Daily Archives: 2 December, 2010

Guest Post: I Do Not Suffer From Autism

Rachel Cohen-Rottenberg is a wife, mother, writer, editor, artist, photographer, and leader of the Vermont Chapter of the Autistic Self Advocacy Network (ASAN). She blogs at Journeys with Autism, and her latest book, The Uncharted Path: My Journey with Late-Diagnosed Autism, was published in July of 2010.

I do not suffer from autism.

I suffer when someone calls my way of being a disorder.

I suffer when others invest time and money to prevent people like me from being born.

I suffer when anyone suggests that I might recover or be cured.

I suffer when others feel sorry for me or for the family I have created.

I suffer when I fear that people will consider me broken.

I suffer when my being autistic scares people away.

I suffer when others try to silence me.

I suffer when people suggest that I do not have all the same feelings they do.

I suffer because I must describe my way of being by referring to a medical diagnosis.

I suffer because I live in a society that does not celebrate difference.

I suffer because I live in a culture that does not cultivate sensitivity.

I suffer because I live in an environment that values appearance over substance.

I suffer because I live within a social order that calculates human worth based on productivity and conformity.

I suffer because I live in a world that does not honor the gifts that autism brings me.

I suffer because I have learned to apologize for who I am.

But make no mistake: I do not suffer from autism. I do not suffer from who I am.

[Interested in guest posting for FWD? Please see our Guest Posting page for more information!]

Record of the Dead for November 2010

Trigger warning for discussion of murder and abuse of people with disabilities. This month’s list also includes disabled people who were victims of sex-based crimes before their deaths.

This list of November media reports about people with disabilities murdered or dying under strange circumstances is presented without commentary, but that doesn’t mean that there’s nothing people may want to discuss about it in comments. I do not believe for a moment that this list is complete. It is sorted alphabetically by last name. Almost all links are to news reports.

“Amanda” (unidentified by any other name; police have not released her name), 23, back injuries that required a walker to get around, Flint, Michigan, November 16. “Someone had hit her with a car, and left her to die.”

Cynthia Burns, 58, stroke and undefined physical disabilities, Wylie, Texas, April 2009. “The 5-foot-5 woman weighed 54 pounds when she died.”

Thomas Boyle, two broken hips, Oklahoma City, Oklahoma, November 17. Died in a house fire.

Cynthia Cline, 51, “mentally disabled”, East Liverpool, Ohio, November 13. She was stabbed once in the abdomen by her boyfriend.

Antonio Quinton Clarke, 15, learning disabilities, Philadelphia, Pennsylvania, November 25, 2007. “He was so badly beaten, his face was unrecognizable.” No one has been charged.

Amanda Cooper, 10, “developmentally disabled”, Los Angeles, California, November 27. “Authorities are investigating whether she was killed as part of a sexual assault.”

Laura Cummings, 23, “mentally troubled”, North Collins, Massachusettes, January 21, 2010. Her mother smothered her with a pillow; her half-brother is facing charges of sexual abuse against Laura. The prosecutor described her “depraved and horrific mistreatment of her daughter and her post-plea claims that her daughter’s misconduct led to her own death.”

Jennifer Daugherty, 30, “mentally disabled”, Greensburg, Pennsylvania, February 11, 2010. “One of Jennifer Daugherty’s alleged killers described in gruesome detail Monday how the six suspects repeatedly tortured the mentally disabled woman for 48 hours before they voted to kill her.” They killed her by “repeatedly stabbing” her for 30 minutes, then slit her throat.

Tiffany Demus, 31, “cerebral palsy and the mentality of an 8-year-old”, Arlington, Texas, sometime during the week of November 22. The only details as of this writing are that she was found dead in a park after having run away from home following a family argument.

Dawn Driver, 60, schizophrenia, affective psychosis and chronic anxiety, Leyland, UK, July 23, 2010. After receiving anti-psychotic medication, she jumped to her death in front of a train.

