Monthly Archives: April 2010

Percy Jackson and the Olympians: The Lightning Thief — The Special Thing About You

Percy Jackson, a pale young man in a grey t-shirt and jacket holds a lightening bolt in his hands in a New York City Background.Every now and then a movie comes out and I get super excited about it because it sparks something form my childhood or youth that I love.

Percy Jackson and the Olympians did that. I loved Greek mythology in High School (even if I went a little cross-eyed reading The Odyssey and The Illiad). Hollywood is trying to make mythology cool again, and I was stoked about that.

I so wanted to see this movie…and because I think I live under a rock sometimes, I hadn’t heard it was a book series *scribbles a wish list*.

And then we went to the theater.

***Spoilers Ahead. Turn Back Now!***

Last Chance to Avoid Spoilers! Continue reading Percy Jackson and the Olympians: The Lightning Thief — The Special Thing About You

Recommended Reading for April 20, 2010

Scott Carney (Mother Jones magazine): Inside India’s Rent-a-Womb Business

Despite the growth in services, surrogacy is not officially regulated in India. There are no binding legal standards for treatment of surrogates, nor has any state or national authority been empowered to police the industry. While clinics have a financial incentive to ensure the health of the fetus, there’s nothing to prevent them from cutting costs by scrimping on surrogate pay and follow-up care, or to ensure they behave responsibly when something goes wrong.

Benedict Carey (New York Times): Seeking Emotional Clues Without Facial Cues

Ms. Bogart has Moebius syndrome, a rare congenital condition named for a 19th-century neurologist that causes facial paralysis. When the people she helped made a sad expression, she continued, “I wasn’t able to return it. I tried to do so with words and tone of voice, but it was no use. Stripped of the facial expression, the emotion just dies there, unshared. It just dies.”

Goldfish at Diary of a Goldfish: Blogging Against Disablism Day (BADD) Will be on May 1st, 2010

Blogging Against Disablism day will be on Saturday, 1st May. This is the day where all around the world, disabled and non-disabled people will blog about their experiences, observations and thoughts about disability discrimination. In this way, we hope to raise awareness of inequality, promote equality and celebrate the progress we’ve made. [Note: Click the link for info on how you can participate in BADD 2010!]

Max Harrold (Montreal Gazette): Filmmaker in wheelchair says red-carpet rejection inspired film

[Filmmaker Sean Marckos] has it all on video: He and a colleague, both in tuxedos and with their tickets in hand, being hustled out of the famous Palais des festivals in Cannes in 2008 and 2009. They were told they could enter only through a rear entrance, away from paparazzi. “They didn’t want me next to the beautiful people like Brad Pitt and Angelina Jolie,” said Marckos, 31, who has muscular dystrophy.

National Center For Lesbian Rights (NCLR): Greene vs. County of Sonoma et al.

One evening, Harold fell down the front steps of their home and was taken to the hospital. Based on their medical directives alone, Clay should have been consulted in Harold’s care from the first moment. Tragically, county and health care workers instead refused to allow Clay to see Harold in the hospital. The county then ultimately went one step further by isolating the couple from each other, placing the men in separate nursing homes.


This Terrifies Me

Here in the U.S., there’s been a lot of buzz about a new immigration law passed in Arizona (including on meloukhia’s tumblr, where I first saw it). Their state legislature just passed a bill that “makes it a crime to lack proper immigration paperwork and requires police, if they suspect someone is in the country illegally, to determine his or her immigration status. It also bars people from soliciting work as day laborers.”

This is a big change from the current situation. Because immigration is a nationwide issue, the federal government makes the immigration laws. There is a federal Department of Citizenship and Immigration Services that administers applications for immigration status. There is a whole department of Immigration and Customs Enforcement with quasi-police enforcement agents that put people in quasi-jail immigration detention facilities. It’s a whole federal system that runs parallel to the police and sheriffs who work for individual cities and counties.

For a long time, not only were local police not solely responsible for enforcing federal immigration laws, it was a longstanding rule that state and local police did not have the authority to enforce those laws. State and local police actively tried to distinguish themselves from immigration enforcement so that community residents who were immigrants would continue reporting crimes and helping the police with investigations. The split between responsibilities serves an important purpose in protecting overall public safety.

