Monthly Archives: January 2010

Recommended Reading for January 14th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for certain material present in articles, but your triggers/issues may vary.

ME [myalgic encephalomyelitis] Agenda: Concerns about Daily Mail “Is ME genuine illness” poll

We are told that the Daily Mail is running a poll [now removed]:

“Do you think ME is a genuine illness?”

in connection with its article: British experts say ME virus is a myth[…]

Readers of Co-Cure may recall the outrage at a similar poll on the BMJ’s site on medics’ perceptions of what they considered to be “real” and “non real” illnesses.

I know that I am not alone in my concerns that the Mail should think it appropriate to run such a poll.

L.A.Times: Blind architects have a real feel for the site lines

But the two men hadn’t traveled to Midtown Manhattan to look at the structure’s famous features.

Instead, they slid their curious fingers along the pocked surface of the alloyed bronze facade. Inside, their hands explored a smooth, round railing of warm cherry wood, a counterpoint to the chilly glass panels of the main staircase. Their canes clicked along the intricate floor, sensing the shift from swaths of concrete to planks of Ruby Lake fir.

“We were exploring how we could sense it with a cane, sense it with our fingers, sense it with our feet,” said Northern California architect Christopher Downey. “There is this great palette of textures. . . . All of a sudden, it starts to engage your brain in a different way.”

New York Times: Mental Health: Deficiencies in Treatment of Depression

Only 1 in 5 [Americans with clinical depression] are getting care — talk therapy, medication or both — that conforms to American Psychiatric Association guidelines, according to the study, which appears in the January issue of Archives of General Psychiatry. The findings were based on nationally representative surveys of 15,762 adults from February 2001 to November 2003. Over all, more patients used talk therapy (44 percent) than drug therapy (33 percent). Mexican-Americans and African-Americans were less likely than other groups to receive treatment of any kind.

SOS Children’s Villages: Breaking down the stigma: SOS Malawi’s work for the rights of disabled children

[Jeremy Sandbrook, National Director of SOS Children’s Villages Malawi from 2004 to 2009]: That being said, our biggest challenge was to overcome internal prejudices that we as fellow human beings tend to have towards those with disabilities. In this context, the issue was to get staff to feel comfortable with being around and working with children with disabilities. It’s a mindset change. Often people automatically think that people with physical disabilities must also have a mental disability. This is not helped by the numerous barriers that people with disabilities have to overcome in everyday society, with some of these being grounded in traditional beliefs such as witchcraft. It is stigmas such as these that we have tried to break down, not only within our own national association, but more importantly within the broader community in which these children live. In support of this, we made strong efforts in mainstreaming disabled children into our SOS Hermann Gmeiner Schools. Whilst the most obvious first step was to ensure that the psychical infrastructure was wheelchair and disability friendly, a more challenging issue was the wider environment: In many cases, the disabled children simply could not even make it to the school gates, and were therefore excluded from access to an education.

TampaBay.com: Jump from Sunshine Skyway opened door to a second chance [WARNING: detailed suicide talk]

When Hanns Jones jumped from the Sunshine Skyway in 2001, he survived with some broken bones and internal injuries. Now he’s pushing his invention: the Electro Safety Rail.

Joseph Shapiro at NPR: WWII Pacifists Exposed Mental Ward Horrors [WARNING: descriptions of abuse in psychatric hospital]

“Byberry’s the last stop on the bus here in Philadelphia,” Sawyer recalls. “Any young man on the bus, other people knew that we were COs [conscientious objectors] working at the hospital. And they’d make different kinds of remarks, supposedly talking to each other, but hoping that we hear. And you know: ‘Yellowbellies, slackers.’ ”

Those slurs were harsh. But not nearly as harsh as what awaited the young men inside the gates of the chaotic and overcrowded hospital for people with mental illness and intellectual disabilities.

Recommended Reading for January 13th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post.

little light at Questioning Transphobia: is a dream a lie if it don’t come true / or is it something worse [WARNING. Story of comprehensive denial of a woman’s gender identity and forced de-transitioning after she became disabled.]

