Recommended Reading for 17 September, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

From BBC’s Ouch, by Charlie Swinbourne, Deaf country life v deaf city life:

I’m soon to become a Dad for the second time, so we’ve started thinking about the long term, and where we want our children to grow up. With houses on the pricey side for anything bigger than a shed in our area of West London, we’re currently wondering whether we’d be better off bringing up a family outside the city. […] The capital is full of opportunities for deaf people, with weekly deaf pub meets, regular events, accessible cinema and theatre performances, and numerous deaf centres and sports clubs.

Badgermama presents Kids and wheelchair manners:

Please stop yelling at your kids just because they’re 20 feet away from a wheelchair! Nothing bad is going to happen. It really pisses me off when someone grabs their kid, yanks them “out of the way” and yells at them, just because I’m in the same grocery aisle or on the same sidewalk. Usually, the kids are nowhere near me. All these people are doing is teaching their children that people in wheelchairs are scary and weird.

Some good news from ysobel of i hear the voices when I’m dreaming in *sags in relief*:

So, there’s been this whole saga with trying to get a ramp to the front entrance of our church, made vastly overcomplicated by the fact that the church is a designated historical site blah blah blah. […] The church appealed to the city council, who had it on the agenda for tonight, after several postponements on their part.

Leah at Cromulent Words writes You Can’t See My Pain:

You don’t see me not talking about disability in class because I’m fraid of being silenced again. You see someone who doesn’t care about the assignment.

At random babble…, our own OYD writes Medical Autonomy Chronicles: The Virgin Pap Smear (do be warned, it’s graphic):

For all the talk of how having sex outside of marriage or whatever message had been pounded on me for however long, and how it would leave me hollow and leave me feeling worthless and damaged, and for all the ways I had been told that casual sex would leave me reeling and feeling depressed and with a hole of missing self-esteem, nothing I did in my consensual sex life has ever compared to the way that pelvic exam and pap smear felt to me, a fourteen year old girl. A person rising on the crest of womanhood, not yet there but ready to fly, and having had myself violated before I took my first steps.

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Recommended Reading For 16 September 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Guiding Golden: Service Dogs as a Last Resort (Thanks to Sharon and Barnum for the link!)

There should be no correlation between a disabled person’s willingness, or lack thereof, to experiment with various options and others’ assessments of wether that person’s decision to use a service dog was made appropriately.  In the same spirit, a person who decides to use a service dog after alternatives have proven ineffective, should not be viewed as any more validated in their position than one who simply decides that the medication is not for her.

Planet of the Blind: No Wonder Blind People Have So Much Difficulty Getting Jobs, Have You Checked Out Their Computer Situation Lately?

Like my friend William Peace the administration at Iowa has come to think of me as a “bad cripple” who is simply a thorn–largely because I keep insisting that we need to have accessible campus buildings and a dignified disability culture that stands for true inclusion. Call me a thorn if you must. I simply believe that 20 years after the ADA people should be able to work and go to the bathroom by golly. When I think of how low my utopian dreams have fallen I could just cry.

Wibbly Wobbly Ramblings: A Serious Case of Discrimination against Students with Disabilities

Being forced to take a full course-load despite a diagnosis that says otherwise, forces students with disabilities to play the system and risk mental stress and burnout, to which their studies suffer and creates for them the issue of repairing the damage to their GPA.

Refusing to play the system, and, following a diagnosis, being considered part-time limits a student who cannot handle working at a job to support oneself at the same time as going to school.  It restricts students from grants, services, and the benefits of a full-time student.

Healthy Place: Sorry, Too Busy Panicking to Breathe

Right now I’m doing a little bit of all of the above. Who said multitasking’s just for the highly efficient? It’s one of the few skills that comes free as part of the anxiety package (No steak knives I’m afraid. They take away the sharp things when you shake as much as I do). If you’re panicked enough, you can do 5 million things at once. Adrenaline is just homemade speed.

Comment is free: Unemployment is no “lifestyle choice”

After 18 months, the job centre was forced to pass me on to an “Employment Zone” – a private company paid by the government for every client it got into work, suitable or not.

