to expose glistening wet red pain. I quickly progressed to razor blades and learned the exquisite joy of making a perfectly straight line in my skin, imposing some kind of geometry and order on my out of control body that would hopefully extend into my increasingly disordered mind. I learned how pressing a hot lighter to the inside of my ankle would send a poker of pain straight up my body in a wave so powerful it drove out every other sensation or thought. I learned about long sleeves in summer, the trick of putting a painful cut on the inside of my wrist so it would throb every time I took my mittens on or off. My arms looked so bad people thought I was using heroin. (Even writing this out makes me want it.)

And then I stopped. (Not so easily, of course, lots of safety contracts and lists of health coping activities and techniques and medication and relapsing and all of that. But I stopped.) And it’s been … I don’t even remember the last time I did it. Over 10 years, certainly. Long enough that you can hardly see any of the scars unless you know exactly where to look.

But it is still the first thing I think of. My first unconscious innate reaction to stress or emotional pain or just feeling overwhelmed and drowned by my own emotions. It is always there, just under the skin, waiting for me to be weak enough for it to take over again. That’s why I will never trust myself enough to have a razor blade or an x-acto knife in the house – I know that if they’re there, I’ll lose my way sometime.

[I just turned my head and saw two straight pins sitting on the desk (I was mending a hem) and *boom* I see them plunging into my wrist, just near the bone. It’s not that I imagine the process of picking them up – my mind flashes straight to an image of me pushing it into my skin, with the idea that “this is right, this is good.” I can almost feel myself relaxing while I visualize it and then I shake my head and it’s gone and I’m disappointed in myself for even thinking of it.]

I’m beginning to think it will never stop. I may never do it again – I hope I never do it again, I intend never to do it again – but it will always be there. It will always be the first thing I think of, before there’s even time to think.

Less Than / More Than – My complicated thoughts on reproductive rights & feminist discussions

When I’m not being a student, I typically get temp jobs working in a variety of offices. Once things get settled, and folks realise I am married, they often start asking about kids. “Do you have kids? No? When are you having kids? It’s not too late, you know!”

This may seem like an opening for a post about being child-free, but it’s not.

I often put these questions off with flippancy or a shrug or just saying we’re not interested in having kids. In my experience, this will often have people leave the issue be.

Sometimes, though, people will hound and hound and hound.

“Oh, it’s different when they’re yours. But what about Don, what does he think of all of this? What about your parents? What about– what about– what about?” [1. Everything in quotation marks in this post is a paraphrase.]

Do you want to know the secret way of getting people to never again ask why you’re not having children?

At some point, drop into a conversation that your husband’s disability is genetic.

Without fail, that has stopped every single person who has asked and asked and asked about children, even when the “genetic” bomb isn’t dropped in a conversation about having children.

One of the reasons why the focus of abortion! abortion! abortion! whenever talking about reproductive rights really bothers me (and a lot of others) is because of the assumption that people like Don & I shouldn’t have children (because – oh no! – the child likely will have Marfan’s just like Don! And everyone knows people like Don are a burden on the system/have miserable lives/are never happy/can never be married/are all the same/should be stopped/are just an example for the rest of us). When people focus on reproductive rights only involving abortion, they neglect that, for people like us, the pushback is to not have children. Don’t burden the system. Think of the children – and don’t have any.

I’ve seen similar conversations play out around the feminist blogosphere. [1. I have decided not to link to specific examples, because it’s a general attitude I’m talking about here. And also, who wants to start a blog-war? Not I, said the Anna.] When older women have children, there is always a sudden upswing in “BUT THE CHILD MIGHT HAVE A DISABILITY!” (Yes, the child might. And the child might fall out of a tree and land wrong. Or the child might grow up to be the next Stephen Harper and prorogue Canadian government. WHO KNOWS!) “Think of the children!”

The same fears are reflected when discussing women with disabilities having children (with bonus “but how will she care for the child?”), or when parents forcibly sterilize their disabled daughters.

This pains me, perhaps especially as someone who doesn’t want children. It pains many other women who, for a variety of reasons, are discouraged or outright prevented from having children they want. That, in North America, these women are overwhelmingly women of colour, lower class, disabled, queer – that they’re often women who have been institutionalised in some way, be it a “medical” institution or a “criminal” one – is not a coincidence.

In my experience, marginalized voices who speak out about this disparity between on-line feminist discussions of abortion and on-line feminist discussions from a broader reproductive justice framework [1. FREE Halifax: Feminists for Reproductive Justice & Equality. We meet every other Tuesday for teach-ins & movies about Reproductive Justice. Look for us on Facebook.] are often shouted down, or ignored. We’re told our issues are “special circumstances”, or “pet projects” or “in the minority” or “don’t apply to as many people” or … Well, basically everything feminists in general are told when they talk about issues that are “special circumstances” that don’t apply to enough people (read: men) to count.

Frankly, I end up not knowing where to go from here. Do we, who are limited on spoons or forks or energy or time, keep trying to push for more mainstream feminist discussion on these issues? Do we form our own spaces, our own groups, and have our own discussions? Do we write blog posts that seem to dwindle down, rather than lead us all into the future?

