Monthly Archives: October 2010

Let’s Bust Some Myths: Depressed People Are Always Sad or They’re Faking!

Last year, after the incredibly scientific method of “looking at Facebook photos”, Manulife Insurance Company decided that Nathalie Blanchard wasn’t really depressed, she was just faking it, and thus cut off her disability-related funding.

Mix up a few details, and Blanchard’s story is a pretty common one. Whenever I talk to people who are currently living with long- or short-term depression, or have lived with it in the past, they tell me the same story: Friends thought they were faking because they managed to get out and have a good time. They laughed at a joke once and everyone decided they were “over” their “funk”. They didn’t act like stereotypes of depressed people, so they must not actually be depressed.

Woe, and all that.

This is what short-term depression was like for me: I spent four months getting up, going to work, doing my job quite well, eating at work, coming home, feeding the cat, lying down on the couch, falling asleep, and waking up to do it all again the next day when the cat bit me to remind me that I had to feed him. I didn’t answer the phone. I didn’t go online. I didn’t eat when I wasn’t at work. I didn’t go into my bedroom. I enjoyed my job, and was often bubbly and vivacious at work, and while everyone outside of my job figured there was something up, everyone I worked with thought I was great fun and having a lovely time.

This is what short-term depression looked like for my friend: She spent a few months being aware of every possible way she could kill herself in a room. She was really angry and yelled at people a lot. She would go for long walks in the dark and wonder if someone would just hit her with a car and be done with it. She cut off most contact with her friends and spent as much time as possible alone. She was told that she should “get over it” – whatever “it” was – because everyone gets “down” sometime and she was just being a drama queen.

This is what short-term depression looked like for another friend of mine: He didn’t feel like doing anything, so he didn’t. His doctor encouraged him to go out with friends, so he went out with friends, and laughed when other people laughed and acted as normal as he could. Sometimes he’d have a really good time, and then he’d feel bad because if he was having a good time, he probably wasn’t depressed, and that meant he was just a horrible person, so he’d go back into his room and not do anything because otherwise he was bad, and then the doctor would encourage him to go out and the cycle would begin anew. But most of the time he just didn’t feel much of anything. People told him he must be getting over everything because otherwise he wouldn’t be getting out.

Depression can be sitting alone in a room being sad or down or feeling empty and alone. But when this is the only thing that people think of when they think of depression, not only are there cases like Blanchard’s, but there is pressure on the person with depression, from friends, family members, co-workers, even themselves, to look “depressed enough”.

This stereotype can also lead to people with depression delaying seeking assistance. When I was depressed, I didn’t think I was really depressed, because I wasn’t sad. I wasn’t crying. I just didn’t want to talk to anyone. At all. Ever again. But I just knew I wasn’t depressed because I didn’t want to die. It took me many months to get any of the help I needed, and many of my friendships were irreparably damaged in the meantime.

This stereotype can also lead to more social isolation for someone with depression. If one needs to “act depressed” in order for people to take depression seriously, that can lead to sitting alone even if sitting alone isn’t what one wants to be doing.

I can’t tell you how people will behave when they’re depressed because, even when depressed, people can and do make all sorts of choices. They may do any of the things I’ve referred to here, or they may do something else entirely. If you think you’re depressed, I encourage you to do what you need to do to get through it, and I hope you find the help you need to recover.

For your reading enjoyment, a “Things People Say To People With Depression” Bingo Card. It looks like it was originally posted by inbar–1423 on Tumblr. The link is to one with the image described.

ETA: Actually, the bingo card was originally created by YouKiddinRight on Livejournal. Thanks for the correction!

Recommended Reading for Wednesday, October 13, 2010

Description is below.
Black and white advertising image. On the right is a man standing behind a podium that has US flags, his eyes covered with SLOGAN OBSESSED. On the right is the text: Labels get in the way. Disabilities rarely do. Learn the truth. Think Beyond The Label.com Photo courtesy of Kate in DC.

