Yearly Archives: 2010

Why am I surprised by this?

To begin, rather pithily: I have had very mixed experiences with medical professionals throughout my life. Some have been fantastic. Some have been middle-of-the-road. And, as you might expect to hear from a person with a chronic pain condition, some have been absolutely awful.

Recently, I had a fantastic experience in a consultation with the oral surgeon who will be — at the time of this writing — removing the three wisdom teeth that I have in my skull [note: by the time this post is up, I will be recovering from the surgery and therefore on a bit of a break from blogularly goings-on]. Given my past experiences with medical professionals, I was not optimistic going into the consultation. I have a pretty spotty history when it comes to dental sensitivity, have been labeled an “anxious” patient in the past because of said sensitivity issues, and thus have a mountain of concerns about surgical procedures because of the medical conditions that I already have — cerebral palsy and fibromyalgia among them.  I was fully expecting that the surgeon would either minimize and perhaps outright dismiss my concerns during this appointment; worse, he might actively resist giving me anything other than over-the-counter pain medications for what is known as being a very painful procedure, as fibromyalgia patients seem to have a reputation as being “drug-seeking” among some people in the medical community and in the popular imagination at large (to say nothing of the ridiculousness of getting one’s wisdom teeth removed as a method of obtaining prescription drugs).

Interestingly, this was one of those times where I would be happy to be wrong. The oral surgeon not only explained the actual procedure to me in great detail, but listened very patiently to my concerns about possible issues due to increased pain (possibly relating to fibro, as it tends to flare up after any medical procedure that involves high doses of medication that I do not normally take) and muscle spasms (that would be the cerebral palsy, which has left me with muscular weakness on the left side of my body and occasional spasm attacks in my left leg). He also asked many questions about both the fibro and the CP, and reassured me that he and his staff would watch for things relating to each condition that could possibly occur during and after the procedure.

This consultation — and the oral surgeon’s taking my concerns so seriously — was a welcome break from the fighting-an-uphill-battle-with-my-bare-hands sort of feeling that I’ve gotten from some past medical and health-related consultations. I am, of course, of the opinion that these sorts of positive experiences should not be this unusual, and that they apparently are so unusual gives me pause for a myriad of reasons.

Recommended Reading for 23 July 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Cube: Modern Warfare 2: Gaming with a Disability, Junkyard talking with Ian (MW2 Gameplay/Commentary)

I was able to get an opportunity to talk with Ian who is paralyzed from the middle of the chest down. Not letting his situation dismay him from playing video games he has been able to adapt and come up with a solution to overcome his disability.

Sustainable Diet: Common Ground Organic Farm & Veteran Cooperative

[donation solicitation at the end of article]

The model-of-care has been successfully demonstrated with over 60 Marines, veterans and military families at the current program called Operation Recovery.  The model-of-care is now positioned to expand and serve hundreds of active duty, veterans and their families through a financially sustainable program called, The Common Ground Organic Farm and Veteran Cooperative. Mr. Bornt has a lease-option and an opportunity to purchase the ideal property for the expansion – a 70-acre farm with existing residences and infrastructure within 40 miles of downtown San Diego and 28 miles from Camp Pendleton.

The potential of the veteran farm cooperative has generated collaborative interest from Camp Pendleton Marine Corps command and Chaplains, Balboa Hospital ASYMCA, Alliant University, Palomar Collage, the VA PTSD clinic and many other local and national veteran service agencies. The farm will provide a safe, familiar decompression zone, immediate veteran employment, veteran short-term housing, and peer-to-peer treatment training and veteran micro-enterprise development.

Wheelchair Diffusion Blog: Marine Veteran Invents Powered Beach Wheelchair

Blaker states that he was inspired and motivated by his Marine buddies, some of whom suffered injuries that made mobility difficult.

“I worked on cobras and hueys the avionics systems, so that’s where I got all my understanding of electronics and what not,” explained Blaker.

Blaker served six-years as a Marine, and was stationed all over the world, and after finishing his service, he now spends his time building wheelchairs that work on the beach. He was inspired to extend the freedoms non-handicapped people enjoy to those who still want to experience the beach.

Rhivolution (Dreamwidth): Practicing my dropkick skills: OCD

So I saw the book Saving Sammy at the public library, and after picking it up and skimming the inside cover, I sort of couldn’t bear to read it, mostly because the subtitle is ‘Curing the Boy Who Caught OCD’.

