Tag Archives: accommodations

Recommended Reading for 3 December, 2010

accessibility, recommended reading, social attitudes, , , , , , ,

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

It’s Your Fault! by that stunning and mysterious being, Chally, at the Don’t DIS My ABILITY blog:

The thing is, people with a disability need accommodations. Accommodations aren’t optional extras, they aren’t something we can give up if we try a bit harder. Neither are we out to get all the money/spots/benefits at the expense of the rest of the population.

Despite his disability, he wages war on HIV (I know, horrible title) by Chaitra Devarhubli at DNA India:

[Amrut] Desai visits various villages in Gujarat, where he conducts programmes on AIDS and educates villagers regarding the same.

UK: Access All Areas: Disability survey

Some 90% of people surveyed by the BBC believe the government should provide funds to make the workplace accessible for people with disabilities.

But 40% felt disabled people turned down job offers even when they were physically capable of doing them.

Deaf moviegoers sue Cinemark theater chain at the Associated Press (US):

Kevin Knestrick, an attorney for the plaintiffs, says Cinemark Holdings Inc. is the only one of the nation’s three largest movie chains not to offer closed-captioning equipment.

Sierra Leone: Disability Bill might become an Act on Friday by Poindexter Sama at Awoko:

it will institute, upon its enactment, a Disabled Commission, provide free education and vocational training for persons with disabilities at required levels, make provision for free medical care, ensure mobility in public buildings and public transports and a host of other facilities necessary for disabilities in all forms.

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Recommended Reading for 8 October, 2010

accessibility, Education, gender, normality, recommended reading, work, , , , , , , , ,

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Anna linked to the Australian Broadcasting Corporation’s coverage of this story earlier in the week, now here is Cara’s analysis at The Curvature: Australian Women Report Sexual Abuse in Victoria Psychiatric Wards:

Everyone deserves safety, no matter what their mental health or disability status. But there is an extra responsibility to keep safe those who have been placed in restrictive and vulnerable environments.

stuff to say in class by Amanda Forest Vivian at I’M SOMEWHERE ELSE:

I mean, to me this is common sense and people should already be questioning “non-disabled people>>>>everyone else forever,” but if we really need a study to show that forced normalization in every area of life is really NOT SMART, studying women would be an easy way to do it.

Sorry I’m so inconvenient by Kali at Brilliant Mind Broken Body:

I hate things like this, where it feels like I’m treated as an inconvenience. It’s not like I get some kind of power trip asking for accomodations. I don’t push people around because it’s fun. When I ask for something, it’s because I NEED it, and my health, safety, and ability to continue going to school are jeopardized.

Look, I’m sorry I’m so inconvenient. But if you had to deal with the sheer number of inconveniences I deal with every day because of my disabilities, you’d realize that I’m really asking for very little.

From the U.S. Equal Employment Opportunity Commission, American Apparel Sued by EEOC for Disability Discrimination:

American Apparel, Inc., a clothing manufacturer which operates what it says is the largest garment factory in the nation, violated federal law when it terminated a disabled garment worker while he was on medical leave for cancer treatment, the U.S. Equal Employment Opportunity Commission (EEOC) charged in a lawsuit filed last week.

At the New Zealand Herald: Call to rescue IHC providers rejected:

Health Minister Tony Ryall has ruled out a Government bailout of disability services facing hundreds of millions of dollars debt for backpay arising from an Employment Court ruling.

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When Accommodations Conflict (Continued)

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Reflecting on the extremely thought provoking post by abbyjean earlier, I was walking to breakfast with The Guy (caution, try not to walk while lost in thought, OYD) on a day when I was low on sleep, high on pain, and therefore using my cane. (edit: I just saw my typo! I had a funny visual of me trying to balance on a can! HA!)

Conflicting accommodations do not always mean that the conflict will occur between separate PWDs. For example, on a high pain day, I am in desperate need on my cane due to the intense pain in my hip and legs in general (though, which leg I want to use if for is debatable, even though I favor one hip). When I am that fatigued, however, using the cane is an intense use of my spoons, to the point where if I have too much to do I can’t even bother because it just winds up with me on a chair or bench in tears. Or the cane causes additional pain in my back or shoulders.

There are others that come to mind. My medication provides me with more pain free days, which is a good thing. This is an active choice I made with the advice of my doctor whom I was lucky enough to find at this duty station. The flip of that coin is that I have side effects which means that I can not always drive places, or have the energy (HA!) that I want to do things with my family, to name a few. This might not sound like a huge accommodation, but it makes a great impact on my family life, people who play a huge role in my care.

