Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

United States Department of Transportation: AirTran Fined for Violating Rules Protecting Air Travelers with Disabilities.

Of the $500,000 penalty, up to $60,000 may be used to establish a council to help the carrier comply with federal disability rules and hire a manager for disability accommodations. Up to $140,000 may be used to develop and employ an automated wheelchair tracking system at AirTran’s major hub airports within one year that will generate real-time reports of the carrier’s wheelchair assistance performance.

Canada: CBC News: Brain-injured man mistreated on bus: family. (Yes, slightly strange headline.)

After a conversation with the driver of a bus he boarded in Lower Sackville, N.S., on Saturday, Wilcox said he was ordered to the back.

He said the driver then apologized to other passengers, telling them she usually kicks drunks off the bus. When Wilcox tried to explain he was not drunk, no one wanted to listen, he said.

New York City, USA: Transportation Access: Transit Advocates Announce Lawsuit Against MTA.

The lawsuit charges that the service reductions violate the Americans with Disabilities Act (ADA) and state law by denying people with disabilities the right to accessible transportation. The plaintiffs are seeking a permanent injunction requiring the MTA to immediately restore lost service to buses, subways and Access-A-Ride.

United Kingdom: From The Guardian’s Letters section: Travel cuts will leave disabled and older people stranded.

Transport for All is extremely concerned about how these cuts will affect older and disabled Londoners. The threatened cuts of over 7,400 hours of ticket office staffing every week across the London network will have a disastrous impact on the freedom and independence of disabled and older Londoners.

Ashley’s Mom at Pipecleaner Dreams: Suggestions.

Yes, I know, I have written many times in the past about the issues surrounding bus transportation in my school district. Well this post is not going to dwell totally on the negative. Bus services were, for the most part, excellent this summer. They did however start to fall apart this last week of school. And, I have a few suggestions so that doesn’t happen in the future.

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©2010 FWD/Forward. All Rights Reserved.

United Kingdom: ESA: It Doesn’t Add Up by lilwatchergirl at Through Myself and Back Again.

No wonder there’s so much anxiety around the ESA medical assessments. Anxiety that won’t help those who already have long-term illnesses, or mental health problems, or acute life-threatening conditions – or who are already living in fear and poverty as a result of the War on Welfare Claimants.

When Persistence Pays Off by Emma/Writer In A Wheelchair at Disability Voices.

I’d love to think that they’ve done this just because of my complaints but I’m not naive enough to do so – and I know I’m not the only person whose had those problems. But it’s a definite example of why complaining, campaigning and advocacy are so important. And what happens when your persistent – because it really can pay off.

Statistics on Accessible Tourism – a Continuing Issue by Ivor Ambrose, guest posting at Access Tourism NZ.

One of the most Frequently Asked Questions posed by business owners and tourist agencies is: “How many disabled tourists are there”? And then there is the more probing question: “So, if it is not just about disabled people, how many people actually need better access, and what kind of things do they need?”.

Canada: Ottawa makes voting easier for disabled from CBC News.

The new voting machine, called a Voter Assist Terminal, has a high-contrast touch screen with a zoom function to enlarge type size. It also has tactile buttons with Braille on them; a sip/puff device for people with limited mobility; a rocker paddle; and an audio function that enables voters to hear the choice of candidates through headphones.

A New Financial Access Frontier: Persons With Disabilities by Elisabeth Rhyne at The Huffington Post.

According to Harvard Law professor Michael Stein, 650 million people around the world, nearly 10 percent of humanity, have a disability, and over 80 percent of these people live in developing countries. Yet, in research studies, fewer than 1 percent of the clients of microfinance institutions, dedicated to serving the world’s financially excluded people, were found to be persons with disabilities.

Send your links to recreading[@]disabledfeminists[.]com.

©2010 FWD/Forward. All Rights Reserved.

What are important conversations taking place between feminism and Disability Studies? How can a feminist approach (whatever that means) to abilism/ability/able-bodied privilege (however defined) raise new questions regarding the self, the state, the workplace and cultural conceptions of disability? How does Disability Studies force a reconsideration of traditional concepts within feminist theory and Women’s & Gender Studies?

