Yearly Archives: 2010

Bloggy Housekeeping Tasks

I wanted to bring folks’ attention to a few things on the blog!

  1. We’ve recently rolled out a new page, called “Need Help?” In it we list a variety of resources and aid agencies from around the world. The list is incomplete, and focused a great deal on English-language resources. If you are aware of any resources that are not listed, please let me know so I can updated it accordingly.
  2. We’ve also recently set up a delicious account that people can send links to! The account itself is at www.delicious.com/feminists , although it’s mostly going to be used as a way for people to send links to us easily. If you use delicious, anything you tag “disfem” or “disfeminists”, or send “to:feminists” is going to get to us. Suggestions for Recommended Reading, for resources for the “Need Help?” page, or for Further Reading would be great!
  3. If you don’t have a delicious account, don’t hesitate to use recreading AT disabledfeminists DOT com for any link-leaving needs!
  4. As a reminder, we don’t often check the @feminists twitter account for @replies. It’s almost entirely an automated twitter that we log into occasionally. It’s far better to email someone or even leave a comment if you have a concern.

I should note that we don’t link everything that comes to us for our Recommended Reading. This is because there is a lot of stuff out there, and we do try and pull from a variety of places, both in blog-terms and in physical locations. Mostly the aim of Recommended Reading is to show that there are a wide variety of blogs out there that discuss disability and disability-related issues and oppressions, and to keep track of news stories that may be of interest to our readers.

That all said: I hope folks who enjoy the World Cup (*cough* abby jean *cough*) are enjoying the World Cup. I’m going to take myself to the coffee shop so no one tries to tell me about it anymore!

I Bet It’s Exactly Like That!

[Trigger Warning for descriptions of violent thoughts of self harm]

Oh, by now, faithful readers, you know where we are about to go. We are about to go on a little journey into my mind, the scary place that it is, where I open the floor to discussion about the ways that, once again! Stars and Stripes has managed to get so much so wrong. Because tonight, gentle readers, as I clutch the place that might be close to where my duodendum is and sip my Korean Red Ginsing tea, which the lady at the market told me might help my indigestion, I am reminded once again that I am my mental health are nothing but a metaphor to be co-opted at someone’s convenience!

Let me give you a little background here, because the only online version I can scrape up is this e-version of the print edition, and while WAVE found no accessibility issues with it, I am not going to guarantee that it will be accessible to everyone or accommodating of everyone’s needs. It is, however, a way around their habit of not putting all of their content in their online version (and also allows deployed troops to access the daily paper as well). The front page has the story’s picture, of a white male soldier in Army Green uniform: a light green collared shirt, black tie, green jacket with various awards and pins, a black belt, a black beret, holding a rifle with a bayonet affixed to it. The text on the photo says “Model soldiers [break] Every detail counts when you’re trying to join the storied Old Guard”. The actual article starts on page 4 if you are so inclined to read.

The Old Guard is a ceremonial guard that headquartered out of Fort Meyer, VA, and performs most of its duties in Arlington National Cemetary, similar to the Navy’s Ceremonial Guard, in that they perform many military funerals daily with the cleanest of precision. Their military bearing is expected to be above and beyond that of any other in their branch of service. Their uniforms are expected to be ridiculously perfect, with exquisite attention to the finest aspects of the details, not missing a single loose thread or even a speck of lint. A scuff on your shoe could set you back a week in training. They stand grueling hours at “attention” (The Navy’s Ceremonial Guard does this while holding the business end of the rifle and keeping the butt parallel to the ground for hours, I do not know about the Army’s Old Guard. Full disclosure: I once and briefly dated a guy from the Ceremonial Guard). Everything you know about military bearing is wrong when you arrive for duty, and it is re-taught to “look better”, including the way you turn, march, stand, dress, and press your uniforms (you are even issued special dress white uniforms that are made to withstand the repeated ironing in the Navy Ceremonial Guard).

Do you see what I did there?

I was able to give you some brief background on the very strict regulations of the Old Guard and the Ceremonial Guard without using ableist language. I didn’t once have to compare soldiers or sailors who are required to iron their uniforms exactly right, or who are trained to notice when their medals are one sixteenth of an inch off from the proper dress line to someone who actually obsesses over things like drinking bleach or shoving cork screws in her eyes. Or what it would feel like to jump from a fifth floor balcony.

