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	<title>FWD/Forward &#187; disability activism</title>
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	<description>FWD (feminists with disabilities) for a way forward</description>
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		<title>John Stossel Wants YOU! To Be Afraid of the ADA</title>
		<link>http://disabledfeminists.com/2010/09/07/john-stossel-wants-you-to-be-afraid-of-the-ada/</link>
		<comments>http://disabledfeminists.com/2010/09/07/john-stossel-wants-you-to-be-afraid-of-the-ada/#comments</comments>
		<pubDate>Tue, 07 Sep 2010 15:46:46 +0000</pubDate>
		<dc:creator>Anna</dc:creator>
				<category><![CDATA[Accessible Tech]]></category>
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		<guid isPermaLink="false">http://disabledfeminists.com/?p=3842</guid>
		<description><![CDATA[Not being from the US, I had this idea in my head that the Americans with Disabilities Act (ADA) must be awesome.  I mean, come on!  It's been 20 years now!  Ramps to every building, disability friendly policies, accessible washrooms in every hotel lobby!  I get all starry-eyed just thinking about it.

People with disabilities who have actually been in the US are probably either rolling their eyes or giggling at my naivety.  ]]></description>
			<content:encoded><![CDATA[<p>Not being from the US, I had this idea in my head that the Americans with Disabilities Act (ADA) must be awesome.  I mean, come on!  <a href = "http://wheeliecatholic.blogspot.com/2010/07/ordinary-day-20-years-after-passage-of.html">It&#8217;s been 20 years now!</a>  Ramps to every building, disability friendly policies, accessible washrooms in every hotel lobby!  I get all starry-eyed just thinking about it.</p>
<p>People with disabilities who have actually been in the US are probably either rolling their eyes or giggling at my naivety.  </p>
<p>In the last few weeks, I&#8217;ve read about <a href = "http://travel.usatoday.com/flights/post/2010/09/dot-fines-airtran-500000-for-violating-rules-on-disabled-travelers/111070/1">airlines being fined for not following the ADA</a>, despite repeated complaints from customers that they hadn&#8217;t been, <a href = "http://www.citytowninfo.com/career-and-education-news/articles/online-education-and-advances-in-educational-technology-are-becoming-more-of-an-obstacle-for-blind-students-10082302">continuing issues with post-secondary education, online content, and accessibility for students who are blind or otherwise vision-impaired</a> (no mention of blind or visually impaired teachers) and <a href = "http://www.insidehighered.com/news/2010/08/23/accessibility">students needing to sue in order to get attention to the fact that the new content delivery system was not accessible to them</a> (again, no mention of blind or visually impaired teachers), <a href = "http://www.wickedlocal.com/marion/topstories/x863067115/Regal-AMC-Showcase-to-add-technology-for-sight-and-hearing-impaired ">the Attorney General of Massachusetts needing to step in to demand movie theater chains provide accessible content in all their theaters</a>&#8230;  The list goes on, while &#8220;advocates&#8221; <a href = "http://haddayr.livejournal.com/636162.html">tell people with disabilities not to sue because it upsets the non-disabled when they do</a>.</p>
<p>And maybe those &#8220;advocates&#8221; have a point.  Because even though one can find example after example after example of law suits &#8211; threatened or actually carried out &#8211; before businesses, universities, and even <a href = "http://disabledfeminists.com/2010/05/25/deaf-and-hard-of-hearing-california-state-employees-sue-for-workplace-accommodations/">government offices will follow the ADA</a> and &#8220;allow&#8221; people with disabilities the &#8220;rights&#8221; they&#8217;re guaranteed in the US, <a href = "http://www.foxnews.com/opinion/2010/09/02/john-stossel-americans-disabilities-act-ada-irs-rules-labor-department-exxon/">some folks still feel the need to produce opinion pieces claiming these lawsuits are frivolous and that the people who take them on are parasites</a> (Content Warning: John Stossel).</p>
<blockquote><p>Under the ADA, Olson notes, fairness does not mean treating disabled people the same as non-disabled people. Rather it means accommodating them. In other words, the law requires that people be treated unequally.</p>
<p>The law has also unleashed a landslide of lawsuits by &#8220;professional litigants&#8221; who file a hundred suits at a time. Disabled people visit businesses to look for violations, but instead of simply asking that a violation be corrected, they partner with lawyers who (legally) extort settlement money from the businesses.</p>
<p>Some disabled people have benefited from changes effected by the ADA, but the costs are rarely accounted for. If a small business has to lay off an employee to afford the added expense of accommodating the disabled, is that a good thing &#8212; especially if, say, customers in wheelchairs are rare? Extra-wide bathroom stalls that reduce the overall number of toilets are only some of the unaccounted-for costs of the ADA. And since ADA modification requirements are triggered by renovation, the law could actually discourage businesses from making needed renovations as a way of avoiding the expense.</p></blockquote>
<p>I feel like I&#8217;ve taken apart aspects of this argument before, mostly because it seems the arguments get repeated over and over until one wants to make a <a href = "http://haddayr.livejournal.com/604179.html">Bingo Card</a> and be done with it.  But, to save me some keystrokes: <a href = "http://disabledfeminists.com/2009/12/30/lets-bust-some-myths-people-with-disabilities-just-want-to-sue-the-world-into-compliance/">Let’s Bust Some Myths: People with disabilities just want to sue the world into compliance</a> (there&#8217;s a transcript to the video linked there in the comments <sup class='footnote'><a href='#fn-3842-1' id='fnref-3842-1'>1</a></sup>), <a href = "http://disabledfeminists.com/2009/12/10/needs-are-not-special/">Needs Are Not Special</a> and <a href = "http://disabledfeminists.com/2009/11/30/accommodation-is-not-special-treatment/">Accommodation is not &#8220;Special Treatment&#8221;</a> (written by s.e.), <a href = "http://disabledfeminists.com/2010/01/10/why-being-nice-isnt-enough/">Why Being Nice Isn&#8217;t Enough</a> (which is meant to address the &#8220;just ask for accommodations!&#8221; part), <a href = "http://disabledfeminists.com/2009/11/19/bad-cripple/">&#8220;Bad Cripple&#8221;</a> &#8211; you know, the fakers who are just scamming the incredibly generous disability system for the huge cheques they can rake in &#8211; oh, and we&#8217;ve got multiple posts just here at FWD about <a href = "http://disabledfeminists.com/2010/05/01/i-cant-count-on-anybody-to-understand/">workplace accommodations being treated like a huge drama and a favour that doesn&#8217;t need to be granted rather than a right</a>, <a href = "http://disabledfeminists.com/2009/10/23/yes-it-does-make-a-difference/">people who work with actual people with disabilities assuming all people on prescription drugs are dangerous addicts</a>, and <a href = "http://disabledfeminists.com/2010/01/28/the-opposite-of-disabled-is-not-employable/">how the opposite of disabled is not employable</a>.</p>
<p>I think my favourite bit of the quote above, though, is the &#8220;If a small business has to lay off an employee to afford the added expense of accommodating the disabled, is that a good thing — especially if, say, customers in wheelchairs are rare?&#8221;  I love that sentence, I want to cross stitch it on a little sampler and hang it up on my wall.</p>
<p>A Very Short List Of Businesses You Are Unlikely To See Wheelchair Users In:</p>
<p>1. Ones that don&#8217;t have a ramp to allow access to wheelchair users.</p>
<p>Seriously, that&#8217;s the basic criteria for shopping in this one-wheelchair-user household.  We choose our restaurants, our coffee shops, our bookstores, our yarn stores, our sex toy shops, our grocery stores, our housing, our favourite tea place all on whether or not the shops themselves <em>allow wheelchair users to enter</em>.  We don&#8217;t even go to one of the malls in the city because half the shops are too crowded to allow wheelchair user, so yes, John Stossel, if your business <em>doesn&#8217;t accommodate wheelchair users</em> chances are you don&#8217;t have many customers who <em>are wheelchair users</em>.</p>
<p>(Gentle reader, I cannot believe I just typed that sentence 20 years after the ADA passed into law.)</p>
<p>Honestly, that John Stossel is paid actual money to write opinion pieces that amount to &#8220;cripples are just sue-happy freaks, the ADA is why the Exxon oil spill happened, and service animals like snakes are ruining it for everyone else&#8221; &#8211; especially while <a href = "http://disabledfeminists.com/2010/06/14/you-cant-legislate-ableism-away/">service animals are constantly being turned away illegally</a> &#8211; is especially irritating when we&#8217;re still fighting for something as simple as <a href = "http://disabledfeminists.com/2010/05/17/abuse-of-intellectually-disabled-workers-at-iowa-meatpacking-plant/">the right to be paid minimum wage for our work</a>.