Then you are very possibly an academic interested in the intersection of disability and gender, and might be interested in the Annual Meeting of the Critical Feminist Studies Division of the Cultural Studies Association over in the US!

The Critical Feminist Studies Division of the Cultural Studies Association (CSA) invites submissions for the 9th Annual Meeting to be held at Columbia College in Chicago, March 24-26, 2011.

[...]

To submit, please include the following:

1. Your name, email address, phone number, and institutional affiliation

2. Paper/presentation title

3. 500-word abstract

Deadline for submissions: September 1, 2010.

Send inquires and submissions to:

Sarah L. Rasmusson & Sabrina Starnaman

Co-Chairs, Critical Feminist Studies Division

criticalfeministstudies@gmail.com

You can find full topic and submission details here.

©2010 FWD/Forward. All Rights Reserved.

Wheelchair Dancer writes about Body Matters:

It’s about how we imagine living in other people’s bodies and the value we ascribe to them; it’s also about how we pass on the fear and vulnerability of change, injury, or pain in our own physicality. And that’s just on a personal level; things get more complicated when we think of the body as a political space.

From the Human Rights Watch, Malaysia: Disability Rights Treaty Ratification an ‘Important Step’. The treaty went into effect on 18 August.

“Malaysia has taken an important step to protect the rights of people with disabilities,” said Shantha Rau Barriga, disability rights researcher and advocate at Human Rights Watch. “But the convention should be seen as a springboard for changing Malaysian laws, policies, and practices that violate the rights of people with disabilities.”

[...]

Malaysia entered formal reservations to the Disability Rights Convention concerning the prohibition of torture and other ill-treatment (article 15) and the right to liberty of movement and nationality (article 18). It also made a declaration limiting the government’s legal application of the principles of non-discrimination and equality.

It’s Australia’s federal election tomorrow, so I’m devoting the rest of this to Australian issues.

• First up, let’s back up a bit to the end of July when the campaign briefly focussed on disabled people (yes, I’m a cynic). From 29 July at the ABC, you can read about Labor’s election promises: Gillard’s disability pledge ‘an historic achievement’.
• From the next day, Abbott responds to Labor’s disabilities pledge; The Age reports that ‘the coalition is seeking to trump Labor by promising $314 million to support school students with disabilities’. Which is… not precisely what it would do. Do remind me to rant at you about the way disabled students are treated in Australia sometime, I could go on about it for years.
• Our own Lauredhel, writing at Hoyden About Town, writes Accessibility statement = waffle that should be kept out of the Senate, says Abbott. ‘Why exactly, when your mind reaches for an example of pointless disposable wibbling, is “accessibility and social inclusion for people with disabilities” the first thing that leaps to mind, eh?’
• If you’re still undecided on how your preferences will go, check out PWD.org.au’s list of party policies on disability.

From The Age: Anger as disabled pupils spend up to four hours a day on bus in the southern state of Victoria:

Parents say their children have suffered dehydration, toileting problems and emotional distress on the free bus service that runs children to and from specialist schools.

And, to end on a happy note, disabled Australian swimmers are doing beautifully in the ICP World Swimming Championships in the Netherlands. (Swimming is very very popular here in Australia, as I’m sure you can imagine. You can read some of the results in Swimmer Cowdrey wins third gold medal at the Sydney Morning Herald. We also did really well at the 8th World Deaf Golf Championships in Scotland!

Send your links to recreading[@]disabledfeminists[.]com.

©2010 FWD/Forward. All Rights Reserved.

Photo by Louise Dawson. From the photo’s Flickr page: ‘Participants in this Outward Bound group, with a variety of physical disabilities, had just tackled a ropes challenge course as part of a 9 day program.’ The photo was taken in November 1996.

IRIN Africa (from the UN Office for the Coordination of Humanitarian Affairs): SENEGAL: Children with disability – when stigma means abandonment. Warning for some highly unpleasant treatment of disabled children.

The shame attached to mental and neurological disorders is a strong force, said Dakar hairdresser Ibrahim Gueye, the father of a child with a severe learning disability.

“In Senegalese society it is quite difficult to have a child with a mental disorder. The prevailing belief is that it is a curse; it is difficult to get family and friends to accept such a child.”