A few signal-boosting calls to action that people, especially those in the US, may want to participate in.

Penny Reeder at Abled Body: Share your Smart Phone Strife with the FCC

And one other thing, I don’t want to pay any more for my smartphone than anybody who has a Blackberry, Droid, or iPhone. I don’t believe I should have to pay extra for a screen reader, like TALKS or MobileSpeak. I don’t mind paying for apps that maximize my capabilities, like GPS or the Kindle app, because everybody pays for those. But everybody doesn’t pay extra for the opportunity to read what’s on the screen!

When I go to meetings with sighted colleagues, I find they are connected in real-time to their smart phones. Ask them a question like, “What does a First Class stamp cost?” (I can never remember…), or “What should the temperature of a medium-rare burger be? — and they can respond, literally, in seconds! That’s because they can see the screen, so they don’t need spoken output to access the information, giving them immediate access to answers.

There’s more information and how to contact the FCC to discuss your accessibility-related concerns at the post.

Steve Spohn at Abled Gamers: Sony’s new Firmware stops disabled gamers from playing PS3

Mad Catz, makers of many PS3 modded controllers, supplies the circuit boards to Broadened Horizons for several of its accessible controllers. These controllers are responsible for allowing severely disabled gamers with no dexterity or hand movement at all to use their PlayStation 3. Normal OEM controllers require lots of finger movement and hand strength while Broadened Horizons’ controllers allow for little or no movement at all.

Suddenly, and without warning, several of these motor impaired gamers were locked out of their favorite activity.

Steve provides information about how to contact Sony and raise concerns with them directly.

Blog Posts:

Steven M. Schwartz at the Emperor Has No Toque: “A Demographic of Silence Living With Mental Health Stigma”

Silence when it comes to mental illness is a killer, a killer of self esteem, hope, and emotional safety. Silence mixed with stigma is painful and is a cause for those living with Mental Illness to separate ourselves from the world around us. Rarely does a person living with mental illness speak out to identify with or protect others traveling down our own road, because the fear of being stigmatized by others is a constant shroud that covers us. We have all faces stigma, either self imposed or from a external source, both feed each other and keep us in so many ways from reaching our potential.

Holy Gray at Don’t Call Me Sybil: Speaking of Crazy

One thing that struck me when reading RMJ’s post was that, like the mythology that surrounds Dissociative Identity Disorder has roots in the truth, most of those negative connotations of the word “crazy” spring from reality, however distant. In light of that, I understand why Natasha Tracy and others choose to embrace the word. Why not call a duck a duck? The problem as I see it is that while most of us reserve the word “duck” exclusively for referencing actual ducks, we don’t use “crazy” in the same way. And it doesn’t matter whether it’s used in positive or negative ways. If, from this day forward, we all used that word only to mean (1) stunningly awesome, or (2) mentally ill, it would still irk me. Because if your boyfriend is crazy hot, DID isn’t crazy. And if DID is crazy, your boyfriend isn’t crazy hot.

Laura Hershey at Life Support: My Wheelchair, My Body, Myself

For that’s exactly what this felt like to me – an assault. It was a direct, physical affront to my person. This man wasn’t just messing with some piece of equipment. He was interfering with my mobility, my power to position myself, to go where I want. My wheelchair is a part of my means of being in the world. In other words, it was part of me that he grabbed – my wheelchair, my body, myself.

Would anyone else recognize this? If I had tried to charge him with assault, would the legal system have supported me? Were other passengers aware of the depth of this violation? Or did they accept his statement that he was “helping” me?

Writer in a Wheelchair on Disability Voices: Virginia Ironside’s Comments on Sunday Morning Live

Her take is that it’s a moral thing and that it’s to be done to prevent suffering. She does then go on to say that there are millions of disabled people who live “Marvellous” lives but there are also thousands of millions who are suffering and not live no kind of life.