<div class='footnotes'>
<div class='footnotedivider'></div>
<ol>
<li id='fn-3842-1'>Back when I wrote this I felt like I was making a very witty point by not &#8220;choosing&#8221; to be &#8220;nice&#8221; and putting the transcript up &#8211; if you wait for people to be &#8220;nice&#8221; then you wait a long time!  I wouldn&#8217;t do that now because I think it&#8217;s shitty to make people sit around and wait so I can score some sort of political point. <span class='footnotereverse'><a href='#fnref-3842-1'>&#8617;</a></span></li>
</ol>
</div>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>“We’re not his kids, we’re adults, and we’re our own people”: The Trouble with the Jerry Lewis Telethon</title>
		<link>http://disabledfeminists.com/2010/09/06/%e2%80%9cwe%e2%80%99re-not-his-kids-we%e2%80%99re-adults-and-we%e2%80%99re-our-own-people%e2%80%9d-the-trouble-with-the-jerry-lewis-telethon/</link>
		<comments>http://disabledfeminists.com/2010/09/06/%e2%80%9cwe%e2%80%99re-not-his-kids-we%e2%80%99re-adults-and-we%e2%80%99re-our-own-people%e2%80%9d-the-trouble-with-the-jerry-lewis-telethon/#comments</comments>
		<pubDate>Mon, 06 Sep 2010 14:20:20 +0000</pubDate>
		<dc:creator>Anna</dc:creator>
				<category><![CDATA[activism]]></category>
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		<guid isPermaLink="false">http://disabledfeminists.com/?p=3836</guid>
		<description><![CDATA[On the surface this probably looks like a good thing, but digging a bit deeper: For many people, this is one of the few times they'll see images of people with disabilities on their t.v. screen (and from a noted authority and beloved celebrity), and the entire thing is one drawn out pity parade.]]></description>
			<content:encoded><![CDATA[<p>Today is Labour Day in Canada and the US, which for many people means the end of the Labour Day Weekend Jerry Lewis Telethon. <a href="http://en.wikipedia.org/wiki/Jerry_Lewis_Telethon">Wikipedia conveniently describes the Jerry Lewis Telethon</a> so I don&#8217;t have to:</p>
<blockquote><p>The Jerry Lewis MDA Telethon (also known as The Jerry Lewis MDA Labor Day Telethon and The Jerry Lewis Stars Across America MDA Labor Day Telethon) is hosted by actor and comedian, Jerry Lewis to raise money for the Muscular Dystrophy Association (MDA). It has been held annually since 1966. As of 2009, the telethon had raised $2.45 billion since its inception. It is held on Labor Day weekend, starting on the Sunday evening preceding Labor Day and continuing until late Monday afternoon, syndicated to approximately 190 television stations throughout the United States.</p></blockquote>
<p>On the surface this probably looks like a good thing, but digging a bit deeper: For many people, this is one of the few times they&#8217;ll see images of people with disabilities on their t.v. screen (and from a noted authority and beloved celebrity), and the entire thing is one drawn out pity parade.</p>
<p>Since 1991, protesters, including Laura Hershey and Mike Irvine, have tried to raise awareness about the way that the Jerry Lewis Telethon, and Jerry Lewis himself, treat actual <em>adults</em> with disability, and have discussed how these sorts of pity parades affect the public perceptions of people with disability.  <a href = "http://www.rabble.ca/news/nutty-profess-ion">In 2001, Hershey wrote</a>:</p>
<blockquote><p>As we in the disability-rights movement keep trying to explain, our biggest problems come not from our physical conditions, but from a society that fails to accommodate us. Lewis&#8217;s telethon plays up the problems, without suggesting their sources or solutions. For instance, those sappy vignettes will make much of an &#8220;afflicted&#8221; person&#8217;s inability to wash his own hair, or get herself to the toilet, without any discussion of the urgent need for publicly funded personal assistance, or of the problems posed by the architectural barriers designed right into the layout of most private homes.<br />
Trouble also arises from the fact that thousands of families dealing with disabilities in the U.S. and Canada are denied adequate medical care and equipment &#8211; necessities which should be basic human rights, not handouts accompanied by a drum roll and tally.</p></blockquote>
<p><a href = "http://bitchmagazine.org/post/were-not-looking-for-pity-the-trouble-with-poster-children">I&#8217;ve written about my disdain for both the Telethon and for the praises Lewis gets despite referring to people with disabilities as &#8220;half-persons&#8221; who should &#8220;stay at home&#8221;</a>, and I think this is still an idea that people find very challenging.  It&#8217;s easier to view these sorts of fund raising telethons as doing Good Things.  They are supposed to, after all.  That it&#8217;s still leaving people with disabilities begging for basic rights, access, and assistance that shouldn&#8217;t be necessary in this age of the Americans with Disabilities Act (ADA) and <a href = "http://www.aoda.ca/?page_id=8">Accessibility for Ontarioans with Disabilities Act</a> (AOWD) isn&#8217;t comfortable to think about.  That the main use of these funds is for finding a &#8220;cure&#8221; &#8211; by which they mean a pre-natal test &#8211; rather than assisting families in purchasing wheelchairs or renovating a home to make it wheelchair accessible, or <a href = "http://leavingevidence.wordpress.com/2010/09/03/528/">in assisting people with disabilities in getting support during or immediately after a move</a> seems to surprise people.  Your money isn&#8217;t going to help actual people with disabilities. It&#8217;s going to help the Muscular Dystrophy Association, and to aid Jerry Lewis in his continued insistence that he&#8217;s a humanitarian.  These are not really the same things.</p>
<p>Many people with disabilities have written about their perceptions of these telethons, and the damage they do, as well as the issues with giving a humanitarian award to a man who treats actual people with disabilities with such disdain.  Hershey&#8217;s most recent columns are <a href = "http://www.laurahershey.com/?p=375">Speaking Out against the MDA Telethon</a> and <a href = "http://www.laurahershey.com/?p=392">Laura&#8217;s Labor Day Weekend Column</a>.  Liz Henry wrote last year <a href = "http://liz-henry.blogspot.com/2009/08/dose-of-morning-rage.html">about her dose of morning rage</a> regarding the telethon, and there are many links there that highlight the issues around Jerry&#8217;s Kids.  There&#8217;s also the 2007 Blogswarm, <a href = "http://karasheridan.com/?p=164">Protest Pity</a>, which features more than 35 blog posts about the Telethon and the Protests.  You can also read <a href = "http://www.cripcommentary.com/frompost.html">From Poster Child to Protester</a>, which may be the first thing I ever read about the protests and the Issues with Jerry Lewis.</p>
<p>Sometimes, though, the best way to combat the pity parade is to show people with disabilities talking about their lives, and their lived experience.  Laura Hershey made this video as part of the &#8220;It&#8217;s Our Story&#8221; Project.  Transcript follows:</p>
<p><object width="640" height="385"><param name="movie" value="http://www.youtube-nocookie.com/v/o_OzeFshsQY?fs=1&amp;hl=en_US&amp;rel=0"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube-nocookie.com/v/o_OzeFshsQY?fs=1&amp;hl=en_US&amp;rel=0" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="640" height="385"></embed></object></p>
<p>Transcript:</p>
<blockquote><p>The &#8216;It&#8217;s Our Story&#8217; titles roll while tinkly piano music plays. White symbols of sign language and a person in a wheelchair flash against the background, which is suggestive of a US flag, with the continental United States in the blue square instead of the usual 50 stars.</p>
