Daily Archives: 10 June, 2010

Quoted: Audre Lorde

The supposition that one [group] needs the other’s acquiescence in order to exist prevents both from moving together as self-defined persons toward a common goal. This kind of action is a prevalent error among oppressed peoples. It is based upon the false notion that there is only a limited and particular amount of freedom that must be divided up between us, with the largest and juiciest pieces of liberty going as spoils to the victor or the stronger. So instead of joining together to fight for more, we quarrel between ourselves for a larger slice of the one pie.

— “Scratching the Surface: Some Notes on Barriers to Women and Loving” (1978), in Sister Outsider: Essays and Speeches (The Crossing Press, 1984)

Disability-Centered Writing Wanted!

Redstone Science Fiction is running a contest!

Towards an Accessible Future

Redstone Science Fiction is calling for contest submissions that incorporate the values discussed in the essay The Future Imperfect by Sarah Einstein.

What does a world, or space station, or whatever look like when it has been designed to be accessible to everyone and how would people live together there?

The submissions should portray disability as a simple fact, not as something to be overcome or something to explain why a character is evil. The submissions should also incorporate the portrayal of disability in a world where universal access is a shared cultural value.

Check out all the details!

AND!

Popular Genres and Disability Representation

Romance novel or western, detective serial or horror film, the genre of a text affects how we “read” it, including our understanding of disabled characters. Genre forms may impose constraints upon the creators of texts, such as a particular setting or narrative structure, but they may equally open up new possibilities for representation. In science fiction, for example, new technologies, alien bodies, and alternative environments can challenge understandings of what constitutes disability or impairment. Michael Bérubé speculates that the genre is “as obsessed with disability as it is with space travel and alien contact.” What opportunities (and what constraints) might science fiction present, then, with regards to disability representation? More generally, how do the structures and conventions of genre forms, such as the need for heroine and hero to be united in romance, affect the representation of disability?

This special issue of JLCDS will explore the interplay of genre and disability with a focus on popular genre texts, whether in fiction, film, television, or other media. Submissions might consider representations of disability in particular texts or authors, in specific genres, or in mainstream texts that enter into dialogue with genre; alternatively, they might examine disability theory in relation to genre theory, or the role of fan communities. This list is not exhaustive, so submissions on other topics related to disability and genre are very welcome.

Get all the details!

Why My Disability Makes Me a Better Employee

As people may have noticed, I’ve been a bit quiet lately, mainly due to being totally snowed in and overwhelmed at work. I’ve had a major project with a hard deadline and have been devoting nearly every waking moment to either working about it or just worrying about it. That worry and constant fretting is directly related to some of my anxiety issues – it’s a worry I feel both mentally and physically, with tensed muscles and clenched stomach and jitters. And I’m convinced that anxiety helps make me a better employee and better at my job.

I am a lawyer and my major project was a hearing with an administrative law judge to determine whether one of my clients will be considered disabled by the Social Security Administration and thus eligible for cash benefits and medical coverage. Our office had been working on this case since his initial application for benefits in 2006 and in the interim, I’d seen him struggle to avoid homelessness while his income disappeared and his medical condition deteriorated without access to effective medical treatment. So this case was an extremely big deal and the outcome would make an enormous difference in the course of his life from this point.

No pressure, right? And it didn’t help that it was an extremely complicated case involving about 15 years of medical records from 10 different medical providers and facilities about three or four distinguishable medical conditions. And that, although his disabilities have extremely serious effects, they were the kind of disabilities that Social Security usually has a hard time understanding and so tend to lead to findings that the individual is not disabled. So – a major case with a lot of difficult work for an extremely important outcome. And the short time between when we were notified of the hearing date and the actual date meant that to succeed, I would need to spend nearly every waking minute in between working on the case.

