Monthly Archives: August 2010

Weekly Events Roundup

Disclaimer: We don’t endorse any of these events. I just gather them from my email contacts or from places I see them online. Pretty much everything I know is what I’ve got here.

Should you wish to suggest an event, please email me! anna AT disabledfeminists DOT com. Thank you!

Calls for PapersCanadian EventsInternational Events (Offline)

Calls for Papers Relevant To Disability:

Call for Proposals: Disability in America: Voices of a New Generation

We are seeking creative non-fiction essays from young people with disabilities ages 13-30 (some flexibility will be available for compelling submissions from individuals slightly outside our preferred age range). People with all types of disabilities are welcome to submit. Speaking from personal experience is strongly encouraged. The intent of this project is to use personal voices to capture the experience of the new generation of young people with disabilities.

Submissions should range from 2,000 to 5,000 words. Please include your address, phone number, e-mail address and a short bio on the manuscript.

Proposals are due by e-mail to voicesoftheadageneration@gmail.com to January 15, 2011 but we encourage and will consider for approval early submissions. Please e-mail co-editors Stacey Milbern and Ari Ne’eman at voicesoftheadageneration@gmail.com with questions.

Fat Masculinities, A Special Issue of Men and Masculinities

As an interdisciplinary field, fat studies has drawn from significant roots of feminist and women’s literature. The socio-historic norms and policing of women’s embodiment and power continue to be important areas study, but the cultural influence upon and experience of men and masculine-identified individuals offers a rich opportunity for investigation and dialogue. This special issue seeks to establish an interdisciplinary academic discussion of fat manhood and masculinities.

Submission details: Manuscripts and inquiries are to be directed to Daniel Farr, guest editor, at DFarr@randolphcollege.edu or 434-947-8561. Authors may contact the editor in advance of submission with proposals and queries. Email submissions preferred.

CALL FOR PAPERS From disabled writers

Disabled people * a right to live?

All three papers will take a social model approach and will address the issues around the Right to Live agenda for disabled people from birth through to death. We are interested to show how each individual paper relates to the others. The papers should explore the impact on British society; compare/contrast with the values of other cultures (especially non-Western); how the issues are driven/influenced by the tug between secular and non-secular, cultural beliefs and by financial resources agenda which may be hidden under the guise of ‘rights’, ‘choice’, ‘control’ and ‘ethical/moral’ considerations

The papers will address one of the following:-

a) Pressures that families / parents may face, during a pregnancy, to terminate a life due to either impairment of the foetus or the mother’s and/or father’s impairment,
b) The involuntary mercy killing of disabled people by professionals / paid carers / family members and friends
c) The ‘Right to Die’ issues, euthanasia, and assisted suicide relating to disabled people.

Contact: Gary Timperley
Policy and Research Assistant
Breakthrough UK Ltd
Business Employment Venture Centre
Aked Close
Ardwick
Manchester
M12 4AN
Tel. – 0161 273 5412
Fax – 0161 274 4053

Canada:

Disability and Deaf arts in Nova Scotia – A representative from the Canada Council for the Arts will be in Halifax the second week of September and is interested in meeting with artists within the “disabled and deaf” communities. Please share this information with anyone you know that might be interested. The Disability Arts Officer, Elizabeth Sweeney, with the Canada Council for the Arts is working on a series of policies so that the Canada Council can better support artists with disabilities and Deaf artists, and those working in the Disability and Deaf arts sectors. Ms. Sweeney will be visiting Nova Scotia during the second week of September, to visit with local artists, arts professionals and scholars in these sectors, to learn about their practices and discuss the local arts environment. She is looking for any contacts or names of artists with disabilities or Deaf artists, (or organizations supporting artists, arts professionals, etc…) including those working in Visual arts, Theatre, Music, Dance, Writing, Media, Film, Aboriginal, or Integrated arts. ANY help, is greatly appreciated. Please contact Elizabeth at elizabeth.sweeney@canadacouncil.ca, 1.800.263.5588 ext. 4689, TTY : 1-877-688-5501

International Events:

Calling all deaf women!
We have recently launched two videos in ASL (American Sign Language) – one explaining WW 2011 : [Invitation to Deaf Women], another inviting deaf women to respond to the ‘Call for Participation’. [Answer the Call]
Please help spread the word by circulating the links broadly through your networks.