This is why it’s a big deal that this new law would require local police to determine the immigration status of anyone they suspect to be in the country illegally. Given the vague description of what would be an acceptable reason to suspect someone to be undocumented, it’s extremely likely this is going to translate to “check the papers of anyone who is Latina/o.” “A lot of U.S. citizens are going to be swept up in the application of this law for something as simple as having an accent and leaving their wallet at home,” said Alessandra Soler Meetze, president of the American Civil Liberties Union of Arizona.

Certainly a police officer fulfilling their requirements under this new law might in fact discover that someone is undocumented. But this law also gives every police officer carte blanche to insist on immigration paperwork from anyone they want – another tool for harassment and intimidation that will surely be deployed selectively. It warns not only undocumented people, but all immigrants and anyone who might appear to be or resemble an immigrant in any way – stay inside. Disappear. Vanish. We do not want you here and if we see you we will hassle and interrogate and judge you.

This law just used the official voice of the state to tell this whole group of people – most of them people of color, most of them legally present in the U.S. – that they are not wanted.

That message of not being wanted, that directive to become invisible and disappear, that clear desire that a whole group would just go away and stop being a bother. That’s the same feeling I get when reading articles like this one in the Fresno Bee bemoaning an effort to get local businesses to provide accommodations for people with disabilities. Just think of the economic effect on local retailers! They’ve been open for 20 years! How dare the PWDs file lawsuits instead of just asking the proprietor who I’m sure is very nice and would just love to help out voluntarily! The message is the same – having PWDs here is too expensive. Too much work. Something to be given only out of the generosity of those in charge, not demanded. If only the PWDs would just go away our local businesses would be fantastic!

In one instance, popular opinion and the business community are telling PWDs to go away or be invisible. In the other instance, the state government is telling immigrants to go away or be invisible. Both are premised on the acceptance of the idea that it’s ok to look at a minority group of people and reject them, as a group. That’s why I reacted negatively to both those news articles – it is not ok to oppress people as a group. If it’s ok to treat immigrants that way in Arizona, that legitimizes treating PWD that way in Fresno. And this law is such a big step in the wrong direction that it makes me worried about similar erosions for other groups – including PWDs.

Recommended Reading for April 19, 2010

A blue-painted brick parking stall with the disability-symbol of a white wheelchair painted on it as well - edited after comment from noracharles
Description: A blue-painted brick wall parking stall with the disability-symbol of a white wheelchair painted on it as well. – edited after comment from noracharles.

Today is the deadline for the Disability Carnival
Check out River of Jordan for more information!

Out of the mouths of babes

Without answering he calls to the guys on the platform a couple floors up. He wants them to move the machine. I can see what a hassle this is. They are going to have to lower the platform, move it a few feet so I can get on my way, move it back so they can be back in position and then raise it back up to where they are working. I felt immediately like this huge bother. But the driver glanced down and saw me and hollered that he’d move the truck.

The platform lowered, it seemed to come down at such a slow pace, I could feel my hair grow as I waited. Joe, who really hates it when we bother people or put people out is standing a few feet ahead looking very perturbed. Once the platform is down, the fellow moves it two or three feet ahead, plenty of room for me to get around. I call out as I’m going around, ‘Sorry to be a bother.’

On growing up with strange sensory reactions, and the difference between passing and being passed off.

This is one reason that I question the entire concept of passing. I rarely spent five minutes around other children before they figured out I was different. Often it was more like five seconds. Kids weren’t generally picking up my intellect or nerdiness (they might pick that up later but not immediately), they were picking up my strangeness. Much of the time they said so quite openly and as we got older they were trying really hard to explain why I was strange. But I was always strange, there was never a point even when I did my best attempt to “behave” that this was ever in question. Even when neuroleptics drastically tamped down on my ability to explore my environment in those ways I could expect to wait seconds before I was pointedly and often out loud judged as some kind of Other. Even among kids in mental institutions where the rate of neuro-atypicality was higher, I only very occasionally connected with anyone and it was always their doing, others just either shunned me or found ways to do harm to me.