It offered nothing that I was not already doing: I have internet access and know how to fill in forms and write CVs. My “adviser” was the Scots incarnation of League of Gentlemen’s Pauline, who relished humiliating people better qualified than herself: “We have to find ways of hiding the fact you’ve got a PhD,” she said. I wondered how she would explain away six years. I told her that I had been applying for jobs to which I was suited in skills. She replied: “If you were suited to them, you’d be getting them, wouldn’t you? Try cleaning or call centres.” Fortunately, just as she was demanding that I come in twice a week (on pain of stopping my benefit), the temping agencies with which I was registered began coming up with short-term work in academic administration.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Today In Journalism: Autistic Adults Need Not Comment

I was browsing the New York Times Magazine online this morning when I saw a story in the sidebar, ‘When Autistic Children Become Adults,’ from the Motherlode blog. Hmmm, I thought. This might be interesting.

The article opens with a discussion of the rise in autism diagnoses over the last half of the 20th century, and points out that growing numbers of people diagnosed with autism as children are growing into adulthood, with an estimated 88,000 autistic adults in the US today and numbers that will only grow larger in the coming decades. All well and good, an interesting thing to talk about, but the sole focus of the article is on parents of autistic people.

What to do for the wave of children with autism when they grow into adults? There are an estimated 88,000 such adults today, and their parents all face the anxiety that hundreds of thousands more parents will confront in coming years.

Ah, yes, the parents. Yes, by all means, let’s focus on the ‘anxiety’ of the parents, because that is the important thing here; let’s not talk, for example, about the pressure to institutionalise autistic adults and what that means for actual autistic adults, no, let’s focus on what that means for the parents. Let’s not talk about lack of social equality for people with disabilities in general, about ableism and discrimination, about why it is that parents and caregivers are taken as authorities on disability over actual people with disabilities. Let’s not talk about the very real fears that people with autism have about being institutionalised and abused. The story links to a longer piece discussing the growing numbers of autistic adults, and again focusing on what parents are supposed to do, and concludes:

Then, those of you who are struggling with this question in your own life, please use the comments to discuss your plans and fears for your children — and let us know how the rest of us can “actively root” for them as they navigate the future.

Notice anyone missing from this statement? I sure did.

Despite discussing the fact that there are autistic adults right now, their opinions were not solicited, and parents were invited to tell readers how to support adults with autism. Parents. Not autistic adults. I guess we would have nothing of interest or relevance to say, eh? In the comments, which I do not recommend, an autistic adults did speak up, but not to challenge the narrative put forward in the article, that parents, rather than actual people with autism, should be the trustworthy sources of information on this issue.

Anna’s written here about self-appointed ‘advocates’ speaking for people with autism and all the problems embedded in that. This is a serious issue for many people with disabilities, but with autism, it is perhaps most stark, and most striking. We have major autism organisations without a single person with autism on their boards. Run entirely by parents, and sometimes actively rejecting input and requests for discussion from autistic people.

Of course, the comments exploded with a furor of ridiculousness as people demonstrated their ignorance about the deinstitutionalisation movement and other topics. Rank hatred oozed out of many of the comments, and if autistic adults hadn’t already been basically excluded already, they certainly wouldn’t have wanted to join in the conversation after scrolling through the comments to get to the submission box. The article made it crystal clear that commentary from us wasn’t deemed necessary or desirable, as did the comments.

It’s natural and understandable for parents to be concerned about the welfare of their children, and parents fighting hard to keep their children out of institutions and abusive situations most definitely have reason to be worried about what will happen when they die. I’m not saying parents don’t matter, but I am saying that it is not appropriate to position them as authorities over actual people with autism, including their own children. I am saying that people without autism should not be spokespeople for people with autism, that any conversation about ‘what to do with autistic adults’ should include autistic adults.

Yes, I would expect a parenting blog to focus on parenting, but an important part of parenting, to my understanding, seems to be supporting autonomy and self determination for your children, allowing them to speak for themselves, allowing them to become fully integrated members of society. This is most definitely an issue of relevance to parents, and part of parenting is knowing when to speak, and when to listen. It’s time to listen to people with autism, not their parents, and that includes autistic parents who may have some insightful input into this discussion; the underlying assumption in this article is that no parents have autism, and that is demonstrably untrue.

We want to talk about how to ‘support’ autistic adults? How about asking actual people with autism for their opinion on the matter instead of hosting free-for alls filled with ignorance and hatred in the comment sections of major newspapers?

By 16 September, 2010.    autonomy, i'm right here   

Musings: Is Existing as a PWD a form of Free Speech?

These are some things I’ve been thinking about, but haven’t yet figured out where this train of thought is leading, or what it might connect to, or what conclusions I might end up with. I’m writing this to see if virtually talking it out can help me think through it further, or hoping it will spark some ideas or brilliance in one of you! This is not meant to be an authoritative statement on these issues and there may be glaring issues I’m overlooking! I’m just hoping to have a good discussion about it.

