Daily Archives: 24 May, 2010

What is “healthcare”? A tale of a murderer, a victim, and a tattoo.

[*** WARNING for detailed domestic violence description from the fourth paragraph on. ***]

My local paper has been abuzz with righteous taxpayer outrage over the State paying for a tattoo removal for a woman, who I’ll call JMN.

The story of JMN disrupts a number of neat stereotypical societal narratives about domestic violence, about victimhood, about killers, about the meaning of ‘healthcare’.

To go back to the beginning, at least to the beginning of the public part of the tale, JMN is a convicted murderer. She was found guilty nine years ago of murdering her “Internet lover”, MW.

According to published accounts of the trial, JMN’s husband MH, an abusive, violent gang member, found out about her relationship with MW, and “punished” her repeatedly. He violently cut off her hair, leaving her needing skin grafts to her scalp and hand. He beat her repeatedly, with fists, with pool cues, with a belt. He poured boiling water over her. He forced her to have a tattoo reading “Property of [MH’s full name]”. He punched her and choked her, leaving her needing hospital treatment.

And after all of this abuse and intimidation which left her in fear for her life, he visited and threatened the lover, then ordered JMN to kill him.

JMN shot MW under her abusive husband’s orders, backed by this violent intimidation, and she was convicted of wilful murder. She has been in custody ever since, with a minimum sentence of fifteen years.

Unsurprisingly, perhaps, JMN now has mental health issues. (These are not described in detail in the press, nor should they be.) She was a victim of unspeakable violence (as well as being a perpetrator under duress), and is currently seeking criminal injuries compensation – which is what has triggered off the righteous-taxpayer-indignation. Her criminal injuries compensation was initially refused, and the case is now under appeal.

But the Righteous Indignant Taxpayers haven’t stopped there. The papers are now pawing over the rather insigificant detail that the State may partly fund tattoo removal for JMN. The Department of Corrective Services has committed to paying for half the cost of the procedure, which is expected to cost only $2000.

$2000.

The shadow attorney-general is outraged, he says, outraged! How dare the Precious Indignant Taxpayer be asked to fund “cosmetic surgery”! The Corrective Services Commissioner has responded in sensible and general terms, saying that he “was acutely aware he had to take into account many factors when making difficult and sensitive decisions in cases that involved complex social, psychological, cultural and physical health considerations”, and that he made a judgement call, as he does on a daily basis.

JMN is statistically at very high risk for mental health problems, self-harm, and suicide. She is incarcerated, and suicide is the leading cause of death in Australian prisoners. She has been the victim of horrific domestic violence, and victims of domestic violence are five times more likely to commit suicide than average. The Commissioner took into account psychological reports and his personal interview with JMN when making the determination that the State would fork out a grand or two to take off the tattoo she was violently forced to get, the tattoo that is reminding her constantly of her abuse and contributing to her mental health difficulties.

Let’s get a little perspective. One acute psychiatric bed-day in Western Australia costs just over $1000. The cost of this tattoo removal equates to around one weekend stay in hospital for a relatively minor psychiatric crisis. We’re not talking huge pots of cash here. We’re talking about a sum that is absolutely tiny in the scale of costs involved with healthcare and with the justice and corrections system.

We expect, as a society, to provide healthcare for prisoners. Western Australia is committed, on paper at least, to providing prisoners with the healthcare they need, including mental healthcare. The general level of care we as taxpayers have committed to equates to the level of care that people should be provided in the public healthcare system. Tattoo removal is on the proscribed “cosmetic surgery” list for State hospitals, but that list comes with one very important caveat – that the procedure should be denied State funding if there is no “clinically significant” indication.

I can’t think of any more “clinically significant” indication than a tattoo someone was forced to get at the hands of her abuser, a tattoo that is making her sick. A tattoo that reminds her around the clock of his attempts at intimidation and dehumanisation. A tattoo that states outright that she is the “property” of this violent man. A tattoo that contributes to her greatly increased risk of self-harm and suicide.