Weird thing is even though I heard all about being strange my whole life I always underestimated my strangeness. I rarely connected all the dots in others’ reactions to me. I knew I was different but since I couldn’t imagine how all the things I did looked to others, I assumed I was “normal enough” largely because of that and because I was always around myself and therefore found myself… not boring exactly, but like I was used to me. The same way I never knew my autistic brother stood out that much even though he did (although more in the stiff/nerdy way than the sensory/strange way, we are very different people).

Via Penny in email: groping

This wouldn’t be particularly notable, but today I read in the NY Times Magazine of a study that aims to find out what men’s “real” preferences in women’s body types are by toting around headless mannequins of various dimensions for blind men to grope. Hmm, how many things are wrong with this study?

Via Jonquil: Betty Dodson and Audre Lourde: Can I possibly use the master’s tools to demolish her house? [Post uses blindness as a metaphor, questions of sanity as a metaphor]

Then there is the disturbingly unquestioned position of authority that Betty holds on all things sexual. Reproducing patriarchal systems of hierarchical power, it seems she has reached to far high up the ladder that anyone who dares ask a question is a pariah whose sanity is to be questioned. I had never heard of her before this Clitoraid thing and so it was in naivete that I questioned her ‘expertise’ on the issue of Female Circumcision. Woe unto me for daring.

I have to admit that it is with sadness I wonder out loud if this the cutting edge of North American feminism? Is it that the sum total of feminist thought and mobilizing is about pleasure? We’ve made the entire experience of womanhood all about what is between our legs and not between our ears and in our hearts? That the respect so necessary in building the bridges of sisterhood is to be abandoned because one ‘expert’ must be venerated?

For Want of a Menu Button

The student center building at my university has a couple TV lounges set up for students to use. Through no fault of the student center, the manufacturer of the TVs did not include any sort of ‘menu’ button on the front of the TV itself– so it’s impossible to turn on captions without the remote, for viewers who may need it.

Talking about injury in dance

Equally as salient, for me, is managing the overlap between disability and injury. When I first separated my shoulder, someone sent me a request to participate in a study, the basic question/thesis of which was (whether) disabled dancers get injured more than non. I didn’t participate because I felt the supporting materials showed some bias towards suggesting that disabled dancers were more of a liability. (And, yes, I was feeling pissed off and vulnerable at that time.) I imagine that many of the things injured dancers do to take care of themselves (as if self *were* the injury) are the things I do on a daily basis in an attempt to keep the worst of the symptoms under control. Am I injured? No. But I do live my disability life as if I were. In a weird way, it prepares me for the twists and tweaks of dance injury.

Dr. Drew – Stop Policing Other People!

Dr. Drew enrages me. The way his whole empire is built on callous exploitation of the pain, suffering, and need of others makes me very suspicious of his motives and goals in treating people. But even more than that, his eagerness to observe people through tabloid reporting and unsubstantiated rumors and then make unfounded assumptions about whether they’re experiencing substance addiction or abuse issues and/or mental health issues is, frankly, repugnant.

He’s been targeting Lindsay Lohan recently, and has said some absolutely outrageous and unacceptable things about her in recent days. I saw this reported by the Onion AV Club and they respond so nicely I’m just going to quote them:

Dr. Drew Pinksy, of Celebrity Rehab With Dr. Drew, Sex Rehab With Dr. Drew, and Dr. Drew’s Ol’ Fashioned Healing Vapors & Hair Tonic, is obviously a great doctor. He can diagnose life-threatening drug addiction just by listening to unsubstantiated rumors. He knows which cameramen will help the most in each individual addict’s recovery. And he is great at uncovering and broadcasting an addict’s childhood trauma—which is the only reason anyone becomes addicted to anything ever.

In fact, Dr. Drew is such a great doctor, he diagnosed then officially cured Lindsay Lohan via an interview with the always reliable gossip website RadarOnline.

First, Dr. Drew detailed his recommended course of therapy for Lohan:

“If she were my daughter, I would pack her car full with illegal substances, send her on her way, call the police, and make sure she was arrested. I would  make sure she was not allowed to get out of jail. I would then go to the judge and make sure she was ordered to a minimum of a three year sobriety program.”

