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FWD/Forward: FWD (feminists with disabilities) for a way forward: Page 28

Recommended Reading for Thursday, September 23

I’m still quite ill, and again, this is another pull from things I’ve been meaning to link since they were written. If there’s a theme (and my fever is a bit unclear on whether or not there’s a theme), it’s vaguely “disability-related discussions in places that are not specifically disability focused”, so please read with that in mind. Starred posts have video as well as written content.

rboylorn at Crunk Feminist Collective: This is Not a Fairy Tale: Black Women and Depression *

I have a confession to make. Despite my outward appearance and demeanor, some days it is a physical struggle to get out of bed in the morning. At least once a month I cry myself to sleep, to the point of waking up with puffy red eyes and hiccups. Dating back as far as I can remember (early childhood) my mood has always been generally melancholy, an oceanic blue. I experience bouts of depression that range from simple sadness to life re-considerations as predictably as season changes. It has become more manageable the older I get.

This feels like a confession because while I am only admitting to having moments of humanity and vulnerability, I am a black woman, and for me these realities are oftentimes seen as weaknesses. We (black women) are supposed to be strong. We (black women) are not supposed to break down.

mimi thi nguyen at Threadbared: Foot Fetish (via Penny @ Disability Studies, Temple U):

I am considering, among other things: the figure of the disabled body as a problematic metaphor; the eroticization of medical apparatus as well as the disabled body; phenomenological prosthetics that transform consciousness of self in the world; the blurring of the always precarious line between medical-surgical discourses of necessary utility and rehabilitation and “elective” aesthetics and beauty; clothing (and shoes) as armor against access and intimacy; Seoul’s pink parking spots designated for women in high heels; and finally, this quote from Rosemary Garland Thomson

Rehana Mirza at Women & Hollywood: Why I Made Hiding Divya *

My sister, Rohi, and I have long fought against cultural norms — she, as the producer, and myself as a filmmaker. When I first started writing this film, it was because of Rohi’s friend, Rashi Shyam, whose father had shot himself. No one within the South Asian community even knew how deeply he was struggling with depression. No one acknowledged his depression even after that, when he was hospitalized. So we decided to make this film, hoping to de-stigmatize mental illness and bring awareness of the issue to all cultures.

LadySquires on viz: Excuse Me, But There’s Some Prejudice On Your Face:

Let’s take stock of everything that’s wrong with that, shall we? First of all, this line of critique makes several aggressively sizest assumptions about the relationship between larger body size, intelligence, and human worth. Furthermore, it eclipses the presence of the many progressives who happen to be fat (or poor spellers). Then we have the Flickr album labelled “Teabonics,” obviously a pun on the term “ebonics,” which was used for a time to describe African American vernacular speech. In other words, this pun posits a relationship between the quality of one’s grammar or spelling, intelligence, and worth as a human being, a logic that has historically been used to exclude African Americans and other minorities from the public sphere. Given the relationshisp between illiteracy and poverty, this is also a logic that erases anyone from a lower socio-economic background.

Colleen Hodgetts at Gender Across Borders: Prosecuting HIV in Germany

Nadja Benaissa, of the popular German all-girl pop group No Angels, has been charged in criminal court with grievous bodily harm and attempted aggravated assault. Her crime? Having unprotected sex with three men without informing them of her HIV-positive status. One of the men has since become HIV-positive as well. (The other two tested negative for the virus.) Although the singer is now 28, she was tried in juvenile court because her crimes allegedly began when she was only 17, the age at which she became infected with the virus. She faced a prison sentence of between six months and 10 years, but was given a two-year suspended sentence and 300 hours of community service working with those who are HIV-positive. Has this case educated the public to take strides against infection or further increased the stigma against HIV-positive people?

In The News

US: White Americans Living Longer with Muscular Dystrophy than African-Americans “A new study shows that white men and boys are living longer with muscular dystrophy due to technological advances in recent years, but that the lives of African-American men and boys with muscular dystrophy have not been extended at the same rate.”

US: Family Mourns Loss of Disabled Son “The family said his death was unexpected and an autopsy so far did not reveal a cause.”