Wheelchair Dancer: Audition for Glee

[…] [the Guardian on Andy Serkis playing Ian Dury:] “He’s been left with back pain, and a “massive weird muscle” has developed in his groin. “I’m still recovering from it all.”

And then, there’s the rumours about Hugh Laurie’s hip (link is to Google search on the topic).

It’s hard work playing a disabled person. Let someone more qualified to do it, do it.

Jillian Weise at the NYT: Going Cyborg

“Your brain is confused,” she said. As if this were comforting. “You’re used to legs that require you to lock into a position. Get it?”

I did not get it. For five years I had walked on my old hinged leg. I had been in my longest relationship with that leg and lived in three different states. I don’t want to wax sentimental here and say it felt like dying, but it kind of did feel like dying. Goodbye hinge, goodbye foot. You’re done. You’re through.

Lisa Belkin at Motherlode (New York Times): Is Refusing Bed Rest a Crime?

Arguments are under way today in the First District Court of Appeals in Tallahassee, Fla., in the case of Samantha Burton, who was confined to her bed by a judge earlier this year because she was at risk for a miscarriage.

Burton was in her 25th week of pregnancy in March 2009 when she started showing signs of miscarrying. Her doctor advised her to go on bed rest, possibly for as long as 15 weeks, but she told him that she had two toddlers to care for and a job to keep. She planned on getting a second opinion, but the doctor alerted the state, which then asked the Circuit Court of Leon County to step in.

She was ordered to stay in bed at Tallahassee Memorial Hospital and to undergo “any and all medical treatments” her doctor, acting in the interests of the fetus, decided were necessary. Burton asked to switch hospitals and the request was denied by the court, which said “such a change is not in the child’s best interest at this time.”

Freep.com: Flint woman gets prison term in disabled girl’s death

A 41-year-old Flint woman was sentenced to 10-15 years in prison today in connection with her no-contest plea to charges of starving her 9-year-old quadriplegic niece to death, then hiding the girl’s body in a rented storage unit for weeks. […> Officials said Thomas starved Shylae, then hid her body so she could continue collecting more than $3,000 a month in welfare money that she received to care for the girl, who was physically and mentally challenged and unable to feed herself.

CBC.ca: Alberta’s services not accessible, argue disability advocates

Calgary resident Choi Ho, whose 13-year-old son has autism, says it took a long time to get the help her son needs, like physiotherapy, because she didn’t know English well enough to discover what was available.

The Space Between…

Jennifer Hawkins, a white woman, poses nude with her arms purposefully placed, on the cover of Marie Claire magazine.This post originally posted at random babble… on 06 January 2010

The policing of other women’s bodies is never OK from a feminist standpoint. I can’t stress that point enough. It doesn’t serve any productive purpose in feminist discourse.

It is mostly an understood concept among people outside of the mainstream of feminism. Those who are able to work their theory around the concepts of white, straight, cis, upper-middle class, educated, able-bodied privilege.

Yet, a concept that still slips into the space between understanding is the difference between criticizing someone who comes from a place of thin privilege and tearing someone down for a body that is not like your own.

This article at Bitch, to me, was the latter.

It doesn’t seem like so long ago that I was a size 0. And yet, looking at myself now it feels so far away. That is something I am coming to grips with even today. But my mind remembers it all so well. How can nothing be something? And even at nothing I felt all my flaws. I covered in my towel so I didn’t have to glimpse myself in the mirror and be disgusted by what I saw. I still do that now! I refused to own a scale, afraid of what I would see (I still do that now!)…because it would send me into fits of fear and rage and crying…because no matter how much I threw up and refused to eat I could not weigh what all the charts said someone of my height and weight should…and my thighs jiggled and my belly bulged and my arms — while muscular from kitchen work — wiggled. Even though I was actually nothing. My clothing size was nothing.[1. Why are women’s sizes arbitrary numbers? Why can’t they be waist measurements? That would be more consistent?]