I’m sure Dr. Drew already emailed this interview to the head of development at VH1, because in addition to being a terrific treatment plan for an addict (and also a morally sound thing to do), Dr. Drew’s Celebrity Frame-Up & Jail For Addicts Featuring Dr. Drew would also make a great reality show.

But after pitching his new show/course of therapy for Lindsay Lohan, he added this:

“I would say it’s less than a 1% chance of her making the decision to go to rehab. I have said this many times before, I believe that Lindsay will make a wonderful sober person, someday, if she survives this. I absolutely wish no harm to her, but I just have a feeling that something awful is going to happen to her, like she is going to lose a limb. I hope Lindsay gets help before something terrible happens.”

Something terrible like having a celebrity doctor diagnose you on a gossip site, or tell you what you need to do, or plant drugs in your car then call the cops on you?

It is easy to imagine the same kind of “logic” and “help” being applied to someone with a mental illness. Dr. Drew might suggest calling the police and saying that an individual had threatened suicide – even plant a weapon or suicide note on them to be sure the police would take them in for psychiatric commitment. He would publicly judge and shame that person for not seeking what Dr. Drew considers to be appropriate and beneficial treatment and imply that if his proposed treatment plan isn’t followed, any harm that befalls the person is their own fault.

This is not ok. It is dangerous, and is unfounded judgments and shaming. And it is utterly inappropriate and unacceptable from a medical doctor.

Chatterday! Open Thread.

This is our weekly Chatterday! open thread. Use this open thread to talk amongst yourselves: feel free to share a link, have a vent, or spread some joy.

What have you been reading or watching lately (remembering spoiler warnings)? What are you proud of this week? What’s made your teeth itch? What’s going on in your part of the world? Got any questions for your fellow FWD commenters?

Today’s chatterday backcloth, a big capybara smooching a wee capybara, comes via the Daily Squee.

Big capybara kissing a little fuzzy capybara, with the sunlight on rocks in the background

An OYD Airline Rant

I won’t apologize for her actions and I’m not sorry for what happened to you. It’s not in our contract to assist passengers with their luggage and we reserve the right to refuse assistance to anyone. If that’s what you need, then perhaps in the future, you should make other travel arrangements.

Well, to say the least, that is not the kind of response I expect to get from a customer service representative; not the Entry Level Line Memorizing Oh Dammit Did You Really Ask For A Supervisor people, and I certainly don’t expect it from a supervisor. Were I to get such a resonse I would certainly suspect that something slightly sinister was going on here at said establishment where I was complaining. After all, if I am speaking to a Customer Service Supervisor, things have reached a fairly epic proportion of shit deep inconvenience, because I pretty much go out of my anxiety issue way to avoid having conversations with people I don’t know in person (let alone on the phone). Because I have to weigh the cost of spoons spent on holding myself together long enough to get out the details of what happened, as I did recently with my complaint to Patient Admin about Nurse Midwife V, versus the benefit of getting shit cleared up so it doesn’t happen again to other people who may follow after me and patronize a company, needing services, like in this case, travel.

But here, this is exactly the case. Here, evilpuppy from Incoherent Ramblings From a Coffee Addict, who, expending great energy, spoons, and emotional well being tried to file a complaint on the completely despicable treatment doled out by the staff at United Airlines, and received this condescending and otherwise completely, well, jack-assed and ignorant response from someone who should have a working knowledge of how an employee on an airplane should treat a person with a disability. Not in an email response or even in a letter form; this response was delivered face to face. All of this after she already went to the trouble of pre-arranging accommodations for a wheelchair and made sure to note with the ticket agents — multiple times — that she would need assistance on the plane.