Recently, the federal circuit court in California heard a case about whether the city of Hermosa Beach could ban tattoo shops entirely. The plaintiff – a man who wanted to open a tattoo shop in the city – argued that the ban was an impermissible  restriction of his free speech rights. The court wrote a long decision (pdf) considering not whether having a tattoo was something protected by the First Amendment, but whether the actual act of tattooing someone was conduct with sufficient expressive content to be considered as speech. So the court was thinking about whether the act of giving someone a tattoo counts as speech – if the tattoo artist is the equivalent of a painter or a photographer and adding artistic judgment and content to the representation, or if they are more like a computer printer printing out text or images designed by someone else.

This meant the court spent a lot of time discussing the idea of “expressive conduct” – behavior that isn’t actually “speech” in that the person is not speaking words, but is behaving in a way that communicates a message or idea and so is protected the same way that speech is. In the United States, the Supreme Court has already considered a whole bunch of activities and determined that they should be protected the same way that speech is. For example, burning the United States flag, wearing a black armband to protest the Vietnam War, and nude dancing are all activities that aren’t directly speech, but convey a statement or message and so are protected the same way that speech is.

I started thinking about the idea of “expressive conduct” – behavior that conveys a message or statement – and was immediately struck by how existence as a person with a disability could be seen as expressive conduct. Using a wheelchair or cane or braces while out in public seems to me to express a statement: “I am a person with a disability, I exist, I share public space with you.” This is, as we’ve discussed here at FWD and many others have expressed, a radical statement, a powerful message. To me, it seems equivalent to the message expressed by wearing a black armband to protest a war – it is a political statement of resistance.

The law of expressive conduct recognizes that not every instance of the behavior is communicating an expressive message. If, for example, I had mini American flags as part of a table decoration and one fell into a candle and started burning while I wasn’t paying attention, that flag burning would not be sending the same message as intentionally burning a flag at an anti-war demonstration. My accidental flag burning would not be sending a message and so would not be protected as speech. Similarly, a PWD alone in their apartment likely isn’t sending any message or statement with the mere fact of their existence – they might be typing or painting or speaking and sending a message that way, but not simply by existing. So PWDs wouldn’t automatically “become” speech – only when their existence communicates a message.

I’m not entirely sure where that gets us. In First Amendment law, when conduct is considered speech because of its expressive content, it is protected by the First Amendment, which means that the government cannot restrict it without passing certain protective tests. So theoretically, arguing that disability is a form of speech would let PWDs argue that governmental restrictions on their presence are in fact restrictions on speech. But since the First Amendment only protects speech from restriction by the government, not from private businesses or in private life, I’m not sure that would add any protections that the Americans with Disabilities Act doesn’t already provide. So I’m not sure this analogy would be helpful in extending the existing legal rights of PWD.

I’m also unsure how people with invisible illnesses (like myself) fit into this analysis. My being in public does not automatically communicate to people that I exist as a PWD, because my disability status is not apparent from looking at me. So I don’t start communicating this message until I affirmatively disclose or mark my disability status.

I also wonder if this forcibly ascribes expression or speech to PWDs who do not think they are or want to express that radical message.

I don’t really have a strong conclusion to any of this – I’m still rolling it around in my head to see what if anything it turns into. But I like the idea of acknowledging that when PWDs with visible disabilities are engaged in sending a message as powerful as burning a flag.

What do you think? It’s ok if you don’t have a clear position one way or the other but just have thoughts or reactions!

By 16 September, 2010.    activism, identity, invisibility, justice   

Guest Post From Jesse the K: Making Space for Wheelchairs and Scooters

Jesse the K hopes you can take a disabled feminist to tea this month. Her previous guest post was 20 Years and a Day for the Americans with Disabilities Act.

Originally Posted at Access Fandom.

These guidelines come out of my experience working on WisCon, a 1000-person annual convention in a recently remodeled hotel.

There are many elements to making your event wheelchair-accessible. While U.S. law requires minimal wheelchair access, never rely on a venue’s general assertion of “oh yes, we’re accessible.” Those little wheelchair stickers? Anyone can buy them and post them at will, even at the bottom of a flight of steps.

There’s an entire shelf of 2-in (5,08 cm) thick books on this topic; so consider this the Twitter version. Links to helpful resources appear on June Isaacson Kaile’s site.

