Tag Archives: neurodiversity
Rachel Cohen-Rottenberg is a wife, mother, writer, editor, artist, photographer, and leader of the Vermont Chapter of the Autistic Self Advocacy Network (ASAN). She blogs at Journeys with Autism, and her latest book, The Uncharted Path: My Journey with Late-Diagnosed Autism, was published in July of 2010.
I do not suffer from autism.
I suffer when someone calls my way of being a disorder.
I suffer when others invest time and money to prevent people like me from being born.
I suffer when anyone suggests that I might recover or be cured.
I suffer when others feel sorry for me or for the family I have created.
I suffer when I fear that people will consider me broken.
I suffer when my being autistic scares people away.
I suffer when others try to silence me.
I suffer when people suggest that I do not have all the same feelings they do.
I suffer because I must describe my way of being by referring to a medical diagnosis.
I suffer because I live in a society that does not celebrate difference.
I suffer because I live in a culture that does not cultivate sensitivity.
I suffer because I live in an environment that values appearance over substance.
I suffer because I live within a social order that calculates human worth based on productivity and conformity.
I suffer because I live in a world that does not honor the gifts that autism brings me.
I suffer because I have learned to apologize for who I am.
But make no mistake: I do not suffer from autism. I do not suffer from who I am.
[Interested in guest posting for FWD? Please see our Guest Posting page for more information!]
Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.
Photo by Flickr user Deadly Tedly, Creative Commons License.
Astrid at Astrid’s Journal: Autism and Mental Illness
But why should it matter at all? Of course, sometimes, the misconception that autism is a mental illness leads to inappropriate treatment, such as unwarranted drugging, and it is rather necessary that the two be distinguished then. But when the only aim is acceptance for autistics, it should not make a difference. People with mental illness deserve and strive for as much acceptance, after all.
NPR: The Impact of War
This is the landing page for an ongoing series by NPR with both transcripts and audio available. I’d highly recommend the whole series, but ‘Disabled Veterans Face A Faceless Bureaucracy‘ may be particularly relevant to your interests; here’s a pullquote:
The number of outstanding claims at the VA for service-related disabilities — amputations, injured limbs, PTSD, brain trauma — hovers around 500,000. Nearly 40 percent of those have been waiting on a decision for more than four months.
And to make matters worse, another 100,000 claims are waiting for a decision at the Board of Veterans Appeals. The department has responded by hiring thousands of new claims adjudicators, a kind of brute force approach.
Snarky’s Machine: 20th Century Boy
What I found tragic was not their respective disabilities, which I’m sure presented challenges to them, but the way in which their bodies were suddenly appropriate for public discourse and each was suddenly defined by what their bodies could no longer do in a way I found diminished their continuing talents and contributions in their area of excellence. Their lives were not really theirs anymore and their bodies were expected to be everyone else’s educational opportunity.
Steve Schultze and Meg Kissinger at the Journal Sentinel: Supervisors call for firing of county mental health chief [Content warning: Rape, sexual assault, institutionalisation. Editorial comment: What. The. Fuck?!]
Three Milwaukee County supervisors turned up the heat Monday on the county’s top mental health official, calling for the firing of John Chianelli over mishandling of patient assaults.
Their remarks follow a report Sunday in the Journal Sentinel in which Chianelli defended housing female patients with dangerous male patients to quell male-on-male violence, according to written account by Supervisor Lynne De Bruin. Chianelli called it a trade-off that resulted in more sexual assaults of female patients, according to De Bruin and two other supervisors.
Hazel Dooney at Self Vs. Self: After the Crash, Part One [Content Warning, graphic description of a car crash, being trapped in wreckage]
What drove me to a break down last year weren’t the rigours of making art (although, I concede, the toxic enamel I used was enormously detrimental to my physical health). Rather, it was always trying to do what others – family, friends, doctors, even collectors – kept telling me was ‘right’.
Cynthia Hubert at the Sacramento Bee: Groups sue Sacramento County to halt mental health cuts
The lawsuit seeking class-action status, filed Thursday in U.S. District Court in Sacramento, contends the cuts violate various state and federal laws, including the Americans with Disabilities Act, and would be devastating to patients.
If the services are eliminated as planned on June 30, thousands of severely, chronically mentally ill people “will inevitably be exposed to increased harm of injury and death,” the lawsuit claims.
“These children get locked away,” Williams says. “They’re hidden from the rest of society because the families are ashamed of them.”
Mabhena was born with arthrogryposis, a condition that deforms the joints; it has cost her both of her legs, and makes it difficult for her to use her arms. When she was born, her father’s mother advised her mother not to nurse her. After her parents abandoned her, she was cared for by her maternal grandmother, a rural farmer who kept Mabhena at her side as she worked.
- Ok I am sorry about two NPR links in one recommended reading but I’ve been saving these up all week. No, I do not own a Volvo. I swear. I don’t even have a tote bag! ↩