Just a small dose of what evilpuppy endured:

The wheelchair left me off at the door and after making sure I had all of my belongings, he turned around and left. I boarded the plane and made my way back to my aisle seat where I set down my special seat cushion and lumbar brace before looking around for a flight attendant to help me put my luggage in the overhead compartment. The attendant standing in the front section of economy was a blonde woman probably in her late 40s-50s and I called her over to explain that I needed her assistance because I wasn’t capable of lifting my luggage due to my disability. To my surprise, the attendant rejected my request while excusing it by saying: “If I helped everyone do that all day then MY back would be killing me by the end of the day!” I asked her how I was supposed to get my luggage stowed and her answer was: “You’ll just have to wait for someone from your row to come back here and ask them to give you a hand.” When I asked what would happen if no one would, her response to me was: “Well, normally a passenger is around to overhear something like this and they’ll offer to help with it on their own. You’ll just have to ask someone when they get back here.” Then she turned back around and went up to the front seats where she waited to “assist” other passengers.

I was completely flabbergasted, but with no other option, I sat down to wait and pulled my carry-on suitcase as close as I could to try to get it out of the way of the aisle. As I’m sure you’re aware, however, your aisles are considerably narrow and even my best efforts left half of even my small carry-on suitcase in the aisle. What’s more, rather than help me, most of the passengers simply knocked into my suitcase and shoved past me on the way to their own seats. Every time they hit the suitcase, it in turn hit me and jarred my back more and more with each strike. The plane wasn’t even half boarded and it already felt like the pain medication I’d taken less than a half hour prior to entering the airport had worn off as though I hadn’t taken it at all.

Now, I have endured some pretty meh-hessed treatment at the hands of customer service personnel. I have seen other people treated pretty horribly. I have had my disability status questioned, rejected, laughed off. I have had it compared to the fatigue of being a stay at home mother of two children (I am not downplaying the work of SAHMs, having once been one myself, but these are apples and well NOT APPLES!), and of course DIET AND EXERCISE! but never have I had someone so flatly refuse to acknowledge that 1) their co-worker/staff/employee so royally screwed up and 2) that their co-worker/staff/employee’s royal screw up really fucked my world up and over in a way that might just have rendered my next few days useless, since that might mean that I will then be spending the next two or three or more days in bed or on a couch with my feet up trying to recover from the aforementioned loss of spoons and emotional well being.

To put it concisely: Wow. That is messed up.

Not to mention, I am not sure I have ever patronized any business where it was standard procedure for other paying customers to assist a person in lieu of the paid employees who are standing around. It just seems lately that airlines are giving me more and more reasons to not give them more money than I can afford to basically be treated like crap.

I have never been told that it wasn’t the job of the person whose actual job it was to help me.

OOPS! UNITED STEWARDESSES! ITS LIKE TOTES YOUR JOB!

Once passengers are onboard the aircraft, our flight attendants can help with stowing and retrieving carry-on items, as well as providing wheelchair assistance to move passengers to and from the aircraft lavatory (although they cannot provide assistance inside the lavatory). Flight attendants may also provide assistance with taking oral medication, identifying food items on meal trays and opening packages.

Is there a single airline that isn’t treating humans like chattel these days? That isn’t outright pissing me off for one reason or another (well, Korean Air hasn’t yet, but I haven’t flown International since the Christmas debacle). I am beginning to think I will need to take a boat to get home the next time. And Space A military flights are a privilege I am willing flex more and more if I have the time and pain medication available. It might be worth it to not be herded on and off a plane like cattle, denied bathroom and water privileges for hours on end (which can be living hell to a PWD).

Oh, and also:

Then the flight is delayed. We sit on the runway for some time, and because of the new federal law requiring that airlines not keep people on the tarmac for more than 3 hours, they let us off for about 5 minutes before insisting we all get back on because we are leaving right now. We do not leave right now, or for several more hours. They let us off the plane again. Shortly thereafter, they insist that we all get back on the plane because we are leaving right now. We do not leave right now.

At some point after the second or third round of boarding and being told to sit down because we are leaving right now, a man towards the back of the plane stands up to get himself a cup of water. For context, this flight is (or was supposed to be) a 7:40 a.m. flight from Atlanta to New York, landing around 9 a.m. It is full of (mostly white) business people in suits. This man is brown, and appears to be South Asian. A flight attendant at the front of the plane, near where I’m sitting, sees him stand up and panics. She throws open the airplane door and starts yelling at him that he isn’t allowed to stand up, and that he needs to exit the plane immediately. The man is confused, and says, “What? I was only standing up to get a cup of water.” She yells out, “I don’t care, you’re off the flight! Get your things, you’re off the flight!” Water Man starts arguing with her about how he just wanted a glass of water, and he is happy to sit down now, but he’s not getting off the flight. The flight attendant says that she feels threatened and gets a supervisor, who in turn gets airport security, who in turn tell the man that he is going to be arrested and charged with a felony if he does not exit the aircraft. The man, probably smartly, exits the aircraft.