Because these, my gentle readers, are actual obsessions. They actually intrude on your thoughts and disturb your life, and are really very upsetting, I can assure you. They make you do things, like pull out your hair, burn yourself with a curling iron, wash your hands again and again, and pick at the little imperfections on your skin. Yes sometimes you even iron your uniform again and again and again because you just can’t get it right and double creases are the End of The Universe as We Know It, but it might be because you are certain that if you stop then you are going to iron your hand, not because your Leading Petty Officer is going to chew you out (or your whole division, I mean, does the article expect me to believe that the entire Old Guard has Obsessive Compulsive Disorder? Because that is not on the application!) but maybe because you recently thought that you might do something very harmful to someone you loved if you stopped holding that iron very tightly. Even if your LPO has put the fear of Cthulhu in you.

Being part of an elite military unit who is honored to be charged with memorializing the fallen and handing flags to their loved ones* or escorting the President or guarding the Tomb of the Unknown Soldier is a pretty powerful thing, I am sure. The end result of the intense training, of the weeks and weeks of repeated inspections and physical demands, might very well leave some people with OC tendencies or maybe even OCD outright I suppose — I am not a doctor I don’t know and I don’t pretend to know every experience — but it isn’t the same as living with a condition that sometimes (OK, often) inhibits your day to day ability to live, interact, and (here’s the important one) do your job because you are busy carrying out compulsions to get the damned obsessions out of your head.

Yeah, getting worked up over a uniform inspection? I bet it’s exactly like that!

Only, I’ve been there and done that and bought the cheap t-shirt (hell, I’ve been the OC girl who has had to prepare for uniform inspections!).

It isn’t anything like that at all.

*I want to also point out that the article, for those of you who aren’t able/don’t want to read it via the e-reader the requirements for Old Guard: Must be 5’10 or taller, must have combat experience, blah blabbitty blah. Nothing like another exclusionary Old Boys Club for the military, so they can sit around and pat each other on the backs about how Awesome! they all are. I might note, out of some Branch Pride that the Navy Ceremonial Guard frequently wins the Joint Service competitions and they have *gasp* women in their guard.

Oh, and those people receiving flags? Always widows. Always. Way to erase anyone else who might be a surviving loved one of a fallen troop, there S&S, Army, and anyone else involve. UGH!

Announcing: Helen Keller Mythbusting Blogswarm!

A banner that has an image of Helen Keller in the center.  On on side it reads: Political Activist.  Radical Thinker.  Suffragist.  Pacifist.  Journalist.  Socialist.  Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010
Image Description: A banner that has an image of Helen Keller in the center. On on side it reads: Political Activist. Radical Thinker. Suffragist. Pacifist. Journalist. Socialist. Who was she? On the other side it reads: Helen Keller Mythbusting Day 2010″

I learned that Second Life and Virtual Helping Hands are hosting a Helen Keller Day on Second Life on June 19th.

Helen Keller Day is a day set aside for information acquisition, education, exploration of employment opportunities, social engagement, and enjoyment of arts and entertainment. There will be vendors, employers, presentations, and pure, unbridled fun.

I think this is awesome. If I played Second Life, I would be all over this.

It did get me thinking a lot about Helen Keller, and the way people talk about her and use her legacy – something I’ve discussed on FWD before, in Feminist Icons and Subverting the Narrative.

A few years ago someone on a feminist site posted a list of the top 100 historic women in the US, and the list included Helen Keller. A commenter mentioned being surprised to find that out, because… well, what did Helen Keller actually do?

The answer to that question is what this Blogswam is all about.

What’s a blogswarm?

On the appointed day (or there abouts) – in this case, June 19 – people post about Helen Keller. Ideally, they’ll link back to a master post (which I will be hosting here on FWD) and leave a link indicating their participation on the master post. Then, people will be able to see lots of posts about Helen Keller in a variety of places from a variety of points of view.

Okay, but I don’t know much about Helen Keller. Are there some resources so I can learn?

Yes!