I know that some people use caffeine to both relieve some pain and migraine effects (I sometimes do) but that this has the crash effect at the end of the day (for me it means my spoons run out faster).

So, gentle readers, what accommodations do you have/use that conflict…uhh…internally? What individual needs to you have that you have to weigh daily?

When Accommodations Conflict

accessibility, disability activism, mental health, policy,

Accommodations can be difficult. Not only for an individual with a disability to identify what accommodation would be relevant or helpful for them, not only convincing whoever to implement the desired accommodation, and not only ensuring that the accommodation continues over time and doesn’t lead to resentment or punishment for the person with a disability. Here is an additional wrinkle – sometimes desired or needed accommodations conflict. What one PWD needs to accommodate her disability could not only not help another PWD, but might actually exacerbate their disability.

Let’s take an example: smoking. For some PWDs, especially those with mental illness, smoking can help ameliorate their symptoms, calm their anxiety, even help some with restoring neurochemical imbalances. The rates of smoking among people with mental illness tend to be much higher than the general population, in which about 20% of people smoke. Here is a chart of smoking rates among PWDs with mental illness:

MENTAL ILLNESS: PERCENTAGE WHO ARE SMOKERS
Bipolar Disorder 70%
Major Depression 60%
Schizophrenia 90%
Panic Disorder 56%
Post Traumatic Stress Disorder 60%

There are lots of theories why people with mental illness smoke. At a recent meditation seminar, the instructor was modeling deep breathing techniques for relaxation and stress reduction. He pointed out that the deep breaths, with an exhale longer than the inhale, breathing from the abdomen, exactly mimicked the breathing of a smoker while inhaling from a cigarette and exhaling smoke. I know people who took up smoking intentionally and specifically in order to help regulate breathing during panic attacks – they report that the 5-7 minutes of regulated breathing during one cigarette is enough to get them through a panic or anxiety attack.

Nicotine, the active ingredient in cigarettes, also acts as a stimulant on the brain. Some report enhanced attention, focus, and concentration, which can be helpful for people with attention or focus problems caused either by their disorders or the medications that treat them. As one study reports: “Certain thinking patterns are affected in schizophrenia including sustained attention, focused attention, working memory, short-term memory, recognition memory and even processes that are preattentive (eg reflexes). Some studies have suggested that there may be improvements in these areas after treatment with nicotine.” Those authors theorize, as have many others, that “it may be that patients “self medicate” to remediate the chemical imbalance in the brain (dopamine hypofunction in the pre-frontal cortex) which may help with certain difficulties with thinking tasks involving this PFC area and might explain why there is smoking persistence in schizophrenia.”

On the flip side, of course, there are many PWD for whom being around smokers or smoke will exacerbate their disabilities and a necessary accommodation is an atmosphere free from smoke. People with asthma and other respiratory problems or people with allergies and chemical sensitivities could be seriously harmed by being around smoke or people who are smoking, and could require an accommodation to be free from smoke exposure.

This sets up the possibility that there could be two PWDs – let’s say one with schizophrenia and one with severe smoke allergies – who require accommodations that are directly conflicting with each other. These situations are much trickier for me than when a PWD is requesting an accommodation that an employer, business, government, or other entity is saying is too difficult or expensive to implement. In those situations, I believe the accommodation rights of the PWD should trump that concern in the vast majority of cases. But handling issues of conflicting accommodations can be much more complicated, because the rule of “you must accommodate PWDs” doesn’t give us any guidance on how to proceed.

This is just one example of desired or needed accommodations that can directly conflict, but there are many others. How do you think these situations should be handled? Have you run into conflicts like this in your own life?

Note: discussions of conflicting accommodations – including the example discussed above – can become very charged and very personal, as readers and commenters may have personal preferences or needs on which accommodation to implement. Please be respectful of the needs of other PWDs in this comment thread. Specifically, comments that imply or state that smokers are inherently evil or people who don’t smoke are inherently intolerant (or similarly bright line rules) will be deleted.

“Bad Cripple”

accessibility, autonomy, blaming, shaming, social attitudes, , , , , ,

Last month, I went to a non-partisan Campaign School, where women learned the nuts and bolts of running a winning campaign for political office in Canada. We all said a bit about ourselves, and I stood up and introduced myself as a Disability Rights Activist.

