Daily Archives: 15 January, 2010

Chatterday! Open Thread.

baby orangutan with a halo of orange hairThis is our weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Feel free to add your own images. (Anna insists that these should only be of ponies, but I insist that very small primates, camelids, critters from the weasel family, smooching giraffes, and cupcakes are also acceptable.) Just whack in a bare link to a webpage, please – admin needs to deal with the HTML code side of things.

Today’s chatterday backcloth comes via Zooborns. Six month old orang-utan baby Saloma lives at the Singapore Zoo.

Admit Two: Australian Companion Card scheme up and running

picture of Australian companion card sample, next to an ADMIT TWO ticketThe Australian Government officially launched the national Companion Card scheme around six weeks ago.

The Companion Card enables some people with disabilities to participate at venues and activities without incurring the cost of a second ticket for a carer. If a PWD requires an attendant in order to participate in the event or access the location, the ticket for their companion is free. Before the scheme came into being, people who had service animals could legally take them anywhere without extra payment, but people who had human carers had to pay extra. How did that make sense?

Who can qualify for a Companion Card? In my state (definitions are very similar state to state), the care-needs eligibility definition is:

Attendant care support includes significant assistance with mobility, communication, self-care, or learning, planning and thinking, where the use of aids, equipment or alternative strategies do not enable the person to carry out these tasks. It does not include providing only reassurance, social company or encouragement.

The definition also requires that the need for support be considered life-long, though the rationale behind this is not explained. There is no income test.

There is an additional note to participating businesses warning them not to use this as an excuse for poor accessibility:

The Companion Card was not developed to overcome or compensate for any particular venue’s lack of accessibility; including the absence of ramps, lifts, accessible toilets, appropriate signage or captioning, etc. Responsibility for these access issues remains with venue and activity operators.

There are currently 2700 affiliate organisations participating in the National Companion Card. So far the participants include the Melbourne public transport system, major sporting leagues and venues, various cinemas, Circus OZ, Fitness First Australia, Circus Royale, The Australian Ballet, Musica Viva, The Australian Rugby Union, and many smaller sporting and cultural venues and organisations.

This is a terrific idea, and one that needs to be adopted in more countries. It would also be good if Australian extends the scheme to temporary passes for tourists in the future; right now, you need to be a resident.

What’s the situation where you are? If you need human assistance in order to participate in the life of your community, do you need to fork out cash for an extra ticket?

Recommended Reading for January 15th

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post. I attempt to provide extra warnings for certain material present in articles, but your triggers/issues may vary.

Outside the Dawn is Breaking: Her Uterus Is Really Not Your Business

For every caring, empathetic healthcare worker that praises her courage, she receives thoughtless treatment from others that make assumptions about the child’s quality of life and about the alleged “irresponsibility” of parents who choose to have disabled children.

Why should all feminists care about this?

Pulmonary Hypertension Association UK: Up To £1000 Return…….Just To Breathe!

PHA-UK research conducted by the charity’s members with 71 airlines who operate from and to the UK [found]:

* Less than a quarter of airlines surveyed supply free supplementary oxygen.
* A quarter of airlines approached do not supply supplementary oxygen at all.
* Two thirds of airlines in the study would not allow disabled air travellers with lung conditions to bring their own oxygen for use in- flight.
* Of the airlines that provide supplemental oxygen to otherwise ‘fit to fly’ passengers and charge for it, each levies a different fee which can range from £50 to £500 per trip, just to breathe!

Women With Disabilities Australia (WWDA): Submission to the Queensland Review of Maternity Services

The study found that:

* 36% of the disabled women received negative reactions to their pregnancy from others, compared to 9% of the non-disabled women;
* 12% of the disabled women rated their doctors care during the pregnancy as ‘poor’, compared to 2% of the non-disabled women;
* 20% of the disabled women were advised by their doctor to have an abortion, compared to 0% of the non-disabled women;
* 23% of the disabled women found prenatal classes ‘unhelpful’ compared to 3% of the non-disabled women (reasons given by the disabled women as to why the classes were unhelpful included: lack of information; no consideration given to the needs of the women with disabilities; feeling excluded in the classes);
* 24% of the disabled women found the maternity hospital staff ‘unhelpful’ compared to 7% of the non-disabled women ( reasons given by the disabled women included: special needs of women with disabilities were ignored; patronising and bullying behaviour; rude and uncaring attitudes).

Cape Cod Times/AP: Study: Youth now have more mental health issues

A new study has found that five times as many high school and college students are dealing with anxiety and other mental health issues as youth of the same age who were studied in the Great Depression era.[…]

The study is not without its skeptics, among them Richard Shadick, a psychologist who directs the counseling center at Pace University in New York. He says, for instance, that the sample data weren’t necessarily representative of all college students. (Many who answered the MMPI questionnaire were students in introductory psychology courses at four-year institutions.)