Recommended Reading for 26 August 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Westborough News: Marines shoot calendar for male breast cancer research

They are the few. The proud part has been a bit more of a struggle.

“Most guys don’t want to reach out, don’t want to tell anyone they’ve got a woman’s disease,” Pete Devereaux said yesterday as he talked with fellow male Marines who’ve been diagnosed with breast cancer.

INCITE! Blog: Reflections from Detroit: Reflections On An Opening: Disability Justice and Creating Collective Access in Detroit

We would not just think about disability as separate from class, age, race, queerness, family, children, gender, citizenship, violence, but we would understand it as intimately connected.  We would think, not just about “conference and workshop time,” but we would also think about social time and what social spaces were accessible and how we would make sure no one was isolated or left out.  Because in our movements much of the relationship building, socializing and bonding is done in very inaccessible ways in very inaccessible places—we know this all too well.

New York Times: When Battlefield Humor Backfires (Extra Trigger Warning)

And so the doctor’s determination not to lose a contest of wills undermines the opportunity to have successful discussions about treatment. The patient instantly senses that the doctor distrusts and dislikes him, and this, coupled with the patient’s lack of respect toward authority figures, leads to a rapidly deteriorating situation, often ending in a discharge against medical advice — much to the team’s relief.

NPR: Administration To Appeal Ruling in Stem-Cell Case

The Justice Department said an appeal is expected this week of the federal judge’s preliminary injunction that disrupted an entire field of science.

Judge Royce Lamberth on Monday threw the research community into disarray when he said a federal law invalidated Obama administration guidelines on human-stem-cell research. He concluded that two researchers challenging the Obama stem-cell policy stood a good chance of success as the case moved ahead in the courts.

The judge said any scientific projects using human embryos required their destruction, which flouts a longstanding federal law.

Something More Than Sides: Dear Doctor: Actually, I *Am* Sick

Let’s completely ignore the actual health concerns in exchange for shaming a young girl. Classy. And let’s not forget the fact that, were I suffering from an eating disorder, this is not the way to broach the subject. I left that appointment feeling shamed and humiliated, and with no answers.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Signal Boost: DisAbling Feminism: Sex, Gender, and Disability Studies

Hey, you! Do you sometimes find yourself asking the following…?

What are important conversations taking place between feminism and Disability Studies? How can a feminist approach (whatever that means) to abilism/ability/able-bodied privilege (however defined) raise new questions regarding the self, the state, the workplace and cultural conceptions of disability? How does Disability Studies force a reconsideration of traditional concepts within feminist theory and Women’s & Gender Studies?

Then you are very possibly an academic interested in the intersection of disability and gender, and might be interested in the Annual Meeting of the Critical Feminist Studies Division of the Cultural Studies Association over in the US!

The Critical Feminist Studies Division of the Cultural Studies Association (CSA) invites submissions for the 9th Annual Meeting to be held at Columbia College in Chicago, March 24-26, 2011.

[…]

To submit, please include the following:

1. Your name, email address, phone number, and institutional affiliation

2. Paper/presentation title

3. 500-word abstract

Deadline for submissions: September 1, 2010.

Send inquires and submissions to:

Sarah L. Rasmusson & Sabrina Starnaman

Co-Chairs, Critical Feminist Studies Division

criticalfeministstudies@gmail.com

You can find full topic and submission details here.

An open letter to non-disabled people who use disabled parking spaces

Dear abled/non-disabled people without disabled parking placards who use disabled parking spaces anyway,

I don’t care if you want to use the space “because it’s so convenient.”

I don’t care if you only “need” to use the space “just for a minute.”

I especially don’t care if you back up your illegal use of said disabled parking space with some bizarre justification like, “But some people FAKE being disabled to get these permits, so what’s the difference?” or “Well, if a person in a car with a blue placard shows up, I’ll move” or “But there isn’t anyone disabled who needs to use the space here right now, so what’s the harm?”

The harm is that I or other disabled people are so often witnesses to your saying these things, and we are presumably expected to not react at all to your taking advantage of something that is not for you. I personally do not own a motor vehicle, so while I don’t need a disabled parking permit, I also don’t need your entitlement complex and your basically telling me — a person with disabilities — that some of the regulations intended to benefit me and people like me are rules that can be bent by you if it’s the most convenient option for you, an able(d) person.