Jennifer Hawkins has thin privilege. Yes. She most certainly does. But when I was struggling I had two kinds of people to look at in magazines and on television: overly photoshopped women who were too perfect, and purposefully imperfect women meant to make me hate myself so that I would work to not be like them. There was no campaign of women of any size coming out to say “we are imperfect, but here we are“.

I will grant this: The Bitch piece does criticize the way that Jennifer Hawkins’ flaws have been the main focus of her nude cover. That is not the conversation that this cover should be invoking in feminist circles. But if she is talking about how hard this was for her, that is not something we should be criticizing. Dismissing her hesitancy, her own insecurities just because she is thin and has a different body type than someone else… that is not feminist either. When has it ever been OK for us to dismiss another woman’s experiences?

Why can’t we, as feminists, understand that?

She no longer has the protection of her Photoshop Deflector Shields, so she is in a vulnerable place, but her thin privilege doesn’t put her in the same place as all the fatties of the world who are crying in clothing stores because shirts are not made for their bodies. I get that. I think Kelsey Wallace at Bitch, for whom I just did a mostly lovely guest blogging stint w/ some of the FWD/Forward team, even gets that despite what I am garnering from her post.

Jennifer Hawkins is not the same as me. She does not know what it is like to walk into a doctor’s office and have hir assume that the pain or illness is caused by my weight before they know anything about me. She does not know the pain of the stares when I have trouble walking somewhere, as if it is definitely because I am a fattie. Or how clothes are made for people like her and not for me…or how society is made to make me feel like I am a big worthless pile of shit whose only chance at redemption is to adopt a “Lifestyle Change” for just sixty bucks a month or whatever.

But while we are throwing stones at Hawkins and scolding her for making us all feel like crap, let’s remember that she is entitled to feel like crap too. And other women who look like her, who aren’t models, who might feel like crap about themselves, they are allowed to feel that way too if they want too. Because some of them might be trying to recover or hold on or what the fuck ever. Maybe they are healthy, and have been told to Eat a Sandwich[2. Yes. I linked to them. I want people to see how awful that thread is, and how flippantly and dismissively that is defended, even when it is pointed out to the mod to be harmful. As in, she doesn’t care that some people find it harmful.], as if it funny or hip, but they can’t gain weight or can’t eat that much for whatever reason.

Or, maybe we, women of any size, are allowed to love our bodies and just be fucking happy, no matter what, and these women on these covers should show us that at any size we can all be beautiful (and maybe we will see more variance soon…but I am a silly, idealistic girl[3. I can’t back this up. I am not.]).

We can criticize thin privilege without policing other women’s bodies.

Just sayin’…

Recommended Reading for January 12th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post.

WHEELIE cATHOLIC: Planes, trains and automobiles: shoveling out

In the UK, grit levels are “critically low as more snow heads in”. This is causing particular havoc for people with mobility problems due to physical disability, who are stuck in their homes. They’ve even started a hash tag on twitter called #disabilitysnow .

The interesting part about the Internet and the disability community is how it provides a way for people who live alone to reach out to each other when things like this happen. What may be an inconvenience for some non-disabled people, quickly turns into a situation where a disabled person becomes immobile.

ABC News: ‘Wellness’ Provision in Health Care Bill Meets Protest

Dozens of health, justice, and disability organizations have signed a letter urging senators to remove a provision in the health care reform bill that would allow insurers to provide reimbursements or incentives to workers who meet certain fitness goals laid out in workplace wellness programs.

In rewarding healthy people for making good choices, those who don’t meet fitness goals would be unfairly penalized, the groups said.

“It’s indistinguishable from medical underwriting,” Sue Nelson, vice president for federal advocacy of the American Heart Association (AHA).

HoustonPress: Houston’s Craziest [comment from meloukhia: “HOLY FRAKKIN’ FRIKKITY FRAK FRAK FRAK! HOW IS THIS LEGAL”]

Bailey is also one of Houston’s 30 craziest people.

That’s according to the Houston Police Department, because in February of this year, the department’s mental health unit put together a list of mentally ill people, the “chronic consumers,” based on how many times the cops have responded to a call concerning a person — regardless if an arrest was made — and how many times a person has been hospitalized under emergency detention orders from police.