This is just a very short list. Your local library may have many books. I never resist the chance to push Lies My Teacher Told Me by James A Loewen, which talks about Keller in the first chapter. The American Foundation for the Blind has a selected Bibliography of books by and about Keller, but I have not read them so I have no personal opinion on them.

But there are other women with disabilities connected to Helen Keller’s life, and I don’t think they get enough attention either. Can I write about them as well as or instead of Keller and still participate?

Yes! In fact, I think it’s an important part of the mythbusting about Keller to talk about Anne Sullivan, who was blind for parts of her life, Polly Thomson, who was a companion and aid to both Sullivan and Keller in later years, and Laura Bridgman, who was also deaf & blind and was “famous” before Keller. And this list is pretty US-centric, and entirely white. Bust the myth that the only women with disabilities doing anything of interest in the nineteenth and twentieth centuries were white women from the US! A very short list: Frida Kahlo, Jhamak Ghimire, Ragnhild Kåta, Theresa Ducharme…

I also think that it’s relevant to talk about Keller’s legacy, and how the treatment of her story – in productions like The Miracle Worker and the oft-repeated story of “the hand in the water” – affect perceptions of people with disabilities, especially blind and d/Deaf people, today. Brownfemipower linked to this discussion of Blind Rage and the Legacy of Helen Keller on TheGimpParade, as an example.

I’m really not up to participating, but I want to be supportive. What can I do?

Spread the word! Tell a friend! Read posts! Link others to posts! Bust your own myths, so that the next time someone says something ignorant about Keller or the work she did, you can gently (or not!) correct them.

I want to participate! But I don’t know if I can on June 19th.

Then write something on another day. The reason I suggest doing it all on the same day is because blogswarms will push across the blogosphere and people will notice them all at once. But please don’t feel obligated or that you’ve “failed” if you don’t write something about Mythbusting on the day.

Also, don’t feel you have to write something new. If you’ve previously written something about this and would like it to get some more attention, feel free to link it as well.

So, now what?

Well, on June 19th I’ll post up an open post about Helen Keller Mythbusting Day here on FWD. Folks can drop their links in right away – my goal is to have it open as early on the 19th as possible. Check back throughout the day to see what posts people have written!

I hope to see lots of awesome posts on June 19th!

Chatterday! Open Thread

This is our weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Got any questions for your fellow FWD commenters?

A note to commenters: Please, as with other threads, keep the length of your comments down. A usual guideline, in the absence of extenuating circumstances, is to stick to around three pithy paragraphs or so, and to avoid making back-to-back comments.

Today’s chatterday is hosted by a stack of lemurs, from The Daily Squee.

twin lemurs riding on top of each other on a mother lemur's back

Recommended Reading for Friday June 11

A woman holds up a sign reading Time to act... NOW!
A woman holds up a sign reading Time to act... NOW! The Disability Action Force on Housing is a grouping of people with disabilities, particularly developmental disabilities, engaged as self-advocates, along with their allies. They hosted a rally to push for action on the housing crisis. It was on the steps of the provincial Legislature of Alberta, in Edmonton, on June 11, 2007.

Photo by Grant Neufeld, used under a Creative Commons License.

Disability Disclosure Online

We have all heard stories about people who have lost their jobs because of pictures that surfaced on the Internet that show their after-hours behavior. A similar, but unfortunate tale is the one of the individual with a disability who is denied employment or resources because of someone’s assumption about that person’s disability which they uncovered on the Internet. Though this is not always the case, it illustrates how imperative it is for all individuals, especially those with disabilities, to decide what, when and how they disclose. You have to be aware of everything you say and do on the Internet. Here are some general guidelines that are important for all online users, including people with disabilities, to keep in mind.

Via @disability on twitter: Interview with Brock Waidmann

Many in the disability community have been calling for Hollywood producers to cast real people with real disabilities in roles where the disability has little or nothing to do with the plot. The people behind the Paul Reiser Show, a series which will soon be broadcast on NBC, will apparently do just that. Twelve year old Brock Waidmann has been cast in the role of Zeke, one of Paul Reiser’s two sons on the show. This interview with Brock Waidmann took place by email over a couple of weeks in June 2010. This is Brock’s first ever interview.