Just don’t do it. It’s illegal and carries penalty of a possible fine for a reason.

This sort of legislation? Is not intended to benefit you, or be a convenient thing that you can take advantage of when you feel like it. Most of the world is already set up for you. These “convenient” parking spaces don’t have to be set up for your use, too.

Recommended Reading for Wednesday, August 25, 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

Disability Bitch: Disability Bitch gets a bit of hot action:

The reports have led certain commentators to describe sex with disabled people as “one of the last taboos”. Amazing. Simply by having sex and being physically abnormal, I am engaged in some debauched endeavour, of which most people dare not speak. Such a thrill!

But, readers, shall we talk about it? I think we should. I did a little journalistic investigation of my own and discovered that this story did not simply land in the tabloids from nowhere. It was, shall we say, inspired, by a report in Community Care magazine, the industry journal for social workers. Community Care had published an article on the question of whether Individual Budgets for disabled people should be used to pay for sexual services. It was seemingly initiated by a debate between social workers on their own internet forum, a debate which ended up being quoted widely in the national press.

Laura Hershey: Remembering Two More Heroes

Barb was a T1 paraplegic who also had multiple sclerosis. In the 1980s, she worked in the independent living movement in Missouri and Oklahoma. Then she decided she wanted to start a business designing and selling advocacy posters and other products and service. She encountered opposition when she asked help from Kansas Vocational Rehabilitation. They tried to use the rules to limit her choices; she taught herself the rules and beat them at their own game. Based on that experience, Barb wrote a consumer manual aptly titled “How to Kick Ass and Win.”

Keri: not funny (interesting discussion in the comments as well)

Okay, so I know that the community I’m ranting about is kind of made for people who are obsessive and/or compulsive about lists and correct data and having everything Just Right. That means there are going to be jokes and comments about OCD, since a lot of what appeals to people of this community might come across as OCD-type things to people who don’t give a shit.

But, seriously, folks? It’s getting old and Very Unfunny. The first time I saw the “CDO is like OCD, but better: it’s alphabetical, like it should be” “joke”, I thought it was [stupid], but made sense for people who don’t really know about OCD except for media depictions. But people keep using that joke. And it is not funny. It’s not funny the same way the “dog = god” dyslexia “joke” isn’t funny. It trivializes a very real disorder and creates misunderstandings of what it really is.

Dave Hinsburger: The People Who Are The “R” Word (Dave does a lot of posts and discussions and goes into classrooms to give talks about “the R word”. I really recommend reading his posts about it, and perhaps pulling them out the next time someone insists that no one calls actual people r#tarded anymore.)

No matter what the fearless defenders of freedom of speech say, there is a huge difference between a word to describe something that slows fire and someone who learns differently. There’s a huge difference between a thing and a person – but, no, maybe not. After reading their diatribes regarding their freedom to spit out hurtful words, they may, really, not see people with disabilities as fully human with a human heart capable human hurt.

Haddayr: ‘Drive-by’ ADA Lawsuits?!??

Who cares if you “turn business owners against the ADA?” I don’t want them to feel warm and fuzzy. I want them to OBEY THE LAW. Businesses will not do right by people unless they fear lawsuits. They have no motivation other than money. As a matter of fact, the ADA has no enforcement arm and they depend on people filing private lawsuits to get places to comply.

In The News:

US:
Disability Scoop: Despite Reforms, Problems With Restraint And Seclusion Persist [Trigger Warning for discussion of abuse of students with disabilities] “According to state records, teachers in at least three Iowa school districts have violated the rules, which limit the types of restraint allowed and circumstances in which they can be used.”

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Tracy Latimer is dead because her father is a murderer

It’s always hard for me to write a post about Tracy Latimer’s murder, especially in a space that’s got a lot more traffic than my own blog does. Where do I start? How do I express to a new audience the significance this case has in Canada, and how the murder of a 12 year old girl by her father 17 years ago changed drastically how Canadians talk about disability, and how disability is treated in Canada? Where do you start with that?

This post is going to talk about the murder of children with disabilities by their parents. I would recommend avoiding comments in most of the news links, because the comments generally turn into a referendum on whether or not it’s okay to kill disabled children.

