Tag Archives: blindness

Recommended Reading for 10 December, 2010

Well, if it isn’t Friday again. I suppose it is for you, readers of the future, but I am writing this from Tuesday, in the past! Such is the power of the blog’s scheduling function.

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

An Actor Finds Truth & Power Negotiating her Vision Loss by Marilee Talkington guest posting at Brains of Minerva. Extremely relevant to this disabled actor’s interests, and a pretty wonderful piece in any case.

So I decided I wouldn’t tell the directors or anyone on the casting end that I was visually impaired. Which always felt like a betrayal. And I would show up as early as I needed to to re-write the entire script by hand in large print.  I hadn’t learned how to vocally advocate for myself yet in a way that didn’t feel angry or demanding, so at times I flat out lied. I remember calling an audition hotline once using a different name and asked if someone who was visually impaired could get the script ahead of time to memorize.  I was told that they couldn’t because it would pose an unfair advantage over the other actors.

Why CART in Government? by Martha Galindo at CCAC In Action:

1. Good government leads the way for all its citizens by setting best standards for equality and inclusion.

2. To reduce discriminatory gaps which now still exclude many able citizens (who happen to be deaf, deafened, or have a hearing loss, or who need quality text for many other good reasons) from regular and important government meetings, workshops, rallies, advisory committees, and public input to city, state, or federal bodies.

Lene Anderson at The Seated View: Disability Time

So there I am, sitting in the waiting room a full hour and half before my appointment and although I had a book, I was annoyed, so instead I started thinking about Disability Time. You don’t find it mentioned much in Google in the way it’s used in the disability world, but maybe some day, it’ll make its way into search engines. Disability Time refers to the way in which most things take much longer when you have a disability. There is personal Disability Time, as in it probably takes me double the time to make a cup of hot water in the microwave that it would you and then there is the Disability Time that’s imposed by others and there are a couple of those.

Donna Jodham: Out of sight out of mind

A few months ago I had a meeting with some officials of a financial institute to discuss making more financial planning services available to blind and sight impaired persons and at that time I raised the issue of making information available in alternate formats such as Braille, large print, and electronic text. To my chagrin but not to my surprise, the officials admitted that they had never thought of doing so. I also had a similar meeting with a major supermarket chain in Toronto to discuss making their weekly specials more available to their blind and sight impaired customers either online or through a phone service and again, I was told that this had not been thought of up until now.

Claudia Dreyfus for the New York Times: A conversation with Julian L. Seifter, Nephrologist and Patient. It’s an interesting interview with a physician, Dr. Julian Seifter, who just cowrote a book on living with chronic illness.

Q. Has being a patient helped you be a doctor?
A. I’ve certainly learned things I’ve brought back to the clinic. I have a retinopathy, for instance, which can be a complication of diabetes. I don’t have good vision in my right eye, as a result. When this first happened, I said to my ophthalmologist, “I can’t lose vision. I need to read.” And he said, “Any vision is better than no vision.”
That was important. I started thinking, “Concentrate on things you still can do and develop some new things.” I’ve since started gardening, which doesn’t require the most acute vision. It’s something I probably wouldn’t have done otherwise. I counsel my patients to replace what they’ve lost with something new.

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited. And have yourself a fabulous weekend.

Today in Journalism: Oh, I’ll Redefine Something For You, All Right

The Wall Street Journal has apparently been so sad that it’s been missing out on all the potential in disability reporting that it decided to go right for a bingo, do not pass go, do not collect $200. And I would like us all to issue a round of applause to Ben Rooney, because he has either created the most masterfully brilliant piece of parody I have ever seen, or he really studied up on bingo cards to produce this gem of a piece, ‘The Woman Who Redefined Inspiration.’ You can guess right from the title that this article is going to be awesome, right?

It’s a profile of Caroline Casey, a disabled entrepreneur who, among many other things, went on a trip around the world with a disabled crew, and, people, this story has it all. Inspiration! Don’t tell me what I can and can’t do! My parents didn’t tell me I was blind so I had no idea! And, of course, this absolutely beautiful line:

What makes her extraordinary is that Caroline Casey is blind.

Ayup. She’s not extraordinary because she’s a woman who has completed highly competitive academic programmes notoriously difficult for women, what with the more or less constant sexism. She’s not extraordinary for organising an around the world trip, which is no mean feat. Nope. She’s certainly not extraordinary for being a savvy and adaptive entrepreneur who  has designed programming used internationally. She’s extraordinary because she is blind1.

The focus of this story is her disability, and the disabilities of the people on her team:

Yes. A blind woman raced five laps at nearly 200kph (125 mph). And it gets better. She was racing against another blind person. Oh and her co-driver had no legs.

We are reminded, again and again, that you can do anything if you try hard enough, and that disability is simply a personal barrier you can overcome. If you can’t become an international entrepreneur, you personally are clearly doing something wrong. This narrative comes up so much, the ‘I won’t let anyone tell me no’ narrative. It neatly erases real-world barriers presented by society that individuals cannot do a damn thing about. Barriers like this very article, which casts disability as a personal tragedy you can surmount with a bit of elbow grease.

Her accomplishments as a businesswoman and her commentary on disability are is stuck way down at the bottom because that bit’s boring:

“Working with business you have to understand how business works. Worthy is not a business plan. So if business transforms its views around disability, then it is done. Disability will be done.”

For her technology is one of the key drivers. “It is one of the most empowering things there is for the community. Take Twitter for example. Deaf people can take part in a conversation. eBay has made disabled entrepreneurs, there is voice activated software. We can now use technology to have a life. It is one of the critical drivers. Unfortunately Facebook is not fully accessible for people who are blind but it is better than nothing.”

Casey wants to reframe the way people think about and contextualise disability and she’s especially interested in promoting job opportunities, autonomy, and independence. She even corrected the reporter on his language usage! But, again, we’re reminded that she’s only worthy of coverage because she’s blind; talking about social attitudes to disability, discussing the lack of opportunities for people with disabilities, that’s not the hook or the main interest. The thing the WSJ is counting on to get readers interested is ‘wow, let’s all gawk at the blind person!’ Doing a straight profile of an entrepreneur creating opportunities for people with disabilities and mentioning that she’s blind is out of the question, of course.

Which is a pity, because the work Casey is doing is important, it’s awesome, and it should be more widely covered. She’s confronting social attitudes and providing meaningful alternatives to that those attitudes; for people who want to devalue disability, she’s saying ‘ok, well, you’re going to be left out of changes in the business industry, as more PWDs become businesspeople and start changing the status quo.’

…her task is no less challenging than the race. It is to change the way society behaves by changing the way it thinks.

Well, yes. And articles like this remind me of exactly how much work has to be done here.

  1. Does this mean I am half extraordinary?