She’d do it to a child she really loved and she doesn’t know any mother wouldn’t. I personally am very glad that according to Ms Ironside’s views my own mother can’t love me and must be a terrible mother.

WHEELIE cATHOLIC: Independent Living: Planning Pet Care

I do have to change my cat’s diet and routine a bit. One thing that is always time intensive is when new tasks get added to the schedule around here. I have a limited number of care hours. Anything that goes over those hours gets added to what I have to do with adaptive devices. That can drain energy I need to work.

So I start by trying to figure out ways to do the new tasks using assistive devices. If I can’t or if the energy it will take won’t work, I add it to what others do and have to pick out something they are doing that I can take on. There are only so many care hours and since I also use them also to help me get my work done, it takes a lot of planning and resourcefulness on everyone’s part.

Recommended Reading for October 12, 2010

Darshak Sangavi at Slate: Should you crowdsource your medical problems?

To be sure, many patients with complex or poorly understood medical problems like amyotrophic lateral sclerosis congregate in large virtual communities such as PatientsLikeMe, where they share details of their medical treatments and symptoms with each other—and occasionally even launch their own unregulated and informal drug trials. These communities provide some helpful information and support for many people.

brigid at Feminists With FSD: On the FSD hierarchy and why it hurts all of us

A lot of support groups, both on and off the web do not want to recognize women with conditions such as endo as legitimate cases of fsd. We don’t have vulvodynia, vulvular vestibulitis, or vaginismus so we couldn’t possibly go through the same things as women with those conditions. I’m here to change that misconception.

Michael Janger at Abled Body: Web Content Accessibility Law Needs More Brawn

However, the newly accessible video content is only the tip of the iceberg. The major broadcast and cable networks that are covered under the new law produce about 100,000 hours of video content a year from their TV programs. On YouTube — which is not covered by the new law — almost 13 million hours of video content are uploaded annually, and that number is increasing. Over 99% of this Web-exclusive content is not closed-captioned or video-described, nor will it be required to be, under the new law.

Flash Bistrow at Where’s the Benefit?: DLA and work? Who is confused here?

The government has already said that the new medical test is intended to reduce the number of DLA claimants by 20%. But I am not sure how taking benefit from 1 in 5 people will “reduce dependency” (on what?) and “promote work” – indeed, several of the people quoted in my previous article about DLA would have to stop working if they lost that benefit, because they do not have enough energy or capacity to both care for themselves AND go to work. If the government think that turfing disabled people off DLA will suddenly give them the capacity to work, they are very much mistaken. It will just disable them even further.

Sam Roe and Jared S. Hopkins for the Los Angeles Times and Chicago Tribune: The final hours of Jeremiah Clark (major trigger warning for discussion/descriptions of abuse and neglect)

Jeremiah is among 13 children and young adults at the North Side facility whose deaths have led to state citations since 2000, a Tribune investigation has found. Some of these deaths, records show, might have been prevented had officials at the facility taken basic steps, such as closely monitoring residents and their medical equipment.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Canadians: Participants are needed for a study of cell phone based emergency services.

(via email)

Participants are needed for a study of cell phone based emergency services.

Researchers at the Neil Squire Society are conducting a study to look at how 911 emergency calls and emergency disaster alerts on cellular phones can be made more accessible.

The goal of this project is to get input from actual cell phone users on how the next generation of emergency services should be designed to ensure accessibility before they are released. Your feedback will be used to make industry and government aware of the unique needs of the Blind community.

We are currently looking for people who are blind and currently use cellular phones and would be interested in attending a focus group or completing a brief survey.

Eligible participants will have a choice of attending one of the focus groups being held in locations across Canada or answering questions in a survey. The focus groups will typically last 2 hours and consist of 6 to 8 people. There will be a brief presentation and an open question and answer session.