Tracy Latimer, who had Cerebral Palsy, was 12 years old the day her father, Robert, waited until the rest of their family was at church and then carried her out to the garage, stuck her in the cab of the truck, ran a garden hose from the exhaust pipe into the cab, and left her there to die of carbon monoxide poisoning. Whenever I talk about this case, I feel the need to remind the reader: this is a means of killing we have made illegal when killing dogs, because it is considered to be so painful. This is the murder people would like you to believe is a “mercy killing”.

Tracy Latimer’s murderer, Robert, then put Tracy to bed, burned the hose that he had used to murder her, and lied to the police about how she died.

This case went to trail twice, and both times Tracy’s murder was found guilty of murder and sent to prison. He has done the bulk of his prison time according to Canadian law, and is currently doing a form of parole where he spends five days in a half-way house, and two days in his own apartment in Vancouver. This is how the law works here – in fact, I would agree with critics that Tracy’s murderer is being treated harshly by the parole board, but I also understand they want Tracy’s murderer to admit that maybe killing a child and trying to hide the evidence is a crime and that he should show some remorse. But we don’t really send people to prison here in order for them to show remorse. It’s done, let him go home.

But let’s talk about how Tracy Latimer’s murderer and the court cases around him are typically treated by the press, since Robert is in the press again, having been denied a loosening of his parole.

You’ll notice, I’m sure, that I keep referring to this as “Tracy Latimer’s murder”. If you read the newspapers from across Canada, you’ll instead see it referred to as “Robert Latimer, a Saskatchewan farmer, who was convicted of second-degree murder of his severely disabled daughter”. You will also find it referred to as a “mercy-killing”. Often Tracy’s name will only appear once, as “his 12 year old severely disabled daughter, Tracy”.

May 21, 2010: The Vancouver Sun: Latimer mercy-killing inspires new Ozzy Osbourne song: “The 10th track of Osbourne’s solo album entitled Scream, due out June 22, is Latimer’s Mercy which describes what Latimer may have felt in putting his daughter to death. The lyrics are poetic yet brutally graphic.”

July 28, 2010: The Montreal Gazette: A Wise and Sensible Verdict (This article is actually about an entirely different case, but felt the need to compare it to Tracy Latimer’s murder): “One need only remember Robert Latimer’s killing of his severely disabled 12-year-old daughter. He did it, he said, to release her from her suffering, to mercifully end her life.

Does anyone believe Robert Latimer was a cold-hearted killer?”

July 29, 2010: The Victoria Times-Colonist: Mercy killing can sometimes be honourable: (Same case as the one discussed above) “Similarly, Robert Latimer had no moral choice but to end his daughter’s agony at once by one means or another.”

August 19, 2010: The CBC: Robert Latimer wins parole review “Latimer was convicted of second-degree murder in the 1993 death of Tracy, his severely disabled, 12-year-old daughter, an act he described as a mercy killing.”

August 20, 2010: The Globe & Mail: Give Latimer More Latitude in his Day Parole: “The board needs to accept that he has paid his debt to society. He killed from compassion, according to a jury and a judge, who knew all the details of Tracy’s life and death, and was punished as a deterrent to others.”

The case is fairly consistently presented to the Canadian public as a “mercy killing”, and as the end of Tracy’s suffering. Often Tracy’s life is described as unbearable. Sometimes she is referred to as a “vegetable”. The only person who’s “side” of this story is consistently told is the man who murdered his daughter, and he is painted by the press as a man struggling against impossible odds, doing the only thing he could.

This is not what you read in the press:

In the trials, both Robert and his wife Laura claimed that Tracy was experiencing constant and uncontrollable pain. If this were true then why were they allowing Tracy to suffer when her pain was medically controllable? Their testimony conflicted with the writings in Laura’s own diary pertaining to the daily condition of Tracy. Laura’s diary stated that Tracy was often happy and smiling, and lately she had been eating well. Tracy’s teacher described her as a happy and loving person who did not show signs of extreme and uncontrolled pain, even though she had a dislocated hip. Tracy was scheduled for surgery to repair her dislocated hip which would have alleviated the pain and discomfort she was experiencing. In fact, Robert Latimer was charged with homicide on the same day that her surgery was scheduled to happen (November 4, 1993).