Like Jill passes over in her rant here, with all the hype of racial profiling being trendy, if you assert your right to a simple thing like a drink of fucking water while daring to be brown you can be thrown off of a flight.

Thankfully The Consumerist has picked up on this (although “who says she’s disabled”? Could we pour more salt on this?). I am not entirely sure how much good this does things like this, except that I give them all kinds of link love on Facebook when I find something relevant, so maybe this went viral? I would however, like to point out that the comments at The Consumerist are some of the worst disability blaming shite I have seen in a while (and it shows how safe my social justice bubble is). It seems that we, the PWDs, should not dare to carry on a bag if we a) need a wheelchair to get on a plane b) can’t lift it ourselves and c) have the audacity to want to be treated JUST LIKE EVERYONE ELSE ON A PLANE. Also, don’t forget, if you take pain medication, and/or dare to have a drink on the plane to settle your anxiety you are not to be believed when you make claims as to the crappy ass treatment you received. Nope.

Because there is no way in the entirety of the multiverse that you would ever remember something as abusive or as hurtful or as downright dehumanizing as what Dina the Customer Service Supervisor at SFO said to you, for the rest of your life, or how it made you feel at that moment in dog damned time. Evah.

PWDs are not human. We are not people who should be existing in the same world with those good, hard working, abled-bodied people who can do everything themselves. To hell with us, for not being able to lift our bags! Forget that we just maybe had to scrape together all the money we had to afford the damned flight in the first place so that extra twenty five dollars is NO BIG DEAL JUST CHECK YOUR DAMNED BAG YOU LAZY STONED JERKS!

Silly me for expecting human treatment for all humans.

Via commenter Livre at The Consumerist, United is apparently attempting to contact (or has, I am looking into it) in true “Oh Snap Kevin Smith Has One Million Twitter Followers DOOOOOO SOOOOOMETHING” fashion to try and do damage control sort this out.

Sort this out? That would be something, now, wouldn’t it?

h/t to my friend Kate on Facebook

Recommended Reading for April 15, 2010

Hi! As you may have noticed, we’re rotating Recommended Reading between a few contributors now. This is my first one, and it may have a little bit of a different style? I don’t know. Anyway, here it is!

A woman faces the ocean, her back to the camera. An aqua bikini top is tied across her bare back and her arm holds her hair at her neck. A prominent scar runs down her spine.
A woman faces the ocean, her back to the camera. An aqua bikini top is tied across her bare back and her arm holds her hair at her neck. A prominent scar runs down her spine.

History Lessons – Scar

My daughter will inherit my scar.  Obviously I know that you can’t inherit a scar, but she’ll likely end up having the same spinal surgery as me in the future. We both have scoliosis. Pretty bad scoliosis. I was diagnosed at eight; she was diagnosed at five. I wore a back brace and she wore one too. … There is no reason to cover it up.

BBC News – Making Light of Disability

Disability is one of those things that makes people feel awkward – there is perhaps a deep-rooted, psychological fear of contamination by association. So what we often do when something makes us feel uneasy is to laugh about it. It’s still well within living memory that TV comedians would poke fun at people from different ethnic groups – but broadcasting executives soon cottoned on to the fact that they risked alienating growing sections of their audience for the sake of a cheap gag.