I don’t know. I know and respect people who have made each of those choices, and still others that I haven’t mentioned. But I don’t know what the right one is.

Maybe they all are.

One Sided

Ten years ago I joined a club.

You don’t have to say anything about it. It is something I have (mostly) come to terms with. I only bring it up to give a little context.

I have a father out there in Meat World somewhere. I differentiate for a reason, and no, I Don’t Want to Talk About It. We have met twice ever. Once I stayed with him, my former step-mother and two half brothers for a few weeks. Over the twenty years since then we have had few enough phone conversations, emails, and letters that I can count them on my fingers. I don’t need all of them. At least one hand’s worth are those initiated by me. Every now and again he would pop up in my life and make some n00bish attempt at contact with me. It never lasted.

Somewhere along the line I decided that I am worth more than a one-sided relationship. I don’t have the spoons or the emotional strength to give to something that is that unstable. I recently wrote him, laying out the terms I required of him if he wished to have any more contact with me or my family, and that if they were acceptable that he would write to me right away.

I wrote that letter a year and a half ago before we moved from Hawai’i.

I probably don’t have to say that I didn’t receive a reply.

It pained me for a while, until I realized why I made that decision.

I bring him up to make a point.

Because I need to focus my spoons on relationships that give as much as they take. I need to make sure that the relationships that I am working at putting my valuable spoons into are giving back to me. I deserve to be valued as much as I value. I deserve to know that the person whom I am spending my precious spoons on gives a fuck that those spoons have value and that a gesture like a phone call, email, mailed letter or card are not just something that I do offhandedly. Those gestures take time and physical resources on my part.

And I deserve to be a part of a relationship where the other party recognizes that, and can be arsed to give a little of that back.

Sure, I am not always the best at correspondence, but email, Facebook, and a few other electronic mediums have given me back a bit of that. I have managed to make contact with people that I love and care about, I have managed to forge new friendships, rekindle old ones, and build bonds that I need. And those people, who care anything about me have shown me that they can do the same. Those who don’t use these mediums call or write, and I feel appreciated or loved. I feel as if my spoons matter. I have even managed to connect with a sister that I didn’t know until recently, and it has meant something that I can’t describe. That is saying something for someone who works as a freelance writer, and who talks as a nervous habit.

I have made the conscious decision to conserve my spoons by moving past relationships that are one sided, and trying to recognize when I need to leave ones that I have grown out of, even if the other parties don’t recognize it, or won’t say so to me. By choosing not to spend my life resource on something that isn’t symbiotic, so to speak. I need to know that I am appreciated, and that my time and energy is acknowledged. I need the people who claim to care about me to acknowledge that my resources are limited, and that my energy is precious to me and my family. That a phone call, letter, card, email, or other means of my reaching out isn’t just a fun thing, but a tap on my limitations.

To some it might sound selfish.

But maybe, just maybe, it is time that I include a little selfishness just for me so that I can save those resources for the people that can be arsed to say “I acknowledge and appreciate you”.

We all deserve that.

Thoughts?

Why ‘What People Think’ Matters

Permanent Limited Duty is an option that a service member has to being fully medically discharged.  It allows the member to stay active duty on a strict schedule and with very strict limitations of duty.  It allows them to fulfill their contract obligation as opposed to being released from it early.  There are specific criteria that must be fulfilled, including proving a need to be allowed to placed on PERMLIMDU Status.  For me, things like having a minor child who needed insurance and being unmarried and without another source of income would have been sufficient for me to prove a need for PERMLIMDU.  There are other factors involved, including approval from your CO and CoC.

In the year leading up to my Medical Board and subsequent discharge I was in so much pain and so tired all the damn time and overall not coping well with what was going on with my lack of medical care.  On top of all of my work and training and single motherhood was Physical Training (PT), which was increasing because as my body was struggling my readiness standards were falling due to my inability to push through the pain.  As I was forced to ease up I gained a little weight which meant I had to increase my PT.  Increased PT increased my pain, which increased my problems overall, and somewhere along the line something broke completely inside me.  It was a vicious circle of some of the most cruel means of my life.  I needed more PT, but increasing PT caused  more injury that meant I had to decrease the type, intensity and amount of PT my doctors would let me do.  That decrease caused weight gain…you can see where this is going…

Long story short, I had to be put on a day shift and have my hours reduced to half days because I was not doing so well.  While the rest of my friends and peers were moving on to the things that we had now spent over three years training for, things that were going to expand their careers, the actual finish line of all we had worked for, and I was riding a desk.  To be fair, it was a job I really grew to love and something I could see myself doing again.  My direct supervisor was awesome, and our division boss was incredible.  To date he is the most wonderful Senior Enlisted person I have ever had the honor of working for who also happened to be very supportive of my medical process.  But it wasn’t what I had trained for, and the sudden disappearance of all of my friends made that even more heavy for me.  I was devastated that I was missing that.  I felt, once again, like a failure, like my body was a failure.  The career I had worked for was crashing down around me and it seemed I had no one to support me through it.

