Yearly Archives: 2010

Recommended Reading: Comics and Graphic Novels

As some of you may know, I am a cartoonist and graphic novel fan in addition to my regular duties blogging here at FWD. While I don’t get the “HEY ANNAHAM WHAT COMICS AND STUFF DO YOU LIKE TO READ?” query too often, I thought it might be useful to give an overview of graphic work that I think FWD readers and commenters might enjoy. Many of my recs have to do with illness and disability; a few, however, don’t. I’m always working on a new cartoon of some sort (mostly single-panel or multiple pages), and want to share the fruits of my research with folks who may want to read graphic novels, but have no clue where to start. Alternatively, some of these might make useful gifts for the holidays, either for the comics fan in your life or for yourself!

Lynda Barry: This woman is pretty much my hero. Although Barry has a background in art, her work shows that you don’t have to draw comics “realistically” for them to have an impact, or for the artwork to be strikingly beautiful. I probably would have stopped drawing autobiographical cartoons long ago were it not for her work; I do not have much artistic training to speak of, and there seems to be a widespread misconception that only “trained” artists can draw cartoons worth reading! While Barry does not address disability in her cartoons, many of her colorful slice-of-life strips bring readers back to the confusing and bizarre world of childhood and adolescence. If you were — or are — a “weird kid,” you will absolutely connect with Barry’s comics. Her 2008 creativity manual-slash-collage dreamworld What It Is may be particularly useful for the artists (or wannabe-artists), or indeed anyone who needs a push to start writing and creating; a follow-up, The Near-Sighted Monkey Book, was recently released. For those not familiar with her work, I recommend The Greatest of Marlys (a compilation of her long-running alternative comic strip Ernie Pook’s Comeek) and the autobiographical collection One! Hundred! Demons! to start, followed by What It Is; for those of you who like darker material involving (fictional) teenaged misadventures, drug use, and general weirdness, her illustrated novel Cruddy is a must-read.

Alison Bechdel, Fun Home (2006): Known primarily as the writer and illustrator of the alternative comic Dykes to Watch Out For (also worth checking out!), Bechdel really hits her stride with this lengthier autobiographical tale of family drama, the tensions between appearances and reality, destructive secrets, and sexual awakening. I could provide a synopsis, such as “This is a story about the writer’s complex relationship with her father,” but it is so much more than that. This is one of those books that I want to recommend to everyone who enjoys reading; it’s a work that rewards the time put into it tenfold. I get something new out of it every time I re-read it. The way that Bechdel draws facial expressions is nothing short of priceless, and the narrative as a whole is consistently amazing, complex, and intense.

Al Davison, The Spiral Cage (1989): This one can be sort of hard to track down, but: it’s very much worth the effort. Davison has spina bifida, and this graphic novel chronicles his life with both that condition and Chronic Fatigue Syndrome/M.E. The result — with its many nods to surrealism, and interesting explorations of masculinity and disability, as well as spirituality — is an honest, beatifully written and illustrated look at life with multiple disabilities.

Rantz Hoseley (editor) et al., Comic Book Tattoo (2008): Do you like (or love) Tori Amos’ music? Do you enjoy comics? If so, this is probably an anthology that you will get lost in for a couple of days. I was way, way into Tori’s music before I discovered comics and graphic novels, and the amazing range of this anthology — a collection of short graphic works and interpretations inspired by the singer’s massive back-catalog — makes it worth a look. For a compendium with such a huge variety of artistic styles and song interpretations, this collection has very few duds, and the overall quality of the stories included makes it worth the $30 price tag. This is not an anthology that you will read only once and then shove it onto the bookshelf to collect dust, in other words.

Harvey Pekar and Joyce Brabner (with illustrations by Frank Stack), Our Cancer Year (1994): Comics writer Harvey Pekar (he died earlier this year) was known as the cranky protagonist of American Splendor, but this collaboration with his wife, peace activist and journalist Joyce Brabner, brings illness and disability into the mix, and the result is positively great. Although the Pekar-Brabner-Stack team do not gloss over the realities of cancer at all — there are ample panels, and pages, that show the gruesome, life-altering effects of testicular cancer and its harsh treatment protocol — one does not get the sense that showing the worst aspects of this disease is for shock value. As Pekar and Brabner assert at the start of Our Cancer Year, this graphic novel is not just about cancer — it is also about partnership, the everyday (or not-so-everyday), and life.