David Hingsburger is a long-time disability rights activist who’s begun using a wheelchair in the last few years. His essay “12 Steps? Me, I’d Rather Sit” captures the frustration of a last-minute change from an inaccessible venue to one that worked for him:

…These things are difficult because while I appreciate everyone’s understanding, I didn’t want it. While I was thankful for the extra effort made to find a room immediately, I didn’t want it. What I wanted was simple. Accessibility.

Accessibility doesn’t just mean I get easily into a building. Accessibility means anonymity. It reduces the need for compassion, understanding, special consideration, to Nil. It allows me to slip in unnoticed and set up quietly. This doesn’t mean it masks my disability, it just makes it mean something very different.…

Verify & report

Do an on-site survey with someone who’s truly familiar with the needs of wheelchair and scooter users. (Not all wheelchair users automatically have this knowledge, just as not all walking people know everything about sidewalk construction. Some non-wheelchair users also have these skills.)

Check for level paths to every area. A single, unramped step is as significant a blockade as two flights of stairs. Wheelchairs need at the very least 36″ (1 m) for corridors and 60″ (1,5 m) to turn around.

Describe any non-conforming areas in your publicity and program: forewarned is forearmed, and it demonstrates that you’ve actually checked the place out. Don’t use the term “wheelchair-friendly,” which has no defined meaning. Do reference any standards the venue meets: “ADA compliant” in WisCon’s case.

Make sure that stages are ramped as well. (Our venue can only ramp one stage at a time. This requires members to self-ID at reg, and program coordination to place ensure the ramped stage and the wheelchair using panelists are in the same room. I know from experience it’s easy to blow this one.)

Wheelchair Parking aka Blue Zones

Providing designated wheelchair parking in all seating areas permits wheelchair users the same freedom to come and go as those using the seats. Well-meaning non-disabled people will often say, “oh, but of course I’ll move a chair out of the way if you just ask.” And from their viewpoint, that’s a one-to-one personal issue. But from perspective of us wheelchair users, it’s a one-to-many problem, since we must ask for seating rearrangement every where we go.

While leaving empty spaces seems like a solution, chairs inevitably migrate further apart, filling them in. The inexpensive and highly effective alternative are “blue zones,” 36 in (1 m) squares outlined with 1in (2,54 mm) blue painters’ tape. It’s bright, stays down on carpet and comes up easily.

If you know how many wheelchair users are in attendance, be sure you make that many blue zones at the big get-togethers. (Otherwise, 1 for every 100 is a rough guideline.) Always have at least one blue zone, especially in the smallest program rooms (where crowding is most an issue). When you have room for two, put one up front and one in the back. The former is great for the wheelchair user who may also have hearing or vision impairment; the latter works well for those of us who get claustrophobic and need to be able to leave right away.

Dear Imprudence: One of These Things is Not Like the Others

On last week’s Dear Amy, a reader wrote in for some relationship advice. The reader’s girlfriend is becoming more distant, and the reader wants to know what to do:

Dear Amy: I have been in a relationship with a woman for two years. I love her. She says she loves me. She says she wants to marry me and be together forever.

In the beginning, she needed to see me every other day, if not more often. All of our phone calls were long and rich with conversation.

Over the last several months, she has cheated on me numerous times with an ex-boyfriend, although she says she doesn’t like it, didn’t plan it and doesn’t love him.

Lately all phone calls happen while she is watching television or reading. They are very empty.

She has turned down all of my offers to get together.

When I express my feelings of confusion or when I tell her I miss her, she makes me feel I’m out of line. She is hostile.

How can I get her to open up to me again without seeming needy and insecure?

I believe the ex may be back in the picture, but I don’t know if this is the reason for the distance.

She is also bipolar.

How can I bring the love of my life back into my arms again?

— Hopelessly Devoted

Notice anything about this letter? As I read along, I thought ‘gee, this sounds like a situation where the relationship is pretty much over, and the party writing the letter just doesn’t realise it, or wants someone else to affirm it. There’s some emotional distance going on, and the letter writer is struggling with it.’ This is a scenario that plays out pretty much every day in relationships of all sorts.

And then, bam, the second to last sentence. ‘She is also bipolar.’ Just kind of thrown in there. It feels like an afterthought to me, rather than being brought up at the start of the letter as a piece of information that may potentially be important, and it feels less like being aware of something that might impact their relationship, and more like an attempt at just tossing off blame for where the relationship went; ‘she’s bipolar, and that’s why all of this is happening.’