Light Headed, weak-kneed: Both the Man and the Ban

This is why today, Good As You is participating in a blogswarm with AMERICABlog, AKAWilliam.com, Bilerico Project, Blabbeando, Change.org, DailyKos, David Badash, Firedoglake-The Seminal, Joe Mirabella, LGBTPOV, Mike Signorile, OpenLeft and Rod 2.0. We, as a coalition, are asking you to submit public comment in support of revising the discriminatory and medically unwarranted FDA lifetime ban on blood donations from any man who’s had sex with another man (MSM) since the time when the first Star Wars was on the big screen (1977).

What I just told someone who didn’t match current autism stereotypes.

Kanner saw a bunch of people and grouped them together. He observed some things about them. Some of the observations were accurate. Some were more conclusions than true observations. Then he came to conclusions based on both types of observations. Many of his conclusions were false. (Note: Most of Kanner’s patients would today have a high chance of being diagnosed as AS and all but maybe one or two fit at least one definition of high functioning. Several went on to college. There are many modern myths about who these people were.)

The next person came along and put more people into the category of autistic. These people included people who appeared like Kanners patients appeared, people who were like Kanners patients were, people who appeared like Kanners conclusions, and people who were like Kanners conclusions.

US State Dept announces new passport rules for transgender people

“Sexual reassignment surgery is no longer a prerequisite for passport issuance,” [the State Department] said in a statement.

From June 10, “when a passport applicant presents a certification from an attending medical physician that the applicant has undergone appropriate clinical treatment for gender transition, the passport will reflect the new gender,” the statement said.

Law Enforcement Braces For Wave Of Autistic Young Adults [I’m really struggling with this article. It’s an investigative piece about law enforcement and both tasering and shooting of autistics. It tries to balance a few different viewpoints. I’m not sure it does that in a way that’s necessarily effective. There’s reference to “waves” of autistics, and a sense of emergency about this. I don’t want people to go into the article unaware that that is there.]

Indeed, individuals with developmental disabilities such as autism encounter the police on less than ideal terms far more often than does the general population. They are about seven times more likely than others to have “contact” with law enforcement, autism expert Dennis Debbaudt, the author of Autism, Advocates and Law Enforcement Professionals, and Dr. Darla Rothman wrote way back in April 2001, in the FBI Law Enforcement Bulletin.

[Related: Tybee Police ‘apologetic’ for Tasing autistic teen]

Two Years: Reflecting

So many of these conditions need more awareness! So many are poorly understood and under-researched/under-funded. So many involve patients whose experiences are not validated by our society or even their own loved ones (especially true for the “invisible illnesses”). Many patients are accused of exaggerating or of having “psychosomatic” illnesses. I struggle with how to give fair time to each of these illnesses. Which way should I turn? Which illness is facing the most pressing issues? Which illness is having an awareness day/week/month? How can I best help the causes that are dear to me? What is the most efficient use of my time?

Where should I go next when there is so much to do?

Headlines:

New Zealand: Autism a learning preference, not a disability “New Zealand schools should view autism as a learning preference, rather than a difficulty or disability, says UK educationalist Neil Mackay.”

“Automatically labeling autistic students as disabled, rather than recognising and responding to their unique and preferred ways of learning is not only limiting but also damaging. Placing a focus on preference rather than disability enshrines the right to be autistic.”

China: Foxconn to up wages again at suicide-hit China plant

A total of 10 workers have committed suicide at the company’s base in Longhua, southern China this year. They were all young migrant workers, among the millions of people who leave the poor hinterlands of China for the boom towns of the south and east coastal areas.

Another worker died late in May from what his family said was overwork, a claim the company denied.

The string of deaths have focused attention on working conditions in a region experiencing growing labor unrest and have triggered investigations by Apple and other big Foxconn clients, including Dell Inc.

Apple CEO Steve Jobs called recent suicides at the plant troubling but said last week the site was not a sweatshop.

Canada: Restraint technique led to Hyde’s death: lawyer. “The death of a mentally ill Nova Scotia man who fell unconscious after struggling with jail guards was the result of a dangerous restraint technique that stopped his breathing, a lawyer for the man’s family told an inquiry Wednesday.”