New South Wales Health Care Complaints Commission: Yuk-Fun Christina Port – deregistered for three years by the NSW Medical Tribunal [Full particulars at the Board site – PDF]

The Health Care Complaints Commission recently prosecuted a complaint against Ms Yuk-Fun Christina Port, an experienced general practitioner, before the NSW Medical Tribunal. The complaint concerned Ms Port inappropriately prescribing medication to a patient without the patient’s knowledge.

Over a four year period, Ms Port prescribed medication for the treatment of depression at the request of the patient’s wife. The wife then administered the medication to the patient in his coffee. Ms Port had not consulted with the patient, nor did she arrange for any monitoring of his condition or possible side effects. When she became aware that the wife had not informed the patient that the medication was prescribed for him, she did not take any steps to ensure that patient was aware that he was being given medication and consented to his treatment.

The Guardian: Care homes forcing elderly to have feeding tubes fitted

The report found that many care homes across the country are making it a condition of residence that people, often in the advanced stages of dementia, have a tube fitted into their abdomen.[…]

All trusts and care homes should ensure there are enough staff to help those with difficulties take longer to eat, especially at meal times. “People in the later stages of dementia have complex end-of-life needs and it is vital that the use of artificial nutrition or hydration not be used in place of good quality care tailored to their specific needs,” said Neil Hunt, chief executive of the Alzheimer’s Society […]

Washington Country News: Dog helps stabilize autistic boy’s life, but Hillsboro school says not in the classroom

Eric and Wendy Givens know Madison, a trained autism service dog, can calm their son; they’ve seen the German shepherd do so at malls, in parking lots, at restaurants. But the Hillsboro School District won’t allow the dog in school, saying Scooter is doing well without the shepherd. […]

Disability Rights Oregon attorney Joel Greenberg equated the situation to a person who is blind being told he does fine with a cane even though a trained guide dog is more effective. “Essentially, the school district is saying, ‘we get to pick the tool,'” he said.

Tell Us About Your Visit…

I receive these great surveys after every doctor’s appointment any of us have with Medical here on Post. It is a survey from TRICARE asking us to please rate our visit with Dr. X on such and such date.

I received one for every visit I have with my regular doctor. We’ll call her Dr. Awesome. Except, the survey doesn’t ask me to rate Dr. Awesome, the survey asked me to rate my recent visit with, well we’ll call him Major Scriptwriter, because that is the function that he serves in my care. He is the supervising officer over my doctor, who approves all of my controlled medications. Every time one of them has to be refilled he has to sign off on the forms for them. I don’t actually see him unless there is a problem. In all fairness, he is pretty nice. But he doesn’t actually conduct my appointments. If I were to see him at an appointment, I would be more than happy to take a few minutes and fill out the surveys and return them.

I received several for The Kid’s immunizations asking me to review our appointments with Major Happygunns at Medical on several appointments. I matched the dates up in my datebook, not recognizing the name, and came to the conclusion that this must be the officer who supervises Immunizations. I do not know who this person is. Never seen hir. If the survey asked me to rate our visit w/ Sargent Needlejab, who has administered all of the vaccines and boosters and PPDs that we have needed since arriving in Country, and doing so while keeping The Kid from dealing everyone in the room a behind hook kick in the process (who decided to enroll her in Tae Kwon Do?), then great. He is actually a wonderful Army Medic, and is great with kids to boot, which isn’t easy to come by. He once let us sneak in to get a flu shot on a day that I had a particular foggy mix up and confused my appointment times.

But that is not what is going on here. I am being asked to rate supervisors based on what their subordinates are doing, and I am not OK with that. If I don’t return them I get little happy grams a few weeks or so later (because, funnily enough, they have to go all the way back to the states before arriving in my APO box, it seems) politely reminding me to please fill out my surveys.

The Guy thinks I should fill it out with really crappy marks, 0s across the board, and leave in the comments that the doctors couldn’t even be arsed to show up.