<p>The video opens on Laura Hershey, a powerchair user wearing a nasal cannula and glasses.  The title of the video is &#8220;Jerry&#8217;s Kids&#8221;, and I believe she&#8217;s referring to the group &#8220;Jerry&#8217;s Orphans&#8221;.</p>
<p>Laura: That&#8217;s actually a group that was started in Chicago by Mike Irvin, Chris Matthews, and several other people.  And I worked with them a lot organziing these protests nationally.  I think what the name says is that Jerry Lewis doesn&#8217;t have the right to claim us as his quote &#8220;kids&#8221;, especially as he&#8217;s not interested in our perspective.  He completely trashes people who question or challenge the telethon approach.  He&#8217;s attacked us in the press, calling us ungrateful, claiming that he bought us our wheelchairs which is, you know, completely untrue.  </p>
<p>You know, whatever ego trip he gets thinking of himself as our saviour, or our daddy, or whatever it is he thinks, we reject that.  </p>
<p>We&#8217;re not his kids, we&#8217;re adults, and we&#8217;re our own people.  We don&#8217;t belong to him.</p></blockquote>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>Recommended Reading for 06 September 2010</title>
		<link>http://disabledfeminists.com/2010/09/06/recommended-reading-for-06-september-2010/</link>
		<comments>http://disabledfeminists.com/2010/09/06/recommended-reading-for-06-september-2010/#comments</comments>
		<pubDate>Mon, 06 Sep 2010 11:11:24 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[accessibility]]></category>
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		<guid isPermaLink="false">http://disabledfeminists.com/?p=3840</guid>
		<description><![CDATA[Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I [...]]]></description>
			<content:encoded><![CDATA[<p><strong><em>Warning: Offsite links are not safe spaces. Articles and comments in the  links may contain ableist, sexist, and other -ist language and ideas of  varying intensity. Opinions expressed in the articles may not reflect  the opinions held by the compiler of the post and links are provided as  topics of interest and exploration only. I attempt to provide extra  warnings for material like extreme violence/rape; however, your  triggers/issues may vary, so please read with care.</em></strong></p>
<p><a href="http://galtmuseum.blogspot.com/2010/09/making-difference.html">Galt Museum Blog: Making a Difference</a> (Thanks to Penny from Disability Studies at Temple U. for the link!)</p>
<blockquote><p>As I called her earlier this week to book a class, she related the following story to me.<br />
For  years, Blanche has told students about her limited vision and says that  if they see her out and about in the community, they should come up to  her and say oki (Blackfoot for “hi) and introduce themselves because she  won’t be able to see them. In August this year Blanche was at Wal-Mart  shopping with her son and grandson. As she was sitting there, a young  girl walked past her, stopped and then walked towards her with her  hand-outstretched. When she got in front of Blanche she said “oki” and  then “oki, Museum Lady.” She was with her young brother and turned to  him and said “this lady works at the Galt Museum. You and me and Mom and  Dad should go and visit her there one day.”</p></blockquote>
<p><a href="http://www.publicnewsservice.org/index.php?/content/article/15740-1">Public News Service: Disability Activists: Dump the Pity</a></p>
<blockquote><p>For 60 years, Jerry Lewis has hosted the <em>Muscular Dystrophy Association</em> annual Labor Day telethon. And for about 20 years, one of &#8220;Jerry&#8217;s  Kids&#8221; has been at odds with him over the way the money is raised.</p>
<p>Mike Ervin appeared on the telethon when he was six years old. Now he&#8217;s a  writer and disability rights activist who speaks out against the  telethon because he claims it promotes stereotypes of people with  disabilities as objects of pity.</p></blockquote>
<p><a href="http://www.deafinitelygirly.com/2010/09/things-my-ears-do-instead-of-hear.html">Deafinitely Girly: Things my ears do instead of hear!</a></p>
<blockquote><p>Isn’t it amazing how my ears are so utterly useless at their originally  intended purpose, and instead able to tell me when someone loves or  hates me, and when danger is nearby?</p>
<p>Did they miss the memo about actually having to hear, too?</p></blockquote>
<p><a href="http://pipecleanerdreams.blogspot.com/2010/08/special-exposure-wednesday_25.html">Pipecleaner Dreams: Special Exposure Wednesdays</a></p>
<blockquote><p>Well, for many reasons, Ronnie does not like DeafTalk at all.  But, yet  another interesting turn of events happened at the doctor&#8217;s office.   Ronnie was on a standard size exam table.  The DeafTalk machine was  positioned in front of him.  Only problem &#8211; the interpreter could only  see Ronnie&#8217;s knees.</p></blockquote>
<p><a href="http://www.vvdailypress.com/news/immediate-21147-says-debilitating.html">VictorVille Daily Press: Change in ADA regulations concerns local service-animal owners</a></p>
<blockquote><p>That will all change next spring when service rats, cats, birds and some  others will be disallowed under ADA amendments recently signed by U.S.  Attorney General Eric Holder. The new rules will allow canines to  continue to be used as seeing eye dogs and to alert seizures, but dogs  will not be allowed to be used as service animals for emotional support.  In recent years, dogs have helped bring normalcy to children with  autism, soldiers returning from war with post traumatic stress disorder  and more.</p></blockquote>
<p>If you’re on Delicious, feel free to tag entries ‘disfem’ or  ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link  recommendations can also be emailed to recreading at disabledfeminists  dot com. Please note if you would like to be credited, and under what  name/site.</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<slash:comments>5</slash:comments>
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		<title>Pondering Illicit Usage of Accessible Spaces…</title>
		<link>http://disabledfeminists.com/2010/09/04/pondering-illicit-usage-of-accessible-spaces%e2%80%a6/</link>
		<comments>http://disabledfeminists.com/2010/09/04/pondering-illicit-usage-of-accessible-spaces%e2%80%a6/#comments</comments>
		<pubDate>Sat, 04 Sep 2010 12:06:14 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[accessibility]]></category>
		<category><![CDATA[disability activism]]></category>
		<category><![CDATA[intersectionality]]></category>
		<category><![CDATA[oyd rants]]></category>
		<category><![CDATA[policy]]></category>
		<category><![CDATA[social attitudes]]></category>
		<category><![CDATA[ableism]]></category>
		<category><![CDATA[accessible parking]]></category>
		<category><![CDATA[barriers to access]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[problematic attitudes]]></category>
		<category><![CDATA[social treatment]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3815</guid>
		<description><![CDATA[I was driving back from dropping Kid off at school today, and I noticed that a delivery truck at the public library was using the accessible parking and accessible ramp as parking and loading dock space&#8230; We have been having some conversations about accessible parking spaces and the policing of those spaces, and the blocking [...]]]></description>
			<content:encoded><![CDATA[<p>I was driving back from dropping Kid off at school today, and I noticed that a delivery truck at the public library was using the accessible parking and accessible ramp as parking and loading dock space&#8230;</p>
