Yearly Archives: 2010

Not-Quite-Recommended Reading for Saturday, May 15

I’ve got a collection of Canadian news stories that are disability-related, and I don’t want to hold on to them for later.

Calling out bus stops now a human right

Regional council hopes this will fend off a potential prosecution by the Ontario Human Rights Commission. The commission says announcing stops is an immediate need and it’s not good enough for drivers to call stops on request, as they do now. This follows a landmark ruling won by a blind Toronto passenger in 2007.

[The case they’re referring to is Lepofsky vs the Toronto Transit Commission, which I found very interesting when I learned about it. Lepofsky first brought suit against the TTC in 2005, which resulted in the stops on the subway being called. After that case was won, he contacted the TTC and said “So, you’re going to do this on the buses as well, right?” and they said no, so he had to bring suit against them a second time.]

Airline apologizes for forgetting blind teen

The 18-year-old was waiting for flight attendants to escort her to a connecting flight to Florida when she heard the plane door seal shut. Ten minutes later two maintenance staff happened to find her on an unscheduled check of the plane.

She panicked in the plane, calling for help.

After a series of complaints, Cabot received a $250 airline voucher and the promise of an apology. Five weeks after her flight and a series of news stories later, she finally got one.

Why yes United is the airline that treated LJ-user Evilpuppy so shabbily, and then sent her a letter explaining that they’re really sorry, but this situation was at least in part her fault.

Wanted: People with disabilities to work in high-level banking jobs

Patey gives examples of the range of “invisible” disabilities that might qualify, “Someone who has had a heart attack who is no longer able to work at the same level as he did prior to the heart attack or individuals that experience prolonged feelings of anxiety or depression. These are the kinds of folks that we want to reach and interview for these banking jobs.”

[I admit to looking sideways at that article and its particular focus on the “right” type of disability. I haven’t sorted what I think of it at all.]

NEADS has put out their Studying and Pursuing a Science or Technology Career as a Post-Secondary Student with a Disability Guide. Not being a Science or Technology Person, I can’t really speak to it myself, but I know NEADS is an awesome resource for post-secondary students with disabilities across Canada.

From the press release:

While research has been conducted on factors affecting the inclusion of the general student population in science and technology-related programs, very little work has been done to highlight the issues and challenges faced by students and employees with disabilities within this sector. Furthermore, the identification of role models or success stories in science and technology is not encouraged every student and educator, or every employer and employee, facing these issues may well believe that they are the first, ever, to do so. Our new Success in STEM guidebook meets our initial project goals and is a unique and invaluable resource for students, teachers, service providers and employers.

Chatterday! Open Thread.

This open thread is brought to you by this sushi cake, via Epicute.

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Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Got any questions for your fellow FWD commenters?

Carer hits PWD on the head in public; World points and laughs

No, it is not fucking ok for carers to hit people with disabilities on the head when they don’t do as they’re told. NOT. OK.

Why does this need saying?

At a football game at Saltergate, groups of Chesterfield fans “invaded” the pitch joyfully as their team defeated Bournemouth.

The Sun described the scene thus:

Supporters dodged stewards to pay their parting tribute to the League Two side before they move next season to a new ground in the town. Among them was a man on crutches and the young man wearing a baseball cap and dressed in the club’s blue and white colours in his wheelchair furiously pushing his wheels and speeding across the pitch.

Moments later an older man dashes on to the pitch and grabs the wheelchair and pushes it back to the stands. And as the youngster is shoved back across the pitch the older man gives him a playful clip across the head.

A spokesman for Chesterfield said: “It was a good natured pitch invasion resulted after the goal. To everyone’s amusement one youngster in a wheelchair got twenty yards on before being rushed off by an embarrassed helper.”

[WARNING for video footage]

This footage has been called “heart-warming” and “comical”, “legendary“, “hilarious” and “brilliant”, “touching” and “a joy”, “fantastic” and “priceless“.

One forum user said “The clip round the ear after is the best bit.”, another “The clip round the ear, pissed myself.”; another said “The slap on the head is great”.

I just want to cry. This footage is horrifying – assault and battery of a PWD who cannot get away, perpetrated by a carer, in full view of thousands. Assaults like this happen every day behind closed doors, as abusive carers and healthcare workers who have PWD trapped and dependent hit them and neglect them and rape them. And people around the world are laughing at this assault.