Many people are under the impression that the Latimers were overly burdened and lacking in support and respite service to care for Tracy. In fact, Tracy had lived in a respite home in North Battleford from July until early October, 1993. Tracy had returned home because she was scheduled for surgery. Tracy was also at school everyday. On October 12, just twelve days before Tracy was killed, Robert Latimer was offered a permanent institutional placement for Tracy in North Battleford. He rejected the placement because he said he had ‘other plans’. At this time, he had already decided to kill Tracy.

I harp on the way Tracy’s murder is treated in the press for one simple reason: The number of murders of children with disabilities by their parents has drastically increased in Canada since the Latimer case.

December 5, 1994 – Ryan Wilkieson, 16, Cerebral Palsy, Carbon monoxide poisioning similar the Latimer murder, which was in the news at the time.  Friends of Ryan’s murder, his mother, said she was distraught by the Latimer case. Murder/suicide.

May 28, 1996 – Katie Lynn Baker, 10, Rett Syndrome, starved to death. She weighed 22 pounds at her death. No charges were laid, as no one believed they could get a conviction.

November 6, 1996 – Charles-Antoine Blais, 6, autism, drowned in his bathtub by his mother. Charles-Antoine’s murderer was publically offered a job fundraising for the Autism Society of Greater Montreal, and and the head of Canada’s national autism society described her life as a total misery before Charles-Antoine’s murder. Suspended sentence.

November 21, 1996 – Andrea Halpin, 35, cognitive disabilities – shot to death by her father in a murder/suicide. He didn’t think she could live without him.

December 11, 1998 – Cory Moar,  29, cognitive disabilities – years of abuse by family members. I couldn’t find any more details after the lengthy description of the long-term injuries he sustained, because I had to throw up. You can read the inquest results in this handy PDF. Trigger warning.

May 19, 2001: Chelsea Craig, 14, Rett Syndrome, lethal dose of prescription drugs (attempted murder/suicide) Rachel Capra Craig, diagnosed with paranoid delusional disorder, later killed herself. She had been found incompetent to stand trial.

December 30, 2001 – Reece Baulne, 34, “learning difficulties”, carbon monoxide poisoning. In the suicide note that his parents wrote, they said they were killing themselves and Reece because they couldn’t care for him anymore, having been turned down for government funding.

July 12, 2004 – Jia Jia “Scarlett” Peng, 4, autism, drowned in bathtub by her mother who has been diagnosed with Bipolar Disorder. Scarlett’s murderer was initially sentenced, but the sentence was put aside due to an error on the part of the judge. She was recently sentenced to 5 years, but was released because of “time served”.

July 31, 2004 –  Ian Carmichael, 11, epilepsy and undefined “learning difficulties”, choked to death by his father who was diagnosed as having psychotic delusions as a result of side-effects from taking Paxil incorrectly. You can read David Carmichael’s webpage in which he discusses (briefly) how he murder his son (most of the page is about how Paxil made him do it). Trigger Warning.

September 25, 2004 – Charles Fariala, 36, “assisted suicide” – he first took a dose of medication and then his mother tied his hands and covered his face with a plastic bag. Wikipedia says his mother had Borderline Personality Disorder and this was a factor in her light sentence (3 years probation), but I haven’t found any other reference to her having a mental health condition, just that there were “extenuating circumstances”.

These names are part of the reason why I think Robert Latimer should always be referred to as a murderer, why I think think Tracy’s death should never be referred to as a “mercy killing”, and why I will invite Robert Latimer apologists to kindly find their way to the Globe & Mail website, since they obviously will welcome your comments far more than I will. They will not be published here.

We convict and vilify people for murdering their children all the time. Unless their children are disabled. Then, then, then, it’s “mercy killing”, and they should be defended at all costs.

Recommended Reading for August 24, 2010

Wheelchair Dancer: Body Matters, Edges, and Disability

We all experience limitations and restrictions.  Not all of those — like not being able to speak a second language — are disabilities.  The second language example is a true comment, and I would have thought that it was a pretty obviously bad comparison.  But it and other similar remarks kept coming up.  In addition to those comments, I was also thinking about a second order of experience: the kind where someone claimed kinship/commonality/knowing what I am going through on the basis of their limiting, but non-disabling experience.  I’m referring to the kind of thing like, for example, comparisons of feeling tired from having flu and the tiredness in chronic fatigue syndromes or, say, multiple sclerosis.  A second example is that feeling sad or disappointed is not the same as the emotion of depression.