David Small, Stitches (2009): For a full-length graphic work that doesn’t use much text or dialogue, this is certainly an astonishing piece. Small, who is a children’s book illustrator, utilizes his unique artistic style for this memoir, which tells the affecting tale of his battle against cancer — and near-fatal family secrets — starting when he was 11 years old. Small’s success at creating an overarching mood in this book is difficult to describe; all of the seemingly small choices that he makes as an author and illustrator here add up to a memoir that is both harrowing and ultimately life-affirming. In a review of Stitches for PopMatters, writer Sean Ferrell comments that “[the] book does not exemplify rising above, it exemplifies the continuing, life-long struggle to release the toxic histories we drag around with us.” It is truly to Small’s credit that he has used such painful past experiences to create an unforgettable work.

Commenters, what are some of your favorite comics and graphic works?

Recommended Reading for 17 December, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

United States: Tampa’s ‘Sensitive Santa’ allows children with autism to get photographs, too by Shelley Rossetter at the St Petersburg Times:

The mall’s owner, Glimcher Realty Trust of Ohio, started Sensitive Santa in some malls nationwide two years ago and extended the idea to all its properties this year, said Kristy Genna, marketing director for WestShore Plaza.

Ireland: Deaf man can sit on jury, says judge by Eithne Donnellan at the Irish Times:

A HIGH Court Judge has ruled for the first time that a deaf person can sit on a jury in the Central Criminal Court.

Mr Justice Paul Carney yesterday ruled that profoundly deaf teacher Senan Dunne could sit on a trial jury with the aid of a sign language interpreter. He said objections to having a “13th person in the jury room” in the form of a sign language interpreter could be met by the signer taking an oath of confidentiality and the jury foreman ensuring that she or he was confined to translating what went on.

Just updating you on the situation in Sierra Leone (see RR for 3 December): In Sierra Leone, Disability Congress Writes President Koroma by Abdul Karim Fonti Kabia at the Awareness Times:

The NDC highlighted that persons with disabilities remain severely under-represented in political and decision-making positions; disabled hold only 0.01% of parliamentary seats, and; the current representation of disable persons in cabinet is at 0.0%.

Indonesia: City to Soon Issue Bylaw on Disabilities at BeritaJakarta.com

As form of its attention to the disabled, Jakarta capital city government plans to implement local regulations on building facilities and accessibility for the disabled, including the sanctions for the violators. At present, there are approximately 35 thousand disabled people in five administrative areas of Jakarta.

Australia: ‘Warringah Council is seeking feedback on design concepts for the Collaroy Disability Tourism Precinct,’ something you can read about in Disability precinct design feedback wanted at the Manly Daily. Also see Windfall for disabled, also by Brenton Cherry at the Manly Daily:

The vision is to create a holiday destination for people with disabilities and their carers as well as a specialist economic business hub for Collaroy.

It would be a place where not only access to the beach, including to the water using an amphibious wheelchair, is possible, but also restaurants, public transport, accommodation and entertainment facilities.

Here’s the page on the Warringah Council website. Collaroy is a beautiful place on Sydney’s Northern Beaches. I am so excited to hear about this proposal, and hope that more people will be able to enjoy that stunning beach!

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited. And have yourself a fabulous weekend.

Quoted: bell hooks

Cultural criticism can be an agent for change, educating for critical consciousness in liberatory ways, only if we start with a mind-set and a progressive politics that is fundamentally anti-colonialist, that negates cultural imperialism in all its manifestations […] In many ways progressive cultural revolution can happen only as we learn how to do everything differently.

–From “The Heartbeat of Cultural Revolution,” introduction to Outlaw Culture, 1994

Guest Post: Embracing Disability, Struggling for Emancipation, part one: Rocky Beginnings

Eliot Renard is a genderqueer, feminist, socialist Chicagoan who enjoys making math and science accessible and fun for students through various online tutoring programs.  Ze also has a health blog, personal blog and tumblr, because compartmentalizing is fun.

I began experiencing the symptoms of what I now know to be depression, fibromyalgia and chronic fatigue syndrome when I first hit puberty.  When I complained, the doctor would usually laugh and attribute my complaints to growing pains.  I was told many times by family members and medical professionals to grow up and to stop complaining.  So, I did.  For a decade.

Fast forward to now, and I am once again vocal about my experiences.  This willingness to speak up – to come out as a chronic pain, fatigue, and depression sufferer – has been incredibly beneficial.  I am now on treatments that greatly reduce my muscle pain and depression symptoms, although I have yet to find a solution for many other symptoms.   I have a supportive husband who understands when it’s me speaking and when it’s the pain speaking.  He has adapted admirably to “physical contact rules” that change daily.  He encouraged me to seek out a therapist, which I was reluctant to do after an extremely negative experience with a therapist in my childhood.  He helps me with whatever tasks I cannot accomplish on a given day.  In short, he is a wonderful spouse helping me through a very rough adjustment period.  The rest of my family, however, is problematic.