I am beginning to consider his suggestion.

Crossing My Fingers For The Future

I’m a letter writer. (Not in the wonderful personal-letter sense, much to my personal sadness, but in the “trying to accomplish something through quietly angry letter-writing” sense.) I write a lot of letters about disability & accessibility issues, to people like doctors who think every appointment is Show & Tell Disability Hour, to allegedly accessible transportation providers, to people who insist that they can’t be accessible because they’ll lose their historic plaque (a lie)… You know, letters. Sometimes these letters are effective, but I don’t feel much shock to tell you that I rarely get responses to them.

One of the reasons I write letters, though, is to hold people accountable.

Earlier this school year for me, I was personally assured by the president of my university that they took issues of disability & accessibility very seriously on my campus. This is, of course, utter shite. The meet & greet for my discipline was down a flight of stairs and then up another set of stairs, and they told me that anyone in a wheelchair could be carried in. I’ve been told by the Accessibility Center that they can only deal with students with disabilities directly – I can’t go to them as a student and get help making an event accessible if I’m not registered with them as a student with a disability. And, of course, I get the same responses when I talk to people: incomprehension and stares.

Today, I got an email from the Graduate Studies Office at my university, directing me towards a website for a– Actually, I don’t know. Here’s part of the email:

This conference is a chance to join some of Atlantic Canada’s leaders and youth activists to shape the future of [our university] and your faculties. For more information or to register, visit brainsforchange.ca. Registration deadline is Friday, January 15th.

This initiative is being spearheaded by the [University] Student Union, with support from [the University]’s Deans, and senior administration – a truly unprecedented level of interdisciplinary collaboration.

(I don’t know if my university self-googles, hence the redactions there. You can tell where I attend if you click on the link.]

I can’t read the link. Don can’t read the link. I set my screen reader on it, and it can’t even find the content, let alone read the link.

Every one of the groups of people named in the above paragraphs have assured me at some point that my university takes accessibility issues seriously.

So, I am writing another email, because maybe this time it will make a difference. It has a few times in the past. Not often, sadly. But maybe this time it will make a difference?

I would love to learn more about this conference, in order to decide if it appropriate for me to attend. Unfortunately, the website linked is an accessibility nightmare. I can’t even read it. My screen reader can’t read it outloud for me.

University administration and the executive officers of our Student Union keep telling me that disability & accessibility are a priority on campus. I want to believe them, but it becomes difficult when a conference that’s allegedly about engaging students doesn’t even attempt to be accessible to all of them.

I know that whoever gets this email isn’t responsible for the website, and I do believe the university wants to do more and be better about these sorts of issues. Is there any way I can get the information on the website emailed to me so I can look at it? And could you tell me who created the website? I think they should consider consulting with the Accessibility Center about web design in the future.

I’ll keep people posted about it, but I do wonder: Do you write letters about this sort of stuff? The biggest thing I’m told all the damned time is that somehow no one has ever complained before. This, of course, comes with that winning implication, that I’m just a whiner who should shut up.

I don’t think that my letter writing is going to make everything awesome, but I do think it means people may pay more attention to the next complaint.

Special Ecclectic Recommending Reading Post of Email Backlog

Hi folks! If you’ve been following my Dreamwidth account, you may know that I’ve been cleaning out a huge backlog of email. And that huge backlog of email has included links for recommended reading that I hadn’t seen previously because they got eaten in my inbox.

I apparently am not actually always available by email. But I’ve weeded out close to 5000 email messages and am now slogging away at the final thousand.

Anyway, here’s some of the links that came out of my backlog. Please note that these links are mostly for interest, and not necessarily reflecting the views of myself, the people who sent them in, or the FWD folks.

CD Baby blocks blind artist and fans (via Avalon’s Willow)

“I am so sorry!” begins the letter, “We are aware that our website upgrade was actually a huge downgrade for the blind. Our site used to be VERY user friendly, and I think that it was overlooked by our programmers. It IS a priority though, and we are working on making a dial up site that will be readable. This isn’t going to happen anytime in the next 2-3 months, but we ARE working on this and it is an issue that is not being ignored! … We were really proud of how accessible our site was before for the blind, and we would love to have this fixed so we don’t loose these customers.”