Lena at the ch!cktionary: What My Feminist Agenda Looks Like

I reject the argument that feminists can’t fight for women and for poor, queer, disabled, and non-White people. Because guess what? Many women are poor, queer, disabled, and non-White. For them, being part of the latter means many more disadvantages and much more discrimination than just being a woman. A feminist agenda has to recognize that women are not simply all oppressed in the exact same way because they share a gender.

Thea Lim at Racialicious: Sympathy Grifting: The Intersection of Race, Gender, and Fraud

Much of [fraudulent cancer patient Ashley Kirilow’s] success seems attributed to the fact that she easily roused pity with her little lost girl story and her brave smile. Kirilow embodied a version of white womanhood that we want to believe in (or at least we’ve been socially conditioned to embrace it): pretty, plucky, determined, and in need of rescue.

Pam Belluck for the New York Times: Tai Chi Reported to Ease Fibromyalgia

A clinical trial at Tufts Medical Center found that after 12 weeks of tai chi, patients with fibromyalgia, a chronic pain condition, did significantly better in measurements of pain, fatigue, physical functioning, sleeplessness and depression than a comparable group given stretching exercises and wellness education. Tai chi patients were also more likely to sustain improvement three months later.

Jane Hughes for the BBC News: New brain scan to diagnose autism

The Medical Research Council study looked at 20 non-autistic adults and 20 adults with Autism Spectrum Disorder (ASD).

They were initially diagnosed using traditional methods, and then given a 15 minute brain MRI scan. The images were reconstructed into 3D and were fed into a computer, which looked for tiny but significant differences.

Pap smears, fat-shaming, and the lithotomy trap

[X-posted at Hoyden About Town]

So I’m sitting watching the evening news, and on comes a chap telling us women and girls that we oughtta go and get more Pap smears. Then on comes a woman to talk about how Pap screening rates are going down in young women, and to speculate about possible causes for this. The cervical cancer vaccine comes up, as does the “awkwardness” of the test, and our inappropriate embarrassment, which we apparently need to get over.

What I don’t hear addressed in the mainstream media in these discussions of Pap screening? Well, lots of things, like heterosexism, and ignorance about Pap age/sexual experience guidelines, and sexual assault (inside and outside the medical system). However, the one that really stood out in my mind today is also a factor that isn’t going to be fixed by lecturing women. Fatphobic abuse in the medical system.

There has been a fair bit of talk around the feminist traps about some of the other factors, especially the aftermath of sexual assault and its effects on medical interactions. I’m not going to go into that in this post, but it’s a huge, huge issue. What I would like to talk about for a moment, not because it’s more important but just because I have a first-person anecdote, is medical fatphobia.

We know fatphobia kills. In all sorts of ways, in all sorts of settings. And one way in which it can kill is the horrendous tendency of doctors – quite a few doctors, from the stories I hear around the place – to trap women and girls on their backs so that they can shame them while they’re vulnerable. And what they don’t realise, or don’t care about, is just how long-lasting the effects of this can be – and not in a good way.

Medical education materials abound with motherhood statements about ‘Preventive Medicine’ and ‘Lifestyle Intervention’ and ‘Opportunistic Behavioural Education’. General practitioners are exhorted, over and over again, to take any and all opportunities they can to tell people they’re fat. Really, over and over. And OVER. And doctors, labouring under the mistaken impression that this will cause said people to magically become skinny and therefore ‘healthy’, go ahead and do it, then smugly boast about it between themselves, sighing about how no-one ever listens to them. Or, perhaps, under the impression that they can then self-satisfiedly sit back and tick a box on the chart about how they’ve engaged in initial Lifestyle Education, which they learned all about at the last Lap-Band seminar.

Medical education is a powerful, powerful matrix of fat hate, based on the twin premises that telling people they’re fat is (a) helpful and (b) harmless.

So let’s talk about how that plays out in practice:

When I was 19, I had a Pap smear. It was my first. I went to the nearest available doctor, who worked in a setting where they dealt with a late of people in late adolescence and early adulthood. I wasn’t particularly concerned about it; a very little vague unease at the unknown, but no particular trepidation. I didn’t bother taking anyone with me, and I just booked the appointment in between other things I had to do, like med school classes and whatnot. And off I went.