What is there to say? What is wrong with the world?

Grey’s Anatomy Ableism: “How Insensitive”

Spoilers for Grey’s Anatomy, up and including to episode 6×21, How Insensitive.

Grey’s Anatomy, a sudsy USAn medical drama based around a Seattle surgical team, is one of those showers which I can love or hate. On the one hand, they have a cast of fabulous and complicated women – Miranda Bailey! Cristina Yang! Callie Torres! Arizona Robbins! It not only passes the Bechdel test in every episode, but the people of colour Bechdelesque test in most episodes – and, which is considerably more rare on popular television, the women of colour variant.

Disability, however, it’s not so good on. There’s a main character (Owen Hunt) with PTSD who is portrayed in fairly interesting and complex ways (though he’s a white man whose PTSD was acquired entirely “conventionally”, in battle), but as a show which is focused on experimental and heroic cures of ‘broken’ folk, there are also major issues. And the fat hate. Oh my, the fat hate.

The most recent episode swung wildly from a scene I absolutely loved, to a scene that was so full of ableism that I was barely able to get through it. So I thought I’d share.

Background: a disabled, very fat man, Bobby Corso, has been brought in to hospital with abdominal pain for investigation. Bailey has attempted to offer “sensitivity” training to the residents, who are pretty much failing across the board. The residents are sitting eating lunch together; the woman who comes in is Mrs Corso (do we even learn her first name?), who is pregnant.

Transcript:

Yang: Let’s say [picks up a skinny chip] this is the wife.

Meredith Grey (looking horrified): No! Don’t do that.

Yang: And this… is him! [picks up large hamburger, bursts out laughing]

Karev: So I won’t be eating that now.

Yang: She’s gotta be on top.

[Lexie Grey smiles.]

Karev: She’s gonna get altitude sickness. [bursts out laughing]

[Mrs Corso, a slim blonde white women, is walking past. She stops and looks at the gang.]

Lexie Grey: [notices, suddenly looks serious] Guys.

Yang [looks at Mrs Corso]: Uh. Sorry.

Mrs Corso: It’s alright. I get it. [approaches table] You’re trying to figure out how my husband and I managed to get a baby in here. [Gestures to abdomen, smiles.] There are some logistics involved. Do you want me to tell you?

[Lexie and Meredith look abashed.]

Mrs Corso: [still smiling] But first! How about you tell me how you like to do it with your husband? Or your girlfriend? Any favourite positions? Or kinks! [wide smile] Let’s talk about that! Because I know you all must have a freakshow of your own goin’ on! Who wants to go first?

[Yang and Karev look abashed.]

Mrs Corso: No. Nobody? OK. [more serious] Well it’s probably none of my damn business anyway. [long look. Walks away. All the residents look abashed.]

[Cut to Bobby Corso lying in a hospital bed. Ex-chief surgeon Dr Richard Webber is standing with Mirand Bailey by his bedside.]

Webber: The fat under your skin has become necrotic. Has – has died. And the infection is eating through your skin.

Corso: Huh [wry semi-laugh]. I suppose it had to come to that. I’ve eaten everything else.

Webber: The operation is extremely risky. You have a higher than normal chance that a surgical complication could kill you.

[Karev enters the room.]

Corso: If I don’t have the surgery – I die? [Webber and Bailey look serious.] How long will I have, do you think?

Webber: Mr Corso, you want the surgery. You want to try

Corso: I’ve tried. Everything. High protein, low carbs, drugs, pills, hypnosis. I’ve tried everything.

Bailey: You have a baby on the way. Think about that.

Corso: Who do you think I’m thinking about? You dream of having a kid. [sentimental piano/strings music starts up in the background] You picture yourself playing ball with him. You picture her standing on your feet while you dance around with her, you know? You don’t picture them bringing you food and [disgusted look] cleaning you up. I can’t walk four steps to go to the bathroom. You tell me – who deserves that guy as a father?

[Bailey and Webber look at each other, as if to say, ‘He has a point.’]

Corso: I just wanna be gone before the kid has a chance to know who I am. Don’t – tell my wife about this, ok? Just tell her it’s too risky. Let me go home.

[Mrs Corso enters.]

Bobby Corso: Hey, peanut.

Mrs Corso: What’s going on?