When my health began to decline rapidly this past summer, I assumed that my mother and grandmother, both diagnosed with rheumatoid arthritis for at least a decade, would understand what I was going through, and instinctively know how to support me.  This assumption was untrue and unfair; being in pain and watching a loved one in pain are two very different experiences.  So, after many conversations in which I asked them repeatedly not to say some hurtful, untrue, and pointless things*, I sent out an email with a list of the offensive remarks, why they were offensive, and a request that the remarks stop immediately.

Unfortunately, this attempt was unsuccessful.  Every phone call was about my illness, and how I wasn’t doing enough to get better – I should be exercising more, undergoing this or that treatment, stopping this or that medication, finding something I “really want to do”, unlike the graduate school I loved and had to leave because I couldn’t get out of bed, much less get to campus and perform a 16-hour work day, being happier, etc.  Things got bad enough that I attempted suicide in September.  It felt like I was not only losing my physical and mental functions, but my family as well.  Nothing I tried was working, and it seemed that there was no way out.

After the suicide attempt, I turned off my phone for a week.  The first person I called when I felt well enough to use the phone was my little brother – he needed to know that none of this was his fault.  My sister’s 6-year-old son happened to be present, so I got to talk to him, as well.  My nephew noted that it had been a long time since we had talked.  I replied that I was sick and needed to turn my phone off for a while.  My nephew’s response was absolutely perfect: “Well, I’m sorry you were sick, but I’m glad you feel better.  At school, I got a dinosaur, and…”

Why can’t the adults in my life figure that out?  Why is treating someone like a person so difficult, not only for my family, but for people on the street or the bus?  Most of my frustration is not actually born from the constant pain, fatigue, fog, etc. – it is from the rest of the world failing to accept me as I am.  And, given the amount of frustration my illness itself causes me, that’s saying something.

*[Bingo, anyone?]

Recommended Reading for 16 December, 2010

Talulah Mankiller at Life Under a Rock: Just the Facts, Ma’am (via Kiri) (post mentions domestic violence but doesn’t describe)

Even when I was very sick and had no idea what was wrong, I always had two versions of reality in my head: what I logically knew was actually probably going on, and what I emotionally understood was happening. The two rarely matched up, but that doesn’t mean that they weren’t both there. For years, various people made futile efforts to help me “grow up” and “learn to deal with things” by trying to get those two versions of reality to overlap as much as possible, but the fact of the matter is that they were never going to. Because those kind people, those lovely people, thought if I just understood that another, less emotionally volatile reality existed, then I would just magically walk right over there and everything would be fine.

Problem was, I’d been well aware of that reality the whole time. I just couldn’t reach it. Because, you know, MY BRAIN CHEMISTRY IS FUCKED.

Kiriamaya: “Why aren’t you angry?”

Because I’m fucking exhausted, that’s why. Depression means I don’t have much energy to begin with, and I have to use most of what I do have for school, work and social situations, which doesn’t leave much over to do activism or to be angry about shit. Oh, and I’m also trans, which means I have to constantly fight just to be seen as human (and usually fail). And I try to squeeze creative projects in amidst all this because that’s how I keep from killing myself.

Old Kentish Sign Language Put On the Worldwide Endangered List

A centuries-old sign language thought to have been spread throughout America by Kentish settlers is on the worldwide endangered list.

Evidence of the use of Old Kentish Sign Language dates back as far as the mid-1600s, but is now thought to be extinct thanks to the rise of British Sign Language in its place.

It is also thought to be one of the forerunners of American Sign Language, as a number of 17th century settlers on the island of Martha’s Vineyard near Massachusetts – the majority of whom knew how to sign – migrated from the Kentish Weald.

Disability Scoop: Violent Crime Odds Double for People With Disabilities

The findings come in a report released Thursday by the Department of Justice’s Bureau of Justice Statistics that looked at 730,000 nonfatal violent crimes during 2008 in which the victim had a disability. Overall, those with disabilities age 12 and older experienced crime at a rate of 40 cases out of 1,000. During the same period those without a disability were affected at a far lower rate of 21 per 1,000, the findings indicate.

ABC (Australian Broadcasting Corporation): Inside an isolated world

There are more than 300,000 Australians who are deafblind and an Access Economics report is predicting that with an ageing population that figure will top one million by 2050. The 7.30 Report’s Natasha Johnson spent a day with a woman who is deafblind to witness the many challenges she faces.