Are there some disabilities that impact the way people think and interact with others, process information, and handle emotional conversations? There absolutely are. Being aware of the things that might change someone’s comfort level or ability to engage with a conversation is not the same as blaming someone for an integral part of that person’s identity and deciding that person can’t be approached at all. The girlfriend has become the disability, and everything wrong with the relationship  is suddenly because of the disability.

Amy responds:

Dear Devoted: You already know the truth. Your girlfriend has lost interest in you.

Whether she is cheating on you again or is going through a depressed cycle of her bipolar disorder, you cannot force her to love you, want to be with you or even have an honest conversation with you about your relationship.

I suggest, therefore, that you be completely honest with yourself and frank with her about your own needs.

You want honesty, fidelity and a close, romantic relationship. So say so. You won’t come off as needy, but as a guy who knows who he is and what he wants.

You also have to be willing to walk away from a relationship that is so imbalanced. You deserve better.

Amy’s approach here doesn’t really integrate an honest discussion about disability and how it might impact how the girlfriend is feeling. There’s one brief mention about ‘going through a depressed cycle,’ but that’s it. The advice about being frank is pretty solid; the letter writer definitely does need to communicate, but it might be good to start with communicating on terms the girlfriend will feel comfortable with. Perhaps she doesn’t want to talk about this on the phone and would feel more comfortable in email. Maybe she wants to meet in person. Maybe she needs some space and is having trouble articulating it.

The way Amy approaches this, it’s centered on the letter writer’s needs. She classifies the relationship as ‘imbalanced’ while providing rather imbalanced advice. She’s right when she says that you can’t force someone to love you, but lack of love might not actually be what is going on here. Indeed, the girlfriend may very much love her partner, and just be in a bad place right now.

It’s not clear from the original letter whether the people involved in this relationship have had a conversation about the girlfriend’s disability and how it sometimes impacts the ways she thinks and feels. Sometimes, people are just distant and not interested in a relationship anymore and it has nothing to do with disability. Sometimes, people are having a hard time of things in ways that are related to their mental health conditions, and need to be supported. Not by being reduced to their disabilities, not by having their disabilities blamed for everything, but by having a space where their needs are accommodated.

The message we are left with from this particular advice column seems to be  that people with bipolar disorder are inherently unsuitable for relationships or serious conversations, and neither of these things is true.

Recommended Reading for Wednesday, September 15, 2010

Today’s Recommended Reading focuses on how to make event-sites more accessible to people with disabilities, and experiences people with disabilities have had with accessibility at events and in their communities.

Accessibility Discussions: How To

This list is no where near comprehensive (I went a hunting for a few specific ones I know I’ve read and couldn’t find), so please feel free to leave more links in the comments!

Via Ms Crip Chick’s five fav tools to dialogue about justice: Accessibility Checklists at the National Youth Leadership Network:

Are you looking for ways to outreach to more people? Are you trying to get people involved? Are you trying to keep them involved? How a document reads and looks affects whether people can understand the information being shared. This is a checklist for document accessibility. It also includes some tips to think about when making programs or services accessible to all people.

Glenda Watson Hyatt at Do It Myself: A Checklist for Planning an Accessible Event

Whether planning a meeting, workshop or multi-day conference, your goal, no doubt, is to assist all participants, including those with disabilities, to feel welcomed and able to fully participate in the event

This checklist is intended as a starting point in planning an accessible event, which likely requires more than ramps and wheelchair washrooms. The key is to consider every aspect of the event and what barriers a person with a disability – whether it be physical, mobility, hearing, sight, or cognitive – might face, and how you can eliminate or minimize those barriers to ensure all participants feel welcomed.

The Access Fandom Wiki

Access Fandom Wiki is a tool to help make Science Fiction conventions and conferences more accessible to people with disabilities. Within you will find specific instructions and resources for carrying out these aims.

Planning an accessible meeting

When you are planning a meeting or event, you want to make sure that everyone can participate, including people with disabilities. By planning ahead, you can build accessibility into every aspect of the meeting.

The two main areas you need to consider when planning an accessible meeting or event are:

  • physical access to the meeting space
  • access to the meeting contents and proceedings.

Here are some general things to keep in mind.

Disability Access @ Stanford – Planning an Accessible Event (One of the things I like about this one is the “questions you should be able to answer” section, because I’m amazed at how many people cannot tell me where their barrier-free entrance is, even when they have one.)