US: Once You Know ‘Jesse’ Your Life Will Change “People see a kid in a wheelchair, or with Down syndrome or autism or any other kind of disability and think only of limitations. They forget about love.” (Yes, this review is everything you think it is from this particular quote.)

Tell The Discovery Network that their transphobia is unacceptable

Late last week, PinkyIsTheBrain on tumblr began a campaign to bring attention to the new Investigation Discovery show “Who the Bleep Did I Marry?”, which equates someone being trans* with being a serial killer, a con artist, or a bank robber.

[Note: If you're unfamiliar with Tumblr, it can be a bit hard to navigate. "Conversations" or comments or follow-up tend to be nested.]

Transcript:

Music plays in background: “Love and marriage, love and marriage”

The video opens on a scene of a wedding in an idyllic location surrounded by trees with an arbor of flowers. The camera zooms in on the bride, who turns and says:

(Marriage officiant in the background): Join this man and this woman in holy matrimony.

First Bride: Five years from now, I’ll find out that he’s a bank robber.

The camera cuts to a different couple, walking under a portico with their backs to the camera. The bride turns to the camera and says “Serial murderer.”

A zoom in on another couple, standing like they are being photographed with their families.
Third Bride (loud whisper): Russian spy!

Another couple, cutting a cake.
Fourth Bride: Cheater. With three other wives.

Another couple, surrounded by a crowd, the bride sitting on a chair while her husband kneels to pull off her garter.
Fifth Bride: And he’s a… a she.

(Gasps)

(Kissing noise.)

We cut back to the original couple, kissing at the altar.

The closing shot is of a fancy black car driving away, trailing ribbons, tin cans, and toilet paper. ‘Who the (bleep) did I marry’ is chalked on the back window.

Marriage Officiant (sounding disgusted): Who the bleed did you marry?

Voiceover: Who the bleep did I marry? All new [episodes?], only on Investigation Discovery.

This is not just a ridiculous comparison, it’s a pretty damned offensive one that equates being trans* with being a serial killer – and once again equates being trans* with lying, which is the same argument that murderers make with they murder trans* people.

FuckYeahFTM looked up the contact information for the Discovery Network, encouraging people to get in touch and point out how bloody offensive and shitty this is:

Here’s more info about the show:

Who The Bleep? [Opens with sound & Video]

The other episodes they have include: Married to An Embezzler, The Biggest Con, Married to a Spy, Married to A Bank Robber

And they are including marrying a transman, or in their words “He is actually a She” on that level, with criminals and murderers.

Discovery doesn’t actually make it easy to contact them with concerns (I had to use a search engine to find the Contact page because it wasn’t anywhere on the Who The Bleep? page), so here’s how I did it:

32. How can I contact you with programming comments or questions?
We welcome your e-mail comments and questions, which you can send to us by clicking here.

This is the most efficient way to contact us. Comments or questions directed to anyone else at Discovery Communications will be forwarded to Viewer Relations, which means it will take us longer to follow up.

You can also write to us at:

Discovery Communications
Viewer Relations
One Discovery Place
5th Floor
Silver Spring, MD 20910

There is actually a lot of “required information” before Discovery will let you contact them. They want your age, your name, what network you’re writing about (Investigation Discovery in this case), post code, Cable provider, program time, and “information needed” (along with several other pieces of non-required information) before you can fill in your comment. I believe it’s five steps before you can tell them what your concern is, the site is very slow (at least for me), and I have no idea how accessible it is. (It does not like my computer at all)

However, reaching out and making it clear to Discovery that this stuff is not okay, that being trans* is not a crime, is not lying, and is not the equivalent of being a “Russian Spy” or a “Bank Robber”, is important, and I hope as many of you as possible will contact them and make that clear.

This is what I wrote, if you are looking for a template:

Hello Discovery Network,

I am disgusted and appalled at your decision to equate being a trans man with being a criminal, a spy, or a murderer. A trans man is not “really a she”. He is a man who married a woman. The decision of your network to “out” someone like this is especially dangerous, as many trans people are murdered for allegedly “faking” or “lying” or otherwise “cheating” their sexual partners.