Recommended Reading for 15 December, 2010

Jody McIntyre: Student Protests, Part Three

From the corner of my eye, I spotted one of the policemen from the earlier incident. He recognised me immediately. Officer KF936 came charging towards me. Tipping the wheelchair to the side, he pushed me onto the concrete, before grabbing my arms and dragging me across the road. The crowd of 200 ran and surrounded him. I got back up and stood in front of the horses.

When I finally got home at 5am, exhausted but pleased at what can only be seen as a victory, I found that the picture of me being pulled from my wheelchair had been creating a bit of a storm online. But I am not the real victim. The real victims of yesterday are people like Alfie Meadows; a 20 year-old student who was rushed to hospital for emergency brain surgery after internal bleeding caused by police truncheons.

Abuses Reported at Mexico’s Institutions for the Disabled

MEXICO CITY — Ten years ago, a human rights group released a scathing, groundbreaking report on abusive, decrepit conditions in Mexican institutions for the mentally and physically disabled, moving the country to promise change and to take the lead in writing international agreements to protect the disabled.

But in a new report released Tuesday, the group, Disability Rights International, working with a Mexican human rights organization, said a yearlong investigation revealed “atrocious and abusive conditions” that included lobotomies performed without consent, children missing from orphanages, widespread filth and squalor, and a lack of medical care.

Making the Case for Irish Sign Language in Education

“As we say to parents at this stage, don’t think about your child at five . . . think about your child at 10, at 15 and at 25. Where is he or she going to be at 25? You know, part of a deaf community or a hearing community, but hopefully a mix of the two. And sign language is a critical aspect of that.”

NPR is doing an investigative report called Home or Nursing Home

People ages 31 to 64 now make up the fastest-rising proportion of nursing home residents. One reason: As states face record budget gaps, the programs that help people live at home are being cut.

Muscular Dystrophy Org: Disabled children hit by Residential Education Transport cuts [This link has a moving image on the top that makes me dizzy to look at]

In a move condemned by the Muscular Dystrophy Campaign, when changes to mobility support claimed through the Disability Living Allowance come into force in October 2012, families with a disabled child in a residential school will immediately lose access to either adapted vehicles used to transport their children or the £49.85 a week allowance available to assist with the higher costs of accessible transport.

Are you (or someone you know) aged 13 – 30 and living in the US?

We mentioned this when the first Call came out for proposals, but I wanted to mention it again because I think it’s a good opportunity for the “new generation” of people with disabilities to get their thoughts and voices out there. (Also, I want to read it when it is done, so people submitting to it = better chance of it getting published!)

Call for Proposals: Disability in America: Voices of a New Generation

Ari Ne’eman and Stacey Milbern, Co-Editors
Deadline: January 15, 2011

This year, the disability community is celebrating the 20th anniversary of the passage of the Americans with Disabilities Act (ADA), civil rights law that protects the rights of disabled people.

Growing up in a post-ADA America has meant that many of us have had access to more opportunities than previous generations. We know if we had been born in 1967 instead of 1987 our lives would look completely different. We know the history of our people is tainted by eugenics, ableism, lack of access and the sting of low expectations. We recognize the work that has been done by disability movements over the last century to make the current lives we live possible. We are proud to be members of this vibrant, breathing, community.

Although the struggle continues, we recognize that the realities of disabled people look vastly different in many ways. With this in mind, we are requesting proposals for chapters in a book-length anthology to document this legacy and record the stories of disabled young people talking about what it is to grow up with a disability in this day and age.

Part One of our anthology will attempt to explore how a new generation experiences these age old challenges, affording a chance to assess how far we have really come. Part Two of our anthology asks disabled young people to identify what our struggle looks like now.

We’re seeking a diversity of perspectives and topics. A few questions we pose as food for thought:

What does it look like to navigate the medical system?
What is it like trying to find and keep a job as a young person with a disability today?
How are mental health challenges and psychiatric impairments approached by family members?
Do students still have to choose between support and inclusion?
What is the impact of pity and charity?
How do we survive the traumas we experience by people who say they are helping us, whether this is in schools, in doctor?s offices, our places
of worship, or within our support systems?
How do people with less visible disabilities choose whether or not to
disclose?
How has the nature of “passing” changed or not changed?
How do we fight eugenics, with its many faces?
How do we work with personal assistant services and our support systems?
How is disability portrayed differently in American society?
How are media, and pop culture representations of disability viewed by the new generation of young people with disabilities?
What do our relationships and sex lives look like?
How do we find community?

We are seeking creative non-fiction essays from young people with disabilities ages 13-30 (some flexibility will be available for compelling submissions from individuals slightly outside our preferred age range). People with all types of disabilities are welcome to submit. Speaking from personal experience is strongly encouraged. The intent of this project is to use personal voices to capture the experience of the new generation of young people with disabilities.