Shadick says his own experience leaves little doubt more students are seeking mental health services. But he and others think that may be due in part to heightened awareness of such services.

Canadian Press/Google: Disabled worshippers struggle to find place at pews as accessibility eludes

The disabled faithful say such experiences remain common in houses of worship, stoked by ignorance of their needs and doctrines that paint disability as proof of sin.

Years after U.S. federal law required accommodations for the disabled, separation of church and state means houses of worship remain largely beyond the law’s reach. State laws and denominational measures meant to take up the slack are tricky to enforce and face resistance from churches who call them both costly and impractical.[…]

Even after decades of blindness, Augusta churchgoer Willie Lee Jones said he still fields comments suggesting his sight could come back if he believed harder.

“People of faith will come to me and say, ‘God wants to heal you,”‘ said Jones, who replies that he’s complete even without his sight.

Stigma Hurts Everyone

I read an interesting post recently, from a self-described “functioning alcoholic” discussing the possibility of treating alcoholism with pharmaceutical drugs. While there’s no successful pharmaceutical treatment at this time, there are a few things in development and it’s seeming increasingly probable that the drug companies will focus research and development efforts on coming up with something.

More interesting to me than the potential treatment itself were the issues raised in the post about concerns raised by this treatment possibility – because all of the concerns seem to be based on observations of how psychiatric medications have been implemented and viewed since their development. (These issues also obviously apply to pharmaceutical treatments for other conditions, including fibromyalgia, migraines, etc.)  The issues raised by the author of the original post include:

  • “Is it appropriate to battle a chemical addiction with another chemical?” This is parallel to the often-voiced concern about whether chemical/medication-based treatment is an appropriate response, or if it will just replace the symptoms of mental illness with dependency on psychiatric drugs.
  • “Won’t the pharmaceutical companies “define alcoholism down” in an attempt to get the broadest possible consumer base for their products?” – This is parallel to the concerns about encouragement to overdiagnose mental health conditions such as ADHD and depression in order to broaden the market for pharmaceutical interventions. It also draws from concerns about advertising Abilify and other psych drugs directly to consumers through TV and print marketing.
  • “Is life really worth living if you’re sober all the time?” – while the original author clearly intends this as a joke, I find it similar to arguments I’ve heard that “messing with someone’s emotions” through pharmaceutical intervention will inherently result in significant changes to that person’s personality and identity. This seems similar, in that it questions whether life will be the same if such a fundamental component of their self is being affected by pharmaceutical treatments.
  • “One of the arguments against a medicine-based treatment of alcoholism is that while it may certainly curtail the physical addiction it does nothing to address the underlying reasons why someone might choose to drink—anxiety, depression, an unwillingness to be in the world without some kind of sedating agent to take the edge off of existence.” This idea is often used to argue that medication-based psych treatment alone is insufficient, and must be combined with some kind of psychotherapy to effectively address the underlying emotional issues driving the mental illness. It is also sometimes used to suggest that taking medication alone is “cheating,” by mitigating the symptoms of underlying trauma or disorder without addressing the root causes, allowing the patient to ignore the root causes and eventually causing greater harm.
  • “I’m not unsympathetic to the argument that a certain amount of drinking is just fine. I know plenty of folks who drink almost as much as I do and manage to keep it all together. Why castigate their actions or make them think they need “treatment” for what could be considered just another lifestyle choice?” This parallels many of the discussions regarding what constitutes a mental illness and ties into the ideas of “neuroatypicality,” where a person’s mental functioning is described as different than typical mental functioning, without a value judgment as to whether typicality is better or worse than atypicality. It also references the underlying conception that being labeled as someone who could benefit from pharmaceutical treatment is shameful or stigmatizing, a judgment which would surely spread to those on the borders of atypicality.

I found all this fascinating because, while I’m used to hearing these arguments and issues raised in the mental health treatment context,  it’s clear that they are permeating our society and discourse beyond their direct application to mental illness.  Here, the spectre of passing out ADHD drugs in every elementary school classroom is being raised as a potential concern in the as-yet hypothetical development of a treatment for alcoholism – a serious condition which can lead to significant health consequences up to and including death.

To me, this says that addressing these issues – the misinformation, the stigma, and the bad acts of pharmaceutical companies – is important not only to people with mental illness, but also to the groups who could benefit from pharmaceutical developments and interventions yet to be developed. It is clear that these issues are so significant that they could discourage people from supporting or even considering the possibility of future treatments that could potentially help millions.