Loren Donn Leslie, 15, blind, Vanderhoof, British Columbia, Canada, November 27. Police are not releasing the cause of her death. She was found dead on the side of a rural road. Police have a friend of hers in custody.

Luella Edge, 80, “Alzheimer’s disease and was a paranoid schizophrenic”, Bellaire, Ohio, some time after April 30. She had disappeared from her retirement home 7 months ago; her remains were found in a wooded area near-by.

Lynsie Ekelund, 20, partially paralyzed, Santa Clarita Canyon, California, sometime after Feb. 17, 2001. Her murderer recently confessed to raping and strangling her on the way to a party.

Ila Gandhi, 62, schizophrenia, Mumbai, Maharashtra, India, November 14. Strangled in her secured building. Her mother was also seriously injured.

Paul Harden, 25, undefined mental health condition related to PTSD, St Helens, UK, October 29. Unexplained drug overdose.

Ryan Hughes, autism, ADHD, Newcastle, Co Wicklow, Republic of Ireland, September 3, 2009. Choked to death on a latex glove while being cared for at a respite facility. His death was ruled accidental.

Tom Inglis, 22, brain damage, London, England, November 21 2008. Lethal injection of heroine administered by his mother, who barricaded the door to his room and super-glued the door closed. [More details about this case]

Joan Johnston, 57, used a mobility scooter, Scarborough, UK. The doctor who hit her vehicle in a head-on collision has been fined but not held in jail because his “contribution to society in your everyday work is extensive.” Yes, he will not get more than a fine because Joan was apparently partly responsible for her own death for being fat and having a mobility scooter in her vehicle.

Linda Lee Yee Lin, 12, “had limited use of her legs and could not walk unaided”, Singapore, date unknown, news report looks like it was sometime mid-November 2010. Found dead at the foot of a block of flats. “It is not known which floor she fell from.” [More about this case]

Clara Laird, 86, dementia, Seal Beach, California, November 21. Shot by her husband while in a nursing home.

Samuel Mason, 61, unspecified mental and physical disabilities, Jackson, Mississippi, November 16. Samuel has just died from injuries from a beating outside of his home on July 10, 2010. There are no leads in his case.

Eddie Maddick, 45, epilepsy, Millbrook, Hampshire, UK, July 28, 2001. Stomped to death.

Doug Minty, 59, “mentally challenged”, Elmvale, Ontario, June 22, 2009. Died from multiple gunshot wounds after being shot outside his mother’s home by Huronia West OPP Const. Graham Seguin.

Jeffrey Munro, 32, schizophrenia, Toronto, Ontario, November 7, 2009. He was found beaten to death in his jail cell.

Richard Steven Poccia, 60, Post-Traumatic Stress Disorder, Napa, California, November 29. “The victim’s wife had called police for assistance at about 3 p.m., police said. Her husband was described as “possibly suicidal,” they said. … One officer Tasered the man while another shot him.”

Christy Russell, 35, wheelchair user, Oklahoma City, Oklahoma, November 8. Hit and killed by an SUV in an area with no sidewalks. Another wheelchair user was killed last month in the same area. The city passed an ordinance four years ago that sidewalks should be built. [More details about this case. The video describes further details about the accident.]

Shayne Richard Sime, 42, spinal disease, Christchurch, New Zealand, June 28, 2009. Shot to death by police officers, his death has been ruled a suicide.

Levi Schaeffer, 30, schizophrenia, Thunder Bay, Ontario, June 24, 2009. Shot by a provincial police officer.

Ajit Singh, 12, autistic, London, England, February 9, 2010. His mother forced him to drink bleach, and then tried to kill herself by drinking bleach herself. Please note that the news reports indicate that Singh’s mother has been diagnosed with a psychiatric condition.

Jorene White, 59, “bedridden and suffered from debilitating arthritis”, Madison, Ohio, July 23, 2010. “Jorene died in July from blood infection caused by maggots, who laid eggs in her body.” Her husband plead guilty to reckless homicide. “The prosecutor calls the case “sad.” “She had open bed sores. The sores had gotten to the point that her body had started decomposing and then the body starts decomposing, the flies move in and lay their eggs and start to eat their flesh while she is still alive.””