Three Blind Phreaks (via Jha)

The young Badirs closed ranks and vowed that their blindness would never be an impediment. They taught themselves to take apart telephones, to mimic voices and verbal tics, and to get around Tel Aviv without canes or guide dogs. They became obsessed with technology and telephones. After encountering their first computer, in 1989, at Tel Aviv’s Center for the Blind, Ramy and Muzher became enchanted with the IBM clones. They hung around Tel Aviv University while working, with little success, as software and telephone consultants; their early crimes were the phreaker equivalent of shoplifting a Hershey bar.

They’re Disabled – and they’re working

The total number of working-age disabled people without jobs nationally exceeds 70 percent, said Bill Ditto, New Jersey’s director of disability services. The Garden State has 1.9 million disabled residents of all ages.

In Pennsylvania, about 530,000 working-age individuals receive Social Security disability benefits. In 2008, about 5 percent of them also had a job, said John Miller, vice president of AHEDD, a nonprofit placement agency based in Camp Hill.

“The prevailing attitude in society is that if you’re disabled, you’re unable to work,” Ditto said.

Workers and supervisors at the Abilities Center know that’s not true.

Racing on Carbon Fiber Legs – How Abled Should We Be? (via Weaves)

Commence the comical nightmare of being told that we now possess an “unfair advantage” in wearing prosthetic limbs to run. The scores of amputee sprinters who had competed with the limbs for the previous 13 years—and were still comfortably categorized as “disabled”—were virtually ignored. What is fascinating is the immediate shift in society’s regard of a disabled athlete as an “inspiration” (cue the patronizing “awwwww”) to a legitimate threat to other athletes (“Uh, what the hell do we do now?”).

[A fuller set of recommended reading posts will be going up later today – I just wanted to get this out of my ‘to post’ list!]

Why “being nice” isn’t enough

On December 30, I wrote a post about the myth that people with disabilities are out to sue everyone else into compliance, booga booga fear the scary crippled people. In there I mentioned that Don & I had gone off to the mall and had difficulties getting into the shops, since apparently “wheelchair accessible” doesn’t mean “keep your aisles clear of junk”.

I wrote an email to the mall in question:

Subject: Accessibility and the Mall

Hello,

I recently visited your mall with my husband, a full-time wheelchair user. This was not our first visit to your mall, but it may be our last.

Many of the shops in your mall are not actually wheelchair accessible for a regular wheelchair user. The aisles between shelving units are rarely wide enough for a wheelchair user to not risk knocking something over. Often the aisles and open floor spaces are covered in sales items. Things jut into the aisles that could knock someone in the head. These issues do not even touch on sales staff that ignore people using wheelchairs [1. Oh, hey, we went to Don’s favourite Big & Tall shop in the other mall earlier this week. When he was by himself, and thus struggling with the sweaters, he got completely ignored. When I came into the shop to find him, I was offered assistance immediately. Even though she was standing not a foot from where Don was wheeling around looking for more sweaters, the same sales assistant completely ignored him. So, yeah, I’m going to be writing another email. But I’m especially annoyed because this is the only shop we’ve been to that sells clothing in Don’s size – where else are we going to go?], or stores that are so crowded that a wheelchair user cannot get around – both of which are human-related issues, and not ones I would expect mall administration to be able to deal with, although some sort of policy discussion on that would likely be helpful.

Although your mall has an accessibility policy, I can see nothing on your website that discusses if the stores within the mall are expected to uphold it, or what expectations the mall has that stores will be accessible.

We planned on spending the day yesterday taking advantage of the extended Sunday hours and Boxing Week Sales. Instead, we purchased one item and left. It was impossible for my husband to enter many of the stores that carry items we would want to purchase, or, if he could enter them, he could only get part of the way through the store before the above issues made it impossible for him to go any further back.

I feel many of these issues could be solved if the mall enforced an accessibility policy for the stores within it.