Caught. OCD. Cure.

Now, for those of you not aware, a few years back, the US National Institute of Health concluded that in some children with sudden onset OCD and/or Tourette syndrome (henceforth TS), the conditions appeared after the children had had a strep infection, and that this could possibly be causal. Your bog standard OCD and TS are, apparently, slow onset in pre-pubertal cases, and these cases came on rapidly, like a switch was thrown. This proposed condition is called PANDAS, an acronym for something I’m too spoon-less to write out here involving strep and pediatrics and psychiatric disorders and stuff.

Teach Me Tonight: CFP: Fat Studies Edited Anthology

CFP for fat studies edited anthology

Julia McCrossin and I were approached at the PCA/ACA Conference by a publisher and asked to put together a fat studies anthology. The result is the call for papers listed below. Please feel free to distribute far and wide with our thanks.

If you have any questions, please feel free to email either Julia or me. Our addresses are listed below. Huge thanks, and I look forward to hearing from many of you! 🙂

~Lesleigh Owen

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading[@]disabledfeminists[.]com

Recommended Reading for 22 July 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Repeating Islands: Call for Submissions:

Simone A. James Alexander and Dorsía Smith Silva are seeking submissions for an edited collection on Caribbean Mothering (to be published in Fall 2012).

This anthology will examine the diverse and complex experiences of motherhood and mothering from a broad, interdisciplinary perspective. The organizers welcome submissions that explore major cultural, political, historical, and economic factors that influence the lives of Caribbean mothers, such as migration and transnationalism. Also encouraged are writings that represent the relationships between Caribbean mothers and their children; perspectives of single Caribbean mothers; relationships of extended motherhood in Caribbean communities; and colonial, post-colonial, and modern representations of Caribbean motherhood from literary, historical, biological, sociological, political, socioeconomic, ethnic, and media perspectives. This incorporation of a variety of disciplines and methodologies will give insight to the issues on mothering within the Caribbean context and provide a space that recognizes the significance of Caribbean mothering. The aim of this volume is to foster work on mothering that integrates the disciplines of feminist ideologies, literary criticism, and cultural analysis as well as represent the diversity of the Caribbean islands and the Caribbean Diaspora.

WIRED: Danger Room: Obama Loves This Freaky PTSD Treatmen; The Pentagon, Not So Much

Concerns over risks, especially that the injection can trigger seizures, hit a key artery or puncture the lung, are valid, Lipov admits. Still, they’re rare: A 1992 study evaluating 45,000 SGB cases found adverse effects in 20 patients. And Lipov has come up with a distinct method, which he calls the “Chicago Block,” that targets the C6 vertebra rather than the traditional C7. Because C6 is farther from important arteries and the lungs, it’s less likely to be implicated in problems during an SGB procedure.

“Realistically, 1 in 100,000 people might have serious complications,” he admits. “Say we treat 300,000 veterans — that’s three people. Compare that to the military’s suicide rate.”

Online Journal: Don’t you know there’s a war going on?

For an American military already stretched to the cracking point, the human cost spreads beyond the immediate casualties of the battlefield. June was the worth month ever recorded for US Army suicides, the service reported last Thursday, with soldiers killing themselves at the rate of one per day, 32 confirmed or suspected in all. Twenty-two of them had been in combat; 10 had been deployed two to four times. What’s more, by the spring of 2009, according to The Washington Post, “The percentage of the Army’s most severely wounded troops who were suffering from PTSD [post traumatic stress disorder] or traumatic brain injury had climbed to about 50 percent, from 38 percent a year earlier.”

The one bit of good news: “Senior commanders have reached a turning point,” the Post reported on Sunday. “After nine years of war in Afghanistan and Iraq, they are beginning to recognize age-old legacies of the battlefield — once known as shellshock or battle fatigue — as combat wounds, not signs of weakness. [Army Vice Chief of Staff] Gen. Peter Chiarelli . . . has been especially outspoken. ‘PTSD is not a figment of someone’s imagination,’ Chiarelli lectured an auditorium of skeptical sergeants last fall. ‘It is a cruel physiological thing.’”