Namibia: Are Namibian Women Being Forcibly Sterilised?* “A landmark court case, alleging that HIV-positive women were forcibly sterilised in Namibian state hospitals begins in Windhoek’s High Court on Jun. 1. Human rights groups claim the practice has continued long after the authorities were notified.” [Via bonesarecoralmade]

US: Douglas signs guide dog bill “Gov. James Douglas has signed a bill into law that increases civil and criminal penalties for those whose pets attack guide dogs for the blind.”> [Via Service Dogs: A Way Of Life]

Quoted: Audre Lorde

The supposition that one [group] needs the other’s acquiescence in order to exist prevents both from moving together as self-defined persons toward a common goal. This kind of action is a prevalent error among oppressed peoples. It is based upon the false notion that there is only a limited and particular amount of freedom that must be divided up between us, with the largest and juiciest pieces of liberty going as spoils to the victor or the stronger. So instead of joining together to fight for more, we quarrel between ourselves for a larger slice of the one pie.

— “Scratching the Surface: Some Notes on Barriers to Women and Loving” (1978), in Sister Outsider: Essays and Speeches (The Crossing Press, 1984)

Disability-Centered Writing Wanted!

Redstone Science Fiction is running a contest!

Towards an Accessible Future

Redstone Science Fiction is calling for contest submissions that incorporate the values discussed in the essay The Future Imperfect by Sarah Einstein.

What does a world, or space station, or whatever look like when it has been designed to be accessible to everyone and how would people live together there?

The submissions should portray disability as a simple fact, not as something to be overcome or something to explain why a character is evil. The submissions should also incorporate the portrayal of disability in a world where universal access is a shared cultural value.

Check out all the details!

AND!

Popular Genres and Disability Representation

Romance novel or western, detective serial or horror film, the genre of a text affects how we “read” it, including our understanding of disabled characters. Genre forms may impose constraints upon the creators of texts, such as a particular setting or narrative structure, but they may equally open up new possibilities for representation. In science fiction, for example, new technologies, alien bodies, and alternative environments can challenge understandings of what constitutes disability or impairment. Michael Bérubé speculates that the genre is “as obsessed with disability as it is with space travel and alien contact.” What opportunities (and what constraints) might science fiction present, then, with regards to disability representation? More generally, how do the structures and conventions of genre forms, such as the need for heroine and hero to be united in romance, affect the representation of disability?

This special issue of JLCDS will explore the interplay of genre and disability with a focus on popular genre texts, whether in fiction, film, television, or other media. Submissions might consider representations of disability in particular texts or authors, in specific genres, or in mainstream texts that enter into dialogue with genre; alternatively, they might examine disability theory in relation to genre theory, or the role of fan communities. This list is not exhaustive, so submissions on other topics related to disability and genre are very welcome.

Get all the details!

Why My Disability Makes Me a Better Employee

As people may have noticed, I’ve been a bit quiet lately, mainly due to being totally snowed in and overwhelmed at work. I’ve had a major project with a hard deadline and have been devoting nearly every waking moment to either working about it or just worrying about it. That worry and constant fretting is directly related to some of my anxiety issues – it’s a worry I feel both mentally and physically, with tensed muscles and clenched stomach and jitters. And I’m convinced that anxiety helps make me a better employee and better at my job.

I am a lawyer and my major project was a hearing with an administrative law judge to determine whether one of my clients will be considered disabled by the Social Security Administration and thus eligible for cash benefits and medical coverage. Our office had been working on this case since his initial application for benefits in 2006 and in the interim, I’d seen him struggle to avoid homelessness while his income disappeared and his medical condition deteriorated without access to effective medical treatment. So this case was an extremely big deal and the outcome would make an enormous difference in the course of his life from this point.

No pressure, right? And it didn’t help that it was an extremely complicated case involving about 15 years of medical records from 10 different medical providers and facilities about three or four distinguishable medical conditions. And that, although his disabilities have extremely serious effects, they were the kind of disabilities that Social Security usually has a hard time understanding and so tend to lead to findings that the individual is not disabled. So – a major case with a lot of difficult work for an extremely important outcome. And the short time between when we were notified of the hearing date and the actual date meant that to succeed, I would need to spend nearly every waking minute in between working on the case.