Thank you for your time,

Anna [Last Name]

I did get an email back, which was very polite and understanding and full of fluff. I won’t quote the whole thing, but this one line stood out to me:

Unfortunately we cannot enforce an accessibility policy, but we will be making every effort to encourage our retailers to provide barrier free access through education and an incentive program.

I don’t quite know why the mall can’t enforce an accessibility policy. I do know there is not a Canada-wide accessibility policy, and Nova Scotia is not exactly noted for accessibility-friendly policies.

In a world where people just needed to ask for assistance and voila, it would appear, as though magic, we wouldn’t need an accessibility policy. I could just drop an email to the mall, and that would be the end of it. Heck, I probably wouldn’t need to drop an email to the mall – from the goodness of their hearts, they would already have a thorough accessibility program in place, covering things I never think to ask for, like scent-free policies and braille signs and more seating [1. Well, I used to remember to ask for more seating, and then Don got a wheelchair and now I have to think about it.] and… well, things I never think to ask for.

This is why I’m displeased that my country doesn’t have even a token-effort federally mandated accessibility law. The mall, which can mandate things like “required to follow fire codes” and “required to open during mall hours” cannot (or chooses not to – I suspect the latter, frankly) require the same stores to follow an accessibility policy.

But yeah – if we’re all just really really nice, maybe they’ll do so anyway.

Recommended Reading for January 10th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post.

AbleGamers: 2009 Accessible Game of Year – Dragon Age: Origins

Dragon Age: Origins offers some of the most astounding accessibility options seen in any game this year. With only one accessibility complaint, Bioware far exceeded expectations for an accessible title. However, the relatively small font size was immediately addressed by Bioware, bringing the number of accessibility problems to zero.

Alex at Border House: Interview with Mark Barlet of AbleGamers.com

What are some important things to look for when determining the accessibility of a game?

It is very hard to say “THIS” is what we are looking for. Depending on your disability game accessibility can mean anything. So what we look for are options. I am not deaf and do not need subtitles when I play, but is there an option for subtitles? Steve [Spohn, Associate Editor of AbleGamers] does 99% of his interaction with his PC by use of the mouse, so a game must be playable using just a mouse. That said, others can not use a mouse at all, so we look to see if a game can be played by using the keyboard.

Tiffany at Disaboom: BBC to debut groundbreaking wheelchair dancing reality show

The celebs will be paired up with wheelchair dancers, and most of the wheelchair-users will be new to dancing too. After training, they’ll compete a variety of classic ballroom dances, from the Paso Doble to the Cha-Cha-Cha, all performed within the parameters of Wheelchair Dance Sport, a official sport requiring at least one dancer to use a wheelchair. The winning couple will go on to represent the UK at the Wheelchair Dance Sport European Championships in Israel this Fall.

Wow. This actually sounds official. Like it’s a real competition or something, not some pity-party looking for a sympathy vote. LOVE it.

Meris Stansbury at eSchoolNews: Five key trends in assistive technology

“NCTI hears this plea from … parents and caregivers as well. Too often, the sophistication of the features or interface of new devices precludes easy use by direct consumers or their parents, teachers, and friends. With more students being served in general-education classrooms of up to 30 students, devices need to offer as little complexity and facilitate as much independence for the user as possible,” the brief says.

“It’s not just about adding new features to the stuff we already have,” explained Tracy Gray, director of NCTI. “We must ask the question: What do we need to solve, and how can we do that?”

Fox News: Mind-Reading Systems Could Change Air Security

The WeCU system would use humans to do some of the observing but would rely mostly on hidden cameras or sensors that can detect a slight rise in body temperature and heart rate. Far more sensitive devices under development that can take such measurements from a distance would be incorporated later. […]

One system being studied by Homeland Security is called the Future Attribute Screening Technology, or FAST, and works like a souped-up polygraph.

It would subject people pulled aside for additional screening to a battery of tests, including scans of facial movements and pupil dilation, for signs of deception. Small platforms similar to the balancing boards used in the Nintendo Wii would help detect fidgeting.

