Recommended Reading for the Wednesday of My Discontent
I’m clearing out my backlog of awesome posts that I meant to link oh-so-long ago, but really: This stuff is always timely, and always worth reading. Also, today is the Wednesday of our discontent because I’m sick and miserable.
Disability & Protests:
Laura Hershey: Last Word on the MDA Protests (At Least For This Year):
Yes, the Telethon was bad again this year, at least the bits I watched. One thing that continues to amaze me is how big a role Jerry Lewis’ big ego plays, all the way throughout the Telethon. Here’s one late-night quotation that I bothered to write down:
“This child in the [Boston] Hospital had muscular dystrophy, and I went to see him, and he smiled when I walked into the room, and he grabbed my hand, and he said, quote, ‘I’m glad I got muscular dystrophy, because that’s why I met you.’ I rest my case. If there are naysayers out there, and if they’re uncertain as to the validity of my soul, trust me – it was a moment in time that takes me through the program in 2001 all the way through 2010.”
John R. Polito: Charleston’s 20th MDA Telethon Protest
Forget for a moment the worthiness of the MDA’s cause. Instead, reflect on the consequences of pity based fund-raising that gets viewers to dig deeper and give more by making them feel superior and different, by using differing muscular abilities and muscle disease to foster sorrow, pity and tears.
Imagine painting life with muscular dystrophy as hopeless and dark unless the MDA can raise enough money to “find a cure.” Imagine the indignity of someone handing you money on Labor Day simply because your means of mobility is a wheelchair. As Harriet often asked, what is the cure for stigma?
Bad Cripple: New Ways To Create Social Change
Perhaps it is because I teach college students but I think the only way to make effective social and political change today is through online, multimedia, and creative civil disobedience. Here I am thinking along the lines as groups such as Improv Everywhere to far more obscure though no less interesting approaches taken by cripzthecomic. I suggest those unfamiliar with Improv Everywhere take a look at their “actions”. Some are very funny, others stupid, but the mass appeal cannot be denied. As for cripthecomic he recently posted about something he called “stair bombing”. This London Ontario based person went to a local school, spread about one dollars worth of caution tape across the entrance and posted a sign “Sorry, no access Stairs out of Order”. When I saw this I laughed myself silly! All I could think of was all the “No access elevator broken” signs I have come across in my life time. I also could not help but wonder did people circle the building looking for stairs that were not out of order. I cannot help but think this caused a stir–and made people think. And this, making people think and laugh, is exactly what disability rights has failed to do lately. If we can do this, make people think and protest in a way that appeals to young people who do not separate political change from humor we might be onto something big–we might be able to make disability rights cool.
Disability & Etiquette
Do not touch the damn chair! I do not know what kind of swoon overcomes the temporarily able-bodied, but they seem to forget everything they have learned about behaving in public when they come in contact with a person in a wheelchair. Do not touch the chair. Is it normally okay to mess with other people’s things without asking? No? Well, that is settled then. It is not your prop, leaning spot, or fucking toy. It is a tool, and part of a person’s personal space.
Do not touch the wheelchair user! For pete’s sake, if you would not normally casually touch a person, you do not get the right to do so when they sit down. It is okay to shake hands, the user of the chair will let you know if they do not want to or not able to do so. And I swear, if you pat me on the head, you may pull back a stump.
This particular one is very important to me because it shows a lot of the arguments used to invalidate the existence and identity of plural systems. They’re arguments that I have been fighting against for a long time and have forced me out of areas I had been a part of for even longer. These are the “skeptic” positions, the ones taken when people do just enough research to further justify their own prejudices. And if they’re not doing that, they’re spouting pseudo-science (fun fun).
In The News
Canada: Universal Pharacare Touted as a way to save billions [The last time I checked the comments they were pretty bad.] “But, above all, it says Canada pays too much for drugs – between 16 and 40 per cent more than other industrialized countries – in a bid to attract pharmaceutical investment.”
US: Haunted House Exploits Real Horror “While the number of people confined to institutions has dramatically declined since then, a plan to turn Pennhurst into a Halloween attraction suggests the stigma of disability has not been erased.” (Also ‘Pennhurst Asylum’ project is an abomination)