Sanguinity: To Kill a Mockingbird, Huck Finn, High School Curriculums, and Canon

One huge tension coming up is the ought/is problem. Yes, I think you could probably do a great lesson plan that includes [To Kill A Mockingbird] if you teach TKAM from a historiographical perspective (as one might do when studying sketchy roadside historical markers): who wrote it? when? why? why did they write it this way? what else was going on then? who did it become popular with? why? And so on. I’d also pair it with Mildred Taylor’s Roll of Thunder, Hear My Cry to open up a discussion of other ways a similar story could be told, and differing opinions about how similar characters or situations would play out. (I cannot find the comment now, but someone pointed out that TKAM casts Tom Robinson as a minor, almost throw-away character in the story of Tom Robinson being on trial for his life!) I like Bingo’s suggestions of how to demonstrate that the issues of racism in TKAM are not ancient history, nor confined to the South. I’d also incorporate many of Larissa’s ideas about teaching Huck Finn, if I could find parallel resources to do it with TKAM (or leverage the Huck Finn resources to work with TKAM). Additionally, because TKAM and Huck Finn are both canon, I think you can have an excellent discussion of the phenomenon of canon, how canon got to be canon, what doesn’t appear in canon, how does canon shape and/or reflect society, etc. Most importantly, I would try to pull all this off so that the discussions are worthwhile for students of color — I wouldn’t want this to become the Great Race Learning Experience for the white kids, while the black kids are sitting there having to process/deflect/cope with the racism in the novel(s) but not getting anything out of it to make their stress worthwhile.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading[@]disabledfeminists[.]com

Question Time: How do you cope with the weather?

Question Time is a series in which we open up the floor to you, commenters. We invite you to share as you feel comfortable.

Well, we’re getting well into winter here and different bits of me are aching. Winter is not my fun time. My questions to you are: do you have problems with the weather, maybe excessive heat or cold or rain? How do you deal with that?

If you have suggestions for Question Times, send them to chally at disabledfeminists dot com.

Recommended Reading for July 20, 2010

Emily Bazelon at the New York Times Magazine: The New Abortion Providers

This abortion-rights campaign, led by physicians themselves, is trying to recast doctors, changing them from a weak link of abortion to a strong one. Its leaders have built residency programs and fellowships at university hospitals, with the hope that, eventually, more and more doctors will use their training to bring abortion into their practices. The bold idea at the heart of this effort is to integrate abortion so that it’s a seamless part of health care for women — embraced rather than shunned.

gwen at Sociological Images: Power = Masculine, Weakness = Feminine

At least according to this thesaurus, masculinity is powerful, capable, competent; femininity is weak and incompetent. There’s a sexual component as well — notice that power is associated with being virile, while weakness = lustless. Of course, we also associate men and masculinity with the active pursuit of sex, while women are supposed to be the objects of pursuit, not actively sexual.

Kristen Cashore at This is My Secret (via jadelennox at access_fandom): A Voice Recognition Software Demonstration

I have this thing called thoracic outlet syndrome, which isn’t the point of this post, so I won’t get into it too much here. Basically, it’s a neck/shoulder/arm/wrist/hand/fingers pain thing, + hand/finger agility thing, that I can manage about 80% of the time with daily stretches; that 17% of the time causes me discomfort, but doesn’t limit what I’m able to do (you’ve seen the pictures); and 3% of the time makes simple motions like turning a doorknob or flipping through a pile of paper prohibitively painful and renders me incapable of typing. Copious typing is on the small list of things that causes it to flare up to that level.

Dorian at Dorianisms: (My) Disabilities and Sex

Conversations about physical disabilities and sexuality are incredibly important. I am glad they are being had, and that I have had the opportunity to be a part of several in the extremely recent past. However. I feel like my particular (almost entirely mental) issues definitely have an impact on my sexuality and sexual behaviour, and I haven’t been a part of as many conversations that centre mental issues (though I have no doubt such conversations do exist, especially Here On the Internet).

Interview: Ingrid Voorendt, Dance Theatre Director

Ingrid Voorendt is a choreographer and director as well as the former Artistic Director of Restless Dance Theatre. Restless is an integrated dance company based in Adelaide, Australia, featuring young disabled and abled dancers. Their latest show, Beauty, has just finished its run at the Adelaide Festival Centre. You can visit the Restless Dance website for more.

I spoke to Ingrid about her thoughts on disability and dance, creativity and the nature of beauty.

Please tell our readers about what you do and about Beauty. Can you tell us about your creative process in dreaming up and putting the show together, working with the dancers and those behind the scenes?