Q: How do I get from [point A] to [point B]?

Familiarize yourself with stair-free pathways in the vicinity of the event (e.g., parking lot to main entrance) and to notable locations…

Q: Where is the nearest wheelchair accessible bathroom?

Know ahead of time where the accessible bathroom is, and how to get to it from your event location.

Accessibility Discussions: Experiences Of

alias_sqbr: Using a Mobility Scooter at WorldCon

Walking is easy on the brain and hard on the legs. Using the scooter is the reverse, the level of concentration required is somewhere between walking and driving, and by the time I got back to the hotel after my first excursion I needed a mental break and did the rest of my (much less taxing) exploration on foot. It got easier with practice, and was also much less taxing indoors in a familiar space without the worry of cars etc. The convention centre was perfect, lots of big empty flat carpeted areas. I got up now and then when it was more convenient but still ended up doing MUCH less walking than normal and as a result was much less tired and in pain than I would otherwise have been, and got to enjoy a lot more of the con as well as being able to go out to dinner etc. One issue was that all that sitting gave me a sore bum/lower back/legs, and I became quite uncomfortable on the plane trip back. I’ve been doing a lot of half lying with my legs out since getting home and am fine now. My brain is also less fatigued, once I got used to the scooter the general lack of fatigue made me more mentally awake than I usually am at the end of a con.

Lisy Babe BADD 10: Discrimination by ignorance and the myth of the DDA

“But I thought everywhere was accessible now.”

How I loathe that sentence. It usually follows my asking “so why did you hire somewhere inaccessible for your event? Because now I can’t come.”

For example, I’ve just spent the last 3 days at a film festival/conference tied to my course… I arrived on Thursday, picked up my ticket and was told by cinema staff “it’s in screen 2, which is not accessible.”


And, of course, the “but I thought…” line swiftly followed from the director of the event who’d hired the venue.

Ira Socol at SpeEd ChangeTo be fully human

I move through a lot of schools, and through a lot of public spaces, and everywhere I go I see people who are made to be less than fully human. The high school kids who can not read sitting in classrooms during “silent reading” time. The girl in the wheelchair set off to the side of the middle school choir because everyone else is on risers. The poor reader at the bank or hospital faced with piles of incomprehensible paperwork. The man or woman denied the ability to go out to eat because of too few or badly placed “handicapped” parking places. The child who struggles with writing who is denied the right to communicate in his classroom. The university students forced to spend large amounts of money and time to “prove themselves” “disabled.”

Codeman38 at Normal is Overrated: Of Privilege and Auditory Processing

The Normal Auditory Processing Privilege Checklist

  • I can watch first-run movies in any theater and still understand a majority of the dialogue without having to attend a specially scheduled screening with subtitles.
  • I can understand messages broadcast over PA systems without a lot of difficulty.
  • Lectures are just as easy for me to comprehend without visual feedback such as PowerPoint as they are with visual feedback.

Heather Farley at Oh Wheely… Blogging Against Disablism Day

These people have no idea of the impact they have on my sense of worth. And they don’t care. That shrug of ‘it’s not my problem, it’s yours’ means that I am excluded from that part of life. I’m apparently not worth their effort. On the flip side I have to say that for every person who shrugs there are another five people offering help, opening doors, and keeping my faith in humanity alive. Unfortunately it’s the ‘shruggers’ who stick in my psyche.

For every little battle I fight there are ten more that I have to let pass by. There just aren’t enough hours in the day to argue the toss every time. And every time I do I become less important in my eyes, less worthy of my effort, less deserving of theirs.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Recommended Reading for September 14, 2010

Astrid van Woerkom at Astrid’s Journal: “Exercise For Mental Health!”

Bakker forgets the barriers to exercise that some people encounter. Due to the construction going on, I cannot take walks on grounds unaccompanied anymore. I cannot navigate the busy gym during fitness class. If I want to bike, I need to go on a tandem. I cannot participate in my institution’s running therapy program. None of this is due to anxiety. All of it is due to my disabilities, and the barriers to access that stand in the way.

Spilt Milk at Feministe: Fat acceptance: when kindness is activism

Body shame is a great tool of kyriarchy and we often get it from our mothers first, as we learn how bodies can be reduced to a collection of parts and how those parts can be ranked in order of acceptability. Thighs and bums, boobs and upper arms, back-fat and belly-rolls can all be prodded and critiqued, despaired over, disparaged, loathed. This is often a social activity, too. Who doesn’t love normalising misogyny over a cup of tea and a (low calorie) biscuit while the kids play in the next room?