To learn more about this research and your eligibility, please contact:

Neil Squire Society
EMAIL: research@neilsquire.ca
Toll Free Telephone: 1-877-673-4636
Address: Suite 220 -2250 Boundary Rd.
Burnaby, BC V5M 3Z3

Principal Researcher
Dr. Gary Birch, PhD, P.Eng.
Neil Squire Society
Executive Director and Director of Research & Development

Sadly, I cannot answer any questions for you regarding this study.

Signal Boost: ADA Transportation Webinars

(Via email)

Dear Friends,

The Topic Guides on ADA Transportation, a series of technical assistance documents funded by the Federal Transit Administration (FTA) and developed by DREDF and TranSystems Corporation, will be featured in a series of seven once-a-month webinars, one webinar on each Topic Guide. The webinar series will be coordinated by the DBTAC Great Lakes ADA Center and the DBTAC-Southwest ADA Center in collaboration with Easter Seals Project ACTION.

Registration: Registration is available on-line at www.adaconferences.org.

Funded by FTA to provide technical assistance on transportation to transit agencies, riders, and advocates, the Topic Guides on ADA Transportation bring together the requirements of the Americans with Disabilities Act (ADA) and the Department of Transportation ADA regulations, FTA determinations, and best operational practices for ADA compliance. The Topic Guides also draw information from many other sources. The Topic Guides are available online at http://dredf.org/ADAtg.

Webinar Schedule: Second Tuesday of the month, beginning October 12, 2010 and ending April 12, 2011.

Time:
2 pm to 3:30 pm Eastern Time
1 to 2:30 PM Central Time
12 to 1:30 Mountain Time
11 to 12:30 Pacific Time
10 to 11:30 Alaska Time
(Hawaii time will vary)

Presenter(s): Marilyn Golden, DREDF Policy Analyst and invited guests to be announced

This series of Topic Guide Webinars will include:

1. Equipment Maintenance (October 12)

2. Stop Announcement and Route Identification (November 9)

3. Eligibility for ADA Paratransit (December 14)

4. Telephone Hold Time in ADA Paratransit (January 11)

5. Origin to Destination Service in ADA Paratransit (February 8 )

6. On-Time Performance in ADA Paratransit (March 8 )

7. No-Shows in ADA Paratransit (April 12)

View the Topic Guide Home Page, which offers each Topic Guide in HTML, a PDF download, and a plain text option, at http://dredf.org/ADAtg.

The FTA Office of Civil Rights has also linked to the Topic Guides on ADA Transportation on its ADA website at www.fta.dot.gov/ada under DREDF.

Unfortunately I will be unable to answer any questions about these webinars.

Blind & Low-Vision Consumers Left Out in Point of Sales Transactions

Like a lot of consumers in North America, I carry my debit card with me pretty much every where I go. From buying my yummy lattes to buying school supplies to paying for groceries, I use my debit card for probably 90% of my financial transactions. For me, the debit card and PIN system is excellent because I don’t need to carry cash and try and figure out the taxes to be carrying the right amount, or worry about how much money I might lose if I drop my wallet.

This is becoming increasingly difficult for Blind consumers across Canada. While the old debit card machines had a raised number pad, almost always with at least a raised dot indicating the center key (and thus allowing a blind person to orientate themselves and put in their private security code without assistance), new debit machines are being introduced that use dynamic touch screens instead of a number pad.

This puts Blind consumers in a tough spot: Either carry enough money with you everywhere to cover all of your expenses, or give someone else your private security code, your PIN – and give them access to your finances.

Jeffrey at Black Sphere Tech writes:

If you can’t independently verify that you are being charged the correct amount or expected amount, you are liable for the cost that gets authorized through this POS system and no bank or credit card company will help you.

The banks and credit companies use a PIN system for authentication. If you can’t use the [Point of Sale] device, you can’t independently enter your pin. If you give your PIN to another person you are now giving them full independent access to your finances and they have the power to clear you out financially and you are liable and no bank or credit card company will help you. So scenarios where you get a friend, buddy or store employee to enter the PIN for you are not an option.