Cannot we, as fellow humans, can find enough shreds of compassion to be comfortable with spending this trivial sum on what is likely to be a cost-effective contributor to the health of someone we are, as a group, responsible for?

This case is a touchstone for a whole pile of prejudices. It makes people particular uncomfortable, I believe, because it disrupts the nice little myths that nice little Indignant Taxpayers like to indulge in. The neat little “innocent-victim” narrative of domestic violence is disrupted by the fact that this women is also a perpetrator. The neat little “evil-murderer” narrative is disrupted by the fact that she was the victim of horrendous abuse, and that she committed the killing under fear for her own life. The neat little “nasty slut” tattooed-woman narrative is disrupted by the fact that she was forced to get this tattoo in the course of her husband’s abuse. The neat little “adequate healthcare” narrative is disrupted by the fact that tattoo removal usually lies outside of what some of us might usually consider to be “healthcare”.

All of this is adding up to a situation where the Righteous Indignant Taxpayers want to wash their hands of it altogether, though it’s clear they’d rather have a set of public stocks and rotten tomatoes to throw. They shout in comments “Give her nothing but bread and water”, “Why am I responsible?”, and “This woman knew what she was marrying into – hard cheese, I’d say”. Revolting.

Australia’s National Mental Health Policy states that as a nation, our key aims in mental healthcare include the prevention of the development of mental health problems and mental illness, the reduction of impact of mental health problems, and the promotion of recovery from mental health problems. These aims apply no less to people in custody, who are at extremely high risk and have particular mental healthcare needs that are all too frequently dismissed or actively resisted by people in a society that wants nothing more than to inflict as much suffering as possible on prisoners.

There’s an interesting wider question here, which is about our definitions of healthcare, and about the fact that the determinants of health often lie outside the very narrow systems and procedures that we label “necessary healthcare”. For example, we know damn well, on a macro scale, that poverty and inequality is a more important determinant of health than doctors and nurses and public education programmes aimed toward “behavioural modification”. Could not a piece of marked skin be a more important determinant of health in a single person than all the psychologists and pills in the world?

Ableist Word Profile: Why I write about ableist language

  • Ableist Word Profile is an ongoing FWD/Forward series in which we explore ableism and the way it manifests in language usage.
  • Here’s what this series is about: Examining word origins, the way in which ableism is unconsciously reinforced, the power that language has.
  • Here’s what this series is not about: Telling people which words they can use to define their own experiences, rejecting reclamatory word usage, telling people which words they can and cannot use.
  • You don’t necessarily have to agree that a particular profiled word or phrase is ableist; we ask you to think about the way in which the language that we use is influenced, both historically and currently, by ableist thought.
  • Please note that this post contains ableist language used for the purpose of discussion and criticism; you can get an idea from the title of the kind of ableist language which is going to be included in the discussion, and if that type of language is upsetting or triggering for you, you may want to skip this post

This is Part 1 of a two-part series on Ableist Language Discussions in the Blogosphere.

There’s a lot of chatter that goes on ’round the Social Justice Blogosphere about Ableist Language: what is it? what do you mean? those words don’t mean that! how can you say that? what does that mean? why are you bringing this up? don’t you have more important things to talk about? Intentions intentions intentions! It makes my head hurt.

I talk about ableist language for a variety of reasons. The most obvious, I think, is to challenge ableist ideas that center the experiences of non-disabled people. When someone proudly assures me that words like “lame” and “dumb” and “r#tarded” are never used to describe actual people with disabilities, I’m fairly certain I’m talking to one of the currently non-disabled. Currently non-disabled readers, I’m here to tell you: those words, and any similar words you think are “archaic” and not used anymore, are used all the time, as taunts and insults towards people with disabilities, and in some cases as official diagnoses. Some of them are also used in reclamatory ways by some disabled people, but certainly not all.

But it’s more than that. Part of why I challenge ableist ideas and ableist language is because I would like more Social Justice bloggers to think “Oh, yeah. People with disabilities also read social justice blogs! I should remember that more often when I’m writing.” [I also like to challenge it in other places, which is why I occasionally go through spaces like Wikipedia & TVTropes and re-write every instance of “wheelchair bound“.]