Ingrid: It’s a collaborative process, so I come up with questions and tasks to get the dancers creating movement material. I don’t choreograph ‘on’ them, we work together to devise the movement that’s in the show. In Beauty some of the movement came from interpreting the shapes, postures and gestures we found in images of women in classical visual art. The dancers responded to the images, creating movement material. We also developed material through improvisation. My job is to initiate the process and then edit, shape and compose the developing material to create a show, and to work in collaboration with the set and costume designer, sound designer and lighting designer through dialogue and decision making.

Why was it important for you to explore the notion of beauty? What do you think it is, and how to explore it in a world in which disabled people aren’t often thought of as beautiful?

Ingrid: I was interested in exploring the notion of beauty for a range of reasons, one being simply that I’d rebelled against ‘the beautiful’ in a couple of previous Restless shows I’d directed, in terms of content and aesthetic. Beauty was inspired by some of the dancers themselves, in particular Dana Nance, who is a stunning young woman with physical and intellectual impairments. I was interested in the oscillation audience may perceive or experience between Dana’s beauty and her impairment. With Beauty, I wanted to make a work in which the disabled performers would be viewed as beautiful first and foremost. My favourite moment in the show was when Dana stepped into a projection of the Venus de Milo (a classic image of beauty), in which she fits perfectly.

I think beauty is much more than surface, as I believe we all do, but we live in a culture increasingly driven by the visual, by a world of images. It’s true that in our society disabled people aren’t often thought of as beautiful, and I hope Beauty questions this in a subtle way. Beauty is also linked to sexuality, which is also often denied in disabled people.

How do representations of women’s bodies tie in with disability in Beauty?

Ingrid: I found it interesting to discover during our research that (unsurprisingly) many of the poses found in images of women in classical visual art are echoed in contemporary fashion photography and advertising. So in a subtle way in the show we were playing with these images which reference both the past and the present, but disabled women were the ‘bodies’ being looked at, and on their own terms. The opening of the show was a solo by Jianna Georgiou, a gorgeous young woman with Down Syndrome, who is a beautiful, quite voluptuous dancer. I loved watching this solo, because the movement within it is so evocative of classic images of ‘beautiful’ women – and Jianna is very beautiful, and is also a proud disabled woman. I liked the fact that Jianna was representing herself, yet referencing the bodies of others. I hoped that the audience would question their perceptions around who is/whose bodies are beautiful.

Now that the run is over, do you have any thoughts you’d care to share looking back on the experience?

Ingrid: It’s always such a fast and intense process making a show, and there’s so much I’d like to change and develop further. I think Beauty could have gone a lot further and deeper than it did. Hopefully there’ll be a chance to revisit it in the future.

From Sea to Shining Sea: Bad Ass Disabled Vets Refocus Their Military Training

Military personnel learn to apply their earliest military training to many parts of their lives. From the first moments of boot camp our lives are broken down and that training is ingrained into our very being. We take that training with us long after the uniform hangs unworn in the closet and the neckerchiefs lie in the drawers. Even today, I can write a business email in all acronyms, because it is still the most formal and proper way I know. One time we “tossed racks” because Kid couldn’t find something and insisted it wasn’t in her room. I can fit many t-shirts in a drawer or suitcase, thanks to a certain Chief, who, incidentally was not my division chief, but who seemed to think the sun shone from my arse nonetheless.

For some, it helps to pull us through the unexpected twists that life hands us. I am sure I am not the only person who will endure more pain than is required before complaining because I believe it is expected.

For Marc Esposito, a 26 year-old Air Force Sergeant and member of a special tactics squadron until his humvee hit a roadside bomb, his training helped him focus trough the year of rehab at two separate medical facilities, including the Walter Reed Medical Center, where he re-learned how to walk.

Now he is using that focus — that training — to ride with Sea to Shining Sea, to raise awareness for the Special Operations Warrior Foundation for wounded veterans, and in his own words,”[T]o hopefully show any kind of disabled American you are still capable of doing amazing things […] and hopefully change the perception of what it means to be an athlete.”

Sea to Shining Sea is a group of 17 cyclists, most of them disabled veterans, who started the journey of some 4,000 miles from San Francisco on 22 May, by dipping their wheels in the Pacific Ocean, and plan to end it by dipping their wheels in the Atlantic in Virginia Beach on 24 July. They have averaged about 50 miles a day.