Which is when my anxiety kicked into high gear – and actually made that possible. I spent all my time in the office reviewing records, teaching myself relevant medical terms and context, and coming up with an overarching narrative to frame the disabilities. But when I would close the file and go home at the end of the day, my anxiety would not let me stop thinking about it. While I was driving, making dinner, in the shower, at the gym, my mind was constantly spinning, either worrying over some aspect of the case or making a list of my next steps when I got back to work. I was not only waking up in the middle of the night to spend some time thinking about the case while staring at the ceiling, I was dreaming about it.

When I’m that anxious about a specific topic or issue, I think of my brain kind of like a rock polisher – it takes a dull idea or problem, with jagged edges, and rolls it over and over and over (and over) again until the edges are worn down and the surface is polished to a brilliant finish that can be appreciated by even the most casual observer. But the end product wouldn’t be the same without the constant, unceasing motion and effort. If the motion, the tumbling, stopped for stretches of time, the end result would not be as smooth, as shiny, as easily appreciated.

My anxiety makes it impossible for me to slack off while working on such a major project. Even when I try – by watching tv, reading a book, talking to my cat – there’s a portion of my brain that keeps spinning and spinning away, and my whole body is ordering me to pay attention to that part of my brain. Yoga wouldn’t help, hot baths didn’t work, even a hard session on the treadmill just made me more tense. The only thing that would reduce the anxiety was making some progress on the case.

I think that drive makes me a better employee and results in better and more persuasive case work. I certainly know that I would love to take breaks and put work out of my mind and to not dream about it every night. But I don’t think the end product would be as good if I were able to do that. So my employer never needs to worry about me blowing off a case or putting less that my full effort into it, because of the anxiety that will not permit me to do anything less.

(By the way, we won the case and my client will get his benefits. Yay!)

There are definitely other aspects of my disability that either aren’t relevant to or actually make it more difficult to do my work, and I don’t want to imply that everyone who is a lawyer should have anxiety to make them more effective. But this particular aspect of my disability definitely enhances my ability to focus and concentrate and motivates me to put in lots of time and thought, which is an advantage for my job.

Are there aspects of your disability that enhance ro amplify your abilities in certain areas?

Recommended Reading for Thursday, June 10, 2010

A sign shaped like West Virginia that reads: West Virginia Schools for the Deaf and Blind Established 1870
A sign shaped like West Virginia that reads: West Virginia Schools for the Deaf and Blind Established 1870

Photo by Justin A. Wilcox, used under a Creative Commons License.

[Redacted]

Trigger warning.

I have [redacted]. I am a clinically depressed woman who doesn’t always take her antidepressants or go to the doctor when scheduled or do what she’s supposed to, and I have [redacted]. [Redacted] is one of those things where, if you have it, (according to the local prescriptivists) you need to see a doctor and stay on antidepressants and take care of yourself so that [redacted] doesn’t become [even more redacted]. I’ve heard arguments about [redacted], saying that people with depression coinciding with [redacted] don’t have any rights to their autonomy any longer, that they have, just by having [redacted] have turned in their bodies as forfeit to whomever is deemed as having medical authority over themselves. We are no longer autonomous, because people just don’t trust those with [redacted] to not [even more redacted].

Poverty, Worklessness… and the #DLA

But the report then doesn’t note the factors which lead to these institutional barriers: it appears good enough to note 24% of disabled people have no formal qualifications or that over half are not in work and offer no reasons for this. The effect is to create a suspicion whichs fall on disabled people as not trying hard enough to gain a qualification or get a job – something it is convenient not to correct in order to maintain the overall narrative.

(Similarly, pupils with Special Educational Needs face some of the most significant barriers to educational achievement it is possible to face. However, the only mention of pupils with SEN in the report (in the educational disadvantage section) is to note that 9.2% of pupils with SEN are ‘persistent absentees’, compared with 2.1% of pupils with no SEN.)

Thus, if you want to build a narrative, it is perfectly possible to do so. Taking this approach, at best, the report draws the wrong conclusions based on the evidence available; at worst, it is willfully ignorant.