<p>We have been having some conversations about accessible parking spaces and the <a href="http://disabledfeminists.com/2010/08/27/dear-imprudence-who-appointed-you-the-parking-police/">policing of those spaces</a>, and the <a href="http://disabledfeminists.com/2010/08/26/open-letter-disabled-parking/">blocking of those spaces and/or using of those spaces</a> by persons who do not need them or have the right to them.</p>
<p>What thoughts, have you, gentle readers, on this particular use of these spaces? I have seen this in other places around our base, though I can&#8217;t recall if I have seen such a thing in other non-base places, because I have just begun to notice them (perhaps this is a product of some kind of privilege of mine). Even if it is early morning, should delivery vehicles be taking advantage of these spaces like this?</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>The “Gifted” — Who Needs Assistance When You Just Work Hard Enough?</title>
		<link>http://disabledfeminists.com/2010/08/31/the-%e2%80%9cgifted%e2%80%9d-%e2%80%94-who-needs-assistance-when-you-just-work-hard-enough/</link>
		<comments>http://disabledfeminists.com/2010/08/31/the-%e2%80%9cgifted%e2%80%9d-%e2%80%94-who-needs-assistance-when-you-just-work-hard-enough/#comments</comments>
		<pubDate>Tue, 31 Aug 2010 22:15:31 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[books]]></category>
		<category><![CDATA[disability activism]]></category>
		<category><![CDATA[intersectionality]]></category>
		<category><![CDATA[oyd rants]]></category>
		<category><![CDATA[representations]]></category>
		<category><![CDATA[ableism]]></category>
		<category><![CDATA[Adie]]></category>
		<category><![CDATA[Ayn Rand Lite]]></category>
		<category><![CDATA[blind characters]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[media and pop culture]]></category>
		<category><![CDATA[myths and misconceptions]]></category>
		<category><![CDATA[Objectivsm]]></category>
		<category><![CDATA[OYD Book Reviews]]></category>
		<category><![CDATA[pop culture]]></category>
		<category><![CDATA[problematic attitudes]]></category>
		<category><![CDATA[Sword of Truth series]]></category>
		<category><![CDATA[Terry Goodkind]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3810</guid>
		<description><![CDATA[Terry Goodkind&#8217;s Sword of Truth series, recommended to me by The Guy, my partner of several years now, whom I thought loved me, seemed innocuous enough. I thought it a simple fantasy series woven with a love story (&#8220;woven&#8221; here should read more like a nice cudgel to the head), which I was looking for. [...]]]></description>
			<content:encoded><![CDATA[<p>Terry Goodkind&#8217;s <em>Sword of Truth</em> series, recommended to me by The Guy, my partner of several years now, whom I thought loved me, seemed innocuous enough. I thought it a simple fantasy series woven with a love story (&#8220;woven&#8221; here should read more like a nice cudgel to the head), which I was looking for. I thought it would be a nice epic fantasy, like <em>Kushiel&#8217;s Dart</em>, or something to sate my need for a good run of fantasy novels.</p>
<p>I however, didn&#8217;t heed Anna&#8217;s warning, when she asked me whywhyWHY would someone who loves me recommend a book series to me where a chicken is written in as EVIL personified (this is actually a simplification of the storyline, but it is true, nonetheless&#8230;), and as it turns out I think Anna may love me more. Who knows. Maybe I was hooked by the way the first two books ended with just the most <em>convenient</em> and <em>precious</em> heterocentric endings ever (there is one brief nod in the fourth book to homosexuality that seems it could be positive, but then it ends sadly, and seven books later there is no happy ending for this character).</p>
<p>The <em>Sword of Truth</em> series, however, does have many good qualities. It has several well written <a href="http://randombabble.com/2010/07/22/kahlan/">female characters</a> whom I fell in love with, but, as I will write more about at my home blog, all seem to be written to be smitten with and to be in the service of the central protagonist, Richard Cypher/Rahl. They simply fall all over themselves to serve him, to love him, and to swear their lives to protect him with everything they have. Even if they were once evil or if they have tendencies to be evil (it&#8217;s just their way, you see, some women can&#8217;t help it), they somehow over come it because his presence is enough to ignite a spark to make them want to fight for <span style="text-decoration: line-through;">their own lives</span> him. I mean his cause.</p>
<p>But the <em>Sword of Truth</em> series isn&#8217;t just an innocent fantasy series. It isn&#8217;t even a series filled with tropes about women characters that I love that happens to beat me upside the head with <a href="http://randombabble.com/2010/06/26/the-cosmically-forbidden-romance/">forbidden romance</a> and a love forbidden to procreate. It is a cautionary tale that warns of the evils of allowing communism to take over your life. This strange story of caring for your fellow man is bent into a monolithic monster of a machination that kills everything it touches. It simply asserts that you must live in misery for that is the only way that everyone can possibly <span style="text-decoration: line-through;">meet the needs of every human</span> evil, and makes the horrible and incorrect logical leap that religion is somehow tied to it, that this life is meaningless and that goodness can only be obtained in the hereafter. I can&#8217;t say I disagree with the atheistic themes, but really, a horse can only be beaten so many times before I glaze over and gloss over entire pages of exposition and soliloquy.</p>
<p>To be righteous in this world that Mr. Goodkind has created you must be willing and &#8212; key word alert here &#8212; able to fight for your own life and protect it with everything you have, up to and including killing those who would take it from you. With sword, with your bare hands, with magic if you are &#8230; gifted.</p>
<p>Yes, &#8220;gifted&#8221;. Being born with the ability to use and be touched by magic is considered a gift, which is <a href="http://bitchmagazine.org/post/the-transcontinental-disability-choir-a-wizard-did-it">not an uncommon theme</a> in <a href="http://disabledfeminists.com/2010/04/05/let-me-tell-you-all-about-my-disability-super-powers/">fantasy fiction and pop culture</a>, but Goodkind takes it a step further, it seems to me. It is almost as though magic is another sense, an ability above and beyond that makes up for any other sense you may lack. Because if there is one thing that is all but lacking from this world that Mr. Goodkind has created, it is disability on the side of the bringers of good.</p>
<p>Even Adie, the &#8220;bone woman&#8221; (who oddly enough, having the speech pattern &#8220;I be&#8221; in the books*, <a href="http://images1.wikia.nocookie.net/__cb20081106073234/sot/images/thumb/e/e2/Adie2.jpg/250px-Adie2.jpg">is depicted as a non-white woman</a> in the television series equivalent <em>Legend of the Seeker </em>even though that is now how she is described, but she is All Exotic! with Bones!), who had her vision stripped from her in her youth by a group of anti-magic zealots known as The Blood of the Fold by pouring bleach in her eyes, has learned to see. Her &#8220;gift&#8221; has enabled her to see. In fact, her vision, as is noted many times in the books, is often better than those who must rely on their &#8216;non-gifted&#8217; vision.</p>