I got my Pill script, had my BP taken, then assumed the position. And the doctor came up into his position, as they do, then stopped.

He looked at my thigh. “Not quite the right spot,” I thought, “but hey, he probably knows what I’m doing more than I do.”

Then he touched my thigh. Around the middle, underneath (in lithotomy position).

Then he JIGGLED IT.

He jiggled my thigh.

And then he grimaced.

And then he did the Pap smear. I was frozen, completely unable (by my inexperience, position, and by general medical disempowerment) to say anything.

And then I fled.

Was I ‘traumatised’? I didn’t have nightmares. I went and got my next Pap smear dutifully, largely because I really didn’t have any choice – no Pap smear, no Pill script. (Ask me about contraceptive hostage-taking! You know you want to!)

But every time I get a Pap smear, every single time, even now more than twenty years later, I see his face. I see him jiggling my thigh with that look of disgust. Every time I lie down and spread my legs for the speculum, I am reminded of exactly how repugnant my body is.

My first impulse is to tell you exactly how fat I wasn’t, back then. To tell you that it wasn’t ok for him to do that because I was physically fit at the time. To tell you at length about how my aerobic capacity was at the 95th centile, that I could do a hundred pushups, that I could swim a k without stopping, that I was beating my fit male friends at squash, that I was getting State medals in my chosen sport. But that’s all irrelevant – because fat-shaming isn’t ok for people who are actually fat any more than it’s ok for people who aren’t. Fat-shaming doesn’t get a pass when it’s limited to people as fat as I am now, or twice as fat as me, or whatever. Fat-shaming isn’t bad because it’s directed at inbetweenies as well as at fat people. Fat-shaming is harmful for EVERYONE. Fat-shaming is not.ok.

As long as some doctors keep seeing lithotomy position as a prime opportunity to ladle on the shame, girls and women are going to avoid Pap smears. So hey, ball’s in your court, medical profession. Fix it. Get your own house in order, and meanwhile, stop telling US we’re the ones doing it wrong.

Recommended Reading for 23 August 2010

Warning: Offsite links are not safe spaces. Articles and comments in the links may contain ableist, sexist, and other -ist language and ideas of varying intensity. Opinions expressed in the articles may not reflect the opinions held by the compiler of the post and links are provided as topics of interest and exploration only. I attempt to provide extra warnings for material like extreme violence/rape; however, your triggers/issues may vary, so please read with care.

The Guardian’s Comment is Free: Mental disability, state power, and the capacity to decide

The judge faced a hard decision and his judgment shows the traces of his ambivalence. In the end, he ruled that Mrs A lacked the capacity to make decisions about contraception, citing as the crucial factor “the uneven relationship between Mr and Mrs A”. Although Mrs A herself indicated in court that she did not want contraceptive devices, the judge found that this decision “was not of her own free will”. But at the same time, he refused to grant the local authority the power it sought to administer contraceptive devices involuntarily. In practice, granting such a power would have authorised the police to enter her residence, sedate her if necessary and remove her to hospital for conceptive measures.

Chicago Tribune: University of Illinois opens new dorm for students with disabilities (Thank you to Lassarina for the link!)

As much as moving into Nugent Hall was a remarkable accomplishment for Rozema, it also was momentous for the U. of I. Already recognized as a front-runner in disability services for students, the U. of I. dorm will allow students with the most severe disabilities — all use motorized wheelchairs or scooters — to get the personalized care they need while being integrated with typical students.

WUSA9.com: Hearing Impaired Woman With Service Dog Told To Leave Mall

“He said dogs aren’t allowed in the mall.” Denise says she never before had a problem bringing her service dog Chloe, into the mall.

On Monday, August 9, “a security guard pulled up in his car and stopped and told us we couldn’t bring a dog in the mall.”

Denise has a cochlear implant but says she still had a hard time hearing the guard. She says she tried to explain the law and proceeded inside to shop. About 30 minutes later, she was approached again by the guard. He “demanded that we leave.”

On Saturday, it happened again in front of her daughter and her husband, Terry.

CTV News: B.C. cop who shoved disabled woman gets new assignment

VANCOUVER — A Vancouver police officer caught on video pushing a disabled woman down to the ground in one of the country’s poorest neighbourhoods has been reassigned.