This video clip starts off great. Someone is finally speaking up and telling this rude, obnoxious residents exactly what is and isn’t their business when it comes to their patients’ behaviour and bodies. She’s rocking my world!

But then, it all comes crashing down, with the treatment of Bobby Corso’s disability. I felt like his little speech reflected the ideas of the writers: If you can’t walk and dance, if you can’t independently wash your own body, no child ‘deserves’ you as a parent, and you don’t deserve to be a parent. Especially when your disability is, in society’s fucked-up opinion, your own damn fault. It’s only sensible to think that you’d be better off dead, that your children would be better off never knowing you. The tragedy is not your acute infection and your possible impending death, but your very existence. Doctors understand this, though they may go through the motions of challenging it (in paternalistic ways that include telling you what you ‘want’).

There’s a further rage-inducing scene where Mrs Corso scolds Karev, saying “You don’t know that inside all that is the same man I’ve always known”. I think the writers are making it clear, again, that like so many people in our culture, they don’t see fat people and disabled people as full humans at all. They want to believe that there’s a “real person inside”, meaning a thin abled person; while the actual person, the actual body, is a facade that can be dismissed and pushed aside in disgust. Disabled bodies are not real. Not authentic. They don’t really count, and we’d rather not think about them. The only way some people can value PWD as humans beings is to pretend that “beneath” their disability, there is some other person that doesn’t make the person with the abled gaze feel uncomfortable. With this cognitive sleight-of-hand, abled folk get to pretend that they’re oh-so-terribly accepting and magnanimous, while lovingly maintaining the care and feeding of their disgust and hatred of the disabled body.

Later in the show Karev abandons his sensitivity training and yells at Corso, calling him selfish for planning to “leave a 700-pound mess for your wife to clean up”. Corso has surgery and survives the operation, in which he is serendipitously found to have a perforated diverticular abscess on his bowel; his presenting abdominal pain had been misdiagnosed as being due to his subcutaneous infection. He pledges, with the badgering of his doctors, to diet. The take-home message? The only way someone who can’t walk or clean themselves could reasonably be a parent is if they go to strenuous efforts to cure themselves, and succeed, first.

An aside-ish sort of a question: Can anyone think of any TV shows or movies (or books, if you like) which pass a disability Bechdelesque test?

1. It has to have at least two people with disabilities in it
2. Who talk to each other
3. About something besides an abled person.

Or please feel free to discuss the clip and the issues raised in it.

Recommended Reading for May 13, 2010

Jacquelyn Palmer-Boyce lies on her back, wearing a yellow t-shirt and jacket and a yellow bandana on her head, surrounded by dandelions for MCS Awareness Month. ©2010 John Boyce

Photo via The Canary Report, who writes: “Heralding MCS Awareness Month, profile photos radiating the warmth and vibrancy of yellow are popping up throughout our community on Facebook and on our network. Yellow, for those of us with Multiple Chemical Sensitivity, symbolizes the canary in the coal mine, with which we all identify. Our identity as a canary embraces and honors our bodies’ wisdom, and uses our song to alert the world of the menacing dangers of toxic consumer goods and a polluted planet.”

Alexandra Lammers and Eric Hoyle, she in a wedding dress with a festively decorated cane and he in a morning suit exit the church after their wedding.
Alexandra Lammers and Eric Hoyle, she in a wedding dress with a festively decorated cane and he in a morning suit exit the church after their wedding.

Photo from The New York Times Vows article about Lammers’ and Hoyle’s wedding. While Lammers was using a cane due to an injury, rather than a disability, it was still nice to see a mobility aid in the New York Times like this.

Disability Scoop – Disability Advocates Reserving Judgment on High Court Nominee

Disability advocates were hesitant to say much about [nominee to the United States Supreme Court Elena] Kagan. Without a judicial record, they said little is known on her positions regarding disability rights law. “I think her hearings are going to be important,” Louis Bossing, senior staff attorney at the Bazelon Center for Mental Health Law, said of Kagan’s upcoming Senate confirmation process. “We’re going to spend time working with the judiciary committee so the senators can ask questions we’ll need to know whether to support or oppose her nomination.”

The New York Times – When Treating One Worker’s Allergy Sets Off Another’s

On the first day Ms. Kysel took Penny, [her allergy-detection service dog] to work, one of her co-workers suffered an asthma attack because she is allergic to dogs. That afternoon Ms. Kysel was stunned when her boss told her that she could no longer take the dog to work, or if she felt she could not report to work without Penny, she could go on indefinite unpaid leave. She was ineligible for unemployment compensation because of the limbo she was put in.