I spent the rest of the weekend being told how “Bad Cripples” are ruining the system for everyone else, and how every problem that I discussed, from how low disability-support payments were to how difficult it is to get around the city with a wheelchair, was caused by That Person.

You know That Person. The one Everyone Knows who doesn’t have a real disability. They could work – of course they could! – they’re just in it to scam the system. This One is bad because whatever he claims about his disability, it’s obviously exaggerated because no one could be in that much pain. That One is bad because she decided to move to another province where the disability support payments are better – obviously she’s just in it for the money.

Regardless of where someone fell in the political spectrum, they felt it very important that I knew that it wasn’t the government’s lack of support for people with disabilities and their families, it wasn’t the surplus of societal barriers, it wasn’t even their own individual fears of disability that caused any financial distress. It’s those Bad Cripples who scam the system and totally ruin it for the Good, Deserving Ones.

People tell me anecdotes about Their Friend (or a Friend of a Friend) who totally confessed to scamming the system, or they tell me about how Their Friend isn’t really disabled, and they can tell, because of X, Y, or Z.

I’m going to confess something to you: According to the way a lot of people define “Bad Cripples”, Don and I are really Bad Cripples.

I’ll start out with the comments. Both of us have very bleak senses of humour, and both of us (me especially) say some of the most awful things. These include things like “I just married him for the disability cheques,” “Damn it, I should have lied and told everyone your Cancer spread so I could get extra time to finish my assignments,” “Oh, Don fakes not being able to talk very loudly so he doesn’t have to deal with the Student Loan people”, and even “Oh, the wheelchair’s just for show.”

You might be thinking “That’s obviously you joking around, Anna! No one really thinks you’re serious.”

Yes, yes they do. All the time. I’ve been talked to by professors about my joking comments about Don’s Cancer, and asked not to make them in front of other students. I’ve gotten really angry @replies on twitter about some of them. I have an email I can’t quite get myself to delete that’s all about how I’m a horrible wife who’s just using Don for his money.

I have no doubt that people have said, either to you or someone you know, something that sounds like they’re just gaming the system, including a breezy “Oh, I’m just gaming the system.” But you have no idea if they’re serious or not, or what their circumstances are, or how much pressure they’re under, internally or externally, to “pass for normal”.

The second reason people think of “fakers” is the “I know stories of people who don’t have real disabilities and they get all this financial support!”

Here’s the thing: I don’t have an obligation to tell you what my ability status is.

My ability status is between me and my doctor. I have made the choice to share it with a few friends, and my husband. I don’t have to tell you. I don’t have to tell my teachers. I don’t have to tell the pharmacist, the person who’s demanding I justify my tax-status, or my landlord. I have not discussed it with Student Accessibility Services on campus. I have not disclosed to the people on any of the committee meetings I’m on. I didn’t tell anyone at Campaign School.

Because it is none of their business.

I do not owe it to you, or anyone else, to explain why we’re raking in those big disability cheques.

I also want you to consider that you don’t always know what disability will look like.

You can’t tell by looking at my friend with the mental health condition that she tried to climb out a third floor window and jump because she couldn’t take the idea of another day at her job, but you can probably tell she isn’t working right now while she recovers from the experience. You can’t tell by looking at my friend that she was bullied so badly at work that she has panic attacks whenever she thinks of stepping foot in the neighbourhood of her former workplace. Until Don got his cane, and then his wheelchair, lots of people wanted to know why he wasn’t working – aren’t people who have mobility issues always in wheelchairs?

I know people who tell me “Bad Cripple” stories are trying to be helpful. They want me to know that they understand how difficult it is, and that if it weren’t for all those Bad, Faking Cripples out there, Don and I wouldn’t be living entirely off the largess of his family and my scholarship money. (The government expects that I should take out student loans to pay for Don’s medication that he needs to live. Oh goody – overwhelming debt in exchange for a husband who lives! Thanks, Nova Scotia! You continue to be awesome. Yes, the big disability cheques comment was a joke.) What I think they don’t want to do is question why it is so difficult. Bad Cripple stories give us someone – a conveniently faceless group that Doesn’t Include Us – to blame.

I think a lot of people are going to rush to tell me stories about how this all may be true, but they totally know of this person who is totally lying about being disabled. Please consider whether or not that anecdote will contribute to a conversation, or just remind people with disabilities that they’re viewed with suspicion and have to prove their status to you.