Audio Tours of Popular UK Destinations Presented By RNIB

On my trips in the past I have participated in guided tours. Some have been better than others, but I think that having a tour with the blind in mind would be the best. There are a lot of visual cues that tour guides rely on. Also, by having the tour be self guided, blind and sighted patrons can take as much time as they need.

Queer Tropes

As many of you know, June is the month of LGBTQ Pride and I couldn’t think of a better time to call out a few tropes that inundate comics and media when it comes LGBTQ characters/themes.

Tropes that if I never see again for the rest of my existence, I’d be eternally grateful.

While this by no means covers every trope/issue/fail, it definitely hits the major ones.

Take thorough notes, I’m gonna move fast, and this will not be pretty.

Too Deaf For The Gym?!

They replied that they needed confirmation from my doctor that as a deaf person it was safe for me to exercise.

I felt annoyed, mildly insulted, and completely inconvenienced, as this means asking one of my friends to call my doctor to request a note, as funnily enough I can’t do this myself.

Victory for Transgender People in Wisconsin Prisons

Prison doctors in Wisconsin, as in some other state prison systems, have for some time provided hormone therapy for some transgender prisoners, since hormones are part of the accepted medical treatment for many transgender people. Back in 2005, after the Wisconsin legislature got wind of this practice, it passed the “Inmate Sex Change Prevention Act,” which barred state prisons from providing hormone therapy or sex reassignment surgery to transgender prisoners. The new law over-rode the medical judgment of prison doctors and cut off hormone treatment. The ACLU, in partnership with Lambda Legal, sued immediately, securing a preliminary ruling that any prisoners already on hormone therapy could continue their treatments. Senior Staff Attorney John Knight, along with ACLU of Wisconsin Legal Director Larry Dupuis and lawyers from Lambda Legal, tried the case in the fall of 2007.

It took a few years to get a decision, but it was worth the wait.

Recommended

Even more curious is the immediate slippage from nobility to “legal incompetence” and “mental institution.” Don’t know what to make of that. Some thoughts. You can be declared “legally incompetent” and not be “confined.” I cannot believe that having spent some time in a residential care facility invalidates (deliberately used) your capacity to be and value as a citizen. And if it doesn’t, why does immigration need to know? USCIS doesn’t ask about all medical conditions requiring residential care…. And what of “legal incompetence?” I have no idea what the implications of this are for immigration. I know a little bit about what it entails in the area of family law and medical self-determination, but immigration? Beats me. Suppose, however, that the answer is yes. That you were declared “legally incompetent” midway through the application process and that at the time of interview, your status was not determinable and that you might never be able to affirm your desire to become a US citizen. Does that invalidate your application? How much does being able to communicate that you still wish to become a citizen affect your application, if, say, you would qualify on all other grounds?

Hugging Problems

Recently I was thinking about hugging and remembering what physical affection was like at the ASD school where I interned last summer.

I remember the last day I was there I asked my favorite kid, R.D., if I could hug him. He said yes, but when I put my arms around him he didn’t put his arms around me. I remember that this was something I did at his age, and it was because I saw hugs as an opportunity to get my whole body squeezed tightly. But I also wonder if, given the culture of the school, R.D. felt that he had the right to say he didn’t want to hug.

Headlines:

UK: Dangerous Psychiatric Patients tracked with GPS: Potentially dangerous psychiatric patients are being fitted with GPS tracking devices to prevent them absconding on day leave.

US: Removing ‘Retardation’ from New York State Agency: For the second time in a year, New York legislators are considering changing the name of one of the only state agencies in the country with “retardation” still in its title.
See Also: Push To Eliminate ‘Mental Retardation’ Contentious In Holdout State

New Zealand: Auckland’s newest all-access playground opens: This unique playground features an inclusive, all-access play space that is accessible to children of varying abilities, including disabled children.