In the District of Columbia in the USA, from the Washington Post: Independent administrator to oversee D.C. compliance in disability lawsuit:

The fight over appointing an administrator is the latest chapter in the Evans lawsuit, which was filed in 1976 over the District’s abysmal care of people with developmental disabilities.

That’s right, the case has been going for thirty-four years.

From the Ghana News Agency, 50% of Brazilian buses for persons with disabilities:

Vice President John Dramani Mahama on Wednesday announced that 50 per cent of buses expected from Brazil would be friendly to persons with disabilities.

[...]

He said the constitution of the National Council on persons with disabilities was the beginning of the educational programmes that would help to redress their challenges as public institutions noting that the transport system still lacked facilities for them.

In the UK, from the Guardian, Why the next Paralympics will be the greatest ever by Ade Adepitan, Paralympian and TV presenter.

The news that Channel 4 is going to spend millions on the London 2012 Paralympics and give it 150 hours of coverage is a landmark moment. The BBC did a fantastic job of increasing the Paralympics’ profile, but it usually ended up on BBC2 – second fiddle to the Olympics. I only found out about the Paralympics when I was 14 – before then I didn’t know it was possible for someone in a wheelchair to compete in a global sports event.

In the Canadian town of Cobourg, at Northumberland News, Electronic voting a win for disability groups:

The system ensures security by sending each registered voter a pin number by mail; that number can then be used to access the electronic ballot either online or on the telephone.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading[@]disabledfeminists[.]com.

©2010 FWD/Forward. All Rights Reserved.

It’s troubling enough that there are so many such organisations out there that just don’t have anyone who actually has the disability concerned on their boards – it’s as though we can’t speak for ourselves or have unique experiences people who don’t have our disabilities can’t relate to or advocate about! – but that’s not directly what I want to talk about today. I want to talk about who gets to run conversations about disability and who gets to run the narratives. All too frequently, abled caregivers and family members are centered in conversations that really ought to be run by and focus on disabled people.

The thing is, abled caregivers and family members, while pretty involved in the lives of those they are caring for, have their own perspectives, which is great. But treating those perspectives like substitutes for those of disabled people themselves makes me really uneasy. So when the perspectives of disabled people get pushed out because carers are brought to the forefront – in legislating, in daily conversation, in interviews – for me, that’s a clear example of ableism run rampant. Because it seems like those in charge think that disabled people aren’t worth listening to or are incapable of informing their own opinions.  The dominant narrative is that abled people are better worth listening to, and I get sad when abled carers and parents just don’t seem to realise that they’re dominating conversations at the expense of disabled people. (It reminds me of those times when men start talking loudly about feminism and everyone else in the room has to keep quiet, is denied a chance to speak.) And “advocacy” of disabled people shouldn’t be at the expense of disabled people.

Of course, it’s usually particular kinds of caregivers who get centred – who centre themselves – in these conversations: abled ones. As ever, it is those with multiple roles who are pushed to the margins, because their existence is held to be just too complicated to deal with. I think acknowledging disabled people who are also caregivers would be a really good start to decentralising the place of abled caregivers in these conversations. Moreover, acknowledging the multifaceted nature of experience brings out the nuance: we really have to engage with the dynamics of different people’s situations here – what are the power dynamics like when you’re both in a position of power and disabled? how do these conversations apply to you? – rather than defaulting to listening to abled parents and caregivers.

Now, I’m not saying that abled caregivers and such should have no place in conversations about disability and ableism, you understand: I’m saying that such folk have dominated conversations about these matters. There is a place, it just shouldn’t be a place that replicates the hierarchies present in society already: hierarchies around who gets to speak, who gets to do the representing. The effect of this – and you can look at a range of newspaper articles or documentaries or whatever you please – is that disabled people get silenced. The effect is that, more often than not, it becomes all about portraying the caregiver as angelic and the person cared for as a burden they have kindly taken on.

And that’s not on.

[Cross-posted at Zero at the Bone and Feministe]

©2010 FWD/Forward. All Rights Reserved.