<p>I am going to drop the quotes from here on out, because it is getting tedious, and I think you get the point.</p>
<p>Adie never had to learn how to access the world around her. She never had to learn how to stumble around and feel with her other senses. She did, however, have to learn how to see with her magic, which made up for the vision which wasn&#8217;t there. This gave her the ability to be worthy, in the world that Goodkind created, to be able to fight for her life, and be allowed to live. People should just try harder, as Adie did. If you can&#8217;t get by in life, it is your own fault, and you are not contributing properly to the artwork that is the nobility of man!</p>
<p>You can understand why I was having a problem here.</p>
<p>Normally with pop-culture and fiction, there aren&#8217;t really absolutes, and I admit that there are multiple ways of interpreting things, but Goodkind has done a unique thing here: he has created a world of moral absolutes. This is right and this other things is wrong. What Richard Rahl (the protagonist) believes is right, and what he is against is wrong. There is clear good and evil, and the lines are rarely blurred. This use of a gift of magic allows people who otherwise have flaws to remain on the correct side of Richards moral compass. Richard, and Goodkind himself, could be described as <a href="http://en.wikipedia.org/wiki/Objectivism_%28Ayn_Rand%29">Objectivists</a>, which I think would clear up my frustrations. It should have set off alarms as soon as the philosophy lessons started to seep into my fantasy novel. Except OOPS! Mr. Goodkind says he is not a fantasy writer, merely a fiction writer he says (fuck you, fans!), so I have been wrong all along&#8230;</p>
<p>But Adie couldn&#8217;t be useful to the story, she couldn&#8217;t be the powerful and badass sorceress that she is depicted as being if she was indeed blind, amirite? Because if she was wasting all of her time trying to adapt to a world that was refusing to make accommodations for her she wouldn&#8217;t be able to fight for her individual life, or for Richard&#8217;s noble cause of <span style="text-decoration: line-through;">laissez faire Capitalism</span> freedom for all mankind (and I guess some of those womenfolk too).</p>
<p>The only time that her magical eyesight didn&#8217;t work was when she was faced with a woman, Jennsen, who was born without even a spark of the gift, called a &#8220;pristinely ungifted&#8221; person. She can not be touched by or interact with magic. Turns out, that Jennsen is Richard&#8217;s half sister, and her being ungifted is the bi-product of Richard&#8217;s gift. There can be only one! She has to be ungifted so that he can be gifted. It is very complicated, and there is an entire race of people on whom Adie&#8217;s magical eyesight doesn&#8217;t work! And Jennsen had to help Richard rally them up, because they were blind (oh the tropes and ableist language abound!) to evil, and their pacifist asses wouldn&#8217;t raise a finger to fight for their artwork of individual self interest.</p>
<p>I was just frustrated beyond all belief.</p>
<p>So if you want a nice stew of -ism and fuckery passed off as philosophy and disguised with characters that you will certainly love, I recommend Goodkind&#8217;s <em>Sword of Truth</em> series. All eleven (soon to be twelve!) books of it!</p>
<p>EDIT: 01 Sept: I forgot a couple of links when I finished this post. Apologies!</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>Signal Boost: Submissions Requested for the September Disability Blog Carnival</title>
		<link>http://disabledfeminists.com/2010/08/29/signal-boost-submissions-requested-for-the-september-disability-blog-carnival/</link>
		<comments>http://disabledfeminists.com/2010/08/29/signal-boost-submissions-requested-for-the-september-disability-blog-carnival/#comments</comments>
		<pubDate>Sun, 29 Aug 2010 17:55:45 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[Event Roundups]]></category>
		<category><![CDATA[disability activism]]></category>
		<category><![CDATA[identity]]></category>
		<category><![CDATA[intersectionality]]></category>
		<category><![CDATA[signal boost]]></category>
		<category><![CDATA[blog carnival]]></category>
		<category><![CDATA[disability blog carnival]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3799</guid>
		<description><![CDATA[Astrid, of Astrid&#8217;s Journal, has agreed after much consideration to host the September edition of the Disability Blog Carnival, and we at FWD/Forward are enthusiastic to support that decision! Astrid has chosen the theme &#8220;Identity&#8221;: Think of it as broadly as you want. Posts relating to transforming identities, are of course especially welcome, as they [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://astridvanwoerkom.wordpress.com/2010/08/22/disability-blog-carnival-announcement/">Astrid, of Astrid&#8217;s Journal, has agreed after much consideration to host the September edition of the Disability Blog Carnival</a>, and we at FWD/Forward are enthusiastic to support that decision!</p>
<p>Astrid has chosen the theme &#8220;Identity&#8221;:</p>
<blockquote><p>Think of it as broadly as you want. Posts relating to transforming  identities, are of course especially welcome, as they honor both themes.  Just a reminder that, even though this is a disability blog carnival,  we honor intersectionality, so racial, ethnic, gender, sexual and any  other type of identities also count, as long as the post is somewhat  relevant to disability.</p>
<p>Comments can be submitted preferably here or else at the <a href="http://disstud.blogspot.com/" target="blank">Disability Studies, Temple U. blog</a>.  The deadline for submissions will be Tuesday night, September 21 –  Tuesday night your time, so don’t worry about my living in Europe. I  hope to post the carnival on Friday, September 24 – whenever it suits  me, my time.</p></blockquote>
<p>We hope you will consider submitting something for the Carnival. Remember, the theme is a way to get you started, and we hope that you will interpret it to how it applies to your own situation, keeping the general spirit of intersectionality in mind.</p>
<p>Again, thanks to Astrid for taking this on, because without volunteers, there would be no Carnival!</p>
<p>Be sure, if you haven&#8217;t already, to check out <a href="http://brilliantmindbrokenbody.wordpress.com/2010/08/22/disability-blog-carnival/">the August edition of The Disability Carnival at Brilliant Mind, Broken Body, hosted by Kali</a>.</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>Signal Boost: The August Edition of The Disability Blog Carnival is Up at Brilliant Mind, Broken Body</title>
		<link>http://disabledfeminists.com/2010/08/29/signal-boost-the-august-edition-of-the-disability-blog-carnival-is-up-at-brilliant-mind-broken-body/</link>
		<comments>http://disabledfeminists.com/2010/08/29/signal-boost-the-august-edition-of-the-disability-blog-carnival-is-up-at-brilliant-mind-broken-body/#comments</comments>
		<pubDate>Sun, 29 Aug 2010 07:45:02 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[Event Roundups]]></category>
		<category><![CDATA[disability activism]]></category>
		<category><![CDATA[signal boost]]></category>
		<category><![CDATA[blog carnival]]></category>
		<category><![CDATA[disability blog carnival]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3798</guid>
		<description><![CDATA[Reader Astrid informs me that The Disability Blog Carnival is up and on the go for August at Brilliant Mind, Broken Body, courtesy of Kali. This Month&#8217;s theme is &#8220;distance&#8221;: I think distance is an interesting concept because we use the same word to mean so many different things – the space between ideas, the [...]]]></description>