Which is when my anxiety kicked into high gear – and actually made that possible. I spent all my time in the office reviewing records, teaching myself relevant medical terms and context, and coming up with an overarching narrative to frame the disabilities. But when I would close the file and go home at the end of the day, my anxiety would not let me stop thinking about it. While I was driving, making dinner, in the shower, at the gym, my mind was constantly spinning, either worrying over some aspect of the case or making a list of my next steps when I got back to work. I was not only waking up in the middle of the night to spend some time thinking about the case while staring at the ceiling, I was dreaming about it.

When I’m that anxious about a specific topic or issue, I think of my brain kind of like a rock polisher – it takes a dull idea or problem, with jagged edges, and rolls it over and over and over (and over) again until the edges are worn down and the surface is polished to a brilliant finish that can be appreciated by even the most casual observer. But the end product wouldn’t be the same without the constant, unceasing motion and effort. If the motion, the tumbling, stopped for stretches of time, the end result would not be as smooth, as shiny, as easily appreciated.

My anxiety makes it impossible for me to slack off while working on such a major project. Even when I try – by watching tv, reading a book, talking to my cat – there’s a portion of my brain that keeps spinning and spinning away, and my whole body is ordering me to pay attention to that part of my brain. Yoga wouldn’t help, hot baths didn’t work, even a hard session on the treadmill just made me more tense. The only thing that would reduce the anxiety was making some progress on the case.

I think that drive makes me a better employee and results in better and more persuasive case work. I certainly know that I would love to take breaks and put work out of my mind and to not dream about it every night. But I don’t think the end product would be as good if I were able to do that. So my employer never needs to worry about me blowing off a case or putting less that my full effort into it, because of the anxiety that will not permit me to do anything less.

(By the way, we won the case and my client will get his benefits. Yay!)

There are definitely other aspects of my disability that either aren’t relevant to or actually make it more difficult to do my work, and I don’t want to imply that everyone who is a lawyer should have anxiety to make them more effective. But this particular aspect of my disability definitely enhances my ability to focus and concentrate and motivates me to put in lots of time and thought, which is an advantage for my job.

Are there aspects of your disability that enhance ro amplify your abilities in certain areas?

Recommended Reading for Thursday, June 10, 2010

A sign shaped like West Virginia that reads: West Virginia Schools for the Deaf and Blind Established 1870
A sign shaped like West Virginia that reads: West Virginia Schools for the Deaf and Blind Established 1870

Photo by Justin A. Wilcox, used under a Creative Commons License.

[Redacted]

Trigger warning.

I have [redacted]. I am a clinically depressed woman who doesn’t always take her antidepressants or go to the doctor when scheduled or do what she’s supposed to, and I have [redacted]. [Redacted] is one of those things where, if you have it, (according to the local prescriptivists) you need to see a doctor and stay on antidepressants and take care of yourself so that [redacted] doesn’t become [even more redacted]. I’ve heard arguments about [redacted], saying that people with depression coinciding with [redacted] don’t have any rights to their autonomy any longer, that they have, just by having [redacted] have turned in their bodies as forfeit to whomever is deemed as having medical authority over themselves. We are no longer autonomous, because people just don’t trust those with [redacted] to not [even more redacted].

Poverty, Worklessness… and the #DLA

But the report then doesn’t note the factors which lead to these institutional barriers: it appears good enough to note 24% of disabled people have no formal qualifications or that over half are not in work and offer no reasons for this. The effect is to create a suspicion whichs fall on disabled people as not trying hard enough to gain a qualification or get a job – something it is convenient not to correct in order to maintain the overall narrative.

(Similarly, pupils with Special Educational Needs face some of the most significant barriers to educational achievement it is possible to face. However, the only mention of pupils with SEN in the report (in the educational disadvantage section) is to note that 9.2% of pupils with SEN are ‘persistent absentees’, compared with 2.1% of pupils with no SEN.)

Thus, if you want to build a narrative, it is perfectly possible to do so. Taking this approach, at best, the report draws the wrong conclusions based on the evidence available; at worst, it is willfully ignorant.