Ghana News Agency – Women with disabilities demand respect from society

Women with disabilities in the Upper East Region has called on society not to see them as liabilities but help empower them so they could take care of themselves. They complained that many people regarded them as a curse to their families and did not want to associate with them especially in issues of marriage. They explained that when they receive marriage proposals the potential groom’s family would usually argue that the disabled woman would join the family with her curse and discourage their son. These concerns were raised at a meeting of the Association of Women Living with Disabilities, held in Bolgatanga, to discuss their situation and find ways to make things better for their members.

MB the MD/MC – on (dis)ableism

I have a lot of people in my family with disabilities, though none of them would consider themselves disabled. In talking with another radical woman of color, it seems that disability is so the “norm” in our communities, it’s often not marked as an identity unto itself. I often wonder about what a release it might be for women of color to see disability as a framework that intersects with race and gender, to not always feel the need to keep fighting, even when it hurts, to let go of the ways that we as cis and trans women of color in particular, have taken up ableism in ways that reproduce harm to ourselves and the communities we “work” so hard and care for. Why does disability mostly look white?

Associated Press –Feds Sue Over Treatment of Disabled in Arkansas

The federal government accused Arkansas in a lawsuit Thursday of leaving people with severe mental or physical disabilities with no choice but to go into state institutions. The Justice Department lawsuit accused Arkansas of a “systemic failure” that places people in institutions when the state should pursue less restrictive avenues for their care. “The state gives individuals with developmental disabilities the draconian choice of receiving services in segregated institutions or receiving no services at all,” the lawsuit states. The federal government accused the state of violating the Americans with Disabilities Act, which guarantees people with developmental disabilities the right to live in the most appropriate setting for their needs. The state has six centers for the developmentally disabled that, in all, care for about 1,100 people.

A faded street sign reading 'CAUTION DEPRESSION AHEAD' is in focus with a blurry background of escalators.
A faded street sign reading 'CAUTION DEPRESSION AHEAD' is in focus with a blurry background of escalators.

Photo credit unknown, seen at Nowhere Pixie.

Slam after slam for people with disabilities in Australia’s new Budget

The Australian Federal Budget is out, and it’s being feted in the media as a sober, sensible fiscally reasonable budget in which there are no really big winners or losers. “No frills, no thrills, no spills”, says the ABC.

Except for people with disabilities. What has received a little bit of coverage is the fact that there is no improvement in funding for public mental health, despite lots of rhetoric in that direction from Rudd and his cronies. There is apparently nothing toward practical improvement for Indigenous health, and $380M in cuts for disability pensions.

$380M in cuts for disability pensions.

Applicants for the Centrelink disability pension who are considered “borderline” will be routinely denied, put onto Newstart (unemployment payment), compelled to stand in line every fortnight and job-search on an ongoing basis, and sent to “up to 18 months” of mandatory job training.

Let me guess – “borderline” means “the probably currently-nondisabled official making the assessment will decide that they can’t see the disability concerned”. I expect this to disproportionately affect people with mental health issues, fatigue based disabilities, autoimmune problems, chronic pain, and so forth.

And let me guess again: if PWD are too sick to get to their training courses but can’t “prove” that to some random douchebag’s satisfaction, they’ll get breached (decreed as being in breach of Centrelink requirements) and, in the absence of substantial family support and the ability to organise themselves through a litany of appeals and assessments, end up on the streets.

This combination of further increases in the already huge pension obstacles for people with “less clear” disabilities, along with no improvements in mental health and Indigenous health programmes, is, in my opinon, a recipe for a huge increase in homelessness.

But Treasurer Wayne Swan is spinning this as being for PWD’s own good.

The Sydney Morning Herald explains further:

New applicants will first undergo a ”job capacity assessment”, as they have always done. But the government is reviewing the impairment tables to make it a tougher assessment and harder to get to first base. After that unless people are manifestly incapable of any paid work, or clearly incapable of working even 15 hours a week, they will be put on the Newstart Allowance. Then they will be sent on a training course, either with a special disability employment agency or a regular one. The training is meant to increase the numbers who can work at least 15 hours a week, thus disqualifying them from the pension.