			<content:encoded><![CDATA[<p>Reader <a href="http://astridvanwoerkom.wordpress.com/">Astrid</a> informs me that <a href="http://brilliantmindbrokenbody.wordpress.com/2010/08/22/disability-blog-carnival/">The Disability Blog Carnival is up and on the go for August at Brilliant Mind, Broken Body</a>, courtesy of Kali.</p>
<p>This Month&#8217;s theme is &#8220;distance&#8221;:</p>
<blockquote><p>I think distance is an interesting concept because we use the same word  to mean so many different things – the space between ideas, the space  between here and there, the space between you and me, the space between  us and them, the space passage of time creates, the difference between  where we started and where we have gotten to, the space between  understanding and not. Intentional spaces, ideological spaces, physical  spaces, metaphorical spaces. It’s a word that I think sometimes  encompasses much of the disability experience, because there always seem  to be more distances we have to deal with.</p></blockquote>
<p>Please swing on over to <a href="http://brilliantmindbrokenbody.wordpress.com/2010/08/22/disability-blog-carnival/">Brilliant Mind, Broken Body</a> and give Kali some love, some support, some kudos, and maybe an Internet Tradition for the hard work.</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>Recommended Reading for 23 August 2010</title>
		<link>http://disabledfeminists.com/2010/08/23/recommended-reading-for-23-august-2010/</link>
		<comments>http://disabledfeminists.com/2010/08/23/recommended-reading-for-23-august-2010/#comments</comments>
		<pubDate>Mon, 23 Aug 2010 11:11:46 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[disability activism]]></category>
		<category><![CDATA[recommended reading]]></category>
		<category><![CDATA[ableism]]></category>
		<category><![CDATA[accessibility]]></category>
		<category><![CDATA[barriers to access]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[intersectionality]]></category>
		<category><![CDATA[mental health]]></category>
		<category><![CDATA[mental illness]]></category>
		<category><![CDATA[military]]></category>
		<category><![CDATA[privilege]]></category>
		<category><![CDATA[problematic attitudes]]></category>
		<category><![CDATA[social treatment]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3771</guid>
		<description><![CDATA[Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I [...]]]></description>
			<content:encoded><![CDATA[<p><em><strong>Warning: Offsite links are not safe spaces. Articles and comments in the  links may contain ableist, sexist, and other -ist language and ideas of  varying intensity. Opinions expressed in the articles may not reflect  the opinions held by the compiler of the post and links are provided as  topics of interest and exploration only. I attempt to provide extra  warnings for material like extreme violence/rape; however, your  triggers/issues may vary, so please read with care.</strong></em></p>
<p><a href="http://www.guardian.co.uk/commentisfree/2010/aug/20/mental-health">The Guardian&#8217;s Comment is Free: Mental disability, state power, and the capacity to decide</a></p>
<blockquote><p>The judge faced a hard decision and his judgment shows the traces of his  ambivalence. In the end, he ruled that Mrs A lacked the capacity to  make decisions about contraception, citing as the crucial factor &#8220;the  uneven relationship between Mr and Mrs A&#8221;. Although Mrs A herself  indicated in court that she did not want contraceptive devices, the  judge found that this decision &#8220;was not of her own free will&#8221;. But at  the same time, he refused to grant the local authority the power it  sought to administer contraceptive devices involuntarily. In practice,  granting such a power would have authorised the police to enter her  residence, sedate her if necessary and remove her to hospital for  conceptive measures.</p></blockquote>
<p><a href="http://www.chicagotribune.com/news/education/ct-met-u-of-i-disability-dorm-20100818,0,2529515,full.story">Chicago Tribune: University of Illinois opens new dorm for students with disabilities</a> (Thank you to Lassarina for the link!)</p>
<blockquote><p>As much as moving into Nugent Hall was a remarkable accomplishment for  Rozema, it also was momentous for the U. of I. Already recognized as a  front-runner in disability services for students, the U. of I. dorm will  allow students with the most severe disabilities — all use motorized  wheelchairs or scooters — to get the personalized care they need while  being integrated with typical students.</p></blockquote>
<p><a href="http://www.wusa9.com/news/local/story.aspx?storyid=108185&amp;catid=189">WUSA9.com: Hearing Impaired Woman With Service Dog Told To Leave Mall</a></p>
<blockquote><p>&#8220;He said dogs aren&#8217;t allowed in the mall.&#8221; Denise says she never  before had a problem bringing her service dog Chloe, into the mall.</p>
<p>On Monday, August 9, &#8220;a security guard pulled up in his car and stopped and told us we couldn&#8217;t bring a dog in the mall.&#8221;</p>
<p>Denise has a cochlear implant but says she still had a hard time  hearing the guard. She says she tried to explain the law and proceeded  inside to shop. About 30 minutes later, she was approached again by the  guard.  He &#8220;demanded that we leave.&#8221;</p>
<p>On Saturday, it happened again in front of her daughter and her husband, Terry.</p></blockquote>
<p><a href="http://www.ctv.ca/CTVNews/Canada/20100728/vancouver-police-officer-reassigned-100728/">CTV News: B.C. cop who shoved disabled woman gets new assignment</a></p>
<blockquote><p>VANCOUVER  — A Vancouver police officer caught on  video pushing a disabled woman down to the ground in one of the  country&#8217;s poorest neighbourhoods has been reassigned.</p>
<p>The 65-second video was uploaded to the web last week and appears to  show a woman trying to weave her way through three male officers on the  city&#8217;s Downtown Eastside.</p>
<p>One of the officers then shoves the woman to the ground, before walking away. The two other officers do not intervene.</p></blockquote>
<p><a href="http://www.change.org/united_service_organizations">Via Change.org and from the USO: A petition to support wounded warriors as they return from war</a></p>
<blockquote><p>The United States is a nation at war. Thanks to improvements in  battlefield medicine and the use of body armor, men and women are  surviving wounds that would have been fatal in earlier wars. While they  have survived, their severe injuries have turned their lives&#8211;and the  lives of their families&#8211;upside down, sometimes involving many  surgeries, years of therapy and a lifetime of support.</p></blockquote>
<p>If you’re on Delicious, feel free to tag entries ‘disfem’ or  ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link  recommendations can also be emailed to recreading at disabledfeminists  dot com. Please note if you would like to be credited, and under what  name/site.</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>On Centring Caregivers in Disability Discourse</title>
		<link>http://disabledfeminists.com/2010/08/12/on-centring-caregivers-in-disability-discourse/</link>
		<comments>http://disabledfeminists.com/2010/08/12/on-centring-caregivers-in-disability-discourse/#comments</comments>
		<pubDate>Thu, 12 Aug 2010 00:00:22 +0000</pubDate>
		<dc:creator>Chally</dc:creator>
				<category><![CDATA[disability activism]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[social attitudes]]></category>
		<category><![CDATA[care]]></category>
