By lauredhel on 17 October, 2009
How do we start campaigning for shade over accessible parking spots? Parked cars in the Australian sun get way too hot at the best of times, no matter how able-bodied you are. But lots of people with disabilities have further issues with temperature regulation and/or high temperatures making them sick. People with spinal injuries can [...]
Posted in accessibility
By lauredhel on 16 October, 2009
We’ve decided to have a weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy. About the only content-related rule is to keep this thread for things not covered in other threads over the past few weeks. What have you [...]
Posted in chatterday
By lauredhel on 16 October, 2009
[This post was originally written for BADD - Blogging Against Disablism Day, and posted on May 1, 2008 at Hoyden About Town. The 2020 Summit was an attempt by the then-new Rudd government to brainstorm ideas for the country's direction in areas including the economy, health, social inclusion, sustainability, the arts, and so on.] This [...]
Posted in Uncategorized | Tagged australia, exclusion, invisibility, policy, summit
By lauredhel on 13 October, 2009
[This post was originally posted at Hoyden About Town on April 27, 2009.] There’s a whole industry that involves measuring the survival techniques and truths of people with CFS, then pointing the finger at them for causing their own illness with their Scientifically! Proven! personality “deficits”. Here’s the latest product of that industry. They took [...]
Posted in blaming, medical practice | Tagged bad science, cfids, cfs, cfs/me, chronic fatigue syndrome, illness, invisible disability, maladaptation, me, misdiagnosis, mislabelling, personality, psychologisation, psychosomatic, research, science
By lauredhel on 11 October, 2009
[This post was originally posted at Hoyden About Town on May 4, 2007.] This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I [...]
Posted in accessibility | Tagged accessibility, cfids, cfs, cfs/me, chronic fatigue syndrome, coming out, disclosure, invisible disabilities, invisible disability, me, medical care, misdiagnosis, narrative, parking, parking permit, passing, spoon theory, spoons, university
By lauredhel on 10 October, 2009
Message to TABs (Temporarily ABled[1] folk): Spoon Theory? It’s not yours. It doesn’t describe the sleepy feeling you get at the end of a long day, nor the feeling you get when your kid wakes up for the third time in a night, nor the feeling you get because you went for a bike ride [...]
Posted in language
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