Wheelchair Dancer – Disability and Race: Who Will Catch You If You Fall? (not new but still recommended)

In the workshop, I found myself in a conversation about disability and race. One of the participants had worked with some black disabled men; she was confused about why they identified more with being disabled than with being black. Didn’t they experience racism every day? Were they blocking out their blackness, disconnecting from their roots? Were they denying the hatred that black men experience on a daily basis? And then I got thinking. There are many ways to put the pieces of the puzzle together; indeed, for academics, “black disability studies” and other race and disability enquiries have recently become a new edge (yeah, I know… it’s problematic…). I would put some of the many pieces together like this…

Blog of Legal Times – Colorado Lawyer Settles Discrimination Suit Over Dog

A Colorado Springs lawyer who refused to allow a veterinarian and her service dog to enter his law office for a scheduled deposition in a civil action has agreed to pay $50,000 to settle a federal discrimination suit. LeHouillier demanded the veterinarian, Joan Murnane, prove her dog, an Australian shepherd, was a certified service dog. According to the suit, LeHouillier was not satisfied after reviewing a letter documenting Murnane’s need for the dog. LeHouillier feared the dog would soil recently installed carpeting, according to the Justice Department complaint.

LA Times – FBI probes LA Housing Department’s actions in apartment project for homeless seniors with disabilities

The FBI is investigating an affordable-housing deal in which Los Angeles officials channeled $26 million to a developer who they knew was under criminal investigation for alleged misuse of public funds, city officials said Thursday. The developer, David Rubin, was indicted last fall in New York for alleged bid-rigging and fraud, charges unconnected to the L.A. project. The $26 million went toward construction of a 92-unit apartment building near downtown L.A. for disabled homeless seniors. It has sat empty since October while its prospective tenants live in shelters or substandard housing.

Question Time: Community

Question Time is a series in which we open up the floor to you, commenters. We invite you to share as you feel comfortable.

How important is being in community with other disabled people to you? Where do you find community with other disabled people? How do these communities fit in with other ones in your life?

On refusing to tell you my name

In one of those things that some people will nod along to and others will be confused by, I deleted a bunch of accounts late Monday and locked up the other ones as tightly as I could.

Why?

Because someone I work with sent my private email address to someone else. The one that a quick search on any search engine leads to me, directly, with all sorts of things that can get me fired from my job or cut my chances of getting employment.

Specifically, I’m “out” online as being “crazy” [1. I like the term crazy. I embrace the term crazy. I tend not to use it too much online because I know that others don’t like it at all. But I’m crazy, and I’m okay with that.]. I’ve spent most of the past year blogging about having a mental health condition – one that I’ve referred to as being considered “dangerous” to have someone with around.

I’ve tried to be really careful about separating work-online identities. “Anna” is not the name on my ID, and it is not what anyone I work with calls me. Googling my government-ID name and my work-related email address gets you either people who obviously aren’t me, or an unused account on one of the “sort your books” sites. But googling my email address, my private one, leads you here. Or to my now-locked journal. Or to my now-deleted tumblr account.

This is one of the reasons why I get angry when people talk dismissively of those who choose to use pseudonyms online. “Oh,” comes the dismissive sniff. “You’re not willing to stand up behind what you’ve said.” Or “If you really believed that, you’d say it behind your ‘real’ name.”

Women like me – and so many other women and men with “hidden” disabilities, women and men who are trans*, people who are non-gender binary, who are bi or lesbian or gay, people who write about their struggles with racism or sexism or homophobia or bullying at work, people who are otherwise marginalized – risk losing their jobs, having their children taken away from them, risk being attacked in their homes or at work, having their children threatened, just for writing about their lives online.

There are all sorts of reasons people are pseudonymous on the internet. This one was mine. It’s not hard to find people with different, but equally pressing – and even more pressing – reasons for being pseudonymous.

I’m hoping I’ve been overly cautious. I’m hoping this person – who spent Monday sending me threatening emails to my work account – doesn’t notice he now has my private email address. I’m hoping that I look silly and stupid in a couple of weeks when nothing comes of this.

But I can’t count on it.

If you don’t see me posting much for a while, now you know why.

Related Reading:
Once More, With Misdirection
An Object Lesson in pseudonymity and internet privacy
On being a no-name blogger using her real name

Note: Any comments on this post are going to be slow to moderate. I won’t be publishing anything that attacks the person I work with, though, since that person is both not here to defend against such comments, and because I do believe it was one of those things where someone did something thoughtless, rather than deliberately malicious. The results are still the same, though.