Recommended Reading for November 17

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Ew, how 101

if you are nondisabled and working in the disability community…if you are white and working with people of color…if you are an adult working with youth…or, quite often, if you are a nondisabled white adult working with disabled youth, many who have been abandoned by our education system because of racism/classism/ableism…basically if you are a person who has authority and privilege and are working with people who traditionally have not…

think hard as hell before you leverage “professionalism.”

Antidepressants and Talk Radio

Now, you or I might speculate that for a woman to press charges against her husband and the father of her children, she has to be quite upset with him. Therefore we should 1) presume that this was a really scary or upsetting experience for her, and 2) acknowledge the likelihood that this is not the only disturbing, upsetting, controlling, or frightening thing her husband has done.

But at least one of these radio hosts, and the callers, wers less inclined to that view. Oh yes. One of the radio hosts did indeed say that it was not okay to drug someone without their consent, but I also got to hear people talking about how it’s okay to drug someone if you mean well by it. I also heard that it was okay to do if he wanted to watch the Superbowl and she wouldn’t calm down. I also heard that it was okay because it was just such a tiny little pill. I also heard that it was okay to do if he just really wanted her to stop fighting and relax.

School Using Lap Dances to Treat ADD closed

Are lap dances an effective therapy for attention-deficit hyperactivity disorder or drug addiction? It doesn’t seem like a question that should require a serious answer—but a state investigation of Oregon’s Mount Bachelor Academy (MBA) has substantiated allegations made by students and staff that such “therapy” was part of the school’s “emotional growth” curriculum and forced an emergency shutdown of the campus.

But Mrs Lincon, What about the play?!

Today the VA sent me a letter, with my name and address and social on it, detailing the reasons why the special transportation they have been providing to me was being terminated. They offered a generic list of alternative options, which included ‘asking for help from family and friends’ and ‘taking public transportation.’ In order to send this letter, of course, they would have to collect this information from me, from a file which might have detailed that my family is dead, and that the reason I do not take public transportation is because I have such bad panic attacks that I black out. Nevertheless, they forged on, much like the cheerful nurse I dealt with on the phone who commented on my tone of voice, “You sure don’t seem too happy about it!”

“I’m being treated for suicidal thoughts and depression after several suicide attempts.”

She transferred me without comment after that. Again, a moment’s notice would have provided her with that information. She didn’t bother.

In the news:

Bank challenges disability ruling [UK]

David Allen, who has muscular dystrophy, took action after Royal Bank of Scotland failed to put in wheelchair access at its branch in Sheffield.

The company was ordered to pay £6,500 in damages and given until the end of September this year to install a lift.

Richard Lissack QC, for RBS, told the Court of Appeal that the judge in the earlier ruling had got it wrong.

At a hearing at Sheffield County Court in January, Judge John Dowse ruled the bank had breached the Disability Discrimination Act.

Picture Post: Organs of Pills – pills carved up to look like the organs they’re supposed to help. No descriptions.

Recommended Reading for November 13

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Mental Health and Promiscuity

However, even in this environment there is one area that has always troubled me and that revolves around the concept of promiscuity as diagnositic criteria.

My first and biggest problem with this is that I have NEVER heard this brought up as a symptom of mental illness when discussing a male. It is always something that is brought up about a female. I can’t help but assume that this is linked to the belief that “excessive” sexual activity is normal for a man and not a symptom of mental illness while no “healthy” woman would engage in or enjoy casual or alternative styles of sex. I also think it is linked to the belief that women are the only ones that have sex with other people due to low self esteem or possibly in a reckless manner because they have some self-destruct tendencies. See, sex is damaging to women, they can’t just enjoy casual encounters or engage in sex purely for self-satisfaction: they must be wounded in some way or they must be wrongly searching for the intimacy they so desire.

Reasonable Accommodation

I find myself caught between disabilities.

One of my most promising paths forward health-wise right now is finding a low-impact, non-repetitive form of exercise. Since I have done yoga in the past, I have been searching for a yoga studio. But since I’m in the western suburbs of St. Louis… there just isn’t much here. The most promising place, that offers classes that fit into my schedule, that is likely to be understanding and accomodating of my back issues, is Bikram.

Now I did Bikram a few years ago and loved it – unfortunately, over the course of a couple of months the humidity in the room (Bikram is “hot” yoga, done in a room that’s about 90 degrees) started making my hearing aids go wonky, so I stopped.