Submissions should range from 2,000 to 5,000 words. Please include your address, phone number, e-mail address and a short bio on the manuscript.

Proposals are due by e-mail to voicesoftheadageneration@gmail.com to January 15, 2011 but we encourage and will consider for approval early submissions. Please e-mail co-editors Stacey Milbern and Ari Ne’eman at voicesoftheadageneration@gmail.com with questions.

Recommended Reading for December 14, 2010

K__ at Feminists with FSD: Notes on MTV’s True Life: I Can’t Have Sex

Actual, proper terminology was used throughout the show. Chronic pelvic pain conditions were named, but some conditions that overlap were not mentioned at all (interstitial cystitis, for example, was not explored in this episode. This is a shame – interstitial cystitis is another misunderstood condition which would benefit from careful media coverage.) This episode focused on the impact of chronic pelvic pain on the women’s sex lives. And that means that while you could learn a little about life with chronic pelvic pain from this episode, for a clinical discussion and details on specific conditions and available treatments, you’ll need to look elsewhere.

Carol at Aspieadvocate: I’m an Embarrassment

Yeah, I know some parents of autistic kids worry about the kids embarrassing the rest of the family in public with their unusual behavior. But for me it’s the other way around. I never shut up about autism, mine or his, and while I have every right to out myself, I’m making decisions about him that should really be his to make. Except even if he’s made different decisions about disclosure than I have, he’s not (yet) verbal enough to tell anyone.

David Gorksi at Science-Based Medicine: Death by “alternative” medicine: Who’s to blame? [trigger warning]

Of course, the implication of “Secret” thinking is that, if you don’t get what you want, it’s your fault, an idea that also resonates with so much “alternative” medicine, where a frequent excuse for failure is that the patient either didn’t follow the regimen closely enough or didn’t want it badly enough. Basically, The Secret is what inspired Kim Tinkham to eschew all conventional therapy for her breast cancer and pursue “alternative” therapies, which is what she has done since 2007. Before I discuss her case in more detail, I’m going to cut to the chase, though.

This weekend, I learned that Kim Tinkham’s cancer has recurred and that she is dying.

Arwyn at Raising My Boychick: How far I’ve come

Eight years ago I was withdrawing from college. Again. I’d started medication, divalproex sodium, and that was going to cure me; we’d packed up our possessions, bought furniture in flat boxes, and drove it most of the way across the country to this town with one redeeming feature: the college from which I had just withdrawn because it was better than flunking out from chronic absences. I did not know who I was, what good I was, if I could not do college, be a student. I could not see a future, and mostly did not believe I had one.

Linsay at Autist’s Corner: Autism-related gene spotlight: CNTNAP2

EXECUTIVE SUMMARY: CNTNAP2 is a large gene near the end of chromosome 7 that encodes a cell-adhesion protein involved in distributing ion channels along axons (the long tails of nerve cells) and in attaching the fatty cells making up the myelin sheath to the surface of the axon. DIsruptions in this gene have been associated with autism, epilepsy, Tourette syndrome and other neurodevelopmental disorders. Variations at certain points within the gene that don’t alter or disrupt its expression have also been associated with an increased likelihood of autism.

“There’s a suggestion that you were rolling towards the police in your wheelchair”: BBC Interviews Jody McIntyre About His Assault By London Metropolitan Police Officers

I would like you to take a moment to imagine the look on my face when I realised that the BBC interviewer in the following clip (transcript below) actually asked Jody McIntyre, a 20 year old man who uses a wheelchair and has cerebral palsy, whether or not the fact that Jody is a “revolutionary” is reason enough for the police to have assaulted him twice during the London riots last week. The following interview is full of similar gems, including a rather pointed “appear to show” what the actual footage shows.

I want to salute Joey for his calm yet firm responses throughout the interview.

BBC Jody McIntyre interview

[This is an interview conducted by an unidentified male BBC reporter Ben Brown with Jody McIntyre, a man with Cerebral Palsy who was pulled by police officers from his wheelchair during the recent protests against tuition fee increases in the UK. There is repeated footage of McIntyre being pulled from his chair, which was being pushed by his brother. The footage shows multiple London police officers pulling McIntyre from his chair and dragging him across the pavement and away from his brother and his chair while outraged bystanders shout in horror at what they’re seeing. The clip shown is a cleaned up and enhanced version of the clip that went up on YouTube – the original is full of a lot of cursing and screaming from bystanders which has been edited out by the BBC.]