I hope you will reconsider your decision to air such an exploitive, dangerous, and abusive program.

Again, here is Discovery’s Contact Form. I emailed them last week and have so far received only a form letter, but if we overwhelm them with numbers, surely they have to pay attention, right?

Recommended Reading for the Wednesday of My Discontent

I’m clearing out my backlog of awesome posts that I meant to link oh-so-long ago, but really: This stuff is always timely, and always worth reading. Also, today is the Wednesday of our discontent because I’m sick and miserable.

Disability & Protests:

Laura Hershey: Last Word on the MDA Protests (At Least For This Year):

Yes, the Telethon was bad again this year, at least the bits I watched. One thing that continues to amaze me is how big a role Jerry Lewis’ big ego plays, all the way throughout the Telethon. Here’s one late-night quotation that I bothered to write down:

“This child in the [Boston] Hospital had muscular dystrophy, and I went to see him, and he smiled when I walked into the room, and he grabbed my hand, and he said, quote, ‘I’m glad I got muscular dystrophy, because that’s why I met you.’ I rest my case. If there are naysayers out there, and if they’re uncertain as to the validity of my soul, trust me – it was a moment in time that takes me through the program in 2001 all the way through 2010.”

John R. Polito: Charleston’s 20th MDA Telethon Protest

Forget for a moment the worthiness of the MDA’s cause. Instead, reflect on the consequences of pity based fund-raising that gets viewers to dig deeper and give more by making them feel superior and different, by using differing muscular abilities and muscle disease to foster sorrow, pity and tears.

Imagine painting life with muscular dystrophy as hopeless and dark unless the MDA can raise enough money to “find a cure.” Imagine the indignity of someone handing you money on Labor Day simply because your means of mobility is a wheelchair. As Harriet often asked, what is the cure for stigma?

Bad Cripple: New Ways To Create Social Change

Perhaps it is because I teach college students but I think the only way to make effective social and political change today is through online, multimedia, and creative civil disobedience. Here I am thinking along the lines as groups such as Improv Everywhere to far more obscure though no less interesting approaches taken by cripzthecomic. I suggest those unfamiliar with Improv Everywhere take a look at their “actions”. Some are very funny, others stupid, but the mass appeal cannot be denied. As for cripthecomic he recently posted about something he called “stair bombing”. This London Ontario based person went to a local school, spread about one dollars worth of caution tape across the entrance and posted a sign “Sorry, no access Stairs out of Order”. When I saw this I laughed myself silly! All I could think of was all the “No access elevator broken” signs I have come across in my life time. I also could not help but wonder did people circle the building looking for stairs that were not out of order. I cannot help but think this caused a stir–and made people think. And this, making people think and laugh, is exactly what disability rights has failed to do lately. If we can do this, make people think and protest in a way that appeals to young people who do not separate political change from humor we might be onto something big–we might be able to make disability rights cool.

Disability & Etiquette

PatientC: The SmartAss Guide to Wheelchair Etiquette

Do not touch the damn chair! I do not know what kind of swoon overcomes the temporarily able-bodied, but they seem to forget everything they have learned about behaving in public when they come in contact with a person in a wheelchair. Do not touch the chair. Is it normally okay to mess with other people’s things without asking? No? Well, that is settled then. It is not your prop, leaning spot, or fucking toy. It is a tool, and part of a person’s personal space.

Do not touch the wheelchair user! For pete’s sake, if you would not normally casually touch a person, you do not get the right to do so when they sit down. It is okay to shake hands, the user of the chair will let you know if they do not want to or not able to do so. And I swear, if you pat me on the head, you may pull back a stump.

Static Nonsense has two Bingo cards up about Plurality. (They have provided a description of the cards as well): Dear World: BINGO! Plurality Edition #1 and Dear World: BINGO! Plurality Edition #2.

This particular one is very important to me because it shows a lot of the arguments used to invalidate the existence and identity of plural systems. They’re arguments that I have been fighting against for a long time and have forced me out of areas I had been a part of for even longer. These are the “skeptic” positions, the ones taken when people do just enough research to further justify their own prejudices. And if they’re not doing that, they’re spouting pseudo-science (fun fun).