Clarissa at Clarissa’s Blog: Asperger’s: Daily Experiences

As I mentioned earlier, I have “good days” and “bad days.” On bad days, it becomes more difficult to manage my autism, while on good days I make use of a variety of strategies that make it difficult for most people who know me to guess that I am in any way different. In this post, I will describe the techniques I use on my good days, of which today was one. I remind you that my form of Asperger’s is pretty severe, which means that not everybody who has it needs to go through a similar routine.

Cripchick at cripchick’s blog: the politics of mobility

there are so many times when i feel deep resentment for the mobility that (most) nondisabled people our age have. not physical mobility as in moving your arms, but the privilege of being able to move through the world so easily. never having to ask permission. never being dependent on access their support systems provide. never worrying about where they will stay, how they will get around, or who will hire them if they need cash.

Kim Webber at Croakey: How to boost the rural/remote health workforce? It’s not all about the dollars… [via tigtog at Hoyden About Town]

After a year-long consultative effort, the WHO document proposes 16 recommendations on how to improve the recruitment and retention of health workers in underserved areas.  You can see what they are at the bottom of this post (only one of the recommendations relates to financial incentives).

Finally, this week — September 13-19th —  is National Invisible Illness Awareness Week in the U.S. You can find out more by visiting the NIIAW website.

Better microphone use at conventions: a report

Originally Published at Access Fandom.

At My Local Convention, the Access team made a big push toward improving microphone usage this year. This is separate from things we normally do such as marking off chairs for lip readers. Below are revised documents that I wrote to the concom, arguing for an investment in this cause.

I. Hearing impairment is common.

“According to the US Dept of Health and Human Services 1990 and 1991 Health Interview Surveys, approximately 20 million persons, or 8.6 percent of the total U.S. population 3 years and older, were reported to have hearing problems.

“The elderly were more likely than any other age group to have hearing problems (Figure 1). Persons 65 years and older are eight times more likely to have hearing impairment than persons ages 18-34 (i.e., 3.4 percent of the population ages 18-34 have hearing impairment, compared to 29.1 percent of the population 65 and older).”


Therefore: Hearing impairment is likely to be common at our event.

II. Microphones benefit everyone, thus are an element of universal design.

Hearing is difficult in noisy, crowded situations such as cons, even for those who do not have hearing loss. Factors such as sinus problems can temporarily affect hearing. Mics also benefit those with attention difficulties.

Mics save speakers from having to strain their voices or having to shout. They are a confidence builder for people– they help teach people to value their own voice. It is a professional asset to know how to use a mic properly.

III. Like other aspects of our con: Having good access for hearing will create an environment that will attract people to us; having bad access for hearing will create complaints and disappointed people.

In short: We all benefit from having better microphone usage at our event.

IV. Known barriers and difficulties:

–Mics are expensive
–Cords get in the way and knock things over such as the water glasses. (Proposed solution: cup holders)
–People don’t like using mics or don’t know how to use them well
–Mods don’t always repeat audience questions/comments
–Smaller programming rooms don’t have mics (aren’t wired for them.)

V. Proposals:

–Write on back of name tents: “PLEASE USE THE MICS”. Name tents sit in front of every panelist.
–Create signs, tape to each panel table to remind people to use the mics. We borrowed the word “Sonorous!” which is the voice-amplification spell from Harry Potter for these signs (we’re a science fiction convention.) The signs had an image of a mic with a green circle around it and text that read, “four inches from your mouth because we’re loud and proud!” (or something like that)
–Buy, borrow, scrounge for more mics. We borrowed six from a college, and rented 2 additional mics on top of our normal number.
–Train mods to enforce this, get them to use mics and repeat audience questions. Repeating audience questions not only allows people to hear the question, it also permits people who are lipreading to maintain their gaze in one direction! Our convention has a “mod squad” training which was effective in this regard.
–Have access volunteers raise their hands in rooms to ask/remind people to use the mics. In this way volunteers can speak up for others who may have trouble speaking up for their own needs.
–Long term: get mics into all programming rooms
–Look into wireless mics if possible
–Address the “I’m shy” issue which often prevents folks from using the mics (and/or other resistance). Personally I believe that microphone use can be “normalized” so that nearly everyone simply does it the way we all put on seatbelts, when they are available.