Interviewer: Pictures of a disabled man being dragged from his wheelchair by police officers during the protests in London over the tuition fees have emerged online. Now these pictures appear to show Jody McIntyre, 20 year old fiscal activist and blogger who suffers from cerebral palsy being pulled out of his wheelchair and dragged across the road to the pavement. While the Metropolitan Police have released this statement on that incident, saying

In connection with the incident shown on YouTube of of a tuition fees protestor in a wheelchair the Metropolitan Police confirm that the man involved, Jody McIntyre, has not launched an official complaint. The issue has been referred by the Metropolitan Police to the Directorate of Professional Standards and the Met Police say they will contact Jody McIntyre directly.

That is the statement from the police that we’ve received, and we can speak to Jody McIntyre now whose in our Westminster Studio.

Interviewer: Good evening to you.

Jody (JM): Good Evening.

Interviewer: Could you just explain what happened to you?

JM: Well, during the demonstration I was attacked by and pulled out of my wheelchair by the police on two occasions. The footage you have just shown is of a second incident. One of the police men who had dragged me down the road in the first incident obviously recognized me, came running over, pushed me out of my wheelchair on to the road, and then dragged me across the road.

Interviewer: The police say you haven’t made any kind of complaint, so why not?

JM: I haven’t made a complaint yet but I’m in contact with a lawyer and I will be doing so.

Interviewer: It’s been a few days since this happened. Why haven’t you complained before?

JM: Because I wanted to consider my options before taking that step.

Interviewer: There’s a suggestion that you were rolling towards the police in your wheelchair. Is that true?

JM: I think justifying a police officer pulling a disabled person out of a wheelchair and dragging them across a concrete road is quite ridiculous and I’m surprised that you’ve just tried to do so.

Interview: So that’s not true, you were not wheeling yourself towards the police.

JM: Well I can’t physically use my wheelchair myself. My brother was pushing me. I think it’s quite obvious from the footage that I was 100% not a threat to anyone.

Interviewer: In the Observer newspaper you were described as a cyber radical and you were quoted as saying you want to build a revolutionary movement and that can only happen through direct action on the streets. Do you classify yourself as a revolutionary? [Anna: I think this is the article he’s referring to]

JM: I don’t classifying myself as anything but I think we all have a right to fight against what the government are trying to do. They’re trying to tier education system whereby only the rich will be able to afford it. That is something that I think we should all be fighting against.

Interviewer: Now the police have said that they have referred this incident to the Directorate of Professional Standards… what’s your reaction to that?

JM: I don’t have a reaction to that but I will be making a complaint in the near future. I would say that it’s very important not to see this as an isolated incident. This is the police’s role at demonstrations. To incite and provoke violence. They’ve done it in the past and they’re continuing to do it now. I am not the real victim here. The real victims are the students, like Alfie Meadows, who is in hospital within an inch of his life after a policeman struck him on the head with a truncheon and he needed emergency brain surgery. Now imagine if it was Prince Charles, or Camilla, or a police officer who had been within an inch of their life.

Interviewer: But I have to say, I was in Parliament Square covering that demonstration and I saw protesters throwing lumps of rock at the police, throwing missiles, various missiles, at the police. Were you throwing anything at all at the police that day?

JM: I wasn’t throwing anything at the police during that day or during any [unclear] But what is clear is that the media are trying to distract the public from the real issue, which is the cuts that the government are making.

Interviewer: Were you harmed in any way in that incident with the police?

JM: Not in that … incident, in the incident that’s being shown. There was also another incident around 45 minutes earlier when a police officer struck me with a baton and yes that did cause some injury.

Interviewer: And why then, do you think– Are you saying the police picked on your twice. Why do you think they did?

JM: I have no idea. I mean, to make one suggestion, I think in the second incident at least, I think there’s a clear element of trying to provoke protesters into violence. Personally, I see myself as equal to anyone else, but I do understand that I could be perceived as more vulnerable, so I think there was an element of trying to provoke violence from others.

Interviewer: Did you shout anything provocative or throw anything that would have induced the police to do that to you?

JM: Do you really think a person with Cerebral Palsy in a wheelchair can pose a threat to a police officer who is armed with weapons?

Interviewer: But you do say that you’re a revolutionary.

JM: That’s a word, it’s not a physical action that I’ve taken against the police officers, a word that you’re quoting from a website. I’m asking you: do you think I could have in any way posed a physical threat from the seat of my wheelchair to an army of police officers armed with weapons? This whole line of argument is absolutely ludicrous because you’re blaming the victims of violence for that violence. In fact, it reminds me a lot of the way the BBC report on the Palestinian conflict–

Interviewer: When are you going to make your compalint to the police?

JM: I will be making my complaint very shortly, in the near future.