Efforts to curb the growth in the numbers going on the pension would be admirable, given people mostly stay on the pension for life. But the move is not admirable in the absence of an increase in the level of Newstart Allowance, or a loosening of its income test, which exacts harsh punishment on those who get a little work.

On the disability pension a single person can live a frugal life on $350 a week. On Newstart a single person is plunged into poverty on $231 a week. How many of the 25,407 people who might once have qualified for a disability pension will end up, not in work, but unemployed and in poverty?

The comments at the Herald, enragingly but unsurprisingly, are full of people flailing around about how people on disability pensions are big bludging fakey fakers.

Another slam for taxpaying people with disabilities is the change in the tax offset for medical expenses. There will be a big jump in the offset threshold and indexing after that, expected to take away from PWD almost much again as the funding cuts for disability pensions.

Lastly, the Pharmaceutical Benefits Scheme, Australia’s mostly very good pharmaceutical subsidy and safety net programme, will be “reformed” to the tune of $2 billion in government savings – but we’re not told how.

In other news, there are huge boosts in funding for elite sports and for ‘border security’. So crips will be paying for Olympians and for the harassment and prolonged detention of immigrants – while many can’t afford wheelchairs, homes, or medication.

This budget, just to make my disgust even more perfectly clear, is coming from a nominally LABOR government.

On twitter I summed the budget up thus:

@ilauredhel Aust’s priorities: $237 M boost for elite sport; $1.2 B boost for ‘border security’; $380M CUT for disability pensions #budget

I’m still gaping. At the budget itself, and at the nodding, satisfied happiness of most of the political media at there being supposedly “no big losers”.

Recommended Reading for Wednesday, May 12, 2010

In case of emergency, sprout wings and fly

I am sure we have all seen this one in its many guises, but I thought it was a particularly spectacular example given that nobody of historically recorded human height could have reached this pull cord. It’s about 10 feet up.

Access win? Calling all adventure service dogs

I visited a cafeteria and store at a venue along Hadrian’s Wall. Let us for the moment overlook that they had a gravel path leading to their disabled toilet facility, which then had a step on the door and look at this win for service dogs with a yen for an adrenaline rush.

The Beginning

Things quickly went downhill from there. Without a break in my mania I took LSD. Everything becomes a blur at this point. I ended up in the psych ward and was immediately diagnosed bipolar. They wanted to hold me past the 72 hours they could hold me without a legal hearing. They strongly encouraged me to stay and not go to the hearing. I went to the hearing and appeared before the judge completely lucid in my presentation. I was released. I threw away the medications they had given me.

It’s Easy [Trigger warning for violent imagery]

When you assume that something that’s simple for you is going to be simple for me, you’re making many assumptions about my ability level. Just because I look like you doesn’t mean I am like you. When you belittle the struggle the making a phone call or looking you in the eye is, it’s like a slap in the face. Just because you can’t see the fight doesn’t make it not real.

The views of a Disabled Lib Dem Supporter on a Coalition with the Conservatives

The Tories want to destroy the welfare state and the NHS. As a disabled person reliant on disability benefits and the care system, and pleased to live in a country that offers these things to its citizens, I am terrified that the Tories will leave me destitute and without care or medical support. Please stand up for the welfare state.

Nick Clegg himself has been outspoken on the Tory ‘marriage tax allowance’ policy, which privileges marriage over alternative families, including my own LGBT partnership, and the many single parent families and extended families of all shapes and sizes that make up the UK. Please stand up for alternative families.

Niqab in Quebec: The Misguided Protection of Gender Equality

While reading this deeply engaging work, I was thinking of women wearing the niqab and the recently introduced Bill C-94 in Quebec that allows many government funded institutions to refuse basic services to these women. These include government departments, crown corporations, hospitals, daycares, schools and universities which receive funding from the province. The Bill is being promoted on the premises of gender equality, requirement for integration, and security concerns. Jaques Charest has characterized the Bill as being necessary to “draw the line” in religious accomodation. Quebec Immigration Minister Yolande James further explains, “If you want to integrate into Quebec society, here are our values. We want to see your face.”