You can nominate in the following categories: Free to Air TV Captioning Award, Subscription TV Captioning Award, Advertising Captioning Award, Best New Captioning Initiative Award, Live Event Captioning Award, DVD Captioning Award, Roma Wood Community Award, Best Promotion/Consumer Education Campaign Award, Most Consistent Captioning Award and Members’ Choice Award (the last only if you are a member of the Deafness Forum). Here is the Captioning Awards page and here are the nomination forms.

Nominations close Friday 6 August, so get them in now!

©2010 FWD/Forward. All Rights Reserved.

This post is about the book version of Wicked, not the musical (they’re quite dissimilar). There’s one minor spoiler for the musical, and I’ve tried to minimise the spoilers about the book, though this is a book review so watch out!

Wicked is concerned with the story of the Wicked Witch of the West from Baum’s The Wizard of Oz, which is a fabulous premise, I’m sure you’ll agree. Well, having seen the musical previously, I was a little apprehensive about social justice concerns in the book. And we get off to a flying start with this section of the first scene:

‘[…]What a Witch. Psychologically warped; possessed by demons. Insane. Not a pretty picture.’

‘She was castrated at birth,’ replied the Tin Woodman calmly. She was born hermaphroditic, or maybe entirely male.’

And the ‘patronizing speculations,’ as the Wicked Witch of the West, Elphaba, thinks of these remarks (she’s spying on them in this scene) don’t end there. So, naturally, I was wary from there on out. Look, there’s lots I could talk about in this review: what I found to be a half-baked treatment of race, the truly gorgeous worldbuilding, many “what the pancake” moments, some of the most rounded characters I’ve found in fiction. But I think the treatment of Elphaba’s sister, Nessarose, in terms of her being disabled, needs a whole review to itself.

Before I get to her, though, I should point out that Nessarose is not the only disabled character in Wicked. There’s one memorable paragraph in which Elphaba remembers the last time she sees her old school friend, Tibbett. She’s nursing him and it’s the first time she sees him since he became an “invalid”.

Then, a year ago, pale invalid Tibbett was carted to the Home for the Incurables. He wasn’t too far gone to recognise her even behind her veil and silences. Weak, unable to shit or piss without help, his skin falling in rags and parchment, he was better at life than she was. He selfishly required that she be an individual, and he addressed her by her name. He joked, he remembered stories, he criticized old friends for abandoning him, he noticed the differences in how she moved from day to day, how she thought. He reminded her that she did think. Under the scrutiny of his tired frame she was re-created, against her will, as an individual. Or nearly.

So he’s portrayed as one of the “Incurables,” far gone into hopelessness, an object of pity. Yet still with his inner strength – which, while it is conveyed with tenderness and some depth, is ultimately a vehicle for a Very Special Lesson for Elphaba. And we never get to hear his voice; he’s just here, briefly, portrayed through the voice and memory of his carer. Which is something we’ve all encountered before.

So, to Nessarose, who is described by her sister as having been ‘horribly disfigured from birth’ as she doesn’t have arms. Whose movement is described by the narrator in sinuous, snake-like terms, bizarrely fascinating to look at. Who is conveyed as so pretty and charming, but so helpless and unfortunate, poor dear. Who just can’t get a man because who wants to be with someone like her?

No. No no no no. No. And I thought the sickly sweetness of the character in the musical was bad. It’s like Maguire was trying to cram as many disability tropes in as possible.

But that’s not all there is to Nessarose. She’s a major political figure, which is pretty cool. However, she’s a tyrant, which is… on the one hand, a powerful disabled woman? That’s pretty cool. On the other, another disabled villain? Are you quite serious? What really ties the characterisation of Nessarose into a complex ball of flat out ableism and confusing hints of marvellousness is how her religiousness is treated. There is likewise a little more nuance here. All the way through reading, I was constantly wondering how it was going to play out: was she going to be the unfortunate disabled person of faith who gets manipulated into being a Very Special Lesson to one and all? Was she going to turn into a dangerous figure, driven by religious extremism and her rage about her unfortunate (unfortunates in this paragraph are sarcastic, by the by!) disability? I certainly wasn’t expecting either her faith or her disability to be treated respectfully. And you know something? I was right. She ends up being a theocratic tyrant who has some pretty nasty effects on her people. A thousand points if you too were betting on an evil disabled dictator.