In The News

Canada: Universal Pharacare Touted as a way to save billions [The last time I checked the comments they were pretty bad.] “But, above all, it says Canada pays too much for drugs – between 16 and 40 per cent more than other industrialized countries – in a bid to attract pharmaceutical investment.”

US: Haunted House Exploits Real Horror “While the number of people confined to institutions has dramatically declined since then, a plan to turn Pennhurst into a Halloween attraction suggests the stigma of disability has not been erased.” (Also ‘Pennhurst Asylum’ project is an abomination)

ADAPT Protests partially lock-down White House! Media Yawns, Changes Subject

I spent most of my weekend pretty much glued to Twitter following ADAPT’s latest action in Washington, DC and wondering where the media was, especially after a huge group of wheelchair users blockaded one of the White House gates and 16 people were arrested. I actually thought that the White House security arresting a group of people with disabilities would surely be the sort of thing that the media would pick up on.

Foolish me! Just like with the Arnieville protests that s.e. wrote about last week, the media is basically ignoring this four-day-long protest in Washington in favour of more important things. Despite repeated hunts by me and several other people, the only mention of the protest, “partial White House lockdown”, arrests, and march is this CNN report, which only quotes White House staff and the ADAPT webpage. Apparently CNN couldn’t even find someone from ADAPT to quote directly. (Also, the photos of the event that ADAPT have posted make it clear that CNN’s report is factually inaccurate.)

[If you would like to read NationalADAPT's tweets, a good place to start is their September 18th tweet, and just keep going from there. Their timeline includes a variety of photos taken of the event, and also will point you towards other tweeters that were there.]

ADAPT has been protesting at the White House at least once a year (sometimes twice a year) since 1997, and has been holding protests in other cities across the US for 25 years. The focus of their protests for the last 11 years has been the Olmstead Decision and the Community Choice Act.

Eleven years ago, in the Olmstead decision, the Supreme Court said that Americans with disabilities have the right to live in the most integrated setting. Yet today, states are responding to budget shortfalls by drastically cutting home and community-based services. These draconian cuts are forcing seniors and people with disabilities into nursing facilities and other institutional settings because they don’t have the services they need to remain independent.

On Sunday, ADAPT held a funeral, complete with casket, to both mourn and bring attention to the number of people with disabilities who have died in nursing homes around the country while fighting to get out of them. Monday involved marching directly on the White House. While CNN reports that 9 people handcuffed themselves to the White House gates, the ADAPT photos and Reports make it clear that far more than 9 people were involved in this action.

The Park Police had closed the sidewalk and street in front of the White House around 10 in the morning as ADAPT approached. When the police used an SUV to block ADAPT and the sidewalk, the bulk of ADAPT charged into the intersection of 15th and G Streets stopping traffic completely. The police had believed they had successfully stopped the line of activists when suddenly all the traffic was stopped and the intersection was packed with activists.

“The people they thought were meek or expendable,” said Jennifer McPhail about the police force, “were the people who had taken their power.”

While ADAPT’s actions continue today across Washington, DC, members who are required to attend court this morning after being arrested have been illegally challenged at the court to produce documentation for their service animals, and need to bring attention to ADA violations to the very people one would expect to be enforcing the ADA.

When a local Washington paper was challenged on their decision not to report anything about the ADAPT protests, their response was first that they don’t cover national protests and then, when it was pointed out this was also a local protest, that it was a matter of debate, and there were protests every day in DC. Other media sources haven’t responded to questions about their lack of coverage.

I do understand this, to a point. Certainly I’ve attended protests that have received very little media coverage, and most of that in either local papers or in grass roots news organizations. However, at what point do we start to seriously question why multi-day – or, in the case of Arnieville, multi-week – protests by people with disabilities are getting ignored? The ADAPT actions have decades of history, and touch on issues that are hot-button topics in the US right now, such as health care, funding for social programs, and the standard of living.

And yet, still, despite everything: we protest, and are ignored.

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