Interviewer: Okay, Jody McIntyre, thanks very much for your time, thanks for talking to us this evening.

JM: Thank you.

Further Reading: Jody McIntyre’s blog, Life on Wheels

[ETA: Thanks to various people for letting me know the interviewer is Ben Brown.]

Guest Post: Reflections on being Jewish and Autistic: Different minorities, same critique

Rachel Cohen-Rottenberg is a wife, mother, writer, editor, artist, photographer, and leader of the Vermont Chapter of the Autistic Self Advocacy Network (ASAN). She blogs at Journeys with Autism, and her latest book, The Uncharted Path: My Journey with Late-Diagnosed Autism, was published in July of 2010. Her last guest post for FWD was “I Do Not Suffer From Autism.”

In writing this piece, I in no way wish to imply that my approach is the only approach, that having a religion is better than having no religion, or that Judaism is right and that other paths are wrong. As long as people act consciously and ethically, I really don’t care what they believe, or whether they avoid religion like the plague. I have been involved in social justice work on behalf of all people from a progressive Jewish perspective for much of my life, because that is the culture in which I find myself at home and because it provides me with a useful framework for action. I abhor proselytizing and fundamentalism of any variety; I reject violence, no matter who carries it out; and I support a just, two-state solution in Israel/Palestine, may it be in our lifetimes.

For almost two years now, I’ve become increasingly aware of how other people regard autistics. As you all know, the news is not altogether good. As I’ve waded my way through all manner of error and nonsense, I’ve had the most familiar feeling, as though I had heard it all before. The other day, it finally occurred to me: I’ve encountered the same basic stereotypes and misinformation about Jewish people as I have about autistic people.

All minority people, to some extent, have to endure similar false charges, but the similarities between my experience of prejudice as a Jew and my experience of prejudice as an autist are striking. Here are some of the most damaging myths:

We don’t love properly. In the larger, mainly Christian culture in which I’ve lived my life, the view seems to be that the Jews of the “Old Testament” were all about strict justice, and that the Christians of the “New Testament” were all about love. (I put the names of the books in quotation marks because I don’t see one as being old and outmoded and the other as having superseded it; I see them both as valid traditions in their own right.)

The Jewish God, the critique goes, is only a God of judgment, a God of punishment, a God who lacks forgiveness, and we are just like our God: cold, judgmental, merciless. The Christian God, on the other hand, is a God of love and forgiveness. When I was growing up, without much of a Jewish education, I actually believed all of this. I believed it until I was in my late thirties, and I asked a rabbi whether there was anything in Judaism to help me heal my broken heart. His reply? “Yes. Our people brought the truth to the world that there is a God who loves us and cares about our lives.” I nearly fainted. When I began to study and practice Judaism in adulthood, I was startled to find that we are instructed to love our neighbors, to love our enemies, to love mercy, and to make right the wrongs of the world.

And what did I believe about autistic people until I found out that I actually am one? I believed that autistic people don’t have empathy, the very basis of loving relationships. The lack-of- empathy trope has been at the core of autism theory for a number of years, and it’s appalling how many people still believe it. Of course, they don’t appear to have met any of the autistic people I know, nor do they seem to have much empathy for the pain and suffering this canard causes autistic people on a daily basis.

We think terms of black and white. Now, the interesting thing about this particular myth is that it betrays some pretty black-and-white thinking on the part of the people who accuse us of black-and-white thinking. For example, when people say that Jews are only about justice, it’s justice of a kind that brooks no shades of gray. Christians, on the other hand, are said to be all about love, which encompasses many, many shades of gray. But the truth is that Jewish tradition has always been concerned with a concept called tzedakah, which is essentially an action that combines justice (righting a wrong) with love (easing and, ultimately, healing the suffering of other beings). We do not think in black and white about justice and love; in fact, we combine them. To split them apart is an example of black-and-white thinking at its best.

Now, consider the myth that autistics think in black and white, usually expressed as our being all about logic and systems. In fact, some researchers believe that we have Extremely Male Brains that are high on systemizing, while non-autistics have brains that are high on empathizing. And yet, when I look at my own life, and that of other autistic people, I often see a capacity for high levels of both systemizing and empathizing, and I see them working together. We don’t split them apart. Other people do, and then they tell us that we’re the ones with the black-and-white thinking. It’s enough to make you weep.

We are excessively logical. Many people believe that Judaism is all about “legalisms,” and that it does not concentrate on coming from the heart. This particular myth is very old and very intractable, in part because most people believe that Judaism begins and ends with the “Old Testament,” ignoring thousands of years of mysticism, story-telling, discussion, ritual, and practice that are all about opening one’s heart. I’m not saying that all Jews come from the heart, any more than all Christians come from the heart. I’m saying that Jewish culture has its own ways of combining head-thinking with heart-wisdom that are little known or understood by others.