Some people don’t understand that the training doesn’t leave you. It isn’t something you take off, and in some cases, this is a very good thing. The drive it takes to recover, the intensity it takes to stare illness and injury head on, the nerve it takes to accept that your career may be forever ended or changed … all of that comes from the part of you that is broken down and rebuilt ahead of time. All those weeks, months, years ago when you step off the bus and dress to that line for the first time. They rebuild you up, and it becomes a life skill that you use to accept, use, and build upon.

And it allows you to meet any task head on, using whatever you have left.

Sometimes all you have left is enough and you have no other desire but to give it.

Because that is all we know.

We know to take what we have left, and give something back.

Sea to Shining Sea is nothing short of Bad Ass, and I am not doing them justice, because I have struggled over days to write this post. I have wept a little at what these people have done with what they have kept and done. I am so proud of them, and so humbled to know that they, through their hardest, darkest times, have pulled through because of a common link and have spun it around to something positive, and to something healing, and are finding a way to use it to raise a positive message for disabled veterans everywhere.

Thank you to s.e. smith for the link, because ou is always looking out for me.

Recommended Reading for 19 July 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Hope Is Real: Fibromyalgia Is Not Caused By Men

I remember the invite said that the speaker thinks women have fibromyalgia, because of the stress of men not providing enough for women. This statement offends me to the core and it is just another example of patriarchial bullshit. It is not that I do not think we need each other, we do. People need people in order to survive, but I do not believe that there is one group of people who needs to care for womyn more than another. There are all kinds of communities of people who care for each other. What I take the most offense is it is the language of domination. It is not men who need to take care of womyn, but rather it is people that need to take care of people. I am not interested in someone solely taking care of me, but in being in a relationship where people take care of each other. I am interested in reciprocity

CTV News: Counsellors cite Afghan war for military domestic abuse [trigger warning for descriptions of violence]

“Our anecdotal evidence is that there is an increase in the amount of domestic violence, and in the amount of children who are seeing violence in the home.”

Many military members are now shouldering the residual stress of two, three or four tours in Afghanistan or more, Lubimiv said.

“When a soldier returns home, many have talked about feeling like strangers, not knowing where they fit. And it takes time to close that particular gap. And if there are, on top of that, mental health issues — or if there is already an issue of conflict or discontent in the couple’s relationship — then all of that gets magnified by the new experiences that they each have faced.”

Most troops will work through their issues on their own and gradually reintegrate, Lubimiv said. “But many don’t respond in that way, need additional help or haven’t been identified.”

Wisconsin State Journal: Vets cheer change on PTSD claim

The rule change will have its greatest effect on Iraq and Afghanistan veterans because so many non-combat personnel encounter roadside bombs, and because there are few places not in danger of mortar attacks or suicide bombs.

Even Wisconsin National Guard troops performing administrative jobs in Baghdad’s Green Zone were within range of mortar rounds that insurgents occasionally lobbed in blindly, said Bob Evans, the state Guard’s director of psychological health.

Most of the 3,200 members of the state Guard who had duties as prison guards or support personnel in Iraq last year underwent stress that could lead to PTSD, Evans said.

“I’ve seen people who weren’t even close to the battlefield who came down with PTSD and anxiety disorders,” Evans said.

Anishinaabekwe: We Are a Generation of Healers

We are a generation of healers because we can choose to turn the intergenerational trauma to intergenerational healing. We can start with ourselves and our families. I have been really blessed to have a family that is open and committed to healing. I know many people who have had to completely cut themselves off from their family and do healing on their own. In my healing work I have been able to reflect the inner work I have done on my family. In turn, each individual in my family can reflect the healing that they have done onto each other. I have worked in the Native community and will continue to do so. I can reflect and send the healing I have experienced in myself and in my family into the community. Healing happens in a circle.

Deeply Problematic: Wendy Garland dies after abuse and neglect from family

The death of Wendy Garland is horrific. Her abuse went unnoticed, unchecked because of ableism: societal devaluation of people with disabilities and misplaced trust in abled family members. Garland’s death is a direct result of abuse on the part of her caregivers, the people in her life that some want to canonize and position as her selfless saviors. Parents, partners, siblings and other folks taking care of persons with disabilities can be wonderful, but they are not necessarily helpful: they can hinder, they can neglect, they can abuse, they can hurt, they can kill.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading[@]disabledfeminists[.]com