There’s a strong tendency to assume that disability-related issues are somehow a separate thing, as though there’s a Disability Silo and things like reproductive justice, racism, heterosexism, anti-immigration, transphobia, classism, and misogyny, etc, don’t actually enter into that silo. As though no one with a disability is interested in reading about these topics, or is affected by them in any way, or is an activist on the topic, or wants to be more of one.

When someone writes something like “Wow, those anti-immigrant people are r#tarded idiots!” [I made this example up] or giggles about seeing Dick Cheney “wheelchair bound” because “it couldn’t happen to a more deserving person!” [I did not make this example up], I bring up the ableism, and my activity in the disability rights movement, as a way of reminding them that we’re here. We’re reading. We’re participating. And it’s more than a little-bit alienating to see social justice bloggers using our experiences and oppressions as their go-to for “insulting people we don’t agree with”.

But at the same time, I don’t think talking about ableist language – no matter how well-intended – is enough. It’s a step. But that’s all it is.

I will write more about that tomorrow.

Recommended reading for Monday, May 24 2010

A service pup in training
Description: An Arizona Golden puppy wearing a Halter that reads “Service Dogs Helping Others Improve Their Lives”

From flickr user Cobolt 123, used under a Creative Commons License.

Teacher duct tapes disabled boy’s arm to wheelchair

Anthony Birden, a 12 year old with shaken baby syndrome, who can only communicate with his right hand, had that hand restrained with duct tape by a teacher in Colorado. Teacher Leslie Garcia said it was the only way she could make him stop doing a gagging movement. The boy’s grandmother says that is the way the child communicates.

The district attorney decided not to charge the teacher. However, the incident continues to be investigated by the Center for People with Disabilities, who believe the act is against state law. After they submit a report, they will follow up with the school. A review by the federal office of civil rights may take place.

Checking Assumptions (at the door!)

Today we have a poll!

I want you to read the scenario described below and then answer the poll questions as you read them. Please answer AS YOU READ, don’t read all the questions before you answer and please don’t read the comments before you answer!

War and Disability in Afghanistan

This article offers insight into day-to-day issues facing ordinary disabled people in different parts of the world. And it manages to avoid the melodrama that peace advocates sometimes invoke when talking about disabilities caused by war.

Even as we fight our own critical battles for civil rights and essential support services, disability rights activists must be aware of the impact of our government’s military actions on people with disabilities across the globe.

Hilary Beaumont has written a three-part article for the Halifax Media Co-Op on Rape: Part 1. Part 2. Part 3.

Via Sharon Wachsler in comments:
The Voices Behind the Disease

I want to give others a chance to use their own voice. I know that while my writing may be useful, everyone’s journey, story, experiences and needs are different. What I experience and what I say may not apply to everyone else. I wanted to help others voice their own account of Lyme and the affect that it has had on their own life, and what they wish that their friends and family would understand. It is my hope, that if I put together the words of more than one Lyme patient, I’ll be able to paint a vivid picture of the disease and its many shapes, forms and effects. We will be able to paint a vivid picture of the disease, not only for Lyme Disease Awareness Month, but for the understanding and support that every Lyme patient needs and deserves.

I posed a question: What is one thing that you wish your family and friends understood about your disease and how it has affected your daily life?

I’d like to share the answers with you.

I’ve been really enjoying some of the stuff coming my way via @disabilitygov on twitter. It’s US-based, but at least some of it is applicable to other countries as well.

Best Practices Guide in Mentoring Youth with Disabilities [link is to description, the guide itself is available in PDF & Word] I’ve only skimmed the 145-page document, but it’s reminded me how much I want to do some Mentoring programs once I settle down in one place.

A guide on best practices and programs for mentoring young people with disabilities, including suggestions on starting or expanding a program to include youth with disabilities

They’re doing a 100 Days to the ADA blog that may also be of interest.

Have you been reading RMJ’s TelevIsm posts at Bitch Blog?

In the News:

Henderson: Finding the right word to describe the disabled is often a struggle

Alberta Must Restore sex-change funding