When you are going through a serious medical Thing (for lack of a better…whatever) you start to notice that people tend to disappear.  I don’t know if it is too hard for them to handle or if they don’t give a fuck or what…but you run out of people who you can call to take you to a doctor’s appointment because whatever medication you are on makes you so dizzy you really shouldn’t drive, or people who you can call to watch your children while you go to physio.  You can’t get someone to hold your hand during an X-ray, let alone get them out for coffee.  While I adamantly maintain that my medical problems and disability were not brought on by depression as some would have you believe, being utterly alone during this time cause me an at the time crushing depression.  Sometimes I still feel it. I literally did not hear from my former friends.  Sometimes if you run into people you used to have energy to club or shop with they bring it up as a polite thing to say, kind of like when people say “How ya doin’?” and never really expect you to answer.  So when they would say “How’s…all your…stuff?” I would tell them, “Oh, it’s a big boring mess, how’re you doing?”.  If I actually did talk about it I would notice that they tended to not really want to talk to me again (even though most of them had to eventually because of my new job).

I still had to take my yearly training.  During my yearly training our annual Evaluations came out.  I was pleasantly surprised to receive a relatively high mark on mine.  My boss apparently thought that I was doing a lot in the hours I was allowed to be there during the day.  I worked as hard as I could with what I had to give, and someone noticed.  I was beginning to feel as though maybe I could still do something productive in the Navy, as if the thoughts of PERMLIMDU Status wouldn’t be the end of the World as I knew it.  I began to seriously consider it.  I was in my annual training with the sister of a friend whom I still had occasional contact with, and who was unhappy with her own eval.  As much as I sympathized with her situation, I understood that due to my circumstances our peer groups were different, and my evaluation was not competitive with hers.  I made it a point to not discuss my eval with her or even bring it up.  But when she asked me point blank about mine, my refusal to answer made her assume that mine was better, and this caused a riff between us that I had hoped to avoid. I felt awful, because she was a really great person whom I had actually though I had made friends with. It is such a tricky thing to make new friends when you are going through so much…

It was very difficult.  Nothing I could say was good enough.  It wasn’t fair, she said.  It was wrong, she said.  I was on the same fitness enhancement, she said, and I didn’t even work shift work, she said.  I only got that mark because I sucked up to my boss, she said, and because I “lucked” into a job above my pay grade, she said.  All she could see were the positive outcomes of what was, for me, a really shitty situation.  The one good thing I had going for me was that someone had need of a body to fill a position when my world fell apart, and that it could have been a semi-permanent thing.

That night I received a phone call from my friend, inviting me to meet her for coffee…something that we hadn’t done in I don’t know how long.  She certainly hadn’t had time for socializing in a long time, it seemed, and I was pleasantly surprised.  We met at the Starbucks near my house, another nicety, so I didn’t have to go far.  She treated and we split a big chocolate brownie, because we shared that superhuman tolerance I brag about.  We had polite chit chat and I really felt great getting to talk to her.

Until she brought up my eval.

She brought me there to defend her sister’s side of the whole thing — to tell me that she didn’t think it was fair that I would try to stay on in an office where I could get unfair evals when the rest of my peers were doing real jobs in the Navy.  I was so ashamed that I didn’t even think to argue on my own behalf.  To tell her that it would have been the best thing for me to do so.  That it would mean that I could still give my Kid insurance and have an income and finish my obligation.  That I would still have some connection to all the work I had put in.  But again, all anyone could see was how my situation was unfair to them (even though, in reality, it wasn’t, since my evaluations had no effect whatsoever, on theirs, in case I haven’t made that clear). No one else could see beyond how they felt, to what it meant for me and my family, to me and all the work I had done. Instead of a legacy of nothing finished, I could give something back. So, I lied. I said that I didn’t have that intention — I said I intended to quit and just go away.

But now I was just ashamed.

I was so embarrassed.  I put on my Brave Face and finished up the visit as well as I could.  I cried the whole way home.  I remember deciding that night that if I chose PERMLIMDU that people would all think that I was some big lazy slacker.  A Bad Cripple, even though some people would never see me as disabled at all, and why should they? I hadn’t even considered that label for myself yet. They would all see me as someone who was there to milk some system and gain some unearned privilege.  I had let someone who was supposed to be my friend shame me into giving up things that I needed for my life. So, when the choice came up with the Medical Board Liason and my Division Officer, I turned it down. Again, I lied. I said that it wasn’t something I thought I could do. It wasn’t what I joined the Navy to do, I said.

It is easy to say “who cares what people think” because we all want to assume that we don’t make decisions based on the feelings of others. But the guilt and shame we feel at the stares and hands of other people is hard to take, so much so that we will often expend our spoons to make the feelings go away — even if it is not to our own benefit.

One thing I should add: Through it all, I learned the value of the friends who come out of seemingly nowhere to support you, just when you least expect it, and the value of friends in Bloglandia. Never let anyone tell you that your blog world friends aren’t as good as Meat World friends. They are all appreciated, especially as the wounds of the lost friends heal. The Meat World friends who held on might be few and far between, but they have been a much needed comfort through the many tears.