New York Times: The Americanization of Mental Illness

Modern-day mental-health practitioners often look back at previous generations of psychiatrists and psychologists with a thinly veiled pity, wondering how they could have been so swept away by the cultural currents of their time. The confident pronouncements of Victorian-era doctors regarding the epidemic of hysterical women are now dismissed as cultural artifacts. Similarly, illnesses found only in other cultures are often treated like carnival sideshows. Koro, amok and the like can be found far back in the American diagnostic manual (DSM-IV, Pages 845-849) under the heading “culture-bound syndromes.” Given the attention they get, they might as well be labeled “Psychiatric Exotica: Two Bits a Gander.”

Recommended Reading for January 9th

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Media Access Australia: Human Rights Commission requests further information from cinemas

The Australian Human Rights Commission is currently assessing an application from Hoyts, Greater Union, Village and Reading cinemas for a temporary exemption from the Disability Discrimination Act in relation to captioning and audio description while they expand the current accessible circuit from 12 to 35 cinemas. […] In summary, the request asks for responses to the following issues: […]

2. Objections to the fact that individuals would lose their rights to lodge complaints under the DDA.[…]

4. The financial justification by the cinemas of why it is not possible to move towards 100% compliance when millions of dollars are being spent on 3D cinema.

Portland Press Herald: Three men with cerebral palsy suing Maine

Three men with cerebral palsy are suing the state, alleging that its policies have forced them to remain confined in nursing homes.[…]

“I do not want to spend the rest of my life here,” Van Meter wrote on his Web site.

“We live in a society that places great emphasis on independence, personal rights, and ensuring that each living creature is living in an environment suited to them. We protect wetlands so that frogs, insects and the like can live in an appropriate environment. We protect the natural habitats of polar bears, eagles and lady slippers yet we allow young individuals in need of physical assistance to be placed in nursing homes,” Van Meter wrote. “We have no age appropriate settings aimed at fostering a normal social lifestyle. It does not seem right or fair.”

Susan Niebur at Toddler Planet: In the name of awareness

But eventually, life moves on, and the wounds scab over, and the scars begin to form.

Until one day, one day, when a harmless meme rips them off, and you realize once again that you will never be the same.

Wharfedale and Airedale Observer: Pedestrians treated as second class citizens, says disability campaigner

The leader of a disability group is demanding action to allow people to use Wharfedale’s pavements safely during icy weather. Town councillor Neville Birch, who is registered blind and chairs Otley Disability Advisory Group (ODAG), says he has been virtually housebound because he has not wanted to risk walking on unsafe paths during the recent cold snap. […]

“We seem quick enough to grit the roads to make sure the motorists can get on with things and get where they need to, but what about pedestrians?” […]

A council spokesman said: […] Our advice would be to always wear sensible, sturdy shoes and to take care on pavements as they may be untreated and slippery, and only venture out when really necessary.”

Times of India: Jagannath temple to allow people in wheelchairs

The Jagannath temple in Puri, one of the most revered Hindu shrines, has decided to open its doors to wheelchair-bound devotees, an official said. But the temple authorities have taken no decision on building ramps for the wheelchairs. […] A disabled person cannot go into the temple with a wheelchair. But the temple authorities do allow entry to disabled, old and paralysed people with the help of family members and temple servitors.

“Every human being passes through phases in his life where he or she is dependent on someone else. The Lord (Jagannath) himself is limbless. But the anomaly is that wheelchair-bound limbless devotees can’t have access to the Lord,” said Ravi Tripathy, a handicapped and disabled rights activist.

The Age: London’s pop poet

At the age of seven Dury was struck down with polio. It almost killed him, leaving him withered on his left side and obliged to wear a calliper. His disability was to shape his life; it led to him being bullied as a child, it was the root of his anger and of his determination.

Dury took a confrontational attitude to his condition. He would often describe himself as a ”raspberry” – getting his retaliation in first (”raspberry ripple” is rhyming slang for cripple) – and he actually considered calling his first solo album The Mad Spastic.