Audio Tours of Popular UK Destinations Presented By RNIB

On my trips in the past I have participated in guided tours. Some have been better than others, but I think that having a tour with the blind in mind would be the best. There are a lot of visual cues that tour guides rely on. Also, by having the tour be self guided, blind and sighted patrons can take as much time as they need.

Queer Tropes

As many of you know, June is the month of LGBTQ Pride and I couldn’t think of a better time to call out a few tropes that inundate comics and media when it comes LGBTQ characters/themes.

Tropes that if I never see again for the rest of my existence, I’d be eternally grateful.

While this by no means covers every trope/issue/fail, it definitely hits the major ones.

Take thorough notes, I’m gonna move fast, and this will not be pretty.

Too Deaf For The Gym?!

They replied that they needed confirmation from my doctor that as a deaf person it was safe for me to exercise.

I felt annoyed, mildly insulted, and completely inconvenienced, as this means asking one of my friends to call my doctor to request a note, as funnily enough I can’t do this myself.

Victory for Transgender People in Wisconsin Prisons

Prison doctors in Wisconsin, as in some other state prison systems, have for some time provided hormone therapy for some transgender prisoners, since hormones are part of the accepted medical treatment for many transgender people. Back in 2005, after the Wisconsin legislature got wind of this practice, it passed the “Inmate Sex Change Prevention Act,” which barred state prisons from providing hormone therapy or sex reassignment surgery to transgender prisoners. The new law over-rode the medical judgment of prison doctors and cut off hormone treatment. The ACLU, in partnership with Lambda Legal, sued immediately, securing a preliminary ruling that any prisoners already on hormone therapy could continue their treatments. Senior Staff Attorney John Knight, along with ACLU of Wisconsin Legal Director Larry Dupuis and lawyers from Lambda Legal, tried the case in the fall of 2007.

It took a few years to get a decision, but it was worth the wait.

Recommended

Even more curious is the immediate slippage from nobility to “legal incompetence” and “mental institution.” Don’t know what to make of that. Some thoughts. You can be declared “legally incompetent” and not be “confined.” I cannot believe that having spent some time in a residential care facility invalidates (deliberately used) your capacity to be and value as a citizen. And if it doesn’t, why does immigration need to know? USCIS doesn’t ask about all medical conditions requiring residential care…. And what of “legal incompetence?” I have no idea what the implications of this are for immigration. I know a little bit about what it entails in the area of family law and medical self-determination, but immigration? Beats me. Suppose, however, that the answer is yes. That you were declared “legally incompetent” midway through the application process and that at the time of interview, your status was not determinable and that you might never be able to affirm your desire to become a US citizen. Does that invalidate your application? How much does being able to communicate that you still wish to become a citizen affect your application, if, say, you would qualify on all other grounds?

Hugging Problems

Recently I was thinking about hugging and remembering what physical affection was like at the ASD school where I interned last summer.

I remember the last day I was there I asked my favorite kid, R.D., if I could hug him. He said yes, but when I put my arms around him he didn’t put his arms around me. I remember that this was something I did at his age, and it was because I saw hugs as an opportunity to get my whole body squeezed tightly. But I also wonder if, given the culture of the school, R.D. felt that he had the right to say he didn’t want to hug.

Headlines:

UK: Dangerous Psychiatric Patients tracked with GPS: Potentially dangerous psychiatric patients are being fitted with GPS tracking devices to prevent them absconding on day leave.

US: Removing ‘Retardation’ from New York State Agency: For the second time in a year, New York legislators are considering changing the name of one of the only state agencies in the country with “retardation” still in its title.
See Also: Push To Eliminate ‘Mental Retardation’ Contentious In Holdout State

New Zealand: Auckland’s newest all-access playground opens: This unique playground features an inclusive, all-access play space that is accessible to children of varying abilities, including disabled children.

Recommended Reading for Wednesday June 9, 2010

A person who is using a wheelchair and wearing a t-shirt that reads Feel the power of the disability vote

Image: “Feel the power of the disability vote – Protest of California health care budget cuts (2009)” by Steve Rhodes, used under a creative commons license.
Description: Person who is using a wheelchair, wearing a t-shirt that reads “Feel the power of the disability vote”

Don’t forget to submit to this month’s Disability Blog Carnival!