Microphone use: pretty good, but myself and others definitely encountered able-bodied privilege in the form of people claiming their voices are good enough, loud enough, and gosh darnit mics just aren’t natural. In smaller rooms, mic use was worse than in larger rooms. Some people were “mic hogs” (not good at sharing or passing microphones); therefore more mics would be better for 6-panelist panels. Some people gestured with the mics or held them too far from their faces. I believe this shift in culture will take several years but we are off to a good start.

Weekly Events Roundup

My weekly events this week are in the UK & the US. Again, we don’t endorse these events, and they are things I come across in my travels round the internet, so these are not the only events going on my any means!

UKUSCalls for Papers


Tuesday September 14th 5pm – Douglas Jefferson Room, School of English, University of Leeds
Advance notice that the poet and critic Michael Davidson will be speaking in the School of English on “Pregnant Men: Modernism, Disability, and Biofuturity in Djuna Barnes’ Nightwood”

Professor Davidson teaches at the Department of Literature, University of California, San Diego. His research interests are in the areas of Modern Poetry, Cultural Studies, Gender Studies and Disability Studies. His most recent book is Concerto for the Left Hand: Disability and the Defamiliar Body (2008)


For further details contact Bridget Bennett: b.k.g.bennett AT or Stuart Murray: s.f.murray AT

What is Disability Hate Crime?: A Historical Exploration of Crimes Involving Disabled People

A Seminar Presentation by Dr. Alex Tankard

Hosted by the Centre for Culture & Disability Studies, Faculty of Education, Liverpool Hope University

Time: 2.15pm – 3.45pm
Date: Wednesday, October 13th 2010

The 2007 CPS Policy for Prosecuting cases of Disability Hate Crime states that ‘It is important to make a distinction between a disability hate crime and a crime committed against a disabled person because of his/her perceived vulnerability’ (9).
Under the social model of disability, is this distinction helpful, harmful, or simply meaningless? What is the difference between assaulting a disabled person while making ‘a derogatory or insulting comment about disabled people’ (8), and assaulting a disabled person because social structures and cultural representations have led you to believe that they cannot defend themselves or obtain justice? Should the first be regarded as a politicised crime, and the second as politically neutral?
In 1884, in the Wild West mining camp of Leadville, Colorado, a disabled man shot a nondisabled man and then pleaded self-defence. The details of this obscure and complex case meet none of the criteria outlined by the 2007 Policy, and yet the disabled participant and contemporary press reportage exposed aspects of the judicial system that marginalised and discriminated against citizens with physical impairments.
In this seminar, Dr. Tankard will use the 1884 incident to ask whether the 2007 Policy’s determination to distinguish between ‘hate crimes’ and crimes committed against vulnerable people perpetuates confusion about the real causes and meanings of disability. Dr. Tankard will argue that the most insidious and intractable social injustice may be found not in the open ‘hostility’ and name-calling classed as hate crime, but in the social structures that disable people who have impairments and render them appealing targets for crime of any kind. Ultimately, she will ask whether the CPS’s decision to politicise one set of crimes while depoliticising others illustrates the continuing failure of official and public discourses to comprehend truly the social model of disability.

The CCDS Research Forum is free of charge, but attendees are required to register by sending an email to Heather Barker dbsw AT, using “Alex Tankard” as the subject line.


Inaugural conference: Social Work and Social Care Research – Innovation, Interdisciplinarity and Impact


St Catherine’s College, Oxford

23rd-25th March 2011

The first of a major annual series, the conference will bring together researchers and research users from across Europe and beyond to present and exchange research ideas, findings, developments and applications. The inaugural conference aims to provide a forum open to all who are engaged and interested in social work and social care research, including service users. Check out their website for more information. Please note that abstracts must be submitted by midnight on 20th September 2010.

US (via Disability Law Center):

International Forum on Disability Management
Location: Los Angeles, California; Date(s): September 20-22, 2010.

2010 National Self-Advocacy Conference
Location: Kansas City, Missouri; Date(s): September 23-26, 2010.

Accessing Higher Ground – Accessible Media, Web, and Technology Conference

Location: Boulder, Colorado; Date(s): November 15-19, 2010.

Calls for Papers:

Festival of International Conferences on Caregiving, Disability, Aging, & Technology
Abstract Submission Deadline: December 1, 2010.

Special Issue of Disability Studies Quarterly on the Topic of Mediated Communication

Abstract Submission Deadline: December 15, 2010.

By 14 September, 2010.    Event Roundups, events