You Can Make Fun Of Us But You Can’t Give Us A Chance

The character was dressed in a blue latex suit that covered his head, and he was constantly babbling like an idiot and drooling on himself. I admit that I found the Handiman skits to be hilarious when when they first premiered. The disabled community had been non-existent in Hollywood up until then, and it continues to be non-existent today, so it was good to see some representation, and me not knowing how much of a negative image it was at the time, appreciated the recognition.

I was in my junior year in high school when Handiman made his debut. Ever since I was mainstreamed back in the fifth grade, I have always caught hell because of my disability. I remember being teased many a-day throughout grade school, high school and even college. Handiman perpetuated the stereotypes that people had about people with disabilities. Even to this day, the techniques have changed, but I pretty much know when people are trying to belittle me. Children aren’t as cunning or crafty to hide their emotions, so they would usually laugh or make “retarded-stupid” comments about me.

The Usefulness Factor

Sometimes you can maintain a career from your own home, such as on the computer or as a consultant on the phone. Sometimes you just need to stop and re-think the whole idea of being useful. The question of “why am I here?” seems to become magnified when you become confined to a small physical space with others doing all the things you used to do for yourself.

But that does not mean you have become useless. It is very easy to fall into the trap of believing that, especially when people say things like, “it must be so nice to be home all the time and do nothing!” It is not particularly nice to have no impressive answer when people ask what you do all day, but if you are able to ignore that and realize that everyone is on this earth for a reason, you are on your way to finding a new sense of purpose. Maybe not a financial one, but perhaps a spiritual one, which is even more important.

In the news:
Francesca Martinez: A Wobbly Girl Battles Against The Last Taboo [Although I disagree with the idea that disability is the “last taboo”]

Francesca Martinez’s victim is squirming. Trapped under the scrutiny of the comedian and fellow members of the audience at her show in Edinburgh, he is clearly wishing for the proverbial hole to open up. “What are you bad at?” asks Martinez. “Football,” comes the sheepish reply. “Were you born like that?” she enquires, head tilted in sympathy, “Couldn’t your mum have had a test when she was pregnant?” Turning to the man’s girlfriend, she simpers: “You are so brave. Well done… Does it mean he can’t have sex?”

Martinez’s humour bears a political sting. As one of a tiny number of disabled performers who have made it into the mainstream, she is not about to waste opportunities to ram home a message. Born with cerebral palsy, the 31-year-old refuses to accept the label of her condition, preferring to describe herself as “wobbly”.

Recommended Reading for November 9

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Spoon Theory and Me (It’s all about me)

I’ve been reading about the Spoon Theory and kinda going, yeah, that doesn’t apply to me. (Basically, we all have a number of spoons that represent what we can do that day. Healthy, temporarily able bodied people (age will get us all!! Run!!) have an unlimited amount. Those not so able-bodied do not.)

Thinking about the Spoon Theory and applying it to my life is scary because dammit, if I write down that it hurts, then it really happened and it just won’t go away. If I don’t classify it, it’s not there. Denial is awesome unless WILL YOU STOP STABBING ME. See?

But I do use it, I realized today.

Identity Matters

It brings up some interesting thoughts for me about “what actually is disability?” That’s medical vs social model stuff, but its not just that. Its about the labels we as people with impairments use to define and describe ourselves. What boxes we put ourselves in and how easily or not we communicate with those in the other boxes of disability.

What it is to be a monster

You know you a monster when almost all the depictions of your condition in the media show you as either a joke or a jerkass. It gets to you. You begin to wonder if those you call your friends see you the same way. Are they keeping you around for the crazy antics? Do they like the real you, who ever that may be?

Positive Experiences with Disability Activism

I had some really positive experiences today with some disability activism that I would really like to share. The first two were at work and the third at an after-work conference for language development in the Middle Swan area.

In the news:

Student files suit against U. [Princeton]

Metcalf-Leggette’s complaint asserted that she has four learning disabilities, which were diagnosed in 2003: attention deficit hyperactivity disorder (ADHD), mixed-receptive-expressive language disorder, disorder of written expression and developmental coordination disorder. The conditions, according to the complaint, hinder her ability to focus, process information and communicate in writing.

The suit comes after a series of meetings with school officials during which Metcalf-Leggette sought accommodation for her disabilities. The University currently accommodates Metcalf-Leggette’s disabilities by offering her a “reduced distraction testing environment,” a limit of one exam per day and a 10-minute break each hour, the law journal reported.