Of course, autistics are constantly stereotyped as being overly logical—except when we’re stereotyped as being out of control. And yet, somehow, we manage to have friends, families, relationships, children, and ethical lives.

We insist upon being different. For a number of years, I wore garb that clearly identified me as Jewish. For awhile, I wore a yarmulke and tzitzis (ritual fringes) every day, all day. During another period, I only wore headscarves and dresses. I now dress in a thoroughly secular fashion. When I didn’t, I got all kinds of attitude about “setting myself apart.” Of course, I wasn’t setting myself apart. I was just being myself. And I wear what I wear now because I am just being myself.

I grow. I change. I morph. I explore. I’m inconsistent. I’m human. Go figure.

Not surprisingly, I have gotten similar messages regarding my autistic sensitivities to all things sensory. I’m told that I’m “choosing” to be so sensitive, that I’m setting myself apart, when I’m really just being myself. And when my sensitivities are not as troubling, I’m also just being myself.

I grow. I change. I morph. I explore. I’m inconsistent. I’m human. Go figure.

Other people are normal, and we are abnormal. Many years ago, when my daughter was small, her father used to pick up one of her friends after school and bring him home. One December, on the way home, the young man said, “We celebrate Christmas at my house. We don’t celebrate Chanuka. We’re not like you. We’re normal.” My ex-husband took the long way home and patiently explained the concept of diversity to the young man until he got the picture.

And of course, we autists get stuck with the “abnormal” label all the time—more evidence of that dualistic, black-and-white thinking that “normal” people aren’t supposed to engage in.

We are all alike. In response to all the many myths surrounding Judaism and Jewish people, I did interfaith work for a number of years, teaching workshops in areas schools and churches. Some of the most common questions I got began with the words, “So what do Jews believe?”—as though we all believe the same thing! That was the moment I’d introduce the mantra of “You get two Jews in a room, you get three opinions.”

Likewise, it seems, people have an excessive need to see autistic people as being all alike. It usually expresses itself in terms of narrowing the definition of what autistic means. (I recently saw a YouTube video in which the mother of an autistic young man actually said that you can’t be autistic if you can speak. I was flabbergasted. ) At other times, this need to see us as alike expresses itself in conclusions by researchers that autistic people are a collection of deficits and impairments without any strengths at all. If we have strengths, they are usually called “splinter skills” (a term I despise, even though it’s got some cool alliteration and assonance going on).

Of course, we’re as varied as any other group. I’m not sure what kind of impairment, oops, I mean, neurological difference keeps people from seeing that variation. It might be interesting to do some genetic research on the matter.

We are not fully human. I first became aware that some people believe that Jews are not fully human when I was in Hebrew school and saw a piece of Nazi propaganda in which Jews were likened to vermin. I felt such pride in who I was that I just couldn’t believe my eyes. Who could really think that Jews weren’t people? Apparently, at certain times in history, a great many people.

I was reminded of this experience when I happened upon some writing by Dr. Ivar Lovaas, the psychologist who pioneered the treatment now known as Applied Behavioral Analysis. In discussing the basis of his treatment, he wrote of autistics in 1974:

“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense—they have hair, a nose and a mouth—but they are not people in the psychological sense. One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”

I shudder to think of how many people still believe this kind of thing.

Of course, Jews, autistics, and members of any other minority group share similar experiences: we are vulnerable no matter how well we “pass” and live up to the standards of the larger culture, and we constantly have to fight against the appropriation of our own voices. Moreover, the solution to whatever problem we appear to pose consists of attempts to do at least one of the following: a) efface our differences to make us indistinguishable from others, b) demand at least a pro forma conversion to the dominant paradigm, which means that we can stim/rock back and forth in prayer/be ourselves, but only out of the public eye, or c) isolate us in ways both visible and invisible.

There are many, many autistic people who cannot do a “pro forma conversion,” who cannot “pass” as I do, and who have endured severe levels of bullying, assault, and isolation as a result. I shy away from the word Aspie and I use the word autistic to describe myself in order to make common cause with people across the spectrum (in the same way that I refer to myself as a Jew, not a denominational Jew, in order to make common cause with other Jews, no matter how differently they may think and practice, and how vehemently I may disagree with them). I will continue to do both. I have Asperger’s Syndrome, and that makes me autistic. I had Jewish parents, and that makes me a Jew. I may present differently from others in my group, but then again, so do trees and birds and rocks. Why should people be any less diverse than the whole of creation?

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