The 65-second video was uploaded to the web last week and appears to show a woman trying to weave her way through three male officers on the city’s Downtown Eastside.

One of the officers then shoves the woman to the ground, before walking away. The two other officers do not intervene.

Via Change.org and from the USO: A petition to support wounded warriors as they return from war

The United States is a nation at war. Thanks to improvements in battlefield medicine and the use of body armor, men and women are surviving wounds that would have been fatal in earlier wars. While they have survived, their severe injuries have turned their lives–and the lives of their families–upside down, sometimes involving many surgeries, years of therapy and a lifetime of support.

If you’re on Delicious, feel free to tag entries ‘disfem’ or ‘disfeminists,’ or ‘for:feminists’ to bring them to our attention! Link recommendations can also be emailed to recreading at disabledfeminists dot com. Please note if you would like to be credited, and under what name/site.

Things That Make My Life Easier, An Invitation (Part 3 of 3)

Cross-posted: three rivers fog, FWD/Forward, Feministe.

Part 1Part 2Part 3

This is a series I always hoped would catch on. Because hey, I can write about stuff that helps me live my life, but that’s only one experience. I would love to see a community full of people writing resource posts for other folks who are living our different sorts of lives. I know we all negotiate shortcuts in the process of getting through our days. I know we all have well-trusted tips and tricks for dealing with society’s demands of us — fair or not. And I think we can all share them — writing about our own experience, and letting it apply where it might, and not where it doesn’t — and not creating expectations of individuals to respond to individually-shared recommendations, with all the problems that can cause.

Anyway, there is a great range of experience within the world of disability, much more than is let on by mainstream narratives, and another reason I appreciate the chance for us to talk about it is that it exposes the nondisabled world to all the things that go into living with a disability, the way that disability can make life very different, and appreciating that in a more-than-superficial way. While knowledge of certain experiences doesn’t eradicate prejudice against them, ignorance certainly makes it more likely, and is one of the easier issues to address — we talk about our experience (among ourselves and for all listeners); they catch parts of it and get curious and start listening.

No one is required to educate those who hold privilege over them, but most of us do practice the art of education every single day, as our lives play out in front of those around us. We are used to explaining things. It is tiring, and it is wrong when people demand or expect it of us. But when we give it freely — that can do a whole world of good. What makes it bad is not the act of an unprivileged person explaining pieces of their life to a privileged person — what makes it bad is the privileged party’s expectation that we will explain. That is what sours the entire experience.

But sharing what helps us with our lives — hopefully helping other people in similar positions who might be able to use the knowledge we gain from our day-to-day struggles — there is room for great good in that.

There is no shame in doing things differently. There is no shame in taking a different route to reach the same end point. There is no shame in reaching a different end point, even! If it works for you, if it makes your life easier, that is what matters. Not your conformity to expected methods of doing things, but the fact that it accomplishes your starting goal or gets you closer to accomplishing it.

And, hey, part of disability is to learn to compromise, and change goals altogether. To realize that all the milestones you are “supposed” to reach aren’t necessary to a successful, enjoyable life. You don’t have to have a career, or even a job; you don’t have to complete or even begin higher education; you don’t have to find a heteronormative partner, get married and have kids. You don’t have to fulfill all the responsibilities heaped on you by a society built around the particular qualities of nondisabled people. You don’t have to shower every day. You don’t have to appear “normal.” You don’t have to have a huge local social circle. What you have to do is whatever makes the struggles of your life easier on you. That is all.

There is no shame in that. There is no moral value attached to a method of doing something. It’s a method, that’s all. Just a method. One method. Not the only option.

In that spirit, I’m going to try to pick this series back up, and I’m hoping that maybe other folks will pick it up too. Because I really do believe it has great potential for the disabled community. We already come together and share resources; maybe we can do that while communicating our fundamental humanity to the outside world as well. And they need to listen.

They’ve gotta learn at some point – they never know when we’re going to spring a pop quiz!

So please, listen and read, and write or speak your own experience. Let me know if this is something you’d like to do, and if you end up writing anything! I don’t want this to be my series. I want it to be everyone’s.

Here’s what I’ve written on so far:

intro post / shower chair, shower chair redux / Tempurpedic Symphony pillow / cute pill case / TENS unit

Readers — what can you add to that?