The Politics of Book Selection

And it’s not that books by women and non-white and non-heterosexual cis-gendered people haven’t been nominated before. They have. I’ve even nominated them myself. A select few have made the final short list, but for whatever reason, they don’t get picked. I have a theory about why this keeps happening, and it is not that my department is run by smelly old white dudes (the chair is a dude, but his hygiene seems fine, also young, and the co-chair is a lady). I think it’s just risk averseness. These texts keep getting picked because they are “safe.” We live in a world in which the voices and perspectives of non-white/straight/cis/male people just seem, well, inherently more “political” and therefore more likely to piss off the conservative state legislature, students, parents, and confirm that our school and department are, in fact, the stuff of David Horowitz’s fevered nightmares.

Carnivals!

Inaugural Blog Carnival: Challenges of Doing Diversity and Environment

Dance Party!

A range of women’s voices in rock

Psychiatric Hospitals and Music Videos: Part 2

People seemed to like the first edition of this series! So here are some more music videos set in psychiatric hospitals! In the last post, all of the videos used the mental hospital setting as a visual demonstration of the depth and intensity of love, depicting institutionalization as a result of loving someone a whole lot. These videos do not do that.

One video that especially doesn’t do that is Green Day’s ‘Basket Case’

Visually, the video seems similar to the previous ones. The band plays in the common room of a mental hospital in which they are patients. There is no padded room, but several people are being wheeled around passively as if they are catatonic or sedated. Later in the video, both staff and patients appear wearing masks from Terry Gilliam’s Brazil. So what is different? The song itself (lyrics here), which is about lead singer Billie Joe Armstrong’s struggles with anxiety and panic attacks. So while in the same setting, instead of declaring his love for someone, he is saying:

Sometimes I give myself the creeps
Sometimes my mind plays tricks on me
It all keeps adding up
I think I’m cracking up
Am I just paranoid?
Am I just stoned?

On the opposite end of the spectrum, there’s Eminem with the video for “The Real Slim Shady.”

There’s a lot going on in this video and I really don’t want to describe or discuss very much of it at all, because it is offensive up and down and across and diagonally in 17 different ways. (Wikipedia has a very detailed description of the video and an explanation of all the references and insults in the lyrics and the video.) Let’s focus just on the portions set in the mental hospital, where Eminem and other patients, in scrubs or hospital gowns, fidget and wander in a waiting room while Kathy Griffin and another nurse try to control them and hand out their medications. It is just as cliched as the other videos’ portrayals of hospitals, but seems to be played for laughs. And the message of the song and the video are that Eminem is so much better than other celebrities and musicians, so much more clever and original and “real,” that he’s been institutionalized to control him for speaking truth to power. This message could be read as a good reminder of the use of institutions to control and punish people both with and without disabilities for being political and advocating for their rights! Like happened just recently! However, the whole rest of the song and the video is so puerile and hateful that the comparison itself is offensive.

Ugh. I dislike Eminem very much.

Let’s move on and look at a video that is utterly ridiculous and is a tie-in to a movie that is also utterly ridiculous – Limp Bizkit and ‘Behind Blue Eyes,’ from the Halle Berry movie Gothika:

I have a really hard time doing any kind of critical analysis of this video due to the aforementioned ridiculousness factor. The song (lyrics here), which was originally written and performed by The Who, can be read as expressing the lived experience of mental illness? Maybe? But the video – which starts with Limp Bizkit lead singer Fred Durst as a patient in a phsyciatric hospital and Halle Berry as a doctor, and then they kiss, and then they have magically switched bodies? souls? something? So now Berry is the patient and Durst is the doctor! Gothika the movie featured Berry as a doctor in a psychiatric institution who became possessed by a ghost and murdered her husband and then was a patient in the institution but only because of ghostly possession, not because she had a mental illness or anything. But even putting all of that ridiculousness aside – and that is a boatload of incomprehensible creative choices – Fred Durst’s efforts to engage in “acting” when he becomes the doctor and leaves Berry in her padded cell make me laugh so hard it’s impossible for me to focus on anything else in the video.

I have a few more videos for a part 3, but if you know of any I’ve missed, please let me know in comments!

Recommended reading for May 11, 2010

sqbr at Poking at Thorns (with gloves on): Disability in Speculative Fiction: Monsters, mutants and muggles

Fiction reflects social attitudes, and the social attitudes to disabled people tend to suck. Disabled people are presented as scary, pathetic, exotic, demanding, laughable, etc. But some tropes are popular/unique to SF.