Blind and low-vision consumers have been raising the issue of the need for point-of-sale transactions to be accessible to them for a very long time. In Everett’s blog post on the subject, Sorry, We Don’t Serve the Blind: inaccessible point-of-sales devices, he points the reader towards articles written in 2004, and I’m certain there are ones from before that since I’ve had a bank card since 1986. As society becomes more and more digital, with fancy touch-screens for everything, the need for the designers of these touch screen devices to consider Blind and low-vision consumer’s needs is greater. Without that consideration, more of the world becomes as inaccessible as, say, a Government of Canada website.

The thing is, as both Everett and Jeffrey point out, it doesn’t have to be this way. Both Google and Apple, leading developers of consumer products with touch-screen technology, have made touch screens accessible to blind users. If I go to use my bank card in an ATM, there is an option there for Blind or low-vision consumers to use assistive technology to make the ATM accessible to them, privately, without needing anyone else to have access to their personal financial information.

I believe, perhaps naively, that this is an oversight, and one that merchants and Interac Inc, the primary provider of Point of Sale devices in Canada would work with consumers to correct. Please take the time to contact Interact and raise your concerns about accessibility for Blind and low-vision Canadians.

Also, be sure to read The epidemic of inaccessible Touch Screen Point Of Sale Devices to blind consumers and Sorry, We Don’t Serve the Blind: inaccessible point-of-sales devices. Jeffrey has started a working group that is going to also lobby on this issue, and you can contact him directly for more information – his contact details on in his blog post.

Recommended Reading for 8 October, 2010

Gentle reader, be cautioned: comments sections on mainstream media sites tend to not be safe and we here at FWD/Forward don’t necessarily endorse all the opinions in these pieces. Let’s jump right in, shall we?

Anna linked to the Australian Broadcasting Corporation’s coverage of this story earlier in the week, now here is Cara’s analysis at The Curvature: Australian Women Report Sexual Abuse in Victoria Psychiatric Wards:

Everyone deserves safety, no matter what their mental health or disability status. But there is an extra responsibility to keep safe those who have been placed in restrictive and vulnerable environments.

stuff to say in class by Amanda Forest Vivian at I’M SOMEWHERE ELSE:

I mean, to me this is common sense and people should already be questioning “non-disabled people>>>>everyone else forever,” but if we really need a study to show that forced normalization in every area of life is really NOT SMART, studying women would be an easy way to do it.

Sorry I’m so inconvenient by Kali at Brilliant Mind Broken Body:

I hate things like this, where it feels like I’m treated as an inconvenience. It’s not like I get some kind of power trip asking for accomodations. I don’t push people around because it’s fun. When I ask for something, it’s because I NEED it, and my health, safety, and ability to continue going to school are jeopardized.

Look, I’m sorry I’m so inconvenient. But if you had to deal with the sheer number of inconveniences I deal with every day because of my disabilities, you’d realize that I’m really asking for very little.

From the U.S. Equal Employment Opportunity Commission, American Apparel Sued by EEOC for Disability Discrimination:

American Apparel, Inc., a clothing manufacturer which operates what it says is the largest garment factory in the nation, violated federal law when it terminated a disabled garment worker while he was on medical leave for cancer treatment, the U.S. Equal Employment Opportunity Commission (EEOC) charged in a lawsuit filed last week.

At the New Zealand Herald: Call to rescue IHC providers rejected:

Health Minister Tony Ryall has ruled out a Government bailout of disability services facing hundreds of millions of dollars debt for backpay arising from an Employment Court ruling.

Send your links to recreading[@]disabledfeminists[.]com. Let us know if/how you want to be credited.

Question Time: Household Tips

Question Time is a series in which we open up the floor to you, commenters. We invite you to share as you feel comfortable.