The Media’s Struggle with Disabilities

Restaurants, airlines, and other companies tend to struggle when it comes to dealing with a person with a disability. But one line of work we haven’t touched on yet is the media. And believe me, despite working in the journalism field, the media is not exempt from my disdain!

There are three phrases found in almost every article about a person with a disability. And each of these statements drives me up the wall. Let’s examine them individually.

In Michigan, HIV Positive no longer equals terrorist

For Smith, the fact that Allen was HIV-positive was like he was walking around with ticking time bombs inside of him, waiting to tear down people in his wake. By all accounts, it was a gross misuse and misapplication of the Michigan anti-terrorism law (even the authors of that law eventually criticized Smith for labeling HIV-positive people as terrorists), but for months Smith wouldn’t cave in to demands to drop the charges. He wanted Allen to be charged with bioterrorism, solely for living with HIV.

My Deafness Wishlist

We chatted about technology for a while and this eventually turned into useful apps for my iPhone in terms of my deafness and other things I’d like to make life easier in my Hard-of-Hearing World.

When we were talking though, my mind went quite blank, but now I’ve had a chance to think a little bit more about it, it’s made me resolve to start compiling my Deafness Wishlist – things I want changed or services I’d like to see.

I mean I know I write about them often, but perhaps if I put them all in one place, it’ll make it easier when I bump into VIPs on the bus…

So here we go

Meet the “New” Autism Speaks

But other research projects that Robison has been blogging about strike me as problematic. Take, for instance, this post lauding some new Autism-Speaks grants. Basically, it seems to me more of the same: research pushing for earlier identification, insistence on the centrality of “early intervention,” etc. What does this do for autistic people right now? I note that autistic children are already being identified at earlier and earlier ages. Why is it so vital that we keep pushing the age down? Does it really matter that much if we identify an autistic child at 22 months as opposed to 28 or 29 [months] for instance? I’m not convinced, and the endless repetition of the “early intervention” mantra is not a substitute for actual science which is willing to question supposed “truths.” Nor does this kind of research truly deserve, IMHO, the amount of money it is receiving. Where are the supports for older autistic people, as researchers rush to “identify” earlier and earlier?

Preventing tragic outcomes starts with us

The Province of Nova Scotia spends about 3.5% of its annually recurring health care budget on mental health, and a fraction of that on child and youth mental health services. This is in spite of the knowledge that about 3/4th of all mental disorders arise prior to the age of 25 years and increasing realization that early intervention and effective treatment may prevent substantial long and short term negative outcomes and yes, maybe in this case would have prevented such a tragic outcome.

Headlines:

Namibia: Women Petition Against Forced Sterilisation

“HIV-positive women are holding the healthcare system accountable for the wrongs done to them,” said Veronica Kalambi of the Women’s Health Network.

Kalambi said these alleged violations of women’s rights are in the context of a broader set of violations occurring against women at hospitals and clinics.

“People should have peace of mind that if they are HIV-positive, they can still go to the hospital and be treated with dignity and equality,” said Vicky Noa, who claims that she was sterilised in 2001. She organised the Ondangwa sit-in.

US: Winning Wheelchairs Kids roll to victory in special track meet
It’s a right of passage for so many kids: the end-of-year track meet where schoolmates race against each other. [I think this article is problematic.]

Teenagers face stigma of mental illness

Canada: School Moves Away From Coding Kids Classes integrate all types of students

Tucked in the city’s deep south near 42nd Street and 12th Avenue, it is one of 16 city public schools testing an innovative new program that mixes kids who have special needs into regular classrooms.

The two-year pilot project is part of an attempt to move away from “coding” students according to disability, then allotting funds based on the number of children with special needs.

Canada: No Taser on mentally ill: Lawyer This case is about the death of Howard Hyde in police custody in Halifax, NS. Here is an archive of news stories about the tasering case.

UK: Wheelchair ramble along Y Lôn Goed Gwynedd Council is supporting a joint project which arranges an annual programme of guided countryside walks for the less abled and wheelchair users – again this year the walks will visit some of Wales’ most fantastic locations.