4 responses to “Florida Court Ruling: Community-based Services, Not Institutionalisation”

  1. Astrid

    I struggle with this whole thing, as an institutionalized person. I was never forced, in the sense that I have always been an informal patient. However, I fell apart in 2007 despite 16 hours of home support a week – something far higher than you could get today, since they cut budgets in 2009. I tend to assume that in every other case, community support should be allowed, but in my own case, I was/am clearly too bad for home services. Nonetheless, I recognize the impact my “decision” to go into an institution, has. For one thing, I can’t live together with my boyfriend. I know that I should be able to get into something that would enable me to get home support (if they haven’t cut it again), but it is a struggle I cannot fight. It is good to hear that some people are willing and able to sue for their rights, but I’m afraid there will be not much result for those who cannot/won’t sue.

  2. K

    It should absolutely be the person’s choice whether they receive home care or institutional care. I applaud her efforts … but don’t think it shoudl be that hard for anyone to receive the proper care.

    I also feel that the drunk driver who hit her should be on the hook for paying for her lifetime care, or at least their insurance company should, rather than the state.

  3. Amanda

    All I have to do is here “but things have changed…” to throw me into complete and total rage.

    Also all the rhetoric about choice always bugs me — in an ideal world institutions wouldn’t need to exist because anything (yes, anything) good that is done inside them could be done outside them. (People who don’t realize this tend to seem to me as if they’ve never even thought carefully about the matter — like a commenter on another post who said nursing homes provide community, as if noninstitutional buildings and communities for elderly and disabled people don’t exist.) Simply saying they should exist but people should have a choice is not going far enough because there will always be ways to force people into institutions until there are no institutions. The idea that you can remove them and replace them with something entirely better (and usually cheaper) doesn’t seem to cross people’s minds. There is always (always) a better way, and when people concede these places should exist, they are letting people off the hook for failing to try to be creative and come up with something better. (And if one person can’t imagine it then someone else usually can.)
    Amanda´s last blog post ..From my mother

  4. Jordan Opalanie

    Not to mention that cuts in community based services will be more expensive in the long run.

    Think about it, New Jersey is having an unusually high rate of people with developmental disabilities institutionalized. Assemblyperson Lou Greenwald is sponsoring a de-institutionalization bill which would create better community based services (ie: group homes).

    I crunched the numbers, a high functioning person with developmental disabilities could be sent to one of those Camp Hill communes with the state of New Jersey.picking up the tab, and it would only be 1/8-1/10 of the price of institutionalizing these people, and have a chance at a better life.