From cooking to laundry to repairs, doing things around the house can be pretty tricky and/or exhausting and/or time consuming when you’re disabled. If you’ve any tips to share that can make your fellow readers’ lives a little easier, share them with us.

If you have suggestions for Question Times, send them to chally at disabledfeminists dot com.

Recommended Reading for 07 October 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Deeply Problematic: Paperwork & homework, anxiety & ADD: institutionalized and internalized ableism

Paperwork is a form of institutionalized ableism. Paperwork keeps folks who have issues with anxiety, ADD, and likely other disorders from living, from working, from getting the care we need to treat that which disables us. It makes paperwork a daunting, insurmountable task – and its incompletion perpetuates guilt and sends it further away from actually getting done.

Wired.com: Exclusive: First Autistic Presidential Appointee Speaks Out (Thanks to reader Sara for the link!)

Wired.com: Much of the national conversation about autism in recent years has centered around statements by celebrities like Jenny McCarthy and Jim Carrey who claim that autism is caused by vaccines and other environmental factors, and can be cured by things like special diets, behavioral interventions, and alternative medicine. Is that the most productive conversation we can be having about autism as a society?

Ari Ne’eman: No. There’s a disturbing lack of attention to science in that conversation, but the problem goes deeper than that. What we have is a national dialogue on autism without the voices of the people who should be at the center: those who are on the [autism] spectrum ourselves. Instead of focusing on things like quality of life and civil rights, the autism community has been distracted by narrow questions of causation and cure.

Going back to the dark days of Bruno Bettelheim and “refrigerator mothers,” the focus of the conversation has been on placing the blame for autism, and on trying to make autistic people something we are not and never can be: normal. This focus on a cure has prevented us from actually helping people. There’s been a lot of progress in the disability rights movement over the past 20 years, but people on the spectrum haven’t benefited from it because those representing us at the national level have been focused on causes and cures.

We need to stop making autism advocacy about trying to create a world where there aren’t any autistic people, and start building one in which autistic people have the rights and support they deserve. That’s the goal of groups like ASAN, Autism Network International, and of the neurodiversity movement as a whole.

Orlando Sentinel: Chartari Jones: Sanford girl says bullies ‘spit in my hair’

The Sanford girl whose parents said was teased by bullies on a Seminole County school bus in September opened up Monday about her ordeal on national television.

“They would poke me with pencils, call me names and spit in my hair,” Chatari Jones told NBC Today Show host Matt Lauer while wiping tears from her face with a tissue.

WHERE’S LULU: “This American Life” Spotlights “Crybaby” ADA Lawsuit Filers

The episode starts with the extremely-unpopular-with-ablebodies Tom Mundy, who makes a living suing ADA-violating businesses in Southern California. The show’s producer mentions how in California, disabled people can make $4,000 by suing a business for not being up to code. A lawyer who represents business owners estimates Tom has made half a million dollars in just three years.

The producer then drops the bomb that most people who read this blog know all too well, but that most TABs don’t realize: The ADA is not enforced. The government doesn’t even pretend to enforce it – there is no agency (federal, state, regional, or otherwise) to monitor whether or not businesses are complying. So it’s up to people like Tom Mundy to sue in order to gain equal access.

I’M SOMEWHERE ELSE: [No Title]

First of all, why do people have to have recent documentation? Have there been many cases of developmental disabilities, like ASD, just disappearing? Do people with for example dyscalculia just suddenly get better, and then continue to try to get accommodations because they’re just a shitty person who wants to get a leg up on everyone else?

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Signal Boost: The First Assistance Dog Blog Carnival!

Sharon at After Gadget has just announced that she’s going to go ahead with the Assistance Dog Carnival!

What Will the Assistance Dog Carnival Be About?

Topics will vary with each edition. The host for each edition will announce their theme at least a couple of weeks ahead of time (maybe more, if possible, to give us people with deadline issues a chance to get something in?), along with the deadline for submissions and expected publication date.

I’m very excited about this! Read more about After Gadget.