		<category><![CDATA[caregiving]]></category>
		<category><![CDATA[carers]]></category>
		<category><![CDATA[parenting]]></category>
		<category><![CDATA[privilege]]></category>
		<category><![CDATA[problematic attitudes]]></category>
		<category><![CDATA[rethinking social norms]]></category>
		<category><![CDATA[social treatment]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3717</guid>
		<description><![CDATA[It&#8217;s really off-putting when a group of disabled people are trying to have a conversation and a caregiver butts in with &#8220;you&#8217;re wrong. I know, because I care for someone with such and such a disability&#8221;. This makes me squirm. Even worse are those disability organisations or charities that have only parents and caregivers on [...]]]></description>
			<content:encoded><![CDATA[<p>It&#8217;s really off-putting when a group of disabled people are trying to have a conversation and a caregiver butts in with &#8220;you&#8217;re wrong. I know, because I care for someone with such and such a disability&#8221;. This makes me squirm. Even worse are those disability organisations or charities that have only parents and caregivers on their boards. &#8220;Oh, but it&#8217;s all right, my brother has this condition. In fact, we <em>all</em> have family members with this condition!&#8221;</p>
<p>It&#8217;s troubling enough that there are so many such organisations out there that just don&#8217;t have anyone who <em>actually has the disability concerned on their boards</em> &#8211; it&#8217;s as though we can&#8217;t speak for ourselves or have unique experiences people who don&#8217;t have our disabilities can&#8217;t relate to or advocate about! &#8211; but that&#8217;s not directly what I want to talk about today. I want to talk about who gets to run conversations about disability and who gets to run the narratives. All too frequently, abled caregivers and family members are centered in conversations that really ought to be run by and focus on disabled people.</p>
<p>The thing is, abled caregivers and family members, while pretty involved in the lives of those they are caring for, have their own perspectives, which is great. But treating those perspectives like substitutes for those of disabled people themselves makes me really uneasy. So when the perspectives of disabled people get pushed out because carers are brought to the forefront &#8211; in legislating, in daily conversation, in interviews &#8211; for me, that&#8217;s a clear example of ableism run rampant. Because it seems like those in charge think that disabled people aren&#8217;t worth listening to or are incapable of informing their own opinions.  The dominant narrative is that abled people are better worth listening to, and I get sad when abled carers and parents just don&#8217;t seem to realise that they&#8217;re dominating conversations at the expense of disabled people. (It reminds me of those times when men start talking loudly about feminism and everyone else in the room has to keep quiet, is denied a chance to speak.) And &#8220;advocacy&#8221; of disabled people shouldn&#8217;t be at the expense of disabled people.</p>
<p>Of course, it&#8217;s usually particular kinds of caregivers who get centred &#8211; who centre themselves &#8211; in these conversations: abled ones. As ever, it is those with multiple roles who are pushed to the margins, because their existence is held to be just too complicated to deal with. I think acknowledging disabled people who are also caregivers would be a really good start to decentralising the place of abled caregivers in these conversations. Moreover, acknowledging the multifaceted nature of experience brings out the nuance: we really have to engage with the dynamics of different people&#8217;s situations here &#8211; what are the power dynamics like when you&#8217;re both in a position of power and disabled? how do these conversations apply to you? &#8211; rather than defaulting to listening to abled parents and caregivers.</p>
<p>Now, I&#8217;m not saying that abled caregivers and such should have no place in conversations about disability and ableism, you understand: I&#8217;m saying that such folk have dominated conversations about these matters. There is a place, it just shouldn&#8217;t be a place that replicates the hierarchies present in society already: hierarchies around who gets to speak, who gets to do the representing. The effect of this &#8211; and you can look at a range of newspaper articles or documentaries or whatever you please &#8211; is that disabled people get silenced. The effect is that, more often than not, it becomes all about portraying the caregiver as angelic and the person cared for as a burden they have kindly taken on.</p>
<p>And that&#8217;s not on.</p>
<p>[Cross-posted at <a href="http://wp.me/pnj1p-Hj">Zero at the Bone</a> and <a href="http://wp.me/p9X2j-4KO" title="Cross-post at Feministe">Feministe</a>]</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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		<title>…And At This Point, I Don’t See It Stopping Anytime Soon</title>
		<link>http://disabledfeminists.com/2010/08/11/%e2%80%a6and-at-this-point-i-don%e2%80%99t-see-it-stopping-anytime-soon/</link>
		<comments>http://disabledfeminists.com/2010/08/11/%e2%80%a6and-at-this-point-i-don%e2%80%99t-see-it-stopping-anytime-soon/#comments</comments>
		<pubDate>Wed, 11 Aug 2010 10:07:27 +0000</pubDate>
		<dc:creator>Ouyang Dan</dc:creator>
				<category><![CDATA[accessibility]]></category>
		<category><![CDATA[disability activism]]></category>
		<category><![CDATA[intersectionality]]></category>
		<category><![CDATA[invisibility]]></category>
		<category><![CDATA[justice]]></category>
		<category><![CDATA[medical practice]]></category>
		<category><![CDATA[military]]></category>
		<category><![CDATA[oyd rants]]></category>
		<category><![CDATA[policy]]></category>
		<category><![CDATA[violence]]></category>
		<category><![CDATA[abuse]]></category>
		<category><![CDATA[Department of Veterans' Affairs]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[disabled veterans]]></category>
		<category><![CDATA[Eric K. Shinseki]]></category>
		<category><![CDATA[exclusion]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[health care is an accessibility issue]]></category>
		<category><![CDATA[Military Sexual Trauma]]></category>
		<category><![CDATA[myths and misconceptions]]></category>
		<category><![CDATA[problematic attitudes]]></category>
		<category><![CDATA[PTSD]]></category>
		<category><![CDATA[social treatment]]></category>
		<category><![CDATA[the dogdamned VA]]></category>
		<category><![CDATA[things people say]]></category>

		<guid isPermaLink="false">http://disabledfeminists.com/?p=3701</guid>
		<description><![CDATA[Courtesy of amandaw I bring you this stellar article that once again rubs in my face how brilliantly miserable the VA is scratching the surface of realizing what is wrong with they way they even see women veterans. If you read along carefully you can even see the lightly sugar-coated condescension artfully woven in TIME [...]]]></description>