Beryl Webb, 75, histrionic personality disorder, fibromyalgia, Sheffield, UK, May 14, 2010. He husband smothered her to death. He claims she wanted to commit suicide; her diary claims “Hugh dreadful. Wants me dead. Hates me because of my mobility problems.”

Unnamed 16 year old boy, undefined disabilities, but he was in a “treatment center” for people with “pervasive developmental disorders, emotional disorders, are hearing impaired or mentally impaired”, Manvel, Texas, November 5. “Restraint techniques were used to subdue the child”, death is thought to be by asphyxiation.

Institutions

Torture In US Prisons by Stephen Lendman discusses the torture of inmates in US prisons, including prisoners with disabilities. Please note this is very graphic in its descriptions.

Calls come after a report of 13 deaths of children and young adults at North Side home since 2000, Illinois. “Among the proposals: raising fines and sending cases to a medical examiner’s office. One advocate suggested that facility operators who run poor homes shouldn’t be allowed to acquire new ones. “How many dead kids are you going to get a pass on?” asked Wendy Meltzer, executive director for Illinois Citizens for Better Care.”

Supreme Court to hear California Prisons Case

On the mental health side, the examples too are, in the words of one observer, “Dickensian,” with suicides averaging one a week, and the number of preventable suicides rising dramatically.

Follow Ups

The murderer of Phillip Holmes has received a life sentence. “The judge said Mather had shown no remorse for the murder of Mr Holmes, who was described in court as a “gentle, vulnerable man””

The body of Zahra Clare Baker has been found. As of this writing police have not laid charges.

The men accused of branding swastika on a mentally-disabled Navajo man on April 22, 2010 are in court.

An inquiry into the murderer of John Williams has found the shooting was not justified.

Recommended Reading for 2 December, 2010

I am quite, quite as shocked as s.e. that it is December! Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

There’s Respect, and Then There’s Respect by a rather strikingly beautiful, talented and intelligent woman by the name of Chally at the Don’t DIS My ABILITY blog:

I’ve been thinking about how “respect” for people with disabilities is often framed in negative and condescending terms. We’re only worthy of respect insofar as we play the inspirational martyr. We can be respected for struggling through what are supposedly inevitably hopeless, helpless lives. But we can’t be respected for fighting back against the systemic barriers keeping us down, or questioning our care.

Disabled want more by Fungi Kwaramba at The Zimbabwean:

The National Association for the Care of the Handicapped (NASCOH) said that 10 per cent of the country’s population live with disability. Even though there is a Disability Act the laws has not been enforced, and this has seen the continued exclusion of the disabled from mainstream activities.

UK: Spending cuts threaten disability arts festival by Helen Carter at The Guardian:

“DaDaFest is here to present the work of deaf and disabled artists, whose work is on a par with mainstream artists,” says the festival’s artistic director, Garry Robson. “Disabled and deaf people are not simply passive consumers of a tragic destiny but active participants in all areas of life, with a unique and valuable cultural perspective that we plan to share during the festival.”

Australia: Editorial: Shortfall in disability services at AdelaideNow:

While many services are stretched on days such as Christmas, it is hard to imagine an able-bodied person needing to book a taxi three months early to ensure they can enjoy lunch with family and friends. This shortage needs to be recognised.

Nearly half of Israel’s disabled forgo food, medicine, heat by Ruth Eglash at the Jerusalem Post:

According to a study by the National Commission for People with Disabilities, which was released on Monday ahead of the International Day of People with Disabilities to be marked worldwide on Friday, out of roughly 1.5 million Israelis who consider themselves disabled, 43 percent of those with severe disabilities and 29% with moderate disabilities went without food at some stage over the past year, while more than one-third of those with severe disabilities and 23% with moderate disabilities had to miss out on essential medication because they could not afford it.

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