I want to touch on some of the discrepancies between the book and the musical. Anyone who has seen the musical will remember the scene in which Nessarose arises from her chair in one of those “It’s a happy piece of popular culture and I can walk!” moments. Which is bad enough, but, hang on, she doesn’t use a wheela chair in the book! I’m just wondering why on earth the makers of the musical decided Nessarose should be changed to a four-limbed wheelchair user. It’s as though impairments are interchangeable and a wheelchair is a universally applicable marker of disability. I think it would have been great if they’d decided to be true to the book and employ actors who don’t have arms for the musical. I guess we can dream!

In conclusion: skip the book unless you are really into quality worldbuilding and some pretty beautiful characterisations.

©2010 FWD/Forward. All Rights Reserved.

Well, we’re getting well into winter here and different bits of me are aching. Winter is not my fun time. My questions to you are: do you have problems with the weather, maybe excessive heat or cold or rain? How do you deal with that?

If you have suggestions for Question Times, send them to chally at disabledfeminists dot com.

©2010 FWD/Forward. All Rights Reserved.

I spoke to Ingrid about her thoughts on disability and dance, creativity and the nature of beauty.

Please tell our readers about what you do and about Beauty. Can you tell us about your creative process in dreaming up and putting the show together, working with the dancers and those behind the scenes?

Ingrid: It’s a collaborative process, so I come up with questions and tasks to get the dancers creating movement material. I don’t choreograph ‘on’ them, we work together to devise the movement that’s in the show. In Beauty some of the movement came from interpreting the shapes, postures and gestures we found in images of women in classical visual art. The dancers responded to the images, creating movement material. We also developed material through improvisation. My job is to initiate the process and then edit, shape and compose the developing material to create a show, and to work in collaboration with the set and costume designer, sound designer and lighting designer through dialogue and decision making.

Why was it important for you to explore the notion of beauty? What do you think it is, and how to explore it in a world in which disabled people aren’t often thought of as beautiful?

Ingrid: I was interested in exploring the notion of beauty for a range of reasons, one being simply that I’d rebelled against ‘the beautiful’ in a couple of previous Restless shows I’d directed, in terms of content and aesthetic. Beauty was inspired by some of the dancers themselves, in particular Dana Nance, who is a stunning young woman with physical and intellectual impairments. I was interested in the oscillation audience may perceive or experience between Dana’s beauty and her impairment. With Beauty, I wanted to make a work in which the disabled performers would be viewed as beautiful first and foremost. My favourite moment in the show was when Dana stepped into a projection of the Venus de Milo (a classic image of beauty), in which she fits perfectly.

I think beauty is much more than surface, as I believe we all do, but we live in a culture increasingly driven by the visual, by a world of images. It’s true that in our society disabled people aren’t often thought of as beautiful, and I hope Beauty questions this in a subtle way. Beauty is also linked to sexuality, which is also often denied in disabled people.

How do representations of women’s bodies tie in with disability in Beauty?

Ingrid: I found it interesting to discover during our research that (unsurprisingly) many of the poses found in images of women in classical visual art are echoed in contemporary fashion photography and advertising. So in a subtle way in the show we were playing with these images which reference both the past and the present, but disabled women were the ‘bodies’ being looked at, and on their own terms. The opening of the show was a solo by Jianna Georgiou, a gorgeous young woman with Down Syndrome, who is a beautiful, quite voluptuous dancer. I loved watching this solo, because the movement within it is so evocative of classic images of ‘beautiful’ women – and Jianna is very beautiful, and is also a proud disabled woman. I liked the fact that Jianna was representing herself, yet referencing the bodies of others. I hoped that the audience would question their perceptions around who is/whose bodies are beautiful.

Now that the run is over, do you have any thoughts you’d care to share looking back on the experience?

Ingrid: It’s always such a fast and intense process making a show, and there’s so much I’d like to change and develop further. I think Beauty could have gone a lot further and deeper than it did. Hopefully there’ll be a chance to revisit it in the future.

©2010 FWD/Forward. All Rights Reserved.