It’s not all bad: speculative fiction allows for powerful allegory, and can also make very interesting explorations/extrapolations of future attitudes/experiences of disability.

Jamer Hunt (Fast Company magazine): Our Bodies, Our Quantified Selves

The data generated by this micro-physics of the everyday has the potential to create unprecedented, massive databases available for projects from a dizzying array of fields. Imagine what researchers studying disease epidemiology might do with this information, or anthropologists exploring changing social patterns within the digital proletariat.

Courtney at From Austin to A&M: Cosplay, race, ability and gender; or, who gets to dress up as whom?

Doing cosplay as a femme!Doctor (or a black Doctor, or a visibly disabled Doctor, etc.) is part necessity (as in, I am in a lady-body, so if I want to cosplay as the Doctor, he would have to be a lady-body-Doctor, like a person in a wheelchair would have to be a wheelchair-user Doctor, or a black person would have to be a black Doctor). But it’s also a way for fans to see themselves in the Doctor, as the unquestioned protagonist of the show. Doctor Who fans can say all they like that DW is progressive enough in its way, but it’s still dated by its insistence that the main character be a white British man.

Lisa Sanders (NYT Magazine): Diagnosis — Pregnant and Pained

She didn’t have a fever, but the racking cough made her body ache all over. Her husband said it sounded as if she were coughing up a lung. Her OB said it was probably a virus. Whatever it was, it didn’t go away.

Switchin’ to Glide: “Independent Women”: Privileged Feminist Ideologies and Ableism

Independence or the pursuit thereof is a pursuit of privilege; the less that one has to depend on networks and relationships the more “successful” that person is. This is a profoundly ableist notion, in the sense that it constructs any sort of dependency as an obstacle to “success,” and because of the way our society is structured, people who are disabled are neccessarily dependent on various support systems.

Guest Post by Lightgetsin: The one where I shout about able-bodied technology privilege for a while

Guest post bylightgetsin, originally posted April 29, 2010.

I love it when well-meaning able-bodied people try to pimp their technology at me because hey, they just got this new gadget, and it’s accessible, isn’t that cool? I should get one!

No. No it is not, and no I will not, and I am getting progressively less and less polite about this. Like the random dude this morning who was all, “my GPS talks, you should get one!”

Okay. For the record. Your GPS may “talk,” but it is not accessible. Maybe it will vocalize directions, but what good does that do me? How am I supposed to use the touch screen controls, all the menus with no speech, the setup process, the default reliance on graphical maps? I mean, seriously, in what universe where you think about this for more than five seconds is that accessible?

As a matter of fact, I do have a GPS. It is not the cute little “it’s only $250” model this guy shoved at me this morning. Mine cost seventeen hundred dollars, runs on a proprietary software platform, is three times the size, and currently has wildly outdated maps.

“It talks” =/= accessible.

Also, telling me after I point out that a website is really inaccessible that “it has hotkeys, you know,” is not helpful. Hotkeys, on the extremely rare occasion they actually work (they are usually duplicative and suppressed by all my intricate native Windows and screenreader keyboard commands), also =/= accessibility. I can maybe hit a link, but how am I supposed to, I don’t know, read the website text? Awkward.

Also, the next person to tell me to get a Kindle . . . really shouldn’t. The Kindle occasionally reads a book out loud, though of course not as many now that Amazon has thrown its users under the buss in the face of an illusory and baseless copyright complaint. I’ve helped out with the Reading Rights Coalition, so I could go on about this at great length. But the Kindle itself is not accessible, and Amazon has no plans to make the relatively minor adjustments to make it baseline usable.

I have a handheld reading device. Hint: it cost more than a Kindle.

Accessibility comes at a financial premium as much as five or six times the going market rate for any given device, and usually runs years behind the curve. I’m going to need to use a Blackberry next year – an access solution for Blackberry just came out a few months ago (costing several hundred dollars over top of the normal Blackberry purchase price, of course), and by all accounts it is a largely nonfunctional piece of crap.

Apple might be pursuing out-of-the-box accessibility with no consumer premium, but pretty much no one else is. And OSX still isn’t a viable choice for me as Voiceover doesn’t do a half dozen things I need it to. So no, random gadget probably isn’t accessible, and frankly I’d rather not hear about it and have to explain again why not and just how much more money I will be paying for something that does less.

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