			<content:encoded><![CDATA[<p>Courtesy of amandaw I bring you <a href="http://www.time.com/time/nation/article/0,8599,2000829-1,00.html">this stellar article</a> that once again rubs in my face how brilliantly miserable the VA is scratching the surface of realizing what is wrong with they way they even see women veterans. If you read along carefully you can even see the lightly sugar-coated condescension artfully woven in <em>TIME</em> writer Laura Fitzpatrick&#8217;s story. It really is a piece of work, from the dismissive way she re-counts the testimony of the &#8220;presumed&#8221; treatment of a <span style="text-decoration: line-through;">victim</span> survivor of sexual assault at the hands of a medical professional (because they NEVER do THAT) down to the detailed description of the <em>very girlie attire</em> of the staff at the impressively mostly women-run facility in Palo Alto. I crave to read the way a man&#8217;s shoes click-clack on a hospital hall&#8217;s floors in such a manner. But it is a very cliche description etched in the halls of descriptive-writing history, INORITE, so who am I to argue with the laws of good writing. I am, after all, only an amateur.</p>
<p>The news isn&#8217;t that the VA is failing women veterans. <a href="http://womensrights.change.org/blog/view/how_the_va_is_failing_women_veterans">I&#8217;ve known that for quite some time</a>. Really, I have. <a href="http://womensrights.change.org/blog/view/veterans_affairs_centers_fall_short_of_womens_needs">I have encountered some of the treatment described to some degrees first-hand</a>:</p>
<blockquote><p>I remember having to hunt around for a toilet in an ill-fitting paper  gown at my own exit screening, past several other open, occupied exam  rooms. I was the only woman there. They had no sanitary napkin to offer  me and it was an embarrassing scene trying to find a place where I could  insert a tampon. I was fighting back tears when I finally found a  (presumably) unisex bathroom.</p></blockquote>
<p>So My Dear Friend Ms. Fitzpatrick&#8217;s dismissal of Anuradha Bhagwati&#8217;s story, the one <em>she gave as testimony</em> before the House Committee on Veterans&#8217; Affairs is ill-received. It isn&#8217;t too far-fetched for me to imagine the way she recounts &#8220;the ham-handed manner in which a male gynecologist, upon being told by a  patient that she had been sexually assaulted, left the exam room and —  presumably to beckon a female staff member — yelled down the hall, &#8216;We&#8217;ve got another one!&#8217;&#8221;. I can easily see the inept professionals at the inadequate facilities just stumbling over how to even grasp a way to provide basic courtesy to a patient who isn&#8217;t like them. And failing. Miserably.</p>
<p>The news here is that they seem to have no idea how to fix it, and no set, immediate time line in mind for seeing progress. Sure, <a href="http://www.ttkn.com/health/va-chief-addresses-importance-of-care-for-women-veterans-2935.html">Secretary of the VA, Eric K. Shinseki recently, at a forum at the Women in Military Service for America Memorial in Arlington, Virginia</a>, has said that he hopes to have the VA ready to serve 100% of veterans in 25 years, but what is going to happen to this generation of women veterans who are already being ignored? To the women veterans of the wars past who have been fighting for help all along already?</p>
<p>Because their concerns are already being swept aside. You can already see as things like their urinary-tract issues being categorized as simple &#8220;gender differences&#8221;, because women react to the desert differently. Sure, possibly. <a href="http://www.stripes.com/news/data-only-19-percent-of-medical-evacuations-in-mideast-battle-related-1.100039">I&#8217;ve seen this intimated a few times</a>. People looking to explain away womanly behavior in high stress situations. Oh! They didn&#8217;t want to stop the convoy! Well, why is that? Maybe because we know that <a href="http://www.latimes.com/news/printedition/asection/la-oe-harman31mar31,0,3129956.story">women are far more likely to be killed by their fellow servicemembers than by combat</a> in combat zones that they learned defense mechanisms, as confessed to by Col. Janis Karpinski. Women tended to drink less water, as little as they thought they could get away with, to avoid using latrines or having to stop roadside alone with men out of fear of sexual assault. <a href="http://www.alternet.org/world/31584/">And it killed some of them</a>. If you remember, though, Karpinski was even dismissed as a woman scorned because of the Abu Ghraib scandal, anyhow, so we can&#8217;t win for losing. She was just ratting out her old boss because she got in trouble.</p>
<p>Some of it is true, though. Most of the VA&#8217;s 144 hospitals do not have the proper facilities to even offer privacy to non-men patients, let alone provide gynecological care, or as I mentioned above, pads. The <em>TIME</em> article notes a hospital in Salt Lake City which announced that it delivered its first baby this past October (the article mentions that its average patient is 78 and male), but the day after the little girl&#8217;s arrival they didn&#8217;t know how much she weighed (I cringe to think how much more they couldn&#8217;t provide) because they didn&#8217;t even have an infant scale.</p>
<p>Women veterans are spiking in numbers. They, funnily enough, are not the same as men. That means they are not the same as the average patient, such as that the Salt Lake City hospital are used to dealing with, and their health care with be different. Even if you line up the matching parts, the treatment for heart disease and blood pressure, to my lay knowledge, is not the same. The numbers have been growing since The Great War, and surged after we had the need to call the next one World War II. It took until 1988 for the VA to start providing even limited care to women veterans.</p>
<p>Today, women veterans in need of help from the VA are of an average age far younger than the average male veteran (for obvious reasons) and have different needs. They are at least twice as likely than civilian women to be homeless (with only 8 facilities in all the U.S. available to help homeless women veterans with children). They are likely to be mothers when they are. Many of them returning from combat zones &#8212; yes, combat zones, why do you ask? &#8212; are coming home to families and are more likely than their male counterparts to get divorced following combat connected tours. They are really damned likely to get asked if that is their husband&#8217;s or boyfriend&#8217;s shirt they are wearing, or asked for their husband&#8217;s social by a thoughtless agent on the phone. They are the forgotten in war. Doubly so if they <a href="http://meloukhia.net/2010/07/guest_post_from_andrea_the_magical_invisible_veterans.html">served in a branch of the military that isn&#8217;t on the forefront of the public&#8217;s mind</a> as &#8220;really the military&#8221; (as <a href="http://slave2tehtink.livejournal.com/567572.html?view=3023380#t3023380">slave2tehtink has said</a>, Aircraft carriers tend to not be zipped around by civilians, yo). Extra-specially so if you had a thinkin&#8217; job, like &#8220;nuke&#8221; or &#8220;spook&#8221;, and your Traumatic Brain Injury (TBI), Post Traumatic Stress Disorder (PTSD), or Military Sexual Trauma (MST) didn&#8217;t happen &#8220;In Country&#8221; (Iraq or Afghanistan), the only sanctioned places where these things can occur, you know.</p>
<p>It&#8217;s frustrating as hell. And while I don&#8217;t believe that the VA is intentionally forgetting about us, I don&#8217;t believe that they are doing everything that they can to make sure that it gets better faster.</p>
<p>And honestly, I don&#8217;t think writers like Ms. Fitzpatrick are helping. But maybe I am jaded and have been at this for too long. But the VA needs an overhaul, stat. Pretty words from the Secretary of the VA and promises that it will be better in a couple of decades just aren&#8217;t good enough.</p>
<p>&copy;2010 <a href="http://disabledfeminists.com">FWD/Forward</a>. All Rights Reserved.</p>.]]></content:encoded>
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